Posted on by bereavedandbeingasingleparent · 97 Comments

Remember

Sadly I won’t be able to visit here today. Its 50 miles away and currently just so out of reach. My mind will wander there today. Not for too long as my mother would give me a stern talking-to for fussing too much. So I will make myself a cup of tea and take a few moments to remember some mum memories.

  • Her famous meat and two vegetables Sunday lunches. She even amended that to Quorn and two vegetables for an awkward son. Followed by the best ever apple crumble and custard.
  • How she would call everyone (including the pets) Pidge so that she never forgot a name. You knew you were in trouble when she called you by your real name,
  • Going to her house and hearing Sinatra or Cash singing as you went through the door,
  • Walking into her living room and her first words being, Do you want a cup of tea and a biscuit,
  • Sat on a plane at Heathrow Airport with her and she started eating toffees to stop her ears popping. She finished all three packets of sweets before the plane had even started taxiing. And yes her ears popped,
  • The day she went into a small shop for a paper and she ended up being smiled at by one of Europe’s best footballers, who had come in for a prematch chocolate bar,
  • Every year asking me to put a 10p bet on the big horse race. I never told her that I always made the bet up to a £1,
  • Her refusing to be called Granny or Great Granny, so she became little Nan,
  • Every time I would take Hawklad round to see Little Nan on a Sunday and she would somehow have managed to find another Mr Men book which he had never read,
  • Mum with my oldest sister running out of the Dracula museum in a fit of giggles when a man dressed up as the Prince of Darkness had unexpectedly appeared behind them,
  • On a morning finding various little garden birds stood patiently in her kitchen waiting to be fed.

And so many more memories from a truly wonderful mum. So it’s time for a cup of tea and a biscuit. Time to remember. Days like this that photographs from so many years ago become treasures.

Posted on by bereavedandbeingasingleparent · 71 Comments

Life snapshot

The Aspergers life can be racked with anxieties and obsessive behaviours. Additionally Aspergers can frequently coexist with OCD. Add the death of a mum and both grannies. Then on top of that you add a pandemic. Something has to give with that kind of pressure building up. That’s what our son is dealing with and it is so very tough for him. What does that mean in practice. Well here is a snapshot of life and the impact it has on him.

Every ache, every sneeze, every spot, every pain is seen as a potential sign of a serious disease or the C word. Anxieties bring on indigestion and constipation. These are then seen by him as more potential warnings of serious, life threatening health conditions. The natural response was to frequently wash his hands. It was both to cleanse his hands but also an attempt to pour water on the raging anxiety wildfire. Washing to the point of red raw skin. These issues have existed for years but slowly during 2019 slow progress started to happen. The hand washing was just about brought under control. Then the pandemic hit. The progress was instantly lost. Suddenly the months of reassuring talk a out avoiding serious illnesses, the bodies capacity to fight back and the advances in medical science are basically blown out of the water. The problems started to mount up again and escalate to new heights.

  • Hand washing every few minutes. From 15 second washing now to washing for minutes at a time.
  • A reluctance to dry washed hands as towels might be a source of germs.
  • Harmful germs are seen to exist everywhere. Suddenly it’s difficult for him to touch taps, toilet handles and door knobs. Sheets of paper have to be left next to these so he can avoid touching them directly. Even pulling on a shirt may result in the potentially unclean sleeves coming into contact with his hands. Shoes have to be put on without using his hands.
  • iPads and joysticks have to be washed frequently and definitely before he touches them. It’s the same for things like pens.
  • When he strokes his pets he will immediately run to wash his hands.
  • He needs to see evidence that I wash my hands before I touch any of his items.
  • Clothes have to be frequently washed often multiple times a day.
  • Outside he is constantly looking out for flies and flying bugs. If they come too close then he will need to go inside to wash.
  • He has to have his own seat and no one is allowed to touch it. If they do then the seat has to be cleaned.
  • When he goes out the the front door then he consciously tries to avoid walking over any areas that the postman or others might have walked across. When he comes back in them his shoes will need to be completely cleaned. If he ventures through the front gate and into the outside world then on his return he will completely strip, shower and change to new clothes. Those rules apply to me as well.
  • Mouth-washing and gargling is frequently repeated during the day.
  • Any item which hits the ground (inside or out) will need to be deep cleaned.
  • Any new food items have to go into the garage and complete a quarantine period if at least three days.

This is daily life in our little home. I do my best to reassure, reason and modify behaviours. But it feels nothing more than trying to plug a leaking dam at present. One hole maybe plugged but in the meantime another two new holes have appeared. Counselling was there but government cutbacks have taken their toll on services. The pandemic has temporarily suspended specialist help. The result is massive backlogs and no access to help. These are tough times. For him and yes me as well. As a parent you feel helpless, definitely so underprepared for these challenges. But we keep going. We pick ourselves up and go again. Yes we will get there. We will. But it will take time. Realistically maybe well into 2021. In practice timescales don’t matter, we take each day as it comes, fortified by the love of friends.

Posted on by bereavedandbeingasingleparent · 94 Comments

Potatoes

It’s potatoes for tea tonight….. Something nice about eating your own vegetables. Anyone for chips or crisps or boiled potatoes.

In the end a few went into a warming vegetable stew. Didn’t predict that.

Before 2016 I (We) spent far too much time living the future. Thoughts about retirement. Marriage in the future. Visiting places like Canada and New Zealand – in the future. Planning for retirement, maybe even an early one. Dreaming of moving to Switzerland, down the line. Another child, one day…… And yes worrying about the future. Too much time thinking about what could go wrong with meetings, plans and life. Given all the time spent worrying it’s telling that the one thing that happened was never thought about.

Then the world caved in. That future had just died.

Suddenly my mind set changed. From spending too much time living in the future, I suddenly was living in the past. Reliving memories. Too many what if, why didn’t I – questions. Refusing to move from a door which had just shut permanently. So much wasted energy.

Now in 2020, hopefully the balance is now better. It’s more about living in the moment. Yesterday has gone, tomorrow does not exist yet and is so unpredictable. The only thing I can influence is the present. Just try to enjoy every single moment. It’s not easy but so worth it.

Posted on by bereavedandbeingasingleparent · 64 Comments

Love

The summer six week holiday of 2016 started and finished with loss. Since then I’ve been living with bereavement. Maybe a better way of saying that is to say I AM A BEREAVEMENT SURVIVOR. Probably always will be a Bereavement survivor. I’ve been very careful to use the word bereavement. Bereavement is that awful thing that we all must go through in life. It can’t be badged up in any fancy packaging and made it to be something nice. It is just awful, will always be awful. It means death, loss and the end.

Over those 4 years I have come to realise that GRIEF is something different. It’s not bereavement. Grief has an important extra component. Grief has one important word associated with it.

LOVE.

Grief and grieving is another word for love and loving. So grief is completely different to bereavement. Ok it’s intrinsically linked with bereavement and yes in a perfect world, it just doesn’t happen. But sadly it does and often far too early. However here is the key – Grief means Love and that is a beautiful thing. Bereavement is something you try to survive and live with. Grief is love, so is something you will always treasure. Yes it can be so very painful but that pain just reflects the depth of your love. That love will always be there. It will strengthen me. If and when I move onto loving someone else, it will make me much more appreciative of that new love.

So yes I am a bereavement survivor but more importantly I am a better person because of my grief.

K

Posted on by bereavedandbeingasingleparent · 56 Comments

Mothballed

This is a mothballed Coal Power Station that is right on the furthest horizon we can see. We can only see that far as we are on top of a hill. It takes an effort to find it from here. Can only see it from one extreme corner of the garden. This is also at my poor old camera’s maximum zoom. I guess it’s a reminder of a rapidly receding age and will be getting demolished soon.

Last school week and it’s trying to end the year on a most vexing high….

Let’s see how many assessments we can squeeze into 5 days. The answer ….. TOO MANY.

I had spoken to school and told them that son was still not 100% following his hospital visit but would give the last school week ago. However he wasn’t firing on all cylinders. School assured me that they would go easy on him. ASSESSMENTS are clearly easy on him. That’s so how I remember school tests in my day. Then we come to English. He completed the online lesson and submitted a rather fine gothic story. I was impressed with the storytelling and especially the writing. It was grammatically very good. Whisper it, spelling was almost perfect. That is some progress for him. So I was a little surprised to receive an email from school at 11.30pm to inform me that his work in the lesson had been below standard and incomplete. Really. The teacher has not responded to my query as the email failed to provide any details. Well that’s helpful. Having reviewed the lesson material several times I can only assume that he failed to respond to one rather vague question. A hard to spot question requiring a one sentence answer. Son had actually answered it but forgot to upload a photo of the one line answer. Unsurprisingly not a mention of the story he had submitted. If I wasn’t already convinced about the failures of mainstream education then this has finally clinched the deal. Well stuff school. I’ve assessed his work as brilliant and he will be getting a reward for it.

Maybe it’s time to mothball our countries factory farming educational approach…

Posted on by bereavedandbeingasingleparent · 58 Comments

Live on the edge

This counts as excitement here in Yorkshire. We know how to live on the edge.

I don’t really celebrate my birthday anymore. It’s more associated with being the day that we lost our mum. But I did start a new tradition. It would almost become a second birthday for our son. If the Queen can have two birthdays then so can Hawklad. So I get him his favourite cake, that’s buy it not bake it (wouldn’t do that to him). He gets to eat his favourite meal which is probably pizza at the moment. We would normally have a trip out somewhere but not this year…. Finally he gets a present. So what present does he want this year.

“I’ve been giving it some thought and decided.”

My money is on either a computer game or maybe a wrestling figure.

“I would like Chilli Soup.”

What as your special meal?

“No as my present. That way I get two special meals.”

Well you can have two special meals this year and still have a present.

“No will stick to the Chilli Soup as a present. “

I’m not like the Genie in the Lamp. Not going to hold you strictly to three wishes. Plus I struggle to count past 2 these days. You can still have a present.”

“No that’s the deal this year.”

*******

Well he’s going to get his Chilli Soup. It’s either going to be Beef Or Pumpkin Chilli. He’s going to get his pizza night. AND yes he’s going to get a present, just need to think of one now. Maybe a joint present. One we both can enjoy. That would kinda work.

Posted on by bereavedandbeingasingleparent · 61 Comments

Biscuit inspiration

Flowers never fail to take my breathe away.

Sadly on too many days, school has the same effect on me

I contacted school to let them know that son was still struggling but as it was the last week of school, he would give the online lessons a go. School said that they would let all his teachers know and would appropriately restrict his work demands. This week had to be a phased return. That was 8.30am on Monday morning. His first lesson went ok then it was time for the second to start. He was told to complete a one hour test (starting in 5 minutes) which the rest of the class has had a week to revise for. In fact some of the questions related to course material which was only introduced during the week he was absent. Apparently even if a child is sick, that child should still log into the school system and check all class lesson notes.

So much for a phased return to schooling.

This called for the inspirational powers of hot milk, digestive biscuits and toast. The test was completed with much common sense and quite a bit of creative guesswork. Looking at some of the questions – his Dad would have been as much use as air conditioning is in Yorkshire.

That was the first morning of the school week. This could be a long one. Good job we have many packets of biscuits and chocolate ready to go…

Posted on by bereavedandbeingasingleparent · 71 Comments

Bagpuss

The fading embers of the day. Another wet one but at least we have been granted a few late moments of weather calm. An opportunity to sit outside with Hawklad. A new nickname for son all the way from Canada. He likes it.

“I like that. So much potential. Either a new Avenger or DC character. Maybe my name if I become a falconry. And definitely cooler than yours. Bagpuss. Really…”

For those unaware Bagpuss was a children’s TV character from yesteryear. A toy who was an exhibit in a magical shop. A shop that didn’t sell. The little girl shop owner would find things, repair them and put them in the shop window. When Bagpuss came to life the other items in the shop did as well. The intro to the show is engrained in my childhood memories. After all these years I can still remember the monologue, word for word.

Bagpuss, dear Bagpuss
Old fat furry cat-puss
Wake up and look at this thing that I bring
Wake up, be bright
Be golden and light
Bagpuss, Oh hear what I sing

And Bagpuss was wide awake
And when Bagpuss wakes up all his friends wake up too
The mice on the mouse-organ woke up and stretched
Madeleine, the rag doll
Gabriel, the toad
And last of all, Professor Yaffle, who was a very distinguished old woodpecker
He climbed down off his bookend and went to see what it was that Emily had brought

So why was I named after this TV Toy Cat. A show that they only ever made 13 episodes. Maybe it was the Bagpuss toy that was in the Car. Maybe my goalkeeping prowess didn’t quite warrant full cat like status. Or maybe it was the shows description of the toy cat.

“an old, saggy cloth cat, baggy, and a bit loose at the seams”

Yes I can see the similarities. They become more apt everyday. But I guess that’s the same for many of us.

Posted on by bereavedandbeingasingleparent · 65 Comments

Hunting

Everyday a large bird of prey has decided to spend some of its hunting time in the field next to us. A free nature cinematic thrill ride. Now if it would just come a little closer and not fly so fast then I might get some closer shots.

Hawklad (son) is so happy that this can now be seen from the safety of his garden. This is such a bonus. With it looking like a few more months of isolation we look to nature to bring the world to us. With patience it never lets us down.

Posted on by bereavedandbeingasingleparent · 106 Comments

Meditation

I really am trying to commit to meditation and mindfulness. It will take time to calm my racing mind. So everyday I’m committing time to my new mindset. I’ve downloaded some apps. If only it was that easy.

  • My Doctor recommended a mediation app. I most admit it looked good until I came across the price. £300 per year. That’s stress inducing numbers….
  • I looked at alternatives apps. Many offered free elements. The first one was really good. Soothing music, dreamlike words. All was great as I enjoyed my first meditation session. That was until the app suddenly stopped with the message – to continue please purchase the full licence. Stress rising…..
  • Then the next app was tried. Yes it kinda worked. My mind was filled with just one thought. What an annoying and patronising voice. I had a sudden urge to throw a large object at the so called calming voice.
  • Then the next app had a more acceptable voice. Lie down and concentrate on your body. Fully sense how it feels. Focus on those sensations. Let everything else drift away…. Well that’s fine but all I could sense was my tight hamstring, my sore hip and my hurting finger from the earlier incident with a kettlebell. My mind was filled with three words- oh that hurts. Stress rising.
  • Then another attempt disrupted by a never ending telephone ringing…. stress rising as I start shouting. Will you stop ringing Im trying to meditate…..

I will get there. I will crack this meditation thing. The benefits are too much to ignore. But maybe there is a simpler thing to remember. Just walking outside. Sitting comfortably and just watching nature at work. The natural worlds stress busting app is still the best option out there and it’s free.