Safety

Today’s out of focus wildlife action shot is of someone who lives in our roof. Actually taken yesterday when the sun was shining. Our housemate is about the only member of our household who gets out these days.

This is the seventh week of Son’s own version of the lockdown. A few dog walks in the early weeks but then going through the garden gate became increasingly difficult for him. Even in the security of our car, a simple trip out onto the road becomes an anxiety crisis. When he returns he immediately washes his hands for minutes then has to have a shower and bath. These are genuine fears. Fears that effect his life. The excessive need to wash is not new. He has been shown how to clean his hands like a nurse. He has hand washing drills that set time limits. But sometimes it’s best to let these lapse as the excessive cleaning is often more about ridding his soul of anxieties rather than purely removing germs from his skin. Especially when a virus surrounds him which has so many unknowns.

He won’t be alone in these fears and feelings.

A chap in London with a little NHS badge announcing that the lockdown is being eased or lifted is not the end of the matter. It’s not as if it’s a water tap which we can instantly turn on and off. That’s also assuming that the virus remains under control and doesn’t spike again. Under Control is a rather worrying definition these days. It appears to mean keeping daily infections running into thousands and deaths below 300 a day. That’s just hospital based deaths not including the huge numbers occurring in care homes or in the wider community. For many the easing of restrictions is just the start of a long and painful slog. No sudden street parties for them. It’s about trying to repair bridges between the safety of their homes and the wider world. Picking up sufficient confidence to walk past that front gate. To meet people again. That’s going to be so tough with no guarantee of success.

So for the foreseeable future, our little starling will be the only one venturing out.

Facts

Last night was one of those yucky sleepless nights. So very tired yet all I could muster was probably 40 minutes sleep. Annoyingly those 40 minutes came right at the end of the night and was brought to an all to abrupt ending with the morning homeschooling alarm.

During those zombie like hours I started writing a list of things to do this week. After getting stuck on item 1 for far too long, the list morphed into a more fruitful

What have I learned about myself during the last few weeks of this rather odd period in our history.

So here goes with my early morning facts

  1. I’m crap at writing To Do lists,
  2. Late at night I have a habit or writing LIST so that it looks like LUST,
  3. I can’t sleep properly,
  4. My old mobile phone has never worked better since it got machine washed with my clothes,
  5. My phone has a surprisingly good camera however it has the most annoying panorama function. The photo above took hours to do,
  6. I am so lucky to have that view from the garden. But what would I give for either a mountain or the sea in the distance,
  7. I quite enjoy most of this home schooling lark,
  8. Homeschooling and work are never going to be a good fit for me,
  9. Homeschooling and long distance running are never going to be a good fit for me,
  10. Homeschooling and my bank balance are never going to be a good fit for me,
  11. Homeschooling, my bank balance and holidays are never going to be a good for me,
  12. High petrol prices are not an issue when you don’t drive your car for 6 weeks,
  13. I can now make my own pizza bases as long as they are square shaped. Round is beyond me,
  14. I can fill a freezer up real quick when I start saving leftover food,
  15. A dairy and gluten free diet is a pain in the arse when the shops sell out of specialist diet ranges,
  16. I miss football on the telly,
  17. I miss alpine sports on the telly,
  18. I hate the news now. I miss the days of moaning about Brexit,
  19. I’m a barnpot yet I would do a better job of running our country than the clowns currently in charge. Apparently it’s ok for a Prime Minister to miss FIVE emergency meetings and have weekends off during a national emergency,
  20. My Son knows more than I do,
  21. Receiving a parcel from Amazon now feels as dangerous as trying to change a fuel rod in a nuclear reactor,
  22. Not being able to get Sons favourite Soup, Beans, Skinless Sausages and Pasta is one of the most stressful things in the world,
  23. I must be really vexing to live with,
  24. Cheap tea bags taste the same regardless of how many times I reuse them,
  25. Using Yorkshire Slang Words gets me put on the Spam Naughty List,
  26. At some stage I might have to physically talk to someone else than our son. I’m dreading that thought,
  27. You can still get colds if you are isolating from the outside world,
  28. When I’m carefully stood in my designated 2m queuing area why can’t I stop thinking about how long virus particles stay airborne for,
  29. I get so excited when I see an aeroplane now that I must rush to check where it’s flying to,
  30. I haven’t combed my hair in 6 weeks,
  31. Where does all the so called spare time disappear when I’m on lockdown,
  32. The more I learn German the less I can remember of French. It’s as if for every new German word entering my brain, a French one has to pop out to make space,
  33. I will even talk to slugs these days,
  34. Don’t set up a darts challenge with your son then at the last minute realise you don’t have a dartboard or darts,
  35. The Government and Chief Executives of major companies only email me when there is a pandemic going on,
  36. I still hate U2,
  37. I want to live in Switzerland
  38. I’m still a widow. Or as my Predictive Text tries to type – I am still a window,
  39. These days it really doesn’t matter if I put my pants on back to front.

Ever shrinking world

A photograph from our garden. Just five paces from the door. Part of Son’s world.

Our Son really struggles with health related anxieties. I remember the first pamphlet his Doctor handed to us about Aspergers all those years ago – second bullet point – may encounter obsessive fears over health and hygiene. For our Son they were real, life altering fears. Then in quick succession he lost his mum and both grannies. The fears became even more scary and real to him.

In the early party of his Aspergers life he was under the care of a wonderful Clinical Psychologist. She slowly helped but then she retired (and was never replaced due to the decisions backed by many of those in our current Government). His care became a real hotchpotch which achieved very little. Then we were so lucky. Son’s case landed on the desk of a young nurse health counsellor. Since then she has been the only constant through his care. Now because of Government cut backs, she is the only specialist help he gets. Although not an Autism expert she has patiently worked with him and delivered real benefits.

His fears became manageable.

Due to our Governments continued running down of the NHS, her workload has become ridiculous. She just can’t spend the time she needs to with him. But she does what she can. She still cares.

Then 2020 hit. Is it really only 4 months old…….

His fears have gone off the chart. Can you blame him. The worlds gone potty. Everything is up in the air and showing no sign of settling down. Because of the new clinical rules his wonderful health counsellor is not allowed to see him until after the crisis has eased. Being realistic that’s not going to be until the back end of the year at the earliest. So he’s started burning his bridges.

Bridges is a theme I am sure I will come back to over the coming weeks. The world of autism and the big bad world don’t naturally coexist. They are often separate. Links and bridges need to be built. Unfortunately the big bad world is not interested in developing links. It’s been up to our Son to try and build the bridges. That’s allowed him to enter the big bad world. Those links have never been particularly strong. NOW HE HAS BURNED THOSE BRIDGES. The outside world is just too scary and full of dangers. He has bunkered down to his house, his back garden, his world.

The thing is that when things start to improve again. And they eventually will. The big bad world will make no effort to rebuild those bridges again. One lone nurse counsellor will try. I will try. Sadly, I’m not entirely convinced Son will make much of an effort this time. Maybe in the future he will but it will take time. In the meantime his world has shrunk.

Old moon

A couple of full moon photos from last week. My poor old iPhone tries it’s best.

I remember looking up at the moon. I was lying on my back on the cold patio trying to keep still and give the camera phone a chance of trying to focus. Anyway I was looking up at the moon and thinking it was stunning. I really hoped that my partner could be seeing this as well. Maybe she was? Was she seeing it from a different angle? Was she looking up at it from one of her favourite places. Was she above the clouds?

These days I frequently look at things in a different way. For a long time after my partner died I felt bad about looking at beautiful things. Sunsets, landscapes, the Sea, our Son playing. It just wasn’t right that I could and my partner was missing out. She had been cruelly denied this chance. Her time ran out.

But slowly that feeling of guilt started to ebb.

Now when I look at beautiful things, I try to look that little bit harder. Look for just a few moments longer. Truly embrace the moment. Because now I’m looking for the BOTH of us.

Back to the moon. After a few minutes I was becoming distinctly uncomfortable. My back is not designed these days for lying on a cold, hard surfaces. Then a thought. What was I thinking about. My partner was the sensible one. She would be sat inside. Occasionally shouting “that’s very nice Dear”. She would not be outside freezing her butt off. She would be warm inside with a glass of something, watching one of her favourite movies.

That’s a view she would be happy with.

Stages

One of my first records I purchased was ‘All the worlds a stage’ by the rock legends, Rush. Shakespeare wrote that ‘All the worlds a stage’. Don’t worry I’m not going all thespian on you. But I must admit I fancy my chances these days of doing a mighty fine Richard III stage performance. Why is the Stagecoach Bus always two hours late when I try to catch it. Just watched wrestling on the TV which is staged. So many stages.

Then you get stages in grief. A couple of years ago someone asked me what stage I was at in my bereavement process. I just looked on blankly. All I could think of was two stages. Your life before the death and the life after the death. So I answered – in the second stage and I always will be. I guess that’s not the answer they were looking for.

Last night I was reading an online article about bereavement counselling. It talked about every bereaved person going through the same 6 stage process. I wasn’t convinced. Surely every person’s grief journey is unique. Why force people to follow a predetermined text book bereavement route which doesn’t suit them. So I gave up with the online article and scribbled down my own staged journey so far. It’s my interpretation of MY journey and in no way is it supposed to fit other people. Remember I’m not a Doctor or Psychologist. I moved a potted plant into my bedroom to raise the rooms overall IQ score. The height of my powers these days is to get the cling film wrapper off food without slicing off a finger…. So here goes with my journey.

The SHOCK STAGE. Within a period of 6 weeks I’ve just buried my mum and then my partner. I’m a complete mess. Barely able to function and yet I’m supposed to be a Dad. It’s like living in a prolonged nightmare. Trying to sort out the practicalities and legal side of death, but actually got no idea what I’m doing. Basically doing stuff I’m told to do.

The FRUSTRATION STAGE. The cards, flowers and phone calls have dried up. I’m becoming more aware of the reality of the situation. Trying to get my head round how to be a single parent and at the same time keep some money coming in. I need to find an alternative to my career as it just isn’t doable anymore. The frustration comes from realising that what worked in the past just isn’t going to work now. It’s also so frustrating that the world is still spinning without seemingly even blinking after my partner exited stage left. It feels like I’m fighting this new normality.

The ACCEPTANCE STAGE. Eventually I began to accept the new reality. This is how it is and I just have to deal with it. I came up with a mental picture which I still use today. A door on my former life has locked shut. It’s never going to open again. I can look through the door window and see memories but I can’t touch them. I could stand here forever but this door isn’t opening. So I have a choice. Continue to stand by the door or set off and find other doors which are still open.

The IT’S LOVE STAGE. Linked with the Acceptance Stage. I opened a mental dictionary and found a better definition of grief. It defined grief as another word for LOVE. That sounded so reassuring to me.

The IT’S OK TO GRIEVE STAGE. Up to now I would hide my grief. As if it’s something unhealthy, something deeply embarrassing to others. People might ask how I was doing but they appeared to rapidly change the subject if the answer I provided was not – I’m fine…..But suddenly as grief was another way of saying LOVE, suddenly it became ok to grieve. Yes it could still be so painful but it’s something I shouldn’t be hiding. It’s nothing to be ashamed about. It really is OK to be sad.

The IT’S OK TO LAUGH STAGE. Up to now I felt bad about smiling and laughing. It was just not right. I would focus entirely on making our Son happy but shunned doing it for myself. It took well over a year but the penny finally dropped. Yes it’s ok to be sad AND YES it’s just as OK to be HAPPY.

The IT’S OK TO LIVE AGAIN STAGE. After the funeral all my dreams died. When I looked at life I saw it entirely through our sons eyes. When I tried to see it through my eyes all I saw was blackness. Absolutely no future. However over time it became OK to live again. Remarkably I can still be happy. I can find new doors that will open and create new memories. Life can still be at times sad and painful BUT IT CAN also be fun. Just starting to dream again.

That’s the stage I am at now. Embracing the happiness as much as I respect the sadness. Maybe, just maybe tipping the life balance in favour of fun. Yes it still can be a wonderful life.

First rant of the month and then the garden beach

Before anyone says anything this photo was NOT today and not 2020……

It’s a bizarre country which I live in.

A place where British war time spirit and a stiff up lip is the way to defeat this unseen enemywell that’s what our newspapers are claiming. No I think you will find that it’s actually antibodies and vaccines that will do that. Self distancing will help dampen the curve but on its own it will not do the job.

A country which for 10 years has invested heavily in academic testing for an increasingly younger range of school kids. The only principle in UK education is meeting government targets by testing millions of kids, week after week. Test, test, test. Yet the same Government can’t see the importance of testing when it applies to a pandemic. They can’t even provide virus tests for our brave medics and front line carers. Actually the can’t even provide the appropriate protective kit to all our nurses. Suddenly we have a mad scramble for kit, tests and ventilators. It’s not as if the Government didn’t know. Three years ago a study reported to the then Government on how poorly prepared the country was for a pandemic. The Government (including many in the current cabinet) decided to bury the report.

That’s probably why the UK is soon going to have the worst pandemic mortality rate in Europe.

Deep deep sigh and divert gaze to domestic matters.

Dad would you mind if I didn’t do any revision this week for the school tests. Not sure I’m in the right frame of mind for it.”

Given the current climate why on earth is the school doing exams. Oh I forgot – it’s government policy. Can we just give the kids a break. Especially as the tests are based on such a narrow educational range. It’s more about proving to kids what they don’t know and spotlighting their individual weaknesses. What about letting kids show what they are good at, what they do know.

“Ok Son that’s fine with me. When you feel the revision force is with you then if you want to, then do some. If it’s not then just have FUN.”

And that’s what we did. We had to abandon the planned eat some whip cream while bouncing on the trampoline competition. The pigeons who have adopted our garden have now decided to build a nest right next to the trampoline AND it now has eggs. So we opted for plan b and c. Try to make some homemade ice cream. Followed by setting up our very own beach. In the garage I found a couple of old bags of play sand. So that was emptied onto the little patio and the old kiddies paddling pool was filled with water. Shorts and suncream on. An MP3 file of seaside bird and animal sounds was played on my portable music player. Hey presto we are at the beach. Ok we need to work on the beach sounds. The sound of whale songs and walruses fighting are not that common on the Yorkshire coast – but that’s nit picking. As a safe, social distancing adventure it most certainly worked. Now I just need to rebag the sand for our next trip. Maybe it’s to a desert.

Sitting here

It’s early morning and I’ve just finished my workout outside in the breezy Yorkshire air. Son is still asleep safe inside. I’m looking out into the distance and seeing no sign of human life. In the far distance you can just about see the main road leading to the coast. At this time of year it should be nose to tail with caravans and cars packed with excited families. Today it is completely deserted. I patiently waited for five minutes. Not one vehicle. Then I fall backwards and look at the heavens. An empty sky. Yes clouds and fleeting glimpses of lukewarm sun, but not one single aeroplane. To the East we can see one of the main air corridors. We often excitedly get the Flightradar24 app out and check where the many planes are heading. America, Canada, Europe, Asia. Today nothing. Not one single vapour trail.

Has the world stopped turning?

Three years ago our little home stopped dead yet the world kept turning. It was a harsh lesson. Even when good people leave us the vast majority of the world is oblivious. In the days after the funeral I would question

Why has the world not stopped…..

Well it appears to have stopped now. Yet does it help. NO.

Later I am inside listening to music on the radio. It’s a sobering experience. Usually listeners are requesting celebratory songs for weddings, anniversaries and birthdays. Today the airwaves are frequently filled with songs dedicated to rock lovers who have lost a fight with an unseen new enemy. My heart goes out to you all. It was only a matter of time before someone requested Alter Bridge and Godspeed. The finest song I’ve come across about loss. My bereavement go to track.

Test me once again
You know I didn’t do anything
Set my life on low
You know I could have had it all
Drifting out of place
With no direction and no escape
Set out all alone
Oh to a place I don’t belong
Without you
I know that I must change
Without you
I’ll never be the same
No
Farewell
Godspeed
And goodbye
You have lived
And you have changed
All our lives
Test me all the way
Surely you know
I’m not afraid
Prove now once again
That I will never see the end
Without you
I know that I must change
Without you
I’ll never be the same
Farewell
Godspeed
And goodbye
You have lived
And you have changed
All our lives
Cast away
Our regrets and all our fears
Just like
Like you did when you were here
And then the days
They ran out
And then the days
They ran out
Farewell
Godspeed
And goodbye
You have lived
And you have changed
All our lives
Cast away
Our regrets and all our fears
Just like
Like you did when you were here
And then the days
They ran out
And then the days
They ran out

Lyrics by Tremonti/Kennedy (source Musixmatch)

Even after a few hours the cars and aeroplanes are still missing. The world may still have stopped. But son is finally rousing himself. Our little world cannot permanently stop. He has a childhood to live and enjoy. So one more sip of my hot drink and find that happy face. Reach for that bag of tricks we all have and find a way to shut this horrible situation out for a while. Start having as much fun as we can. Let’s keep living and hope the world starts turning again real soon.

Stay safe my friends and I really hope you find your own way to smile. Maybe if enough of us do this then we might just be able to start the world turning again.

Random Tree

A random Yorkshire tree. When it snows, a random Yorkshire Tree positioned at the end of our sledging run. So a random Yorkshire tree with a very hard trunk which I have collided with on more than one occasion. It’s like a Rome. All the sledging runs seem to abruptly end at this tree.

So this morning’s fight with WordPress was a bit of a score draw. On the plus side it went remarkably smoothly and very quickly. On the downside my attempted fix – didn’t pigging work. So the app is still possessed. My comments on many sites just disappear. One explanation is that I’ve upset one of the Spam filters. I might have used a naughty word on a comment (or two ). See kiddies swearing is not big or clever. Anyway until it’s resolved I will keep trying to comment on your sites – a few comments are still sneaking through. Enjoy the peace and waffle free time while it lasts.

So the school version of homeschooling has ended for another week. It’s now the two week Easter break. A break which will probably look very like the last few weeks. Normally we look forward to these two weeks but this time it feels like just the same as the last few weeks. No real change except the school iPad can remain switched off.

But as everyday is FUN DAY let’s try to make the most of them.

It’s good to see school is getting into the celebratory mood. The kids have been set homework and have been given plenty of revision to complete over the holiday. After Easter it’s straight into online exams and YES the delights of spelling tests. Deep joy.

But we are not going to let school put a dampener on life over the next couple of weeks. So at lunchtime we reverted back to one of sons favourite games. Bouncing on a trampoline while holding a bucket filled with water. It’s amazing how even Son’s bucket of water ends up over his Dad. Maybe that’s why the game is so much fun. Then it was back to online lessons and trying to explain to a bewildered son the finer details of love poetry. You might have seen my sledgehammer writing style in Thursdays Terrible Poetry submissions. Me advising on poetry is like asking a pheasant to operate a pedestrian crossing. Some lessons are about personal growth and development. However this one was just about survival.

After the last lesson of the day the Easter break started with a dog walk. A walk to our sons self imposed world boundary. And a look over to a distant random tree. A tree beyond our little world. Let’s hope that when we get snow again, once again all our sledge runs will be able to meet this tree again.

Crazy

It’s all gone a bit crazy. Even the sheep I encountered on the one permitted walk out of the house .. It’s a scene of peace in front of the lens. Behind the lens I am being stalked by a pack of hungry sheep waiting for a biscuit.

Dad you have done some crazy things but that one is up there”

No it wasn’t my sanest moment. I lost a challenge and my punishment was to bounce for five minutes on the trampoline. In a moment of madness I made myself a cup of tea to drink while bouncing. Yes I didn’t really think that through. Unfortunately I didn’t come to my senses until after the first bounce had deposited the said contents of the cup onto my T-shirt. Clearly the tea is not the only thing that I have lost.

Dad what on earth are you doing”

I had made a mistake on a post that I was writing for a couple of friends.

“Son where is the rubber (eraser), I’ve messed up and need to change something”

Dad your using your IPad”

Yes I know”

Tell me Dad your not going thinking about using a rubber on the screen.”

Staggeringly I was in a moment of utter craziness. I guess it’s a combination of a complete lack of sleep, trying to help with French homework and the general oddness which has descended on to us all. It really is an odd feeling. Like we are living in an episode of the X-Files merged with Monty Python and Bear Grylls.

But at least we can still smile about it. If anything the craziness helps fill the day. So let’s have one more piece of craziness.

Rory (A Guy Called Bloke) has come up with a new music challenge.

you are to create a playlist of 15 songs based upon a weekly theme.  All titles must be relevant to the theme itself – not the artists just the song titles. This week the theme is CRAZY TIMES…

So here goes (going to try and just include songs from my music collection).

  1. Crazy Train – Ozzy
  2. Psychotic Break – Jerry Cantrell
  3. Madhouse – Anthrax
  4. Stone Cold Crazy – Queen
  5. Am I Going Insane – Black Sabbath
  6. Eyes of the Insane – Slayer
  7. Inmates (Were all Crazy) – Alice Cooper
  8. Crazy – Nazareth
  9. Crazy Horses – The Osmonds yes that’s my only Osmonds song
  10. Shine on you crazy diamond – Pink Floyd
  11. Crazy – Aerosmith
  12. Moon Crazy – Blue Oyster Cult
  13. Crazy World – Scorpions
  14. You’re Crazy – Guns n Roses
  15. Psycho – Metal Church

Air Display

We had an unexpected visitor.

A spectacular predator.

For a few minutes we had one of nature’s great air displays. Then it was off.

That was so lucky. Would have been so easy to miss this.

That brings to mind a slightly unsettling thought. How many of us would be missed if suddenly we were gone. Kinda like Marvels Infinity Wars. It’s an even more pertinent thought these strange days. So many of us are undertaking social distancing or full on isolation. Social links have been severed. If something goes wrong, if we are struggling, if we suddenly were gone – WHO would realise. Would the world even blink. Maybe not. That includes my own little family. Phone calls, visits, invites are rare at the best of times. Even rarer now. Would the world blink for us – no it probably wouldn’t. That’s a sobering thought. It’s a sobering thought for many of us.

But I guess that’s life. So we just have to deal with it. Keep our hearts open to others and just keep living. I’m lucky as I stumbled across the blogging universe.

The majestic raptor fly past is a great reminder of why living is so worth it.