5 things about death.

That kind of weather day. Moody, cloudy, wet, windy, cool. Five things completely associated with a Yorkshire Summer’s Day.

A few days back I did a post about five unexpected things to do with the pandemic. Well let’s do another one.

Five unexpected things I encountered during bereavement. Could do a huge list but let’s just try to pick out the five main ones.

    Just how much paperwork, leg work and phone calls you need to make in the weeks leading up to the funeral. Speaking to the hospice and hospital. Letting friends and families know. Registering the death. Trying to sort out joint bank accounts. Solicitors. Informing government agencies. Cancelling cards, subscriptions, memberships. Returning work assets. Selling a car. Pension authorities. Tax authorities. Changing things like house deeds. Changing insurance cover. Booking a funeral. Arranging the service. Inviting guests…… And on and on. This is all at a time when you are at your lowest ebb.
    Just how quickly the phone calls and visits dry up. Within weeks your suddenly alone. No more checks to see if you are ok. You’ve stopped but the world has kept turning. That’s when the mental health issues can really kick in.
    One person down and just how empty the house feels. Deathly quiet. Too many empty spaces. A very empty bed and sofa.
    Just how many times your mind plays tricks on you. Going shopping and you still buy stuff for the person you have lost. When you make meals you automatically make one for your partner. You drive back home and see your partners car in the drive – the first thought is too often – wow she’s home early today.
    Just how long the the legal side of the death can drag on. In my case the Will took well over a year to be finally signed off by the tax authorities. One bank account took two years to be finally transferred into my name. The telephone and TV accounts are still in joint names – given up trying.

I guess the message is that it’s going to take you to the depths of despair. It’s also going to be a bureaucratic nightmare. You just need to prepare yourself for the long hall. But there is stuff that helps. An empty, deathly quiet house is easily fixed by a mad puppy. If you know someone who is going through loss then why not phone them or even just send a card, especially if it’s a few months down the line – they probably really need the thought. Accept any help when it’s offered – you don’t need to do this alone. Take your time doing this – you don’t get a medal for completing as soon as possible. You need to spend time focusing on yourself, you really do.

Seems like a lifetime

I accidentally stumbled across a social media post from a parent from Hawklads school. It contained a photo of a trip to the beach whichsome of the families had made last week. Clearly having great fun. It will do the kids so much good to start living again.

I was so happy for the kids and happy for the parents. They are really nice people. They deserve fun.

But the post brought a touch of sadness. Wouldn’t it have been lovely if Hawklad had been there. To be with kids his age. Enjoying himself. Enjoying being a teenager.

Actually it would have been good for me as well. The last time we went to the beach with other families was 2015. I’ve kind of forgotten what the feeling must be like. You get use to the isolated life style. It becomes all consuming. It becomes who you are. Back in 2015 I remember turning up. Watching Hawklad play with the other kids. The parents had a barbecue. We played games and sand cricket. Built sandcastles. We talked, laughed. We hugged.

But that was then. It’s 2020 now. Different world. It was a different world even before a pandemic. The last time I actually hugged someone was at my partners funeral. That’s virtually 4 years ago. It’s 5 years since we went to a meet-up with other families.

It seems like a lifetime ago.

Thank you Roses

Roses, roses, roses. Thank you for roses.

Beautiful, resilient and a bit of fight about them.

A flower than can melt the heart and then draw blood.

England has even had civil wars over a white and red rose.

**************

I’ve always felt a strong link to roses. That’s not surprising since I come from the White Rose County. Yet the link is stronger than that.

The last present I gave to my partner was a rose. Since then that delicate white rose has been intrinsically linked with my grief journey.

We have another rose which is decades old and has come from my partners childhood home. So it’s a link with Hawklads past. Family members now gone.

I also often look at a rose and see symbols of life. Today I was looking at a rose and it made me think of friendship. Some of the rose buds seem to go on forever. If you are lucky in life you may find one of those friendships that do that, always special, always beautiful, everlasting. Yet you also see rose buds that fail to bloom. How many times have I had thought that I had found a great friendship yet for whatever reason things never seemed to take off. Then you come across those roses which burst into life, producing the most stunning flowers, yet within days they have died back and faded. Just like those friendships which seem like they will be the best ever and yet suddenly they end – wonderful but not ever lasting, so short lived. You just never know with roses and you just never know with friends.

Today it was friends but on another day I will see roses symbolising another part of my life. I’ve done it with grief, parenting and hope. What will the Rose show me tomorrow?

1000 odd days

This is a photo from 3 years ago. I stumbled across it while looking for some old climbing ones. Another typical Yorkshire August day – all four seasons in one day. It got me thinking – what’s the same and what’s changed in those 1000 odd days. See that’s what a professional accountancy qualification can do for you – I’m good at those complicated adding up calculations.

THINGS WHICH ARE THE SAME

  • Getting no dyslexia support from school,
  • Getting no Aspergers support or accommodations from school,
  • Still bereaved,
  • Still a single parent,
  • Still a metal head at heart,
  • Hawklad is still a lovely character,
  • No holidays, no Switzerland,
  • Pets causing chaos,
  • My football team is still useless,
  • Still see myself as European,
  • Brexit is still a shambles and a monumental exercise of self destruction,
  • Vegetarianism,
  • Can’t cook,
  • Still exercising,
  • Still 5ft 10 and a half (don’t forget the half – it takes me beyond average height),
  • Still not climbing,
  • Still can’t work out the TV remote control,
  • The garden is still a mess,
  • Still don’t like U2,
  • Still haven’t seen Avatar without falling asleep,
  • Haven’t seen my brother even though we live only 50 miles apart,
  • The garden gate still needs fixing,
  • The washing machine is still possessed,
  • Still having bought myself that ginormous telescope,
  • The blog is still going,
  • Still writing about the same stuff,
  • Still waiting for official recognition of my stellar poetry skills,
  • Still haven’t won the lottery,
  • Still losing my car keys.

THINGS THAT HAVE CHANGED FOR THE WORSE

  • As Hawklad has reached the teenage stage many of the health support packages have been removed,
  • The waiting list to see The Paediatrician is now approaching 2 years,
  • A pesky pandemic,
  • Hawklads anxiety levels,
  • Hawklads isolation from the world and other kids his age,
  • Due to circumstances had to stop running,
  • Boris,
  • Trumps antics,
  • Might be a metal head but the days of skin tight jeans have gone,
  • Lost a couple of much loved pets,
  • Don’t really see my sisters anymore,
  • School’s view of Hawklad – definitely revising his perceived ability levels downwards,
  • The number of times I have to shout or pull my hair out at school is rising,
  • I’m physically meeting less people,
  • The list of things on the need sorting out when funds are available is growing.

THINGS THAT HAVE CHANGED FOR THE BETTER

  • Hawklad understands himself and his Aspergers much better now,
  • Hawklad is overcoming his dyslexia,
  • I understand now that it’s just as ok to Laugh as it is to Cry, YES it’s ok to live,
  • Friendship
  • Close Friendships,
  • Faith,
  • Love,
  • Happiness,
  • One step closer to home schooling (hopefully),
  • My dress sense – I finally chucked out some of my pink climbing shirts.

You might be thinking that looking at the relative number of entries on these lists that the last 1000 odd days have been generally bad. But look at some of those things on the last list. It’s not about quantity it’s about quality. Yep looking at that last list, over the last 1000 odd days we have challenges but some really good stuff has still happened. That’s why there is always hope.

Story to tell – two

We all have a story to tell. Every persons story is just as precious and important as the next. Our life’s are filled with good and bad times. A rollercoaster of emotions. Filled with memories. Some bring smiles, others bring tears.

2016, it’s August. A week before I had been to my mums funeral. My partner had not been well but currently no reason to be truly worried. A Wednesday afternoon and we drove her to the Hospital for an overnight stay and some routine tests. I can see her walking across the lawn to the car. We talked in the car. Can’t remember what about. Just general stuff I guess. After she is settled on the ward we are asked to leave so the medics could start the tests. Told to come back tomorrow to visit, maybe even to pick her up. It’s now Thursday lunchtime and I’ve returned to the ward. The Doctor pulls me to one side. A sudden collapse in her condition. I sit in stunned silence. Tests results are shocking and grave. The prognosis horrific. 95% chance that she will be dead within a couple of weeks. Zero chance of making Christmas. She is in and out of consciousness. It’s extremely likely that she is not aware anymore. If family need to say goodbyes then you need to do it really quickly. Driving from the hospital like a zombie – how do I explain this to our 8 year son. She never regained consciousness and died in a hospice a few weeks later. We never did have a conversation again. The last time we talked was in the car and I can’t remember what it was about.

That’s one of my stories. It’s not easy to tell even now. I can feel the darkness starting to sweep over me. But there are other stories. Stories which bring light and are easier to tell.

Holding our son for the first time after the birth. Looking into his eyes and thinking I’M A DAD. Then thinking he’s very small – don’t drop him. Then one overriding thought. How can something so small be so pigging LOUD.

Sat on a scary rollercoaster with Hawklad as we slowly pick up speed. Hearing his must reassuring words echo along the suddenly panic filled seats – “Dad I’ve just spotted two missing nuts and one support joint without any bolts.”

Sat watching a 4 year old Hawklad in Switzerland. He runs up to a man trying to do some post run stretches. He then spends 5 minutes excitedly telling this man all about Dr Who and The Tardis. Speaking to the man later to apologise we found out that the man had never heard of Dr Who and didn’t speak a word of English. What a poor confused person he must have been.

So we all have stories. Some bad and some good. That’s life for you. They add together to make up who we are. Actually taking the time to listen will open your eyes to another person. If you are fortunate you might even hear some back stories. Gain an understanding of who that person really is. What makes them tick. Without that understanding it’s not wise to jump to assumptions. Without those back stories you really don’t know anything about that person.

Reflection

This is one of those posts that start with a single thought. No real idea of the direction. Yes it starts with me being reflective.

When I’ve been at my lowest points in life, I’ve felt so very alone. Maybe the two go together. It’s such a hard thing to describe. The world closing in on me. Darkness and a lack of hope surrounding me. But worse is the feeling that I am alone. There is no one who understands me. No one who really cares. No one to turn to. No one who will just listen. Even those close to you seaming so distant, so utterly unable or unwilling to understand. The two worst emotions for me – No Hope and Being Alone. Here’s the thing. That wasn’t actually the case, it just felt like it. I had closed my eyes. Stopped looking. Started listening to the negative voice in my head.

But I’ve been so fortunate. Even in those dark times, I’ve managed to eventually find something which has pulled me through. Either a caring hand or a flicker of hope. That’s all it takes sometimes. But don’t believe for one moment that it is easy. Just reading a few words probably ain’t going to do it. Sadly too many don’t find a positive way. Having been in those dark places I can so understand that now. It’s so hard to pull yourself out of the darkness alone. AND it does feel like you are completely alone.

For those in the darkness. I send you my thoughts and love. I just hope you find something. That caring hand. That bit of hope. The will or energy to reach out. You may find that beacon of light already close to you but often it doesn’t come from the obvious sources. But so often IT IS THERE. WE can do this.

Ebb

Sunsets just happen. Nothing we can do to influence them. Maybe move to a better position to saviour them.

Loss can come from a range of sources. External factors. From within. The loss of someone special. The loss of something so vital to us. So many potential causes. And so many different roads to travel. Each grief journey is unique.

I’m on my own unique road which I must travel. I’ve come to realise three vital things about my own journey

  • It is possible for me to LIVE AGAIN,
  • It’s just as ok to LAUGH AND LOVE as it is to WEEP AND BE SAD,
  • I’m not alone on this journey.

And one more inevitable fact. Grief is like the tides and the passing of the day. I can’t fight them, I can’t stop them. When they happen I’ve just got to let them wash over me. Experience them. Knowing that they will eventually ebb away.

Take care.

Different

Who are you looking at

I’ve always felt like the black sheep in the family. The odd one out amongst my siblings. The youngest by a decade. My brother and sisters had partied together and flown the nest while I was still at school. The tallest. The only shy one. The only one with a stammer as a kid. The only one who went to college and university. The only one you got letters after his name (M.U.P.P.E.T). The only one who never got married (huge mistake). The only bereaved one. The only single parent. The only blogger. The only vegetarian. The only one who has given up alcohol. The only one who is gluten free. The only runner. The only climber. The only one learning a second language. The only one who has visited mums grave. The only Asperger Parent. The only Newcastle United supporter. The only one without a middle name. The only one whose first name doesn’t start with a P. The only one how formed a close link with a Quaker family. The only religious one.

I could go on. Hopefully you get the picture.

Don’t get me wrong. I love my brother and sisters. We are close. Close but we don’t see each other much. Mum was always the centre. The gravitational pull that kept the various differing orbits from spinning away. I will see one sister every few months. Another one maybe a couple of times a year. Brother and the other sister maybe once in several years. An occasional phone call or text maintain a link. But since mum left we are slowly spinning apart.

So yes I do feel a little bit like the odd one out. That’s where friends come in. They get me. They make me feel not different. They make me feel whole again. Thank you ❤️

I will leave the final words to my departed partner. We were spending a night in London before we caught the first train to France. Off on our first holiday together. That was back in 2000. We were in a quiet but very full pub in Kings Cross. After a large lager my partner asked about my dieting life choice. In a voice which echoed round the pub. “Are you the only VEGETABLE in your family…”

Yes I probably am….

Doubts

Much needed colour on a very grey and damp start to the day.

Some days are just greyer than others. Yes still smiles. Somethings just don’t fail. But then you come up to the surface again and it’s still grey. Crack on with stuff until you can immerse yourself in the good stuff again. Up and down. Swings and roundabouts.

Might have said that before. Sounds familiar. Sounds a bit like the lines ‘I’m going on a diet’ and ‘I’m going to have an early night’.

Another thing I’ve said over the last few hours – a one day heat wave is due on a Friday. Every time I look excitedly at the forecast, it just gets warmer. Now it’s supposed to be 29C (84F). That’s really hot for Yorkshire. Now I wonder what the reality will actually be. Let’s show you the current weather.

Wet, windy and definitely not warm…. Less than 24 hours until we are supposed to be hot then. Doubts definitely building.

I read some haunting words last night that brought tears. A really good person having so much to deal with in life. Honesty about the pain and sadness suffered. Yet unbroken with so much spirit, heart and love. Definitely made me think about that person and what a symbol of hope they represent. It also made me think about my life. Its too easy for me to take so many things for granted. I’ve been a bit up and down recently. A few too many down moments. Far too many doubts. Yet I have so much to smile about. Things which I far too easily take for granted. That needs to change. I’m not saying it’s going to transform me into a constantly smiling creature but maybe it will make me more balanced and honest with myself. I might believe my life is tough but looking at others, it really isn’t that bad at all. I’ve been so fortunate in many areas. I need to remember that and be more mindful of what others are dealing with. I’ve had opportunities which have been cruelly denied to others.

So it’s time to be much more thankful for what I have.

It’s a good life for me and actually it’s frequently a wonderful life.

Heartfelt songs

Roman berries

Small and a beautiful berry. Not great to taste raw but apparently you can make great marmalade from them. I will leave them for the birds.

These 6 weeks tend to be tough for me. Your probably bored of me saying this but here I go again – me, me, me – in 2016 I lost my mum at the end of July, the week after the funeral I found out that my partner was dying and she died at the end of 6 week period.

Since then, this part of the year is tough. Best not make it any tougher.

I love music. It’s always been a special part of my life. Some would question my musical taste. I do like a bit of Leonard Cohen. Partial to a bit of classical music. Enjoy traditional Scottish music. But mainly it’s Rock. Often heavy Rock. Even some Mongolian Metal. But during these 6 weeks I have to be careful. It’s a fine line between smiles and tears. Let’s not have too many tears. With me music has the power to send me both ways. So for the next few weeks it’s a filtered playlist. No sad songs. Absolutely no sad songs. Zero heartfelt songs. No songs about death, dying young and lost love. Queens – ‘Who wants to live forever’ is just a big fat NO. The soundtrack to ‘Love Story’ is an even bigger, fatter NO. Don’t even start me on Terry Jacks – ‘Seasons in the sun’.

So it’s time for those songs about dragons, monsters, cars, highways, parties, card games, fun and high spirits. Yes love sounds but they have to be happy ones. That’s my playlist. Absolutely NO heartfelt songs.