1000 odd days

This is a photo from 3 years ago. I stumbled across it while looking for some old climbing ones. Another typical Yorkshire August day – all four seasons in one day. It got me thinking – what’s the same and what’s changed in those 1000 odd days. See that’s what a professional accountancy qualification can do for you – I’m good at those complicated adding up calculations.

THINGS WHICH ARE THE SAME

  • Getting no dyslexia support from school,
  • Getting no Aspergers support or accommodations from school,
  • Still bereaved,
  • Still a single parent,
  • Still a metal head at heart,
  • Hawklad is still a lovely character,
  • No holidays, no Switzerland,
  • Pets causing chaos,
  • My football team is still useless,
  • Still see myself as European,
  • Brexit is still a shambles and a monumental exercise of self destruction,
  • Vegetarianism,
  • Can’t cook,
  • Still exercising,
  • Still 5ft 10 and a half (don’t forget the half – it takes me beyond average height),
  • Still not climbing,
  • Still can’t work out the TV remote control,
  • The garden is still a mess,
  • Still don’t like U2,
  • Still haven’t seen Avatar without falling asleep,
  • Haven’t seen my brother even though we live only 50 miles apart,
  • The garden gate still needs fixing,
  • The washing machine is still possessed,
  • Still having bought myself that ginormous telescope,
  • The blog is still going,
  • Still writing about the same stuff,
  • Still waiting for official recognition of my stellar poetry skills,
  • Still haven’t won the lottery,
  • Still losing my car keys.

THINGS THAT HAVE CHANGED FOR THE WORSE

  • As Hawklad has reached the teenage stage many of the health support packages have been removed,
  • The waiting list to see The Paediatrician is now approaching 2 years,
  • A pesky pandemic,
  • Hawklads anxiety levels,
  • Hawklads isolation from the world and other kids his age,
  • Due to circumstances had to stop running,
  • Boris,
  • Trumps antics,
  • Might be a metal head but the days of skin tight jeans have gone,
  • Lost a couple of much loved pets,
  • Don’t really see my sisters anymore,
  • School’s view of Hawklad – definitely revising his perceived ability levels downwards,
  • The number of times I have to shout or pull my hair out at school is rising,
  • I’m physically meeting less people,
  • The list of things on the need sorting out when funds are available is growing.

THINGS THAT HAVE CHANGED FOR THE BETTER

  • Hawklad understands himself and his Aspergers much better now,
  • Hawklad is overcoming his dyslexia,
  • I understand now that it’s just as ok to Laugh as it is to Cry, YES it’s ok to live,
  • Friendship
  • Close Friendships,
  • Faith,
  • Love,
  • Happiness,
  • One step closer to home schooling (hopefully),
  • My dress sense – I finally chucked out some of my pink climbing shirts.

You might be thinking that looking at the relative number of entries on these lists that the last 1000 odd days have been generally bad. But look at some of those things on the last list. It’s not about quantity it’s about quality. Yep looking at that last list, over the last 1000 odd days we have challenges but some really good stuff has still happened. That’s why there is always hope.

World leader

Patience. Apple Crumble will eventually be on the menu. Just need to wait.

So today the news is filled here with stories of thousands of kids getting exam grades downgraded because of a statistical algorithm. The UK Government backing the decision as the don’t want ‘kids being over promoted beyond their abilities’. The irony – coming from a Government filled with the most incompetent, over promoted, out of their depth numpties this country has ever seen. Our kids deserve better than this.

Dad how unfair is that. That year group is not allowed to sit exams. So they have to go on schoolwork and what the teacher grades the kid at. Then they randomly drop the grades because they don’t think they deserve it. It’s just not right.”

It’s not fair. Especially as they are not doing the adjustment to kids going to Private Schools.

Dad is there anything Boris and his team has actually not messed up. Pandemic, brexit, exams, sending warships after immigrants in rubber dinghies, food, trains, environment, schools, hospitals. I might even blame them for the weather.”

I can blame them for my team not winning a domestic trophy since 1955.

No that’s just cos Newcastle United are rubbish.”

Ok but I can blame them for the state of the garden and the tomato plants.

No Dad that’s down to you.”

Fair point but surely Hawklad, I can blame Boris for my burnt baking.

“No that’s the muppet baker.”

This is not going well…. I blame Boris for allowing a Sith Lord to be in charge of the country.

That’s Cummings is it not. He does look like an evil villain. It’s scary that he tells the PM what to do. I will give you that one.”

It is scary. But not as scary as the thought of Boris being PM.

Even you would make a better leader. Now that’s a thought. You could be this countries first ever tea total, vegetarian, single parent, Newcastle United supporting, useless cook, world class muppet ever to be our PM.”

That would be an honour.

Even better your place in history would be guaranteed. The worlds first world leader called Gary….”

The world needs a hero, it needs a Gary…..

Story to tell – two

We all have a story to tell. Every persons story is just as precious and important as the next. Our life’s are filled with good and bad times. A rollercoaster of emotions. Filled with memories. Some bring smiles, others bring tears.

2016, it’s August. A week before I had been to my mums funeral. My partner had not been well but currently no reason to be truly worried. A Wednesday afternoon and we drove her to the Hospital for an overnight stay and some routine tests. I can see her walking across the lawn to the car. We talked in the car. Can’t remember what about. Just general stuff I guess. After she is settled on the ward we are asked to leave so the medics could start the tests. Told to come back tomorrow to visit, maybe even to pick her up. It’s now Thursday lunchtime and I’ve returned to the ward. The Doctor pulls me to one side. A sudden collapse in her condition. I sit in stunned silence. Tests results are shocking and grave. The prognosis horrific. 95% chance that she will be dead within a couple of weeks. Zero chance of making Christmas. She is in and out of consciousness. It’s extremely likely that she is not aware anymore. If family need to say goodbyes then you need to do it really quickly. Driving from the hospital like a zombie – how do I explain this to our 8 year son. She never regained consciousness and died in a hospice a few weeks later. We never did have a conversation again. The last time we talked was in the car and I can’t remember what it was about.

That’s one of my stories. It’s not easy to tell even now. I can feel the darkness starting to sweep over me. But there are other stories. Stories which bring light and are easier to tell.

Holding our son for the first time after the birth. Looking into his eyes and thinking I’M A DAD. Then thinking he’s very small – don’t drop him. Then one overriding thought. How can something so small be so pigging LOUD.

Sat on a scary rollercoaster with Hawklad as we slowly pick up speed. Hearing his must reassuring words echo along the suddenly panic filled seats – “Dad I’ve just spotted two missing nuts and one support joint without any bolts.”

Sat watching a 4 year old Hawklad in Switzerland. He runs up to a man trying to do some post run stretches. He then spends 5 minutes excitedly telling this man all about Dr Who and The Tardis. Speaking to the man later to apologise we found out that the man had never heard of Dr Who and didn’t speak a word of English. What a poor confused person he must have been.

So we all have stories. Some bad and some good. That’s life for you. They add together to make up who we are. Actually taking the time to listen will open your eyes to another person. If you are fortunate you might even hear some back stories. Gain an understanding of who that person really is. What makes them tick. Without that understanding it’s not wise to jump to assumptions. Without those back stories you really don’t know anything about that person.

A story to tell – one

We all have a story to tell. All stories are just as valid and important as the next one. Sadly many stories are not told. Well actually that’s incorrect. Sadly many stories are not heard. They are replaced by stereotypes. Too many jumping to conclusions. A view that fits better into the needs of so called modern society.

This week again stories of single parents coming from The Government and it’s Friends. Scrounging off society. Shying away from work. A life of luxury…. That fits in with the message. BUT Cut to a supermarket. A parent is struggling to control a child. Those knowing looks and tuts from other shoppers. They have no idea of the back story. Just how tired that parent is. Trying to figure out a way to feed the family with so little money. Trying to cope with zero help. Being crushed by anxiety and living no life at all. Crushed by circumstances. It’s often easier for some people to cast the first stone rather than offer a hand of support.

The story of kids with Autism and Aspergers again often not heard. Drowned out by stereotypes and unfounded assumptions. Each and every child is different, unique. Each child has their own back story. But so often we here – uncaring, cold, demonic, unfeeling, lacking empathy, no sense of humour, unable to love, a burden on society, low attainment, not really like a kid should be.

Wrong, wrong , wrong. Every child is unique. That’s the point of this blog. Others bloggers do it far better than my drivel. But we try to show the real story of our kids. Hawklad has Aspergers yet he can be funny, caring, have empathy, play games, understand others, be funny, have talents, be lovely, have dreams they want to achieve, have a sense of humour and love. All kids deserve a chance. Deserve a childhood. All kids.

Everyone has a unique story. Maybe as a society we need to start listening.

Closer to the action

It’s been a hot day for Yorkshire. Not as hot as many places, but still hot for us.

Time to do some gardening. For the observant amongst you

  • Yes that conservatory has been taken over by Dinosaurs. I blame them for the mess,
  • Yes that ghostly and out of focus apparition in a red T-shirt is me. That’s the closest your going to get to a photo….. That’s how us with ‘faces made for radio’ like to do things….

An hours weeding. Lots of weeds pulled up and yet seemingly so little progress. But at least I’ve made a start.

Hoping for another clear night. A night of shooting star spotting. The Perseid Meteor Shower is currently ongoing. Last night at 1am we were outside. Sheet lightening frequently flashing across the sky. We always have a little game – who can spot the most… It was close last night.

Hawklad – 50 meteors

Dad – 4

Dad what are you doing?”

I’m lying on the ground, why don’t you join me…

Certainly not AND why?”

I’m thinking that if I’m lying down then I’m comfortable. Don’t have to strain my neck. I get to lie down and scan the sky. I think it’s the best way to see meteors.

*******Not the first time I’ve tried this approach – it worked well but one important safety point. Don’t put your cup of hot drink on the ground next to you. That last time my cup was visited by a slug. That’s not what I want in the dark when I’m taking a swig of warming brew********

“Really Dad. I have a problem with your technique?”

Go on then Hawklad what possible problem can you find with lying on the back while meteor hunting.

Well Dad. I’m standing up. So that takes me at least 5 feet closer to the sky action. Maybe that’s why I’m at 40 meteors and you are at TWO….”

Ok point taken.

Clouds permitting I’m hoping for a huge comeback.

Cool

It’s hot in Yorkshire. Very hot for us. 🥵 86F (30C). That’s officially beyond Yorkshire’s Safe Operating Temperature. Law and Order will break down. The Ferrets will start to get unusually frisky. The Rhubard will go on strike. Cricketers might even have to unbutton their top shirt buttons. Those rather fetching knitted handkerchief hats will need to be donned….

In Yorkshire we have two expressions for this type of unusual weather.

It’s Mafting…….

It’s crackin’ t flags ……. translates to – it’s so hot the the paving stones are starting to crack.

It was too hot for my outside weights and kettlebell session. I definitely left a water trail marking out where my exercises took me. A nice run through a cool forest would have been ever so nice. The photo was from August 2019. Seems like a lifetime ago. Almost seems like a different world. A lot of things have changed for the worse. Some new really bad things have hit. Yes some life stuff has remained unchanged. And here is the crucial thing. A few things, some new stuff have definitely been an absolute blessing. It’s so easy to focus on the bad stuff but actually some wonderful things have happened. My Life is better because of those things.

So in 2020 when some days life seems unduly bad, I need to remember the good stuff. Yes life can and still will be tough. BUT it can also still be exceptionally beautiful. It can be a wonderful life.

The Irony

The old Apple Tree. Definitely enjoying the sun and the rare windless conditions. A good day for a garden meeting.

Well today didn’t go as planned.

Son was primed for his garden meet-up with his new nurse counsellor. These things don’t come easy to him. Often it’s about trying to build a bond. A bridge. Only when that link is formed can any meaningful work be commenced. He had that link with his last person, we can only hope a similar one is formed again.

So yes he was as ready as he could be. The garden was setup…..

Then the call from Nurse Reception. Unfortunately the counsellor had taken ill in the car and had turned back. Headed home. Really sorry and they will rebook the session when the counsellor is back at work.

So hope that she is alright. These things happen. But the irony.

A session to work on Hawklads Health and Pandemic related fears cancelled due to illness.

The irony has not been lost on him. Oh sorry forget, HES not supposed to get things like irony….. A Doctor once said that to him during a consultation. Hawklad fixed him with a Paddington Bear Stare and said “Are you a proper Doctor?”. The Doctor looking a bit flustered and talked about his qualifications. Hawklad them calmly said “ok a Doctor but clearly not a very good one…..”.

So we just have to wait for another appointment. Absolutely no idea when that will be. Probably after schools go back in September? That’s another potential return complication. It’s certainly added a little to his fears, now. When the meeting does happen I’m betting on Hawklad asking for the garden chairs to be further spaced apart. Thats something which won’t happen at school.

We dust ourselves off and we just have to go again. The cancellation may be for the best. Stops anything unpleasant coming into our safe area. Plus it forces me to do something rather than rely on others. Just got to up my game.

Yes another odd Monday.

Before

Dad do you know that you were born before the introduction of the home computer.”

Computers are overrated, not sure they will catch on.

Before the Xbox. Even before Space Invaders”

I’m still trying to clear the first wave of aliens. One day……

Mobile phones still to be stuffed in any trouser pockets in your day…”

I wasn’t trusted with pockets. Mum would sew them up.

Before microwaves made it into kitchens, your ancient Dad.”

I remember our families first microwave. It was the size of St Bernards Dog Kennel. I had to plug it in. The first thing we tried to heat was a cup of water. While I pressed the start button my mum and dad hid behind the kitchen door. They thought it was going to go up like a nuclear weapon. Clearly their youngest son was expendable….

Before the Rubik’s Cube, did you get one”

No never had one. When people started talking about getting one …. it sounded to be like a new health worry that you had to see a Doctor about. I’ve got a bad case of the Rubiks.

What was it like being a kid with no cds or DVDs

A lot cheaper for my parents.

No Star Wars.”

It was also still safe to go into the sea as well when I was a kid. No shark movies yet. Jaws was still a little goldfish. I remember kids being told to keep off the beach as soon as that movie came out. Poor Jaws would have been a giant ice cube if he had ventured anywhere near the North Sea.

Even before the Rolling Stones, weren’t you Dad….”

Watch it Hawklad, I’m not that old. Definitely before Taylor Swift was born.

Your old enough to be her Dad…”

I look old enough to be her Great Great Great Grandad…

Before The Simpson’s and Spongebob…. You look old enough to be Homers Dad”

There is a definite family resemblance. You never see Homer and Me together in the same room. Just saying.

“Dad what was it like to be around at the same time as the dinosaurs?”

It was fun. Our barbecues had to be a lot bigger. It made country walks a lot more interesting. But it wasn’t fun trying to clean Pterodactyl poo from your windscreen.

Getting older is overrated……

Nonstop

It’s a hard life on the pet sofa. Nonstop action.

So while the pets were unusually becalmed and Hawklad was watching a Sherlock Holmes movie, I could focus on a pressing matter. Seeing what bargains I could find on the internet. Replacements for items which are starting to fall to bits. Actually that could include me.

As usual the items on my list where either unavailable or at full price (or beyond). But I did come across a range on interesting bargains.

  • A rather battered old pink Campervan. The description referred to well looked after, well loved, filled with character. I didn’t references to words like knackered, dented, rusted or broken. Clearly if it was true that the badly battered vehicle had in fact had only one careful owner well that owner must have been NASA.
  • A collection of novelty LPs which included masterpieces from the likes of The Crankies, Baron Knights, Showaddywaddy, Mud and Vanilla Ice. Shame I don’t have a record player……
  • A chessboard with some of the pieces missing. Suppose that contributes to quicker games.
  • The entire James Bond DVD collection. One dvd is missing and several are scratched. They also won’t work in the UK and Europe. But apart from that….
  • A Bullworker. Remember those. Those exercise devices which apparently if you used it for 10 minutes a day for a month you would end up looking like Thor or The Terminator. I might need to use that for several years……
  • A Batman lego set which would cost more than my car….
  • A Genuine Boomerang. Wow you must be able to get fake ones.
  • A box of VHS tapes. Maybe I can sell the bag loads of those cassettes we have filling up the garage.
  • A set of glowing hula hoops. Surely that would represent an essential purchase.
  • A Boris Johnson punch bag. So so tempted.
  • A giant bag of jigsaw pieces, several sets mixed together – no guarantee that all sets are complete. Trying to get my head round that one.
  • A pantomime horse costume for two adults. Apparently with some wear and tear. The mind boggles.
  • A set of 30 Xbox games. Ranging from motor racing to Star Wars.

Most admit the Xbox games pack was tempting. One problem. We would never use them. Son is a creature of habit. On his Xbox 360 he only ever played two games FIFA (football) and WWE (wrestling). When I saved up to upgrade it to an Xbox One, guess what. He’s only ever played two games on it. FIFA and WWE. Maybe Microsoft can next time just do us a special cutdown version of the Xbox Two. We only need it to play two games. Surely they can do us a cheap version rare edition. That might be worth something on eBay.

Different

Who are you looking at

I’ve always felt like the black sheep in the family. The odd one out amongst my siblings. The youngest by a decade. My brother and sisters had partied together and flown the nest while I was still at school. The tallest. The only shy one. The only one with a stammer as a kid. The only one who went to college and university. The only one you got letters after his name (M.U.P.P.E.T). The only one who never got married (huge mistake). The only bereaved one. The only single parent. The only blogger. The only vegetarian. The only one who has given up alcohol. The only one who is gluten free. The only runner. The only climber. The only one learning a second language. The only one who has visited mums grave. The only Asperger Parent. The only Newcastle United supporter. The only one without a middle name. The only one whose first name doesn’t start with a P. The only one how formed a close link with a Quaker family. The only religious one.

I could go on. Hopefully you get the picture.

Don’t get me wrong. I love my brother and sisters. We are close. Close but we don’t see each other much. Mum was always the centre. The gravitational pull that kept the various differing orbits from spinning away. I will see one sister every few months. Another one maybe a couple of times a year. Brother and the other sister maybe once in several years. An occasional phone call or text maintain a link. But since mum left we are slowly spinning apart.

So yes I do feel a little bit like the odd one out. That’s where friends come in. They get me. They make me feel not different. They make me feel whole again. Thank you ❤️

I will leave the final words to my departed partner. We were spending a night in London before we caught the first train to France. Off on our first holiday together. That was back in 2000. We were in a quiet but very full pub in Kings Cross. After a large lager my partner asked about my dieting life choice. In a voice which echoed round the pub. “Are you the only VEGETABLE in your family…”

Yes I probably am….