Tell me why

In my voice – Tell me why

  • My partner was taken from us when she was so young.
  • The system continually fails our son.
  • The Government can find billions to bribe other parties to keep it in power but can’t find the money to fund education support for the kids who need it.
  • I don’t sleep anymore.
  • They say the world is getting smaller yet I feel so isolated.
  • Chocolate has so many blooming calories.
  • Hair doesn’t like growing on my head yet it sprouts like an Amazonian Forest on the back of the my hands.
  • The cat continually finds a way into the wardrobe.
  • I can’t find any socks in this house.
  • They never made a Captain Scarlet movie.

In our son’s voice – Tell me why

  • My mum had to die.
  • Both my grannies had to die.
  • My hamster had to die.
  • My girl cat who was like a sister to me had to die.
  • I can’t read.
  • Some people think I am stupid just because I am autistic and dyslexic.
  • Shops have to be so busy.
  • Hazard is leaving Chelsea.
  • Do people have to kiss in films.
  • Marvel Movies are way better than DC Movies.
  • Most kids don’t like rock music.
  • Broccoli wasn’t deemed an inedible plant.
  • My Dad can’t cook.
  • In our dogs voice – Tell me why
    • I get shouted at for pinching socks.
      I get shouted at for digging holes.
      I get shouted at for eating garden tools.
      I get shouted at for eating garden furniture,
      I get shouted at for digging up plants.
      I get shouted at for burying stuff like socks.
      I get shouted at for pulling bits of the apple tree off.
      I get shouted at for escaping.
      I get shouted at for climbing in the hedge.
      I get shouted at for eating cat poo, cow poo, sheep poo.
      I get shouted at for pinching food.
      My best friend isn’t with us anymore. I know I am a dog but she was a really cool cat.

    In our boy cats voice – Tell me why

    • My sister isn’t with us anymore.

    • My best friend, the really lovely woman has gone. I miss siting on her lap.
    • I get shouted at for missing the cat litter by several feet.
    • I get really shouted at for missing the litter by so many feet I hit the wall.
    • I get shouted at for sitting in front of the TV when a movie is on.
    • I get shouted at for sneaking into the wardrobe and getting white hairs on all the black clothes.
    • I get shouted at for falling in hot plates of food.
    • I get shouted at for always tripping people up.
    • I get shouted at for sleeping on the laptop.
    • I get shouted at for sleeping on the toaster.

    In our gerbils voice – Tell me why

    • We don’t live in a toilet roll factory.

    Bath time

    Some pets are clean and tidy. Some pets are not. Some pets are dogs…

    Captain Chaos won’t pass up the opportunity to roll in any unsavoury object. Mud, cat poo, soil, bird poo, grass, sheep poo, hay, cow poo…. You get the picture. You get the musty aroma.

    Cometh the smell, cometh the bath. The dog bath doesn’t last long. Most of the water ends up on the floor, the walls, the windows, the ceiling, on me. Then you do your best to dry him then it’s release the mad one and he’s fully into his even madder 10 minutes of madness. Followed by you have guessed it, some more rolling about…..

    It’s the early hours. We need a bit of a lift so in 4 hours son will get up and off we go to see an early morning (and hopefully relatively empty) screening of The Avengers – End Game. A screening starting at 6.30am – how mad is that. Thanos will still be in his pyjamas.

    The break begins….

    One or two patches of Daffodils are making it through to Easter. That’s kinda nice.

    So the Easter School Break begins. With a hunt. But not an Easter Egg Hunt.

    Dad The Pup is outside”

    That’s fine Son because I’ve been at meetings all today the poor boy will be busting.

    That’s good. Did you know he has taken something with him”

    It’s ok for Mr Crocodile to go outside.

    No it wasn’t Mr Crocodile”

    Tell me it’s not your socks.

    No not my socks”

    The little bugger has got my pants hasn’t he.

    No not today”

    What has he got then.

    I think it’s your wallet”

    So after a mad 5 minute chase a slightly chewed wallet has been retrieved. Soon will begin a fingertip search of the lawn for the coins and cards with have been scattered around the garden. I’m knackered already and the break is only 2 hours old….

    Five Things

    Its been one of those days. About 24 hours of work to be done but I only had a window of opportunity between 8.10am to 4.30pm – extra hour of school on a Thursday. On top of that I needed to clean the house, change the bedding, complete a review form, clean out the Gerbils, mend a pair of jeans, Iron, try to stop a utility firm from sending adverts addressed to my partner and pay some bills. Never going to happen.

    Especially when

    • The school bus left early so we missed it. So an unexpected car journey took place,
    • Captain Chaos found a new escape route out of the garden. So a full search and recovery mission had to be launched. Once the dog was safely back in the house I had to repair a new hole in the fence,
    • The hoover drive belt snapped. Luckily I had a spare but it took a while to find it…
    • Two unplanned urgent ‘drop everything’ jobs came in,
    • I couldn’t find my bank card to pay the bills. Mad panic and frantic searching. Eventually located bank card but in the process of searching I came across my car insurance policy. It’s about to expire so needed to reinsure urgently.
    • Couple of hours later Captain Chaos escaped again. Clearly the repaired hole was not his escape route. So another search and recovery operation had to be launched,

    Halfway through completing the review form and our son came back from school. The window of opportunity snaps shut for another day.

    Anyway at least the Gerbils are in a clean cage now and Captain Chaos has had two new adventures.

    In the UK it’s Mother’s Day soon. It’s a good time to give a shout out to all the mums out there. I struggle to cope with one day of this – you do this everyday. Thank you for being brilliant.

    Decibels

    Currently the mad dog is being completely bonkers. It’s a kinda let’s bark at everything type of day. Currently the apple tree is getting it. But as the decibels rise my mind wanders to that quiet little pup. What happened…..

    Son is not impressed. If you look closely at the photo you will notice that the duvet cover is Peppa Pig themed. It’s a perfectly good cover so is still used today when his Jurassic Park one is being washed. Son doesn’t really see the practical benefits.

    You do know Peppa Pig is for little kids. It’s not as if I’m watching it. I know you do when you get the chance, but not me. I was watching about the Black Death last night..”

    I do have to admit that a quick bit of Peppa Pig, or the Clangers or In The Night Garden is strangely therapeutic. And yes I can’t remember the Peppa Pig episode which featured the Black Death.

    All my parenting waffles are subject to a major caveat. As statisticians would say – it’s based on a very limited sample size. Like one child. One child on the autistic spectrum with dyslexia. So when I see something I can’t be sure if that is just particular to our son or is a common thing. The only other benchmark I can use is my childhood. That seems a long time ago…..

    Son has a lot of areas where he is more developed and refined than his Dad. Seemingly way beyond his years. But also in a number of areas he probably still reverts back to the Peppa Pig years. Cuddly toys. Not wanting to leave the safety of the family nest. Mr Men stories. Petting Zoos. Toy cars….

    Maybe it’s a fear of growing up.

    But I can relate to this. Not wanting to completely forget your early childhood days. Now where is that Peppa Pig dvd….

    Speaking about not forgetting things.

    It’s the Great Bloggers Bake-Off this Sunday. It’s all about having a bit of fun. Pop over to Mel’s blog – Crushed Caramel (Learner at Love). She has done so much work to set this up.

    Our special judge is A Jeanne in the Kitchen.

    Let’s go Sunday Spongecake mad.

    Please send photos of your creation(s) to crushedcaramel@gmail.com

    Martians just made the list…

    Sometimes you just have to get up close to flowers. Neighbours must think I am stark raving mad….

    Sometimes you have those days. Days were you get up close to flowers and also end up pulling out what’s left of your hair.

    School has been verbally told (many times) and been provided with extensive case notes for our son. Just in case school didn’t fancy reading War and Peace I helpfully provided a two page bullet point summary. Bullet Point 6 said

    Can have poor judgement in relation to risk.

    Bullet Point 7 adds

    Has a diagnosis of Dyspraxia. Has very poor fine motor skills. Struggles to use pens. One to one Care and supervision needed when using sharp objects.

    Under the section relating to specific school subjects

    Design & Technology. One to one supervision required when using cutting tools, drilling tools and impact tools.

    Additionally school has been given a verbal and written update on his current broken hand. Although the bone has heeled he is undertaking physio to try and get his hand working properly again. So he in effect still just using his weaker left hand.

    Today was his first Design and Technology lesson. So it was also a fingers crossed type day. Funnily enough it was also a plaster type day……

    He came back home. His thumb and two fingers covered in large plasters.

    “Dad I had a bit of an accident. I was trying to saw using my left hand. The teacher shouted out an instruction to the class. I got distracted and I started sawing my hand rather than the wood…”

    Apparently he wasn’t given any one on one supervision. He was allowed to use a normal saw with his wrong hand, with no additional safety measures in place. – Maybe I’m just being an over protective parent. It’s a natural thing to do.

    Dad funny thing is the lesson was about safety in the workplace. Guess I’ve already failed…”

    So that’s something else we will be discussing at his school review meeting on Friday. Could be a long meeting because it’s one sizeable issues list….

    But let’s try to finish on a brighter note. We sat on the grass next to the daffodil patch with ice lollies in hand.

    Dad up close Daffodils take on a completely different perspective. If your a bug looking up at those yellow giants, it must be terrifying. Do you think HG Wells got his idea for the mechanical Martians from Daffodils”

    As I pondered that the mad dog ran up and before we could stop him, he cocked his leg on the Daffodils. Poor bugs scared to death by Yellow Martian Giants and now doused in Acid Rain. I wonder if an overprotective parent bug may have just added an item to a miniature and a tad damp issue lists. We can wonder.

    Blue Croc

    Captain Chaos with his beloved blue crocodile. That poor croc needs years of therapy.

    ***********************

    When a parent dies it is so tough it is difficult to explain the feeling. That’s a so called adult speaking. Imagine what it’s like for a young kid.

    I lost my dad when I was 21. He had been ill for years. I got the feeling during the last period of his life that he was trying to keep going just to see me graduate. Sadly he missed out by a few months. It was a numbing experience but the pain was mitigated a bit as I had been expecting it to happen for ages. I was sort of prepared. My mum died a couple of years back. It was a complete shock. But a five years earlier she had suffered a massive stroke. Doctors told us to prepare for the worst. Yet in a month she was back in her house – still able to live independently. In some respects it felt like the years after the stroke were a real bonus. She got to spend time with her grandson.

    But for our son we have no mitigating factors. He had just been to his beloved grannies funeral and a week later his mum goes into hospital for some routine tests. His mum deteriorated rapidly and completely unexpectedly. He was visiting his mum in the hospice two weeks later. For someone so young that’s devastating.

    We still get tears but now he can talk about his mum. He can laugh at the good memories. But the anxieties caused by that period of death are still impacting his daily life. He is so worried about becoming ill and also about losing others close to him. Today is common. We have had anxiety about catching illnesses. Worries about dying. On top of that every time I sneeze or cough he runs to make sure I’m ok. We try to find ways to ease the anxieties but it is still so tough for him…..

    ***********************

    Son comes back from school to be greeted by Captain Chaos and a well chewed croc. That’s one thing that works.

    Sequel

    When you need a smile here comes our own member of the Avengers. Captain Chaos.

    As we surveyed the second attempt at a fudge cake.

    Well Dad the first one was burnt to a crisp. However the sequel has completely collapsed in the middle and smells of curry….”

    This brought on a discussion about sequel (sort of) films.

    Son thought the Depp Charlie and the Chocolate Factory was warmer and did not feature Charlie breaking rules. In his opinion Mike TV should have won the first movie.

    The first Guardians of the Galaxy beating the sequel. Son believing the second was too sad at times.

    The second Paddington movie just edging out the first one. Son thought the first one had a better story but the second was funnier.

    The first Home Alone winning over its sequel. Son thought Kevin was just too annoying in the second and that the poor criminals were just unnecessarily tortured.

    The second Jumanji edging the first one. Son found the second one just a bit more funny.

    Any thoughts. Now onto the third fudge cake attempt.

    Cat Stew

    Sometimes wonderful views take your breath away. This was taken on our last holiday. While my partner and son slept I would sneak out for an early morning run. The run would take me along a path which ran along the edge of Lake Thun. It was just stunning.

    Sometimes it’s other things that take your breath away.

    Last night I had made a stew. I left my steaming plate of food on the kitchen table while I delivered our son his stew and 2 tons of tomato ketchup. Crash. On my return to the kitchen I had an out of body experience. We have a very accident prone boy cat. Yes you have guessed it. He was lying in my stew. Waiter there appears to be a cat in my food. He was covered in gravy and vegetables completely oblivious to the world. He seemed most puzzled when I pushed him onto the floor. He was even more puzzled and slightly terrified as the dog decided to feast on the four legged plate. My option b meal, a cuppa soup was far less appetising.

    I’m still finding bits of stew strewn around the house.

    Usually the dog won’t have anything to do with the boy cat. His bestie is the girl cat. However today it’s a different story. Now he’s discovered the boy cats talent as a mobile dinner plate. He is hopefully following him around trying to be friends. Let’s hope the boy cat has learnt his lesson as tonight it’s a curry.