Posted on by bereavedandbeingasingleparent · 30 Comments

Fence

Which side of the fence is best?

I had a call with Hawklads new health specialist. She will (pesky pandemic dependent) come out to see him for the first time in January. Continuity is so important for someone on the spectrum. It takes time to earn trust and confidence. Those bridges when they come down are slow to be rebuilt. Having had a wonderful health lead for three years we are now in a spell of meet one, quickly see one disappear. Fingers crossed this time.

It’s clear what the medical opinion still is. Any meaningful progress is extremely unlikely until this virus is well under control. When it’s clear that the vaccine which has been administered works effectively and does protect. Only then can any progress be realistically contemplated. Prepare to bunker down for 2021. 2022 might be the first gateway to a more open life for our little family. I also have to accept the risk that progress does not happen for Hawklad. Bridges are not built. This is the new world.

I remain clear. It’s Hawklads life. He makes the call. I will support which ever route he goes down.

So will he return to school in January? Most likely NO. Will he make it back before the end of the school year in July. Probably NO. Will he start the new school year in September. Definitely no guarantee.

It feels like we are in one side of a fence. The side that feels limited but safe. The other side of the fence opens up the world, broadens his horizons but…….

Posted on by bereavedandbeingasingleparent · 52 Comments

Say that again

Say that again…..

I so need to have a notebook which I carry around in my pocket at all times. Every time something is mentioned that has the slightest chance of becoming important then I could write it down. A permanent record to prompt my sieve like memory and stop those say that again moments.

Had a few too many of those over the last few days.

“Dad did you get the glazed cherries for our Christmas Eve treat?”

Say that again!!!!

“Dad did you buy the Home Alone 4 dvd for our Christmas Day movie?”

Say that again!!!!

“Dad did you phone school before they broke up to tell them that the Teams password isn’t working?”

Say that again!!!!

“Dad did you remember to make a donation to the school charity appeal last Thursday?”

Say that again!!!!

“Dad did you phone up XXXXXXX mum to get hold of their address so we can send them a card?”

Say that again!!!!

“Dad you haven’t forgotten that we are having Salmon to eat on Christmas Eve?”

Say that again!!!!

“Have we got the sausage rolls, French sticks, onion rings, pineapple rings, Doritos and mango chutney in for our Christmas Eve buffet?”

Say that again!!!!

“Dad did you remember that you said that you would send a copy of the family tree to Auntie Xxxx”

Say that again!!!!

“Dad did you remember to take the bread out of the oven. It’s been in there for most of the day and it’s looking a bit burnt.

Say that again!!!!

“Mr Xxxxxxxxx did you remember to submit form 5a. It needs to be received by the end of this month or the service will stop.

Say that again!!!!

“Ok you will need to give your dog these nasal sprays at least once a day. Will your dog sit still to let you do that.”

Say that again!!!!

Posted on by bereavedandbeingasingleparent · 58 Comments

Something needs to change

I was talking to a colleague about the lack of work currently. The company will probably survive but it’s going to be many months before things start to slowly pick up. Is it just me but currently I‘m not missing it. Yes the bank balance is only going in one direction but as for work – not really in the mood for it.

Anyway this chap has a son on the spectrum. He’s a lovely, really bright boy. A couple of years older than Hawklad. It’s a depressingly familiar school story. Hardly any support. It’s all down to him to put his hand up in class and ask for help. Nothing proactive. The teaching is not suiting him. He’s going backwards. His potential grades are falling and it’s not ringing any alarm bells. It’s because he is Special Needs. The bar is set low so that there is no need to work on potential. Anything is seen as a bonus. What a waste.

Too many wonderful kids get let down like this. How can we have got education so badly wrong here. Something needs to change.

Posted on by bereavedandbeingasingleparent · 56 Comments

Curve ball

Definite curve ball from school today.

I have wrote about the problems Hawklad has been having with French classes at school. The way the subject is taught just don’t suit him. Dyslexia complicates the learning process. Being at home adds to the difficulties.

I have been trying to get the school to modify the teaching approach in this one subject. Even switch the language to one which better suits him and one he is more interested in. Basically met with a brick wall. Then today’s curve ball.

The school doesn’t feel that he will be able to pass exams in this subject due to his learning issues. So they are now recommending that he drops the subject completely. Undertake no language learning at all. He would use the French class time to work on his other subjects.

So rather than try other learning routes they just want to ditch the subject. I’m kind of speechless. Will let Hawklad decide what happens next. BUT my initial take is that

…..Sadly it reflects the lack of flexibility in the UK teaching system. It also reflects the general approach schools take with those pupils who have learning disabilities.

Posted on by bereavedandbeingasingleparent · 38 Comments

Start again

Another Monday and the start of another school at home week. I make that Week 38. That’s a lot of weeks. Funny thing is that it doesn’t feel like 38 weeks. Somedays it feels like only a couple of months. Other days it seems like years.

In all probability during the early part of 2021 it will be a full year of schooling at home. That wasn’t really in the plan.

It has really all felt a bit hit and miss. Some good bits and some not so good bits. Lots of frustrations. But equally lots of laughs. Some subjects where the teaching is working. Others where after 38 weeks it is still a complete waste of time. But that’s thing. With having to stick to the school curriculum we don’t have much scope to change things. We are dependent on the school making changes. But they have to stick to the national curriculum.

But over those 38 weeks we have settled into a rhythm. Parent and Son. No need to set the alarm as we just naturally wake up at the right time. No real pressure if Hawklad starts a few minutes early or late. No need to think about breaks or food. They kind of just happen. We know which lessons will work and which won’t. If we don’t have an item for a lesson we now know how to wing it. We are not surprised by the lack of feedback. Hawklad doesn’t panic now if a teacher forgets about him. I get on with stuff until I’m needed to help out. The school week just happens now.

True homeschooling did feel daunting now it feels very doable. Tough but something we can cope with. But Week 38 also marks a dangerous time. That’s a lot of weeks of emailing and phoning school. Trying to make improvements to the teaching. Make it more tailored to Hawklad. Am I starting to take my eye off the ball. Not pushing the school as much. Maybe week 38 is time to refocus and start again. Or maybe it’s just going to be another one of those weeks. If I was a betting man I would put my money on the latter. It just feels that way.

Posted on by bereavedandbeingasingleparent · 69 Comments

Fibonacci

We had a bit of a perfect storm during the morning. AND for a change it wasn’t the Yorkshire micro climate to blame.

MATHS

In particular number sequences. A whole 90 minutes dedicated to the little beauties. Geometric, Arithmetic, Square, Cube, Triangular, Fibonacci. I always remember thinking Fibonacci sounded like a really cool wrestler. The Maths Tutor didn’t find that thought very amusing.

For those who quite rightly have forgotten mathematics from school and college, the Fibonacci sequence is where the next number is the summation of the preceding two numbers. One of those things you are taught and will probably never need it. Fibonacci has only ever cropped up twice since school. Annoyingly not in the school exam. I remember giving one unfortunate External Consultant a bit of a frosty reception when he tried to convince me that I should be using Fibonacci to better manage agile teams at work. I think the poor chap learnt some new Yorkshire words and was then ushered out to annoy someone else.

The second time Fibonacci entered my world again was today. This morning we discovered that our son struggles with number sequences. He just can’t see the patterns. It wasn’t helped by the frequent use of decimal points to make the patterns even more pesky. Much frustration. Son couldn’t see the patterns at all and his dad could see the patterns BUT I struggled to describe them in words. Clearly one of those things I can do with out thinking but I’m not entirely convinced how I do it. Bit like trying to programme the washing machine.

But here’s the thing. I convinced son that it didn’t really matter. If sequences do come up in the exam then they won’t count for many marks. He can still have a stab at them and if all else fails, guess and move on to stuff that he will be able to do. And after his exam unless he meets many keen External Consultants, he is unlikely to need number sequences again. He’s better off learning stuff he wants to learn and stuff that he will use.

Let’s leave Fibonacci as a wrestling star.

Posted on by bereavedandbeingasingleparent · 68 Comments

Well that’s sorted then

I was conscious that this Christmas will be different for us, different for Hawklad.

No end of school term activities and parties.

No Carol singing in the city while drinking hot chocolate.

No Santa Train ride. Ok we are doing our own car version.

No Charity Santa coming through the village on a trailer pulled by a tractor.

No festive walks along the beach and finishing off at a little cafe for his festive ice cream.

No visits to friends.

No family meet-ups.

No trips to the Christmas Market.

No trip to the zoo in New Years Day.

No family Christmas meal.

No Boxing Day walk with picnic.

No festive trip to the cinema to see a blockbuster and then whatever festive film they have showing.

No carol singers coming round the houses on Christmas Eve.

Basically it will be just the two of us and pets. Sticking to the house and garden. Maybe only one trip out to do the Santa Car ride. I was feeling bad about that so I brought it up with Hawklad. I explained the differences to him

……. so it’s going to be really different this year. How do you feel about that Hawklad?

“So no family at all?”

None!

“Absolutely no visitors?”

None!

“No festive trips out?”

It doesn’t look like it.

“Dad, can we order in extra pizza over Christmas?”

Yes Son.

“Well that will be just fine then…….”

Posted on by bereavedandbeingasingleparent · 81 Comments

Black Friday

“Dad what on earth have you bought…”

Tibetan Singing Bowl Set — Easy to Play with Cushion & New Dual-End striker for Holistic Healing, Calming & Mindfulness ~ Antique Design

It’s a Tibetan Singing Bowl.

“Why…..”

It was really cheap in a Black Friday sale.

“Ok Dad but why….”

It offers a multi sensory path to enhanced meditation and spiritual enlightenment.

“You’ve just read that from the label.”

Yep you busted me. It does sound good.

“So does an 100 inch TV and that would be much more useful. ”

Yes but the TV would not be less than £10. So tomorrow you might catch me sat outside creating some beautiful vibrations and hypnotic, haunting moods.

“Can I throw a bucket of water over you.”

What’s it feel like to have a really cool and hip Dad.

“I wouldn’t know. I can talk about having a muppet as a parent.”

Ok, do you think I should just use it as an ornament.

“Yes Dad but that still doesn’t change the fact that you are a monumental muppet.”

No I guess it doesn’t, especially when you see what I’ve bought next…..

Posted on by bereavedandbeingasingleparent · 50 Comments

Eat chocolate

I received a lovely present today in the post. The government support package for Hawklad will expire soon. So I need to reapply. Helpfully they have sent the 50 page application form to complete. I can’t submit the old paperwork and need to have more recent assessments and evidence. That’s a nightmare at the best of times but during a pandemic!!!!!!!

Only thing for it….. A bar of dark chocolate, a decaf coffee and listen to some angry music. Today’s choice, the latest from Roger Waters. That’s one seriously cheesed off artist recording those songs. That fits as that’s the music I would make today. Normal people are forced to jump through hoop after hoop for their kids yet friends of the Government are awarded multi million pound contracts without any due process. Roger Waters would certainly get the irony.

Well I then made a start. Book an appointment for a new assessment from a Paediatrician. On the waiting list. That’s currently a one year wait and growing. It’s a start…. Where’s the next chocolate bar.

But here’s the really scary thing. Our Son is fortunate as he has had some support. We somehow battled through the intentionally difficult minefield to get that. So many are either unsuccessful or are just missed. That’s the children, adult support is almost none existent. Discarded by our society that has its priorities so badly skewed. What’s the answer. Certainly to keep fighting. Most definitely to eat chocolate.

Posted on by bereavedandbeingasingleparent · 68 Comments

Wean myself off

This was last year. One hour into my trail run. Apart from missing the exercise I hope you can see why I miss running free.

Eventually you have to accept reality.

Hawklad’s anxieties are still rising. More routine tasks are becoming more difficult for him. He can largely control the dynamics within our house and garden. Lots of washing, extensive quarantining of items and being careful what he touches. He is ok within his castle walls. He is not ok with me venturing out.

Beyond those walls and that’s a completely different world. An alien, dangerous world to him. His doctors are clear – this will take a very long time to start to address. It’s not going to start happening until a pandemic is well behind us and as one of our leading scientists pointed out – with a fair wind we may start returning to something like normal life at the end of 2021. That’s assuming the new vaccines work and roll out soon….

So for me the reality is that our personal lockdown will likely stretch through 2021 as well. My mindset has to change. Away from getting through the next few months TO living the much longer new reality.

So back to the photograph. Running has become a bit of a drug for me. Now I have to completely wean myself off that. I’m nearly there as it’s been so long without it. Time to permanently replace it with other things.