Posted on by bereavedandbeingasingleparent · 70 Comments

Which way

In life you get asked so many questions. But some questions keep repeating themselves. Like the classics ‘Are we there yet?’ and ‘where’s the remote control?’.

Then there are other questions. More vexing questions. One question keeps popping up. I’ve been asked this by family members, other parents, teachers and even once a nurse. It does have a number of variants but it’s basically the same question

Will your son get better?

Will his Aspergers improve?

Will his Aspergers improve as he gets older?

I’m no clinical specialist. Just a bumbling parent. But here’s my take on the question.

Aspergers is a lifelong syndrome. It’s not going to get better. Its not going to be cured. It’s not going to disappear. What might change is that over time the individual and the family may develop strategies to help deal better with some of the situations life will throw at them. Also some of the specific symptoms may fluctuate over time. For example in a number of individuals something like repetitive hand flapping may become less prevalent with age. Also Aspergers often coexists with a number of other conditions – dyspraxia, ADHD, dyslexia…. It is possible that some of these conditions could improve with time. For example our son has with hard work started to overcome some of the issues which his dyspraxia and dyslexia had caused him in his earlier years.

So yes it is possible that improvements may occur. But here’s the thing, it’s not guaranteed. Each individual case is different, unique. Things may stay the same with age. They can also get worse with age.

So we just don’t know.

The Clinical Psychologist who did the full review of our Son was quite clear. The majority of his Aspergers related traits will stay with him over his life. However at around the teenage period changes may start to occur. It could go either way. He could become fully independent or he may regress and may need some form of life long support. She talked through a number of possible scenarios. One scenario was that some improvements would occur potentially in the areas of dyslexia and the diminishing of some of the repetitive behaviours. Another scenario painted a downturn in his existing anxieties and fears. This could occur naturally during his teenage years or could be triggered by a single significant event which effects his view of the world. Tips the balance in his risk assessments of the world. This could lead to significant mental health concerns and potentially social isolation. Where we are sat currently, we are not a million miles away from that scenario. The triggers – the death of his mum, a pandemic, his teenage years…. He is currently physically cut adrift from the world. His fears and anxieties ramped up to the rafters.

Nothing is set in stone. We just have to go with the flow and see what life brings. It could be still be a fully independent life. But it could also entail a lifelong requirement for support. In this country we don’t cater for the latter scenario. Support has to be fought and won for young children. That support is at best is patchy. During the teenage years the support tends to be reduced due to funding cut backs. By early adulthood the support has completely vanished. That’s a sobering thought for parents in this position. It really is.

Posted on by bereavedandbeingasingleparent · 93 Comments

It’s wet

It’s definitely wet today. Pouring down and very cold. All rather depressing so let’s take the time to look at a bit of nature’s colour.

Do you ever have those conversations. Those conversations where the words seem to head in one direction but actual the conversation clearly ends up in a totally different place. Ever so frustrating.

I’ve spoken to school about Hawklads enforced school at home project. I thought I had explained to school that although it’s kind of working it was far from ideal. In particular

  • He is getting absolutely zero feedback. He is submitting work but getting nothing back. The other kids are clearly getting marks and comments back. That’s clear from some of the teacher comments on the set work tasks. But those comments are always aimed at other pupils. If he doesn’t get feedback then what is the point.
  • Have the teachers forgotten that he is dyslexic. Comments like ‘if I don’t get round to sending you tasks for the lesson then just read a book on the subject’ don’t really help….
  • Have the teachers forgotten that he has difficulty in hand drawing. He struggles with fine motor skills. I can’t believe the number of times the set task is to hand draw something – unbelievably that is currently not Art.
  • Some of the subject teachers are still completely forgetting about Hawklad. No subject material at all has been made available.

Anyway the school seemed very supportive, so surely job done. Clearly not as the school responded with an email basically saying that they were happy that things where going so well. They will keep going with the current approach and they hoped that we would keep in touch…..

Sounds like it’s time for me to most definitely stay in touch with them right now.

Posted on by bereavedandbeingasingleparent · 68 Comments

Turning

Those leaves 🍁 are turning. Autumn is coming.

Well actually the last few nights it has felt like winter has already arrived. It’s been freezing. Heating and lights full on. Jumpers (sweaters) most definitely are out of storage. I’m not very organised but I do always remember where I put my million jumpers. Normally I have all of them on at the same time.

So school starts on Monday. Our Son will not be returning at that time. If and when he returns is a matter of much uncertainty.

“Dad have school decided what is happening on Monday then ?”

Not yet Hawklad.

“Has school sent you the new codes so that we can check the online pupil pages for each subject?”

Not yet. Until we get these then we are basically stuffed.

“So what will I be doing?”

Not sure as yet. I don’t have the school timetable. Don’t know what the subject teachers will be looking at.

“As I’m now in a new set we won’t even know any kids we can ask to see what they have been doing.”

No. So I can’t speak to any parents and see what they have been given.

“So basically Dad we will be winging the homeschooling thing.”

Yes definitely winging it.

“So a bit like your cooking then. Bit of a disaster…”

Yep, but at least it won’t be dull.

“If it’s bad then I’m going back to bed. Just to let you know.”

Don’t worry son, if it’s that bad I will be resorting to building lego sets…

***********

As it stands the plan is

  • Follow the school timetabled lessons for the day,
  • Email the individual teacher for a guide to what we should be doing….. not entirely hopeful about that. Failing that will see if any lesson notes have been loaded onto the pupil online pages ….. these are often blank or feature very brief notes loaded days after the lesson,
  • Look out for any homework tasks being posted. Submit these to the teacher somehow,
  • Try to find relevant videos online for him to watch. The BBC and other countries have some good resources,
  • Send copies of any work he does to the teacher …. somehow.

Yes winging it sums it up perfectly. I’m actually quite relaxed about the schooling side. The key is for our son to be in a good place. Assuming he is not at school for this half term, then it’s just about keeping him from falling too far behind the rest of the class. Certainly not looking for him to get gold stars. If keeping his hand in means he gets the school day done in an hour, then so be it. More time for him. More time for him to try and reconnect with his happy side.

The key thing is.

Yes we are doing school but it’s not the priority.

Posted on by bereavedandbeingasingleparent · 80 Comments

Monday

Got to just follow a trail. Hope it leads in the right direction.

So the school reopens a week today. Most kids will return. Some won’t. Our son will not be able to return at this stage. How long will he be out of school. Weeks, months, permanently – no idea. So we have to work on the assumption that he will return at some stage. So with minimal help from school and nothing from the authorities, who do we try to keep him on track with his classmates. To ensure that if and when he does return that he has not fallen behind.

The plan is to get the class timetable from school. That will form the basis of the learning each day. We won’t stick to the class timings but will try to focus on covering the subject matter. First call will be any lesson notes that are posted in the school system. Ensuring we do any work assignments that might be posted as well. I will ask each teacher to at least provide an indication of what topics will be covered and the copies of any handouts that are provided. Then it’s Dad trying to be teacher, looking for relevant videos and resources on the internet. All work completed will be emailed to each teacher at the end of the day. Any gaps we will make up with stuff son wants to cover.

If this school at home project extends further then I will supplement gaps with buying online teaching packages.

We are lucky that my work has basically dried up. Not much until 2021 at the earliest. The positive is that frees my time up to focus on being a teacher. Maybe I need to dress like a teacher?

That’s the plan. What could possibly go wrong.

Posted on by bereavedandbeingasingleparent · 58 Comments

Forgotten

Isn’t the human mind strange. Somethings you just can never forget. Hopefully mostly the really nice, beautiful and precious things. They are always on your mind and then other stuff just seems to instantly disappears. Not just stuff like ‘where I put my car keys’, ‘what did I put on my shopping list when it’s been left at home’ and ‘what on Earth was I thinking about when I decided to support Newcastle United’. Could be precious memories, important details and posts. I wrote a post in June and yes I forgot all about it. Poor thing just sat gathering dust in the draft folder. Well yesterday I remembered it.

Unfortunately some of the post is out of date now but at least one bit is still relevant. So here goes then. A few months late and heavily edited but I give you a forgotten post.

*********

So we have a few weeks left of homeschooling. Maybe more. Son’s anxieties are starting to mount. The government is committed to reopening the country at breakneck speed – have we really got the pandemic sufficiently under control. No sign of a vaccine. Just feels like the infection numbers will be back on the rise very soon. So maybe homeschooling will still be the option after the summer break.

As a family we have learned so much from the enforced school at home project. Most of these I have already mentioned. But one very large and ignored elephant is sat in the room. ZOOM.

All children are different. Unique. Surely the key to education is to look at each child and see what works for them. Unfortunately the UK approach is fast moving towards the production line education model. Labelled Victorian Values. One set curriculum, one set teaching method, try to minimise input costs, force all kids through the same hole and then try to carefully control the outputs. Variations are seen as very bad.

So when a teaching approach is adopted then it is forced on all pupils – even if it doesn’t suit them.

In terms of our son it’s clear that he functions best at homeschooling when he is given research to do, watch videos, complete online questions. He works in short bursts. Maybe 20 minutes max of concentration then a quick walk about or something to reset, then he goes again. The initial home at school approach allowed for this. So it worked. But that’s starting to change now. Lessons are increasingly going ZOOM. Online video conferencing classes. 80 minute lessons. Teacher and pupils sitting in front of a video camera. The teacher can see what every pupil is doing. The other pupils can sometimes see but always hear what their classmates are doing. Senior teachers are reviewing each class to check for inappropriate behaviour and lack of effort.

Now this approach will work for some pupils. But not all. Our son hates being filmed. He hates to see his image on a screen, he hates to hear his own voice coming out of the speakers. He cringes at the thought of other people being able to see him. Sitting still for 80 minutes is a significant challenge for him. In a class setting he won’t ask questions, won’t put his hand up. Will just freeze and be filled with anxieties. Basically ZOOM teaching is currently just about the worst teaching approach for him. It just won’t work. But that’s the set teaching method for some classes now. He just has to do it. His marks are lower in those classes. How can this be effective, modern teaching…..

Posted on by bereavedandbeingasingleparent · 80 Comments

1000 odd days

This is a photo from 3 years ago. I stumbled across it while looking for some old climbing ones. Another typical Yorkshire August day – all four seasons in one day. It got me thinking – what’s the same and what’s changed in those 1000 odd days. See that’s what a professional accountancy qualification can do for you – I’m good at those complicated adding up calculations.

THINGS WHICH ARE THE SAME

  • Getting no dyslexia support from school,
  • Getting no Aspergers support or accommodations from school,
  • Still bereaved,
  • Still a single parent,
  • Still a metal head at heart,
  • Hawklad is still a lovely character,
  • No holidays, no Switzerland,
  • Pets causing chaos,
  • My football team is still useless,
  • Still see myself as European,
  • Brexit is still a shambles and a monumental exercise of self destruction,
  • Vegetarianism,
  • Can’t cook,
  • Still exercising,
  • Still 5ft 10 and a half (don’t forget the half – it takes me beyond average height),
  • Still not climbing,
  • Still can’t work out the TV remote control,
  • The garden is still a mess,
  • Still don’t like U2,
  • Still haven’t seen Avatar without falling asleep,
  • Haven’t seen my brother even though we live only 50 miles apart,
  • The garden gate still needs fixing,
  • The washing machine is still possessed,
  • Still having bought myself that ginormous telescope,
  • The blog is still going,
  • Still writing about the same stuff,
  • Still waiting for official recognition of my stellar poetry skills,
  • Still haven’t won the lottery,
  • Still losing my car keys.

THINGS THAT HAVE CHANGED FOR THE WORSE

  • As Hawklad has reached the teenage stage many of the health support packages have been removed,
  • The waiting list to see The Paediatrician is now approaching 2 years,
  • A pesky pandemic,
  • Hawklads anxiety levels,
  • Hawklads isolation from the world and other kids his age,
  • Due to circumstances had to stop running,
  • Boris,
  • Trumps antics,
  • Might be a metal head but the days of skin tight jeans have gone,
  • Lost a couple of much loved pets,
  • Don’t really see my sisters anymore,
  • School’s view of Hawklad – definitely revising his perceived ability levels downwards,
  • The number of times I have to shout or pull my hair out at school is rising,
  • I’m physically meeting less people,
  • The list of things on the ‘need sorting out when funds are available‘ is growing.

THINGS THAT HAVE CHANGED FOR THE BETTER

  • Hawklad understands himself and his Aspergers much better now,
  • Hawklad is overcoming his dyslexia,
  • I understand now that it’s just as ok to Laugh as it is to Cry, YES it’s ok to live,
  • Friendship
  • Close Friendships,
  • Faith,
  • Love,
  • Happiness,
  • One step closer to home schooling (hopefully),
  • My dress sense – I finally chucked out some of my pink climbing shirts.

You might be thinking that looking at the relative number of entries on these lists that the last 1000 odd days have been generally bad. But look at some of those things on the last list. It’s not about quantity it’s about quality. Yep looking at that last list, over the last 1000 odd days we have challenges but some really good stuff has still happened. That’s why there is always hope.

Posted on by bereavedandbeingasingleparent · 60 Comments

Telepathy

Free Gardening Tip Number 1: Clearly if you leave the garden long enough it will sort itself out. You can just stand back and enjoy the results.

If I was listing my many wonderful features I might start with

  • Chiselled Features
  • Thor like body
  • Razor sharp intellect
  • Reactions of a cat
  • Chef supreme
  • Cunning linguist
  • Sporting Superbeing

And on and on. The list would be extensive but one word that does not appear is Telepathic.

“Dad we have a problem. Class have been working on a project for the last two weeks. It’s going to be used as this terms evaluation mark. The project has to be finished in one hours time. I didn’t know about it.”

The two week project period almost perfectly mirrored the time Hawklad had been off from school since his unplanned operation. Now in the normal scheme of things this would not be a problem. He had a valid reason to be unavailable for schoolwork. School was notified of this. Common sense would surely prevail……

Oh no……no, no, no, no, pigging NO.

It is the responsibility of the pupil and the parent to be fully aware of all assignments. These are clearly communicated via class lessons and the class notes. Failure to be aware of an assignment is not a valid exception to the rule. This applies to ALL parents and pupils. So basically if your sick and return to school then you should ensure you read all class documentation before your first day back. You can then immediately start working on any projects. This bad, bad, bad parent did not do this. So I never came across the assignment. That’s where the power of telepathy would have been most useful.

Free Parenting Tip Number 1: So clearly what any responsible parent should have done is read all the class notes, work out deadlines for the various projects and then return your child back to school THE DAY AFTER THE PROJECTS HAD TO BE HANDED IN. Job done and no need for a one hour mad scramble to cobble together a project….

Posted on by bereavedandbeingasingleparent · 56 Comments

Mothballed

This is a mothballed Coal Power Station that is right on the furthest horizon we can see. We can only see that far as we are on top of a hill. It takes an effort to find it from here. Can only see it from one extreme corner of the garden. This is also at my poor old camera’s maximum zoom. I guess it’s a reminder of a rapidly receding age and will be getting demolished soon.

Last school week and it’s trying to end the year on a most vexing high….

Let’s see how many assessments we can squeeze into 5 days. The answer ….. TOO MANY.

I had spoken to school and told them that son was still not 100% following his hospital visit but would give the last school week ago. However he wasn’t firing on all cylinders. School assured me that they would go easy on him. ASSESSMENTS are clearly easy on him. That’s so how I remember school tests in my day. Then we come to English. He completed the online lesson and submitted a rather fine gothic story. I was impressed with the storytelling and especially the writing. It was grammatically very good. Whisper it, spelling was almost perfect. That is some progress for him. So I was a little surprised to receive an email from school at 11.30pm to inform me that his work in the lesson had been below standard and incomplete. Really. The teacher has not responded to my query as the email failed to provide any details. Well that’s helpful. Having reviewed the lesson material several times I can only assume that he failed to respond to one rather vague question. A hard to spot question requiring a one sentence answer. Son had actually answered it but forgot to upload a photo of the one line answer. Unsurprisingly not a mention of the story he had submitted. If I wasn’t already convinced about the failures of mainstream education then this has finally clinched the deal. Well stuff school. I’ve assessed his work as brilliant and he will be getting a reward for it.

Maybe it’s time to mothball our countries factory farming educational approach…

Posted on by bereavedandbeingasingleparent · 65 Comments

Midday

Still summer is glorious. Had been hoping to get outside, have a chat and be creative with a pencil, but the weather is just not playing ball. This is midday…..

The school at home project has allowed this Dad to see some practical evidence of the progress and issues which son has with his learning process. The level of insight that is just not provided to parents from schools. Maybe in class sizes approaching 30 this type of insight is just not collected.

After these 3 months I have a better grasp on the dyslexia position. The feedback from school has been limited to

  • He has reading problems,
  • He is doing quite well in spelling tests.

That’s it…. Nothing else in just under two years.

So what insight has the last 3 months provided.

  • His reading has developed. I would estimate that he can read unaided about 50% of words. If he takes his time he can try to sound some of the missing words out, eventually arriving at a word he’s heard of before. The other words at school he’s been guessing or just ignoring. At home he’s happy to ask for help with words. Even allowing me to read out particularly difficult sections,
  • His dyslexia is more pronounced when he’s doing handwriting.
  • He finds it easier to type out answers. It’s a long process as his typing is not quick. He also struggles to see when the predictive text function selects the wrong word.
  • With certain word patterns it doesn’t matter how many times he sees the word, it’s like he is seeing the word for the first time.
  • When he gets tired the dyslexia flares up with greater force. Regular breaks really help. The optimum time appears to be 20 minute work blocks with short breaks.
  • Number dyslexia is still a problem. 6’s and 9’s are easily switched, especially when a decimal point is introduced into the number.

I’m not a trained teacher but I have a valuable quality which many teachers don’t get in UK schools. Quality time. Time to focus on one pupil. That is something which is not permitted under the current government led approach. An approach based on schools operating like automated production lines. That must be another vote for homeschooling…..

Posted on by bereavedandbeingasingleparent · 65 Comments

Differences

Wild Strawberries growing under the blueberry bush. Certainly wasn’t expecting these to grow here but with an open mind, this is such a result.

The decision to abandon mainstream schooling is in our son’s hands. It’s his life. His risks. His anxieties. His dreams. His future. So ultimately he decides. If it was my call then I’ve made my mind up. It would be homeschooling from September. That viewpoint has hardened with the last two communications from school.

The first was a summary of the schools position. Basically son is low attainment and has significant educational needs. Progress will be difficult. His educational needs are best met in the bottom set. With effort he may still be able to get a few qualifications. He is best following the normal teaching programme with no specific interventions (which would eat into tight school budgets).

Ok….

Then the next communication was his school report for the year. It painted a slightly different picture. To quote a few phrases from his individual teachers

  • Strength for creative writing,
  • Worked hard to produce some fantastic work,
  • Excellent attitude,
  • Will progress very well in subject,
  • His remote learning has been great,
  • He is a star,
  • Class work of the highest standard,
  • Superb young historian,
  • Considerable talent in the subject,
  • Very good understanding of the subject,
  • Pleasure to teach.

Ok….

Two conclusions here. One is that the report comments are standard across all the kids and so they mean nothing. Just a way to keep parents happy.

OR

The report comments are the reality and something is seriously wrong with schools overall assessment.

I strongly suspect this is a common pattern across the country. It mirrors current government thinking. If thinking is the right word to use. Basically kids with educational needs do not fit neatly into the factory production line educational approach. Minimise input costs to generate a set and limited output. Discard those items which fall out of the narrow design specification. Educational needs equate to additional teaching costs which will not be funded. Thus the best approach is to dump kids with Autism, Dyslexia, Dyspraxia, ADHD, disabilities and mental health issues into the bottom set. Conveniently forget about them. If these kids then get the odd qualification out of the system then the authorities can pat themselves on the back after a job well done. Let’s not forget the important thing, all this delivered all so cost effectively.

Maybe I am being cynical but that’s the reason I am definitely falling into the homeschooling camp.