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No one ever asks

It’s been a little wet over the last few days. The sheep have got themselves a couple of paddling pools. We might give those a miss. I guess no one will be to upset about that.

I have a questionnaire to fill out about school and it’s services. Looking at lots of areas.

Teaching quality, subject material, classroom facilities, school meals, communication, discipline, bullying, uniform, school transport, sports facilities, IT, websites, outside clubs…..

Lots and lots of areas. So many questions.

What’s revealing is not the questions being asked but those which are not asked. Ones which are never asked. Questions about Autism and Aspergers support. Dyslexia support. Learning Disability support.

No one ever asks. It’s not just our school. It’s across the board. No one ever asks. We live in a world driven by performance measures and league tables. Yet no one ever asks….

I wonder why that is.

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Worn out

It’s a cold, bleak start to the day. Kind of feels like a black and white photo is the way to go.

I was thinking about how a break would be most welcome. Especially today.

We all need a break every so often. Either a change. Or a time to relax. Or a chance to really let the hair down. A chance to experience new lands. Or just a time to breathe.

Don’t get me wrong. I know that I am so fortunate with my life. Far too many have so little and are in such dark place. But today I’m feeling just a little worn out. Tired. Thinking back to my last break back in 2015. A lots happened since then. Some good but some really bad. Since 2016 it’s been single Aspergers parenting, fighting the system for our son and trying to eke out an income to pay the bills. Feels like it’s been non stop. A few concerts with Hawklad and taking him to see the occasional sport event. A few walks and up to this year, trail runs. So yes things to be thankful for. But…

But today I just feel worn out. In need of a break. Even just a night away from the house. A different bed. It’s been over 5 years since I’ve done that. But deep down I know that’s not happening any time soon. Asperger parenting is something that you can just can’t drop. Certainly not for a few more years. Maybe longer. So it’s about finding other ways to feel less worn out. Exploiting the options that are open to me and also being thankful for what I have. There are such beautiful things in my life.

We can do this.

Posted on by bereavedandbeingasingleparent · 58 Comments

What have I forgotten

This old tree has seen some life. A few too many lightning strikes means it’s nowhere near the size it was a few years back. It’s seen a fair few Christmases. One more to add to the list today.

Since the world changed a few years back I have made a point of buying myself a present for Christmas . I don’t know why. Just kind of started. It’s not a big present. Just something. It feels like a connection with a much different world.

Well guess what. Guess who forgot to buy someone something. That gave me a chuckle.

Then a thought struck me. What about that tree. Our tree. When was the last time it was remembered at this time. Well it was today. I marched across and gave it a hug.

Happy Christmas Tree.

Posted on by bereavedandbeingasingleparent · 66 Comments

Lines

Remind me not to fly my kite here.

It’s Christmas. Hawklad is happy. Very happy with his presents so far. Amazed that his Dad hasn’t messed up yet. Well apart from his new FIFA computer game seems to come wrapped with a free pair of scissors. I wondered where they disappeared to. Thankfully he has given me them back.

It’s an odd house these days. Probably something to do with it being completely MALE. Two humans, a dog, a cat, gerbils – all with an X and Y chromosome. That explains so much.

Maybe it explains one strange Christmas tradition. Hawklad has had that Santa conversation. So why do we still put out mince pies and a drink for Santa. A large pile of carrots for the reindeer’s. We even still draw lines on bits of paper pointing the big red fella to the location of the feast.

Maybe it’s time for someone to have that Santa conversation with ME…..

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White Christmas

Well not quite…..

Can you spot someone practising to be either Cyclops from the X-Men or Vision from The Avengers.

This was 7.20pm on Christmas Eve. It’s as white as it’s going to get. Thought I had better take a photo while it’s at its DEEPEST…..

So as we fight to survive this mega blizzard I want to send you warm winter wishes your way. ❤️

Posted on by bereavedandbeingasingleparent · 50 Comments

Plague Island

So that’s the shopping done for the week. We are now officially closed for Christmas. Time to get behind our fence and shut the world out for 7 days. Or longer if we are plunged into a Tier 4 lockdown (more of the country will go that way on Boxing Day apparently).

So it’s Christmas Eve on Plague Island. It’s not entirely sure if its a virus related Plague or a Plague of self absorbed, imbecilic, on the take, cretins apparently running this country.

We have enough food and drink to last us weeks. We have enough options to cobble together a couple of special holiday meals for two. Certainly not Plan A or B food options, but the C menu will be just fine. Actually with my Thanos like cooking skills at the click of the fingers any food taste can be suddenly turned to dust. So it really doesn’t matter in the end.

A few days of being an island cut adrift from the world has started to take its toll. Hardly any fresh fruit or veg in the store. The stuff which is still there is getting snapped up instantly. No chocolate ice cream. I will say that again. No chocolate ice cream. Oh the humanity….

But in the scheme of things. We are so fortunate. Too many are not so lucky.

So we are lucky to be on the right side of our fence. Hawklad is definitely not on Santa’s naughty list. Me – I’m not so sure. Yes the weather is horrible but actually if you close your eyes, the sun will still shine.

Yes it’s alright in this side of the fence, living on Plague Island.

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Cinema

It’s that time of year. A definite feel to the movies we have watched. Can you see the theme.

Scrooged

Home Alone 1, 2, 3, 5

The Grinch

A Christmas Carol

Muppets Christmas Carol

The Santa Clause 1,2,3

Elf

National Lampoons Christmas Vacation

The Polar Express.

For me I just can’t quite catch the connection. Sure there must be one if I look hard enough.

One of the things that feels amiss this most odd year (that doesn’t work as 2020 is even) is the cinema experience. Before Hawklad we would always have a Christmas trip to the pictures (as my mum would have said). A meal before hand and then a movie. Such a lovely experience. So many wonderful memories.

Taking my mum to see The Horse Whisperer on Boxing Day. She hadn’t been to the pictures in 40 years. She was most puzzled not to watch the Pathe News segment before the movie. She refused to get up at the end and waited until the credits played through. Apparently she was waiting for the National Anthem to be played…

Trips with my partner to see huge blockbusters on Christmas Eve like the Lord of the Rings Movies. Then coming out in time to sing carols in the city centre.

Even after the world changed Hawklad and I kept the tradition going. A changed Aspergers tradition. We would take in the first, early morning screenings of movies like Jumanji and the Rise of Skywalker. Popcorn at 8am works on so many levels. Then we would go and get him his favourite takeout. All before midday.

But this year it’s no cinema. Any trip is just so out of reach for Hawklad and his anxieties. The world has changed. Even the prospect of Wonder Woman and Black Widow epics won’t overcome those fears. Maybe the trips to the Pictures have stopped for good. We will just have to see what the future holds but life goes on. It’s time to recreate that Christmas tradition at home. So we will pick a movie. A good movie. Set the dvd off at 8am. Microwaved popcorn in plentiful supply. The Christmas Cinema tradition continues.

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Fence

Which side of the fence is best?

I had a call with Hawklads new health specialist. She will (pesky pandemic dependent) come out to see him for the first time in January. Continuity is so important for someone on the spectrum. It takes time to earn trust and confidence. Those bridges when they come down are slow to be rebuilt. Having had a wonderful health lead for three years we are now in a spell of meet one, quickly see one disappear. Fingers crossed this time.

It’s clear what the medical opinion still is. Any meaningful progress is extremely unlikely until this virus is well under control. When it’s clear that the vaccine which has been administered works effectively and does protect. Only then can any progress be realistically contemplated. Prepare to bunker down for 2021. 2022 might be the first gateway to a more open life for our little family. I also have to accept the risk that progress does not happen for Hawklad. Bridges are not built. This is the new world.

I remain clear. It’s Hawklads life. He makes the call. I will support which ever route he goes down.

So will he return to school in January? Most likely NO. Will he make it back before the end of the school year in July. Probably NO. Will he start the new school year in September. Definitely no guarantee.

It feels like we are in one side of a fence. The side that feels limited but safe. The other side of the fence opens up the world, broadens his horizons but…….

Posted on by bereavedandbeingasingleparent · 52 Comments

Say that again

Say that again…..

I so need to have a notebook which I carry around in my pocket at all times. Every time something is mentioned that has the slightest chance of becoming important then I could write it down. A permanent record to prompt my sieve like memory and stop those say that again moments.

Had a few too many of those over the last few days.

“Dad did you get the glazed cherries for our Christmas Eve treat?”

Say that again!!!!

“Dad did you buy the Home Alone 4 dvd for our Christmas Day movie?”

Say that again!!!!

“Dad did you phone school before they broke up to tell them that the Teams password isn’t working?”

Say that again!!!!

“Dad did you remember to make a donation to the school charity appeal last Thursday?”

Say that again!!!!

“Dad did you phone up XXXXXXX mum to get hold of their address so we can send them a card?”

Say that again!!!!

“Dad you haven’t forgotten that we are having Salmon to eat on Christmas Eve?”

Say that again!!!!

“Have we got the sausage rolls, French sticks, onion rings, pineapple rings, Doritos and mango chutney in for our Christmas Eve buffet?”

Say that again!!!!

“Dad did you remember that you said that you would send a copy of the family tree to Auntie Xxxx”

Say that again!!!!

“Dad did you remember to take the bread out of the oven. It’s been in there for most of the day and it’s looking a bit burnt.

Say that again!!!!

“Mr Xxxxxxxxx did you remember to submit form 5a. It needs to be received by the end of this month or the service will stop.

Say that again!!!!

“Ok you will need to give your dog these nasal sprays at least once a day. Will your dog sit still to let you do that.”

Say that again!!!!