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Motivation

Not sure it’s the slightly unhinged world but here the daffodils are looking extra special this year. Much needed colour. Much needed motivation to keep believing in our world.

“Come on Dad, your doing the PE lesson with me.”

So 20 minutes later we are doing a fitness workout. I do slag the school off quite a bit but sometimes it does do things well. The online PE lessons was really good. It started with a daily workout from YouTube. The Body Coach TV (PE with Joe Wicks). The person doing it was great and made the session so much fun for kids. Son warmed to him straight away. Which is no mean feat.

My second workout of the day was definitely very different from the first. Standard weights and short burn military fitness exercises at 7am. Pretending to be Spider-Man and bouncing like a bunny rabbit at 11am. The latter was way more fun. So maybe, just maybe tomorrow at 7am you might see a grown man pretending to be a rabbit. That’s my excuse if I get wheeled away in a straight jacket.

But you need balance in life. If you get good then often the not so good arrives to bring life back into order. The Food Technology online lesson was grisly. Son attempted the task which was so tough for him given the difficulties he has with handwriting, spelling and drawing. But he tried and that’s all we can ask. A bit later the response came back. One or two good efforts but some are very poor presentations. Well that’s done his confidence a world of good.

So we have balance. Motivated and demotivated. Looking forward to the next lesson and dreading the next lesson. One has 1.5 Million subscribers (plus two more from our house) and the other has a kid desperate to drop the subject.

I’m sure even this guy was motivated to move just a bit during the fitness workout.

I should really tell this guys story as well. Completely ignored him when I waffled on about his gnome buddy. His name is Gene. Can you work out why? Gene is a relative baby. He’s about 7 years old. He was a Christmas present from my brother. He was supposed to be fireplace ornament. Unfortunately my partner hated it. As did our dear departed psychotic girl cat. So he was banished to the garden to save him from the sledgehammer and the apex predator. On his bottom a sign says – Not for external use. Yet after 7 years of grizzly Yorkshire weather he is still shinny and looking like new. So he clearly likes dancing in the Yorkshire rain.

Take care my friends and try to smile.

Posted on by bereavedandbeingasingleparent · 89 Comments

Crazy

It’s all gone a bit crazy. Even the sheep I encountered on the one permitted walk out of the house .. It’s a scene of peace in front of the lens. Behind the lens I am being stalked by a pack of hungry sheep waiting for a biscuit.

“Dad you have done some crazy things but that one is up there”

No it wasn’t my sanest moment. I lost a challenge and my punishment was to bounce for five minutes on the trampoline. In a moment of madness I made myself a cup of tea to drink while bouncing. Yes I didn’t really think that through. Unfortunately I didn’t come to my senses until after the first bounce had deposited the said contents of the cup onto my T-shirt. Clearly the tea is not the only thing that I have lost.

“Dad what on earth are you doing”

I had made a mistake on a post that I was writing for a couple of friends.

“Son where is the rubber (eraser), I’ve messed up and need to change something”

“Dad your using your IPad”

“Yes I know”

“Tell me Dad your not going thinking about using a rubber on the screen.”

Staggeringly I was in a moment of utter craziness. I guess it’s a combination of a complete lack of sleep, trying to help with French homework and the general oddness which has descended on to us all. It really is an odd feeling. Like we are living in an episode of the X-Files merged with Monty Python and Bear Grylls.

But at least we can still smile about it. If anything the craziness helps fill the day. So let’s have one more piece of craziness.

Rory (A Guy Called Bloke) has come up with a new music challenge.

you are to create a playlist of 15 songs based upon a weekly theme.  All titles must be relevant to the theme itself – not the artists just the song titles. This week the theme is CRAZY TIMES…

So here goes (going to try and just include songs from my music collection).

  1. Crazy Train – Ozzy
  2. Psychotic Break – Jerry Cantrell
  3. Madhouse – Anthrax
  4. Stone Cold Crazy – Queen
  5. Am I Going Insane – Black Sabbath
  6. Eyes of the Insane – Slayer
  7. Inmates (Were all Crazy) – Alice Cooper
  8. Crazy – Nazareth
  9. Crazy Horses – The Osmonds yes that’s my only Osmonds song
  10. Shine on you crazy diamond – Pink Floyd
  11. Crazy – Aerosmith
  12. Moon Crazy – Blue Oyster Cult
  13. Crazy World – Scorpions
  14. You’re Crazy – Guns n Roses
  15. Psycho – Metal Church
Posted on by bereavedandbeingasingleparent · 70 Comments

Air Display

We had an unexpected visitor.

A spectacular predator.

For a few minutes we had one of nature’s great air displays. Then it was off.

That was so lucky. Would have been so easy to miss this.

That brings to mind a slightly unsettling thought. How many of us would be missed if suddenly we were gone. Kinda like Marvels Infinity Wars. It’s an even more pertinent thought these strange days. So many of us are undertaking social distancing or full on isolation. Social links have been severed. If something goes wrong, if we are struggling, if we suddenly were gone – WHO would realise. Would the world even blink. Maybe not. That includes my own little family. Phone calls, visits, invites are rare at the best of times. Even rarer now. Would the world blink for us – no it probably wouldn’t. That’s a sobering thought. It’s a sobering thought for many of us.

But I guess that’s life. So we just have to deal with it. Keep our hearts open to others and just keep living. I’m lucky as I stumbled across the blogging universe.

The majestic raptor fly past is a great reminder of why living is so worth it.

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Torquay

My neighbours bird bath. Over the years it has become increasingly hard to fill. Thankfully the Yorkshire weather usually takes care of that.

Yesterday was a decently fun day. Any day with Pizza helps. We played football in the garden. Son fired a million questions at me. Including the following belter.

“Name 10 best things about Torquay”

We had been watching John Cleese in old episodes of Fawlty Towers. It’s set there.

“Son your going to annoyingly tell me that you know 10 such facts”

“Actually 17 facts Dad”

I whispered a silent bugger under my breathe.

We then tried to watch the new Joker movie. I was watching it thinking the acting is brilliant but I’m not enjoying this in the slightest bit. Then son broke my thought pattern.

“Dad I’m really not in the mood for this. I enjoy a good bit of Joker but this isn’t a Joker movie. It’s a movie about how a country fails to deal with mental health and how people look down on others who are different. I don’t like the way the film is doing it. Let’s watch it another day.”

So ten minutes later we had the new Shaun The Sheep movie on. That there is a movie.

But I understand what our son was talking about. Not the right time or mood for this Joker movie. There is too much going on in the world. It is also Mother’s Day in the UK. That’s one of THOSE days…. I must admit the social distancing has severely restricted our visits to the shops. That means less chance to walk past all the cards, flowers and potential gifts. Dealing with it for just one day is better than having it rammed down our throats for weeks on end.

I must admit this one has been less painful than the other ones we have endured. We have wished our lost mums a happy day. In my partners case we have kissed the ashes. Then so far we have gotten on with the job of making the most of today. My heart does go out to many mums today. Because of the restrictions and other factors outside of their control, they may not see kids and grandchildren today (or for many days to come). I really hope a way is found for a connection to be made. A text, a video call, a card, a cute photo, a virtual hug or a telephone call saying ‘I LOVE YOU’.

Stay safe and to all mums out there. Sending you a big hug. Thank you for being super heroes.

Posted on by bereavedandbeingasingleparent · 130 Comments

Friday I guess

Some random daffodils blooming next to our front window. These always make me smile as they just seemed to appear one year. I can’t remember planting them. Having said that, this is me…..

My mobile phone rang this morning. I could hear it somewhere really close but I just couldn’t find it before it rang off. A few minutes later I found me phone when I sat down. It was in my back pocket.

This morning it took me one hour to work out that it was Friday.

Sometimes there are no answers.

A few months back I was asked if I had found a magic bullet, a cure for it.

Sometimes there are no answers.

No it wasn’t the W.H.O. approaching me as a world expert on the search for a vaccine for the pesky virus. No don’t worry, I am still the same old dim witted goofball. No it was a parent from my sons last school. She had recently lost someone close and was really low with grief. She was desperate for the pain to go away.

Sometimes there are no answers.

Unfortunately I’ve not found a magic bullet, no cure or no vaccine that works with bereavement. It still hits me. It still hurts me. The days became weeks, weeks became months, months became years. I’m still waiting to gain acquired immunity. The route cause remains and will always remain. But I do believe that I have started to understand myself better. I am also slowly finding things that help with the symptoms. That’s something to cling on to. Sadly the things which help me, may not work for others. There is also no guarantee that what works today, will work tomorrow for me. I guess that’s the case not only for bereavement but for many other areas of life.

So what works for me (sometimes…)

  • Exercise, weights and running
  • Music
  • Movies
  • Nature
  • Walking
  • Climbing (I haven’t been able to climb in 4 years but just reading about it helps)
  • AND above all focusing on making our son happy.

Today was one of those days when virtually everything on the list did not work. All I could do was throw myself into keeping son happy. That distracted me. It got me through the day. It numbed the symptoms but didn’t cure the route cause. Now it’s 2am and those dark soul symptoms are bubbling away again. Probably going to be a long sleepless night. Will watch some rubbish TV and will again ponder over the home finances spreadsheet. Don’t know why – it’s not going to look any better when I’m tired.

It’s a brand new day. A fresh start. The old problems and hurt will still be there. But maybe, just maybe it will be symptom free day and it will be a good one.

Stay safe my friends.

Posted on by bereavedandbeingasingleparent · 87 Comments

Tree

This is a tree we can see from our garden. The walk across the farmers field takes you right beside it. When we first moved here it was so much bigger. Almost symmetrical. Unfortunately countless storms and a couple of lightning strikes have taken their toll. I guess that’s the price you pay for being a big isolated tree on an exposed hill top.

So it finally happened. All the countries schools will close on Friday. A skeleton childcare service will be provided for essential workers and vulnerable kids. Our school is planning to try and run lessons online. It’s an indefinite closure with much talk of this extending into the summer. It will be an interesting trial with homeschooling in mind. Let’s see what works. Let’s see what the optimum learning time is. Let’s see if I can cope. As a single parent, the work shutdown will allow me to fully focus on son and his learning.

Life can often bring much isolation. With the new life motto – ‘Social Distancing’, more are going to have deal with the challenges that it brings. Each one of us has to find our own way of dealing with this. Don’t laugh but walking past this old tree and just giving it a friendly pat can help me. The tree has survived longer and more intense isolation than I ever will. It’s only right that I show solidarity with a fellow survivor.

I went for a walk today and almost didn’t see another soul. Plenty of sheep and crows but so few people. Hardly any cars as well. It just seemed kinda normal. I guess after three years I am getting use to the isolation. Just about. Had to make a few work calls today but that’s going to be it for many weeks now. As people increasingly keep their distance the reality is that the only person I will be physically talking to over the next couple of months will our son. Maybe an occasional telephone call with a sister. That’s why blogging will be so important for me.

I’m someone who has to continually work on my conversation skills these days. Without it I become a gibbering, shy wreck. That’s why I have recently become a crap Dr Doolittle. I am increasingly talking to animals. Not just the mad pets. The birds and squirrels waiting to be fed in the garden. The frog who comes for a warm when the tumble dryer is on. The bee trying to break into the house. The farmers sheep, cows and a grumpy bull. I’m a crap Doolittle as I talk to the poor animals but I still can’t understand what they say back. Probably a good job as I can imagine the responses.

“Will you just sod off”

“Boring, boring”

“Do you mind if I hump your leg”

So on the walk I crouched down to have a chat with a sheep. The local sheep are happy to listen to my waffles as long as I bring some biscuits with me. So I was asking this particular sheep if she ever got bored just walking in the same field and did she like these biscuits . Nearly jumped out of my skin when behind me a booming voice replied.

“If they keep producing the wool for my jumpers I will happily let them eat biscuits. This one likes Digestives, the others are partial to those biscuits .”

I had not heard the farmer sneak up on me. Another day and another …. Oh the shame. But at least I know that I need to bring two types of biscuits on the walks now. All this took place under the a much battered, yet resilient tree.

Posted on by bereavedandbeingasingleparent · 158 Comments

Breathe

And breathe…. count to 10 and breathe again.

More and more countries go into lockdown. We are surrounded by lands where schools have been closed. Meanwhile here in England our leaders give interviews only to carefully selected media supporters. Even the Chief Medical Officer gives an interview to a right wing newspaper. On the off chance you just might want to find out what our top medical person has to say on the crisis then you have to pay for it. Apparently we might force anyone over seventy into isolation in a few weeks. We might close bars and cinemas down – maybe in a few weeks. We will definitely keep schools open – if teachers go off sick then we will just cram more kids into the available classes. Sticking to the strategy of trying to get as many of the fit and young infected so they develop immunity. All sounds a bit X-Files to me. Seems to be based on the assumptions that infection has no long term side effects and any acquired immunity will be for the long term. Both assumptions are scientifically unproven as yet. Increasing numbers of experts appear to not share the same opinion as our key experts advising the government. Plus this is our Government we are talking about – they couldn’t run a piss up in a brewery. Has anyone seen Boris Johnson over the last few days? I really hope he’s as stressed out as my kid is over the virus….. If it’s sending many of the adults into panic what is it doing to our children.

It’s an odd feeling. Do I trust our countries leaders and it’s experts OR do I rather trust other countries approaches. That excludes the overall US approach – I’m not sure waiting for it to one day just disappear really cuts the mustard as an approach.

So I am wrestling with one decision. Do I let son go to school. I have a duty of care to look after him. Do I think he is safe, secure and well cared for in the educational environment. I’m still wrestling with that one. I think many parents round here are facing the same call. Yes full on school closures have a knock on effect on childcare and staffing in our essential services. Especially as our Government has deliberately cut those services to the bone. We now only have a quarter of the critical care beds that Germany has. But on the other hand how many kids and teachers have underlying medical conditions. Are we not placing them at risk. So it’s not an easy decision. But I need to focus on my son. What’s in his best interest. We also need to keep moving forward.

I need to go shopping tomorrow for a few things. Should be an interesting experience. One of the things I need is a Chocolate Almond Drink. It’s about the only nice dairy substitute drink I have found. It’s expensive but it is always on offer for 3 for £3. Well last week it was caught up in the panic buy restrictions. Now I can only buy 2 in one shop. Suddenly it’s become expensive. What’s bizarre is no bugger else buys it. I strongly suspected that for a while as they don’t put many of these drinks out and often they looked like they hadn’t been touched since I was last there. Being a sad person I have for the last three weeks put a little pencil mark on the next available drink – it’s still been there on my next visit. So clearly they are worried that as the only buyer of that item I may panic buy and deprive myself of buying it next time. It’s all a bit bizarre. But that’s 2020 for you.

With that I will now try to focus on other things on this blog. Yes I may have to mention the pesky virus but I will try not to that much. Over the next few weeks blogging is probably going to become more important for many. A rare connection in our dislocated world. Maybe trying to create a bit of normality in this maelstrom is what is currently needed. What is certainly needed is that we show how much we love our family and those we care most for. That we try just that little harder to be considerate and look out for others in our community. Trying extra hard to be nice and kind. And yes don’t forget to find the time to care for ourselves as well. Finding that time to smile and breathe. We might not be able to agree on what the best approach is to dealing with the virus but being just a little kinder will certainly make us all feel just that bit better about our world. Thats not going to happen fighting over that last pack of 50 toilet rolls.

Take care my friends. x

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Yellow

Suddenly colour is returning to Yorkshire. Well one colour. Most definitely yellow. It is such a welcome sight after so many grey months. Takes your mind off other matters.

Need to be open and honest with son.

“Dad whats the number of people with the virus now”

“Officially its 750 but now they say up to 10000 may have it”

“OMG I thought the experts said our approach was working well. How can they have got the figure so wrong”

“It’s down to testing. For some reason we only tested those with symptoms who had visited high risk countries. They didn’t seem to test if you had been abroad. Clearly they missed a lot of proper cases.”

“That sounds so stupid.”

“Yes it’s not great is it”

“Dad why hasn’t Boris closed the schools down yet”

“Apparently it’s on the basis of expert advice.”

“Many other countries and regions have closed them down, won’t that be on expert advice as well”

“Apparently Boris and his experts think that school closures and banning public events is not based on the correct expert advice.”

“What makes our advice better then”

“Probably need to ask an expert about that. We seem to be saying that if schools are closed it’s pointless as the kids will mix in large numbers anyway. We also seem to be saying that if we stop people going to things like football and concerts then they will just go to smaller events. And they argue that smaller events are potentially worse sources of infection. Football has been stopped for a month now but that was not the government, they were happy for the matches to go ahead. It was the Football Authorities who stopped the games.”

“That sounds a bit dodgy. Surely Dad the point is to reduce the number of people you mix with. Schools, football, trains, buses and concerts are some of our biggest mixing areas.”

“I bet they will eventually have to change their minds on some of these. But it is daft.”

“I think a big part of it is that the last few governments have really cut back on the NHS and made child care more expensive. They don’t have enough doctors and nurses. If schools close then a lot of parents will not be able to go to work as they will need to look after their children. The NHS can’t cope with that now. I’ve also heard several in the government mention that shutting schools will hurt the economy.”

“So it’s about money then really”

“Probably is but they won’t say that. Easier to just tell people it’s expert advice.”

“So how are they trying to control the virus if they don’t close things down.”

“It seems to be something called the herd. The Chief Doctor talked about needing at least 60% of the population to recover from the virus for the country to start to develop immunity from further outbreaks”

“That’s the plan. Wow. So we are trying to get something like 40 to 50 million infected here. Going to be an awful lot of not very healthy or old people caught up in that. That’s not a good plan. Sounds like they have decided not to do anything. Rather have people keep making money than keep them safe.”

“Totally agree. Surely locking stuff down for a couple of weeks will help dampen the virus down. At least push it into the summer months.“

I’d rather take my chances in France or Germany. At least they are trying to still contain it.”

“Dad what’s the new rule about school and being ill. If I cough does that get me a week home isolation.”

“Basically those are the new rules“

“Well Dad. COUGH. COUGH. That should do it. Wake me about 11am on Monday.”

Well next week I will probably get the chance to check out more yellows. My zero hours contract is living up to it’s zero in the coming days. Next week I might get a couple of hours work at most. So the new sports car and beach apartment in Monte Carlo will have to wait a few more days. But it doesn’t matter in the scheme of things. It really doesn’t. More important things in life. As a much wiser blogger than me put it – it’s time to breathe….

Update

Two hours later news broke that the government has reluctantly banned large public events. Not on health grounds but to relieve pressure on emergency services. I guess the real reason was the events were getting cancelled by the organisers anyway and the government didn’t want to be seen to be dithering.

Posted on by bereavedandbeingasingleparent · 80 Comments

Tree

Last night I had one of those dreams. That type of dream that leaves me breathless and unnerved for hours. Unable to sleep until after 3am then startled back into sleeplessness forty minutes later. All because I blogged briefly about throwing my knickers at Tom Jones.

I was walking across farmers fields. I was in agony as I was walking barefoot and the ground was rock hard with frost. With every step I seemed to tread on another sharp thorn. On my MP3 player was one song on repeat. Green Green Grass of Home. I was heading towards one tree. A tree on top of a small hill. The only tree on that hill. The closer I got the ground became more painful. Then the heavens opened and it started to rain increasingly hard. So hard my skin started to sting. Then I arrived at the small tree. A hangman’s noose swaying slowly in the wind.

That was clearly enough for me as I suddenly bailed out of that fun little dream.

Green Green Grass of Home was one of my mums favourite songs. You would often walk through her front door and hear Tom beautifully signing this song. The song written by Curly Putman was one of her favourite sad songs. It’s all about a man facing his last night on death row.

In the shade of that old oak tree
As they lay me neath the green, green grass of home.

What’s the lesson from this nightmare.

Is it

I really should stop blogging as it gives me nightmares.

Or

Next time I do have to throw my knickers at Tom.

Posted on by bereavedandbeingasingleparent · 85 Comments

Prophecy

Colour slowly returning to the garden. Sadly just in time for the next weather blasting. Just so predictable….

A few years back our son had a wonderful medical expert who did an awful lot for him. Just before retirement I remember the experts prophecy. To paraphrase

Our country’s support for kids like yours is nothing short of a disgrace. Sadly if you think that the support he gets now is patchy and insufficient, well just wait a few years. It’s likely to get very much worse. Maybe when he is 12, most definitely when he is a teenager, the minimal support will dry up. He will get reassessed by clinicians who have no practical experience of your son. They will deem him above the clinical threshold and will turn off the support. Clinical threshold should be renamed budgetary threshold. It’s not a reflection of the clinical position. He will still have severe clinical need for intervention. The support will be removed because as a society we don’t support teenagers and adults on the spectrum. We expect them to fend for themselves. If they don’t fulfil their potential then tough. I’ve seen this happen to virtually every kid I have worked with. If they achieve anything in life it’s just down to themselves and their parents. On top of this the school system just assigns them to the bin. It stinks….

Sadly the prophecy is coming true….

Just before Christmas he was reassessed for one of the support services he receives. The assessment was done by someone who had never met our son. The outcome – the service was withdrawn as he no longer met the clinical requirement.

Today we had a therapy session at the local hospital. It’s a service he has had since he was 7. It’s made some great progress over the years. It’s taken time and many sessions. At the last session his worker agreed on a programme to help with his handwriting, keyboard skills, and areas such as shoelaces/school ties. The programme after that would look at trying to help with coordination specifically aimed at swimming and bike riding. He has significant problems in each of these areas. Well guess what. At today’s session his worker was joined by a senior member of the team. A reassessment was made of his case. After a few practical exercises we were informed that he was now above the support threshold. He was now discharged from the service. They would write to school and give them some suggestions on his future schooling. We were handed a couple of information sheets on handwriting and shoelace tying. We can ask his Paediatrician to review this decision. We are on the waiting list to see a Paediatrician – currently our last appointment was over two years ago.

So we are now down to one service support now. But that is so underfunded. His worker is wonderful but because of workloads she struggles to see him now. Last year we got invites to a couple of group sessions. His last one to one session was back in 2018. Clearly it’s only a matter of time before that last helping hand is removed.

It really feels like that the health service has now dumped our son since he’s a teenager. I guess they argue that it’s an educational problem now. Unfortunately the school system has washed its hands of our son already. Like so many kids the school’s write them off. Label them low attainment. If they get the odd exam certificate in the end then school has achieved its goal. Ticked it’s box on the Government’s school assessment.

So here we are in the brave new world. We are fending for ourselves. Our only support – a few pages of photocopied guidance from a textbook. How can we have got this so wrong. How many thousands and thousands of autistic teenagers and adults are in the position. Some of the statistics on autistic suicide rates, unemployment, depression and poverty are appalling. But society doesn’t care. Our leaders don’t care. That’s a truly sickening thought.