You

This was a year ago. I stopped on one of my long runs to take this photo. It would have been just after 9am and Hawklad would have been in school. After the run was finished I would then drag my muddy body to the supermarket. Definitely seems like an eternity ago. I wonder when I will go running here again. Probably not in 2020.

We all need those things in life to hold on to. A person, a friendship, a love, faith, a hobby, a destination. It will be different for everyone. Maybe it’s one thing. Maybe it’s a range of things. But we do need these in our worlds. For our health and wellbeing. I remember listening to a politician who I really respected. He talked about his love of hill walking. How walking had become such an important part of his life. But he was sad because due to work demands he had been forced to stop something he loved so much. Tragically it didn’t work out for him and his life was cut short. We do need to hold onto these things which lift us up. We all need to find the time. Listen to what our inner selves are telling us and needing from us. Hold onto and treasure those things and people we love.

So running has gone. I’ve found better more enriching things to focus and care for. But I realise that I do need a fitness activity to replace running. Ultimately the exercise bike is monumentally boring. So at present running has been replaced with yoga. Briefly stopping to take a photo has been replaced with failing to get anywhere near holding a handstand. Happy Days. I feel another lego yoga post coming on. You have been warned.

Joking to one side, please remember to find the time for YOU. You need that.

2020 the year music stopped

2020 has been some year. Is it really only August. Time seems to have so slowed down. Many things have just stopped. Live Music most definitely.

Looking back to the start of the year it all seemed a bit different. We were looking forward to a fantastic concert year. I had worked my socks off and secured a whole list of discounted tickets. It was on paper a great year of gigs and some top bands.

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The Who

Whitesnake

Foreigner

Europe

Aerosmith

Wayward Sons

Ozzy

Saxon

Deep Purple

Blue Oyster Cult

Hollywood Vampires

Killing Joke

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On paper that’s how it will remain for this year. All cancelled some pushed into 2021. So yes something potentially to look forward to. BUT…….

Has the concert zone closed for us. It was always a delicate balance for Hawklad. His enjoyment of the music, the spectacle, a chance to see the bands he loves to listen to. Balanced against his social anxieties. His fears of strangers and crowds. The positives just outweighing the negatives. As a result he could get himself to concerts. Yes it would need his hoody pulled up until the lights went out. But he was ok doing that as he felt that rock crowds were easy going and accepting of all kinds of looks. This was confirmed on our first concert trip. Dad wore the most embarrassing T-shirt he could find. Hawklad was reassured to see that I didn’t get one single strange look and was never asked to leave.

But now it’s a different world. Hawklad definitely sees it differently. Heightened fears and anxieties. The ‘is it ok to attend concerts’ calculation he would perform has got a different answer now. The negatives outweigh the positives. I know the medical advice is that this new world view could become a semi permanent switch in his Aspergers. A dynamic which won’t automatically switch off when the pandemic finally goes. It may take years. May never switch back. We just don’t know.

So maybe that’s it for our concerts. If so then it’s kinda fitting that three of the last bands he got to see just happened to be his favourites. Alter Bridge, Kiss and Alice Cooper.

So let’s enjoy the memories. It might be the year Live Music stopped for us but it doesn’t mean that music has stopped. Most certainly not.

Line them up

Well the nurse counsellor did arrive. At the height of the storm. Due to working restrictions she was not allowed in the house. So it was plan b. Move my car next to the counsellor’s car. Windows down and you have a mobile meeting facility. The session went well. The counsellor seems really good. It’s a start. Start of a long road. But a start it is.

He will now get appointments every two weeks now. Let’s hope progress can be made. The counsellor is also going to write to the school to confirm that he is under health care at present and is not medically cleared to return. Hawklad has come to the conclusion that he just can’t go back to school at present. Even with professional help now, this could take many months before school might become a possibility for him. Until he can feel be reasonably comfortable being around people and ok to touch surfaces then school is but a pipe dream. Will he ever go back – just don’t know.

The Deputy Chief Medical Officer yesterday said that schools were perfectly safe. Apparently children are more at risk from road accidents than from catching the virus. I can’t think of many more insensitive ways of making a point – that’s going to really hurt those families who have lost loved ones on the road. I’m also not entirely reassured by her words. I remember a few other of her words over the last few months

  • The Government response to the pandemic has been exemplary……
  • The UK pandemic approach had been very successful……
  • Large Public Gatherings and Sporting events are perfectly safe, no need to stop attending them. That was at a time Europe had banned those and a few days later we did the same. She even encouraged people to attend the countries largest horse racing event just a couple of days before the country went into lockdown – the infection spread from that event has been scary.
  • People should be more adult when they discussed PPE shortages. It wasn’t such a big issue for healthcare and care workers…..
  • The UK didn’t need to test, test, test for the virus as we were a First World Country.

We all want to get schools open. But it has to be done correctly. Just grouping kids into giant year group bubbles then squeezing them back into cramped classrooms with at least 30 other people isn’t good enough. Asking kids to wear masks on buses, sometimes in corridors and not in classrooms is just a mess. Not exploiting online education to ease some of the space issues is a massive mistake. Only offering testing after the virus has been encountered just repeats the mistakes we have repeatedly made as a country. We’ve had months to get this school return right.

I really feel for those parents and children who are returning to schools. For some it is a easy decision and the return can’t come quick enough. For others it is not easy. For those with underlying health conditions it is a calculated risk. For us that decision has probably been kicked into touch for a while longer.

Don’t you just love 2020.

Perfect timing

A brief respite between storms. It’s summer you know.

As the rain from the storm kicks in the tumble dryer decides to go on strike. Perfectly timed as I have a load of bedding and clothes to dry – perfect timing. Suppose I could just go outside and throw them in the air and see what the jet stream will do to them. Central Europe – If you see some line green cycle shorts flying through the air, can I have them back please….

Then a few moments later I went outside to put the plastic garden chairs in a safe place – only to see one of the chairs flying tumbling over the fence and heading into the farmer’s field. Perfect timing. At least I know why we will be one chair down. Again Central Europe can you look out for a slightly dog chewed item of furniture heading at some rate in your general direction.

Don’t you love perfect timing.

The nurse counsellor garden appointment to see Hawklad has been rebooked for this week. To start the process of examining his anxieties which are effecting his life and preventing him from going into the wider world. The last visit was a perfect summers days but the nurse had to cancel at the last minute due to illness.

Well that’s the plan.

Looking at the weather forecast the garden appointment is scheduled to happen during Storm Francis. Expecting torrential rain and 70mph winds. Lovely garden weather – especially as we are perched on a hill with hardly any protection from the elements. The nurse is also not allowed to come into the house due to a current working restrictions. So I’ve got no idea what will happen.

Perfect timing.

School

The rain had cleared for a few moments. But some things are still unclear.

Hawklad is still to decide if he will go back to school on the 14th September. With all his anxieties any return will be so very tough for him. Maybe too tough. But ultimately it’s his call. I’ve let school know about the issues but they don’t seem to be proposing any accommodations for him. But I guess there are a few weeks to go.

The other thing I have raised is what happens if he is not able to return. Still registered with school but unable to attend classes. How would he keep up with the course work. Unfortunately the really good school online education system will be switched off. Switched off to encourage parents to send kids into school. The initial dialogue with the authorities seem to be – well if he doesn’t go back then tough – that’s your call. Your responsibility to arrange education until he returns to the classroom. Thats the approach being set by the government. Online school tuition will only be switched back on if the school is forced to close again.

So many things to think about. But one clear message from the Government. Send your kid into school or you won’t be getting any help from the system. In fact schools will be expected to fine parents for keeping kids off. Could be a stormy few months.

Summer

I do like summer, especially a Yorkshire summer. Those deep blue skies. Wall to wall sunshine. Baking temperatures. Never lets us down.

“Dad it’s like being in The Mediterranean

Not sure how we survive the heat. Can’t believe our house doesn’t have air conditioning. Surely that would be more useful than damp proofing.

Have I ever been sunbathing Dad.”

A long time ago.

I can’t remember doing it.”

You did Hawklad. It was a couple of years ago. A rare hot day. You said that you wanted to try sunbathing.

Oh I remember. We put a couple of towels down on the lawn”

That’s right. We brought the iPad out and found some beach noises to play.

Yes it was just seagulls and whales

We then took some sand out from the sandpit and put it round the towels.

I went and found some of my old seashells and scattered them over the sand. Then we built a small sandcastle”

You brought out a few seaside animal toys like sharks. We put our shorts on.

The shades went on and we went toplessssssss”

That’s right Hawklad. You then laid down on the towel and then before I had a chance to get down on my towel you shouted. I’M BORED WITH THIS NOW CAN WE GO AND WATCH A MOVIE. That was it. You sunbathed for about 5 seconds.

That long. Dad maybe you should get out there now. Top up your suntan.”

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The question is did Dad brave the summer weather and go topless?

Time for your daily yoga.

Don’t say I never give you new features. First there was bereavement and autism. Then came parenting. Then virtual trips to Switzerland and world exercise bike tours. Then helpful baking tips. Poking fun at the government came next. Then muppet guides.

I hear you. You want more. OK

Brace yourself people. Don your comfy shirts and brightly coloured tight leggings. It’s time for your first Yoga Guide. Today I’m going to start with transitioning into the Warrior Pose. To add to the difficulty (as I am an elite athlete) I will be doing it dressed up as a Star Wars Clone Trooper.

Find a comfortable position. That is difficult dressed up in tight plastic battle gear, so I will just fall to the ground in a heap.

Now transition into a lotus pose or as close as you can comfortably manage.

Now with the grace of a charging Bison, extend you legs while keeping your head in line with your heart which is in line with your buttocks. Brace your thighs as you transition into the warrior pose.

If you are new to yoga or are a lego figure then you will probably find that the use of support blocks will help with stability.

Now hold. Your body, legs and joints will be screaming for mercy. Remember it’s good for you. Count to 10.

Now release the hold. See how good that feels.

Look at the pure delight on my face as I realise just how good my body now feels.

So hopefully you found that most useful. Remember I am an expert so don’t expect to be as good as me straight away. Stick with it and over many months you might end up not feeling so inferior to me.

Please let me know if you would like any other yoga or fitness activity explained to you.

NAMASTE my friends.

5 things about death.

That kind of weather day. Moody, cloudy, wet, windy, cool. Five things completely associated with a Yorkshire Summer’s Day.

A few days back I did a post about five unexpected things to do with the pandemic. Well let’s do another one.

Five unexpected things I encountered during bereavement. Could do a huge list but let’s just try to pick out the five main ones.

    Just how much paperwork, leg work and phone calls you need to make in the weeks leading up to the funeral. Speaking to the hospice and hospital. Letting friends and families know. Registering the death. Trying to sort out joint bank accounts. Solicitors. Informing government agencies. Cancelling cards, subscriptions, memberships. Returning work assets. Selling a car. Pension authorities. Tax authorities. Changing things like house deeds. Changing insurance cover. Booking a funeral. Arranging the service. Inviting guests…… And on and on. This is all at a time when you are at your lowest ebb.
    Just how quickly the phone calls and visits dry up. Within weeks your suddenly alone. No more checks to see if you are ok. You’ve stopped but the world has kept turning. That’s when the mental health issues can really kick in.
    One person down and just how empty the house feels. Deathly quiet. Too many empty spaces. A very empty bed and sofa.
    Just how many times your mind plays tricks on you. Going shopping and you still buy stuff for the person you have lost. When you make meals you automatically make one for your partner. You drive back home and see your partners car in the drive – the first thought is too often – wow she’s home early today.
    Just how long the the legal side of the death can drag on. In my case the Will took well over a year to be finally signed off by the tax authorities. One bank account took two years to be finally transferred into my name. The telephone and TV accounts are still in joint names – given up trying.

I guess the message is that it’s going to take you to the depths of despair. It’s also going to be a bureaucratic nightmare. You just need to prepare yourself for the long hall. But there is stuff that helps. An empty, deathly quiet house is easily fixed by a mad puppy. If you know someone who is going through loss then why not phone them or even just send a card, especially if it’s a few months down the line – they probably really need the thought. Accept any help when it’s offered – you don’t need to do this alone. Take your time doing this – you don’t get a medal for completing as soon as possible. You need to spend time focusing on yourself, you really do.

Inside out

That’s a sky that could tell several stories in my dreams – so tempted to try them out.

Somedays I can operate perfectly well in tired mode. Then you get other days.

Woke up this morning to find that I was a zombie. I hear you ask – well what is the evidence for these bold claims. Well brace yourself, I shall tell you…..

  • In my head, I was still debating if I should get up or just rollover and go back to sleep again – I didn’t realise I was actually already out of bed,
  • The eyes were open but it felt like they were closed shut,
  • When you try to open the bedroom door but only manage in walking straight into it, TWICE….
  • Take the wrong turning to the bathroom …… yes lost in my own home,
  • Struggle to understand where the toilet has gone and apparently it has been replaced with a fridge and cooker,
  • After I realised I was actually stood in the kitchen, my journey to the bathroom was cut short as I walked painfully into the kitchen table,
  • Once in the bathroom it was thankfully largely uneventful apart from dropping the bathroom paper roll (toilet roll) into the toilet bowl,
  • Time to feed the pets. Somehow gave the dog the cat’s food. Then the bemused cat got dog rations. Dread to think what the gerbils got,
  • Made breakfast completely forgetting that I’m supposed to be on a fasting diet and not eating until the afternoon,
  • Made a herbal tea but then decided to add almond milk – not a great taste.
  • Burnt my hand on the toaster making toast I wasn’t allowed to eat,
  • Went outside to give the dog his morning constitutional. Stood in the garden and suddenly realised that I hadn’t got round to putting a shirt on yet. That was bracing and not entirely liberating,
  • Stumbling back inside to get ready for my morning workout. That seemed to go ok. Well until I started working out only to discover that my shorts were inside out and on back to front.
  • Coming back inside to make Hawklad his breakfast. Completely forgetting that I had already made in an hour ago.

So yes it’s a zombie today. It’s not easy being a zombie.

Seems like a lifetime

I accidentally stumbled across a social media post from a parent from Hawklads school. It contained a photo of a trip to the beach whichsome of the families had made last week. Clearly having great fun. It will do the kids so much good to start living again.

I was so happy for the kids and happy for the parents. They are really nice people. They deserve fun.

But the post brought a touch of sadness. Wouldn’t it have been lovely if Hawklad had been there. To be with kids his age. Enjoying himself. Enjoying being a teenager.

Actually it would have been good for me as well. The last time we went to the beach with other families was 2015. I’ve kind of forgotten what the feeling must be like. You get use to the isolated life style. It becomes all consuming. It becomes who you are. Back in 2015 I remember turning up. Watching Hawklad play with the other kids. The parents had a barbecue. We played games and sand cricket. Built sandcastles. We talked, laughed. We hugged.

But that was then. It’s 2020 now. Different world. It was a different world even before a pandemic. The last time I actually hugged someone was at my partners funeral. That’s virtually 4 years ago. It’s 5 years since we went to a meet-up with other families.

It seems like a lifetime ago.