Changes is good just not that early

Today started off in the usual manner. Early morning exercise session listening to rock on the radio. Things going fine apart from the usual creaking body. Put me down for the a full body transplant, I’ve used this one up.

Then things started to change.

I hate doing the plank but apparently it’s good for me. This morning it became even more a form of modern day torture. Two cats decided to sit on my arched back while a dog attempted to lick my face off. Apparently this was one of the Spanish Inquisitions favourite tortures. But I survived.

Then almost immediately the radio signal disappeared. The sound of silence. So I quickly grabbed the first cd I could find. Black Sabbath Vol 4 and tried to complete the session.

Vol 4 is a fine album and features a rarity for Sabbath, a slow reflective song. CHANGES. This song finished off my exercises for the day. Normally at the end of a routine it’s an immediate mad sprint for the warmth of the shower. But not today. I just sat on the cold floor. Lost in thoughts.

A line from Changes had shaken me.

And I can still hear her last goodbyes

I can’t. As hard as I try I can’t remember hearing my partners last goodbye to me – blank. I can vividly remember her peacefully sleeping at the hospice as if it was yesterday. I can remember talking to her gently and holding her hand but as hard as I try I can’t remember her last goodbye. I can remember driving her to the hospital with our son but the conversations are gone. Why would I remember them at the time as she was only going in for a couple of tests and would be out by the weekend. I just can’t remember that last goodbye. That haunts me. Probably will always haunt me.

Not PC the sequel

Maybe I can get away with a couple more animal likenesses. Sorry these are a bit UK based.

Michael Gove – UK politician. A man we can partly thank for the state of our education system and someone (god help us) now in charge of looking after our environment. Maybe a Sloth….

Sloth Day Facts

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Boris Johnson – allegedly a U.K. politician. Sorry this is a bit unfair to Orangutans.

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And again in the spirit of fairness, another one we came up for ME was

If anybody fancies a go, please feel free. We all could do with a smile today.

Let’s be safe and nice out there.

Put the cat in charge

I was blog chatting (or whatever it is called these days) with a friend today and somehow politics came up. When I say politics I mean really silly politics. Our politics is grim. Very grim. One of the only fun elements is when one of our smallest parties enters the elections. The Monster Raving Looney Party. It’s almost as if Monty Python had entered politics. It was started in the 1960s by the musician called Screaming Lord Sutch.

This was the Party who had a real cat called Catmando as its joint leader for 3 years.

Some of its brilliant policy ideas have included:

  • Make the tax system more complicated so that it is harder for companies to find loopholes
  • Make it illegal to walk under ladders
  • To prevent global warming all buildings will have air conditioning units on the outside
  • All politicians should paint themselves permanently from head to toe in the colour of their party
  • All socks to be sold in packs of 3 in case you lose one
  • Introduce a 99p coin
  • To save money they would only operate our nuclear missiles at weekends
  • Build a really big wall (or hang on that’s not one of the Looney Parties policies).

The scary thing is that actually some of the ‘crazy’ policies they came up with have over years actually become rather sensible and have been adopted by the government. We have pet passports now and who was the first party to propose them. They jokingly proposed 24 hour licensing for places selling alcohol (had been very restrictive hours) and a few years later it became law. Back in the 1960s they campaigned to have the voting age reduced to 18 (now the law and how was this ever considered a mad idea).

Sadly they never quite get into government. Maybe because the looney vote is split. At the last election you had the Looney Party, plus you had a chap called Lord Buckethead, some guy dressed as a fish finger and some chap dressed as Elmo.

Some would argue that recent governments have been infiltrated by loonies.

What am I wittering on about. I don’t really know. I think the point is that when the world seems really bleak and sad. When you want to just stand outside, look at the heavens and scream. To hear your own tears raining down on this increasingly alien land. Just sometimes the only thing that keeps you going is a bit of silliness. It brought me back from the edge. Our dip into politics today certainly made our son laugh. It made him forget about his worries for a few minutes.

If the Looney Party has indeed a track record of starting sensible policies off then maybe they should come up with a policy of banishing sadness and anxiety. Maybe in a few years it becomes reality. I could vote for that.

Walls

Looking at some photographs I had found from our last holiday. Always brings back those bittersweet memories.

“Dad I love Switzerland. I love the fact that many of the houses in the mountains don’t have walls. It makes the world so much more beautiful. Silly people forget that as high as you build a wall you can always build a ladder just a bit taller.”

He is so true. Walls can be climbed, tunnelled under, knocked down or just walked round. They however do have a habit of ruining a view. Some notable visual exceptions to that – Great Wall of China, Hadrians Wall. I wonder if the Romans realised when they built it that as a defensive wall it was a little bit rubbish but as a tourist attraction it was a winner. Maybe we could sell it. I wonder if anyone is looking for a slightly used big wall. Might be a winner if you don’t mind picking a few weeds out of it and it probably comes with a few resident sheep as well.

“Dad what really annoys me is that we build little wildlife sanctuaries then wall the animals inside. People don’t realise that we have to create connections between all the sanctuary’s to allow the animals to roam. If we did that then Wildlife would start to flourish again”

Again can’t argue with this. Does feel like the humans continue to sprawl out and nature is increasingly contracted. It’s lucky if it’s granted a few areas of protection.

“Dad better idea for walls. Let’s squeeze humans into a few small human sanctuaries then wall us in. Nature can have all the rest of our planet”

Only problem is that I just can’t imagine how I would cope with being confined in such close proximity to some of our politicians. Boris Johnson – please no, just no. Yes walls do have some major drawbacks.

Sleepwalking

New Years Day brought the traditional trip to the Yorkshire Wildlife Park. It was a wonderful few hours – more of that in the next post.

On our return things seemed fine. Then steadily things started to deteriorate and eventually we had a full on anxiety vortex. Consuming so much energy and hope.

Our son started to think again about school. Like me he often tries to overthink problems. Visualise potential outcomes. And in a similar way to Dr Strange when asked by Ironman about the millions of potential scenarios to stop Thanos – “he could only find one option which had a chance of success”. In our Son’s analysis he could only see one option with a chance of success – leaving school as a solution to his anxieties.

  • Teachers who don’t understand him
  • Falling further behind in reading – he realises that although he is making progress this is not catch up progress rather this is at best slowing the widening gap
  • Friendships
  • Low school expectations
  • Little help
  • Sensory overload at school – too much noise, too many people
  • Too much homework
  • Constant fear of getting negative comments and falling foul of the penalty system. Even something like forgetting to button up your top button or forgetting to bring in your planner producing automatic penalties.
  • A school timetable which brings tight deadlines and logistics pressures to someone with Aspergers.
  • In a disruptive class
  • And on and on …..

Again today I couldn’t find the healing words. Just couldn’t stem the raging anxiety vortex. The vortex doesn’t just suck our son’s energy it feeds on mine to. Increasingly tired. Feeling broken. Mind keeps crashing back to those 6 weeks when I lost my mum and then my partner.

We try to get some sleep but the vortex continues to rage and our son is beyond sleep.

Dad we need to do something, anything”.

Come on let’s take the dog for a walk.

But I’m in my pyjamas and it’s nighttime”

Get changed quickly then.

Ten minutes later at 10.50pm we are walking the dog in the pitch black with one cheap torch to guide us.

The dark, the quiet, the spookiness – whatever the reason but suddenly the anxiety vortex is calmed.

Talk is now about the things we really wanted but never got as a kid. The things we love and hate about England. Favourite foods. Ghost stories.

Hopefully for one night our son is ok. He is asleep and hopefully has a good night. We dust ourselves down and go again tomorrow.

Top Cat Trumps

Our son has always loved Top Trumps. It’s the same ritual every time. Before we play he loves to line the cards up in order for each of the categories. Clearly the girl cat is not a fan of straight card lines. Apart from the cat the other thing which frustrates our son with the game is that he has to rely on me to read out the text on each card.

We continue to try and work together on our son’s dyslexia. Some progress is being made. Although he still struggles in general he now can just about spell the player names from his favourite football team. He can spell my teams player names as well. ‘Loser’ covers that one.

But for all the progress he still can’t read the books he is so desperate to enjoy. This is made worse when he hears other kids talking about the stuff they have read. So I have bought him a reading pen. Basically it’s a pen shaped scanner with a headphone. It reads out scanned text. He has used them sporadically at school and they do give him a sense of independence.

We have opted for the C-Pen Exam Reader. Will report back on its performance. However today a very happy boy enjoyed reading a comic by himself. Plus the scanner works on Top Trump Cards. The signs are good.

Jelly Bean Challenge: How many ScoobyDoo movies and episodes have been made?

Different sites have different numbers but going to use these as our marking scheme

Shows (not including cross overs and stuff not including Scoobie) – 406

Films – 39

Specials – 11

Total about 456

My guess was 350. Son’s guess was 399. So again I visited the Jelly Bean Lounge. This time no bullet in the chamber – lucky to select normal apple flavour. However due to earlier attempted cheating I was forced to select a second bean. This time I can confirm blood flavour is revolting.

The next challenge was set by a random question setter we have found on the internet. The question is how many types of poisonous snakes live in Australia. Apparently the answer “too many” is not specific enough.

Christmas comes early

Another trip to the fracture clinic and our son is super happy. Yes he’s still in pain, yes he can’t use his right hand but the Doctor has said the magic words

“I’m afraid you need a few more rest days so it’s another week off school”.

So it’s no more school until 2019.

To someone who goes through so much anxiety because of school it’s an early festive gift for our son. Does cause problems for me but seeing our son more relaxed – it is a price worth paying. More work can be done at home (updates permitting). The car will have to survive a few more weeks without some much needed and overdue garage TLC. Tonight I will desperately check out which food stores can home deliver this week. Like many kids with Aspergers a visit to a busy supermarket is hell on Earth.

So I sit down with a cup of tea and the laptop. One eye keeps checking out the Harry Potter movie on the TV. The pets come to join me on the sofa. Then it’s return of Windows update madness again. Surely we can find a more convenient way of maintaining our Computers. One which doesn’t stop the world turning. So so thankful my ancient tablet is not Windows based.

I am reminded of a recent conversation with our son. He was convinced that computers should be completely redesigned and remodelled taking lessons from nature. Namely the shark. Some sharks that live at the depths of oceans and seas, for example the Nurse shark, can drop to the ocean floor and enter into something equivalent to our deep sleep. But other sharks like the Great White can’t do this – they need to keep swimming. Our Son reliably informed me that much evidence suggests that they effectively reduce brain activity down to a minimum in one part of the brain while the other part of the brain continues normally. It could be that the spine which is responsible for swimming may have some operational independence. In effect part of the brain shuts down to sleep and the shark continues to swim. So we should redesign the computer processor so that part of it can be updated while the other half continues to work. Dual processors should easily facilitate this. Sounds good to me sat here with laptop displaying an “out to lunch” message on the screen. But it does raise the question how much of our lives would be transformed if we let kids with a different take on life start designing our world.

Anyway let’s watch Harry find the Chamber of Secrets. Maybe at the end of the movie my laptop will grant me a couple of hours operating time.

Early morning

I decided to get up really early this morning to try and do a bit of work catch up. But the work gods are still against me. In my half asleep state I somehow found a way of opening up the laptop and switching it on.

“Configuring Windows Update. Do not turn off your computer”

Stumbled off to make a cup of tea (as Velma Dinkley would say – Jinkys) why did I choose this week to give up coffee.

“Configuring Windows Update. Do not turn off your computer”

Stumbled back into the kitchen to make a bit of breakfast.

“Configuring Windows Update. Do not turn off your computer”

Stumbled back into the kitchen to make another cup of tea. Clearly the last one didn’t wake me up.

“Configuring Windows Update. Do not turn off your computer”

Better sort out the smelly cat litter, like smelling salts, that’s woke me up.

“Configuring Windows Update. Do not turn off your computer”

And on and on and on. Two hours later it’s still in configuration meltdown.

So I can’t turn off the computer but it doesn’t say anything about using it as the new cat litter tray,

“Configuring Windows Update. For gods sake don’t let that cat pee on your computer”

So zero work done but I did get to see a sunrise and hear the stunning 🦅 dawn chorus. I had forgotten how magical this time of day can be.

Literally

Children on the autistic spectrum can often take words literally. Now most of this can be put down to the confusing nature of language. Why do we make it so difficult. Often English doesn’t even seem like my second language. It did take me three attempts to pass my English exam.

It is something we noticed with our son at an early age. I can clearly remember one time when naughty dad had eaten all the smarties. When our son quizzed the suspect I remember saying

“Must have been the dinosaur in the kitchen”

Five minutes later our son is ransacking the kitchen in a desperate dinosaur hunt.

Another time I remember saying “and Pigs might Fly”. A few weeks later at nursery our son began telling the other kids that pigs could fly. And given a lot of the kids realised how much he knew about animals – they all started believing it to. So if you ever hear someone like Coyote Peterson or Chris Packham talking about flying pigs on their nature shows – then you probably know who to blame. Sorry

We had to become more careful in what we said. We tried to make sure if a joke was told or any colloquial language used that we immediately pointed what had been done and why. Explaining that words can have different meanings. We also tried to stress the importance of not only hearing the words but also trying to listen for how things have been said. We worked on his body language recognition skills. One game which helped was watching the TV with the volume turned off and trying to guess which people were happy or sad or angry or being serious.

To this day he still quite often takes words literally. It’s a worry going forward into senior school. But he is learning. He now frequently asks “is that real” or “is that true” to try and confirm meaning and last week….. He was using my iPad in another room. He kept shouting that it wasn’t working properly. Me being a lazy sod I was trying to shout instructions back rather than going to look at it. After several minutes he shouted that it was still not working. Without thinking I replied “just flush it down the toilet”. Few seconds later the toilet flushed. I have never ran so fast. Fortunately I found a laughing son saying “got you there dad”. Happy Days….

Bridges

Sunday seems such a long time ago. I just love the quayside area of Newcastle. Yes it’s built up. Some of the architecture is 18th century housing modern wine bars, restaurants, fast food joints and pubs. But it just seems to work and dovetail together.

But the highlight for me are the bridges over the River Tyne. All so different and just stunning.

Too often people look towards the famous Tyne Bridge and forget to look in the other direction.

Son was really brave and made it into the football stadium. He enjoyed the full Mr Men display from his dad. He even got animated with the pompous and bumbling referee (without prompting). For anyone who follows English Football – Mike Dean is infamous. Yes it ended up with my team losing again but that misses the point. It was one of those days where our son ventured into a world which is not his and rather enjoyed it.