Five Things

Its been one of those days. About 24 hours of work to be done but I only had a window of opportunity between 8.10am to 4.30pm – extra hour of school on a Thursday. On top of that I needed to clean the house, change the bedding, complete a review form, clean out the Gerbils, mend a pair of jeans, Iron, try to stop a utility firm from sending adverts addressed to my partner and pay some bills. Never going to happen.

Especially when

  • The school bus left early so we missed it. So an unexpected car journey took place,
  • Captain Chaos found a new escape route out of the garden. So a full search and recovery mission had to be launched. Once the dog was safely back in the house I had to repair a new hole in the fence,
  • The hoover drive belt snapped. Luckily I had a spare but it took a while to find it…
  • Two unplanned urgent ‘drop everything’ jobs came in,
  • I couldn’t find my bank card to pay the bills. Mad panic and frantic searching. Eventually located bank card but in the process of searching I came across my car insurance policy. It’s about to expire so needed to reinsure urgently.
  • Couple of hours later Captain Chaos escaped again. Clearly the repaired hole was not his escape route. So another search and recovery operation had to be launched,

Halfway through completing the review form and our son came back from school. The window of opportunity snaps shut for another day.

Anyway at least the Gerbils are in a clean cage now and Captain Chaos has had two new adventures.

In the UK it’s Mother’s Day soon. It’s a good time to give a shout out to all the mums out there. I struggle to cope with one day of this – you do this everyday. Thank you for being brilliant.

Decibels

Currently the mad dog is being completely bonkers. It’s a kinda let’s bark at everything type of day. Currently the apple tree is getting it. But as the decibels rise my mind wanders to that quiet little pup. What happened…..

Son is not impressed. If you look closely at the photo you will notice that the duvet cover is Peppa Pig themed. It’s a perfectly good cover so is still used today when his Jurassic Park one is being washed. Son doesn’t really see the practical benefits.

You do know Peppa Pig is for little kids. It’s not as if I’m watching it. I know you do when you get the chance, but not me. I was watching about the Black Death last night..”

I do have to admit that a quick bit of Peppa Pig, or the Clangers or In The Night Garden is strangely therapeutic. And yes I can’t remember the Peppa Pig episode which featured the Black Death.

All my parenting waffles are subject to a major caveat. As statisticians would say – it’s based on a very limited sample size. Like one child. One child on the autistic spectrum with dyslexia. So when I see something I can’t be sure if that is just particular to our son or is a common thing. The only other benchmark I can use is my childhood. That seems a long time ago…..

Son has a lot of areas where he is more developed and refined than his Dad. Seemingly way beyond his years. But also in a number of areas he probably still reverts back to the Peppa Pig years. Cuddly toys. Not wanting to leave the safety of the family nest. Mr Men stories. Petting Zoos. Toy cars….

Maybe it’s a fear of growing up.

But I can relate to this. Not wanting to completely forget your early childhood days. Now where is that Peppa Pig dvd….

Speaking about not forgetting things.

It’s the Great Bloggers Bake-Off this Sunday. It’s all about having a bit of fun. Pop over to Mel’s blog – Crushed Caramel (Learner at Love). She has done so much work to set this up.

Our special judge is A Jeanne in the Kitchen.

Let’s go Sunday Spongecake mad.

Please send photos of your creation(s) to crushedcaramel@gmail.com

Martians just made the list…

Sometimes you just have to get up close to flowers. Neighbours must think I am stark raving mad….

Sometimes you have those days. Days were you get up close to flowers and also end up pulling out what’s left of your hair.

School has been verbally told (many times) and been provided with extensive case notes for our son. Just in case school didn’t fancy reading War and Peace I helpfully provided a two page bullet point summary. Bullet Point 6 said

Can have poor judgement in relation to risk.

Bullet Point 7 adds

Has a diagnosis of Dyspraxia. Has very poor fine motor skills. Struggles to use pens. One to one Care and supervision needed when using sharp objects.

Under the section relating to specific school subjects

Design & Technology. One to one supervision required when using cutting tools, drilling tools and impact tools.

Additionally school has been given a verbal and written update on his current broken hand. Although the bone has heeled he is undertaking physio to try and get his hand working properly again. So he in effect still just using his weaker left hand.

Today was his first Design and Technology lesson. So it was also a fingers crossed type day. Funnily enough it was also a plaster type day……

He came back home. His thumb and two fingers covered in large plasters.

“Dad I had a bit of an accident. I was trying to saw using my left hand. The teacher shouted out an instruction to the class. I got distracted and I started sawing my hand rather than the wood…”

Apparently he wasn’t given any one on one supervision. He was allowed to use a normal saw with his wrong hand, with no additional safety measures in place. – Maybe I’m just being an over protective parent. It’s a natural thing to do.

Dad funny thing is the lesson was about safety in the workplace. Guess I’ve already failed…”

So that’s something else we will be discussing at his school review meeting on Friday. Could be a long meeting because it’s one sizeable issues list….

But let’s try to finish on a brighter note. We sat on the grass next to the daffodil patch with ice lollies in hand.

Dad up close Daffodils take on a completely different perspective. If your a bug looking up at those yellow giants, it must be terrifying. Do you think HG Wells got his idea for the mechanical Martians from Daffodils”

As I pondered that the mad dog ran up and before we could stop him, he cocked his leg on the Daffodils. Poor bugs scared to death by Yellow Martian Giants and now doused in Acid Rain. I wonder if an overprotective parent bug may have just added an item to a miniature and a tad damp issue lists. We can wonder.

Blue Croc

Captain Chaos with his beloved blue crocodile. That poor croc needs years of therapy.

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When a parent dies it is so tough it is difficult to explain the feeling. That’s a so called adult speaking. Imagine what it’s like for a young kid.

I lost my dad when I was 21. He had been ill for years. I got the feeling during the last period of his life that he was trying to keep going just to see me graduate. Sadly he missed out by a few months. It was a numbing experience but the pain was mitigated a bit as I had been expecting it to happen for ages. I was sort of prepared. My mum died a couple of years back. It was a complete shock. But a five years earlier she had suffered a massive stroke. Doctors told us to prepare for the worst. Yet in a month she was back in her house – still able to live independently. In some respects it felt like the years after the stroke were a real bonus. She got to spend time with her grandson.

But for our son we have no mitigating factors. He had just been to his beloved grannies funeral and a week later his mum goes into hospital for some routine tests. His mum deteriorated rapidly and completely unexpectedly. He was visiting his mum in the hospice two weeks later. For someone so young that’s devastating.

We still get tears but now he can talk about his mum. He can laugh at the good memories. But the anxieties caused by that period of death are still impacting his daily life. He is so worried about becoming ill and also about losing others close to him. Today is common. We have had anxiety about catching illnesses. Worries about dying. On top of that every time I sneeze or cough he runs to make sure I’m ok. We try to find ways to ease the anxieties but it is still so tough for him…..

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Son comes back from school to be greeted by Captain Chaos and a well chewed croc. That’s one thing that works.

Sequel

When you need a smile here comes our own member of the Avengers. Captain Chaos.

As we surveyed the second attempt at a fudge cake.

Well Dad the first one was burnt to a crisp. However the sequel has completely collapsed in the middle and smells of curry….”

This brought on a discussion about sequel (sort of) films.

Son thought the Depp Charlie and the Chocolate Factory was warmer and did not feature Charlie breaking rules. In his opinion Mike TV should have won the first movie.

The first Guardians of the Galaxy beating the sequel. Son believing the second was too sad at times.

The second Paddington movie just edging out the first one. Son thought the first one had a better story but the second was funnier.

The first Home Alone winning over its sequel. Son thought Kevin was just too annoying in the second and that the poor criminals were just unnecessarily tortured.

The second Jumanji edging the first one. Son found the second one just a bit more funny.

Any thoughts. Now onto the third fudge cake attempt.

Cat Stew

Sometimes wonderful views take your breath away. This was taken on our last holiday. While my partner and son slept I would sneak out for an early morning run. The run would take me along a path which ran along the edge of Lake Thun. It was just stunning.

Sometimes it’s other things that take your breath away.

Last night I had made a stew. I left my steaming plate of food on the kitchen table while I delivered our son his stew and 2 tons of tomato ketchup. Crash. On my return to the kitchen I had an out of body experience. We have a very accident prone boy cat. Yes you have guessed it. He was lying in my stew. Waiter there appears to be a cat in my food. He was covered in gravy and vegetables completely oblivious to the world. He seemed most puzzled when I pushed him onto the floor. He was even more puzzled and slightly terrified as the dog decided to feast on the four legged plate. My option b meal, a cuppa soup was far less appetising.

I’m still finding bits of stew strewn around the house.

Usually the dog won’t have anything to do with the boy cat. His bestie is the girl cat. However today it’s a different story. Now he’s discovered the boy cats talent as a mobile dinner plate. He is hopefully following him around trying to be friends. Let’s hope the boy cat has learnt his lesson as tonight it’s a curry.

World War petZ

All hell broke out today. Sat with a hot drink trying to convince the laptop that the Excel Macro I had just produced was in fact perfect and not full of errors WHEN

The two cats and dog started scampering around the house like crazed banshees. Chairs crashing into walls, photos knocked off tables, books sent flying. I found the Living Room in a state of destruction as if World War Z had broken out. Three pets clawing and scratching at the bottom of a large sideboard. Oh bugger have we got a visitor and it’s the hunt. Annoyingly the sideboard had a small gap at the bottom big enough for a hiding space but too small to squeeze my hand into. Wonderful going to have to move that 8 tonne chunk of wood. Have to try and rescue the trapped creature.

Could it be a scary House Mouse

Could it be a deadly little shrew

OR is it

one of these little plastic Dalek (Dr Who) megalomaniacs.

Yes after breaking my back, trapping my fingers and squashing my toes – the sideboard was finally moved to reveal a DALEK. Yes the little darlings had been having a fantastic time warping adventure game. The pets excitedly claimed the prize and continued the game in another room. Well that was 2 hours well spent. Unfortunately now the 8 tonnes of wood have to moved back and the pets can’t help because they are too busy saving the earth from a Dalek invasion. Deep Joy!!!!!!

Dad sit down

Today was supposed to be a full on work day. But again the Laptop had other ideas. Clearly it was an update day. Luckily my old tablet came to the rescue. A slow rescue but it was a rescue. I did find a use for my laptop. As it updated it got warm and a nice warm thing is too much for a dog to resist. So my laptop is now an expensive comfort blanket to sleep on.

When our son arrived back from school he was smiling. One of those smiles.

“Dad sit down”

No it’s ok

“Dad no I think you should sit down”

Ok I’m sat down, go on hit me with it.

“Well I tried doing the work with my left hand. It was bad. Anyway for the Games Lesson I was sent to a teachers room. I was told that I could do my homework. I told the teacher that I had no homework which needed doing. So she said I should just get a book from the shelf or do something educational on the iPad. I just sat and tried to play Crossy Roads for an hour. I beat your record.”

Well that wasn’t too bad, maybe next time find something rather than a game to do. Certainly don’t beat your dads best score…

That’s not all. During one of the lessons I banged my right hand on the desk. It really hurt. But the teacher just told me to carry on working”

That’s not good. I’m going to speak to the Head about that.

“Not finished yet Dad. They have decided which options all the kids are doing for the next term. I was told that I couldn’t do the option I selected because of my hand so they told me that I have to do another one. They have given me the Book Reading class. Do you think they have forgotten I’m dyslexic.”

The Book Reading Class for a dyslexic. You couldn’t make it up.

Christmas comes early

Another trip to the fracture clinic and our son is super happy. Yes he’s still in pain, yes he can’t use his right hand but the Doctor has said the magic words

“I’m afraid you need a few more rest days so it’s another week off school”.

So it’s no more school until 2019.

To someone who goes through so much anxiety because of school it’s an early festive gift for our son. Does cause problems for me but seeing our son more relaxed – it is a price worth paying. More work can be done at home (updates permitting). The car will have to survive a few more weeks without some much needed and overdue garage TLC. Tonight I will desperately check out which food stores can home deliver this week. Like many kids with Aspergers a visit to a busy supermarket is hell on Earth.

So I sit down with a cup of tea and the laptop. One eye keeps checking out the Harry Potter movie on the TV. The pets come to join me on the sofa. Then it’s return of Windows update madness again. Surely we can find a more convenient way of maintaining our Computers. One which doesn’t stop the world turning. So so thankful my ancient tablet is not Windows based.

I am reminded of a recent conversation with our son. He was convinced that computers should be completely redesigned and remodelled taking lessons from nature. Namely the shark. Some sharks that live at the depths of oceans and seas, for example the Nurse shark, can drop to the ocean floor and enter into something equivalent to our deep sleep. But other sharks like the Great White can’t do this – they need to keep swimming. Our Son reliably informed me that much evidence suggests that they effectively reduce brain activity down to a minimum in one part of the brain while the other part of the brain continues normally. It could be that the spine which is responsible for swimming may have some operational independence. In effect part of the brain shuts down to sleep and the shark continues to swim. So we should redesign the computer processor so that part of it can be updated while the other half continues to work. Dual processors should easily facilitate this. Sounds good to me sat here with laptop displaying an “out to lunch” message on the screen. But it does raise the question how much of our lives would be transformed if we let kids with a different take on life start designing our world.

Anyway let’s watch Harry find the Chamber of Secrets. Maybe at the end of the movie my laptop will grant me a couple of hours operating time.