Posted on by bereavedandbeingasingleparent · 39 Comments

The elephant in the room

There is a lot of political and media focus on certain carefully framed questions at present in the UK…

  • Why are so many parents keeping their children from attending classroom education?
  • Why are there so many autistic children now compared to in the past?
  • Why are schools having to divert so many resources away from core teaching and into special needs support?
  • Why is there such rising demand for Child and Young Person Mental Health Services?
  • Why are so many young people unable to work and pay taxes?
  • Why are we spending so much on disability and carer benefit support? Why is it so easy to claim……

I will say it again, these are CAREFULLY FRAMED. All designed to support a narrative about the pressure this puts on businesses and hard working taxpayers. It’s like the framed questions and narrative which is being pushed about how immigration is causing unemployment, the lack of affordable housing, the breakdown in communities and public services. As a result many in our society now find themselves very much labelled as problems, a burden on others….

I find myself increasingly feeling at odds with the direction of travel the country is heading in. I guess I’m not the only one increasingly feeling like our voices are being drowned out.

Deep sigh….

In all this, in all the political, press, tv and social media coverage I’m not hearing three issues ever being discussed. I guess because they don’t fit in with the CAREFULLY FRAMED NARRATIVE. The large elephants in the room.

Just how difficult, stressful the process is, just how many hoops you have to jump through to try and claim any sort of financial help, disability and carer support. And when you get that support it is at best mo more than the bare minimum, it is NOT a life of luxury.

Child and Young Persons Mental Health Services are stretched to breaking point. It’s a service that has been cut back and underfunded for years. Huge delays in accessing services, services spread way too thin. Again it’s also a nightmare trying to get a young person registered for these stretched services. In our case it took two and half years. A process designed to discourage use. Far too many miss out on the help and support they badly need.

In the UK, as soon as a young person hits 18 they are signed off the support service. There is no equivalent adult service. With Hawklad his Care Lead wanted to hand him onto another service to continue the support after he reached the age threshold, but there was no service to hand him on to. So he was signed off. Support ended. To the number crunchers and spreadsheet decision makers, he is now classed as FIXED as he has been signed off from support. How many young people, how many families suddenly find themselves with no support, no help, no one to turn to. How many don’t even get the support when they were younger. The question shouldn’t be why are so many young people unable to work, why are so many listed as …… it should be why are we LETTING so many young people and adults DOWN.

Posted on by bereavedandbeingasingleparent · 34 Comments

What they need

Kinda sums up the Yorkshire weather this week…

Foolishly I listened into a radio phone in as I drove towards home. I think the show was supposed to be a discussion about the proposed disability benefit cuts but had rapidly become a ‘this is how you parent’ rant. Caller after caller jumped on a populist bandwagon. Far too many young people are receiving benefit payments rather than being FORCED to work. Mental Health issues, autism, adhd, you name it were modern day fairy tales allowing the youth of today to stay in bed, play games and be PAMPERED….. ‘In my day’ the rants continued, National Service and a good clip round the ear was the answer.

Not one young voice was aired.

Not one Health Professional voice was aired.

Not one parent voice was aired who had any experience in supporting a your person with daily, life affecting real needs.

I would have called in but strangely the show never gave out a number as the switchboard was jammed, I suspect with even more ‘in my day’ tirades….

After thirty minutes of this madness I switched off and drove the last few miles in stony silence.

This is supposed to be 2025 and it might well just have been Victorian times.

Posted on by bereavedandbeingasingleparent · 46 Comments

Setting

The sun setting on another day.

Today has felt like one of those days that you need to keep pushing. Don’t push and you grind to a halt. Nothing comes easy. Always seems like it’s pushing up a hill. Nothing comes for free. No easy downhill sections.

So feeling a little worn out.

So on today’s late walk with Hawklad and the mad one, I tried to stand still for a second or two and watch the sun set. Look West. Then it’s time to keep walking. Well actually it was time to get pulled in a different direction by the hyper dog. That’s what you clearly get when there’s an accidental romantic encounter in a park between a small fluffy German Spitz girl dog and a slightly mad Cocker Spaniel boy. You get this….

So I was pulled along in a direction. Didn’t seem like I was completely in control of the direction. Just going with the flow. Life feels like that often. Not really in control. Being pulled. My preferred direction is always against the flow. That’s why life seems so hard most days. Constantly walking through treacle. So do I fight it or just go with it.

Today it feels like the answer is go with it.

Posted on by bereavedandbeingasingleparent · 44 Comments

Play

Another gloriously chilly day here. The perfect weather to play.

It’s official, school play time is getting shorter. A deliberate government policy. A recent report from the UCL Institute of Education confirmed that is the case in the UK. They found weekly break times had reduced since 1995 by 45 minutes for the younger children and by 65 minutes for secondary pupils. It also found a growing percentage of schools offered lunch breaks of less than 35 minutes.

Since that report was published the situation has got markedly worse.

I unfortunately listened to one of the government numpties in charge of our schools. He talked about the need to improvise discipline. Talked about children suffering during the pandemic as their grades might go down. It was apparently time to increase the school day, cut holidays. Allow the pupils to catch up with government targets.

Not once did I hear the numpty say the words health, wellbeing and happiness.

That’s no surprise. Schools are now strictly controlled. Teaching programmes, timetables, how pupils learn are set by the government. It’s all about grades. Grades in subjects that the government thinks appropriate. We here constant talk of a return to good old Victorian Values. But it goes further. As the end of school bell rings children are increasingly channeled into structured out of hours school clubs. Forced into completing hour after hour of set homework.

This eats into that precious free time. Time to socialise, to play, to free think, to dream. Time which is the child’s. Maybe that’s why child mental health issues and depression are becoming an epidemic. An epidemic without a vaccine.

Before the COVID pandemic kicked in I remember one particular school year. Hawklad has two really good friends in classes next to his. When I was at school I would get plenty of time to play each day with my friends, friends in different classes. Well that’s all change now. In that entire school year Hawklad never once spent time with his friends in school. Even at weekends organised school sport events made meet-ups problematic. The only time he met up with them was during the holidays. That’s a minimum gap of 7 weeks. 7 week blocks without seeing friends.

Remember the phrase. ‘Childhood should be your happiest time’. Is that still the case? Sadly not for too many.

Posted on by bereavedandbeingasingleparent · 35 Comments

Blue sky or not blue sky

Sunshine, blue sky, dark cloud, storm clouds, dry, rain, snow, bright, dark.

That Yorkshire sky really sums up perfectly my mood levels since lockdown started. It’s a bit of everything really. Swinging from smiles to tear. Feeling full of the joys of spring to darkest winter coldness. Optimistic then pessimistic. Feeling contented then feeling boxed in. Calm then anxious. At ease with the world then frustrated.

Emotional never ending tides.

Yesterday I was fighting the tears. Life seemed bleak and so restrictive. Definitely feeling cut adrift, isolated and alone.

Yet today I can’t stop smiling. Ok life feels constrained but it also feels good. Filled with HOPE and WONDERFUL thoughts. Most definitely not feeling alone rather feeling part of a BEAUTIFUL world.

Ask me yesterday and I would say what am I doing. Today it’s WE can do this.

I’m the same person, I’ve not moved, I’ve not won the money lottery. No person or no asset has entered my world. So why the swing in mood. Could it be that we are permanently riding those emotional waves. Swings in outlook are to be expected. Good moments, bad moments. Maybe the secret is to look at each day. What are the things that weigh me down and try to do something about those. Then most importantly work out what are the things that lift me up so much. If you can identify those things (maybe it’s just one important thing) then keep trying to move towards those wonderful things in life.

Yes WE can do this.

Posted on by bereavedandbeingasingleparent · 80 Comments

Walk

So each night Hawklad tries to walk a few more yards. To extend is external walk. To slowly start to build bridges again. Last night he bailed out early as he saw people in the distance. But it is progress. It’s a start. At some stage he will be ready to even face people again. But in his own time. Whether that happens before he leaves school, who knows.

I do worry that too many countries are just thinking vaccines. No other permanent changes required. The vaccine will beat the pandemic and return us to that wonderful former world….

But surely with a mutating virus which is still spreading and still so endemic, all a vaccine does is buy us time. It gives us a chance to make changes. To find ways to live safely. To get support out to the people who need it. To increasingly try to make it harder for the virus to spread and thus mutate.

But here’s the thing. The vaccine doesn’t really help with the growing tide of mental health issues facing our society. Speaking with the team trying to support Hawklad. They are being swamped by rising child mental health problems (and the identified problems are just scratching the surface of the real volume of problems out there). Plus was the old world that perfect. Even before a pandemic there was a mental health crisis.

Society and Governments need to quickly wake up to this. There are somethings a vaccine can’t fix for them…..

Posted on by bereavedandbeingasingleparent · 60 Comments

Time

Finding time to live.

I think as you get older you start to realise the true value of time. We don’t have a finite amount of time to do the things we want to in life. In 2016 that point was brought into the starkest focus for me. Time can suddenly run out…..

So when the penny starts to drop the question then becomes Do you then do anything about it.

We all need to find time to really live.

I remember taking a job on the south coast of England. In Portsmouth. I was there for 6 months. It’s such a cool town, with much to see and do. It was new to me. In those 6 months I spent one afternoon wandering along the beach and looking at the naval history. That was it. The rest of the time I worked and basically just existed. Don’t get me wrong I had the opportunities to do much more with my time but I didn’t. Not much living went on there. Was I happy – certainly NOT.

Things are different now. Life has become a little too out of synch. Much feels out of my control. Beyond reach. Opportunities are not so apparent. But that fact doesn’t stop time slipping by.

Still need to find ways to live. Seize whatever opportunities that do present themselves.

We can do this. We can do some of that living.

Posted on by bereavedandbeingasingleparent · 109 Comments

Just ask once

I had a scheduled call with the bank today. Just routine stuff. Routine stuff which you would just a year ago pop into the branch and sort out at the counter. Nothing is routine now.

Anyway during the call the bank person asked a couple of not really banking questions that kinda through me

“Can I ask. Are you ok. Are you coping. It must be so tough. Are you getting the support you need.”

That’s the bank saying that……

Now before I go on – I am ok. I am coping. A bit of support would be nice but it’s not happening. But here’s the thing. I could so easily be doing not so well in this single parenting gig. Really struggling. Getting no support. Desperate. Looking over the precipice. Sadly many are. In fact forget the single bit, many people are….

I became a single parent in 2016 following the death of my partner. In that time the only official person to ask how I was doing was that bank person. No doctor, no school professional, no education specialist, no one from the local services. NO ONE in the support areas has ever asked what the bank person asked. How many people are struggling and nobody finds out. Nobody asks. I guess the assumption is that those that struggle will always put their hand up. Sadly that might not happen.

That is such a worrying thought.

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Grim

Just let this research finding sink in (press on the link for the details)

Autistic people are four times as likely to experience depression over the course of their lives as their neurotypical peers

In the UK the approach is that parents have to fight tooth and nail for any kind of support. The fortunate ones who get some support find out all too frequently that support starts to be withdrawn around the teenage years. Adult autism support is basically non existent for the vast majority.

In our little family world Hawklad is struggling. His anxieties are on the rise. He is stressed out. Trips outside of the house and the garden are currently impossible for him. We are fortunate in that we do have access to some psychological support. Sadly from a Team who are stretched to breaking point. But we still have some support. For how long that support continues – who knows. He’s a teenager. This is the only support he gets now as all the other services have already been withdrawn.

How many other of autistic families are facing the same challenges. TOO MANY. How many autistic adults have been let down by society. TOO MANY.

This is grim.

Posted on by bereavedandbeingasingleparent · 61 Comments

This time

I can’t blame him for these, this time. But it does explain why he keeps coming in the house with muddy paws.

I had a post yesterday about Autism. When I wrote it things seemed ok with it. But then something happened. I happened….

I’m still working through this pcurrent bout of depression. Won’t be the first or last time I do this. When depression becomes DEPRESSION with me I start to doubt myself. Question my worth. That’s what happened yesterday. I reread the post and didn’t like it. The words were wrong. Uncertain of the message. Why was I bothering. If people want to read about Autism and Autism Patenting then they would be so much better off going to other blogs. Go to a blog like Robyn’s wonderful one. Nothing I said could change my mind. The voices in my would not be satisfied until I deleted the post. Eventually that is what happened.

Today the voices are not so strong. I guess today the post would have had a slightly better chance of being published. With my depression it comes in waves. Bad days then better days. Will be that way until I finally get on top of this run of D. In the meantime I will plod on. Trying to not listen to the voices in my head too much. Focusing on those things in my life which bring joy and happiness.

I can do this

We can do this.