Plan X

The sun sets on another school week.

The school week almost ended prematurely this morning. To a child with Aspergers routine is the key. Outside the house at precisely 805am. Recheck the school bag contents. Go through the class timetable for the day. Reconfirm the after school plan. At 810am start listening for the bus to arrive. As soon as the bus is heard move towards the gate. As the bus passes confirm with our son where he plans to sit. As the bus does a u-turn son sets off for the bus stop.

This routine works well … most days.

Today as we left the house at 8.05. On plan. Bus is already at the bus stop. Oh s**t.

Suddenly we have a meltdown. The plan is out of the window. Poor kid doesn’t know what to do. After a couple of minutes he is frozen to the spot, in tears and unable to think. All I could think about was to reach for a scrap piece of paper in my pocket.

“Son this is Plan X, it’s our plan for this”

He looks at me and asks what does the plan say. Not sure son if I’m honest the scrap paper is my shopping list for the week.

“It says we start walking to the gate while I quickly check you bag and read out your class timetable. At the gate you tell me where you are going to sit. Then you walk calmly to the bus singing your favourite song”

We head towards the gate suddenly we are on plan or to be accurate on the shopping list. Suddenly he stops and he asks what does the plan say about what happens if the bus sets off before he gets to the bus stop.

Dad sits cross legged in the middle of the road and refuses to move. Thus stopping said bus.”

He smiles and says “you made that last bit up didn’t you.”

As the bus passes, he waves from the window and laughs. Silly Dad is sat crossed legged in the snow.

Maybe we need to think about our routines and schedules. Map out some of the things which might go wrong and plan some alternative plans. Not having to rely on a shopping list again would be nice. But at least we have Plan X now.

Safety Net

Photo taken from the top of The Niesen.

I never really thought about my own mortality. Before I met my partner my attitude to risk was “it will be alright and if something happens to me I’m not too great a loss to society”. After we became a family I started to become more responsible but I still had a reasonable risk threshold. If something happened to me our son would still have his mum and his granny.

This all changed when I lost my mum and then partner within 6 weeks of each other.

The first few days after my partner left us are still a blur. But I remember one incident like it was yesterday. It was my son’s first day back at school and I was driving to register the death. Suddenly a sports car pulled out in front of me. A suicidal overtaking manoeuvre. Luckily I saw him and managed to swerve onto the grass verge and miss him – just. At that speed it would probably have been game over. All I could think about was our Son. One second slower reaction time and he would have been parentless. The whole incident shocked me. Suddenly there was no backstop for our son. No cover if I couldn’t be there for him.

A couple of years later and it’s a new life. With new dreams, new hopes and new feelings. All the climbing and contact sports have been permanently ditched. No more drinking. No more stupid risks to my body. I just can’t take those chances anymore. I’m even more boring than I once was but much more importantly I feel that I am a much better parent now. Yes the world has changed. But hopefully I have adapted to it. The reality of parenting without a safety net…..

Wheelbarrow Train of Pain….

Parenting is a great but frustrating gig. You think you have cracked it and then it bites you on the bottom. As annoyed as I was this morning it is now out of my system. So many kind words eased the pain….I can’t thank you guys enough.

Anxiety and frustration builds. It makes you tired and makes you do strange things. I always look at it like a house. Everything is fine and then something goes wrong. A pipe bursts. The house starts to fill with water. The pressure builds. The first thing you need to do is release the water pressure. Find a window or door to open. Once the pressure is released then you can fix the pipe. Everyone has to find their own window to open. It will be different for each person.

In my case I did have a rather foolish window. When the frustration built I would go outside and literally find a wall to punch. Not good. Going back to my house analogy. I am no Captain America or Hulk. As hard as I punch the wall I’m not going to break through and release the water.

But a few months ago I found a new window to open. This one seems to work and is also scalable. When the frustration builds I go outside to our wheelbarrow. Fill it with all the stones, bricks and sandbags I can find. Then I push it round the garden. It’s hard work on the grass and slight slope. For minor frustrations I do one circuit of the garden. The greater the frustration the more circuits I do. Todays was a 10 circuit frustration. I call it my Wheelbarrow Train of Pain. It does relieve my frustrations and is quite good fitness training. The dog frequently adds his own dynamic to the circuit.

Our son just laughs at the Wheelbarrow Train of Pain. He is trying to convince me to modify it. His idea is rather than increase the number of circuits I should do just one circuit but reduce the amount of clothes I wear according to the frustration level. As a result a defcon 4 frustration would see a very cold and naked man pushing his wheelbarrow. Thats not a pleasant thought. Not at all.

Bad parenting

First taste of winter. Hardly alpine skiing conditions but at least it feels like winter. In some parts of Austria they have had 10 feet of snow falling over just 15 days. England grinds to a halt when we get 6 inches…..

Our son had been clinging onto the hope of a Monday school closure. I always suspected he would be disappointed. The school has many faults but it does seem immune to the weather. It never seems to close.

It feels so cold in my heart today.

You get mornings when you are tired and then you get mornings when you are TIRED. Today I just can’t get going. Lack of sleep eventually gets to everyone. It did this morning and I hate it.

As the school bus trundled down the road.

“Dad I don’t want to get on the bus, will you drive me”.

I realise how daunting that trip is to our son and my usual answer would be – don’t worry, no harm done let’s get in the car.

Not today……..

Today I told him to get onto the bus. As soon as he was on the bus my mind had cleared. What was I thinking of. What a prat…

Am I just looking for excuses. Probably it’s just down to awful parenting. Part of me is hoping I can blame fatigue. The other part of my brain is looking to give myself a good kicking. Will certainly try to make it up to the little fella tonight. Must raise my game, son deserves better than this…..

150 miles apart

Son just looked at me with that knowing smile.

Well played Dad”

He is accustomed to the occasional mess up. I like to think that it’s all part of his educational journey. You can learn from the best but wow you can learn from the worst….

Our son really loves rock music. One of the few public gatherings he actually looks forward to is a rock concert. He has seen Iron Maiden, Hollywood Vampires, The Darkness and The Damned. This year is promising to to be a good one with a number of concerts already booked. Bank Manager not best pleased. The bookings is today’s educational cockup learning event.

Somehow Dad has managed to book for us to see Thunder in York and on the same night Ozzy Osbourne 150 miles away. That might cause a few logistical issues.

So what to do.

Our son has not seen either acts. His Dad has seen Oswald but never Thunder. I have really wanted to see Thunder for about 25 years. Only thing to do is let our son decide.

A decision I would have agonised over for days was dealt with in seconds by the logical Aspergers mind.

I would like to see both bands Dad. One is a legend the other is a favourite of my Dads. Both are great live. Thunder will hopefully be going for years. However Ozzy is Ozzy. It’s unbelievable that he’s lasted this long. Probably last time we will be able to see him. Let’s see Ozzy and hope we see Thunder maybe next year.”

Decision made. I can give my tickets to my brother in law.

“But Dad since we are talking Ozzy and anything can happen with him. Can we hold onto the Thunder tickets until the last minute – just in case.”

Cryogenics v Books

I was reading a little bit of a Carl Sagan’s Book to our son. Our son asked me to reread a couple of quotes.

We are like butterflies who flutter for day and think it is forever”

“Books permit us to voyage through time, to tap the wisdom of our ancestors”

We then had a long chat about life, death and living forever. Cryogenics came up.

It got me thinking maybe books are a better bet than cryogenics. If you are talented enough to become a book author then your words can live forever. Books are so much cheaper. Books are not as frigidly cold and far more illuminating. I think Carl would vote for books.

Thank you for reading this

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Multumesc

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Danke

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Changes is good just not that early

Today started off in the usual manner. Early morning exercise session listening to rock on the radio. Things going fine apart from the usual creaking body. Put me down for the a full body transplant, I’ve used this one up.

Then things started to change.

I hate doing the plank but apparently it’s good for me. This morning it became even more a form of modern day torture. Two cats decided to sit on my arched back while a dog attempted to lick my face off. Apparently this was one of the Spanish Inquisitions favourite tortures. But I survived.

Then almost immediately the radio signal disappeared. The sound of silence. So I quickly grabbed the first cd I could find. Black Sabbath Vol 4 and tried to complete the session.

Vol 4 is a fine album and features a rarity for Sabbath, a slow reflective song. CHANGES. This song finished off my exercises for the day. Normally at the end of a routine it’s an immediate mad sprint for the warmth of the shower. But not today. I just sat on the cold floor. Lost in thoughts.

A line from Changes had shaken me.

And I can still hear her last goodbyes

I can’t. As hard as I try I can’t remember hearing my partners last goodbye to me – blank. I can vividly remember her peacefully sleeping at the hospice as if it was yesterday. I can remember talking to her gently and holding her hand but as hard as I try I can’t remember her last goodbye. I can remember driving her to the hospital with our son but the conversations are gone. Why would I remember them at the time as she was only going in for a couple of tests and would be out by the weekend. I just can’t remember that last goodbye. That haunts me. Probably will always haunt me.

Not PC the sequel

Maybe I can get away with a couple more animal likenesses. Sorry these are a bit UK based.

Michael Gove – UK politician. A man we can partly thank for the state of our education system and someone (god help us) now in charge of looking after our environment. Maybe a Sloth….

Sloth Day Facts

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Boris Johnson – allegedly a U.K. politician. Sorry this is a bit unfair to Orangutans.

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And again in the spirit of fairness, another one we came up for ME was

If anybody fancies a go, please feel free. We all could do with a smile today.

Let’s be safe and nice out there.

Put the cat in charge

I was blog chatting (or whatever it is called these days) with a friend today and somehow politics came up. When I say politics I mean really silly politics. Our politics is grim. Very grim. One of the only fun elements is when one of our smallest parties enters the elections. The Monster Raving Looney Party. It’s almost as if Monty Python had entered politics. It was started in the 1960s by the musician called Screaming Lord Sutch.

This was the Party who had a real cat called Catmando as its joint leader for 3 years.

Some of its brilliant policy ideas have included:

  • Make the tax system more complicated so that it is harder for companies to find loopholes
  • Make it illegal to walk under ladders
  • To prevent global warming all buildings will have air conditioning units on the outside
  • All politicians should paint themselves permanently from head to toe in the colour of their party
  • All socks to be sold in packs of 3 in case you lose one
  • Introduce a 99p coin
  • To save money they would only operate our nuclear missiles at weekends
  • Build a really big wall (or hang on that’s not one of the Looney Parties policies).

The scary thing is that actually some of the ‘crazy’ policies they came up with have over years actually become rather sensible and have been adopted by the government. We have pet passports now and who was the first party to propose them. They jokingly proposed 24 hour licensing for places selling alcohol (had been very restrictive hours) and a few years later it became law. Back in the 1960s they campaigned to have the voting age reduced to 18 (now the law and how was this ever considered a mad idea).

Sadly they never quite get into government. Maybe because the looney vote is split. At the last election you had the Looney Party, plus you had a chap called Lord Buckethead, some guy dressed as a fish finger and some chap dressed as Elmo.

Some would argue that recent governments have been infiltrated by loonies.

What am I wittering on about. I don’t really know. I think the point is that when the world seems really bleak and sad. When you want to just stand outside, look at the heavens and scream. To hear your own tears raining down on this increasingly alien land. Just sometimes the only thing that keeps you going is a bit of silliness. It brought me back from the edge. Our dip into politics today certainly made our son laugh. It made him forget about his worries for a few minutes.

If the Looney Party has indeed a track record of starting sensible policies off then maybe they should come up with a policy of banishing sadness and anxiety. Maybe in a few years it becomes reality. I could vote for that.

Walls

Looking at some photographs I had found from our last holiday. Always brings back those bittersweet memories.

“Dad I love Switzerland. I love the fact that many of the houses in the mountains don’t have walls. It makes the world so much more beautiful. Silly people forget that as high as you build a wall you can always build a ladder just a bit taller.”

He is so true. Walls can be climbed, tunnelled under, knocked down or just walked round. They however do have a habit of ruining a view. Some notable visual exceptions to that – Great Wall of China, Hadrians Wall. I wonder if the Romans realised when they built it that as a defensive wall it was a little bit rubbish but as a tourist attraction it was a winner. Maybe we could sell it. I wonder if anyone is looking for a slightly used big wall. Might be a winner if you don’t mind picking a few weeds out of it and it probably comes with a few resident sheep as well.

“Dad what really annoys me is that we build little wildlife sanctuaries then wall the animals inside. People don’t realise that we have to create connections between all the sanctuary’s to allow the animals to roam. If we did that then Wildlife would start to flourish again”

Again can’t argue with this. Does feel like the humans continue to sprawl out and nature is increasingly contracted. It’s lucky if it’s granted a few areas of protection.

“Dad better idea for walls. Let’s squeeze humans into a few small human sanctuaries then wall us in. Nature can have all the rest of our planet”

Only problem is that I just can’t imagine how I would cope with being confined in such close proximity to some of our politicians. Boris Johnson – please no, just no. Yes walls do have some major drawbacks.