Life – Page 136 – A Dad trying to cope with the loss of his Partner and becoming a single parent.

Posted on January 2, 2019 by bereavedandbeingasingleparent · 49 Comments

Sleepwalking

New Years Day brought the traditional trip to the Yorkshire Wildlife Park. It was a wonderful few hours – more of that in the next post.

On our return things seemed fine. Then steadily things started to deteriorate and eventually we had a full on anxiety vortex. Consuming so much energy and hope.

Our son started to think again about school. Like me he often tries to overthink problems. Visualise potential outcomes. And in a similar way to Dr Strange when asked by Ironman about the millions of potential scenarios to stop Thanos – “he could only find one option which had a chance of success”. In our Son’s analysis he could only see one option with a chance of success – leaving school as a solution to his anxieties.

Teachers who don’t understand him
Falling further behind in reading – he realises that although he is making progress this is not catch up progress rather this is at best slowing the widening gap
Friendships
Low school expectations
Little help
Sensory overload at school – too much noise, too many people
Too much homework
Constant fear of getting negative comments and falling foul of the penalty system. Even something like forgetting to button up your top button or forgetting to bring in your planner producing automatic penalties.
A school timetable which brings tight deadlines and logistics pressures to someone with Aspergers.
In a disruptive class
And on and on …..

Again today I couldn’t find the healing words. Just couldn’t stem the raging anxiety vortex. The vortex doesn’t just suck our son’s energy it feeds on mine to. Increasingly tired. Feeling broken. Mind keeps crashing back to those 6 weeks when I lost my mum and then my partner.

We try to get some sleep but the vortex continues to rage and our son is beyond sleep.

“Dad we need to do something, anything”.

Come on let’s take the dog for a walk.

“But I’m in my pyjamas and it’s nighttime”

Get changed quickly then.

Ten minutes later at 10.50pm we are walking the dog in the pitch black with one cheap torch to guide us.

The dark, the quiet, the spookiness – whatever the reason but suddenly the anxiety vortex is calmed.

Talk is now about the things we really wanted but never got as a kid. The things we love and hate about England. Favourite foods. Ghost stories.

Hopefully for one night our son is ok. He is asleep and hopefully has a good night. We dust ourselves down and go again tomorrow.

Posted on December 29, 2018 by bereavedandbeingasingleparent · 31 Comments

Top Cat Trumps

Our son has always loved Top Trumps. It’s the same ritual every time. Before we play he loves to line the cards up in order for each of the categories. Clearly the girl cat is not a fan of straight card lines. Apart from the cat the other thing which frustrates our son with the game is that he has to rely on me to read out the text on each card.

We continue to try and work together on our son’s dyslexia. Some progress is being made. Although he still struggles in general he now can just about spell the player names from his favourite football team. He can spell my teams player names as well. ‘Loser’ covers that one.

But for all the progress he still can’t read the books he is so desperate to enjoy. This is made worse when he hears other kids talking about the stuff they have read. So I have bought him a reading pen. Basically it’s a pen shaped scanner with a headphone. It reads out scanned text. He has used them sporadically at school and they do give him a sense of independence.

We have opted for the C-Pen Exam Reader. Will report back on its performance. However today a very happy boy enjoyed reading a comic by himself. Plus the scanner works on Top Trump Cards. The signs are good.

Jelly Bean Challenge: How many ScoobyDoo movies and episodes have been made?

Different sites have different numbers but going to use these as our marking scheme

Shows (not including cross overs and stuff not including Scoobie) – 406

Films – 39

Specials – 11

Total about 456

My guess was 350. Son’s guess was 399. So again I visited the Jelly Bean Lounge. This time no bullet in the chamber – lucky to select normal apple flavour. However due to earlier attempted cheating I was forced to select a second bean. This time I can confirm blood flavour is revolting.

The next challenge was set by a random question setter we have found on the internet. The question is how many types of poisonous snakes live in Australia. Apparently the answer “too many” is not specific enough.

Posted on December 18, 2018December 18, 2018 by bereavedandbeingasingleparent · 43 Comments

Christmas comes early

Another trip to the fracture clinic and our son is super happy. Yes he’s still in pain, yes he can’t use his right hand but the Doctor has said the magic words

“I’m afraid you need a few more rest days so it’s another week off school”.

So it’s no more school until 2019.

To someone who goes through so much anxiety because of school it’s an early festive gift for our son. Does cause problems for me but seeing our son more relaxed – it is a price worth paying. More work can be done at home (updates permitting). The car will have to survive a few more weeks without some much needed and overdue garage TLC. Tonight I will desperately check out which food stores can home deliver this week. Like many kids with Aspergers a visit to a busy supermarket is hell on Earth.

So I sit down with a cup of tea and the laptop. One eye keeps checking out the Harry Potter movie on the TV. The pets come to join me on the sofa. Then it’s return of Windows update madness again. Surely we can find a more convenient way of maintaining our Computers. One which doesn’t stop the world turning. So so thankful my ancient tablet is not Windows based.

I am reminded of a recent conversation with our son. He was convinced that computers should be completely redesigned and remodelled taking lessons from nature. Namely the shark. Some sharks that live at the depths of oceans and seas, for example the Nurse shark, can drop to the ocean floor and enter into something equivalent to our deep sleep. But other sharks like the Great White can’t do this – they need to keep swimming. Our Son reliably informed me that much evidence suggests that they effectively reduce brain activity down to a minimum in one part of the brain while the other part of the brain continues normally. It could be that the spine which is responsible for swimming may have some operational independence. In effect part of the brain shuts down to sleep and the shark continues to swim. So we should redesign the computer processor so that part of it can be updated while the other half continues to work. Dual processors should easily facilitate this. Sounds good to me sat here with laptop displaying an “out to lunch” message on the screen. But it does raise the question how much of our lives would be transformed if we let kids with a different take on life start designing our world.

Anyway let’s watch Harry find the Chamber of Secrets. Maybe at the end of the movie my laptop will grant me a couple of hours operating time.

Posted on December 15, 2018 by bereavedandbeingasingleparent · 46 Comments

Early morning

I decided to get up really early this morning to try and do a bit of work catch up. But the work gods are still against me. In my half asleep state I somehow found a way of opening up the laptop and switching it on.