Uncertain

Over the last few days nature has been providing its very own washing service.

Many people are doing more and more washing over the last six months. Especially hand washing. That’s certainly the case here in our little corner of the world. Since about the age of 6 son has had anxieties relating to touching unclean objects. This would result in fairly frequent hand washing exercises. Thankfully only a few seconds of soap and water was sufficient to calm the fears.

That all changed in 2016 when his mum died at a relatively young age. Suddenly the world was filled with uncertainty and unseen dangers. His hand washing rapidly spiralled out of control. It became more frequent and went on for up to a minute at a time. Thankfully he started working with a wonderful nurse counsellor who over a couple of years brought his hand washing back under control. He was taught to wash like a nurse and get it done in under 20 seconds.

Then a pandemic hit. All the reassurances, all the hard earned confidence was blown out of the water. His fears re-emerged worse than ever. Life is now an ‘avoid touching anything and hand washing’ fest. He will wash his hands several times an hour. When he starts washing, he will wash for anywhere up to 5 minutes. All without trying to touch the tap and only using elbows (usually my elbow).

Any delivery or letter has to be taken into the garage for several days of quarantine before it is opened. After I have touched the item then I need to change my clothes completely and be seen to wash my hands. If I venture out then almost full decontamination procedures have to be followed.

Welcome to 2020.

This time it feels different. More engrained. The health professionals agree. All we can do is try to manage the situation until he sees that the pandemic is under control. A vaccine works and he has had it. But even then there are no guarantees. His fears and anxieties may never truly fade. Maybe they will but only until the next killer bug emerges. The future is uncertain. It is uncertain for many.

Changes

Definitely it’s a time of change. The season of change. Yesterday was T-shirt and shorts. Today is wet, windy and chilly. 50F probably means the T-shirt season has gone and it’s time for woolly jumpers. Ice Cream replaced with Hot Chocolate.

It’s that time of year.

Four years ago I would have been sat at home looking at the ‘Sincere Condolences’ cards on the mantelpiece. It was a couple of days after my partners funeral. Life was looking bleak. But as the years pass this time of year has increasingly felt like a time of personal change. The end of a period which marked the passing of my partner and mum. A time of sadness moving to thoughts of preparing for winter and all that entails. Thoughts of loss replaced by thoughts of short days and long nights. This year is complicated with our ongoing lockdown which is likely to stretch through the entire cold months. So yes this period of change feels different . Definite change but what? In previous years the next few months brought challenges but also things to look forward to. Concerts, Football Matches, Firework displays, Halloween parties, family meet-ups and meals, Christmas Markets, crisp winter walks and runs. This year these are all none starters. Could that tip the balance of the change. Only time will tell but the change is not yet set in stone. It can still be a positive period but it will need much work.

D

Tomatoes

Sometimes it’s the little things….

I’ve just started my fifth year on my grief journey. A journey I would must definitely would rather had not started but now I’m on it, well I might as well make the best of it. And that’s what I am trying to do. For several years it was a nightmare. Just awful. But over time things have slowly moved on. Now it’s definitely good weeks and bad days.

I still get so many reminders of the process I am going through. Many of those are repeated experiences but every so often I still find new reminders.

I was checking the garden for things I could harvest for tonight’s meal and I came across these small tomatoes. Then a thought struck me. There was a time when this was not something I would do. Yes I would grow the tomato plants but that was it. My partner loved tomatoes. She would go out every day I see what could be picked and eaten right there and then. Those days have gone and now the ripe fruit sits and waits for me. That thought made me sad. But life has to go on. Hawklad would like a few fresh tomatoes on his plate. He currently doesn’t feel comfortable touching items outside so it’s down to me. Life goes on. Pick some tomatoes, think of my partner then it’s time to get on with living. Time to focus on the here and now. Find happiness in the world around me. It is most definitely there.

Pointing

One of the advantages of exercising first thing in the morning is once I’ve finished I get a chance to enjoy the view. It always amazes me how damp our ground can get when we have had no rain for days.

Clearly it’s very easy to feel damp. The weather can cause such sudden changes. It like life and the soul.

I was putting together a post for tomorrow. A Swiss Sunday post. Looking through some photos. Then I came across one. Looks like one of those family photos. I’ve cropped this one down severely. The photo is my partner sitting next to our son on a bench.

How had I missed this photo for so many years. It’s from 2015 and our last trip to Switzerland. The last day of the trip. My partner was not very well and on a lot of medication. We didn’t know how ill she was. The doctors didn’t. Exactly one year later she was in a hospice and she was gone a few days later.

Finding this photo shook me in two ways.

Firstly this might be our very last family photo. The last photo of Hawklad with his mum. Don’t think there was another photo with my partner in. I had never thought about that . Never thought about the last photo. Well this is probably it.

Then there is one more thing about this photo. A completely forgotten memory. It’s what my partner is pointing at. I think she knew what was on the horizon. That afternoon we randomly seemed to get onto the subject of where she would like her ashes scattered. She is pointing at one of the places . A rocky outcrop overlooking a beautiful lake. It wasn’t a serious conversation. Our son helpfully suggesting some interesting places to consider. I didn’t take it seriously. We surely had many years to go. Finding this photo has really shaken me. As I say I had forgotten about the photo. I didn’t know she was actually pointing at where she wanted her ashes scattering.

I really don’t know what to say.

One thing is that it’s a beautiful location.

I wasn’t sure about posting this at all. But what did convince me was one thought. You just don’t know what is around the corner. Don’t assume you have time. If you have dreams to live, don’t wait, try to do them now.

5 things about death.

That kind of weather day. Moody, cloudy, wet, windy, cool. Five things completely associated with a Yorkshire Summer’s Day.

A few days back I did a post about five unexpected things to do with the pandemic. Well let’s do another one.

Five unexpected things I encountered during bereavement. Could do a huge list but let’s just try to pick out the five main ones.

    Just how much paperwork, leg work and phone calls you need to make in the weeks leading up to the funeral. Speaking to the hospice and hospital. Letting friends and families know. Registering the death. Trying to sort out joint bank accounts. Solicitors. Informing government agencies. Cancelling cards, subscriptions, memberships. Returning work assets. Selling a car. Pension authorities. Tax authorities. Changing things like house deeds. Changing insurance cover. Booking a funeral. Arranging the service. Inviting guests…… And on and on. This is all at a time when you are at your lowest ebb.
    Just how quickly the phone calls and visits dry up. Within weeks your suddenly alone. No more checks to see if you are ok. You’ve stopped but the world has kept turning. That’s when the mental health issues can really kick in.
    One person down and just how empty the house feels. Deathly quiet. Too many empty spaces. A very empty bed and sofa.
    Just how many times your mind plays tricks on you. Going shopping and you still buy stuff for the person you have lost. When you make meals you automatically make one for your partner. You drive back home and see your partners car in the drive – the first thought is too often – wow she’s home early today.
    Just how long the the legal side of the death can drag on. In my case the Will took well over a year to be finally signed off by the tax authorities. One bank account took two years to be finally transferred into my name. The telephone and TV accounts are still in joint names – given up trying.

I guess the message is that it’s going to take you to the depths of despair. It’s also going to be a bureaucratic nightmare. You just need to prepare yourself for the long hall. But there is stuff that helps. An empty, deathly quiet house is easily fixed by a mad puppy. If you know someone who is going through loss then why not phone them or even just send a card, especially if it’s a few months down the line – they probably really need the thought. Accept any help when it’s offered – you don’t need to do this alone. Take your time doing this – you don’t get a medal for completing as soon as possible. You need to spend time focusing on yourself, you really do.

Ebb

Sunsets just happen. Nothing we can do to influence them. Maybe move to a better position to saviour them.

Loss can come from a range of sources. External factors. From within. The loss of someone special. The loss of something so vital to us. So many potential causes. And so many different roads to travel. Each grief journey is unique.

I’m on my own unique road which I must travel. I’ve come to realise three vital things about my own journey

  • It is possible for me to LIVE AGAIN,
  • It’s just as ok to LAUGH AND LOVE as it is to WEEP AND BE SAD,
  • I’m not alone on this journey.

And one more inevitable fact. Grief is like the tides and the passing of the day. I can’t fight them, I can’t stop them. When they happen I’ve just got to let them wash over me. Experience them. Knowing that they will eventually ebb away.

Take care.

Doubts

Much needed colour on a very grey and damp start to the day.

Some days are just greyer than others. Yes still smiles. Somethings just don’t fail. But then you come up to the surface again and it’s still grey. Crack on with stuff until you can immerse yourself in the good stuff again. Up and down. Swings and roundabouts.

Might have said that before. Sounds familiar. Sounds a bit like the lines ‘I’m going on a diet’ and ‘I’m going to have an early night’.

Another thing I’ve said over the last few hours – a one day heat wave is due on a Friday. Every time I look excitedly at the forecast, it just gets warmer. Now it’s supposed to be 29C (84F). That’s really hot for Yorkshire. Now I wonder what the reality will actually be. Let’s show you the current weather.

Wet, windy and definitely not warm…. Less than 24 hours until we are supposed to be hot then. Doubts definitely building.

I read some haunting words last night that brought tears. A really good person having so much to deal with in life. Honesty about the pain and sadness suffered. Yet unbroken with so much spirit, heart and love. Definitely made me think about that person and what a symbol of hope they represent. It also made me think about my life. Its too easy for me to take so many things for granted. I’ve been a bit up and down recently. A few too many down moments. Far too many doubts. Yet I have so much to smile about. Things which I far too easily take for granted. That needs to change. I’m not saying it’s going to transform me into a constantly smiling creature but maybe it will make me more balanced and honest with myself. I might believe my life is tough but looking at others, it really isn’t that bad at all. I’ve been so fortunate in many areas. I need to remember that and be more mindful of what others are dealing with. I’ve had opportunities which have been cruelly denied to others.

So it’s time to be much more thankful for what I have.

It’s a good life for me and actually it’s frequently a wonderful life.

Heartfelt songs

Roman berries

Small and a beautiful berry. Not great to taste raw but apparently you can make great marmalade from them. I will leave them for the birds.

These 6 weeks tend to be tough for me. Your probably bored of me saying this but here I go again – me, me, me – in 2016 I lost my mum at the end of July, the week after the funeral I found out that my partner was dying and she died at the end of 6 week period.

Since then, this part of the year is tough. Best not make it any tougher.

I love music. It’s always been a special part of my life. Some would question my musical taste. I do like a bit of Leonard Cohen. Partial to a bit of classical music. Enjoy traditional Scottish music. But mainly it’s Rock. Often heavy Rock. Even some Mongolian Metal. But during these 6 weeks I have to be careful. It’s a fine line between smiles and tears. Let’s not have too many tears. With me music has the power to send me both ways. So for the next few weeks it’s a filtered playlist. No sad songs. Absolutely no sad songs. Zero heartfelt songs. No songs about death, dying young and lost love. Queens – ‘Who wants to live forever’ is just a big fat NO. The soundtrack to ‘Love Story’ is an even bigger, fatter NO. Don’t even start me on Terry Jacks – ‘Seasons in the sun’.

So it’s time for those songs about dragons, monsters, cars, highways, parties, card games, fun and high spirits. Yes love sounds but they have to be happy ones. That’s my playlist. Absolutely NO heartfelt songs.

Money, money, money

Clearly the blueberry has given up on this Yorkshire Summer and just assumed it’s autumn already.

MONEY. Not listened to that Pink Floyd song in ages.

Get a good job with good pay and you’re okay….

That’s how the song goes. It’s funny that I love Floyd but this is the only song of theirs that I don’t like. The sound of the cash till just annoys me. It’s kinda nice that when I finally got to see them live, I can remember the concert so well yet I can’t remember them playing this song. It’s so good when the mind works like that.

MONEY. Before the world changed in 2016 we were doing alright. Finding a way to maintain two quite well paid jobs while making sure one of us was always there for Hawklad. It wasn’t easy and took a shed load of planning, but we found a way. We had a nice house, two cars (our jobs headed in different directions) and we could afford a trip to Switzerland every year. We tried to save for the future so we didn’t buy much. But it was a comfortable life and we could certainly pay the bills.

Then the world suddenly changed. I’ve just realised how lame that phrase sounds. Took me long enough. Seismic Rupture might be better. Need to think about that…

MONEY. The last thing you should be thinking about after a bereavement is money. But far too often MONEY quickly looms over you when you are at your lowest ebb. Bills still have to be paid. Food has to be bought. The government wants its pound of flesh, death brings the delights of Inheritance Tax. Two incomes suddenly became one. Even that one….. Single parenting, Single Aspergers parenting, Single parenting to a 9 year old who has just lost his mum. My job became impossible to maintain. Suddenly I was scrambling for a part time job which worked round Hawklad. MONEY became a very scarce commodity. Trying to get my head properly round these scary things is the last thing I needed when my world had just been shaken to the ground. Trying to look at a shrinking bank statement is bloody hard when it’s done through crying eyes.

That’s how it’s been with MONEY ever since 2016. I was so lucky to find a job which was flexible enough to fit round the single parenting gig. But I was still trying to pay the bills. Working out which repair jobs would have to be kicked into the future – which is most of them. Only trying to spend on the absolutely essential stuff. Funny thing is how often schooling costs suck up any spare cash. Holidays are just not happening – the last one was back in 2015. When we do have to buy items the first point of call is always the previously enjoyed or damaged sections. Our one extravagance, concerts, are always in the much cheaper – restricted view areas. We never turn down hand me downs. I’m currently looking at an exercise bike which was surplus to someone’s requirements and is held together with copious amounts of electricians tape.

MONEY. How needs it. With hindsight it’s clear that we are so lucky. So many are in a much worse position than we are. I’ve found a job that kinda fits our lifestyle. We have a nice house and garden. Live in a lovely area. Friends are wonderful. Financially it’s challenging but we are just about stable. Money helps but it doesn’t buy you happiness. Thinking of Hawklad, memories and friends – money doesn’t buy you those things.

Remember

Sadly I won’t be able to visit here today. Its 50 miles away and currently just so out of reach. My mind will wander there today. Not for too long as my mother would give me a stern talking-to for fussing too much. So I will make myself a cup of tea and take a few moments to remember some mum memories.

  • Her famous meat and two vegetables Sunday lunches. She even amended that to Quorn and two vegetables for an awkward son. Followed by the best ever apple crumble and custard.
  • How she would call everyone (including the pets) Pidge so that she never forgot a name. You knew you were in trouble when she called you by your real name,
  • Going to her house and hearing Sinatra or Cash singing as you went through the door,
  • Walking into her living room and her first words being, Do you want a cup of tea and a biscuit,
  • Sat on a plane at Heathrow Airport with her and she started eating toffees to stop her ears popping. She finished all three packets of sweets before the plane had even started taxiing. And yes her ears popped,
  • The day she went into a small shop for a paper and she ended up being smiled at by one of Europe’s best footballers, who had come in for a prematch chocolate bar,
  • Every year asking me to put a 10p bet on the big horse race. I never told her that I always made the bet up to a £1,
  • Her refusing to be called Granny or Great Granny, so she became little Nan,
  • Every time I would take Hawklad round to see Little Nan on a Sunday and she would somehow have managed to find another Mr Men book which he had never read,
  • Mum with my oldest sister running out of the Dracula museum in a fit of giggles when a man dressed up as the Prince of Darkness had unexpectedly appeared behind them,
  • On a morning finding various little garden birds stood patiently in her kitchen waiting to be fed.

And so many more memories from a truly wonderful mum. So it’s time for a cup of tea and a biscuit. Time to remember. Days like this that photographs from so many years ago become treasures.