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2024

I’ve done my Sunday morning exercise session. The poor bike is a bit like me, during every session something either stops working, starts creaking or drops off. So the bike is going into therapy for a day or so. Can’t think of a worse punishment than having my large behind perched on you for that length of time.

So now I’m sat outside. Now that’s a rarity. Sat with my iPad typing these ramblings. This is my view.

Apologies for the legs and yes my trainers are in real need of replacement. Actually forget the trainers, my body is in need of replacement. I’ve used this one up, can I have another one.

During the lockdown I just haven’t found the time to sit outside and relax. Where does the time go. Its not as if I am undertaking any huge Home Makeover projects or painting a landscape masterpiece. I guess it’s a reminder of the investment you need to make when you signup to a parenting gig. The greater the investment, the higher the chance that your parenting will actually prove worthwhile for your kids.

But this sunny morning I’ve found the time to sit for a few minutes. The main reason is that I’ve just seen the weather forecast. It’s back to proper Yorkshire weather this week. The next scheduled settled sunny spell is not forecast until sometime in 2024. So I had better make the most of that bright yellow thing in the sky while it’s still here.

Looking at the view and the sun slightly hidden by early morning thin mist, reminds me of the ending to last nights movie. The last Star Wars movie. I won’t give away the ending or the key story moments. Mainly because I am waiting for our Son to explain them to me. I found switching off the brain and ignoring the inevitable questions, actually turned the movie into a really fun adventure yarn. Visually and sound wise it was stunning. However the repeated interjections from my resident film critic suggested a few too many issues with the storyline. The general message seemed to be – I’ve not seen so many plot holes since we watched the Alvin and The Chipmunks Road Chip Movie.

And with that the clouds have moved in. So like the current Star Wars story arc, our summer is FINISHED…

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It’s back to online school

Orange sky at night homeschoolers delight?

This weekend we return to the wacky world of schools version of home schooling. When we joined thus school, all parents had to buy an iPad which would become the school iPad. It would be integral to the teaching approach. It never seemed to be fully exploited. Well that was until the schools went into lockdown. Now it’s allowed the school to run the usual school timetable completely remotely. After a few weeks we can confirm that the technology works well. The quality of the lessons varies between subjects. Some of the lessons just feel like it’s basically read a text book for an hour. Lessons like Mathematics have used existing online teaching apps which work really well. To that extent it definitely feels like Maths could just become a home based lesson as standard, with the teacher just providing a guiding overview and tracking development.

Lessons like History can be so hard to bring to life. They tend to be too dry for many kids purely delivered from the classroom. Anything which opens up this teaching approach gets a thumbs up from me. Suddenly History is exploiting interactive media. How about the next stage being history lessons delivered from local historical sites.

P.E is a subject he dislikes at school. Too much pressure, too little time to change clothes in cramped and noisy changing rooms, so many kit items to remember. Yet at home he has loved following the lesson requirements in the safety of his garden. English is another subject which has worked much better in the home. At home Son is much more relaxed and will happily ask for help. In the classroom he just won’t ask….

What hasn’t changed sadly is some of the marking and review processes. That doesn’t apply to all the subjects. Some of the comments are supportive, encouraging and helpful. Unfortunately too often correct spelling is stressed rather than actual content. How is making a dyslexic type out each spelling mistake three time going to help him. It will certainly knock his confidence. He had to submit a project which he worked really hard on. When I checked it I was seriously impressed. I learnt a lot from it and I got an A in that subject at college. Yet when it came back from the teacher the only comment was that it was ok and please correct the spelling mistake…. The look on his face when he read that feedback told me everything.

Then we have subjects that won’t accept work unless it’s done on paper and then submitted via a photograph. What is certainly not helpful is making someone with handwriting problems write (not type) work out then mark it down as not being good enough and needs more work. What’s not good enough is that teaching approach.

Going forward he is happy to keep working through schools online programme. He is hoping that it will run for the rest of the school year. From a parenting point of view, I’ve got used to it pretty quickly. The quality of the teaching has varied between subjects. But without a doubt Son has been much less stressed out about school. The question will be what happens when schools reopen. Ultimately it’s his call. If it’s September then has time to have a good think about if he wants to return or opt for full home schooling. At least now we will have a better grasp on what homeschooling may entail. What works for him and what needs changing. If schools open in the short term then it will force his hand. In the current climate and without significant change in school practices, he’s just not ready to go back. I suspect it’s the homeschool option. At least he won’t be crashing into homeschooling, he will have already tipped his toes in the water. And whisper it quietly, it’s not as daunting as it seemed 6 weeks ago.

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Ever shrinking world

A photograph from our garden. Just five paces from the door. Part of Son’s world.

Our Son really struggles with health related anxieties. I remember the first pamphlet his Doctor handed to us about Aspergers all those years ago – second bullet point – may encounter obsessive fears over health and hygiene. For our Son they were real, life altering fears. Then in quick succession he lost his mum and both grannies. The fears became even more scary and real to him.

In the early party of his Aspergers life he was under the care of a wonderful Clinical Psychologist. She slowly helped but then she retired (and was never replaced due to the decisions backed by many of those in our current Government). His care became a real hotchpotch which achieved very little. Then we were so lucky. Son’s case landed on the desk of a young nurse health counsellor. Since then she has been the only constant through his care. Now because of Government cut backs, she is the only specialist help he gets. Although not an Autism expert she has patiently worked with him and delivered real benefits.

His fears became manageable.

Due to our Governments continued running down of the NHS, her workload has become ridiculous. She just can’t spend the time she needs to with him. But she does what she can. She still cares.

Then 2020 hit. Is it really only 4 months old…….

His fears have gone off the chart. Can you blame him. The worlds gone potty. Everything is up in the air and showing no sign of settling down. Because of the new clinical rules his wonderful health counsellor is not allowed to see him until after the crisis has eased. Being realistic that’s not going to be until the back end of the year at the earliest. So he’s started burning his bridges.

Bridges is a theme I am sure I will come back to over the coming weeks. The world of autism and the big bad world don’t naturally coexist. They are often separate. Links and bridges need to be built. Unfortunately the big bad world is not interested in developing links. It’s been up to our Son to try and build the bridges. That’s allowed him to enter the big bad world. Those links have never been particularly strong. NOW HE HAS BURNED THOSE BRIDGES. The outside world is just too scary and full of dangers. He has bunkered down to his house, his back garden, his world.

The thing is that when things start to improve again. And they eventually will. The big bad world will make no effort to rebuild those bridges again. One lone nurse counsellor will try. I will try. Sadly, I’m not entirely convinced Son will make much of an effort this time. Maybe in the future he will but it will take time. In the meantime his world has shrunk.

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Return or not

WARNING: This is a covid related post… it may contain grotesque examples of confusion.

This friendly bird is a frequent visitor who keeps returning for a daily meal. A visitor who doesn’t bother with social distancing rules but is far too fast for my poor mobile to get a truly in focus picture. On the subject of RETURNING.

The school return question is starting to be vexing again. When the schools closed down a few weeks back the advice was that they would be closed indefinitely. Exams in June and July cancelled. They would certainly remain closed until the virus was under control and the country had implemented systems to keep track infection rates. A return was not going to happen until it was safe to do so.

Let’s set the context in the UK.

  • Each day a 1000 people are dying in hospitals as a result of the virus and the numbers are continue to rise. The UK is likely to have the highest mortality rate in Europe,
  • That horrendous number does not include the many deaths occurring in care homes and in household settings. Up to half of all deaths could be occurring in care homes,
  • Medical staff, care workers, teachers, bus drivers, people who have attempted to self isolate are continuing to die,
  • 5 under the age of 20 have died,
  • Each day something like 40 people die from this virus who have no underlying health issues,
  • The official ‘those at most risk’ list has clearly missed off many thousands of vulnerable patients,
  • Currently the UK can only perform 18000 virus tests per day. That’s not even enough to cover the urgent requirements of our front line staff,
  • Unless your the daughter of a government cabinet minister you are unlikely to be tested if you are self isolating at home,
  • We are still to introduce a virus contact service or app,
  • Even based on the country’s inadequate testing regime we officially have 84000 cases recorded.

That doesn’t strike me as under control.

This week the governments’s appointed scientists and will meet with the Cabinet to consider the lockdown arrangements. The government are keen to reopen the economy as a matter of urgency and revert back to the original herd immunity strategy. Even though growing evidence is developing that people can be become infected more than once. How long any acquired immunity lasts is still uncertain. As part of demonstrating that we are getting back to normal many in the government want schools to reopen ASAP. Certainly well before the ban on mass gatherings are eased. The argument is that kids are at a lower risk of serious complications.

Ok I fully understand the need to start living again. I hope it’s done as quickly as it is safe to do. If decisions are truly based on the best and broadest scientific advice then I think many of us will support that. But then I put my parent’s hat on.

Parents potentially are going to face a decision in the coming weeks. A decision where there is no right or wrong answer. If schools opens early, do I send our kids in. That is a personal decision and not one that I will allow the Government to take for me. Personally this revolves around a number of factors

  • Kids may be at a lower risk of serious complications but that it not NO RISK. Already 5 under the age of 20 have horrifically died,
  • UK schools are not designed for adequate social distancing or effective hygiene. Too many kids, teachers and support staff are crammed into out of date, inadequate facilities,
  • Homeschooling v Schooling – not planning to go there today,
  • The anxiety and stress the return may place on our kids. Some kids may be busting to meet up with friends again and start being a school kid again. But equally many will find the return stressful. With our Son’s Aspergers he struggles with many social and health anxieties. He has a huge issue with the fear of hygiene, illness and death. Co-vid has sent that off the chart. To the extent he struggles to leave the confines of our front gate these days. If we do venture out then it’s a quick walk, keeping at least a field distance between others and not touching any surface. That’s walking a dog in a quiet village, what on earth will it be like when we are talking about a confined building with a 1000 people. The medical support we might be able to tap into to help with this has been cut back by the government. The service is stretched and is currently not able to do face to face counselling until later in the year – currently it’s not deemed safe to do so.

So it’s a personal decision. No right or wrong decision. We all are just trying our best to navigate this mess. For me (with my parent hat on) I can’t see any foreseeable set of circumstances where I would be willing to send him back into school this side of September. But it’s a personal decision. It’s his decision. So when the times comes that the school is open then it’s his call completely. It’s his risk, his stress, his life.

Stay safe people.

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Care Bear

The kindly local farmer has been most busy this year. Much needed light amongst the darkness. The Care Bear is well off the path so is maintaining at least 4m of social distancing. That’s a good idea as it was windy.

On the dog walk this morning we saw a number of cyclists and runners on the distant country lane. They were all trying to observe the new social distancing advice. All seemed to be keeping the 2m recommended separation. But is it enough. I was reading an article by a leading virus expert. He said that the 2m separation was a great idea but it was based on quiet air conditions with people either stood still or walking. If the air is turbulent or it’s windy then the safe separation distance should be increased. If you are running then the safe distance behind you (in the wake) needs to be increased by up to 10m. For cycling the safe distance behind is upwards of 20m. Sadly every single person running or cycling was sticking to 2m. So much confusion. So many different expert views. Deep sigh.

One of the great Easter traditions has been performed yet again this morning. Dad forgetting where he hid the Chocolate Eggs in the garden. Followed by

“That’s a great egg. Thank you Dad. Is that the last one?”

Slightly puzzled look from Dad….

“You do this every year. You can’t remember how many you hid can you?”

Yes it’s only a small number. I couldn’t be sure if it was three of four eggs. Was it five.

“Well I’ve found three eggs. That’s a great number but I’d better keep looking. Just in case.”

Good job as 10 minutes later we found the fourth behind the oil tank. I should have realised that when I bought them in February they were on offer, buy one get one free. So why would I just get three…… I will say it before our Son chips in with it.

WHAT A PRIZE MUPPET.

Last year I did the same. Only realised that we had missed an egg when a few months later I found it while cutting the hedge. Then the year before was a spooky one. We had cleared the garden of eggs then when we woke up the next day we found another egg on top of the sundial. I definitely didn’t put it there and it was that obvious we surely couldn’t have both missed it. Bizarrely it was a brand I can’t remember ever buying. The Easter Bunny must have brought that one overnight.

Well I hope the Easter Bunny calls again tonight. This time for me…

After Christmas I went back onto my gluten and dairy free diet. This makes Easter difficult. So I thought that I would treat myself to a dairy free egg. Unfortunately they have been out of stock in our local shops. I guess it’s because they are not seen as an essential item. Just before Home Deliveries became unavailable I managed to add a suitable egg to the delivery list. Job done for Easter. Sadly not. When the delivery arrived the egg had been substituted to the closet available alternative. A packet of gluten free cornflakes. So as people took into their eggs think of me with my bowl of cornflakes. That’s a dry bowl of cornflakes as milk alternatives are also out of stock. But hope exists. Tonight we move to plan b. Cornflakes with gluten free pineapple jelly. The jelly was sent as a substitute for gluten free gravy….

Try to keep smiling everyone.

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First rant of the month and then the garden beach

Before anyone says anything this photo was NOT today and not 2020……

It’s a bizarre country which I live in.

A place where British war time spirit and a stiff up lip is the way to defeat this unseen enemy – well that’s what our newspapers are claiming. No I think you will find that it’s actually antibodies and vaccines that will do that. Self distancing will help dampen the curve but on its own it will not do the job.

A country which for 10 years has invested heavily in academic testing for an increasingly younger range of school kids. The only principle in UK education is meeting government targets by testing millions of kids, week after week. Test, test, test. Yet the same Government can’t see the importance of testing when it applies to a pandemic. They can’t even provide virus tests for our brave medics and front line carers. Actually the can’t even provide the appropriate protective kit to all our nurses. Suddenly we have a mad scramble for kit, tests and ventilators. It’s not as if the Government didn’t know. Three years ago a study reported to the then Government on how poorly prepared the country was for a pandemic. The Government (including many in the current cabinet) decided to bury the report.

That’s probably why the UK is soon going to have the worst pandemic mortality rate in Europe.

Deep deep sigh and divert gaze to domestic matters.

“Dad would you mind if I didn’t do any revision this week for the school tests. Not sure I’m in the right frame of mind for it.”

Given the current climate why on earth is the school doing exams. Oh I forgot – it’s government policy. Can we just give the kids a break. Especially as the tests are based on such a narrow educational range. It’s more about proving to kids what they don’t know and spotlighting their individual weaknesses. What about letting kids show what they are good at, what they do know.

“Ok Son that’s fine with me. When you feel the revision force is with you then if you want to, then do some. If it’s not then just have FUN.”

And that’s what we did. We had to abandon the planned eat some whip cream while bouncing on the trampoline competition. The pigeons who have adopted our garden have now decided to build a nest right next to the trampoline AND it now has eggs. So we opted for plan b and c. Try to make some homemade ice cream. Followed by setting up our very own beach. In the garage I found a couple of old bags of play sand. So that was emptied onto the little patio and the old kiddies paddling pool was filled with water. Shorts and suncream on. An MP3 file of seaside bird and animal sounds was played on my portable music player. Hey presto we are at the beach. Ok we need to work on the beach sounds. The sound of whale songs and walruses fighting are not that common on the Yorkshire coast – but that’s nit picking. As a safe, social distancing adventure it most certainly worked. Now I just need to rebag the sand for our next trip. Maybe it’s to a desert.

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Fit for radio

The walk across the local farm land always felt like top toeing across a minefield. Constantly looking down at my feet for the myriad little surprises. Cow piles, sheep droppings, mole hills, rabbit holes…. BUT NOW after weeks of walking exactly the same path it’s all changed. Suddenly my brain seems to have mapped out the various dangers. Now I can look up and take in the view. Luckily one view I don’t need to take in is my face. It’s definitely a face fit for radio.

It was Wrestlemania this weekend. It went ahead without a crowd. We now have a tradition in our house that we stay up and watch it live. Have a party and a bit of a challenge. See who is best at predicting the results. Last year my inevitable defeat cost me a painful forfeit. Eating the hottest chilli we could find in the supermarket. My eyes are still watering. This year the stakes were raised significantly…..

With his Aspergers, Son is often a creature of habit. Change is avoided. That includes things like clothes. As he grows out of stuff we need to find larger versions of his existing items. That also applies to me. He doesn’t like me to change. I have wanted to go for a really short hair cut for years. Unfortunately that has never been approved by his Lordship. Until now.

“Ok Dad let’s stake your hair on Wrestlemania. If you win the prediction game then you can have your haircut. But if I win you can’t AND it will cost you your beard.”

Son found some old photos of us as a family of 3 featuring a beardless Dad. I think he secretly wanted me to go back to that look. So Wrestlemania came and went. I gave up counting after Son successfully predicted the first 10 matches and I DIDN’T. The end result – the beard went. I’m not sure I recognise that face in the mirror anymore. Son says I look younger. I’m not sure about that but we can both agree on one thing. It’s still definitely a face best suited to radio.

Stay safe everyone.

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Sitting here

It’s early morning and I’ve just finished my workout outside in the breezy Yorkshire air. Son is still asleep safe inside. I’m looking out into the distance and seeing no sign of human life. In the far distance you can just about see the main road leading to the coast. At this time of year it should be nose to tail with caravans and cars packed with excited families. Today it is completely deserted. I patiently waited for five minutes. Not one vehicle. Then I fall backwards and look at the heavens. An empty sky. Yes clouds and fleeting glimpses of lukewarm sun, but not one single aeroplane. To the East we can see one of the main air corridors. We often excitedly get the Flightradar24 app out and check where the many planes are heading. America, Canada, Europe, Asia. Today nothing. Not one single vapour trail.

Has the world stopped turning?

Three years ago our little home stopped dead yet the world kept turning. It was a harsh lesson. Even when good people leave us the vast majority of the world is oblivious. In the days after the funeral I would question

Why has the world not stopped…..

Well it appears to have stopped now. Yet does it help. NO.

Later I am inside listening to music on the radio. It’s a sobering experience. Usually listeners are requesting celebratory songs for weddings, anniversaries and birthdays. Today the airwaves are frequently filled with songs dedicated to rock lovers who have lost a fight with an unseen new enemy. My heart goes out to you all. It was only a matter of time before someone requested Alter Bridge and Godspeed. The finest song I’ve come across about loss. My bereavement go to track.

Test me once again
You know I didn’t do anything
Set my life on low
You know I could have had it all
Drifting out of place
With no direction and no escape
Set out all alone
Oh to a place I don’t belong
Without you
I know that I must change
Without you
I’ll never be the same
No
Farewell
Godspeed
And goodbye
You have lived
And you have changed
All our lives
Test me all the way
Surely you know
I’m not afraid
Prove now once again
That I will never see the end
Without you
I know that I must change
Without you
I’ll never be the same
Farewell
Godspeed
And goodbye
You have lived
And you have changed
All our lives
Cast away
Our regrets and all our fears
Just like
Like you did when you were here
And then the days
They ran out
And then the days
They ran out
Farewell
Godspeed
And goodbye
You have lived
And you have changed
All our lives
Cast away
Our regrets and all our fears
Just like
Like you did when you were here
And then the days
They ran out
And then the days
They ran out

Lyrics by Tremonti/Kennedy (source Musixmatch)

Even after a few hours the cars and aeroplanes are still missing. The world may still have stopped. But son is finally rousing himself. Our little world cannot permanently stop. He has a childhood to live and enjoy. So one more sip of my hot drink and find that happy face. Reach for that bag of tricks we all have and find a way to shut this horrible situation out for a while. Start having as much fun as we can. Let’s keep living and hope the world starts turning again real soon.

Stay safe my friends and I really hope you find your own way to smile. Maybe if enough of us do this then we might just be able to start the world turning again.

Posted on by bereavedandbeingasingleparent · 116 Comments

Random Tree

A random Yorkshire tree. When it snows, a random Yorkshire Tree positioned at the end of our sledging run. So a random Yorkshire tree with a very hard trunk which I have collided with on more than one occasion. It’s like a Rome. All the sledging runs seem to abruptly end at this tree.

So this morning’s fight with WordPress was a bit of a score draw. On the plus side it went remarkably smoothly and very quickly. On the downside my attempted fix – didn’t pigging work. So the app is still possessed. My comments on many sites just disappear. One explanation is that I’ve upset one of the Spam filters. I might have used a naughty word on a comment (or two ). See kiddies swearing is not big or clever. Anyway until it’s resolved I will keep trying to comment on your sites – a few comments are still sneaking through. Enjoy the peace and waffle free time while it lasts.

So the school version of homeschooling has ended for another week. It’s now the two week Easter break. A break which will probably look very like the last few weeks. Normally we look forward to these two weeks but this time it feels like just the same as the last few weeks. No real change except the school iPad can remain switched off.

But as everyday is FUN DAY let’s try to make the most of them.

It’s good to see school is getting into the celebratory mood. The kids have been set homework and have been given plenty of revision to complete over the holiday. After Easter it’s straight into online exams and YES the delights of spelling tests. Deep joy.

But we are not going to let school put a dampener on life over the next couple of weeks. So at lunchtime we reverted back to one of sons favourite games. Bouncing on a trampoline while holding a bucket filled with water. It’s amazing how even Son’s bucket of water ends up over his Dad. Maybe that’s why the game is so much fun. Then it was back to online lessons and trying to explain to a bewildered son the finer details of love poetry. You might have seen my sledgehammer writing style in Thursdays Terrible Poetry submissions. Me advising on poetry is like asking a pheasant to operate a pedestrian crossing. Some lessons are about personal growth and development. However this one was just about survival.

After the last lesson of the day the Easter break started with a dog walk. A walk to our sons self imposed world boundary. And a look over to a distant random tree. A tree beyond our little world. Let’s hope that when we get snow again, once again all our sledge runs will be able to meet this tree again.

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Like new

Two daily visitors waiting patiently for breakfast. I must clean the gutters….

After yesterday’s unplanned washing of my mobile, I found myself outside in the cold early morning air. Doing a great workout supplied by a very kind friend and listening to music on my super clean phone. Crystal clear sound. In fact it’s never sounded so good. Maybe I should try my body out in a quick machine wash cycle. If only I could fit the car in our old washing machine.

I was a bad parent last night and I’m not talking about letting son watch Deadpool 2 again. School emailed all the parents to say that they had not been picking up all the students who had been submitting inferior work or worse submitting work late. So to rectify that the only thing they could do would be to send out an email each night at 11.30 to warm parents about any issues which may have occurred with their kids online work for that day. I can imagine many parents sending letters of approval in or even asking for a tougher stance from school. I took a slightly different stance on my short reply.

Please don’t bother.

This morning followed up with a much longer reply basically talking about how tough it is for many kids at present and how about school using the resources they were putting into this sanction into doing something positive – something fun for the kids. Maybe even allowing some social interaction with friends. I’m not hopeful but at least it will get me another black mark in the awkward parent log.

Anyway school might not do fun but that doesn’t mean that we can’t. It’s so important we all find ways of still living. So in between online lessons we have squeezed in some activities. Bouncing on the trampoline, Jenga, air hockey and jelly making. Then after the school day had finished we made some cakes. Played football and attempted to build the largest possible Lego tower. Unfortunately due to the wind, curious pets and my eagerness to build higher before a stable base was formed – it didn’t get much higher than 5ft. It clearly had the same design fault as Trumps Mexican Wall. Oops that’s going to bring on my fan mail from Texas again.

Over Easter we will definitely revisit the Lego tower. It might even stand up long enough to take a photo. The point is that actually fun day is not enough. It really is so tough for kids to enjoy their childhood in 2020. So much anxiety and so little space to dream. So fun day is now fun EVERY day. Maybe just like my mobile phone, we can find ways (maybe unusual) to improve things in life. WE can do this.