Posted on by bereavedandbeingasingleparent · 103 Comments

Change

Sorry going to milk our temporary farmers field lake for photos while it’s here. It does make such a difference to the view.

Time does make a difference. Look at schools. On Monday morning our PM said schools were completely safe and parents should send them there right away. Monday evening suddenly according to the same PM schools were clearly vectors for transmission and had to close immediately. Then on Tuesday the very same PM said schools were completely safe again but unfortunately staying shut. Having said that he has a track record of this. The man who championed Brexit to become leader likes to forget that before that he said “I would vote to stay in the single market (EU). I’m in favour of the single market”…..

So things can clearly change. One day I was one of two parents, the next I crashed into single parenting and the world of bereavement. Things can change.

But here’s the thing when they do change THEY CAN ALSO CHANGE FOR THE BETTER. That’s why there is always hope. Good things can still happen. So yes I’m struggling through a period or depression. Yes it feels like Groundhog Day. But it can change.

I can do this. We can do this.

I would vote to stay in the single market. I’m in favour of the single market

Posted on by bereavedandbeingasingleparent · 66 Comments

Start with a change

It’s still a little cold here. Definitely a cold start to 2021.

We have a family tradition. For the last 7 years I’ve taken Hawklad on New Years Day to Yorkshire Wildlife Park. Set off at 8am. Get there for when it opens. Spend a few hours wandering round the animals. Then grab a burger and leave before the real crowds arrive.

It’s a lovely tradition that Hawklad loves.

But life happens. Only essential journeys are recommended. Avoid out of area travel.

AND

Hawklad just isn’t in the right frame of mind to go. He is seemingly a million miles from venturing into public places.

So no Wildlife Park visit this New Years Day. So we improvised. A homemade burger and a Pepsi, just like he would have had. A hot donut replaced with a warmed up cake. Then we sat and watched a David Attenborough wildlife TV series.

Not quite the tradition but a decent replacement given what was available to us. 2021 feels like a year for making the best of it.

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Silly little things.

I think I might be on top of things. The mind is heading in the right direction. I’m in a decent place and then….

And then something sneaks up on me. With me it’s often seemingly a silly little thing. Suddenly the friendly wind is taken from my sails.

I couldn’t sleep late last night. Just wasn’t feeling tired so I decided to watch a movie. Something requiring no thinking power. So I went for a mindless comedy. Planes, Trains and Automobiles. Haven’t seen that in decades.

The last time I watched this movie I was in a different place in life. Life was still yet to really hit me. So the movies ending never really registered. Well it did last night. Wow did it register.

Spoiler alert………

The jolly and silly little movie closes with Steve Martin sudden realising that the chap he had spent the last 48 hours in travelling hell might not be as happily married as he had thought. He goes back to find him sat alone in a cold train station waiting room. His wife had died 8 years ago, he was alone and suffering.

That scene just really hit me. So unexpected. I’ve been there. I was that man. I might still be that man. I so could imagine what he felt like, sat alone in that cold bleak place. Watching others live and seemingly having no where to go.

The movie ended well but I was shaken. Sad, confused, anxious. Even after many hours I’m still feeling shaky. All from one silly movie.

The next time I watch a late night thing then let’s play it safe. It’s QVC or Scooby Doo or the Real Fire Channel for me…..

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Worn out

It’s a cold, bleak start to the day. Kind of feels like a black and white photo is the way to go.

I was thinking about how a break would be most welcome. Especially today.

We all need a break every so often. Either a change. Or a time to relax. Or a chance to really let the hair down. A chance to experience new lands. Or just a time to breathe.

Don’t get me wrong. I know that I am so fortunate with my life. Far too many have so little and are in such dark place. But today I’m feeling just a little worn out. Tired. Thinking back to my last break back in 2015. A lots happened since then. Some good but some really bad. Since 2016 it’s been single Aspergers parenting, fighting the system for our son and trying to eke out an income to pay the bills. Feels like it’s been non stop. A few concerts with Hawklad and taking him to see the occasional sport event. A few walks and up to this year, trail runs. So yes things to be thankful for. But…

But today I just feel worn out. In need of a break. Even just a night away from the house. A different bed. It’s been over 5 years since I’ve done that. But deep down I know that’s not happening any time soon. Asperger parenting is something that you can just can’t drop. Certainly not for a few more years. Maybe longer. So it’s about finding other ways to feel less worn out. Exploiting the options that are open to me and also being thankful for what I have. There are such beautiful things in my life.

We can do this.

Posted on by bereavedandbeingasingleparent · 65 Comments

Cinema

It’s that time of year. A definite feel to the movies we have watched. Can you see the theme.

Scrooged

Home Alone 1, 2, 3, 5

The Grinch

A Christmas Carol

Muppets Christmas Carol

The Santa Clause 1,2,3

Elf

National Lampoons Christmas Vacation

The Polar Express.

For me I just can’t quite catch the connection. Sure there must be one if I look hard enough.

One of the things that feels amiss this most odd year (that doesn’t work as 2020 is even) is the cinema experience. Before Hawklad we would always have a Christmas trip to the pictures (as my mum would have said). A meal before hand and then a movie. Such a lovely experience. So many wonderful memories.

Taking my mum to see The Horse Whisperer on Boxing Day. She hadn’t been to the pictures in 40 years. She was most puzzled not to watch the Pathe News segment before the movie. She refused to get up at the end and waited until the credits played through. Apparently she was waiting for the National Anthem to be played…

Trips with my partner to see huge blockbusters on Christmas Eve like the Lord of the Rings Movies. Then coming out in time to sing carols in the city centre.

Even after the world changed Hawklad and I kept the tradition going. A changed Aspergers tradition. We would take in the first, early morning screenings of movies like Jumanji and the Rise of Skywalker. Popcorn at 8am works on so many levels. Then we would go and get him his favourite takeout. All before midday.

But this year it’s no cinema. Any trip is just so out of reach for Hawklad and his anxieties. The world has changed. Even the prospect of Wonder Woman and Black Widow epics won’t overcome those fears. Maybe the trips to the Pictures have stopped for good. We will just have to see what the future holds but life goes on. It’s time to recreate that Christmas tradition at home. So we will pick a movie. A good movie. Set the dvd off at 8am. Microwaved popcorn in plentiful supply. The Christmas Cinema tradition continues.

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Fence

Which side of the fence is best?

I had a call with Hawklads new health specialist. She will (pesky pandemic dependent) come out to see him for the first time in January. Continuity is so important for someone on the spectrum. It takes time to earn trust and confidence. Those bridges when they come down are slow to be rebuilt. Having had a wonderful health lead for three years we are now in a spell of meet one, quickly see one disappear. Fingers crossed this time.

It’s clear what the medical opinion still is. Any meaningful progress is extremely unlikely until this virus is well under control. When it’s clear that the vaccine which has been administered works effectively and does protect. Only then can any progress be realistically contemplated. Prepare to bunker down for 2021. 2022 might be the first gateway to a more open life for our little family. I also have to accept the risk that progress does not happen for Hawklad. Bridges are not built. This is the new world.

I remain clear. It’s Hawklads life. He makes the call. I will support which ever route he goes down.

So will he return to school in January? Most likely NO. Will he make it back before the end of the school year in July. Probably NO. Will he start the new school year in September. Definitely no guarantee.

It feels like we are in one side of a fence. The side that feels limited but safe. The other side of the fence opens up the world, broadens his horizons but…….

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Say that again

Say that again…..

I so need to have a notebook which I carry around in my pocket at all times. Every time something is mentioned that has the slightest chance of becoming important then I could write it down. A permanent record to prompt my sieve like memory and stop those say that again moments.

Had a few too many of those over the last few days.

“Dad did you get the glazed cherries for our Christmas Eve treat?”

Say that again!!!!

“Dad did you buy the Home Alone 4 dvd for our Christmas Day movie?”

Say that again!!!!

“Dad did you phone school before they broke up to tell them that the Teams password isn’t working?”

Say that again!!!!

“Dad did you remember to make a donation to the school charity appeal last Thursday?”

Say that again!!!!

“Dad did you phone up XXXXXXX mum to get hold of their address so we can send them a card?”

Say that again!!!!

“Dad you haven’t forgotten that we are having Salmon to eat on Christmas Eve?”

Say that again!!!!

“Have we got the sausage rolls, French sticks, onion rings, pineapple rings, Doritos and mango chutney in for our Christmas Eve buffet?”

Say that again!!!!

“Dad did you remember that you said that you would send a copy of the family tree to Auntie Xxxx”

Say that again!!!!

“Dad did you remember to take the bread out of the oven. It’s been in there for most of the day and it’s looking a bit burnt.

Say that again!!!!

“Mr Xxxxxxxxx did you remember to submit form 5a. It needs to be received by the end of this month or the service will stop.

Say that again!!!!

“Ok you will need to give your dog these nasal sprays at least once a day. Will your dog sit still to let you do that.”

Say that again!!!!

Posted on by bereavedandbeingasingleparent · 38 Comments

Start again

Another Monday and the start of another school at home week. I make that Week 38. That’s a lot of weeks. Funny thing is that it doesn’t feel like 38 weeks. Somedays it feels like only a couple of months. Other days it seems like years.

In all probability during the early part of 2021 it will be a full year of schooling at home. That wasn’t really in the plan.

It has really all felt a bit hit and miss. Some good bits and some not so good bits. Lots of frustrations. But equally lots of laughs. Some subjects where the teaching is working. Others where after 38 weeks it is still a complete waste of time. But that’s thing. With having to stick to the school curriculum we don’t have much scope to change things. We are dependent on the school making changes. But they have to stick to the national curriculum.

But over those 38 weeks we have settled into a rhythm. Parent and Son. No need to set the alarm as we just naturally wake up at the right time. No real pressure if Hawklad starts a few minutes early or late. No need to think about breaks or food. They kind of just happen. We know which lessons will work and which won’t. If we don’t have an item for a lesson we now know how to wing it. We are not surprised by the lack of feedback. Hawklad doesn’t panic now if a teacher forgets about him. I get on with stuff until I’m needed to help out. The school week just happens now.

True homeschooling did feel daunting now it feels very doable. Tough but something we can cope with. But Week 38 also marks a dangerous time. That’s a lot of weeks of emailing and phoning school. Trying to make improvements to the teaching. Make it more tailored to Hawklad. Am I starting to take my eye off the ball. Not pushing the school as much. Maybe week 38 is time to refocus and start again. Or maybe it’s just going to be another one of those weeks. If I was a betting man I would put my money on the latter. It just feels that way.

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Black Friday

“Dad what on earth have you bought…”

Tibetan Singing Bowl Set — Easy to Play with Cushion & New Dual-End striker for Holistic Healing, Calming & Mindfulness ~ Antique Design

It’s a Tibetan Singing Bowl.

“Why…..”

It was really cheap in a Black Friday sale.

“Ok Dad but why….”

It offers a multi sensory path to enhanced meditation and spiritual enlightenment.

“You’ve just read that from the label.”

Yep you busted me. It does sound good.

“So does an 100 inch TV and that would be much more useful. ”

Yes but the TV would not be less than £10. So tomorrow you might catch me sat outside creating some beautiful vibrations and hypnotic, haunting moods.

“Can I throw a bucket of water over you.”

What’s it feel like to have a really cool and hip Dad.

“I wouldn’t know. I can talk about having a muppet as a parent.”

Ok, do you think I should just use it as an ornament.

“Yes Dad but that still doesn’t change the fact that you are a monumental muppet.”

No I guess it doesn’t, especially when you see what I’ve bought next…..

Posted on by bereavedandbeingasingleparent · 68 Comments

Wean myself off

This was last year. One hour into my trail run. Apart from missing the exercise I hope you can see why I miss running free.

Eventually you have to accept reality.

Hawklad’s anxieties are still rising. More routine tasks are becoming more difficult for him. He can largely control the dynamics within our house and garden. Lots of washing, extensive quarantining of items and being careful what he touches. He is ok within his castle walls. He is not ok with me venturing out.

Beyond those walls and that’s a completely different world. An alien, dangerous world to him. His doctors are clear – this will take a very long time to start to address. It’s not going to start happening until a pandemic is well behind us and as one of our leading scientists pointed out – with a fair wind we may start returning to something like normal life at the end of 2021. That’s assuming the new vaccines work and roll out soon….

So for me the reality is that our personal lockdown will likely stretch through 2021 as well. My mindset has to change. Away from getting through the next few months TO living the much longer new reality.

So back to the photograph. Running has become a bit of a drug for me. Now I have to completely wean myself off that. I’m nearly there as it’s been so long without it. Time to permanently replace it with other things.