Soulless

That pesky grief monster sneaking up on innocent folks again. Should be a law about that. On sorry I forgot our Government ceased being a viable legislative body two years ago. Still we can look forward to Johnson or Hunt now. OMG. One is a self serving buffoon who dresses up outrageous racist comments as free direct speech. A man whose middle name should be dishonesty. The other is a man who forgot which country his wife was born in (supposed to be our Foreign Secretary) and who wilfully wrecked our NHS.

So no help coming from the Government any time soon then.

I was having a 50 minute walk – can’t believe how much I miss my runs. Tired but been worse. Then out from a side path a couple emerged. Holding hands and clearly so in love. Suddenly waves of grief and remorse smash me into the ground.

That was us a few years ago…

We should be still holding hands today…

Those days have gone…

Suddenly I feel very tired, very old and very broken.

It wasn’t supposed to turn out like this.

An hour later I’m back at work but basically I’m going through the motions. My heart is trapped in a different year. It’s unlikely that it will be released. I feel soulless, yes that’s the word, SOULLESS. Just an empty shell. Just focus on that one job – give our son the best childhood possible. That gives me a purpose. Something to keep me going.

Tell me why

In my voice – Tell me why

  • My partner was taken from us when she was so young.
  • The system continually fails our son.
  • The Government can find billions to bribe other parties to keep it in power but can’t find the money to fund education support for the kids who need it.
  • I don’t sleep anymore.
  • They say the world is getting smaller yet I feel so isolated.
  • Chocolate has so many blooming calories.
  • Hair doesn’t like growing on my head yet it sprouts like an Amazonian Forest on the back of the my hands.
  • The cat continually finds a way into the wardrobe.
  • I can’t find any socks in this house.
  • They never made a Captain Scarlet movie.

In our son’s voice – Tell me why

  • My mum had to die.
  • Both my grannies had to die.
  • My hamster had to die.
  • My girl cat who was like a sister to me had to die.
  • I can’t read.
  • Some people think I am stupid just because I am autistic and dyslexic.
  • Shops have to be so busy.
  • Hazard is leaving Chelsea.
  • Do people have to kiss in films.
  • Marvel Movies are way better than DC Movies.
  • Most kids don’t like rock music.
  • Broccoli wasn’t deemed an inedible plant.
  • My Dad can’t cook.
  • In our dogs voice – Tell me why
    • I get shouted at for pinching socks.
      I get shouted at for digging holes.
      I get shouted at for eating garden tools.
      I get shouted at for eating garden furniture,
      I get shouted at for digging up plants.
      I get shouted at for burying stuff like socks.
      I get shouted at for pulling bits of the apple tree off.
      I get shouted at for escaping.
      I get shouted at for climbing in the hedge.
      I get shouted at for eating cat poo, cow poo, sheep poo.
      I get shouted at for pinching food.
      My best friend isn’t with us anymore. I know I am a dog but she was a really cool cat.

    In our boy cats voice – Tell me why

    • My sister isn’t with us anymore.

    • My best friend, the really lovely woman has gone. I miss siting on her lap.
    • I get shouted at for missing the cat litter by several feet.
    • I get really shouted at for missing the litter by so many feet I hit the wall.
    • I get shouted at for sitting in front of the TV when a movie is on.
    • I get shouted at for sneaking into the wardrobe and getting white hairs on all the black clothes.
    • I get shouted at for falling in hot plates of food.
    • I get shouted at for always tripping people up.
    • I get shouted at for sleeping on the laptop.
    • I get shouted at for sleeping on the toaster.

    In our gerbils voice – Tell me why

    • We don’t live in a toilet roll factory.

    Alone

    Complete white out. Zero vision. Your boots constantly struggling to find grip on the sheet ice. All you can hear is the wind howl and your rasping breathe. Somewhere to your right are bone breaking crags, to your left a 200 feet sheer drop. Holding the ice axe waiting for the inevitable fall. The trail has disappeared. The map is useless. The compass won’t give an accurate reading. Alone. Are you too far right or god help you …. too far left. Too late to turn back. Your only guide is to follow the sharp slope upwards to the summit.

    The delights of winter mountaineering. Or is a metaphor for life. Disorientation, lost, no idea where your going, unattainable goals, alone, no plan, fear and panic.

    Then hope. A kind word. A caring hand in the dark. Brief enlightenment.

    The clouds briefly part. The beautiful mountain summit reveals itself. You survived that crisis. Panic subsides. Your pounding heart starts to ease. The break in the clouds is short lived. But you have a path. You have a direction. You have hope. The climb continues.

    It’s rant time….

    I’ve talked about walks quite a bit recently. Hopefully I won’t stray too much onto old ground on this rant. Apologies it is a rant.

    One of the benefits of a walk in nature is that it helps you forget about our world, my country.

    Deep breathing and it begins…..

    We are so lucky to be sitting on this magical rock, in this special little place in the Universe. We live on a planet which is beautiful and can provide for all of us (if we let it).

    I live in a stunning county in a once lovely and diverse country.

    I used to love my country but I deeply hate what it has become.

    A place where someone thinks it’s ok to string dead Jackdaws on the gates to a TV presenters house because he makes a stand for animals in our country.

    A place where one of our finest and nicest politicians is stabbed to death while trying to help someone.

    A place where our so called PM is not prepared to meet a 16 year old who wants to talk about the climate but falls over herself to find the time to meet leaders of regimes who regularly execute hundreds of innocent people.

    A place which like many lands is slowly drowning in a sea of plastic.

    A place where too many people are happy to take a risk on the world burning and happy to use up its resources today just because it’s not their problem and someone else can sort out the mess when they have gone.

    A place where some people think it’s ok to poke fun and demonise kids dealing with things like Autism and Aspergers.

    A place where extremist on both sides of the Brexit argument have taken control of our national agenda.

    A place where you are labelled a traitor if you dare to go against a particular thought pattern. Demonised for rocking the boat.

    A place where the establishment happily allow extremists promoting religious and racial intolerance to be seen as acceptable political parties.

    A place where the national broadcaster happily gives air time to the views of a minority group and its leader who openly promotes violence.

    A place where we continue to ignore the plight of the survivors from the Grenfell Tower disasters two years after that dreadful night.

    A place where loathsome, self interested and self deluded buffoons run our country for no other reason than because of their privileged and elitist upbringing.

    A place where the government thinks it ok to dismantle our health and education services because money doesn’t grow on trees. Yet is happy to spend billions on giving bungs to minority parties to safeguard their own jobs. A government happy to waste billions on administrating it’s own cock ups.

    A place where food banks are our fasting growing institutions.

    A place where we value the contribution of millionaire bankers above the contribution of our wonderful nurses, teachers and emergency services.

    A place which worships at the alter of celebrity.

    A place where growing numbers of our population cannot afford to access decent transport links.

    A place where our Mental Health services are straining at the seems trying to deal with the rising numbers of people suffering in our communities. A fact ignored by the Government.

    A place where a public library is now becoming a rarity.

    A place where the Government tries to force the disastrous Fracking Industry on communities. Communities carefully selected to be far away from the rich and privileged.

    A place where too many of our care homes are delivering shameful levels of care.

    A place where we think it’s acceptable to net off potential nesting sites for birds and animals so as not to hinder building expansion plans.

    A place where we continue to eat into our unspoiled wild lands yet ignore the huge disused and derelict areas in our urban sprawls.

    A place where every night someone else dies from knife crime.

    A place where every night homeless people die on our streets.

    And on and on …..

    It’s time to breathe again. It’s time to make my way to that overgrown tree trunk and focus on the beauty which still exists close by. It’s time to forget that I live in this country.

    Storm Bunker

    We had a large thunder storm pass over this afternoon. The cat was taking no chances. After the first bang he made his way to his storm bunker.

    Unbelievably the early morning cinema screening was very full. The cinema was mobbed. Not seen crowds like that since the ‘Everything for a Pound’ Store had a sale. It’s not a statistical significant sample population but from the early morning hordes I guess that The Avengers movie is going to pull in some astronomical numbers.

    And yes it is an astonishing movie.

    Yes the crowds unsettled our son but we took our customary place on the front row so no one could be in front of him or to the left of him. It’s so close to the big screen that I come away feeling like I’ve been chewing on magic mushrooms but it works for him.

    For 3 hours we both lost ourselves in the Marvel Universe. All our problems and anxieties forgotten. Heroic deeds fill your heart. With even a bit of free grief counselling thrown in by Captain America. But sadly it doesn’t last. You eventually find yourself back in the same place with the same issues.

    In fact it feels like we have regressed. Fifteen months ago we eventually secured some anxiety counselling for our son. I say ‘we’ as the fight to get some help started while my partner was still very much with us. It seemed to really benefit him. Progress was starting to be made. But now due to cutbacks that support has dried up. The anxieties are building and it feels like the system has cast him adrift again. We have been lucky really – far too many families get zero help – all they get is patronising comments from politicians who have no interest beyond their off shore bank accounts and rich friends.

    So as the thunder rumbles on we try to fight demons. Health anxieties, fear of death, school anxieties, friend anxieties, social anxieties, reading anxieties, fear of being left alone anxieties…..

    I’m no psychologist. I’m no health professional. I’m no education specialist. I’m not a grief counsellor. I’m just a parent trying to figure out this increasingly bizarre world with no one to help guide me. Doing the best I can. Deep down this scares me as what chance do I have when I can’t even come close to fixing myself. Queue worried face. 😱

    Pleased to report the immediate threat to life and property must have passed as the cat has made his way back to his favourite chair again. That’s one less worry to deal with.

    Bogless Garden

    The Bog Garden needs some rain to become boggy again. Maybe soon as storms are forecast. It can’t be much fun being a bogless garden.

    Making friendships can be difficult for our Son. Maybe it’s part of his Aspergers, maybe it circumstances, maybe it’s something else. He loves texting a cool friend but they are separated my thousands of miles. He doesn’t often get to meet up with kids his age. Son has come across a few really nice kids. They let him tag along sometimes. He does like the feeling of spending times with friends. I think we all need that somedays.

    However the kids will often talk about the stuff they do. The meet-ups, the sleepovers, the trips, the clubs and birthday parties. Stuff he doesn’t get the chance to experience that often. That’s tough for a kid. Also after a while they often split into pairings and son tends to be left by himself. You see the kids walking in one direction and son heading by himself in another direction. I can tell when he comes back that he’s kinda sad. He’s so enjoyed the time with them but it does make him feel lonely. Today was a good example..

    As he walked back slightly apart from two of the other kids I asked if he was ok.

    “I think it’s time to go Dad. I’ve had fun and they have been very nice to me. But it was getting a bit awkward as they are best friends and wanted time to themselves. I could tell. It’s time to see my best friend my dog.”

    I’m so pleased he is getting a bit of time with kids his age. But I get so down thinking about the wider picture for him. I really get how he feels for one very good reason.

    I feel the same with my life. I get to link with a number of really close friends online but they are many many miles away. I occasionally get the chance to spend time with some really nice people. But they have their own life’s, their own close friend groups, their own families. I hear about the stuff they do, the holidays, the nights out, the meals, the parties, the romantic moments. I’m so pleased they get to do that stuff, they are such nice people that they deserve the happy times. But it’s stuff I don’t get to do anymore. A life I feel excluded from. That’s such a lonely and soul destroying feeling. I’m old and gnarled….. that’s just tough luck for me. BUT you just don’t want your kid(s) to experience the same feeling. All we can do is crack open a couple of sodas, hit the trampoline and see how many footballs our dog can destroy today. Time to try and forget stuff.

    Alpine sunset

    This photo was taken on the last night my partner had in her beloved Switzerland. During a stunning sunset. Watching the moon rise over the Alps was just the most wonderful experience.

    Little did we know that she would be gone 12 months later.

    This is a photograph I can look at and still smile. Other photos bring tears but not this one. Don’t know why. In fact the more I think about it this was probably the last Swiss Photograph. It really should bring tears. Strange.

    That night we racked our brains trying to work out ways of emigrating here to retire. Drawing up plans for spending all of our long life’s together. So many plans. In reality just pipe dreams with no chance of coming to fruition. The one thing we never factored in was an early death. You never do probably.

    A few days ago I walked behind an elderly couple who had been shopping. They walked slowly hand in hand. Behind them a broken man walked sobbing his eyes out. In our pipe dreams that was us in thirty years.

    I can’t tell how much that hurts.

    Sneaky Grief

    Grief sneaks up on you. It often doesn’t attack head on – when you can brace yourself for impact. The big hits are the attacks from behind – the ones you don’t see coming. That song on the radio, an unexpected find, a hidden photograph, a surprise film scene.

    In the U.K. Mothers Day is fast approaching. It’s not an easy day to get through but it’s no surprise. You have weeks to prepare. It won’t be fun but I guess it won’t be a complete meltdown. I suspect I will blog further on this again.

    Taking the dog for a walk in the local Arboretum. It’s a lovely relaxing place. I was using the walk to get my head round a work problem. The mad dog was happy – a dog and an Arboretum full of thousands of trees …. Pup Heaven.

    So I was in autopilot. Just following Captain Chaos from tree to tree. Starting to form a viable fix to the work problem. Then I stopped dead in my tracks. A sudden realisation of location. A sudden sinking heart. Suddenly hit by a sneaky grief attack.

    In autopilot mode I had drifted into one particularly beautiful area. During autumn a place glowing with silver leaves. A place my partner would repeatedly visit. I can see her face smiling at the view. A place where she wants part of her ashes scattered. A flood of tears and complete despair. I feel very old and so very alone.

    But thankfully for my sanity I have designated role. Our Son needs me. He deserves the best childhood possible. So I let the dog pull me away from the area to a particularly exciting unmarked giant Tree.

    Put away the tissue. Breathe. Refocus. That wave of grief has passed but I know that the tide will return.

    Those pesky Vikings

    Living with anxiety is the real deal for so many people and kids.

    DAD, DAD I am getting really anxious, sorry its the middle of the night”

    Anxiety seems inexplicably linked with Autism. We are so used to these panic attacks. They can happen at any stage.

    This one is a daft one. A really daft one. But I am panicking”

    Son there are no daft ones. Whatever the cause – panic attacks are awful. We call it the anxiety vortex. When they take hold they just keep gaining strength – making rational thought almost impossible.

    It sillier than the school history one”

    At school the teacher was talking about the Middle Ages. The Black Death came up. The whole thing unsettled our son. Given what he has been through Death haunts his soul. When he did some research he found that the cause is still not agreed upon but it could be bubonic plague. Bubonic plague still kills today. The anxiety vortex took hold. It took a couple of days of hard work to bring it under control. We are still trying to extinguish that one…

    “Dad when I went to the York Dungeons. Well it was fun and kinda scary. Well one room scared me. It was the vikings. The models looked awful as if they had the plague, the room smelled of death. All I can think about is Ghost Vikings. Ghost Vikings coming to get us. I know it sounds daft but it’s starting to unleash a lot of other vortexes.”

    So during the night we talked about Ghost Vikings. We talked about a lot of things. Stuff like that today football is super popular in Scandinavia – if Viking ghosts did come back they are more likely to want to play football than go on a violent pillage. Stuff like given the astronomical price of Alcohol in Norway the ghosts would just be heading straight for our pubs and our village doesn’t have a bar….

    This one was a relatively easy vortex to tame. Yes we could easily debunk it. But Anxiety and fears are so very real. Many cannot be tamed. Many more are still to be unearthed. If you are suffering I send you my love. It is so so tough.

    An introvert?

    Building a snowman here while lots of people walked past looking at me as if I was crazy. Five yards to the right is a high street full of shoppers and tourists.

    I know I tell a few tales that might suggest that I am an extrovert. I really don’t think that’s the case. After the all too many retreats into my protective shell I often here something like “I thought you were an extrovert”.

    Extroverts don’t tend to

    • Have a nervous stutter when talking to strangers
    • Frequently wait for the coast to be clear before you leave the house
    • Turn in the opposite direction when you see someone who might talk to you
    • Avoid social and family gatherings
    • If I do go to a social event, be the awkward one stood in the corner behind the potted plant

    So why the drastically opposite personalities. For the first time I thought about it during yesterday’s sleepless night.

    Is because I am an Ambivert. A bit of an introvert and a bit of an extrovert.

    Is because I am an extrovert permanently stuck in an introverts shell.

    Is it because I don’t really fit into this world and occasionally I feel the need to do some grand action to confirm that I do fit.

    Autism.

    Is it a pressure release for my building anxiety levels.

    Is it because I want to be extroverted and when I do find a group of friends I feel confident with I then act out my dreams.

    Is it one or two too many sherbets during my younger days.

    Is it because I am basically daft.

    Is it because I too frequently switch off my brain.

    Who knows. I do know that my extroverted moments are becoming very rare these days. Especially since the world changed. But at least I can look back at some interesting memories. Some reasonably funny, many extremely embarrassing. Most importantly no animals or other people were hurt in the making of these moments.