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Rain…

Rain, rain, rain.

Chucking it down.

Raining cats and dogs.

Hammering it down.

Siling down.

Bucketing down.

Teeming.

Nice weather for ducks.

I think we are moving from weather for ducks to weather for fish. It’s a good job we are on top of a little hill. Any lower down and we might be considering a life raft.

“Dad what are you doing?”

Listening to the rain.

“Why?”

Because it’s almost hypnotic. It’s kinda nice.

“The only reason I would listen to the rain is to workout when it’s stopped…. Dad I‘ve got a little question….”

He does have a point with listening to the rain. That last line is his favourite saying. He is always asking questions. Dozens and dozens every hour. When he says a little question he really means one question followed quickly by a bombardment of another 30 questions. Random questions to me but completely linked to his way of thinking. Often it seems like the same question but in fact each question is subtly different. Questions followed by a chance to demonstrate his Dads rather sketchy knowledge in these areas. Then a chance for son to instruct his Dad. This happens always in the garden, every day. If it’s raining then on go the coats.

Today it was three hours of football and fantasy world related questions. Looking at player stats, team records, form, tactics and formations. Intertwined with questions about characters, storylines, plot arcs and new worlds. Yesterday it was 4 hours of questions about politics and history.

Over time the daily fact and knowledge bombardment can tire my mind. Lack of sleep doesn’t help. Two parents allowed some time to share the questioning. A time to rest the mind. But it is what it is. Constantly walking about and hot drinks keep me going. But here’s the key thing to remember. It’s an absolute privilege to be granted this time with our son. To be welcomed into his world. A beautiful world which is more pure than ours. It’s what life is all about. So yes it can sometimes feel like it’s wearing me down BUT I wouldn’t swap it for the world.

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Tomorrow’s Rose

A few hours ago talked about a Yorkshire White Rose which has a connection with my partner. I said that it would become even more beautiful. Well here’s the proof.

This little bush produces the most stunning roses. The sadness is my partner never really got to see them. But they are such a beautiful tribute to her. That’s such a nice thought.

Take care everyone and remember to live. It’s can still be a wonderful life.

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Not my berries

Wild strawberries get everywhere. Now they have found a way into the large tub which contains the old blueberry bush. This raises one of the great life mysteries. Wild strawberries are cropping up all over the garden. Even on the stone drive. Yet I find it impossible to grow them when and where I want them to. Nothing ever happens with my strawberry seeds. Most frustrating….

So officially no work until September at the earliest now. I guess it gives me more time to tend my strawberries. But we are SO fortunate compared to many others. We have beautiful memories. We have a nice (if slightly chaotic) garden with a lovely view. We are relatively secluded. Son can feel safe here. We can scrape by and pay the bills. We can still have fun and enjoy life. Yes another 3 months of this self contained world can at times seem a claustrophobic thought. But that thought is there only if I let it exist. In reality I’m losing a few brief encounters, some knee jarring runs and an occasional trip out. Counter to that – Son is gaining a feeling of security. For that security I can more than cope with a few inconveniences. Everyday we still have the ability to create memories and live out our dreams. Maybe not my frequent night dreams featuring talking cows and dinosaurs. But you know what I mean.

So let’s be thankful for what we have. Let’s use what we have. Let’s remember to live.

Let’s take the time to watch the wild berries grow…

The other thing about the wild strawberries is that they don’t last long. The are stripped bare by our frequent garden visitors. That’s fine with me. I guess they were the ones who brought the seeds here in the first place. So they grew them, so why not let them enjoy the rewards. And the answer to the great life mystery. I should leave the gardening to the experts. The wildlife. Having said that – they don’t seem very willing to cut the lawn.

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Pathway

The gap between the hedge and the Apple tree has basically disappeared. All this enforced time at home and somebody has been neglecting the garden. Unbelievable. But I quite like the results. Often it’s best to let nature takes its own course. So much easier that way as well…..

Every second Wednesday is becoming a right bind. Our bins are emptied every two weeks. This includes the garden waste bin. So when it comes to the day of putting out the bins I get that sinking feeling. Please let the green bin (now a brown bin for some reason) be at least half full. When I open the lid, I want to see plenty of grass cuttings, hedge trimmings and pulled up weeds. I want that feeling of elation that comes from two weeks worth of gardening. So I can close the bin lid and wheel it out onto the road. A job well done.

That’s the theory.

In practice I open the bin lid to find its completely empty. Oh big pants. Now I feel bad. I clearly have been wearing my laziest big pants. The inner shame drives me to fill the bin before the refuse wagon arrives. This being Yorkshire means a mad couple of hours gardening in driving rain and hail. That regular routine was repeated this morning. While I’m fighting the gardening elements I can hear my Mums words echoing around my exceedingly wet head. You just need to do 10 minutes a day of weeding and you get the perfect garden without breaking your back. One day I will follow this sage advice.

So the bin was filled. It was wheeled out onto the road and it felt like that was the gardening done for another two weeks. See I never learn.

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Useful Book

Yes we can do blue skies…..

It didn’t last long but it was most gratefully received.

Trying to facilitate son’s return to the big bad world is not going to be easy. It’s going to take a long time and much patience. It has to be done at a pace which he is comfortable with. That’s the plan but then the real world comes a knocking.

His fears of bugs and illnesses have gone into overdrive in 2020. Can’t think why! We have established routines for accepting deliveries and post. Any trip through the front door requires what feels like full biological decontamination protocols. It’s not really about blocking out a virus, it’s about managing anxiety.

Over the last three months we have managed two very short circular car drives. But now we face our first real test. A phone call from my garage telling me that finally an essential car part has made its way from China. So it’s time to get the car’s breaking system fixed. So on Monday I have to drive 20 miles, drop off the car and pick up a garage pool car. Then later in the day return to the garage and pick up a fixed car. Normally this process would be done seamlessly. Now it’s a logistical and anxiety nightmare.

Does son stay at home while I go to the garage? On my return I can undertake full biological decontamination. Son struggles with being alone. He will be stressed out with being by himself for a couple of hours. He will be super stressed out with my exposure to the real world.

Or does he comes with me? Yes that avoids the stress of being alone BUT…. Suddenly son would be exposed to the real world. And lots of it. A garage filled with strangers. A pool car which will have had other people sat in the seats. Touching the surfaces. Another stress inducing nightmare for him….

So currently I don’t know what will happen on Monday. I’m getting stressed out trying to run through all the possible logistical permutations. But that pales into insignificance to the bucket loads of stress which will be hitting our son. Again I can’t find a helpful section on this in the How To Be Parent Book. One day someone is going to make a bucket load of money writing this. Well if they could get it published within the next few days you can count on one sale from me…..

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On the edge baking

The apples are starting to form. It’s so wonderful having a little Apple tree in the garden. But wow does it produce fruit with a kick. I think the word I am looking for is – sharp. They definitely benefit from a heap load of sugar.

It’s all about patience. These apples won’t be ready for picking until October. Any sooner and even sugar can’t make them edible. Somethings are even beyond sugar.

Last night I tried to make myself a Moroccan stew from one of my cookbooks. Cooking when your beyond tired is always a tad risky. Especially as I produce weapons grade food at the best of times…. I tried to carefully follow the ingredients. Second last ingredient rather surprised me. 200g of sugar. In a stew …. OK….. the chef will know what he is talking about. And the final ingredient vanilla essence. Clearly chef knows best but really. Don’t need to read the preparation details. Bung it all in the slow cooker, stir and leave it.

Well 6 hours later and the stew was ready. It just tasted so odd. Basically a very sweet, strange tasting stew. This can’t be right. So I got the recipe book out and looked to see what I could have done so wrong. How can this be. No mention of sugar or vanilla. I surely didn’t imagine those things. All I can think of is that when my back was turned the recipe book page flipped over and shifted to something like a cake recipe. So I basically tried to cook a Moroccan Stew and Cake combo. Maybe it’s the future of cooking.

Maybe that’s a game changing idea for the upcoming Great Bloggers Bake-off. Start baking a cake recipe and then half way through the preparation stage I randomly change the recipe page. That’s on the edge baking…

The Great Bloggers Bake-off takes place in July (18th & 19th). But if you fancy it, please start baking as soon as you feel the urge. Clearly I have….

Remember to send in your creations (you can start early) to Mel so that they can be featured in the Great Bake-off.

crushedcaramel@gmail.com

Let’s see if we can literally blow Mel’s socks off with our creations and monstrosities.

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An old trip out

This is from a couple of years back. A two hour car drive to the west side of Northern England. The Lake District. A place that sometimes feels just a little bit Alpine.

We stopped off at Castlerigg Stone Circle. One of the countries finest historic sites set amongst the countries highest mountains. It’s was erected in the Neolithic period. Sometime around 3000BC. Yes even before I was born. It’s one of those special places. Yes it’s popular picnic site now but it still has an atmosphere. It just feels different. Many years ago after a days climbing, I spent the night here. Just sat on the ground in the middle of the circle. I’m not sure why. Maybe waiting for a ghost or something. Didn’t see anything but when I walked away after sunrise, I had never felt so calm and relaxed. It’s that type of place. I could so imagine a great fantasy author coming here for inspiration.

What struck me about the second photo is the look on my two faithful companions. New visitors had just arrived at the site. The four legged one, I suspect was eagerly checking them out for food or toys. The young boy was definitely not so eager. Once the site started to fill up a little then it was most definitely time to go. Crowds and Aspergers are not great bedfellows. That’s why the time to visit places is such a delicate scheduling task. The choices tend to be

  • Go when the weather is bad,
  • Go just before they are closing,
  • Arrive super early. Try to get round before the masses start to arrive.

As a result visits tend to be fleeting. They also sometimes require really early starts. In this case we set off at 5am. That’s not ideal but needs must. One definite advantage. Nothing better as you drive away from a site and passing the traffic queues waiting to get in. Does that thought make me a bad person….

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Movies

We are running out of sun cream this summer….. So need protecting from the unbroken sun beating down on parched Yorkshire……

Over time you find ways to protect your inner self and your family. Unlike sun protection, these things are needed frequently here. With Son’s Aspergers he can suffer with severe anxiety attacks. To be fair I struggle as well. But over time you find ways to block out the anxieties for a little while. For me the best blocking techniques are running, exercise, music and climbing. With Son it’s dreaming, talking and watching wrestling. One thing that works for BOTH of us is watching movies.

I remember being told by various parents that I should limit screen and TV time. It’s bad for all kids. Apparently it’s ok for the same parents to watch as much TV as they like. Ok. We need to remember that all kids are different. Unique personalities. What works for one child may not be suitable for another. In the case of our Son, movies help brake the downward descent into an awful anxiety whirlpool. So when he needs to, he can watch a movie. If it takes two movies, then it’s back to back cinematic viewings. I guess the ultimate would be to watch the entire Marvel Universe in one sitting…..

The other upside to movies is that it helps with my anxieties as well. It’s good sometimes to forget the current world and just escape. Son tends to be in full control of the movie schedule. His choices will work for me. Often these are cartoons. That suits me just fine as I’m a big kid at heart. Nothing better than 90 minutes of ScoobyDoo or Ice Age. Part of me secretly would love to be deposited in one of those cartoon worlds. They always feel so much safer and more fun than ours.

Well the other night we both needed a bit of cheering up. So we sat in front of the TV and Son scanned the available options. Which Scooby movie would he pick. He might even pick a Marvel epic. This is going to be so cool…. Five minutes later we were watching the Playmobil movie.

Now that was not what I was expecting. Son hasn’t played with a Playmobil toy since he was about 4. Ok I will just grin and bare it. Well I will go to the bottom of our garden. WE both loved it. So much so that when I couldn’t sleep during the night, I watched it again. Ok that’s my rock and roll credentials blown out of the water but so be it. Yes its not going to get any Oscars but it certainly wins on the anxiety blocking scale. Now am I too old to get out the Playmobil figures……

Unbelievably while writing this ….the sun has come out. Where is the sun cream.

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Quarantine and Mental Health

So pleased to have another wonderful post from Katie and Evee for you. Can’t thank them enough. They also have just posted something from me on their site as well. If you get the time please check it out.

Thank you so much.

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Our current Quarantine Routine, looks a bit like this:

– Katie wakes up and makes us both a coffee and works out

– We read, write, blog or go on walks or bike rides.

– Evee works out

– We cook dinner together

– We have our own evenings where we chill out, talk to our friends, or watch Netflix. (Evee falls asleep significantly later than Katie (usually with the odd noise complaint thrown in!))

At the beginning of quarantine, there was a clear and obvious push for people to make the most of this time. People were learning how to make banana bread, teach themselves how to do handstands, and learn Spanish or Italian. We also had good intentions; to paint, write, eat completely cleanly and have a strict regimented workout plan.

When we couldn’t bring ourselves to be productive, we were filled with guilt at the thought of wasting this precious gift of time ( https://thegriefreality.blog/2020/05/06/the-gift-of-time/ link if possible ☺ ). It was almost too easy for our minds to wonder back to the days of our own lockdown after Mum’s funeral and the depression that followed. During these days, counsellors encouraged us to mark small things as “wins”: showering, exercising, or eating healthily. But also, to the even smaller wins, like waking up in the morning, making the bed.

After our mum passed away, we were completely alone. As said beautifully in Gary’s post, there does come a point when people stop checking in and stop asking how you are. Apart from a few golden people, many individuals you thought were going to be with you until the end, become memories as well. It is a desolate place to find yourself in.

Thankfully, we have always had each other, and through trying to look after one another, we found ways to build ourselves back up.

Simple acts of self-love may appear futile or irrelevant when the future holds so much uncertainty, but we cannot imagine what our health and wellbeing would look like without them.

Lockdown has been a journey and has impacted our mental health, alongside thousands of others’. For us, it felt hauntingly similar to those grey days of 2018 that bore witness to some of the darkest moments of our lives. But through self-care, we learnt self-love.

Self-care grew to become an essential part of our healing and an ongoing exercise for our health and wellbeing. It is a wonderful thing to do that we strongly advocate, and promote heavily on our blog: Plant those little seeds of self-love into your body and mind.

As with any new exercise, it has been a difficult lesson to learn. But today when the world finds itself in so much chaos, we know to focus our attention on making ourselves feel happy and healthy. Eventually, our calm approach to life and clarity come back to us, and we ground ourselves once again.

One simple act of self-care is to sit in the bath, with a face mask, cuppa tea, bubbles and a coconut oil hair mask. It truly is amazing how much these luxuries make a huge difference to our wellbeing.

We have linked a post of little self-care tid-bits, everyone can do; it doesn’t have to eat up too much of your time. (if you could link this post https://thegriefreality.blog/2019/04/03/i-dont-self-care/ that would be wonderful ☺) It can be as small as making yourself your favourite tea before bed.

Hold tight, eventually, the hustle and bustle of normality will resume, and when it does we hope you carry forward these acts of self-kindness. In doing so, we have no doubt you’ll be more than capable and prepared for it.

Katie & Evee x

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School at home week something

Still summer…

It’s the end of another school at home week. These weeks are just merging into each other now.

School at home has gone pretty well over those whatever weeks. Son has adjusted well to it. He’s been pretty relaxed but we have a cloud on the horizon. Next week the school is starting to bring in virtual classrooms and live teaching via Microsoft Teams. Son hates the thought of being videoed. He really struggles with it. Plus with the other kids present he will retreat into his shell again. So this new teaching development has filled him with dread. The technology will work. Will it work for all kids. Will it work for those kids with special educational needs. That’s a bridge to cross next week.

The other thing which has stood out is observing the impact a slight change in school routine can have on our son. And it’s not just the virtual classroom idea. Sudden and unscheduled changes in teaching style, teacher, timetables…. All these have a major impact on him. He becomes deeply unsettled and stressed out. This really compromises his performance. I’m not 100% certain schools are aware of the impact these things have on kids on the spectrum.

But back to this week. What has this slightly bewildered parent learnt.

  • Son can walk, eat, drink and use his iPad at the same time with ease. I struggle to walk without crashing into walls.
  • Two words have the immediate effect of sending me into the kitchen to eat junk food and find coffee. French and Drama….
  • How many lessons does a kid need just going on about how to make puff pastry. Surely Food Technology can find another food to look at.
  • Apparently the term for you arm hairs standing on end is Piloerection…
  • When I get the feeling that I am right and the science teacher is wrong on magnetic fields, it’s probably best to fact check my knowledge first……
  • Occasionally giving a kid a little constructive feedback on work might be a good idea. Most teachers do. Unfortunately some teachers give nothing back. That’s something like 13 weeks with nothing. Really…
  • Practicing tennis in the garden is difficult when you can’t find any tennis balls.
  • Practicing tennis in the garden is difficult without balls and it’s chucking it down.
  • Practicing tennis in the garden is difficult without balls, in the rain when you can’t find the tennis racquets.
  • Online French classes seem to drain the iPad battery much quicker than any other subject. This is bizarre as French vocabulary seems to have exactly the same effect on me.
  • It’s rather emasculating when your Son decides to film his own art cartoon project. The words maybe getting the cartoon in focus might be a good idea do sting….
  • When your son has Dyspraxia and Dad has basically got the artistic talent of a Brussels Sprout – trying to free draw a pie chart on the iPad is basically a waste of time.
  • iPad voice recognition works with hundreds of languages but can’t handle anyone speaking with a Yorkshire Twang. For example how difficult can it be for a machine to understand someone saying ‘Royalty’. As hard as Son tried the iPad kept hearing Roll over and when I tried it heard Reality. Remind me not to try it with a word like luck.
  • I can’t remember how to programme the microwave or where I left the TV remote control but somehow I can remember school calculus. How is that possible.
  • The school has done a great job in getting the school at home IT working. But it hasn’t cut down the paper usage. Since the project started in April we have used up a full ream of paper….

So another week down. I get the feeling next week will see the return of the really sarcastic parent….