Posted on by bereavedandbeingasingleparent · 92 Comments

Where did that go

Where did that go? Where did the summer holidays go. For so many families, where did that lockdown go? That’s 7 weeks of summer and exactly 6 months of lockdown.

We leave the summer holidays like we found them. Grey.

Many leave the lockdown as we found it. Well actually that’s sadly not strictly true here in the UK. The daily rise in pandemic and the rate of spread (R number) is actually higher now than when it forced us all into lockdown. I guess the confusion is the same. Some times it’s safe to meet in groups then at other times it’s considered most unsafe. Sometimes masks are required, sometimes they are not. Get tested but please don’t get tested. It’s safe to meet work colleagues but most unsafe to meet friends and family. There are those in high risk groups but you don’t need to worry about that. You must observe 2m social distancing but it’s ok if you don’t especially in pubs and at Horse Racing events. Don’t worry about the details it will be fine.

But for some families and households, the lockdown is most certainly not over. The Government seems to be demonising those in that position. We are being unpatriotic. Not doing our civic duty. Letting others down. As a result support is being pulled, threats made, blamed for the problems of the country and fines starting to be issued. I can assure the so called Government that it’s not out of choice. We are dealing with the reality of life. And that life is messy, complicated, unpredictable and frustrating. We have to deal with the details.

That part of life has not changed during the summer holidays and lockdown.

Posted on by bereavedandbeingasingleparent · 72 Comments

2020 the year music stopped

2020 has been some year. Is it really only August. Time seems to have so slowed down. Many things have just stopped. Live Music most definitely.

Looking back to the start of the year it all seemed a bit different. We were looking forward to a fantastic concert year. I had worked my socks off and secured a whole list of discounted tickets. It was on paper a great year of gigs and some top bands.

*********

The Who

Whitesnake

Foreigner

Europe

Aerosmith

Wayward Sons

Ozzy

Saxon

Deep Purple

Blue Oyster Cult

Hollywood Vampires

Killing Joke

**********

On paper that’s how it will remain for this year. All cancelled some pushed into 2021. So yes something potentially to look forward to. BUT…….

Has the concert zone closed for us. It was always a delicate balance for Hawklad. His enjoyment of the music, the spectacle, a chance to see the bands he loves to listen to. Balanced against his social anxieties. His fears of strangers and crowds. The positives just outweighing the negatives. As a result he could get himself to concerts. Yes it would need his hoody pulled up until the lights went out. But he was ok doing that as he felt that rock crowds were easy going and accepting of all kinds of looks. This was confirmed on our first concert trip. Dad wore the most embarrassing T-shirt he could find. Hawklad was reassured to see that I didn’t get one single strange look and was never asked to leave.

But now it’s a different world. Hawklad definitely sees it differently. Heightened fears and anxieties. The ‘is it ok to attend concerts’ calculation he would perform has got a different answer now. The negatives outweigh the positives. I know the medical advice is that this new world view could become a semi permanent switch in his Aspergers. A dynamic which won’t automatically switch off when the pandemic finally goes. It may take years. May never switch back. We just don’t know.

So maybe that’s it for our concerts. If so then it’s kinda fitting that three of the last bands he got to see just happened to be his favourites. Alter Bridge, Kiss and Alice Cooper.

So let’s enjoy the memories. It might be the year Live Music stopped for us but it doesn’t mean that music has stopped. Most certainly not.

Posted on by bereavedandbeingasingleparent · 85 Comments

Line them up

Well the nurse counsellor did arrive. At the height of the storm. Due to working restrictions she was not allowed in the house. So it was plan b. Move my car next to the counsellor’s car. Windows down and you have a mobile meeting facility. The session went well. The counsellor seems really good. It’s a start. Start of a long road. But a start it is.

He will now get appointments every two weeks now. Let’s hope progress can be made. The counsellor is also going to write to the school to confirm that he is under health care at present and is not medically cleared to return. Hawklad has come to the conclusion that he just can’t go back to school at present. Even with professional help now, this could take many months before school might become a possibility for him. Until he can feel be reasonably comfortable being around people and ok to touch surfaces then school is but a pipe dream. Will he ever go back – just don’t know.

The Deputy Chief Medical Officer yesterday said that schools were perfectly safe. Apparently children are more at risk from road accidents than from catching the virus. I can’t think of many more insensitive ways of making a point – that’s going to really hurt those families who have lost loved ones on the road. I’m also not entirely reassured by her words. I remember a few other of her words over the last few months

  • The Government response to the pandemic has been exemplary……
  • The UK pandemic approach had been very successful……
  • Large Public Gatherings and Sporting events are perfectly safe, no need to stop attending them. That was at a time Europe had banned those and a few days later we did the same. She even encouraged people to attend the countries largest horse racing event just a couple of days before the country went into lockdown – the infection spread from that event has been scary.
  • People should be more adult when they discussed PPE shortages. It wasn’t such a big issue for healthcare and care workers…..
  • The UK didn’t need to test, test, test for the virus as we were a First World Country.

We all want to get schools open. But it has to be done correctly. Just grouping kids into giant year group bubbles then squeezing them back into cramped classrooms with at least 30 other people isn’t good enough. Asking kids to wear masks on buses, sometimes in corridors and not in classrooms is just a mess. Not exploiting online education to ease some of the space issues is a massive mistake. Only offering testing after the virus has been encountered just repeats the mistakes we have repeatedly made as a country. We’ve had months to get this school return right.

I really feel for those parents and children who are returning to schools. For some it is a easy decision and the return can’t come quick enough. For others it is not easy. For those with underlying health conditions it is a calculated risk. For us that decision has probably been kicked into touch for a while longer.

Don’t you just love 2020.

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Perfect timing

A brief respite between storms. It’s summer you know.

As the rain from the storm kicks in the tumble dryer decides to go on strike. Perfectly timed as I have a load of bedding and clothes to dry – perfect timing. Suppose I could just go outside and throw them in the air and see what the jet stream will do to them. Central Europe – If you see some line green cycle shorts flying through the air, can I have them back please….

Then a few moments later I went outside to put the plastic garden chairs in a safe place – only to see one of the chairs flying tumbling over the fence and heading into the farmer’s field. Perfect timing. At least I know why we will be one chair down. Again Central Europe can you look out for a slightly dog chewed item of furniture heading at some rate in your general direction.

Don’t you love perfect timing.

The nurse counsellor garden appointment to see Hawklad has been rebooked for this week. To start the process of examining his anxieties which are effecting his life and preventing him from going into the wider world. The last visit was a perfect summers days but the nurse had to cancel at the last minute due to illness.

Well that’s the plan.

Looking at the weather forecast the garden appointment is scheduled to happen during Storm Francis. Expecting torrential rain and 70mph winds. Lovely garden weather – especially as we are perched on a hill with hardly any protection from the elements. The nurse is also not allowed to come into the house due to a current working restrictions. So I’ve got no idea what will happen.

Perfect timing.

Posted on by bereavedandbeingasingleparent · 74 Comments

School

The rain had cleared for a few moments. But some things are still unclear.

Hawklad is still to decide if he will go back to school on the 14th September. With all his anxieties any return will be so very tough for him. Maybe too tough. But ultimately it’s his call. I’ve let school know about the issues but they don’t seem to be proposing any accommodations for him. But I guess there are a few weeks to go.

The other thing I have raised is what happens if he is not able to return. Still registered with school but unable to attend classes. How would he keep up with the course work. Unfortunately the really good school online education system will be switched off. Switched off to encourage parents to send kids into school. The initial dialogue with the authorities seem to be – well if he doesn’t go back then tough – that’s your call. Your responsibility to arrange education until he returns to the classroom. Thats the approach being set by the government. Online school tuition will only be switched back on if the school is forced to close again.

So many things to think about. But one clear message from the Government. Send your kid into school or you won’t be getting any help from the system. In fact schools will be expected to fine parents for keeping kids off. Could be a stormy few months.

Posted on by bereavedandbeingasingleparent · 85 Comments

Not what I expected

Not what I expected. I was sure this was a yellow rose last year!

It’s definitely red.

I was reading an article about the main things that have surprised people about the Pandemic and it’s impact on lifestyles. The author went for 5 things – Boredom of not physically meeting people, missing going to Pubs, Parties and Restaurants, missing playing Golf with friends, how hard mask wearing is and how much she misses going on holiday.

Ok let’s have a stab at this. What are the five things which has surprised me about the Pandemic. What was I not expecting.

  • The impact that just not being able to buy just a few of the useful foodstuffs can have on mine and Hawklads life,
  • How quickly you can settle in to new ways,
  • How much money you save if you avoid going to shops,
  • The way days and weeks can just merge into each other if you take out things like the school run and most shopping trips,
  • Just how difficult it is sometimes balance homeschooling, with work, domestic duties and things like running.

I guess a fundamental difference between me and the author is circumstances. She and her husband both work. They have one kid of a similar age to Hawklad but that child seems to spend a lot of the time with friends and doing group activities like sport. They use babysitters to allow for frequent social activities for her and hubby. So yes the Pandemic will have a major impact on her family’s social life. I can so understand why she would list those five things.

My life is currently different. I am a single parent to a kid with Aspergers. Even before the Pandemic I was partly cut off from society. Enforced isolation due to parental requirements. Many other people are in a similar position due to a range of circumstances. So if anything the Pandemic hasn’t really changed that much in terms of social contact for me. Yes it might have tightened things up a little further. But fundamentally there has been few radical changes. If anything it feels like for a few months some other people life’s have become a little more like my normal routine. Maybe it’s provided a glimpse for some people into what daily life actual feels like for many people out their. A daily life which existed before the pandemic.

I quite like this five unexpected things idea. Might see what if throws up in terms of things like grief and Aspergers.

Posted on by bereavedandbeingasingleparent · 65 Comments

Lists

Some of the plants are already starting to show some Autumnal colours. It’s only August….

It’s 131 days to Christmas. In normal times 131 days sounds like ages. I suspect this year it may not seem such a generous amount of time for many people, including parents. Pandemic rules, shopping restrictions, reduced product availability, money just that bit tighter, many still isolating. Plus remember last year – one of Hawklads presents was ordered in November and finally arrived in March. Yep this might be a challenge. I think I need to write a list. Yes I am good at doing lists. Unfortunately I am not so good at following list. And as for trying to find those lists after a few days – I’m a complete disaster. I need a list to help find the lists.

Occasionally I do stumble across long forgotten lists. I found one recently dating back 15 years. It was a list of mountains I had set myself a goal of climbing. 60 bucket list climbs. 15 years and I had ticked three as climbed. Another one had been attempted but I had to turn round near the top as I came across someone who had hurt their knee. So ended up helping her back down. So that’s 4. In my book just attempting a climb and coming back in one piece counts as ticking it off. Basically been stuck on 56 to go for years now. That’s another one of my great lists just basically gathering dust. Maybe I can change the wording on that list. How about 56 bucket list climbs that I will never complete. Change the wording and suddenly the list is completed. I can then bin it.

But no. The original list went back into the cupboard. A bit of paper soon to be lost again. This time I took a photo of the 56 climbs still to be attempted. Actually added a couple of Himalayan mountains to the list – might as well make it more sexy. The list is on my iPad now. So it won’t be lost and actually it might be a rare useful Gary list. It’s a great reminder that I’ve STILL got stuff to do and achieve in my life. It might seem like that I have not yet ticked off many things from my life lists but from today that CAN start to change.

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1000 odd days

This is a photo from 3 years ago. I stumbled across it while looking for some old climbing ones. Another typical Yorkshire August day – all four seasons in one day. It got me thinking – what’s the same and what’s changed in those 1000 odd days. See that’s what a professional accountancy qualification can do for you – I’m good at those complicated adding up calculations.

THINGS WHICH ARE THE SAME

  • Getting no dyslexia support from school,
  • Getting no Aspergers support or accommodations from school,
  • Still bereaved,
  • Still a single parent,
  • Still a metal head at heart,
  • Hawklad is still a lovely character,
  • No holidays, no Switzerland,
  • Pets causing chaos,
  • My football team is still useless,
  • Still see myself as European,
  • Brexit is still a shambles and a monumental exercise of self destruction,
  • Vegetarianism,
  • Can’t cook,
  • Still exercising,
  • Still 5ft 10 and a half (don’t forget the half – it takes me beyond average height),
  • Still not climbing,
  • Still can’t work out the TV remote control,
  • The garden is still a mess,
  • Still don’t like U2,
  • Still haven’t seen Avatar without falling asleep,
  • Haven’t seen my brother even though we live only 50 miles apart,
  • The garden gate still needs fixing,
  • The washing machine is still possessed,
  • Still having bought myself that ginormous telescope,
  • The blog is still going,
  • Still writing about the same stuff,
  • Still waiting for official recognition of my stellar poetry skills,
  • Still haven’t won the lottery,
  • Still losing my car keys.

THINGS THAT HAVE CHANGED FOR THE WORSE

  • As Hawklad has reached the teenage stage many of the health support packages have been removed,
  • The waiting list to see The Paediatrician is now approaching 2 years,
  • A pesky pandemic,
  • Hawklads anxiety levels,
  • Hawklads isolation from the world and other kids his age,
  • Due to circumstances had to stop running,
  • Boris,
  • Trumps antics,
  • Might be a metal head but the days of skin tight jeans have gone,
  • Lost a couple of much loved pets,
  • Don’t really see my sisters anymore,
  • School’s view of Hawklad – definitely revising his perceived ability levels downwards,
  • The number of times I have to shout or pull my hair out at school is rising,
  • I’m physically meeting less people,
  • The list of things on the ‘need sorting out when funds are available‘ is growing.

THINGS THAT HAVE CHANGED FOR THE BETTER

  • Hawklad understands himself and his Aspergers much better now,
  • Hawklad is overcoming his dyslexia,
  • I understand now that it’s just as ok to Laugh as it is to Cry, YES it’s ok to live,
  • Friendship
  • Close Friendships,
  • Faith,
  • Love,
  • Happiness,
  • One step closer to home schooling (hopefully),
  • My dress sense – I finally chucked out some of my pink climbing shirts.

You might be thinking that looking at the relative number of entries on these lists that the last 1000 odd days have been generally bad. But look at some of those things on the last list. It’s not about quantity it’s about quality. Yep looking at that last list, over the last 1000 odd days we have challenges but some really good stuff has still happened. That’s why there is always hope.

Posted on by bereavedandbeingasingleparent · 69 Comments

The Irony

The old Apple Tree. Definitely enjoying the sun and the rare windless conditions. A good day for a garden meeting.

Well today didn’t go as planned.

Son was primed for his garden meet-up with his new nurse counsellor. These things don’t come easy to him. Often it’s about trying to build a bond. A bridge. Only when that link is formed can any meaningful work be commenced. He had that link with his last person, we can only hope a similar one is formed again.

So yes he was as ready as he could be. The garden was setup…..

Then the call from Nurse Reception. Unfortunately the counsellor had taken ill in the car and had turned back. Headed home. Really sorry and they will rebook the session when the counsellor is back at work.

So hope that she is alright. These things happen. But the irony.

A session to work on Hawklads Health and Pandemic related fears cancelled due to illness.

The irony has not been lost on him. Oh sorry forget, HES not supposed to get things like irony….. A Doctor once said that to him during a consultation. Hawklad fixed him with a Paddington Bear Stare and said “Are you a proper Doctor?”. The Doctor looking a bit flustered and talked about his qualifications. Hawklad them calmly said “ok a Doctor but clearly not a very good one…..”.

So we just have to wait for another appointment. Absolutely no idea when that will be. Probably after schools go back in September? That’s another potential return complication. It’s certainly added a little to his fears, now. When the meeting does happen I’m betting on Hawklad asking for the garden chairs to be further spaced apart. Thats something which won’t happen at school.

We dust ourselves off and we just have to go again. The cancellation may be for the best. Stops anything unpleasant coming into our safe area. Plus it forces me to do something rather than rely on others. Just got to up my game.

Yes another odd Monday.

Posted on by bereavedandbeingasingleparent · 66 Comments

Reality

Late last night I was watching the news channel and a government expert was being interviewed about people struggling to leave the house since lockdown was eased. We will ignore the fact that the easing has been halted and areas are starting to fall back under emergency regulations. The experts take was that it was perfectly safe for everyone to go about their normal business. People should get out, go to the park or better to a restaurant. Those struggling should be brave and get out. Those still struggling to get out should arrange to see a health professional. This Government had put in support to facilitate this.

Ok…..

We’ve been lucky. We might get to see a nurse this month but we’ve had to fight tooth and nail for that. Because of cutbacks son has not been seen by a Paediatrician in well over 2 years now… 6 of his 7 support services have been removed. But again we are lucky. Far too many don’t get any support at all.

It’s 3am and I heard our son call. He had gone to the bathroom and because he had gone barefoot he desperately needed to wash his feet. So just before the morning bird chorus started I was running the bath so he could ease his anxieties. He is currently not able to touch taps. Towels can only be used once before they are washed. His bedding has to be washed daily. He has to wash his hands every few minutes. He can’t even touch is own shoes and clothes with his hands. Tell me how he is supposed to be brave and just get outside. The government just has not got the slightest idea of the problems facing so many in our communities. The health professionals just don’t have the resources to cope. It’s taken a pandemic to expose the true folly of focusing cutbacks on mental health and support services. When will our leaders wake up to the reality of life for so many households in our countries.