Posted on by bereavedandbeingasingleparent · 65 Comments

Cinema

It’s that time of year. A definite feel to the movies we have watched. Can you see the theme.

Scrooged

Home Alone 1, 2, 3, 5

The Grinch

A Christmas Carol

Muppets Christmas Carol

The Santa Clause 1,2,3

Elf

National Lampoons Christmas Vacation

The Polar Express.

For me I just can’t quite catch the connection. Sure there must be one if I look hard enough.

One of the things that feels amiss this most odd year (that doesn’t work as 2020 is even) is the cinema experience. Before Hawklad we would always have a Christmas trip to the pictures (as my mum would have said). A meal before hand and then a movie. Such a lovely experience. So many wonderful memories.

Taking my mum to see The Horse Whisperer on Boxing Day. She hadn’t been to the pictures in 40 years. She was most puzzled not to watch the Pathe News segment before the movie. She refused to get up at the end and waited until the credits played through. Apparently she was waiting for the National Anthem to be played…

Trips with my partner to see huge blockbusters on Christmas Eve like the Lord of the Rings Movies. Then coming out in time to sing carols in the city centre.

Even after the world changed Hawklad and I kept the tradition going. A changed Aspergers tradition. We would take in the first, early morning screenings of movies like Jumanji and the Rise of Skywalker. Popcorn at 8am works on so many levels. Then we would go and get him his favourite takeout. All before midday.

But this year it’s no cinema. Any trip is just so out of reach for Hawklad and his anxieties. The world has changed. Even the prospect of Wonder Woman and Black Widow epics won’t overcome those fears. Maybe the trips to the Pictures have stopped for good. We will just have to see what the future holds but life goes on. It’s time to recreate that Christmas tradition at home. So we will pick a movie. A good movie. Set the dvd off at 8am. Microwaved popcorn in plentiful supply. The Christmas Cinema tradition continues.

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Fence

Which side of the fence is best?

I had a call with Hawklads new health specialist. She will (pesky pandemic dependent) come out to see him for the first time in January. Continuity is so important for someone on the spectrum. It takes time to earn trust and confidence. Those bridges when they come down are slow to be rebuilt. Having had a wonderful health lead for three years we are now in a spell of meet one, quickly see one disappear. Fingers crossed this time.

It’s clear what the medical opinion still is. Any meaningful progress is extremely unlikely until this virus is well under control. When it’s clear that the vaccine which has been administered works effectively and does protect. Only then can any progress be realistically contemplated. Prepare to bunker down for 2021. 2022 might be the first gateway to a more open life for our little family. I also have to accept the risk that progress does not happen for Hawklad. Bridges are not built. This is the new world.

I remain clear. It’s Hawklads life. He makes the call. I will support which ever route he goes down.

So will he return to school in January? Most likely NO. Will he make it back before the end of the school year in July. Probably NO. Will he start the new school year in September. Definitely no guarantee.

It feels like we are in one side of a fence. The side that feels limited but safe. The other side of the fence opens up the world, broadens his horizons but…….

Posted on by bereavedandbeingasingleparent · 59 Comments

Puddings

Where are our biscuits……

So today my country finds itself cut adrift. Many countries have closed their ports, tunnels and airports to us. That’s what happens when you mix an even more pesky variant of Covid with clueless, self deluded, only interested in themselves numpties who couldn’t manage a snowball fight.

Dolly and her biscuit munching woolly friends would do a better job than that prat called Boris and his cronies.

So yep we are cut adrift as a nation. All I can think about is why it took so long for this to happen. Countries like France should have done this years ago. We are not exactly going to be missed. Must be time for Yorkshire to join Scotland in declaring independence and ditching this madness. Let’s celebrate that thought with a large portion of Yorkshire Puddings. I’d rather talk about those puddings than the other puddings who are in charge,

Posted on by bereavedandbeingasingleparent · 61 Comments

Chickpeas

So the government has known that the new strain, the even more pesky strain of Covid has been here for weeks. In that time it has issued travel warnings and banned travel to other countries that had the slightest whiff of this strain. But it failed to mention that we had it all that time. It encouraged people to meet up and plan for a largely restriction free Christmas. Allowed people and businesses to make plans. Hurled abuse at those who dared to mention that easing restrictions might be a mistake. And then at the last minute they have cancelled the Christmas easing and have hit millions with further restrictions. How do some people still think that these people are fit to lead us. One rule for us and another rule for them. Making a priority of making making millions for their friends and themselves.

Avoiding making decisions, ignoring facts and putting things off to the last minute never works…

I’ve had a supersized bag of chickpeas propped up on the kitchen sideboard for weeks and weeks. The bag is opened at the top. Wide open…..I should have put the chickpeas into a large container. Or resealed the bag. Or moved them somewhere safe. Oh no. I’ve left them there. Courting kitchen floor disaster. Well this morning it happened. As I tried to clean the work surfaces I spectacularly elbowed the open chickpea bag. Given how far it went into the air it might as well have been a NASA Saturn 5 rocket launch. Strangely given an opportunity to escape, chickpeas will not refuse the opportunity. They are everywhere. On the floor. Under units. In the sink. All over the work surfaces. I’m wearing a few. Actually some found their way into the toaster. Even some foolish souls dived into my training shoes. Not content with that, they enticed the pets to spread the chickpea invasion to other parts of the house. Mayhem.

If only I had done something sooner. Now you could argue that I’m just as bad as the government for letting this happen. Well maybe not. I don’t get paid handsomely for doing this. I don’t get advice from top scientists and logistical planners. I don’t have a duty of care to look after millions. Decisions over my 3kg chickpea packet do not impact of the life and health of a country.

Yes I’m a muppet but I’m not wilfully negligent…..

Posted on by bereavedandbeingasingleparent · 38 Comments

Start again

Another Monday and the start of another school at home week. I make that Week 38. That’s a lot of weeks. Funny thing is that it doesn’t feel like 38 weeks. Somedays it feels like only a couple of months. Other days it seems like years.

In all probability during the early part of 2021 it will be a full year of schooling at home. That wasn’t really in the plan.

It has really all felt a bit hit and miss. Some good bits and some not so good bits. Lots of frustrations. But equally lots of laughs. Some subjects where the teaching is working. Others where after 38 weeks it is still a complete waste of time. But that’s thing. With having to stick to the school curriculum we don’t have much scope to change things. We are dependent on the school making changes. But they have to stick to the national curriculum.

But over those 38 weeks we have settled into a rhythm. Parent and Son. No need to set the alarm as we just naturally wake up at the right time. No real pressure if Hawklad starts a few minutes early or late. No need to think about breaks or food. They kind of just happen. We know which lessons will work and which won’t. If we don’t have an item for a lesson we now know how to wing it. We are not surprised by the lack of feedback. Hawklad doesn’t panic now if a teacher forgets about him. I get on with stuff until I’m needed to help out. The school week just happens now.

True homeschooling did feel daunting now it feels very doable. Tough but something we can cope with. But Week 38 also marks a dangerous time. That’s a lot of weeks of emailing and phoning school. Trying to make improvements to the teaching. Make it more tailored to Hawklad. Am I starting to take my eye off the ball. Not pushing the school as much. Maybe week 38 is time to refocus and start again. Or maybe it’s just going to be another one of those weeks. If I was a betting man I would put my money on the latter. It just feels that way.

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Well that’s sorted then

I was conscious that this Christmas will be different for us, different for Hawklad.

No end of school term activities and parties.

No Carol singing in the city while drinking hot chocolate.

No Santa Train ride. Ok we are doing our own car version.

No Charity Santa coming through the village on a trailer pulled by a tractor.

No festive walks along the beach and finishing off at a little cafe for his festive ice cream.

No visits to friends.

No family meet-ups.

No trips to the Christmas Market.

No trip to the zoo in New Years Day.

No family Christmas meal.

No Boxing Day walk with picnic.

No festive trip to the cinema to see a blockbuster and then whatever festive film they have showing.

No carol singers coming round the houses on Christmas Eve.

Basically it will be just the two of us and pets. Sticking to the house and garden. Maybe only one trip out to do the Santa Car ride. I was feeling bad about that so I brought it up with Hawklad. I explained the differences to him

……. so it’s going to be really different this year. How do you feel about that Hawklad?

“So no family at all?”

None!

“Absolutely no visitors?”

None!

“No festive trips out?”

It doesn’t look like it.

“Dad, can we order in extra pizza over Christmas?”

Yes Son.

“Well that will be just fine then…….”

Posted on by bereavedandbeingasingleparent · 63 Comments

Welcome sight

That’s one of my favourite electricity poles. Why? Because when I used to run it was the first thing I saw when I got close to home again. Always a welcome sight.

I was thinking that after this trying year we could all do with a welcome sight or two.

For everyone that welcome sight will be different. For me what would it be….

Maybe a rock concert,

Maybe going to see my team get beat again at St James Park,

Maybe it’s the view from the top of a mountain,

Maybe it’s the Sea,

Maybe it’s seeing Switzerland again,

Or just maybe it’s seeing a friends smile in person.

Let’s hope that whatever that view is, you and I will see it in 2021.

Posted on by bereavedandbeingasingleparent · 50 Comments

Eat chocolate

I received a lovely present today in the post. The government support package for Hawklad will expire soon. So I need to reapply. Helpfully they have sent the 50 page application form to complete. I can’t submit the old paperwork and need to have more recent assessments and evidence. That’s a nightmare at the best of times but during a pandemic!!!!!!!

Only thing for it….. A bar of dark chocolate, a decaf coffee and listen to some angry music. Today’s choice, the latest from Roger Waters. That’s one seriously cheesed off artist recording those songs. That fits as that’s the music I would make today. Normal people are forced to jump through hoop after hoop for their kids yet friends of the Government are awarded multi million pound contracts without any due process. Roger Waters would certainly get the irony.

Well I then made a start. Book an appointment for a new assessment from a Paediatrician. On the waiting list. That’s currently a one year wait and growing. It’s a start…. Where’s the next chocolate bar.

But here’s the really scary thing. Our Son is fortunate as he has had some support. We somehow battled through the intentionally difficult minefield to get that. So many are either unsuccessful or are just missed. That’s the children, adult support is almost none existent. Discarded by our society that has its priorities so badly skewed. What’s the answer. Certainly to keep fighting. Most definitely to eat chocolate.

Posted on by bereavedandbeingasingleparent · 68 Comments

Wean myself off

This was last year. One hour into my trail run. Apart from missing the exercise I hope you can see why I miss running free.

Eventually you have to accept reality.

Hawklad’s anxieties are still rising. More routine tasks are becoming more difficult for him. He can largely control the dynamics within our house and garden. Lots of washing, extensive quarantining of items and being careful what he touches. He is ok within his castle walls. He is not ok with me venturing out.

Beyond those walls and that’s a completely different world. An alien, dangerous world to him. His doctors are clear – this will take a very long time to start to address. It’s not going to start happening until a pandemic is well behind us and as one of our leading scientists pointed out – with a fair wind we may start returning to something like normal life at the end of 2021. That’s assuming the new vaccines work and roll out soon….

So for me the reality is that our personal lockdown will likely stretch through 2021 as well. My mindset has to change. Away from getting through the next few months TO living the much longer new reality.

So back to the photograph. Running has become a bit of a drug for me. Now I have to completely wean myself off that. I’m nearly there as it’s been so long without it. Time to permanently replace it with other things.

Posted on by bereavedandbeingasingleparent · 40 Comments

Firsts

2020 is definitely a year of firsts. Still a few weeks to go but maybe it’s safe to call the result in some areas….

  • First year in decades without a visit to a hairdresser,
  • First year in decades without a visit to see my football team get beat (a moan is good for the soul),
  • First year without caffeine,
  • First year with Tai Chi,
  • First year in decades without buying a parking ticket,
  • First year in decades without standing on a mountain top,
  • First year in decades without mooching around a record or book store,
  • First year of not meeting up with a member of my family,
  • First year of turning up at a family birthday party and suddenly realising that I bought exactly the same present last year,
  • First year without buying fish and chips,
  • First year without walking on a beach,
  • First time lockdown applied to me,
  • First year without a visit to an historical site,
  • First year without accidentally bumping into someone you didn’t want to in the supermarket. Then spending the next 30 minutes trying to shop and avoid that person. Hiding behind a mask is way more easy,
  • First year without visiting a garden shop to buy a plant and then killing that plant off within weeks,
  • First year of not popping into a sweet shop and asking for a quarter of midget gems,
  • First year of not popping into a climbing store and looking at all the new gear (even though I don’t climb anymore),
  • First year of not making a single journey on public transport,
  • First year of not popping into a bakery for a quick top up on a pasty,
  • First year of not going to the cinema,
  • First year in decades without going for a bike ride,
  • First year without getting half way round a bike ride and thinking – why is Yorkshire so pigging hilly,
  • First year were I haven’t bothered checking the wear on my cars tyres as they bar not being used,
  • First year of not physically meeting up with a friend to do something,
  • First year in decades of not venturing into a DIY store (Yeh!!!😀😀😀),
  • First year without going clothes shopping, buying that item which might be fun and then driving back thinking – what have I just done.

So yes I don’t think we will forget 2020 in while.