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Art

Dad I hate art at school. It’s so strict. I always thought art would be fun.

Art is not like that very often. It should be about just letting your imagination roam wild. It should be great fun.

Dad did you enjoy art at school then.

No hated it. We had a strict art teacher. But to be fair to her our school was a war zone. A 2B pencil or fine tip paint brush would be seen as a legitimate weapon by most of the idiots in my class.

My class is ok. It’s got some very nice kids in. Even the ones who cause all the trouble mainly get into trouble for really petty things. Like last week half the kids in the drama lesson got a negative because they forgot to bring a black T-shirt. The teacher said we needed one in the first lesson but didn’t talk about other lessons.

That’s too harsh. In my day you had to do something properly bad to get something like that.

Tell me about your mad class again.

We had someone who burnt the church hall down. Another boy was appalled when he found out someone else had been put on report for something he had done. He went off to sort it out. We assumed he was going to own up. That must have been plan B as he was caught trying to set fire to the headteachers desk. We ended up with two boys who went to borstal for robbery. Another boy who went to prison for attempted murder.

Are the two robbers those muppets.

Yep. While one of them broke into an off licence the other went to get a getaway vehicle. Unfortunately all he could find was an electric milk float. So a few minutes later they were trying to escape with the float engine burning up at 10mph with police cars in very slow pursuit. One of the muppets was on the back of the float throwing milk at the police. They didn’t get very far.

Shall I draw a picture about those two for Art. I still need to do my homework. Don’t won’t to get a negative.

No why don’t you pick something else. Something more arty. Why not a drawing of the farm. Or a flower. Something nice.

Ok, something nice it is then.

**So he disappeared in his room for an hour to do his nice masterpiece**

Dad I’ve finished. Nice. Is a bit of Tim Burton ok.

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Autism and football

The Blueberry Plant is anything other than blue now.

That looks too like a Liverpool and Manchester United shirt for my liking. But it’s still better than that black and white barcode which your team wears. Watching barcodes run about a pitch must give you headaches.

That Football team of mine just gives me headaches period.

Son has set his heart on playing football for a team. Over the last few months we’ve tried to kick as many footballs around as the weather has permitted. It hasn’t been easy for him. Difficulties with coordination makes playing any ball sport a tough ask. That’s the issues facing many kids with Autism and Dyspraxia.

But there is hope. For a start dyslexia is not a barrier to sport. So many positive examples.

  • Kenny Logan – 70 Caps for Scotland (Rugby Union)
  • Scott Quinell – multiple caps for Wales in both Rugby Union and League
  • Lewis Hamilton – 5 time F1 World Champion
  • Magic Johnson
  • The great Mohammad Ali

In terms of autism it allows you to see the world in different and imaginative ways. This can be such an advantage in sport. Psychologists believe that some of the greatest sporting talents may be on the spectrum. They can see opportunities that other teammates just can’t pick out. It’s speculated that one of the greatest footballers on the planet (maybe the best) is on the spectrum.

Our son is tall for his age and very slim. He seemed the perfect shape for a modern style goalkeeper. So that’s what we started with. This also made it easier as we could just focus on his hand to eye coordination. For years he couldn’t catch a ball. But for ages now he has been bouncing a bouncy ball on our pavement. With hard work he now has really good catching skills. Then he started trying to catch a tennis ball while bouncing on his trampoline. Again after a lot of hard work he now is great at diving and catching one handed. So the next stage was to change the bouncy ball and tennis ball for a football. Quite quickly he managed to start catching two handed.

A small goal was bought for the garden and I started hitting some soft shots at

him. With hard work he can now dive and make some great saves. He’s now better than I was at his age.

But now he wants to see if he can play as a midfielder.

That would be cool dad.

This is a harder challenge for him as he still struggles coordinating his feet to kick a ball properly. But let’s see what we can do about that. Any skills he learns with his feet will be useful if he goes back to goalkeeping as these days they need to be comfortable passing and dribbling.

This year he has started going to the football club at school. It’s a steep learning curve. Suddenly it’s not just his dad, the dog and the ball. It’s lots of moving bodies, so unpredictable and loads of shouting. The shouting really disoriented him on his first session. He played one short game in midfield.

Dad I didn’t touch the ball but wow did I look good…. (said with a smile)

He went in goal and made some good saves but

I took a goal kick but the defender didn’t see me pass to him and the striker got the ball and scored. The teacher shouted that it was my fault.

Unfortunately too much shouting and blame goes with kids football in our country. Kids should be encouraged to try things, make mistakes and learn from them. Unfortunately too many are scared of making errors. You don’t make dreams come true by shouting at kids. At least son could see the wider picture.

Typical the other team scores and everyone blames the keeper even when it’s not his fault. What did you do when they blamed you for letting a goal in. I bet you let too many goals in.

Oh I just smiled, clapped my hands and immediately forgot about the goal. You move on and think about the next shot. (That’s not the whole story. I was a bit of a hot head back then and I would threaten to stick the ball up the backside of anyone who blamed me. But I won’t tell him that.)

So fingers crossed for the next club session.

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Feel it

Autumn is coming I can feel it.

That anniversary is coming I can feel it.

Coming up to three years on the grief train.

The world flies past the window with no slowing down.

Unclear where I am heading or the purpose of the journey .

Captive Passenger on this locomotive with absolutely no sign of a conductor.

Who would have thought that after 3 years I would still feel so completely confused . Don’t get me wrong I am so lucky. I have a purpose to focus on. Give son the best childhood he can possibly have under the circumstances. Be there for him when he needs me for as long as that may be. My life is completely focused on our son.

And yet.

I realise that as son becomes increasingly independent (that has to be the goal) then I will need to start finding my own life again. My own self purpose. Will need the pesky grief train to stop at a new destination. But here is the conundrum. I’m driving the train, I’m the passenger, I’m the conductor. It’s down to me. I have to want that new destination to arrive and then I need to open the train door – and then decide to leave the train.

I’m using up valuable air. I owe it to the world to start living again. Eventually.

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Dyslexia we are on your case

The dog is happy. His friends are back in the farmers field. And yes I still haven’t moved the shovel from last months gardening. And yes I still haven’t removed the two old Catherine Wheel fireworks from the fence. Wonder what the Guinness Book of Records listing is for the most old Catherine Wheels on a Yorkshire Garden Fence is.

Last night we had been talking football. Namely clubs which go out of business. Son was struggling with the economics of the process.

Dad. Basically with the billions and billions of pounds generated by football how can a great club like Bury be allowed to go out of business. It’s the economics of the madhouse. The rich get richer the poor get poorer.

Can’t disagree with him. Football is just a reflection of our society. Someone bleeds an asset dry then discards it. The person with money moves on leaving a scene of desolation behind for others to live with.

Dad which other clubs have gone out of business. Don’t worry Dad I will google it. How do you spell business.

Within a couple of minutes son is doing a pretty awesome job of reading out an article. Yes he was getting some of the words wrong. He had to ask me to read some words like ‘Maidstone’ and ‘Aldershot’. But I understood fully what was in the article.

He’s found a way of getting by. He can now read pretty accurately about a third of the words. Another third he can get part of the word correct which allows him to guess the rest of the word. And as long as he understands what the subject of the text is then he can guess the remaining words – fill in the blanks. It works. In his eyes he’s moved from can’t read to can ‘sorta’ read.

I fully realise that he is unlikely to have enough trust in the people around him in the classroom to demonstrate this at school. The teachers won’t have the flexibility to exploit this educational opening. But at least now rather than just guessing what text means he can have an educated guess. Even that will help his self esteem. It’s progress. Self achieved progress.

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Hill

I don’t know what it is but I love looking at this one field. It just works for me. It also puzzles me – what is on the other side. I have no idea. One day I will check. Is that the best approach?

During the process of getting a diagnosis for our son he had to undertake a number of tests. He would only do them if I did them as well. So by de facto I was assessed as well.

Dad you do know Aspergers can run in the family. Mum’s side probably has. Your side is not so clear except for one person. You.

When I look back at my childhood I was more relaxed when I was on my own. I would often be found apart from the others in my class. I struggled to get my head round bondage language and emotions. Hated physical contact, hated being crammed so close to others. I made friends as I was good at hiding my anxieties. But I never could quite see the world like my friends did. Often seen as the odd but funny one. I was often quiet. I tried to hide a bad stammer which appeared when I felt uncomfortable. My school reports said ‘very shy’ – no I didn’t want people to hear my faulty speech. Initially slow at reading and with appalling spelling. Accident prone and uncoordinated – yet found ways to be good at sport.

All those probably still apply today. Apart from the physical contact phobia – do love a good hug.

So the tests what did they reveal. I remember a therapist telling me

It’s wonderful how you have failed some tests to reassure your son…

Don’t want to disappoint you but I didn’t have to try to fail the tests. It came all too easily for me. Not all the tests but many I did struggle with. I mentioned this to our son’s Clinician. When I told her which tests and how I struggled her take was that it would probably have been enough to trigger a diagnosis. She asked if I wanted to go onto the waiting list for Aspergers Assessment.

But that’s as far as it went. No interest in finding out one way or the other. Waste of valuable NHS resources. Not going to he,p me now. As son would say it’s just who I am. But maybe this is the reason that I have been able to get my head round Aspergers. Partner spotted the Aspergers with our son first but admitted I got my head round it instantly. She struggled. If it allows me to better understand the issues our son faces. That’s good enough for me.

We’ve talked about what’s over the hill. Son think it’s a panoramic view of the Vale. I thinks it the Yorkshire Area 31. A place housing our alien rhubarb technology.

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The squirrel needs to wait

Today I was planning to write about a squirrel. But at the last minute I’ve changed my mind. Maybe tomorrow…

The Guardian (one of the UK’s better newspapers) ran an article today about autism.

It’s upsetting’: the autistic music fans being shut out of gigs

Its a really interesting read and covers some really important issues facing those on the spectrum. If you have a spare couple of moments I encourage you to read it.

One thing the article is spot on about is that as you get older the support systems fall away and you seem to be left to sort yourself out. It’s so frustrating. You spend years fighting to get your kid diagnosed. If you succeed then you again fight to gain access to services. Hopefully you do get access and then suddenly your kids are getting to an age when the system decides to cut them adrift. It is just wrong.

The article got me thinking about our circumstances. Why does our son enjoy rock concerts yet often struggles in other crowded events. Having talked it though with our son I think we can almost answer that now

  • We only go to venues he knows and feels comfortable with. If we have to go to a new venue we go to see it in the daylight. If you speak really nice to the venue admin they will often accommodate a pre visit to allow you to acquaint yourself with its layout
  • He loves the drama, the noise, the lights. It’s a short fix of sensory overload on the same level as a scary rollercoaster ride. He controls it. If he’s not happy he knows that we can just get up and leave.
  • He loves the way you can wear whatever you want, do whatever you want to your hair, dance, sit, stand, sing, shout, drink, eat – yet no one seems to care. No pointing fingers. No funny looks. No questions. He feels like he can fit in there.
  • It’s so noisy. Too noisy to talk much. He is relaxed as he knows no stranger will talk to him. He still has an element of isolation.
  • He likes the thought that he is doing something which many of the other kids at school don’t do. It’s his hobby.
  • And finally let’s not forget that he just loves listening to Rock Music

Another point the article raised is whether you consider autism as a disability. Because of his diagnosis he is listed in the UK as disabled. Son hates that. He is clear – Autism is his personality not his disability. He does talk about dyslexia being his disability. His invisible disability. One which people see when they want to and ignore when he needs help.

Whether you want to call it a disability or not for me that’s up to personal circumstances. It’s called a spectrum for a reason. Everybody is different. It’s unlikely you will find two specific diagnoses which are the same. The article is right about access. It’s at best patchy and yes some simple changes can open up opportunities for more people on the spectrum. But it is difficult. We went to a Autism friendly hour which our local Toy-r-Us ran a few years ago. It was much more inviting and yet our son did point out that

“If they want to make this completely Autism friendly they should allow us to book slots so we get the shop to ourselves without anybody else here”

One final point. The article talked about earplugs. They are essential but please manufacturers, given my unfortunate incident with one, can we make them edible….

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Decibels

Currently the mad dog is being completely bonkers. It’s a kinda let’s bark at everything type of day. Currently the apple tree is getting it. But as the decibels rise my mind wanders to that quiet little pup. What happened…..

Son is not impressed. If you look closely at the photo you will notice that the duvet cover is Peppa Pig themed. It’s a perfectly good cover so is still used today when his Jurassic Park one is being washed. Son doesn’t really see the practical benefits.

“You do know Peppa Pig is for little kids. It’s not as if I’m watching it. I know you do when you get the chance, but not me. I was watching about the Black Death last night..”

I do have to admit that a quick bit of Peppa Pig, or the Clangers or In The Night Garden is strangely therapeutic. And yes I can’t remember the Peppa Pig episode which featured the Black Death.

All my parenting waffles are subject to a major caveat. As statisticians would say – it’s based on a very limited sample size. Like one child. One child on the autistic spectrum with dyslexia. So when I see something I can’t be sure if that is just particular to our son or is a common thing. The only other benchmark I can use is my childhood. That seems a long time ago…..

Son has a lot of areas where he is more developed and refined than his Dad. Seemingly way beyond his years. But also in a number of areas he probably still reverts back to the Peppa Pig years. Cuddly toys. Not wanting to leave the safety of the family nest. Mr Men stories. Petting Zoos. Toy cars….

Maybe it’s a fear of growing up.

But I can relate to this. Not wanting to completely forget your early childhood days. Now where is that Peppa Pig dvd….

Speaking about not forgetting things.

It’s the Great Bloggers Bake-Off this Sunday. It’s all about having a bit of fun. Pop over to Mel’s blog – Crushed Caramel (Learner at Love). She has done so much work to set this up.

Our special judge is A Jeanne in the Kitchen.

Let’s go Sunday Spongecake mad.

Please send photos of your creation(s) to crushedcaramel@gmail.com

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Tenacity

This was the Yorkshire summer last week. It’s now over for the year. We are now in Autumn.

Son told a story from school today.

A couple of weeks ago one of the kids in his class got an exclusion. Repeat rule breaker. Before the exclusion he racked up 110 negatives. So he was shown the big red card. Banned from school for 5 days. It was really convenient for the kid as it came immediately before the half term holiday. So he got two weeks off.

On his return the teacher confirmed that he now had a clean record and all his previous negatives had been wiped from the record. He then asked if that meant that his newly created clean record entitled him for the end of year clean record reward. Kids with clean records are entitled to go an a trip to the local amusement park. After checking it was confirmed that as long as he didn’t pick up another negative then yes he was eligible. He punched the air and shouted “get in”. Unfortunately the teacher took offence to this and gave him a negative.

After the class the kid apparently told the group that he now had 4 months to pick up another 109 negatives so he could get another isolation and have his record wiped again.

It’s a kinda tenacity. But you really couldn’t make it up….

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Fight Club

When you set your children off on their educational journey you have dreams of an idealistic life of happiness, development and fulfilment. Then you wake up…

On todays episode of Fight Club.

An argument broke out on the morning school bus. Several kids got involved in a heated exchange. Resulted in one of the protagonists being hit over the head with a bottle. Thankfully a plastic one.

In the first lesson a boy accidentally bumps into another boy. Quickly a pushing and finger pointing encounter develops. This is broken up by the teacher and negatives are issued.

In the next lesson boy X makes a not very nice comment about boy Y. This escalated into a missile exchange. Pens, rulers, calculators and books are launched. Again the teacher breaks this up and more negatives are issued.

In the final lesson of the day boy Y makes a comment about boy X. Suddenly a chair is hurled and a full fist fight breaks out with a few other kids getting involved. Teacher issues negatives and a couple of isolations.

On the afternoon school bus one boy accused another one of being unpopular and without friends. Quickly punches were exchanged. Several other kids got involved. Ended up with one boy in tears with a bloody nose.

Thankfully our son was just an observer in all these incidents. He did get hit by a stray projectile but it wasn’t intended for him and absolutely no pain inflicted. Not really sure how he views these incidents through his Aspergers filters. I suppose it teaches him about life. It might encourage him to start a martial arts club – these can really help with confidence and coordination. It highlights the issues many kids face when they are assigned to the bottom set. It’s certainly makes homeschooling look more attractive.

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Back to school

Warning this post contains bad language and monumentally pompous stupidity.

In 2018 the Switzerland Glaciers lost 2.5% of their volume. It’s expected that they will have disappeared by 2090 – at the latest.

On Friday thousands of pupils walked out of UK School’s to protest about our Governments inaction on climate change. Good to see the positive response it got from our Leaders.

“It is important to emphasise that disruption increases teachers’ workloads and wastes lesson time that teachers have carefully prepared for,” a spokesperson for the Prime Minister said. “That time is crucial for young people, precisely so that they can develop into the top scientists, engineers and advocates we need to help tackle this problem.”

Our countries so called Education Secretary “let me be clear, missing class won’t do a thing to help the environment; all they will do is create extra work for teachers.”

The Conservative Leader of the House of Commons “It’s called truancy, not a strike“.

Well if you got your head out of your arses and took meaningful action then the kids wouldn’t need to walk out. If you didn’t pander to the fossil fuel companies, actively promote the disastrous fracking industry and cut renewable energy investment…. then you might be taken seriously. What trust do you expect the next generation to have in you when they see the monumental f*****g screwup you are making of Brexit. The entire political system has abjectly failed its primary roles of protecting the world and securing the futures of the upcoming generations.

This has to stop. The kids get it. Unfortunately our dim witted, self serving leaders don’t. It’s time for the next generation to take over and time for our politicians to go back to school. Maybe then they would see what a gigantic mess they have made of the education system as well.