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Safety

Today’s out of focus wildlife action shot is of someone who lives in our roof. Actually taken yesterday when the sun was shining. Our housemate is about the only member of our household who gets out these days.

This is the seventh week of Son’s own version of the lockdown. A few dog walks in the early weeks but then going through the garden gate became increasingly difficult for him. Even in the security of our car, a simple trip out onto the road becomes an anxiety crisis. When he returns he immediately washes his hands for minutes then has to have a shower and bath. These are genuine fears. Fears that effect his life. The excessive need to wash is not new. He has been shown how to clean his hands like a nurse. He has hand washing drills that set time limits. But sometimes it’s best to let these lapse as the excessive cleaning is often more about ridding his soul of anxieties rather than purely removing germs from his skin. Especially when a virus surrounds him which has so many unknowns.

He won’t be alone in these fears and feelings.

A chap in London with a little NHS badge announcing that the lockdown is being eased or lifted is not the end of the matter. It’s not as if it’s a water tap which we can instantly turn on and off. That’s also assuming that the virus remains under control and doesn’t spike again. Under Control is a rather worrying definition these days. It appears to mean keeping daily infections running into thousands and deaths below 300 a day. That’s just hospital based deaths not including the huge numbers occurring in care homes or in the wider community. For many the easing of restrictions is just the start of a long and painful slog. No sudden street parties for them. It’s about trying to repair bridges between the safety of their homes and the wider world. Picking up sufficient confidence to walk past that front gate. To meet people again. That’s going to be so tough with no guarantee of success.

So for the foreseeable future, our little starling will be the only one venturing out.

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2024

I’ve done my Sunday morning exercise session. The poor bike is a bit like me, during every session something either stops working, starts creaking or drops off. So the bike is going into therapy for a day or so. Can’t think of a worse punishment than having my large behind perched on you for that length of time.

So now I’m sat outside. Now that’s a rarity. Sat with my iPad typing these ramblings. This is my view.

Apologies for the legs and yes my trainers are in real need of replacement. Actually forget the trainers, my body is in need of replacement. I’ve used this one up, can I have another one.

During the lockdown I just haven’t found the time to sit outside and relax. Where does the time go. Its not as if I am undertaking any huge Home Makeover projects or painting a landscape masterpiece. I guess it’s a reminder of the investment you need to make when you signup to a parenting gig. The greater the investment, the higher the chance that your parenting will actually prove worthwhile for your kids.

But this sunny morning I’ve found the time to sit for a few minutes. The main reason is that I’ve just seen the weather forecast. It’s back to proper Yorkshire weather this week. The next scheduled settled sunny spell is not forecast until sometime in 2024. So I had better make the most of that bright yellow thing in the sky while it’s still here.

Looking at the view and the sun slightly hidden by early morning thin mist, reminds me of the ending to last nights movie. The last Star Wars movie. I won’t give away the ending or the key story moments. Mainly because I am waiting for our Son to explain them to me. I found switching off the brain and ignoring the inevitable questions, actually turned the movie into a really fun adventure yarn. Visually and sound wise it was stunning. However the repeated interjections from my resident film critic suggested a few too many issues with the storyline. The general message seemed to be – I’ve not seen so many plot holes since we watched the Alvin and The Chipmunks Road Chip Movie.

And with that the clouds have moved in. So like the current Star Wars story arc, our summer is FINISHED…

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Regardless of the weather.

It’s definitely been Social Distancing Sods Law.

It’s been a yucky winter. Storm after storm. Zero snow. Rain, rain, rain. The ground became a constant mud fest. Cold and so very grey. And don’t start me off with the constant high winds. Just not conducive to venturing out. It’s was that bad that we have not been to the coast in well over 6 months. Running became an absolute weather ordeal. Then social distancing becomes a new national obsession. We go into lockdown and guess what. The rain stops (almost completely and the ground has completely dried out). The wind dies down. The Sun decides to make a return. Perfect beach walking weather. Beautiful running conditions. Sods Law.

Unbelievably a local weather station has recoded ZERO rain in 3 weeks. This is Yorkshire, what on earth is happening. One day we even had to get the sun cream out…..

Yes no trips out and no longer runs. No social interaction. Almost complete isolation. But we are so lucky. We have a garden to help practice social distancing. Our own little world to enjoy this settled spell.

But let’s not forget that social distancing is not new here. It’s not new in many autism households. Its not new in many disabled households. It’s not new in households who have been cut adrift from society. Its not new for many single parents. It’s not new for far too many you are living alone. It’s something which happens with or without a virus. Week in week out. Year after year. Regardless of the weather. Nothing to do with Sods Law. It’s just normal life for many in our society. What is unusual is that for a brief spell, everyone gets to try it.

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First rant of the month and then the garden beach

Before anyone says anything this photo was NOT today and not 2020……

It’s a bizarre country which I live in.

A place where British war time spirit and a stiff up lip is the way to defeat this unseen enemy – well that’s what our newspapers are claiming. No I think you will find that it’s actually antibodies and vaccines that will do that. Self distancing will help dampen the curve but on its own it will not do the job.

A country which for 10 years has invested heavily in academic testing for an increasingly younger range of school kids. The only principle in UK education is meeting government targets by testing millions of kids, week after week. Test, test, test. Yet the same Government can’t see the importance of testing when it applies to a pandemic. They can’t even provide virus tests for our brave medics and front line carers. Actually the can’t even provide the appropriate protective kit to all our nurses. Suddenly we have a mad scramble for kit, tests and ventilators. It’s not as if the Government didn’t know. Three years ago a study reported to the then Government on how poorly prepared the country was for a pandemic. The Government (including many in the current cabinet) decided to bury the report.

That’s probably why the UK is soon going to have the worst pandemic mortality rate in Europe.

Deep deep sigh and divert gaze to domestic matters.

“Dad would you mind if I didn’t do any revision this week for the school tests. Not sure I’m in the right frame of mind for it.”

Given the current climate why on earth is the school doing exams. Oh I forgot – it’s government policy. Can we just give the kids a break. Especially as the tests are based on such a narrow educational range. It’s more about proving to kids what they don’t know and spotlighting their individual weaknesses. What about letting kids show what they are good at, what they do know.

“Ok Son that’s fine with me. When you feel the revision force is with you then if you want to, then do some. If it’s not then just have FUN.”

And that’s what we did. We had to abandon the planned eat some whip cream while bouncing on the trampoline competition. The pigeons who have adopted our garden have now decided to build a nest right next to the trampoline AND it now has eggs. So we opted for plan b and c. Try to make some homemade ice cream. Followed by setting up our very own beach. In the garage I found a couple of old bags of play sand. So that was emptied onto the little patio and the old kiddies paddling pool was filled with water. Shorts and suncream on. An MP3 file of seaside bird and animal sounds was played on my portable music player. Hey presto we are at the beach. Ok we need to work on the beach sounds. The sound of whale songs and walruses fighting are not that common on the Yorkshire coast – but that’s nit picking. As a safe, social distancing adventure it most certainly worked. Now I just need to rebag the sand for our next trip. Maybe it’s to a desert.

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Bee

Slightly unnerving BEEing (being) eyeballed by this woolly friend. Couldn’t work out if it was admiring my silky garden football skills or was waiting for a Rich Tea biscuit. I lived in footballing worship hope until a biscuit was handed over and the woolly one then walked off.

Not always but occasionally life balances itself out. This morning I finished my last bit of paid work before the company basically shuts down for a couple of months (maybe longer). So no money coming in. As I closed the work laptop the phone rang. It was the garage, they still can’t get the parts needed for my cars poorly braking system. They will keep trying but the repair work won’t happen much before May. That’s a bit of a result. Won’t BEE (be) using the car much at all and that’s one hefty bill kicked into the long grass.

Talking about long grass. Last year someone gave me a wild bee hotel. The poor souls are struggling here so I thought I would do my bit. A quiet corner in the garden has been allowed to go wild. To be factually correct that should have been described as – I have let a part of the badly overgrown garden to go even wilder than the rest of the mess…

Anyway in the wild corner I have carefully located the bee hotel. Still no little takers after many months. I remember my Dad telling me that the first bee you see in spring is probably looking for a new home. He was a stubborn Yorkshireman so I never dared to question his apicultural knowledge. So our first bee of the season arrived.

A bee clearly fixated on trying to squeeze under the back door and get into our house. I tried showing the bee the currently vacant and palatial hotel. As hard as I pointed at the hotel’s front door, the bee just ignored me. Even a little honey failed to entice the bee. UnBEElievable (Unbelievable)

My question to you. What is the bee phrase for ‘Sorry pal your not coming in here. This thing I’m pointing at is your free of charge new house. I will even feed you each day.”

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Brakes

A stream about 5 miles from our little bungalow. Near the boundary of my current world.

It’s funny as a kid I always thought that my world was a small place. We didn’t have much money so holidays would tend to be just day trips on the train to places like Whitby and Scarborough. If we we’re lucky a school trip would take us maybe 50 miles in land. Dad had a car but it was only used sparingly – just for getting him to work. I remember watching exotic places on the TV and thinking one day I want to see them. I looked at books about mountains and so wanted to see The Eiger, The Matterhorn, K2 and Everest. I always thought that as I got older I would travel more. My world would grow and the world would shrink.

For a time it did workout that way and yes I did get to see The Eiger and The Matterhorn. I visited parts of Europe. I even got to see South Africa.

Then the world shifted again. Autism. Bereavement. Money concerns.

Now I find my world rapidly shrinking again and the world growing ever larger. Increasingly son sees comfort in his own little world. Our house, garden and the landscapes that immediately surround him. Longer travel is so difficult for him. It has to be mapped out and carefully controlled. That’s before we factor in the limiting factors of travel as a single parent and money constraints. My world is shrinking again. Even work has to operate within these constraints. My world has shrunk. One of the few bridges into the wider world is the occasional concert. These still work for our son.

We are due to travel to see The Who play in a couple of weeks. We will have to travel by car as public transport here is minimal and stops by evening. Regardless of its availability son struggles with buses, trains and planes. These are likely to induce panic attacks. So we travel everywhere on foot or by car.

Two weeks ago the car was in for a service. They found problems with the brakes which needed some parts to be replaced. The garage said I was ok to drive it for a couple of weeks until the garage could fix it. So this Monday was supposed to be the repair day. The garage phoned today to apologise. They we’re going to have to cancel the repair for a few weeks. They just can’t get the parts. The Parts Suppliers are out of stock and are waiting for new items to arrive from China. The garage is a national chain and all the branches are out of these parts. Apparently all the other rival garages in the area are in the same boat. So the repair is on hold. The suppliers are hoping to have new stock arrive soon but that may not be until April. So I’ve been told to try and really limit the car use until the parts turn up. My world shrinks further.

So in a mirror image of my childhood – the car will only be used sparingly. Just for the occasional short distance work trip and the school runs. A long distance concert trip is probably not a practical option.

My world has shrunk again but as ever we will make the best of it. Think our carbon footprint. Think more fun at home. Enjoy what we have on our doorstep.

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Deadpool

Sleeping feels a bit like a Jenga tower these days. Takes a lot of effort to get it going then it’s so precarious that the slightest disturbance and it’s over. Most days the effort seems wasted given the time the tower actually stands. So last night the same pre sleep ritual then all too quickly a random dream wakes me. That’s it can’t sleep. So at 4am I’m watching Deadpool 2. Not sure if It was the sleep deprivation but I found the movie absolutely hysterical. So by the time son was up I was ready to rumble.

I certainly have to rumble. The first signs appearing of son becoming anxious for the upcoming week and the return to the big bad world. I’ve given him the option of immediately pulling him from school. But he thinks he should give it some more time, even if it’s just for a few more weeks. He wants to see what school does with the class settings. Does he finally move up sets or is he again consigned to the bottom set. I must admit I’ve given up hope in the mainstream school system. It’s not improving any time soon. Kids like our son are going to continue to be labelled an inconvenience and consigned to the educational bin. I will continue to try and work with the teachers but movement at this late stage is unlikely. Homeschooling looks like the only positive call. So yes things will be really tight. Yes I’m going to have to watch out that I don’t burn myself out. But for me the homeschooling time has arrived. But it’s son’s education so it’s his call. So on Monday school starts again. So already the anxiety levels are starting to build.

So we need to rumble harder. Need to work harder on the fun. The smiles and laughs will be just that little bit harder to produce. So Project Fun needs to go into overdrive. Today we try a new game. The Trampoline Water Challenge. Let’s try to bounce while holding various containers containing cold water. Bouncing with a full washing bowl will be the ultimate challenge. It’s a challenge which is designed to get you wet. Very wet. If unbelievably I don’t end up drenched then it may call for a headfirst dive into the farmers field rain lake. Whatever it takes today.

If Deadpool wasn’t so naughty then this would be a really funny movie to watch. If you took out the unsuitable bits then I guess the running time would be down to seconds. So it’s a time to either watch a series of Red Dwarf or Black Adder. Or maybe it’s time to revisit Monty Python and the Holy Grail. All guaranteed to make him laugh and LAUGHTER is the only currency we are dealing in today.

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Say goodbye

This month we have already said goodbye to a couple of legends. The brilliant drummer Neil The Professor Peart and the wonderfully funny Terry Jones. In honour of Terry let’s all shout “He’s not the messiah, he’s just a very naughty boy”.

It’s so sad when we lose people we have grown to look up to and respect. But that’s the cycle of life. It’s inevitable that we have to say goodbye to people we admire, care for and love. Some burn bright and leave us far too soon. If anything the last few years have taught me it is that yes we shed tears but it’s so important to try and hold onto those precious memories.

Britain’s favourite mammal are in trouble. Big trouble. From 36 million in the 1950s to less than 1 million now. The last twenty years alone has seen a 50% drop in numbers.

Photo from the RSPCA

I remember hedgehogs being a common site. Every night we would see at least one hedgehog scurrying across the lawn. Things have changed. I can’t remember the last time I saw one in the wild. At least two or three years.

So it was time for local action. Today an hour was spent in the garden trying to make it more hedgehog friendly.

  • To try an link habitats some hedgehog highways have been built into the garden fences. 13cm wide fence holes needed to be made to allow the hedgehogs to move between gardens but this would have been equally attractive to Captain Chaos. Luckily work had some old piping which was about the right size. So hedgehog tunnels are now in place. Hopefully good for hedgehogs but not good for dogs.
  • The compost heap has been made open air. One is the sides has been removed.
  • A log pile has been built in one corner of the garden.
  • The log pile is now in a corner which will become the wild corner. I will let the grass grow and when it becomes warmer a wild flowers will be planted.
  • The random hedgehog dome house which has sat in the garage for years is now under a hedge near the compost heap and a hedgehog tunnel.
  • Each night a bowl of cat food and water will be put out. Important to remember to change and clean it every night. A bit of cat food will mean less for our big boy cat. This is good as he really needs to go on a diet.

It’s sad to say goodbye. Some goodbyes are inevitable and outside of our control. But some aren’t. Still time to save old friends like our hedgehogs.

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It’s such a hard life

Time for some random words.

Subservient Tudor Expect Discipline Chaperone Accused Suspicious Breadwinner Complicated Stereotypical Shakespeare Elizabethan

A few beauties from this weeks school spelling test. Is this really a level playing field for kids with dyslexia. I remember joking that in a few months he will have to learn the spellings of dinosaurs. Dinosaurs like Micropachycephalosaurus. Well the way these spellings are going I’m not ruling it out now.

A bit of a test day today for me. Trying to work from home completing jobs usual done at the work base. Reassuringly it went well. So well that I managed to complete about an hour ahead of schedule. With an empty work list I managed to go for a run. A chilly and very windy run. It was also quite a ‘hurty’ one. I was convinced that my knee and foot were playing up. At the end the real reason became apparent. Thankfully not my body. The shoe soles had worn completely through. Might as well have just run in my socks. Captain Chaos was in raptures. Two old trainers and a pair of running socks to chew and bury. After a frantic hour of digging and re-digging the poor chap was tired out. He needed a few quiet moments with his teddy.

It’s such a hard life….

Maybe I don’t need to replace my running shoes. If and when homeschooling kicks off my opportunities to go out running will be severely curtailed. May need to think about looking out for a second hand treadmill. When Son caught me looking at eBay he added to the shopping list. So on top of a treadmill apparently we need a second hand cinema sized TV, a slush puppy machine and a chef. Maybe we could find a chef who specialises in funny coloured iced drinks. With that thought swirling in my head it was time to take The Cap for his walk. Luckily I do have an old pair of trainers which still have some tread. But strangely I couldn’t find them in the shoe rack. Oh hang on. Worryingly I found the sole-less running shoes next to the dog basket. So exactly which shoes did he bury then. Bugger. Yes in a hole in the garden are my one usable pair of trainers.

It’s such a hard life….

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Breaking his body

Running past this monumental feels like a daily privilege. Must admit running anywhere these days is a privilege.

The last two years brought injury after injury. Clearly doing the same thing over and over again was not working. Finally the penny dropped. But it did take the doctor warning me that actually I might have to PERMANENTLY STOP running and working out for common sense to finally take hold. Change was needed. A new exercise approach was put in place. Alternate Home CrossFit days with a day of running or cycling. No same exercise on two consecutive days. Sunday is a gentle exercise bike session and yoga. No pre exercise stretching warmup. If an exercise is causing the body pain stop it for a few days. If the exercise hurts again stop for a few weeks. If it hurts again then ditch the exercise. THATS IT. So far it’s working (touch wood). Four months of uninterrupted, mostly pain free exercise.

Change worked.

Our sons Aspergers journey continues. It’s a journey without a map. Who knows where it may lead. But I do have a gut feeling. The health professionals have talked about the possibility of our son becoming increasingly ill at ease with social interactions. Although from the age of 5 he has always struggled with this 2019 certainly has seen this intensify. Increasingly he just wants to spend his time in the safety of his home realm.

Although he seeks isolation from the outside world he struggles to be on his own. In our one parent, one child, mad pets kinda world that in practice means he struggles to be without me. With the advice from his health experts we have tried to gradually change things up to help with this. But it hasn’t worked. We tried things like him staying on his own at the house while I took the dog for a quick walk. Even though I would tell him the route. Stay in the village. Talk to him on the phone while I walked. The brief periods of solitude would throw him into a nervous meltdown. Any longer than 10 minutes and he would have to come looking for me. The only thing it achieved was to spike his anxiety levels. We decided to abandon the changes.

Whether this is Aspergers or whether it’s to do with losing his mum or both – who knows. But currently as a single parent I have to make the necessary adjustments to work around these constraints. One of which is that when he’s not at school my exercise programme is tied to the house or garden. Hence that rather puzzled look I got on Saturday. A group of walkers giving this rather odd looking chap a puzzled look. Even standing to watch for a few seconds. In the pouring cold rain why is a man in his garden dressed in shirts and a T-shirt jumping on and off an exercise bike to throw a 20lb kettlebell about.

It’s because I’m a single parent who can’t leave the house who has found a way to keep himself fit while not breaking his body. At least allow me that.