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Thirty Minutes

About a month a go I visited the Moorlands Nature Reserve. It’s a small but ever so beautiful piece of nature on the edge of the city. After years of driving past it and thinking ‘must go there’ – I finally found the time. Really pleased I made myself stop the car and go for it.

Well another work visit to the City. Work completed sooner than expected. So a spare 30 minutes before I head for the school run. No better use of that time than another walk round the Reserve.

The colours have so changed in just one month.

Countless studies have shown the positive impact nature can have on a persons wellbeing and stress levels. I’m no statistician but I confirm that even just 30 minutes is just so uplifting.

I just love the beautiful carvings which are dotted around the reserve. The old 14th century acorn quote is brilliant. We can make a difference. Seemingly small and modest things can grow into something impressive given time and patience.

I really need to make a date to come and look at that quote every single month. Yes seemingly small changes in my lifestyle can have a significant impact. The garden can be made into our own little nature reserve. I can make a difference. Son can achieve his dreams. I can do this. He can do this. We can do this.

Posted on by bereavedandbeingasingleparent · 91 Comments

When diplomacy fails.

A largely stress free week for our son. It’s strange how these always coincide with times away from school. How can we have got education so badly wrong for so many kids. So many great teachers yet so many unhappy and unfulfilled children.

Our son likes lists. It reflects how is mind works. They are honest, raw and unfiltered.

Dad I have a top ten list of what I am looking forward to and not looking forward to with this school term

  • Being treated like I’m not allowed to understand stuff. I’m low attainment so I am supposed to act like it. Kids who get lower marks than me, who don’t answer as many questions are in classes above me.
  • Having to put my hand up for help. I have an invisible disability which school doesn’t want to see. So I don’t get any help. No help at all.
  • Never getting a chance to shine.
  • Having to do tests which are made to make me fail.
  • Completely pointless homework. It’s just testing your handwriting.
  • Too much noise. Too many people.
  • Being in a class with so many kids who don’t want to be there so they are naughty. Because I’m in the bottom class I’m supposed to be naughty.
  • Having to wear a uniform which is so uncomfortable and feels awful.
  • It’s never fun. Just rules and avoiding being given negatives.
  • At least it’s not an 8, 9 or 10 week school term.

So in a few hours it starts again. I will repeatedly bang my head on an unmoving brick wall as school and the local council won’t shift. They make me sound like that annoying parent who just will not see the clear logic of the situation. How dare I question the system.

All I can do is keep being there for our son. But maybe there is something else. Let’s really be that annoying pushy parent. Clearly working WITH school and the authorities doesn’t work. What has it produced. A kid stuck in bottom class getting absolutely no extra help at all.

Autism – nothing

Dyspraxia – nothing

Even the little bit of help he received with Dyslexia has been removed

Diplomacy has failed. Working with the authorities has failed. Maybe it’s time to fight them.

Posted on by bereavedandbeingasingleparent · 64 Comments

Million miles

Always two sides to every story..

Dad it’s been nice. On our walks we haven’t seen anyone. No one has been to our door all week. The phone hasn’t rung at all. Your mobile has not rung. Even when we went to the little local shop it was empty.

In the quiet moments of this week I had been fretting over the isolation. The increasing physical loneliness. Failing to adapt to the new world forced on me by bereavement. Yet one persons silent hell is another persons dream land. And when that person is our son then that is all that matters. The single most important thing. He is happiest when he distances himself from this strange alien world. So be it then

So I need to adjust to this new reality. So many others have had to. The wonderful comments I’ve received over the last few days have demonstrated this. It’s also demonstrated the indomitable human spirit. You can do this. I can do this. WE CAN DO THIS.

Friends. Good Friends. Close Friends. They are to be cherished and loved whether they are stood in front of you or if they are sat in front of a screen seemingly a million miles away across an ocean. Thank you for being there.

Let’s leave it with the fine words of Henry Rollins.

Loneliness adds beauty to life. It puts a special burn on sunsets and makes night air smell better

Posted on by bereavedandbeingasingleparent · 99 Comments

Village life

We knew a really nice couple in the village who we became good friends with. But life happens. Our own lives and troubles took over and we slowly drifted apart. To the extent that we hardly ever saw each other. Now it’s mostly a quick wave on dog walks. But it’s reassuring to have someone in the village who I know. Over the last few years the people I could talk to has reduced rapidly. The village is lovely but the isolation is often suffocating.

Today the isolation feels like it’s gone off the scale.

A sign has appeared outside our old friends house. House Sold by Private Sale. My heart sunk when I saw that. Even though our friendship has cooled the thought of them leaving still hurts. More isolated than ever. Now the village is entirely filled with nameless people who smile and occasionally say hello. They are friendly but are not friends. Our lives don’t cross. They haven’t a clue who I am. I’m just that bloke who goes for a run, takes the dog for a walk and appears to be a single parent. He’s probably separated from his wife.

With no pub, or shop or natural village focal point that is unlikely to change. During winter with the poor weather and dark nights you can go weeks without seeing another villager. The house lights are the only indication that it’s not a ghost village. It’s more isolation I could do without. The feeling of being trapped. The isolation is perfect for our son currently. He doesn’t want to leave the house with memories of his mum. Who can blame him. He can control his interaction with the outside world. The house is good for him.

Even if that wasn’t the case – we just can’t afford to move.

Trapped.

Isolation is increasingly a theme for so many in today’s fractured society. I feel it’s icy cold grip. More than ever. It’s another battle I need to take on. At the moment the battles just seem to keep coming.

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Halloween 3

This Halloween has to make our son happy. Failure is not an option. Best way to achieve that simple goal was to let him choose what spooky activities we will fill our time with. At the start of the week he came up with his list.

  1. Make a Pumpkin Head. But this year Dad let’s try not to make the poor soul look like Donald Trump. That’s just not fair on any fruit. *** I thought it was a vegetable. Every day is a school day.
  2. Halloween Costume. Dad I think we should try and go for a Freddie look. We don’t buy a costume we see what we can rustle up. I guess the mad dog will want his party hat on again.
  3. Watching as many Scooby Doo DVDs as we can find. Finish off with his three favourites. Boo Brothers, Kiss and Witches Ghost.
  4. Watch a Hammer Horror movie. These are atmospheric but relatively tame these days.
  5. Have a Lego building competition. This year it’s who can make the best haunted castle.
  6. Make a spooky music playlist.
  7. Make up a Halloween story. Dad this year I think it’s a couple of kids stuck in a scary computer game.
  8. Play our two Top Trump Monster packs.
  9. Any TV has to be spooky related like Ghostbusters.
  10. Monster knockout competition to decide the greatest ever horror character.
  11. Apple Bobbing
  12. Late night reading in the garden of Hound of the Baskervilles.
  13. All dog walks have to be after dark.
  14. Build a garden monster out of what we can find lying around. Then leave it for nature (or the dog) to dispose.
  15. Halloween treasure hunt in the garden to find hidden objects like chocolate bars.
  16. See what spooky food and drinks we can invent.
  17. Eat the cookie/biscuit game. Put a cookie on your forehead and then without using your hands try to somehow get the cookie into your mouth and it’s the first person to eat the cookie wins.
  18. Jelly Bean roulette. We have stocked up on some new flavours. Cat food, Snail, Earthworm, Earwax, Squid.
  19. Make Pumpkin Chilli Soup. Even I can manage that.

Have we missed anything. Any more cool ideas?

Posted on by bereavedandbeingasingleparent · 65 Comments

Come on it’s Friday

So like the weather we crash into the weekend. This photo was taken minutes before the heavy rain rushed in. It’s time to batten down the hatches for 24 hours.

For 10 brief minutes a delightful dry run in sublime autumnal colours. What followed was a long and protracted slog through a mud bath and driving rain. One step forward and two back. Seriously doubting if I could make the climbs which had been done countless times before. Soul destroying. No fun anymore just hard labour. Frigid isolation in this hostile environment. Doubting my sanity. What am I doing here.

It’s been a perfect microcosm of this week.

A week which has rapidly gone downhill. A long hard slog giving my soul a good kicking. Leaving my mojo and my confidence in tatters. Almost complete social isolation. Never ending pain from dental work. Failure to find solutions to home, school and work problems. Error strewn days. The house is filled with echoes of the past. Even blogging has been harder than usual. The words seem to be failing me. Three draft posts on Aspergers and one on Dyslexia deleted. Just not good enough. Not sure I trust myself enough to venture there. But then life interrupts my meltdown.

We have crashed into Friday. It’s also the start of the half term week holidays. It’s Halloween week. Remember the number one priority. The only one that matters in the end.

Give son the best childhood possible.

So it’s time to put my game face on. Work can wait until son has gone to bed. Halloween gives endless scope for creative fun. My problems will be pushed into the background by boundless youthful energy released by the school gates closing. I’m sure they will be back but just not this week. That’s not allowed.

Only one possible song to leave you with. Mr Alice Cooper and Schools Out.

Schools Out – Live

Posted on by bereavedandbeingasingleparent · 99 Comments

Fear

Sometimes the path leads to the light. The direction is clear. Other times the path takes you unerringly into darkness and uncertainty. Into fear.

Over the last few days my spirit and my mojo has dropped alarmingly. Today life is a struggle. I’m tired. I’m making too many mistakes. The smile is a little too forced. Confidence is a rare commodity. I feel old and worn out. The direction seems uncertain. Even the written word seems increasingly wooden. A few paths maybe have run their course. Maybe too many paths are now just covering old ground. Life focuses on don’ts rather than do’s. Where abstinence from the likes of caffeine moves from health enabling to puritanical punishment. Life doesn’t flow it requires back breaking effort.

It’s times like this that LOSS hits home the hardest. You realise what has been lost. That reassuring presence is just not there. The rooms seem empty and echo with sad thoughts. Isolation is all consuming. My bones feel fear. Yes fear.

“No one ever told me that grief felt so like fear” – C.S.Lewis

The track in the photograph – eventually it bends to the left and takes you out of the eerie dark. On the other side of the hill the track opens out and runs through a beautiful little moor. Just need to have the courage to keep on going.

So tonight let’s just get through what’s left of this lifeless day. Then in the morning – reset and go again. Find that path. Maybe it’s a new path with old ones closed down. Have the courage to continue down it.

Posted on by bereavedandbeingasingleparent · 54 Comments

ADHD and Aspergers

Beckies Mental Mess this week has been doing a great job of raising awareness about (ADHD) Attention Deficit Hyperactive Disorder. I’ve just read Rory’s words which explain so well what it’s like to live with ADHD.

From here in this quiet part of Yorkshire ADHD is very much part of our life. It’s now officially part of our sons diagnosis. But it feels very much like a junior version. During the long and ever so frustrating diagnostic process which he went through ADHD was an after thought. It was missed. Never mentioned. Everything was lumped into Aspergers and Dyspraxia.

Then our Paediatrician changed. In his first meeting with our Son he genuinely seemed surprised that he could find no mention of ADHD on the records. A few weeks later it was added to the diagnosis. Why was it missed?

We where made aware that Aspergers in most cases goes hand in hand with other conditions. Everything seems to merge together to give a unique set of symptoms and personality traits. It is often difficult to unpick the individual conditions. Generally Aspergers and Autism are just used as overriding terms to cover a wide and complex set of interrelated issues. In our sons case ADHD was just missed. A specialist went through the original symptoms list. Of the 16 original listed symptoms which were defined as Aspergers related 7 were later changed to ADHD.

As soon as ADHD was on the medical record we were offered medication. Interestingly although our Sons the symptoms had not changed at all suddenly the addition of four letters prompted the option of drugs. We declined. Or should I say Son declined. In his words

ADHD hasn’t changed me. I’m still the same person with Aspergers. It’s just who I am.

Since we declined medication ADHD has never been specifically mentioned again by our Doctors. They have continued to offer behavioural therapy to try and ease the young Aspergers kid into this strange old world. Due to Government cut backs the therapy is becoming increasingly sporadic. Once someone gets past a certain age the health support basically dries up. But at least something happened. From an Education point of view basically no school interventions have occurred. No assessment of educational impact has been carried out. It’s the standard education package for all regardless of any specific needs. It’s so much easier to bracket individual kids as low attainment.

This is the shocking fact in education today. Certainly here in England. Specific educational help to those with a learning disability – some prefer to call it a learning disadvantage – is denied to too many kids in our society. Effectively they are seen as an expensive drain on resources. So much easier to write them off. How do we explain that to our kids. How as a society have we got education so wrong. We need to keep shouting as one day those in charge will listen.

Posted on by bereavedandbeingasingleparent · 51 Comments

Red Sky in the morning….

Red Sky at night …. fisherman’s delight. Red Sky in the morning …. fisherman’s warning.

Yes it works.

A routine dental appointment ended with me trying to stem blood from the mouth for 4 hours. That’s a good start. Especially as I’m one of those odd souls who is fine with blood as long as it’s not mine….

Then school struck again….

Son had been looking forward to getting his school award from the celebration evening. That’s all changed now.

I don’t want to go. I REALLY don’t want to go. Turns out it’s not a party after all. Everyone getting an award has to go on stage and then give a little speech to the crowd. Going to be at least 100 parents sat in the audience. We have to practice the speech tomorrow. When I told the teacher about my Aspergers she said ‘it would be good for me'”

So we have gone from a boost to self confidence to meltdown. Doesn’t help when the kids have been told that they are representing the school so they need to be in full uniform and speak with a loud clear voice. Speaking to a large audience is a challenge for anyone. For a kid with Aspergers it’s a nightmare. Room full of strangers, no where to hide, all those eyes on you. One final twist is that the kids can take notes on stage to read from – well that’s bloody helpful when your dyslexic. It’s just not right. AGAIN.

So we have agreed that son will ask if he can get his award without going to the event. If he has to go then he is going to decline the award. If that’s the case then I’m sure a Dad , Son, Cat, Dog and Gerbils can come up with our own FUN awards night. The magic word being FUN.

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Dumbo meets Braveheart

Everyday more red bursts through to bring life to Yorkshire In Autumn. No creative license required here. Last night son asked to watched the Mel Gibson movie Braveheart. He quietly watched the movie in one sitting. When it had finished he had one of those looks. The Paddington Hard Stare.

“Where do I start. I gave up making a note of the historical inaccuracies when I got past 30. I think they were averaging one a minute. I hope people don’t think it happened like that. As a piece of pure make believe it was ok. As an accurate record of real history I’d rather trust the new Dumbo movie”

I have to say the new Dumbo is great. But it’s one of the THOSE movies which would have been much easier to watch if it had come out before our world changed. Movies with the death of a mum are still very raw. For both of us.

Dumbo also touched on the idea that sometimes we are not prepared for what may face us a parent and as a human. Don’t want to give any real spoilers away so I can’t say too much about the movie.

I wasn’t prepared in the slightest way for being a single parent. For being a widow. For having that awful conversation with your son. For picking up the pieces of a life which had been based purely on three of us. But to be fair as a couple we were not prepared for the loss of one of us. Our lifestyle was based on two parents. Financially it only worked with two of us. After we became a family our careers only continued to work because we could share the load. We only continued to have a bit of a social life because the other partner was there.

So when you suddenly take one partner away …. it all comes tumbling down. Three years later we are still trying to rebuild our life’s. Watching another autumn and another set of red leaves makes you appreciate life goes on – even after a death.