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Return or not

WARNING: This is a covid related post… it may contain grotesque examples of confusion.

This friendly bird is a frequent visitor who keeps returning for a daily meal. A visitor who doesn’t bother with social distancing rules but is far too fast for my poor mobile to get a truly in focus picture. On the subject of RETURNING.

The school return question is starting to be vexing again. When the schools closed down a few weeks back the advice was that they would be closed indefinitely. Exams in June and July cancelled. They would certainly remain closed until the virus was under control and the country had implemented systems to keep track infection rates. A return was not going to happen until it was safe to do so.

Let’s set the context in the UK.

  • Each day a 1000 people are dying in hospitals as a result of the virus and the numbers are continue to rise. The UK is likely to have the highest mortality rate in Europe,
  • That horrendous number does not include the many deaths occurring in care homes and in household settings. Up to half of all deaths could be occurring in care homes,
  • Medical staff, care workers, teachers, bus drivers, people who have attempted to self isolate are continuing to die,
  • 5 under the age of 20 have died,
  • Each day something like 40 people die from this virus who have no underlying health issues,
  • The official ‘those at most risk’ list has clearly missed off many thousands of vulnerable patients,
  • Currently the UK can only perform 18000 virus tests per day. That’s not even enough to cover the urgent requirements of our front line staff,
  • Unless your the daughter of a government cabinet minister you are unlikely to be tested if you are self isolating at home,
  • We are still to introduce a virus contact service or app,
  • Even based on the country’s inadequate testing regime we officially have 84000 cases recorded.

That doesn’t strike me as under control.

This week the governments’s appointed scientists and will meet with the Cabinet to consider the lockdown arrangements. The government are keen to reopen the economy as a matter of urgency and revert back to the original herd immunity strategy. Even though growing evidence is developing that people can be become infected more than once. How long any acquired immunity lasts is still uncertain. As part of demonstrating that we are getting back to normal many in the government want schools to reopen ASAP. Certainly well before the ban on mass gatherings are eased. The argument is that kids are at a lower risk of serious complications.

Ok I fully understand the need to start living again. I hope it’s done as quickly as it is safe to do. If decisions are truly based on the best and broadest scientific advice then I think many of us will support that. But then I put my parent’s hat on.

Parents potentially are going to face a decision in the coming weeks. A decision where there is no right or wrong answer. If schools opens early, do I send our kids in. That is a personal decision and not one that I will allow the Government to take for me. Personally this revolves around a number of factors

  • Kids may be at a lower risk of serious complications but that it not NO RISK. Already 5 under the age of 20 have horrifically died,
  • UK schools are not designed for adequate social distancing or effective hygiene. Too many kids, teachers and support staff are crammed into out of date, inadequate facilities,
  • Homeschooling v Schooling – not planning to go there today,
  • The anxiety and stress the return may place on our kids. Some kids may be busting to meet up with friends again and start being a school kid again. But equally many will find the return stressful. With our Son’s Aspergers he struggles with many social and health anxieties. He has a huge issue with the fear of hygiene, illness and death. Co-vid has sent that off the chart. To the extent he struggles to leave the confines of our front gate these days. If we do venture out then it’s a quick walk, keeping at least a field distance between others and not touching any surface. That’s walking a dog in a quiet village, what on earth will it be like when we are talking about a confined building with a 1000 people. The medical support we might be able to tap into to help with this has been cut back by the government. The service is stretched and is currently not able to do face to face counselling until later in the year – currently it’s not deemed safe to do so.

So it’s a personal decision. No right or wrong decision. We all are just trying our best to navigate this mess. For me (with my parent hat on) I can’t see any foreseeable set of circumstances where I would be willing to send him back into school this side of September. But it’s a personal decision. It’s his decision. So when the times comes that the school is open then it’s his call completely. It’s his risk, his stress, his life.

Stay safe people.

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Standards

Just as many of the daffodils start to die back a few late developers are just coming into bloom. I noticed these two early this morning as I came outside to clear my head after a dream.

I had one of those really bizarre dreams. The kind which you have no idea where the brain dragged that one from. I was trying to drive a lorry pulling a massive prefabricated building. For some reason the building still had all the cups and plates wracked up in the little kitchen. So I was instructed to drive carefully and for every broken item I would have money deducted from my wage. I somehow managed to get my load stuck in a muddy friend surrounded by Emus and talking sheep. I was attacked by the big birds so I had to take shelter on top of the prefab building.

What on earth was that one about…..

Anyone who has seen me drive will realise I am the last person you would trust to drive that load. The odd dream did remind me of a very old University incident. Our team had just won a 5 aside footy tournament and we went off to celebrate. We certainly did celebrate. None of the team can remember much past 8pm but I had clearly decided some time in the early hours that it was a sensible idea to fall asleep on top of one of the university’s prefab lecture rooms. For some reason I had brought a large road sign with me for company. When I finally came to my senses I realised that it was morning and a lecture was in progress just a few feet below me. I could here the lecture rather clearly. Embarrassingly it was a lecture I should have been in. I listened for a while but then my pressing need for the toilet took precedent. Unfortunately the only safe route down was on the window side of the lecture room. A few hours later I was talking with a girl who was in that very lecture. She said that during the lecture the students in her section could hear a rather ghostly snoring noise coming from above them. Then she heard the snoring ghost clearly swear which prompted the lecturer to warn the class about bad behaviour. Then it all went quiet until the sound of movement and scraping could be clearly heard from the roof. Whatever was above her was moving towards the windows. A large road sign then appeared to the thrown to the ground. Then seconds later a rather deshelved character swung his legs over the roof edge. Another loud expletive and the legs disappeared again. The sound or more footsteps on the roof. Then a sports bag wizzed passed the window, followed closely by clearly disheveled person hurtling towards the ground at a surprising uncontrolled rate. An audible groan was then followed by another load expletive. I was then seen hurrying in the general direction of the toilets, carrying what appeared to be a large metal sign….

How on earth did I get an honours degree. Just shows you the decline in UK education standards. Thankfully standards are not being lowered in the daffodil world.

Please note I have not touched a drop of alcohol since 2016…..

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Random Tree

A random Yorkshire tree. When it snows, a random Yorkshire Tree positioned at the end of our sledging run. So a random Yorkshire tree with a very hard trunk which I have collided with on more than one occasion. It’s like a Rome. All the sledging runs seem to abruptly end at this tree.

So this morning’s fight with WordPress was a bit of a score draw. On the plus side it went remarkably smoothly and very quickly. On the downside my attempted fix – didn’t pigging work. So the app is still possessed. My comments on many sites just disappear. One explanation is that I’ve upset one of the Spam filters. I might have used a naughty word on a comment (or two ). See kiddies swearing is not big or clever. Anyway until it’s resolved I will keep trying to comment on your sites – a few comments are still sneaking through. Enjoy the peace and waffle free time while it lasts.

So the school version of homeschooling has ended for another week. It’s now the two week Easter break. A break which will probably look very like the last few weeks. Normally we look forward to these two weeks but this time it feels like just the same as the last few weeks. No real change except the school iPad can remain switched off.

But as everyday is FUN DAY let’s try to make the most of them.

It’s good to see school is getting into the celebratory mood. The kids have been set homework and have been given plenty of revision to complete over the holiday. After Easter it’s straight into online exams and YES the delights of spelling tests. Deep joy.

But we are not going to let school put a dampener on life over the next couple of weeks. So at lunchtime we reverted back to one of sons favourite games. Bouncing on a trampoline while holding a bucket filled with water. It’s amazing how even Son’s bucket of water ends up over his Dad. Maybe that’s why the game is so much fun. Then it was back to online lessons and trying to explain to a bewildered son the finer details of love poetry. You might have seen my sledgehammer writing style in Thursdays Terrible Poetry submissions. Me advising on poetry is like asking a pheasant to operate a pedestrian crossing. Some lessons are about personal growth and development. However this one was just about survival.

After the last lesson of the day the Easter break started with a dog walk. A walk to our sons self imposed world boundary. And a look over to a distant random tree. A tree beyond our little world. Let’s hope that when we get snow again, once again all our sledge runs will be able to meet this tree again.

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Like new

Two daily visitors waiting patiently for breakfast. I must clean the gutters….

After yesterday’s unplanned washing of my mobile, I found myself outside in the cold early morning air. Doing a great workout supplied by a very kind friend and listening to music on my super clean phone. Crystal clear sound. In fact it’s never sounded so good. Maybe I should try my body out in a quick machine wash cycle. If only I could fit the car in our old washing machine.

I was a bad parent last night and I’m not talking about letting son watch Deadpool 2 again. School emailed all the parents to say that they had not been picking up all the students who had been submitting inferior work or worse submitting work late. So to rectify that the only thing they could do would be to send out an email each night at 11.30 to warm parents about any issues which may have occurred with their kids online work for that day. I can imagine many parents sending letters of approval in or even asking for a tougher stance from school. I took a slightly different stance on my short reply.

Please don’t bother.

This morning followed up with a much longer reply basically talking about how tough it is for many kids at present and how about school using the resources they were putting into this sanction into doing something positive – something fun for the kids. Maybe even allowing some social interaction with friends. I’m not hopeful but at least it will get me another black mark in the awkward parent log.

Anyway school might not do fun but that doesn’t mean that we can’t. It’s so important we all find ways of still living. So in between online lessons we have squeezed in some activities. Bouncing on the trampoline, Jenga, air hockey and jelly making. Then after the school day had finished we made some cakes. Played football and attempted to build the largest possible Lego tower. Unfortunately due to the wind, curious pets and my eagerness to build higher before a stable base was formed – it didn’t get much higher than 5ft. It clearly had the same design fault as Trumps Mexican Wall. Oops that’s going to bring on my fan mail from Texas again.

Over Easter we will definitely revisit the Lego tower. It might even stand up long enough to take a photo. The point is that actually fun day is not enough. It really is so tough for kids to enjoy their childhood in 2020. So much anxiety and so little space to dream. So fun day is now fun EVERY day. Maybe just like my mobile phone, we can find ways (maybe unusual) to improve things in life. WE can do this.

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Foreseeable

Looking back from the edge of the micro world. Our little village increasingly isolated. Sadly we can’t take this walk now. Son started to freak out about having to touch so many farm gates – just in case. So we are restricted to hands stay firmly in our pockets walks for the foreseeable future. How long is foreseeable these strange days….

After yesterday’s accident mayhem we approached April 1st with some trepidation. What enhanced carnage would April Fools Day bring. As life is clearly so foreseeable the answer was rather surprisingly – NOTHING. No accidents. No backfiring pranks. Zip all went wrong. My family tradition was that April Fools Day ends at midday. No accidents by lunch to distract from today’s aim.

We decided to make today a fun day. No talk of the bad stuff happening in the world. No depressing talk. No news. A day of respite amongst the mayhem. I keep saying this but if it’s bloody tough for grizzly old farts like me, what the hell is it it like for our kids. The adults are not that good at living like this, kids most certainly are not designed to live like this. So that’s why today was going to be a rebalancing day. That was the plan but not everything is foreseeable…

Today’s first lesson was Religious Studies. Given the current stress and anxieties kids are facing why don’t we pick a fun or light topic. Well the teacher picked a belter.

Look at four different countries and see what their approach is to DEATH. What are the funerals like….

Well that’s a real laugh a minute project. What next, how about History looking at the Black Death, Geography looking at the spread of pandemics, Science taking a closer look at the Ebola mortality rates.

So we have postponed the fun day for the foreseeable future. As that is clearly not very long we shall be having it tomorrow. Once we rearranged the fun day and put April Fools Day to bed for another year we could get back to normality for the rest of the day – household madness.

Have you ever pressed the start button on the washing machine and as soon as it starts spinning you notice something going round which does not look like an item of clothing. As the machine slowly turned and a rouge object kept appearing, my mind whirled – what is it. Then the penny dropped. It’s my mobile. Oh bugger. An hour later it emerged looking sparkly clean but a little soggy. In a further moment of madness I decided to put it in the pocket of one of the washed jeans and tumble dry it. Maybe that will dry it out. Please children – don’t try this at home. Only really tired parents are allowed to do such stupid things. Unbelievably the super clean phone came out dry. And it still works although I may wait a day or so before I try to charge it up.

So in our foreseeable world tomorrow is fun day and today has been ‘wow my ancient iPhone is sparkly clean day’. Who needs April Fools Day for the foreseeable future.

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Toy Story

Lovely midday weather here in Yorkshire.

It’s funny how you can overthink even the simplest of tasks. We try to make Saturday evening the official movie night of the week. A regular thing for son to look forward to. Popcorn, cola and a great movie. We save up new movies for the full Saturday experience. If we don’t have a new movie then the next best thing is a blockbuster. For days I had been working on a list of potential movies for this Saturday. Scores of candidates slowly whittled down to three favourites.

The Martian

Terminator – Dark Fate

Rocketman

So Saturday night arrived. I proudly gave son the list of three movies.

“Ok Dad, let’s watch Toy Story.”

And with that it was Woody and co. A top top movie. Perfect escapism for today’s anxious world. But how much energy did I waste on picking an unused movie list. But I guess the point is that it successfully distracted me for a few days. While watching the movie I played my usual game of trying to pick which character I was most like. Toy Story was easy, clearly I am Rex. Although this morning I am a bit more Mr Potato Head.

We often forget how stressful the current situation is for kids. Confined to base, seeing parents stressed, unremittingly bad news on social media, kept apart from friends. In our sons case the confined to base and kept apart from friends is not really an issue. But his Aspergers requires routine and controllability. These have gone out of the window over the last few weeks. Adjusting to different daily routines. Food on the set weekly schedule (which has been in place for years) becoming unavailable. A completely unpredictable world. The fear of illness and worse ramped up by a spreading pandemic. He’s so young, had to deal with so much already and he’s facing this.

He asked what my best guess was for when things might begin to settle down a bit. Sadly I couldn’t say anytime soon. When he asked about schools opening and I couldn’t see anything happening and sticking before September.

“Dad is that September 2020 or September 2021”

I wouldn’t like to bet my shirt on that. We just don’t know who long the current restrictions will be in place for. When they do come off, how long before they need to be reintroduced. But we just have to deal with that. I’ve got to focus on the one overriding aim. Give son the best childhood possible. So we make the best of the new normal. Strengthen the new routines. AND above all try to have as much fun as possible. So Toy Story is perfect. It’s fun. Thank you Woody and co.

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Home schooled breadq

Today was the Day 1 of the countries homeschooling project for many. Son’s school is trying to run a full days lessons online. At the usual start time of the lesson he needs to log into the school system. He records his attendance by a simple text message. Then he follows the instructions the teacher has provided. Any work completed is then loaded onto the school system for the teacher to review.

  • Geography was to research and answer a series of questions on Russia for 90 minutes. He quite enjoyed that,
  • Maths was to use an online teaching system. Complete one module. Unfortunately due to the numbers of kids nationwide trying to use the system – it broke,
  • French was to read a handout then try to write a few paragraphs in the remaining time. Didn’t really work for him.
  • Art was to try and replicate 4 photos in various styles. So he tried a few sketches then photographed them and sent that to the teacher.

It kinda worked. It did provide structure but I’m not sure some of the teaching methods really suit our son. But that’s modern teaching in this country. Let’s see what the next few days turn out like. I’m puzzled how some of the subjects will be run. Online PE and Drama could be interesting. Surely they will squeeze in a few of our favourite spelling tests. Food Technology mentioned cooking at home. Maybe even learning from your mum or dad.

“Say that again. Learn cooking and baking from your dad.”

He gave me a withering look.

“Sorry dad I’m going to have to say a bad word. Oh CRAP.”

He knows me far too well. A couple of hours later.

“Dad, I thought you had planned to put seeds on top of the bread”

“I thought I had put seeds on but clearly I accidentally put grated cheese on instead. It’s now cheesy bread.”

“Its vegan cheese isn’t it.”

“Yes I believe it is as that’s the only grated stuff in the fridge.”

“Well it’s grated cardboard topped bread then. I do learn from you. How not to cook…”

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Breathe

And breathe…. count to 10 and breathe again.

More and more countries go into lockdown. We are surrounded by lands where schools have been closed. Meanwhile here in England our leaders give interviews only to carefully selected media supporters. Even the Chief Medical Officer gives an interview to a right wing newspaper. On the off chance you just might want to find out what our top medical person has to say on the crisis then you have to pay for it. Apparently we might force anyone over seventy into isolation in a few weeks. We might close bars and cinemas down – maybe in a few weeks. We will definitely keep schools open – if teachers go off sick then we will just cram more kids into the available classes. Sticking to the strategy of trying to get as many of the fit and young infected so they develop immunity. All sounds a bit X-Files to me. Seems to be based on the assumptions that infection has no long term side effects and any acquired immunity will be for the long term. Both assumptions are scientifically unproven as yet. Increasing numbers of experts appear to not share the same opinion as our key experts advising the government. Plus this is our Government we are talking about – they couldn’t run a piss up in a brewery. Has anyone seen Boris Johnson over the last few days? I really hope he’s as stressed out as my kid is over the virus….. If it’s sending many of the adults into panic what is it doing to our children.

It’s an odd feeling. Do I trust our countries leaders and it’s experts OR do I rather trust other countries approaches. That excludes the overall US approach – I’m not sure waiting for it to one day just disappear really cuts the mustard as an approach.

So I am wrestling with one decision. Do I let son go to school. I have a duty of care to look after him. Do I think he is safe, secure and well cared for in the educational environment. I’m still wrestling with that one. I think many parents round here are facing the same call. Yes full on school closures have a knock on effect on childcare and staffing in our essential services. Especially as our Government has deliberately cut those services to the bone. We now only have a quarter of the critical care beds that Germany has. But on the other hand how many kids and teachers have underlying medical conditions. Are we not placing them at risk. So it’s not an easy decision. But I need to focus on my son. What’s in his best interest. We also need to keep moving forward.

I need to go shopping tomorrow for a few things. Should be an interesting experience. One of the things I need is a Chocolate Almond Drink. It’s about the only nice dairy substitute drink I have found. It’s expensive but it is always on offer for 3 for £3. Well last week it was caught up in the panic buy restrictions. Now I can only buy 2 in one shop. Suddenly it’s become expensive. What’s bizarre is no bugger else buys it. I strongly suspected that for a while as they don’t put many of these drinks out and often they looked like they hadn’t been touched since I was last there. Being a sad person I have for the last three weeks put a little pencil mark on the next available drink – it’s still been there on my next visit. So clearly they are worried that as the only buyer of that item I may panic buy and deprive myself of buying it next time. It’s all a bit bizarre. But that’s 2020 for you.

With that I will now try to focus on other things on this blog. Yes I may have to mention the pesky virus but I will try not to that much. Over the next few weeks blogging is probably going to become more important for many. A rare connection in our dislocated world. Maybe trying to create a bit of normality in this maelstrom is what is currently needed. What is certainly needed is that we show how much we love our family and those we care most for. That we try just that little harder to be considerate and look out for others in our community. Trying extra hard to be nice and kind. And yes don’t forget to find the time to care for ourselves as well. Finding that time to smile and breathe. We might not be able to agree on what the best approach is to dealing with the virus but being just a little kinder will certainly make us all feel just that bit better about our world. Thats not going to happen fighting over that last pack of 50 toilet rolls.

Take care my friends. x

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Prophecy

Colour slowly returning to the garden. Sadly just in time for the next weather blasting. Just so predictable….

A few years back our son had a wonderful medical expert who did an awful lot for him. Just before retirement I remember the experts prophecy. To paraphrase

Our country’s support for kids like yours is nothing short of a disgrace. Sadly if you think that the support he gets now is patchy and insufficient, well just wait a few years. It’s likely to get very much worse. Maybe when he is 12, most definitely when he is a teenager, the minimal support will dry up. He will get reassessed by clinicians who have no practical experience of your son. They will deem him above the clinical threshold and will turn off the support. Clinical threshold should be renamed budgetary threshold. It’s not a reflection of the clinical position. He will still have severe clinical need for intervention. The support will be removed because as a society we don’t support teenagers and adults on the spectrum. We expect them to fend for themselves. If they don’t fulfil their potential then tough. I’ve seen this happen to virtually every kid I have worked with. If they achieve anything in life it’s just down to themselves and their parents. On top of this the school system just assigns them to the bin. It stinks….

Sadly the prophecy is coming true….

Just before Christmas he was reassessed for one of the support services he receives. The assessment was done by someone who had never met our son. The outcome – the service was withdrawn as he no longer met the clinical requirement.

Today we had a therapy session at the local hospital. It’s a service he has had since he was 7. It’s made some great progress over the years. It’s taken time and many sessions. At the last session his worker agreed on a programme to help with his handwriting, keyboard skills, and areas such as shoelaces/school ties. The programme after that would look at trying to help with coordination specifically aimed at swimming and bike riding. He has significant problems in each of these areas. Well guess what. At today’s session his worker was joined by a senior member of the team. A reassessment was made of his case. After a few practical exercises we were informed that he was now above the support threshold. He was now discharged from the service. They would write to school and give them some suggestions on his future schooling. We were handed a couple of information sheets on handwriting and shoelace tying. We can ask his Paediatrician to review this decision. We are on the waiting list to see a Paediatrician – currently our last appointment was over two years ago.

So we are now down to one service support now. But that is so underfunded. His worker is wonderful but because of workloads she struggles to see him now. Last year we got invites to a couple of group sessions. His last one to one session was back in 2018. Clearly it’s only a matter of time before that last helping hand is removed.

It really feels like that the health service has now dumped our son since he’s a teenager. I guess they argue that it’s an educational problem now. Unfortunately the school system has washed its hands of our son already. Like so many kids the school’s write them off. Label them low attainment. If they get the odd exam certificate in the end then school has achieved its goal. Ticked it’s box on the Government’s school assessment.

So here we are in the brave new world. We are fending for ourselves. Our only support – a few pages of photocopied guidance from a textbook. How can we have got this so wrong. How many thousands and thousands of autistic teenagers and adults are in the position. Some of the statistics on autistic suicide rates, unemployment, depression and poverty are appalling. But society doesn’t care. Our leaders don’t care. That’s a truly sickening thought.

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Cake test

This was my attempt at baking son’s birthday cake. It’s amazing what heaps of icing can hide. The cake was a bit over baked with a huge volcano like hole at its centre. I plugged the hole with soft sweets and then covered with thick icing. What was left of the sweet packet was scattered on top. I might be onto something here. The soft sweet centre worked brilliantly. As a result the cake was deemed “not too bad at all” which on our sons review scheme equates to just above two Michelin stars. So now that’s got me thinking what other things can I fill the inevitable cake sunken holes with. I’m going for jelly in the next one. I will report back on my test.

On the subject of tests …. ok troops, time to stand by up your beds. Its spelling test time.

School is slipping as we have had only one spelling test this week. So they better make it a doozy.

Imagery

Alliteration

Rhyming

Couplets

Syllables

Stanza

Rhythm

Sonnet

Simile

Metaphor

Hyperbole

Assonance

Personification

Onomatopoeia

Enjambement

Another cracking list of words that will be of great use in son’s future life. My last conversation with school stressed the point

That spelling tests for dyslexic students are not recommended practice. If they have to be used then they should only focus on the most commonly used words.

Good to see the school are sticking to the common words then. I had to look up Enjambement. I was sadly disappointed to find that it wasn’t a Caribbean Cooking term for combining Jackfruit with Jamba Juice. My favourite flying dinosaur (Onomatopoeia) makes a welcome return. Last time I pulled that joke I had a shedload of abuse from my Texan fan club….. For some reason Son can’t say ASSonance without cracking up. Must get to the bottom of that joke.