Posted on by bereavedandbeingasingleparent · 62 Comments

With one hand

August 2018

It’s been too long since I stood by the sea. Far too long. For someone born in a small north eastern seaside town, that’s tough. Genuinely don’t know when it will happen again. My gut feel is not in 2020. Our Government of Fools has now start reversing it’s rushed reopening plans. Yesterday it was perfectly safe to visit cinemas without a mask. Today you MUST wear a mask for your favourite movie. Yet kids and teachers are still expected to go mask free in classrooms. Last Friday we were being told to support the holiday industry and travel as it was safe. Just days later that all changed and more countries are being urgently added to the quarantine list with thousands of tourists now already out there. Even though those countries have much lower rates of deaths and infections than the UK.

Tougher lockdown regimes are being reintroduced into some areas with significantly rising infection rates . One such area is uncomfortable close to us. That is doing nothing for Hawklads anxiety levels. And now his garden consultation with his new health worker is in doubt. Such visits are now under review again. Somedays it feels like it’s one step forward and then one back. That’s at a time when his obsessive hand washing and fear of touching surfaces continues to mount.

But there is always hope and is it really one step forward, one step back…

When I first started climbing I hated having to retrace steps. One step forward, one step back seemed such a waste. A failure. Something to be avoided at all costs. But over time I learnt wiser ways. Things like climbing in things like pink compression tops and tight blue leggings is really not cool at all. Things like collecting rain water from rocky pools to drink might be a life saver but it doesn’t taste as nice as a can of coke stuffed into my climbing pack. Things like it’s not a great team building idea to lead a pitch when you have spilt asunder your tight blue leggings. I also learned that retracing steps is often a good thing. The times a few moments of retreat and sideways steps actually leads to a much easier and safe climbing way forward.

So yes things are tough and that garden visit would be useful but…..

The word BUT sounds to negative, maybe however is better.

However we do at least have access to the service still. That’s a huge bonus. The garden visit would bring stress currently, so if it doesn’t happen then it’s one less thing for Hawklad to worry about. It also encourages us both to try new things, see if we can find our own way through this maze. There will be things we haven’t tried. Maybe potential help has been there all the time and we just haven’t looked hard enough for it. Too much relying on someone else to find it for us. Maybe the only solution for Hawklad is to bunker down for a few more months until those clever vaccine people find something that works. So maybe retracing some steps is the best way forward.

There is always hope and yes I still have a pair of tight blue leggings…..

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Life snapshot

The Aspergers life can be racked with anxieties and obsessive behaviours. Additionally Aspergers can frequently coexist with OCD. Add the death of a mum and both grannies. Then on top of that you add a pandemic. Something has to give with that kind of pressure building up. That’s what our son is dealing with and it is so very tough for him. What does that mean in practice. Well here is a snapshot of life and the impact it has on him.

Every ache, every sneeze, every spot, every pain is seen as a potential sign of a serious disease or the C word. Anxieties bring on indigestion and constipation. These are then seen by him as more potential warnings of serious, life threatening health conditions. The natural response was to frequently wash his hands. It was both to cleanse his hands but also an attempt to pour water on the raging anxiety wildfire. Washing to the point of red raw skin. These issues have existed for years but slowly during 2019 slow progress started to happen. The hand washing was just about brought under control. Then the pandemic hit. The progress was instantly lost. Suddenly the months of reassuring talk a out avoiding serious illnesses, the bodies capacity to fight back and the advances in medical science are basically blown out of the water. The problems started to mount up again and escalate to new heights.

  • Hand washing every few minutes. From 15 second washing now to washing for minutes at a time.
  • A reluctance to dry washed hands as towels might be a source of germs.
  • Harmful germs are seen to exist everywhere. Suddenly it’s difficult for him to touch taps, toilet handles and door knobs. Sheets of paper have to be left next to these so he can avoid touching them directly. Even pulling on a shirt may result in the potentially unclean sleeves coming into contact with his hands. Shoes have to be put on without using his hands.
  • iPads and joysticks have to be washed frequently and definitely before he touches them. It’s the same for things like pens.
  • When he strokes his pets he will immediately run to wash his hands.
  • He needs to see evidence that I wash my hands before I touch any of his items.
  • Clothes have to be frequently washed often multiple times a day.
  • Outside he is constantly looking out for flies and flying bugs. If they come too close then he will need to go inside to wash.
  • He has to have his own seat and no one is allowed to touch it. If they do then the seat has to be cleaned.
  • When he goes out the the front door then he consciously tries to avoid walking over any areas that the postman or others might have walked across. When he comes back in them his shoes will need to be completely cleaned. If he ventures through the front gate and into the outside world then on his return he will completely strip, shower and change to new clothes. Those rules apply to me as well.
  • Mouth-washing and gargling is frequently repeated during the day.
  • Any item which hits the ground (inside or out) will need to be deep cleaned.
  • Any new food items have to go into the garage and complete a quarantine period if at least three days.

This is daily life in our little home. I do my best to reassure, reason and modify behaviours. But it feels nothing more than trying to plug a leaking dam at present. One hole maybe plugged but in the meantime another two new holes have appeared. Counselling was there but government cutbacks have taken their toll on services. The pandemic has temporarily suspended specialist help. The result is massive backlogs and no access to help. These are tough times. For him and yes me as well. As a parent you feel helpless, definitely so underprepared for these challenges. But we keep going. We pick ourselves up and go again. Yes we will get there. We will. But it will take time. Realistically maybe well into 2021. In practice timescales don’t matter, we take each day as it comes, fortified by the love of friends.

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Schools out for now

Today we received an email from the Headteacher setting out the plans for the coming school year. Clearly he is being hamstrung by both government rules and the lack of any clarity on those rules. But currently this is the plan.

  • Each year group will be largely kept apart from other year groups.
  • Each year group will return to school on a different day. For our sons new year group that will be September 11th.
  • School buses will run but each child will have a named seat and the bus will be split into year groups. That will mean son will have to sit with 3 girls and separate from the boys he would normally sit with. All pupils will need to wear a mask on the bus and use hand sanitizers when they board the bus.
  • Masks will not be worn at any other time during the day.
  • Corridors will operate as normal but pupils will be encouraged to maintain as much social distancing as possible.
  • Social distancing will not be enforced within the classroom, so room layouts will remain unchanged.
  • No catering facilities will be available at break times.
  • Access to the canteen will be restricted at lunchtime. Pupils will only be allowed to have lunch within narrow timeframes.
  • More hand sanitizers will be available but it will be up to the pupils when they use them.
  • Toilets will be restricted to only 3 people at a time.
  • Year groups will be kept where possible in there own area of the school. Sons area would mean that he does not have access to the quiet room which is set aside for children with autism.
  • Parents will be given details of mental health services available to those children struggling.
  • No onsite temperature checking will take place, that is the responsibility of the parent.
  • If any child is showing a Covid symptom then they should be kept off school. They are also encouraged to undertake a virus test.
  • Class sizes may have to be increased to take account of increased teacher sickness.
  • Pupils will be encouraged to avoid meeting with friends who are not in their year group.
  • School will not be closed if virus cases are recorded.
  • Online tuition will have to be abandoned with the government dictating a full return to normal schooling.

So that’s the plan. I’m so hoping son decides to opt for homeschooling. Frankly opening up large schools during a pandemic with only the minimum of additional safeguards, appears reckless. So many unanswered questions, which the headteacher openly refers to. Why would you shutdown online tuition in schools which are actually up for awards on the quality of that online service. What do families do when they have several children in different year groups. Most people with the virus show no symptoms yet testing is being restricted. Why masks for buses yet no masks for classrooms. How do kids with autism access the autism services which are in a restricted parts of the school. It’s ok giving out mental health service details but those services are already overrun with significant service backlogs (waiting lists of up to 12 months) – kids need help now….. And on and on.

It’s all a bit of a mess really.

Posted on by bereavedandbeingasingleparent · 86 Comments

Really

There was a time when you could put some faith in the UK Government doing the right thing and providing a modicum of truth…….

So the Government are instructing parents to send their kids back to school after the summer holidays. The clear message is that it is perfectly safe. No need to worry. In fact no need for schools to observe most of the current pandemic and social distancing regulations. Those things just complicate the return process. Parents who fail to comply will be fined.

On the other hand….

A number of areas are reporting spikes in Corona Virus cases particularly amongst the younger age groups. The Director of Public Health from Liverpool issued the following warning – “this is a really dangerous moment for case numbers and we need people not to let their guard down.”

When the Prime Minister’s Chief Advisor broke lockdown rules he was defended by our so called leader. Johnson said the following “he behaved responsibly and with integrity and followed the instincts of every father.”

I will happily see you in court Boris….

Posted on by bereavedandbeingasingleparent · 86 Comments

Bit battered

Poor thing has been a bit battered in the recent bad weather. Well I still think it deserves a moment to shine.

I was having a chat with our son last night about how life has changed recently. It’s only really now that some of the implications are starting to feed through. I will only focus on one small part of the conversation as this post could have ended up as long as the extended Directors Cut version of War and Peace.

Son struggles with social settings. It’s a well established element of Aspergers. He will actively pull away from crowds and groups. One of the only exceptions to that has been Rock Concerts. He still feels uncomfortable there but for a variety of reasons he can cope. He can put his hood over his head and no one will notice. He likes the fact that rock crowds seem very welcoming of any person, any look, any characteristic. With the noise no one is likely to talk to him. When the lights go out, no one can see him. You are just one hidden person in a sea of people. Plus he really loves the music.

So far he has seen Iron Maiden, Hollywood Vampires (with Johnny Depp), Alice Cooper, Kiss, Lynyrd Skynyrd, Thunder, Shinedown, Status Quo, The Darkness, The Damned, The Stranglers and Status Quo. He’s also seen his favourite band – Alter Bridge.

Before the pandemic kicked in he was hoping to see more. The likes of Whitesnake, Foreigner, Europe, Ozzy, Aerosmith and The Who. But the pandemic changed the world. Most of these have been postponed or cancelled.

When concerts restart what will they look like. Will the days of standing shoulder to shoulder return. Will people have to wear masks. What number of fans will be allowed in. How close will you be able to get to the band. Will you need to be vaccinated before you attend. Will certain fans be excluded (age, health factors). Will all the fans want to return. Will it just be open air concerts. Will it be the new idea of drive in concerts. Will some bands just give up. Who knows.

The pandemic also changed son’s life. It has sent his social and health fears into overdrive. Changed the balance and how he sees the world. Things which were acceptable have been tipped into the no go area. Those changes might be temporary or they could be permanent. Only time will tell. But certainly his concert days are at best on long term hold. That’s the thing about Aspergers, changes in external factors can have a huge internal impact. Lasting impacts.

Regardless of any more virus related developments, I just can’t see son wanting to go to a concert this year, probably next as well. Maybe that fragile corridor that allowed him to venture into a concert crowd has been broken on a much more permanent basis. We just have to wait and see. Maybe going forward our own music festivals are the way forward. Buy a concert dvd and hold the event in our living room or garden. We can still put the T-shirts on, have the snacks, drinks and a burger. We can even turn the lights out and crank up the speakers. Best thing – no masks required. No queues for toilets as well….

That doesn’t help the concert industry. I just hope they and the bands find a way through this mess.

So maybe that’s no concerts for Dad as well for sometime. But it is what it is. I’ve been so lucky to see so much music over the years. So as I move into a barren concert period let’s pause and see what my memory is like. Lets see how many of the artists I have seen over the years, I can actually remember. The good, the bad and the ugly. I’ve set myself 10 minutes (so I might miss a few). Here goes….

Whitesnake x4, Motörhead, Deep Purple x3, Black Sabbath, Ozzy, Dio, Rory Gallagher, Tin Machine (David Bowie), Scorpions, UFO, Meatloaf x3, Blackfoot, Mountain, Alaska, Saxon, Magnum, The Firm, Eric Clapton, Tom Jones, Ronan Keating (x2) my partner to blame for that…. Blue Oyster Cult, Alice Cooper x3, Gary Moore, Deacon Blue, The Kinks, Kirsty MacColl, Pink Floyd, Nils Lofgren, Killswitch Engage, Birdland, Bernie Torme, Roy Harper, Suzy Quatro, Paul Rodgers, Chris Rea, Marillion, Runrig, Asia, Al Stewart, Neil Young, Peter Gabriel, Tracy Chapman, Terence Trent D’arby, Simple Minds, Lou Reed, Bonnie Riatt, Chrissie Hynde, Jackson Brown, Little Steven, Bryan Adams, Squeeze, Tina Turner, Extreme, Was Not Was, Lyle Lovett, plus those with son.

Ten minutes up….

Posted on by bereavedandbeingasingleparent · 99 Comments

Not had a rant for days…..

I came outside to look at the roses. And breathe..

The UK Government has a natural ability to take the breathe away. What are the words I am looking for

Self-serving

Incompetence

Charlatan

Criminally negligent

Fraud

Part timers

Out of their depth

Nest of vipers

Dangerous

Liars

Elitist

One rule for the many, doesn’t apply to them

When you think it can’t get any worse and then they take it a new level……

So on the 4th July Britain is open for business again. Something we all can sign up to if it’s done properly and safely. But this is Boris Johnson we are talking about. The laziest and most inept Prime Minister in over 150 years. So here are just a few nuggets of his so called plan

  • The governments own scientists have warned against easing restrictions too soon. If we do the safe way is to do that carefully and in small stages. The PM has said oh tish to that. British wartime spirit apparently is all we need to follow. It clearly does help a leaders senses when he has rich backers and views the world through the bottom of an empty champagne glass….
  • For months we have been told that masks are a waste of time and that we should be keeping at least 2 metres apart. Suddenly 1m is cool as long as your wear those marvellous masks (but only if you really want to).
  • Since March we have been told that the key to beating this virus is the Tracking and Tracing App. Rather than go with the Google and Apple one we decided to give a contract to friends of the Government. This world class app was promised to go live in April, then May, then June. Then suddenly it’s dropped because it didn’t work (not the Government’s fault of course, it was all down to those pesky people at Apple). Now it won’t be ready until the winter but it’s ok as it was never a priority – everyone must have repeatedly misheard the PM and the Health Secretary …..
  • This scene according to the PM is perfectly safe, carries no pandemic risk and so can happen freely (this was our nearest beach yesterday) …..
  • However this scene is not allowed, carries huge pandemic risks and deemed unsafe….
  • People are not allowed to attend live theatre due to the risks yet our PM is delighted to allow pubs to open. The PM clearly trusts Joe Bloggs and his drunken mates to act responsibly and stay 1m apart at all times (wearing a mask) after 10 pints of strong lager.

But no they haven’t finished yet. Apparently schools will reopen fully in September. The plan is to ditch all social distancing rules for children. All we need to do is to tell the kids not to sneeze on others. Squeeze them back into cramped classrooms and act as if nothing has changed. Just in case each class should try not to spend too much time with other classes. Really. It’s ok for the Government as they send their kids to private schools where class sizes are less than 15, here social distancing can still happen. But not for the state schools with class sizes of over 30. In fact the PM has dropped rules so that the class sizes can go much higher than 30. If teachers become sick then you can just have supersized classes.

Well they can just sod off. They are no Government of mine. Time to bunker down.

So back to the roses and breathe.

Posted on by bereavedandbeingasingleparent · 101 Comments

Fragmented

Good to see the local motorway is busy…. It’s still too busy for our son. I got special dispensation to step 10 yards out of the front gate to take this photo. Life on the edge.

It really does feel a bit like that at present. On one hand we have what apparently counts as our Government rapidly relaxing restrictions and on the other hand kids like our son….

His social and health phobias are in a pandemic fuelled maelstrom. Every few minutes he feels the need to wash his hands. To repeatedly rinse his mouth out. The fear of germs and hidden dangers becoming a real nightmare for him. He struggles to touch items like taps and handles. Even putting potentially unclean shoes on is a challenge these days. Deliveries have to go into garage quarantine for at least 4 days. Clothes need changing every few hours. And then another spanner in the works. The old house boiler completely failed. So a service call out is required. It’s now way beyond a temporary Dad patch up. That means an additional new threat to sons safe area. A house visitor! After much discussion we agreed a plan. The service engineer would come into the house only via the back door. The engineer must wear a mask at all times. I will keep 2m away from the engineer at all times. When the work is finished we will effectively lock down half of the house. We won’t venture into the areas the engineer visited for three days. Not ideal but it’s a plan. Son’s stress levels will rise but hopefully not too far. The damage to his safe area minimised.

Yet individuals like our son are expected to just re-enter the world by July 4th. The date our part time PM is declaring as the day he defeated the virus. The date he can heroically restart England. It’s perfectly fine to open overcrowded public schools in September. A few more hand sanitisers in the corridors and relaxing the rules further to allow for even larger class sizes to cope with increased teacher sickness is now the best way to deal with a pathogen. We are told ‘everything is now fine’ by the very leaders who have been proven to be wrong on virtually every single major decision they have made over the last 6 months. The very leaders who now widely seen as charlatans and pathological liars. People see this. Our son sees this. This just adds fuel to his anxieties. It’s making a bad situation even worse.

So when England reopens on the 4th July a small bungalow in Yorkshire will not. It stays on lockdown until son is able to face the world again. Who knows how long that will take. Much patience is required. We won’t be the only family facing this prospect. Again my country further fragments. I’m not entirely sure it’s ever really going to come back together again.

Posted on by bereavedandbeingasingleparent · 94 Comments

Lost Friends

And another rose photo…. I have to say out garden is blessed with weeds and roses. Each year they appear and they always feel like the return of friends.

Last night I had another weird dream. This time it took me back to my university days. It started off by showing that my career path had been influenced by a slip of a pen. I had applied to do a degree in Economics but had been put on a Home Economics course. A degree in cooking for the worlds worst chef, OK.… But the main part of the dream was centred around friendships. All my college friends were on the course but no one recognised me. As hard as I tried, nothing. I was just blanked by them. Most unsettling.

As ever the weird dream put an end to my nighttime sleep hopes. So it was time to drink tea and think. A quick search on the internet found recent pictures of some of my old college friends. I just about recognised them. Would they remember my face which is perfect for radio – probably the same I guess. But here’s the key thing. These were really close friends. Yet when was the last time we met up in person. Our careers and life’s moved us apart. I’m not sure it was even this century. But it doesn’t stop there

  • I haven’t seen my schools friends since I first left my childhood home to go to University.
  • One really close school friend I did keep in contact with. We would meet up every few months. But again our life’s drifted further apart and the last time I heard she was living in Israel. That must be over 20 years ago.
  • My climbing friends still keep in touch via letters. Yes letters – how old fashioned does that sound…But we haven’t been climbing together in 6 years.
  • I still keep in regular text contact with a good friend who I went to football matches with. But I’ve stopped going to games now due to circumstances, so we don’t meet up in person.
  • Work and parenting friendships have come and gone.
  • Friends in the village have dwindled. Some have moved away, some have sadly left this world.

So in terms of actual physical friend meet-ups it’s down to one chap I normally work with. He occasionally drags me for a game of golf. There are so many stories right there – my golf career is about as good as my cooking career. But due to the pandemic I have not seen him since the start of March.

Life and my choices have sent me down this path. Living in a rural area, bereavement, single parenting and autism in the house have all contributed. But it is was it is. A huge element of personal choice comes into the mix as well.

Yes this is sad but I am so lucky. The gaps left here have created space for blogging friendships. I’m doing the best job in the world – parenting. Job is the wrong word, it’s more a privilege. I have a great life. But I do so worry for others. Feeling alone can be such a dark place. Alone and yet claustrophobic. No one to reach out to. No one to interact or grow with. Some choose that option freely. But many are forced into it by circumstance. Illness, age, special needs parenting, single parenting, location, social factors, fears and yes a pandemic. It’s so easy and unfortunately very convenient to forget about those who drop off the grid. Last night was a timely reminder for me.

Take care my friends.

Posted on by bereavedandbeingasingleparent · 68 Comments

Useful Book

Yes we can do blue skies…..

It didn’t last long but it was most gratefully received.

Trying to facilitate son’s return to the big bad world is not going to be easy. It’s going to take a long time and much patience. It has to be done at a pace which he is comfortable with. That’s the plan but then the real world comes a knocking.

His fears of bugs and illnesses have gone into overdrive in 2020. Can’t think why! We have established routines for accepting deliveries and post. Any trip through the front door requires what feels like full biological decontamination protocols. It’s not really about blocking out a virus, it’s about managing anxiety.

Over the last three months we have managed two very short circular car drives. But now we face our first real test. A phone call from my garage telling me that finally an essential car part has made its way from China. So it’s time to get the car’s breaking system fixed. So on Monday I have to drive 20 miles, drop off the car and pick up a garage pool car. Then later in the day return to the garage and pick up a fixed car. Normally this process would be done seamlessly. Now it’s a logistical and anxiety nightmare.

Does son stay at home while I go to the garage? On my return I can undertake full biological decontamination. Son struggles with being alone. He will be stressed out with being by himself for a couple of hours. He will be super stressed out with my exposure to the real world.

Or does he comes with me? Yes that avoids the stress of being alone BUT…. Suddenly son would be exposed to the real world. And lots of it. A garage filled with strangers. A pool car which will have had other people sat in the seats. Touching the surfaces. Another stress inducing nightmare for him….

So currently I don’t know what will happen on Monday. I’m getting stressed out trying to run through all the possible logistical permutations. But that pales into insignificance to the bucket loads of stress which will be hitting our son. Again I can’t find a helpful section on this in the How To Be Parent Book. One day someone is going to make a bucket load of money writing this. Well if they could get it published within the next few days you can count on one sale from me…..

Posted on by bereavedandbeingasingleparent · 64 Comments

Conversations

Sorry this is a couple of days late. The new WordPress editor took a dislike to this post and it’s taken two days to fix it.

Well a bit of blue sky and no rain is a start. Even the wind has eased. Feels almost like Autumn now.

Two conversations have rather defined this autumnal feeling day. The first one with the dentist.

I finally managed to speak to my Dentist about my chipped back tooth. In a nutshell this is what the Dentist said.

  • The practice partly reopens tomorrow.
  • They have a huge backlog and waiting list.
  • They are allowed to start looking at emergency cases but won’t be able to do much with them. Basically just temporarily patch them up. No drilling or aerosol inducing treatments allowed.
  • They will get back to me when they can have a look at it. But the repair will be some time. Dependent on getting the go ahead from the Government.
  • The Government is a shambles. Just making things worse.

So basically just got to grin and bear it. Will add temporary dental fixes to my increasing list of almost skills. It’s quite bizarre that the UK’s Health Minister is spending more time and energy on getting Horse Racing going than be is on helping out the NHS and Dental services. It’s amazing what being funded by the Horse Racing Industry does for a persons priorities.

The second conversation involved a muppet but not our Health Minister thankfully.

“Dad remember when we worked out that you are 25% human and 75% muppet.”

75% is probably understating the muppetry.

“Well Dad I’ve been trying to work out which muppet DNA runs through you.”

Well when I used to go and watch Newcastle United play footy. When I say ‘play’ I should say ‘get beat’ at footy. Me and my friend would just sit and slag off our own team. We were definitely the two old muppets in the audience. Waldorf and Statler.

“Ok but now you don’t go anymore then they don’t count. I am seeing three muppets in your DNA. First one is Beaker. That expression and the hair sticking up is just so you..”

“The second muppet I see in you has to be Fozzie Bear and those terrible jokes of yours..”

“The final muppet in my Dad is definitely Animal. You seem to approach everything. Things like cooking, gardening, hairdressing with the same care and attention that Animal approaches life..”

I can’t argue with this assessment, although I am a little disappointed not to have a little bit of Miss Piggy in me. Now do I trust Animal with this emergency dental kit…

*****Photos from Wikipedia******