Cinema

It’s that time of year. A definite feel to the movies we have watched. Can you see the theme.

Scrooged

Home Alone 1, 2, 3, 5

The Grinch

A Christmas Carol

Muppets Christmas Carol

The Santa Clause 1,2,3

Elf

National Lampoons Christmas Vacation

The Polar Express.

For me I just can’t quite catch the connection. Sure there must be one if I look hard enough.

One of the things that feels amiss this most odd year (that doesn’t work as 2020 is even) is the cinema experience. Before Hawklad we would always have a Christmas trip to the pictures (as my mum would have said). A meal before hand and then a movie. Such a lovely experience. So many wonderful memories.

Taking my mum to see The Horse Whisperer on Boxing Day. She hadn’t been to the pictures in 40 years. She was most puzzled not to watch the Pathe News segment before the movie. She refused to get up at the end and waited until the credits played through. Apparently she was waiting for the National Anthem to be played…

Trips with my partner to see huge blockbusters on Christmas Eve like the Lord of the Rings Movies. Then coming out in time to sing carols in the city centre.

Even after the world changed Hawklad and I kept the tradition going. A changed Aspergers tradition. We would take in the first, early morning screenings of movies like Jumanji and the Rise of Skywalker. Popcorn at 8am works on so many levels. Then we would go and get him his favourite takeout. All before midday.

But this year it’s no cinema. Any trip is just so out of reach for Hawklad and his anxieties. The world has changed. Even the prospect of Wonder Woman and Black Widow epics won’t overcome those fears. Maybe the trips to the Pictures have stopped for good. We will just have to see what the future holds but life goes on. It’s time to recreate that Christmas tradition at home. So we will pick a movie. A good movie. Set the dvd off at 8am. Microwaved popcorn in plentiful supply. The Christmas Cinema tradition continues.

Say that again

Say that again…..

I so need to have a notebook which I carry around in my pocket at all times. Every time something is mentioned that has the slightest chance of becoming important then I could write it down. A permanent record to prompt my sieve like memory and stop those say that again moments.

Had a few too many of those over the last few days.

“Dad did you get the glazed cherries for our Christmas Eve treat?”

Say that again!!!!

Dad did you buy the Home Alone 4 dvd for our Christmas Day movie?”

Say that again!!!!

“Dad did you phone school before they broke up to tell them that the Teams password isn’t working?”

Say that again!!!!

Dad did you remember to make a donation to the school charity appeal last Thursday?”

Say that again!!!!

Dad did you phone up XXXXXXX mum to get hold of their address so we can send them a card?”

Say that again!!!!

Dad you haven’t forgotten that we are having Salmon to eat on Christmas Eve?”

Say that again!!!!

“Have we got the sausage rolls, French sticks, onion rings, pineapple rings, Doritos and mango chutney in for our Christmas Eve buffet?”

Say that again!!!!

Dad did you remember that you said that you would send a copy of the family tree to Auntie Xxxx”

Say that again!!!!

Dad did you remember to take the bread out of the oven. It’s been in there for most of the day and it’s looking a bit burnt.

Say that again!!!!

Mr Xxxxxxxxx did you remember to submit form 5a. It needs to be received by the end of this month or the service will stop.

Say that again!!!!

Ok you will need to give your dog these nasal sprays at least once a day. Will your dog sit still to let you do that.”

Say that again!!!!

Winter is coming

Winter is coming.

A time for wooly jumpers, gloves and warm hats. Sliding on ice patches. Snow ball fights, sledging and snow angels. Steaming hot chocolate filled with marshmallows. Writing names of frozen car windscreens. Fires and hot water bottles. Crisp winter walks with stunning moody landscapes. Long dark night skies filled with the wonder of the cosmos. Warming soups and stews. A perfect time to cuddle close to those you love. A time to feel alive.

Winter is coming.

A cold, bleak time. When the frequent bad weather forces you inside. Cuts you off from the world. When the darkness and howling winds matches the mood. When loneliness echoes around the surrounding walls that makes your home feel like a prison. A prison where the sentence is solitary confinement. Memories filled with loss and grief send shivers down your spine. Counting the long days until Spring returns. A time to survive.

Winter is coming.

I have experienced both. I know the opportunities and the threats it can offer. Which one will this Winter be?

Well that’s sorted then

I was conscious that this Christmas will be different for us, different for Hawklad.

No end of school term activities and parties.

No Carol singing in the city while drinking hot chocolate.

No Santa Train ride. Ok we are doing our own car version.

No Charity Santa coming through the village on a trailer pulled by a tractor.

No festive walks along the beach and finishing off at a little cafe for his festive ice cream.

No visits to friends.

No family meet-ups.

No trips to the Christmas Market.

No trip to the zoo in New Years Day.

No family Christmas meal.

No Boxing Day walk with picnic.

No festive trip to the cinema to see a blockbuster and then whatever festive film they have showing.

No carol singers coming round the houses on Christmas Eve.

Basically it will be just the two of us and pets. Sticking to the house and garden. Maybe only one trip out to do the Santa Car ride. I was feeling bad about that so I brought it up with Hawklad. I explained the differences to him

……. so it’s going to be really different this year. How do you feel about that Hawklad?

“So no family at all?”

None!

“Absolutely no visitors?”

None!

“No festive trips out?”

It doesn’t look like it.

Dad, can we order in extra pizza over Christmas?”

Yes Son.

“Well that will be just fine then…….”

Eat chocolate

I received a lovely present today in the post. The government support package for Hawklad will expire soon. So I need to reapply. Helpfully they have sent the 50 page application form to complete. I can’t submit the old paperwork and need to have more recent assessments and evidence. That’s a nightmare at the best of times but during a pandemic!!!!!!!

Only thing for it….. A bar of dark chocolate, a decaf coffee and listen to some angry music. Today’s choice, the latest from Roger Waters. That’s one seriously cheesed off artist recording those songs. That fits as that’s the music I would make today. Normal people are forced to jump through hoop after hoop for their kids yet friends of the Government are awarded multi million pound contracts without any due process. Roger Waters would certainly get the irony.

Well I then made a start. Book an appointment for a new assessment from a Paediatrician. On the waiting list. That’s currently a one year wait and growing. It’s a start…. Where’s the next chocolate bar.

But here’s the really scary thing. Our Son is fortunate as he has had some support. We somehow battled through the intentionally difficult minefield to get that. So many are either unsuccessful or are just missed. That’s the children, adult support is almost none existent. Discarded by our society that has its priorities so badly skewed. What’s the answer. Certainly to keep fighting. Most definitely to eat chocolate.

Big sky

I’ve talked about it before but two things really sold our house to us. We were thinking about starting a family. We wanted somewhere quiet with a bit of a garden. We looked at a few places and then we visited this little bungalow in a small village on a hill. The bungalow was a bit small and run down but then we looked out at the overgrown back garden. That view and that sky. There was nothing to block out the view of the clouds. It was a BIG SKY. That was it were were hooked.

It’s definitely still a BIG SKY.

It still kind of takes my breath away. I’ve always been a town and city person. Grow accustomed to buildings and trees blocking out large parts of the sky. At night the artificial lighting just drowning out what sky that is still there. That just doesn’t happen here.

A BIG SKY definitely deserves big dreams. I do need to start working on those. Sometimes it’s too easy to fall back on memories. It certainly is for me. Not today. I’m going to get wrapped up, brew a mug of something steaming and go outside. To look, to breathe and to dream. All thanks to a big sky.

Growing

Hawklad, does the costume fit?

Don’t know yet Dad!”

I’m waiting for Jason to appear with his chainsaw.

“You might have to wait a while. It’s a tight fit.”

How tight.

Well the trousers are now shorts that don’t get over my knees. The top won’t even get over my head. The mask is more like an eye patch and the strap isn’t long enough to wrap round my head. But at least the plastic chainsaw fits in my hand but it’s kind of like a Swiss Army knife now.”

Oh. That’s your fault for growing so much in a year. It kind of fit last year.

No it didn’t, it was too small last year. Dad does your costume fit. But it’s not even a Halloween one?”

Yes it is number one son. It’s a ghoul.

Dad it isn’t a ghoul. It’s Dr Who Cyberman mask which is supposed to fit a toddler and a black bin liner with holes cut in it.”

It’s a fantastic ghoul costume which I grant you is a little tight.

Fantastic is not the word I would use. How tight

Erm the mask doesn’t even cover my nose and my bum has ripped a hole in the bag. Apart from that it’s good to go.

Shall we give the costumes a miss this year?”

Good idea Hawklad what shall we replace them with?

More chocolate.”

Perfect. But with all those calories I certainly won’t get into next years costume.

Dad who said you were getting the chocolate……”

Do you understand

It’s a dark old day here. This is midday…..

Sometimes it’s hard to tell from a photo but just past those buildings the land drops down quite steeply. Dropping about 150ft to sea level. Then it’s flat for miles. Sometimes it’s not easy to see these big details.

A few weeks back I was talking to my sister on the phone. I remember she said that I sounded ‘Happy’ and ‘was clearly doing well’. That’s odd as that day I was struggling. Feeling really low, down and so unhappy. Definitely not how my sister had seen me. That’s the thing about relationships. Often the people who should know you the best are the ones who actually get you the least. You can care and still not understand. You can care and still not really listen. You can care and still not see the reality.

Please don’t think I’m picking on my sister. We really care for each other but we don’t understand each other. I can think of so many in my life that applies to. Maybe it’s just me. Not prepared to share. Too quick to hide behind my smiling mask. But maybe we don’t often find people who truly understand us. Tuned into our thinking. Can see our pain and anxieties. Maybe that’s a rare gift. One we need to continue to search for.

Polar express

A beautiful train line in the distance. Even beautiful at night…

Last night we had a chat about Christmas. This year will be a slightly different one. No family visits and wider family meals. No friend visits. No 50000 spectator football match. No concert. No special trips out. No nice country walks. No carol singers. No Father Christmas riding through the village on a tractor collecting for charity and then handing out sweets to the kids. Basically just us, the pets, the house, the garden and one visit from the jolly big fella dressed in red.

It’s still Christmas. Still a time to make memories. Still a time to live. So we make the best of it. Never forgetting those we love the most.

Last year we thought that we had started a new tradition. A trip out on a Christmas Train. A wonderful night trip on the North Yorkshire Moors Railway. A beautiful illuminated stream train with even some magical creatures in the passing fields.

So we had planned to do the same this year……

Well it’s not happening. So it’s time for plan b. We have decided that on the same day as last year we will head out on our own polar express. I have some really cheap solar powered Christmas lights. The car will adorned with these. A Christmas music cd will be loaded up on the car stereo. Christmas snacks will find their way into the car. Silly hats and reindeer jumpers will be donned. And off we go on our own polar express. A slow drive around a little used country lane route.

That’s a start. What else can we come up with. What new memories can be born. Always remembering to carry those we love in our hearts as memories are made.

Jarrow March

This photo was taken 4 years ago to the day. A day in October. A day early in my grief journey. A moment in our family history.

Time to turn back the hands of the clock back to before the Second World War. To another moment in our family history.

October 19th, 1936. Chesterfield to Mansfield.

From the 5th to 31st, the Jarrow March took place. 200 men walked 300 miles from the north eastern town of Jarrow to London. Jarrow was like many northern towns in that period. Bleak, stagnant and forgotten. The impact of a world wide depression was hitting this area hard. There was no employment. Unemployment was endemic. In Jarrow the unemployment rate was near 70%. The Government seemingly did not care, blind to the suffering. The Government even blocked loans that would have saved the town’s industries. Rising anger at gross inequality and injustice. The growth of racism and extreme right wing politics.

That was the context as 200 men set off on their crusade. A peaceful and dignified protest, carrying a 12000 signature petition asking for their industry to be reopened. A simple message. We want to work. We want hope.

The marchers were treated as heroes on the route. Galvanised a growing mood in the country. The petition was handed into the government with so much dignity and respect. In the short term the March failed. The Baldwin Conservative Government brushed the march and the petition aside. Clearly in their eyes some people were more equal than others. But in the long run the Jarrow March delivered. It set a new agenda. After the war the new Labour Government set about writing the wrongs. A comprehensive welfare state was introduced. Government with a conscious was established. One that cared for the less fortunate. Sadly a conscious which has started to be unpicked and now unravelled.

We live in a time of rising unemployment. Inequality and injustice are ripe. The growth of extreme politics. Sound familiar. We could learn so much from the Jarrow March. A Crusade marked down in English history. A family history as well. My family was on that march.