Posted on by bereavedandbeingasingleparent · 96 Comments

Ticked Off

Meet one of our gardens true characters. This is Rico. Yes named after the truly mad penguin from Madagascar and The Penguins of Madagascar. Rico is a bit of a show off. Our world is better for characters like Rico and wow does it need it at present.

It’s been another day of Monty Python Government here. First we had the Scientific Officer confirm that the vast majority of first and second infections in the UK came from air travellers returning from Italy, France and Spain. We then had a senior Government Minister arguing that no possible reason exists to justify introducing screening at UK airports. Ok…. Yesterday we had the Government talking up the plan to reopen many schools in three weeks as it was safe to do so. Today we have Scotland’s Government arguing that the science is clear that it’s far too early to consider opening schools. And then we get the Foreign Secretary arguing that only partial opening of schools is safe. Ok…

We have a Health Minister who is gloating as we apparently reached his target of carrying out 100000 virus tests per day on the 30th April. We will ignore the fact that most other countries are carrying out more tests. We only reached his target because he included 50000 test packs which had been rather conveniently posted out to people on that very day. That’s like me sending out 50000 letters asking for a date and then counting all of them as actual dates. After the deadline we have slipped well below the 100k testing target again but that apparently doesn’t matter now as the target has now been ticked off. I tell you what – I am with many millions of Britain’s who are getting seriously ticked off with a certain Health Minister.

AND while we are on the subject of seriously ticked off. Why can’t I bake. After all the years of practice and yet it is still clearly beyond me. Today I foolishly decided to try my hand at a French Baguette. A gluten and dairy free one. It went into the oven looking like something which wouldn’t be out of place in Parisian Boulangerie. It came out like something Baron Frankenstein had created and then immediately binned. It was basically the same shape as a cow pat. It was also as easy to cut as reinforced steel. I can’t even give that to Rico and pals. Thankfully one person is this house has talent. After he stopped laughing Son said

“You know what I can use that for. I will paint it and I can use it as a model.”

So my baguette was transformed into a remote island with snow covered mountain ranges, fast flowing rivers and deep lakes.

I bet if Gordon Ramsey had created this, it would have been called a ****** masterpiece and deserving of international recognition. That seriously ticks me off.

Posted on by bereavedandbeingasingleparent · 87 Comments

Speaking

I have always hated speaking. It’s fine if I am amongst friends and people I trust. But put me in front of strangers then it becomes a completely different ballgame. I have to find ways to get through it. Ways to avoid tripping over words. Trying to stop the stammering returning. Public speaking becomes a mechanical task which needs a process. I significantly cut down my vocabulary range. I never use a planned written speech (I just can’t find any rhythm when I’m speaking from prepared text – I even struggle to read a book aloud). I plan and memorise the first two lines that I will say. I work out exactly how I am going to greet someone. I never make direct eye contact, rather I tend to look at eyebrows or foreheads. Even then it’s a bit of a lottery. I’ve delivered a perfect conference speech to 500 yet completely collapsed in front of just 2 people. I guess the secret is to try forget about the inevitable mistakes or just smile at them.

I remember speaking to the medic who mentioned the word Aspergers first in connection with our Son. She was an autism expert – one of only two we have ever met, which is kinda scary. Anyway I remember her saying something like

I suspected that he was on the spectrum almost immediately. It was the way he walked into the room. They way he struggled to sit and make eye contact. He confirmed my diagnosis as soon as I heard him SPEAK.

Son was very like me in that he started to talk pretty late as a toddler. As soon as he did start talking then his vocabulary rapidly expanded. At nursery he was absolutely flying with his speech. But then at about the age of 5 he started to struggle with a number of factors

  • His speech suddenly become extremely monotone,
  • He would either speak far too quietly or far too loudly,
  • He struggled to pronounce many sounds correctly,
  • He would always get the use of plurals wrong,
  • He was definitely using language which was well beyond his age.

The final one was not a problem but it did lead to some amusing incidents. In his first year at school the class was about to start a series of lessons trying to teach the kids about animals eventually after a number of weeks leading to touching on evolution. Within a couple of minutes of the first lesson our boy put his hand up and then proceeded to explain evolutionary theory to the class. The lovely teacher said she had to later go and look up some of the terminology he had used.

But as the months went on his speech issues became more pronounced. Eventually his Aspergers Expert managed to arrange speech therapy for him. Slowly the therapy started to work. Certainly his pronunciation and his control of his voice levels improved. Unfortunately after 6 months the speech service was cut by the Government to save money. It’s never restarted. The therapist gave us a number of exercises to practice but did leave us with a message

Constant practice will help manage any speech issue but they won’t solve them in your son’s case. They will be underlying for the rest of his life. They may become more pronounced as he gets older. He needs to develop his own way of coping with that.

That’s where we are today. He still can’t get his head around plurals. He is still struggling to pronounce certain sounds. No help is available for him. But rather than trying to cope with the issues, it’s more about him developing his own unique communication style. One which suits his personality. That approach I’m pleased to say is working. The other key thing is to stress that we all struggle with speaking at some stage. It’s nothing to be ashamed about. It’s who we are. It what makes us unique.

Son always likes to hear one of my most embarrassing speech incidents. I have a niece who when she was very young would not say big or large, rather she would have to say really really REALLY big. That was pronounced wheelie wheelie WHEELIE big. Anyway many years ago I was delivering the organisation’s annual report to The Council. Representative of the Government was there as was the local press. Talking about the financial position I meant to say

In terms of of our Operational Budget and our Tax Revenues we have a significant underspend.

Unfortunately that was delivered by this prize muppet as

In terms of of our Operational Budget and our Tax Revenues we have a wheelie wheelie wheelie WHEELIE big underspend.

Not sure that key message was delivered with quite the gravitas I was hoping for. Still at least we can laugh about that now….

Posted on by bereavedandbeingasingleparent · 145 Comments

What happened to the Bank Holiday

It’s a Monday. According to my cute animal calendar it’s Bank Holiday Monday. But apparently it isn’t. This week because of VE Day commemorations it’s going to be a Bank Holiday Friday. I must have missed that memo. So our plans for a late start ended rather abruptly. Feels like it’s going to be another odd week. Most of today was actually spent trying to get my head into school mode and convince son that he can’t really do the whole day’s schooling from the comfort of his bed.

Little success on either…..

“Dads whose to know that I’m going to school in bed today. It’s not as if the headteacher has a Eye of Sauron all seeing power.”

If the schools stay too much longer under the control of the current Schools Minister then I wouldn’t put it past schools adopting that form of teaching.

“I can effectively enforce social distancing during lessons. Apart from pets and my cleaner, no one would dare venture into my bedroom”

Somedays even his cleaner tries to avoid venturing into that place.

“If a bed is good enough for Lennon to have a peace protest then it’s definitely acceptable as a comfy classroom.”

Eventually Son was enticed out of bed with cookies. An impending attack by a dog returning from playing out in a sodden garden also focused his mind….. But I must admit I quite like the idea of bed at present. Maybe Bed Parenting might work tomorrow. So while I warm up the hot water bottle, I want to say thank you to Claire and Riya.

Thank you Claire for the nomination for the Liebster Award.

We’ve struck up a great blogging friendship over the last few months even though she keeps beating me at our daily balancing challenge. I’m sure she’s cheating…. So here’s goes with answering her questions.

  1. If you could have had any job/career what would it have been?  As a toddler I wanted to be a captain in Captain Scarlet. As a kid I wanted to be an Astronomer or Dr Who. Then I wanted to be a mountaineer. Then it was to be a goalkeeper for Newcastle and finally to captain Yorkshire at cricket. Ended up being an Accountant – figure that one out.
  2. If you were stranded on a desert island what three items would you choose to have with you? A helicopter. A person called Bear and a nice house. Guess that’s not the answer you wanted so…. A Swiss Army Knife. A fishing rod. The Lord of the Rings omnibus.
  3. What the thing you like most about yourself? My eyelashes.
  4. If you could relive one day again, exactly as it was before, what day would it be and why? Think it was in 2013. We caught the train up to Kleine Scheidegg. On a gloriousday we then walked down Lauterbrunnen. We played all sorts of games with our 6 year old. It was the best two hours ever. So much laughter and views to die for.
  5. If you could only see one more band/singer live, who would it be? AC/DC, never seen them.
  6. What is your biggest achievement in your life so far? Son…
  7. What’s your favourite way to relax (keep it clean please!)? Climbing, but I’ve had to ditch that. So now it’s running, exercise and blogging. Least favourite being watching Newcastle United.
  8. You can have a superpower for a year. Which one would you choose? Captain Marvel stuff so I could travel the Cosmos.
  9. What’s your favourite time of day and why? Friday 3.30. Schools finish so Son is off for the weekend.
  10. What are you most afraid of? Snakes. Wasps. Spiders. Drowning. My brothers old punchbag with a boxers face on it. Alvin and The Chipmunks.
  11. What are your ‘words to live by?’ Name the three most important for you. Chips, Crisps, pizza. OR love, laughter and listen.

Also thanks to Riya for the Vincent Ehindero Blogger Award.

1. What’s the best thing you like about blogging? And your advice. Making friends. At present I don’t get to socialise much these days. Blogging allows me inflict my bad and make new friends. And I do mean real friendships. My only advice is always have hope …. if I can do this then YOU certainly can.

2. What do you do to relax? Climbing in the pre parenting days. Now it’s blogging and running.

3. What is that one thing you are very grateful for? Three things. Our Son. Spending part of my life with such a beautiful person as my partner. Having been brought up by the best possible mum.

4. What is your happiest moment? Being handed our son after he had just been born.

5. Would you prefer a Cat or Dog? Got to be careful as we have both and gerbils. Let’s base it on this morning. The Cat missed the litter tray with his poo and the dog got excited and wee’d all over the kitchen floor. So it has to be the Gerbils currently.

I won’t nominate anyone as I have a rather bad habit of nominating blogs that are then deleted within weeks of the nomination. The last time I did, it was something like 5 of the 8 blogs were gone within the month. So best not nominate. I’ve been so grateful for the nominations over the last few months. I really have. But I think the time has probably come to do no more of these. Don’t want to risk deleting my own blog.

Posted on by bereavedandbeingasingleparent · 71 Comments

Leave it

When we first moved into our home, my sister bought us two plants as house warming presents. 18 years later they are still going strong. The red one doesn’t flower for long but it’s just springing into life.

It’s quite amazing that after 18 years both plants are still going strong. I don’t have a great track record with plants. I remember my partner for a joke buying me a plant which was described as – the worlds most resilient….will survive anywhere. Clearly they missed off the words – apart from one house in Yorkshire. It was dead within months. But these two have survived. They arrived, I bunged them in large plant pots and left them. Since then they have occasionally been watered and that’s it.

Sometimes the secret is clearly to leave things to sort themselves out. Not always, but definitely occasionally.

I was listening to a politician last night talk about how schools should immediately reopen. According to him schools didn’t need to worry about things like hygiene or social distancing. Kids have been going to cramped classes for generations. Yes kids can catch our current nemesis but its an acceptable risk. Apparently teachers are paid to teach so they should ignore any concerns about things like social distancing and PPE. The economy is paramount. In one notable concession apparently government officials and assessors should avoid schools because of the risk of catching the virus. When asked about kids and parents fears the response was – tough, the economy is more important and if they refuse to attend then they should be forced to. It’s up to the government and the PM if a child attends school.

Really. I will see you in court then.

Schools do need to reopen when it is safe for kids, parents (guardians) and staff. Now is the time to make school a better place to learn and work in. Surely the days of treating schools like archaic education factories must be finally over. Yes schools have been this bad for years and years. That doesn’t make it right. We burned witches for years and years – does that make that practice right…..

And as for the idea that school visits by inspectors are too risky yet it’s ok for the kids and teachers…..

Let’s start making positive changes to schools and then we can start a process of gradually reopening schools. Fully involve teachers, pupils and parents in the process. That way we can build confidence in the system. Some families will be able to go back quickly. Others (like our son) will take longer. Some bloke in London telling people what to do would be just so wrong. My Son will only go back when HE IS ready.

Posted on by bereavedandbeingasingleparent · 62 Comments

Safety

Today’s out of focus wildlife action shot is of someone who lives in our roof. Actually taken yesterday when the sun was shining. Our housemate is about the only member of our household who gets out these days.

This is the seventh week of Son’s own version of the lockdown. A few dog walks in the early weeks but then going through the garden gate became increasingly difficult for him. Even in the security of our car, a simple trip out onto the road becomes an anxiety crisis. When he returns he immediately washes his hands for minutes then has to have a shower and bath. These are genuine fears. Fears that effect his life. The excessive need to wash is not new. He has been shown how to clean his hands like a nurse. He has hand washing drills that set time limits. But sometimes it’s best to let these lapse as the excessive cleaning is often more about ridding his soul of anxieties rather than purely removing germs from his skin. Especially when a virus surrounds him which has so many unknowns.

He won’t be alone in these fears and feelings.

A chap in London with a little NHS badge announcing that the lockdown is being eased or lifted is not the end of the matter. It’s not as if it’s a water tap which we can instantly turn on and off. That’s also assuming that the virus remains under control and doesn’t spike again. Under Control is a rather worrying definition these days. It appears to mean keeping daily infections running into thousands and deaths below 300 a day. That’s just hospital based deaths not including the huge numbers occurring in care homes or in the wider community. For many the easing of restrictions is just the start of a long and painful slog. No sudden street parties for them. It’s about trying to repair bridges between the safety of their homes and the wider world. Picking up sufficient confidence to walk past that front gate. To meet people again. That’s going to be so tough with no guarantee of success.

So for the foreseeable future, our little starling will be the only one venturing out.

Posted on by bereavedandbeingasingleparent · 118 Comments

The science

Apparently I have to walk or run 50km next week so this chap evolves. Dads do have their uses when it comes to Pokémon Go. That’s probably as far as my usefulness goes. But at least I do recognise my limitations. Sadly sone people have boundless ambition and see no limit to their abilities. That is terrifying.

We foolishly watched the news.

“Dad can I ask a silly question. Shouldn’t the science panel advising the Government be made up of scientists.”

Yes you would hope that a panel of scientists is in fact a group of science experts. For months the UK Government has kept going on about how it’s policy on the virus is determined by this secretive science elite. As they are scientists (and clearly they know more than we do) then we should trust Government policy. Ok that sounds like a plan.

“He’s not a scientist. He’s that awful man who tells the PM what to do. How come he is on the science panel.”

After months of having to sign up to a science led approach we suddenly find out that the secretive science panel is compromised of some scientists but has key members who are political appointees. Cummings, the key PM adviser is a lead member. This is a man who believes in Eugenics – that is selective breeding and human intervention to improve the human gene pool. This is also a man who apparently thought that high levels of virus deaths was ok as most would be elderly. He’s not alone on the science panel. He has buddies. He is joined by a data specialist who came up with the Government’s online election campaign. He also has some very worrying views on the uses of private data. These two characters drive the science panel while some scientists on the panel can attend but are not allowed to ask questions. These have to be submitted in writing prior to meetings so they can be filtered. Suddenly it’s so much harder to have faith in our science led approach.

But what do I know. I’m only good for evolving pokemon.

Posted on by bereavedandbeingasingleparent · 85 Comments

Facts

Last night was one of those yucky sleepless nights. So very tired yet all I could muster was probably 40 minutes sleep. Annoyingly those 40 minutes came right at the end of the night and was brought to an all to abrupt ending with the morning homeschooling alarm.

During those zombie like hours I started writing a list of things to do this week. After getting stuck on item 1 for far too long, the list morphed into a more fruitful

What have I learned about myself during the last few weeks of this rather odd period in our history.

So here goes with my early morning facts

  1. I’m crap at writing To Do lists,
  2. Late at night I have a habit or writing LIST so that it looks like LUST,
  3. I can’t sleep properly,
  4. My old mobile phone has never worked better since it got machine washed with my clothes,
  5. My phone has a surprisingly good camera however it has the most annoying panorama function. The photo above took hours to do,
  6. I am so lucky to have that view from the garden. But what would I give for either a mountain or the sea in the distance,
  7. I quite enjoy most of this home schooling lark,
  8. Homeschooling and work are never going to be a good fit for me,
  9. Homeschooling and long distance running are never going to be a good fit for me,
  10. Homeschooling and my bank balance are never going to be a good fit for me,
  11. Homeschooling, my bank balance and holidays are never going to be a good for me,
  12. High petrol prices are not an issue when you don’t drive your car for 6 weeks,
  13. I can now make my own pizza bases as long as they are square shaped. Round is beyond me,
  14. I can fill a freezer up real quick when I start saving leftover food,
  15. A dairy and gluten free diet is a pain in the arse when the shops sell out of specialist diet ranges,
  16. I miss football on the telly,
  17. I miss alpine sports on the telly,
  18. I hate the news now. I miss the days of moaning about Brexit,
  19. I’m a barnpot yet I would do a better job of running our country than the clowns currently in charge. Apparently it’s ok for a Prime Minister to miss FIVE emergency meetings and have weekends off during a national emergency,
  20. My Son knows more than I do,
  21. Receiving a parcel from Amazon now feels as dangerous as trying to change a fuel rod in a nuclear reactor,
  22. Not being able to get Sons favourite Soup, Beans, Skinless Sausages and Pasta is one of the most stressful things in the world,
  23. I must be really vexing to live with,
  24. Cheap tea bags taste the same regardless of how many times I reuse them,
  25. Using Yorkshire Slang Words gets me put on the Spam Naughty List,
  26. At some stage I might have to physically talk to someone else than our son. I’m dreading that thought,
  27. You can still get colds if you are isolating from the outside world,
  28. When I’m carefully stood in my designated 2m queuing area why can’t I stop thinking about how long virus particles stay airborne for,
  29. I get so excited when I see an aeroplane now that I must rush to check where it’s flying to,
  30. I haven’t combed my hair in 6 weeks,
  31. Where does all the so called spare time disappear when I’m on lockdown,
  32. The more I learn German the less I can remember of French. It’s as if for every new German word entering my brain, a French one has to pop out to make space,
  33. I will even talk to slugs these days,
  34. Don’t set up a darts challenge with your son then at the last minute realise you don’t have a dartboard or darts,
  35. The Government and Chief Executives of major companies only email me when there is a pandemic going on,
  36. I still hate U2,
  37. I want to live in Switzerland
  38. I’m still a widow. Or as my Predictive Text tries to type – I am still a window,
  39. These days it really doesn’t matter if I put my pants on back to front.
Posted on by bereavedandbeingasingleparent · 110 Comments

Brave New World Part 2

I wasn’t planning on having a two part Brave New World post but the staggering incompetence of our Government intervened.

This Brave New World post originated from listening to few callers to a local radio show. A number of times I heard the following heartfelt wish

I can’t wait for the restrictions to be gone in a couple of weeks, we will have beaten this virus and so we can get back to living like we did.

Sadly they are in for a shock. The lockdown will continue for another 3 weeks. It’s not like we have a tap that we can just switch the old life on and off. The eventual easing of restrictions does not mean we have won. Even in countries like Germany who have managed this crisis professionally, the restrictions are being eased while many are still dying. Thousands are still getting infected. We haven’t defeated this virus. All we have done is get through the first onslaught. What’s happening is that we are now trying to find ways of living and working around the virus. This virus is not going away. We wait for a vaccine. Yet even if we are lucky and a vaccine becomes available in the summer, it will take many months for it be manufactured and potentially several years before the programme covers everyone. Things HAVE TO CHANGE for this to work. It will be trial and error. Strict Restrictions may have to be enforced again.

So things will need to change. Certainly over the next year or so, maybe longer. Some things are relatively easy. Shaking hands surely has been consigned to the bin. Increasingly shops are changing how they manage customers to keep them and staff as safe as possible. What worries me is that in some areas the assumption seems to be that we can just go back to the old ways. Namely Schools.

Over the coming months schools will start to reopen. So as mass gatherings are still banned, the daily school mass gatherings will start. What will have changed. In the UK the answer appears to be nothing. It will be ok we are told because kids are at lower risk than others to this virus. Yet even today I’m listening to the Government warning

It can effect any person. ANY AGE. Even those without underlying health conditions can die from it.

But then we are told that it will be ok for the kids as more are naturally gaining immunity and yet we know so little about this virus. How long does acquired immunity really last for. Worryingly we are seeing increasing reports of people getting the virus more than once. Let’s be honest. What ever we do going forward is a risk. Sending kids to school is an increased risk now. So what are we doing to minimise that risk.

So when schools reopen – what’s changed. How are we going to safeguard the health of our kids, teachers, support staff and families. In the UK many school facilities are not fit for purpose. Insufficient and out of date hygiene facilities. A rammed timetable which provides no time for that number of kids to repeatedly wash their hands and for surfaces to be cleaned. Too many squeezed into such a confined space. Absolutely zero social distancing possible. Things have to change.

This is the time we should be looking at all options. Reviewing what can and can’t be done. How can we improve things for the better. Schools should be given the freedom and backing to make positive changes before the kids return. Give Headteachers the authority to protect those under their care.

  • Give them access to appropriate PPE and safety kit. Do kids and teachers have to wear masks?
  • If schools are forced to open before the summer break it’s likely to be happening while infection rates are still uncomfortably high. Do we initially focus on opening for just a small number of children. Just those children leaving in the summer.
  • Allow Heads to consult with parents on which kids can spend part of the school week at home.
  • Rip up the national school teaching mandates. Allow Heads flexibility over timetables, opening hours and subjects.
  • Allow them to vary teaching delivery for each subject. Some classes may need to delivered in the classrooms. But surely not all of them. For example in the UK we have access to an online mathematics teaching resource. The last few weeks have demonstrated that with the overview of the teacher, maths can be successfully delivered remotely. History can often be such a dry subject to deliver from the classroom. How about the teacher delivering lessons from historic sites (either with the class or recording the lesson). Lets make the teaching more engaging.
  • What potential untapped learning resources do we have amongst parents and the local community. At Son’s last school they did a session on the how the various body organs worked. A parent who was a Doctor delivered the lesson.
  • Some kids will need to be in school full time. But we will have a number of kids who can for at least part of the week be schooled at home. What’s the scope of saying some kids attend school for only part of the week and work from home for the rest of the week.
  • Invest in online teaching resources. I am a critic of our Son’s school. But they have invested in this area. They have delivered online schooling for every subject. Yes some work better than others – but it’s worked.

If we can deliver on some of these changes it will allow schools to space kids out more. We can bring down class sizes. We can allow those in school a chance to practice social distancing and effective hygiene. All things we are told that are essential for daily life now. Surely that’s a safer, more effective and sustainable way of delivering teaching in the modern age. I’m not a teaching expert but I have worked for years in logistic planning for public services (including schools). In our country we don’t ask the right questions early enough. Our Government does not allow Heads and Teachers professional freedom. That’s why education is failing so many kids and that’s why our schools are basically unfit to meet the current challenges. It’s time for change. We have to change or this virus (or the next one) will win the war. It’s time for change. Yes it’s time for a brave new world.

Posted on by bereavedandbeingasingleparent · 108 Comments

Ever shrinking world

A photograph from our garden. Just five paces from the door. Part of Son’s world.

Our Son really struggles with health related anxieties. I remember the first pamphlet his Doctor handed to us about Aspergers all those years ago – second bullet point – may encounter obsessive fears over health and hygiene. For our Son they were real, life altering fears. Then in quick succession he lost his mum and both grannies. The fears became even more scary and real to him.

In the early party of his Aspergers life he was under the care of a wonderful Clinical Psychologist. She slowly helped but then she retired (and was never replaced due to the decisions backed by many of those in our current Government). His care became a real hotchpotch which achieved very little. Then we were so lucky. Son’s case landed on the desk of a young nurse health counsellor. Since then she has been the only constant through his care. Now because of Government cut backs, she is the only specialist help he gets. Although not an Autism expert she has patiently worked with him and delivered real benefits.

His fears became manageable.

Due to our Governments continued running down of the NHS, her workload has become ridiculous. She just can’t spend the time she needs to with him. But she does what she can. She still cares.

Then 2020 hit. Is it really only 4 months old…….

His fears have gone off the chart. Can you blame him. The worlds gone potty. Everything is up in the air and showing no sign of settling down. Because of the new clinical rules his wonderful health counsellor is not allowed to see him until after the crisis has eased. Being realistic that’s not going to be until the back end of the year at the earliest. So he’s started burning his bridges.

Bridges is a theme I am sure I will come back to over the coming weeks. The world of autism and the big bad world don’t naturally coexist. They are often separate. Links and bridges need to be built. Unfortunately the big bad world is not interested in developing links. It’s been up to our Son to try and build the bridges. That’s allowed him to enter the big bad world. Those links have never been particularly strong. NOW HE HAS BURNED THOSE BRIDGES. The outside world is just too scary and full of dangers. He has bunkered down to his house, his back garden, his world.

The thing is that when things start to improve again. And they eventually will. The big bad world will make no effort to rebuild those bridges again. One lone nurse counsellor will try. I will try. Sadly, I’m not entirely convinced Son will make much of an effort this time. Maybe in the future he will but it will take time. In the meantime his world has shrunk.

Posted on by bereavedandbeingasingleparent · 93 Comments

Food

Now we are into the aftermath of the Easter Egg hunt. Son is happily piling on the calories and his Dad is looking at a bowl of dairy free cornflakes. Is this what my life has been building to…..

To be fair that calorie balance is right. Son tends to be very long and always below the median weight for his height. That is tall and slim. His Paediatrician told him that it was a great excuse never to diet. His Dad is average height (or to be strictly true – 0.5 cm above average) and keeping to an ideal weight is a bit of a struggle. That is big boned.

Son’s diet has been a struggle recently. Aspergers likes order and routine. We stick to the same 7 day food rota every week. To be fair it’s a reasonable diet with much fruit and vegetables. And many sausages…… But over the last few weeks many of his foods of choice have become unavailable. This has required change and change means STRESS. On top of the enforced food switches an increased fear of becoming ill has surfaced. So now he is desperate to eat healthy and avoid too many calories.

So the parents dilemma is trying to put that into a routine which is both sustainable and is actually a balanced, healthy diet for him. That’s at a time when fresh fruit and vegetables are often much harder to source. So keeping the calorie intake sufficient going forward might be a serious challenge. He has already started to refuse foods he considers unhealthy. He’s even started to question his chocolate intake. As the paediatrician explained a couple of years back

his weight is right at the bottom of the perfect band, but don’t let it drop below that. If that means a few more bars of chocolate than usual then that’s just fine. But just watch him. We really don’t won’t to go down the line leading to eating disorder.

Eating Disorders within the Autistic community is a significant issue. Research into eating disorders such as anorexia have found that anywhere between 15% to 35% of total cases can be linked to people on the autism spectrum. However food disorder health care is still largely done in isolation from autism specialists. Autistic services continue to be squeezed as a result of government policy priorities. So improved care and support for autistics with food disorders is unlikely to improve under the current UK government.

This may well be the latest challenge our son has to face down. So long may he tuck into his chocolate egg.