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Two quotes

“I AM DIFFERENT NOT LESS” – Dr Temple Grandin

Another week we dust ourselves down and go again. Although the route is still shrouded in mist and we face countless dead ends – we must keep going. If not for me but for our son.

A session with a new health professional. Always a good sign when she does not ask me what I want, she asks our son. The health professional is going to contact school to see what work they have undertaken to help with our son’s handwriting. Assuming school has done nothing and has no plans to do so (which we believe is the position) then the health service will start a programme to help with his writing. This will be the first time in three years work that son will have had specific help with his writing. Let’s see what progress can be made, what writing aids help. If progress cannot be made then that might be the time we start to move away from pen and paper to keyboard and voice recognition.

So we start down another path.

These are the specific areas son asked for help with

  • Handwriting
  • Shoelaces and Ties
  • Holding objects like handles which require two hands.

Interestingly he sees Aspergers as who he is – his personality. Aspergers is not a label just him. However he now sees himself as not dyslexic.

The fact that I can now read some of the words and can mostly guess the rest means I’m not dyslexic. Now I’m just not very good at reading.

I think this recent view of dyslexia is down to school. Firstly school sees anyone with dyslexia as low attainment. Son hates being branded as below average. As a result Son sees dyslexia as an unwelcome label. Secondly the label dyslexic brings him no additional help from school. Whats the point of referring to yourself as dyslexic if it brings no support benefits and only results in being automatically branded below other kids in the class.

The bottom line is the school system has failed him. It has failed too many kids. That’s one of the reasons you read so many cases of great individuals who have decided to hide their dyslexia. Kenny Logan is a Scotland Rugby legend playing 70 times for his country. He choose to keep his dyslexia secret. From his team mates. Even from his wife. Only at the age of 34 did he finally seek help. On what planet can this be allowed to happen. So much wasted talent and opportunities. So much stress and suffering. This is nothing short of a disgrace.

I started with a quote and I will finish with one. One from our son

When someone has a disability your not allowed to discriminate against them. If your in a wheelchair you shouldn’t have to put your hand up for help. So why is it that when someone has an invisible disability you can be ignored and that you have to say ‘Please will you help me’ and when they ignore you it’s not discrimination.

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Took its toll

A brief few moments of calm and mellow light before the dark clouds rolled in and it absolutely chucked it down – AGAIN. A photo sometimes doesn’t tell the entire story. It doesn’t show the person behind the camera. Caked in mud and water dripping off his sodden clothing. The lane in the distance looks inviting through the lens. Really! In practice it was stream. Torrents of mud and water making it a runners nightmare. But for these brief moments it did look pretty.

The other thing the photo doesn’t tell you about the lane is the surface condition. It’s a dirt track. Trying to navigate the exposed bedrock, ankle breaking potholes and badly eroded surfaces. I first ran down this path in 2010. The new nursery was close by so I could occasionally squeeze in a quick run before it was time to pick up our Son. Then it was a beautiful lane to run down. The surface was in a wonderful condition. Flat and ever so forgiving. Clearly the decade took its toll.

Sadly it was not the only thing that the decade took its toll on. As my MP3 player had run out of juice, pondering on this helped take my mind of the battering my knees and ankles were taking.

  • The Dreamer has seen his soul darkened,
  • The thick mop of black hair now more resembles a badly worn corridor carpet,
  • The body once fluid is a little more wooden,
  • The knees once strong are a little squeaky and in need of oiling,
  • The reliable feet now most definitely over pronating,
  • My pert bum is definitely more rounded. To the extent that it has developed its own gravitational pull.

But that’s life. I can still smile. I’ve still got my best feature – my long eyelashes. I’m probably stronger and fitter than I was back in 2010. I was drinking far too much in 2010 and now I’m completely tea total. My excellent sartorial taste is still with me – bright pink leggings today. I’m certainly more resilient these days.

So yes the decade has definitely taken its toll on me but that’s not to say that actually I might be a better person for it. Which neatly brings me to saying thank you to Di for tagging me for the Ten Years (2010-2020) challenge.

Play Along Guidelines

Please share a link to the creator of the tag-jesusluvsall.wordpress.com

Share some highlights for you over the past decade and if you want, a few low points

 Tag whoever you wish to.

Ask them some questions

Use any picture appropriate for such a tag.

Going with the last guideline first, I’m also going with Rory’s choice as it works on so many levels!

So here goes then….

Is there any year in the past decade that stands out as the best?

2010. Son was a bundle of joy and energy. This was probably the last year my partner was truly healthy. Best winter in ages. Plenty of snow which hung around for two months. It was properly cold. Didn’t feel like Yorkshire. It was a dry cold. More Alpine. It was snowman central in our garden. The first snowman lasted 10 weeks.

Has your taste in music changed in the past ten years or do you think music in general has changed?

Went into the decade a metal head who liked classical music. Left the decade as a metal head who liked classical music and who plays a little bit of Leonard Cohen.

Are you heavier or lighter than you were ten years ago?

I have much improved muscle mass density with some incremental drift on the biometrics …. in other words heavier….

How many cars have you owned in the past decade?

Two plus my partners car for 2 months until it was sold. I think she would have been smiling down at me as I tried to drive her automatic which was the size of a glove compartment.

Highlights of the decade

  • Son
  • Switzerland
  • Partner

Low points

  • Death
  • Constantly trying to push up hill on support for Son
  • Rupturing Bicep
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Earthquakes and The Scottish Play

Finally succumbed to the New Year ‘Sort myself out’ bug. So the Gluten, Soya, Caffeine, Dairy, Meat Free diet is back in force. Whats the old phrase – in for a Penny in for a Pound. So on top of that it is a fasting type regime as well. 10pm to 4pm no food. Allowed to eat in just 6 hours everyday. If I was sticking to the 8:16 diet then I could start eating at 2pm but as Son is not back from school until 4 then might as well wait. It’s funny the effect it has on me. Even a simple bowl of green salad takes on an out of body experience at 4pm. Almond Milk becomes pure nectar.

Anybody who experiences the pleasure of IBS will probably understand the length you will go to try and sort your innards out. You realise it’s unlikely ever to be that magic fix. You happily settle for work around that settles things down for a few months. As you get older more items are added to the banned list. Or at best the once a year I’ve got to have my fix and will take the consequences list. It never seems to be the boring or least favourite foods does it. This Christmas shockingly Marzipan has been added to the naughty list. Absolutely heartbreaking. It’s bizarre as Almond Milk is currently fine with my body and yet Marzipan…… So if you ever see me in the street looking like Mr Creosote then you know I’ve just succumbed to Marzipan with a large coffee.

Anyway the diet switch has been surprisingly easy this weekend. As soon as we have got up Son has wanted to play football in our mud patch and then take the dog for a walk. It’s helped pass the empty feeling hours. Frustratingly the football was set all day in a misty and rainy backdrop. Only as we started to pack up did the clouds finally part and we got to see the last embers of the setting sun. It will be a brief interlude as another Atlantic Storm is flying towards us. The Trampoline is hopefully well and truly sandbagged down.

So now we prepare for school. Last week was best described as a holding pattern. It didn’t get worse but certainly didn’t move forward. Currently we are trying to revise for a Science Test. For whatever reason Son suddenly gets areas of knowledge that he just can’t visualise. Being dyslexic visualisation is his memory method. I’ve previously talked about his struggles with decimal points and shapes. We can now add Waves to the list of struggles. Poor kid just can’t get his head round them.

Dad not sure I‘m going to do very well on this one. Can’t even spell Electromagnetic or Longitudinal. So even if I do fluke the right answer I still won’t be able to write it down correctly. Maybe as I’ve been practising for a Shakespeare spelling test I should just put down random bard words. At least they will be sort of spelt right.

That did make me smile. Imagine the look on the Science Teachers face when the response to the question. Which of the two types of wave produced by an earthquake is the first to arrive at a location. And will it be the P or S wave? Is as following

Macbeth and Stratford upon Avon.

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Lakeside

New Years Eve. A walk to a local lake. For our Son a good walk as apart from a couple of anglers we had the place to ourselves.

This might have been the first place we walked to when we moved to the village. A time before parenthood. But parenting was at the forefront of our thoughts. It was the main reason we left the city. It looked a good safe place to raise a family. A perfect fit.

Fast forward far too many years and again I’m walking around this lake. This time as a parent. Still thinking about parenthood. Realising with hindsight what an excellent location choice we made. It’s perfect for our son. A landscape which can inspire dreams. Quiet. Isolated.

Yet even here sometimes it’s not isolated enough. Two anglers fishing at the far corner of the lake. A hundred yards away. Yet son still pulled his hood over his head and talked quietly. Just in case. It’s so difficult for him to interact with our society. Imagine how difficult it would be for him if we lived in a busy city. How difficult it is for him trying to learn in a school with 800 pupils.

Looking back to my life I can understand his anxieties. I can understand the effect those two anglers can have. I’ve always struggled in social settings. People thought I was outgoing and confident. They didn’t see the nervous kid with a stammer. The child only truly at ease when he was playing by himself. Only happy to laugh and joke when in small groups of trusted friends. Or within a trusted sports team where I would allow myself to take down some the self erected defensive walls. Yet throw in a stranger and I clammed up. I remember the teacher telling the class that the next day would be different. Kids from another school would be visiting us. The thought of strangers spooked me. The next day I bunked off school. As I walked towards the school gates I panicked. I spent the rainy day crouched under a bush. As an adult again I was often seen as the outgoing confident joker. Oh so wrong. Often my social skills needed to be fuelled with alcohol. Those antics masked my anxieties. I kept to a small circle of close friends. Avoided strangers. Constantly battling with my insecurities and nervous stammer.

These years later I’m still wracked with social anxieties. Now no alcohol to fuel the alter ego. So yes I can understand what our Son is going through. I’m no expert but what he has to deal with makes my struggles look like a cakewalk. So everyday I ponder on ways I can find to help him with his anxieties. Yet apart from Sport, Alcohol and hiding under bushes I’ve not been able to help myself. Maybe we could add – walking around completely deserted lakes to the list.

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It’s such a hard life

Time for some random words.

Subservient Tudor Expect Discipline Chaperone Accused Suspicious Breadwinner Complicated Stereotypical Shakespeare Elizabethan

A few beauties from this weeks school spelling test. Is this really a level playing field for kids with dyslexia. I remember joking that in a few months he will have to learn the spellings of dinosaurs. Dinosaurs like Micropachycephalosaurus. Well the way these spellings are going I’m not ruling it out now.

A bit of a test day today for me. Trying to work from home completing jobs usual done at the work base. Reassuringly it went well. So well that I managed to complete about an hour ahead of schedule. With an empty work list I managed to go for a run. A chilly and very windy run. It was also quite a ‘hurty’ one. I was convinced that my knee and foot were playing up. At the end the real reason became apparent. Thankfully not my body. The shoe soles had worn completely through. Might as well have just run in my socks. Captain Chaos was in raptures. Two old trainers and a pair of running socks to chew and bury. After a frantic hour of digging and re-digging the poor chap was tired out. He needed a few quiet moments with his teddy.

It’s such a hard life….

Maybe I don’t need to replace my running shoes. If and when homeschooling kicks off my opportunities to go out running will be severely curtailed. May need to think about looking out for a second hand treadmill. When Son caught me looking at eBay he added to the shopping list. So on top of a treadmill apparently we need a second hand cinema sized TV, a slush puppy machine and a chef. Maybe we could find a chef who specialises in funny coloured iced drinks. With that thought swirling in my head it was time to take The Cap for his walk. Luckily I do have an old pair of trainers which still have some tread. But strangely I couldn’t find them in the shoe rack. Oh hang on. Worryingly I found the sole-less running shoes next to the dog basket. So exactly which shoes did he bury then. Bugger. Yes in a hole in the garden are my one usable pair of trainers.

It’s such a hard life….

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Green and pleasant land.

Welcome to Britain. A green and pleasant land.

A country where this man has just won a massive majority. A man who continues to cover up his repeated cockups which has led to a British Citizen bring help in Iran since 2016. Now his focus is on trade deals and turning the country into a trumped up lap dog. Sadly the poor British Citizen can’t offer a trade deal so she is stuffed.

Where this man from our Government claims that he has more common sense than those who died in the Grenfell Tower Disaster. He has made millions from his hedge fund company on the back of Brexit.

Where this man has been our Schools Minister since 2014. The man responsible for the current state of our schools. The man responsible for the introduction of testing for 4 year old kids. And the man who said kids taking time of for bereavement was like an extended holiday.

And a country where this man has just been awarded a knighthood. A man who introduced sweeping and brutal benefit reforms which has led to unprecedented levels of misery and is probably responsible for the deaths of hundreds who lost benefits.

Britain a green and pleasant land.

*** the photos of these lovely human beings are from The Guardian, Inside Croydon, Yorkshire Post, Change.org

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Red School Sky

Red sky at night ready for the school fight.

So the dreaded hour is fast approaching. School opening its gates again. Feel so sorry, sad and angry for the kids like our Son having to face up to the nightmare which is modern schooling. I use the term modern in its loosest sense.

Increasingly my thoughts are turning to homeschooling. When to flick the switch. How to make it happen. Trying to stress tests the plans which are swirling around in my pea soup of a brain. Which options are best. What fits best with our circumstances. The aim being to have a workable plan in place by the end of February. As ever Son is the voice of reason. In fact as it’s his future he is driving the process. It has to be that way. He really isn’t happy but he’s giving the new term a go.

Dad going to give it a real go. Want to either see me moved up in the subjects I’m good at or want to be helped in the ones I struggle a bit in. Just one subject move would be cool.

“It’s not the subjects you struggle in. It’s the way the teachers judge you in those subjects. It’s never about the stuff you know. You have never had one comment about that. Remember what that teacher said last year – Don’t let anyone tell you your not clever. You are. The problems are not yours. It’s ours. We need to find better ways of getting the stuff in your head out into the wider world.”

Ok Dad. Well let’s see what happens. What’s the plan if it goes pear shape this week at school?

“Send you up chimneys to earn some money to pay for my rock and roll lifestyle”

Are you joking?

“Sorry, yes son I am pulling your leg. At least you can fit up a chimney.”

Your bottom would me a fine chimney sweeping tool. Not much would get past that.

“Let’s hope that school goes really well and your super happy. Let’s cross the over bridges if they happen. Most bridges are good ones.”

Which bridges. If I remember correctly we drive over 5 on the way to school.

And the voice of reason brings his Dad back into the real world again. So many options to consider.

  • Online tutor v Local tutor.
    How much will I teach. I can certainly do Computing, Mathematics, Science.
    Subjects like Geography and History maybe we just let him run with it. As last years Class Teacher said ‘you probably know the subject better than me already“. Just concentrate on how to access his ideas. Find the best way to express them.
    How to tailor some of the tuition around times that I need to go into the work base.
    Restructuring work to fit round the new world. Luckily I can probably do this. Just maybe will have to put off buying that sports car for say the next 100 years.
    When we move into the 15 and 16 age range how to handle examinations. Some of the colleges have courses for qualifications he could opt for. Would that work for him. Or do we go the tutor or online tuition routes.
    Languages – how far do we go down the online packages route such as Rosetta.
    Ways to ensure that he can socialise when he wants and needs to.
    And on and on

So much to consider. Maybe just maybe school might step up to the plate and this is never needed. That is probably a pipe dream so it’s time to sort this out. It will be a reassuring feeling when a plan is in place. When we have an idea what his education week and plan will look like. To our Son that level of practicality is an essential part of the transition process. It will help him at school knowing that he has a Plan b.

If anyone reading this has ever homeschooled then it would be great to hear from you. Either as a comment or email. What did your ‘learning week’ look like. What approach did you take. I’m sure this wont be the last you hear of this. I think the more we can talk about homeschooling the better. In many places it’s still frowned upon or it’s seen as a bit of a dark art. Maybe people should frown upon the mainstream school system instead.

I will leave you with one final thought.

Dad Santa can get down chimneys so there is always hope for you. There is always hope.

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Flick the switch

Ans so the transition begins.

A transition from a happy and relaxed boy to one wracked with doubt and anxiety.

School starts to flick the switch again. How many kids are going through this experience. Far Too Many.

Here the school prison gates open on Monday. Son’s words not mine.

So on this glorious winters day he tries to wade through the homework which was dished out before Christmas. He spent an hour trying to sketch a mirror image of a Scream like skull photo. The fear of picking up a negative for not putting enough effort into the drawing driving him on. Sadly I fear it’s also driving any love he might have for art well and truly out of his system as well.

Once the skull torture was finished. He started work for two upcoming spelling tests. Then time spent on Science, Mathematics and French work. Finally he needed to work hard to complete a writing piece neatly. His teachers words. Whats the point, going to get told that it’s not good enough, I haven’t tried enough and it needs to be done again. Son’s words.

This really can’t go on. Son deserve so much more than this. So many kids deserve better than this. Is it so difficult to make education just a little less daunting and just a little bit more inclusive. What’s the word I’m looking for. Welcoming. Another word. Enriching. Another word. Fun.

Who am I kidding. It will be the same school that he was so pleased to escape from before Christmas. But 2020 feels different this time. This time the prospect of a positive change has dimmed significantly. Our Government is now in place until son will have left secondary school. It is committed to extending the current education philosophy which has already created this hell hole. We are now facing a real risk of son being failed for the entirety of his school life. That’s a sobering thought.

2020 will start with yet another push to deliver any positive change at all. Again school and teachers will be told exactly what actions and support son needs to be put in place to make his schooling work better for him. The dialogue will be constant – certainly from my side. But deep down I know what the likely outcome is. So this year the question is probably more about what it will take for us to flick the switch and turn off this failed schooling nightmare. If we were still a two parent family then the switch would have already been flicked. Homeschooling. With Single Parenting it’s more fraught with logistical and financial issues. So many issues to address. BUT son only gets one childhood. One go at his formative years. Flicking the switch is increasingly looking inevitable.

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New New Year Tradition

We brought in the New Year by watching End Game.

Dad got to end the decade with the highest grossing movie. Wonder what movie will be watched in 10 years time. Please don’t let it be Avatar 2.

The movie was paused at midnight so we could see how many fireworks were let off in the distance. Living on a hill we often get a wide range of free displays to view. In the end a few but not as many as usual. Then it was time to go back into the house. As a kid this was a big deal. LETTING IN THE NEW YEAR. The youngest in the house would be thrown out of the house a few minutes before midnight. Thrown at without a coat regardless of the weather. Bit of a bugger when I was always the youngest. My job would be to stand outside and basically freeze my nuts off. Then at midnight I would be allowed back in carrying a piece of coke (coal) and a new coin. I would then have to go round every room in the house wishing happy new year. I always found the tradition thoroughly cold and most definitely bizarre.

A couple of hours before this midnight our son had asked about traditions. When he heard about our old bizarre ritual he decided to start his own.

Dad let’s restart your old family one.

“Ok I’ve got some coins but I definitely don’t have any coal. Suppose we can see what stones we can find in the garden. Probably got some black paint somewhere,”

No Dad got a better idea. Much simpler and definitely more tasty.

So a few hours later son welcomed in the new year. Visiting each room carrying one pound coin and a bottle of Coca-cola. A New coke tradition started.

After a couple of hours sleep it was then an early drive to the Zoo. We have done this for the last four January 1sts. One of the first traditions started after his mum died.

Arrive when the zoo opens and try to get round before the crowds start to arrive. Basically we need to be back in the car by no later than midday.

Some traditions never die out. Dad being a plonker.

“Son looking at the map the zoo has a bug zone. Not seen that before.”

Dad the zoo doesn’t have any spiders or bugs.

“The map says bug zone. So which bug do you hope they have”

Well I wouldn’t mind seeing a Tarantula. Maybe a Goliath Birdeater. Bullet Ants. A Tarantula Hawk would be cool. Quite excited now.

“It’s just round this corner”

Dad you complete muppet.

“Erm. Not quite what I expected but you don’t see many 4ft ladybirds……”

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Pesky New Year

A late evening walk. Not easy for our son. Full of anxieties. But he only had 36 hours to meet his goal for the year. Twelve new places visited in 2019. We had two more to tick off. Too many crowds at the places we ventured to over the last few weeks. So a walk in a desolate dark wood became the next best option.

New Years Eve brought a walk down a little used path. A path that took us to a couple fishing lakes. Thankfully few anglers today so we could have our space. Son counted this as his 12th new place visited. His goal achieved. Not an easy goal for him because of his social anxieties.

*******

Dad I’m going to set a target of 15 new places for 2020. Surely we can find 15 deserted areas. Maybe one or two places will be allowed to have a few people there. Are you going for any New Year goals?

Just my usual trying to end up looking like George Clooney.

Who is George Clooney? Is he cool?

He was Batman.

That’s cool enough. Don’t expect any help from me getting you into the Bat Suit.

No I suspect I would need scaffolding and a construction team for that.

*******

2020 goals……

The only thing I’m specifically aiming for apart from looking like a George came from a blog I was reading this week. It mentioned changing things up. So I’m going to do some writing which takes me out of my comfort zone. Not sure what yet. Maybe I will write a professional looking post. That will be a first. Any volunteers for the ghostwriter for that one.

2020 goals……

Apart from that writing one I can’t think of any new ones that will stick. This year it feels like just dusting myself down and going again. I do tend to struggle with Day 365 of the year.

New Years Eve. I hate it. I’m sorry I just can’t buy into the fondly saying goodbye to the current year. Let’s look at all the highlights. Then welcome in the new year. It’s a new beginning. Is it really. You wake up January 1st to find that your slate has not been wiped clean. Sorry that’s just me. I’m so pleased for the people who can see the New Year so positively. I just can’t.

This year we add the end of the decade. Pictures of people ten years ago and now. For us it would be a family of 3 and now a family of 2. Not going down that road tonight.

So for those who enjoy New Year then I wish you a really happy time. Hope it’s great for you. For anyone who feels like me – I send you all my hugs and we will hopefully reconvene on the other side of this pesky midnight.