Ski

Don’t panic this is not the weather today….

Time creeps up on you…….

I’ve never been one who worried too much about ageing. It is what it is. I was also someone who never really lost too much sleep on the ever growing bucket list. Plenty of time to catch up and tick those all important activities off the list.

Then life happened. Too many trips to funerals. Suddenly I was aware of that ever clicking life clock.

Last night I was watching a movie based on a family skiing holiday. A holiday that went badly wrong. The Will Ferrell ‘Downhill’ Movie. The most un ‘Will Ferrell’ movie ever. It was really good and rather unsettling, especially as the main character was probably about my age. As the movie went on I could hear that clock ticking just that little bit louder.

I’ve always wanted to ski. It’s right up on my bucket list. Near the top. I’ve just never got round to doing it. A couple of trips to a really rubbish rock hard carpet slope. That’s all I’ve managed. We had plans to go to Switzerland as a family during the winter. I could see a route to finally being a proper skier. Then life happened. Those plans evaporated. So last night I was watching that family ski in the movie and that ticking clock was deafening. Will I ever ski…..

It sounds silly but that thought really depressed me. I feel further away than ever from those alpine slopes. Time and my body is not on my side. Too many years of contact sport has left me with a ‘ previously enjoyed’ body frame. A couple of things need patching up. If I get them patched up then skiing might be out of the question. That ticking clock is annoyingly deafening.

Yet I still so want to SKI.

I guess all I can do is keep that dream alive for a while longer. Put off any patching work on the body and accept a few aches. Drop as much weight as I can and stay as fit as I can for as long as I can. Buy as much time as I can for that dream to come true AND JUST HOPE.

Just ask once

I had a scheduled call with the bank today. Just routine stuff. Routine stuff which you would just a year ago pop into the branch and sort out at the counter. Nothing is routine now.

Anyway during the call the bank person asked a couple of not really banking questions that kinda through me

Can I ask. Are you ok. Are you coping. It must be so tough. Are you getting the support you need.”

That’s the bank saying that……

Now before I go on – I am ok. I am coping. A bit of support would be nice but it’s not happening. But here’s the thing. I could so easily be doing not so well in this single parenting gig. Really struggling. Getting no support. Desperate. Looking over the precipice. Sadly many are. In fact forget the single bit, many people are….

I became a single parent in 2016 following the death of my partner. In that time the only official person to ask how I was doing was that bank person. No doctor, no school professional, no education specialist, no one from the local services. NO ONE in the support areas has ever asked what the bank person asked. How many people are struggling and nobody finds out. Nobody asks. I guess the assumption is that those that struggle will always put their hand up. Sadly that might not happen.

That is such a worrying thought.

Terminator

Kinda feels like the type of sky you get just before it all goes horribly wrong in a Terminator movie. This time no coming storm. Just me in the kitchen making a curry. Actually very similar when you think about it. Especially if you have ever seen or unfortunately tasted one of my Saag Aloo horrors.

As I watched that cloud formation role through my thoughts had moved from terrible cooking to more important stuff. Doesn’t that cloud look like a polar bear lying flat out on its tummy. Well it did to me….

We spent an hour or so playing the cloud spotting game today. Fantastic free garden entertainment, the kinda stuff you need during a prolonged lockdown. While we were cloud spotting I kept hearing a nagging voice in my head. We could be so easily playing this in a years time. It’s not unreasonable to assume that Hawklads anxieties and phobias will still be here in a years time. If so then our lockdown will still be in place in March 2022. That would make it TWO years. TWO years. Maybe that is what the clouds are telling me. There is a storm coming. A long protracted one.

Grim

Just let this research finding sink in (press on the link for the details)

Autistic people are four times as likely to experience depression over the course of their lives as their neurotypical peers

In the UK the approach is that parents have to fight tooth and nail for any kind of support. The fortunate ones who get some support find out all too frequently that support starts to be withdrawn around the teenage years. Adult autism support is basically non existent for the vast majority.

In our little family world Hawklad is struggling. His anxieties are on the rise. He is stressed out. Trips outside of the house and the garden are currently impossible for him. We are fortunate in that we do have access to some psychological support. Sadly from a Team who are stretched to breaking point. But we still have some support. For how long that support continues – who knows. He’s a teenager. This is the only support he gets now as all the other services have already been withdrawn.

How many other of autistic families are facing the same challenges. TOO MANY. How many autistic adults have been let down by society. TOO MANY.

This is grim.

Delightful

Red sky at night Shepherds delight.

I’m taking Boris Johnson so I guess I might be getting some of those delightful fan mail messages again.

Watching the news and again shaking my head. Just maybe the UK could vote for a leader next time who could be bothered to comb his hair or dress in front of a mirror. So our esteemed PM has been talking again. Amazing considering he has just got others to pay for a £200000 makeover on his flat.

Apparently 120000 deaths is in fact a sign of a job well done. Something to be proud of. It’s silly to compare us with other countries with much lower death levels as comparisons are meaningless. Soon things will be apparently back to normal with most of the restrictions lifted. Crowds will be back. Football grounds, restaurants and pubs will be full again. Life will be good within months. Which is bizarre as he then mentioned that (entirely down to Europe and absolutely nothing to do with lifting restrictions) a third wave will likely hit the UK real soon.

Ok….. Didn’t we already go through our really bad third wave after Christmas when the PM lifted restrictions against the advice of his medical experts. If a FOURTH wave hits then it’s not down to Europe. The threats sources are clear. From vaccine resistant mutations spreading far more rapidly due to premature restriction easing. The threat comes from still not having any meaningful Covid screening checks at many airports and ports. It comes from a bizarre refusal to address overcrowding, design failings and poor ventilation in our schools, offices and public places. It comes from using schools as a way of promoting a discredited ‘herd’ strategy. It comes from pinning all our hopes on a ‘vaccinate out of this mess strategy’ and close our eyes to other long overdue changes. It comes from still not having an effective track and trace system. It comes from a wonderful health service which has been cut back over far too many years and is now utterly exhausted. It comes from mixed messages from the top which is resulting in some people following social distancing and others thinking the pandemic is over.

Moan over….

That sky was delightful.

Typical Sunday

Sunday morning in Yorkshire. Like every Sunday morning for over a year now. Not enough sleep. Get up. Feed the pets. Exercise. Housework. Give Hawklad his breakfast. Feel frustratingly hemmed in. Isolated. Overthink life.

But eventually I start to breathe. Remembering what is important in life. In my life. Remembering those personal treasures that are so close to my heart. That always lift me up. That make me smile inside and out. And I realise just how truly fortunate I am.

Yes it’s been a typical Sunday. Well almost

It’s not RAINING…

WE can do this.

Are we really happy about this

It’s still not even midday on this stormy Monday and it already feels like it’s been a long week. Much shaking my head at the areas and topics Hawklad is having to learn. Really how will these facts and skills set him up for the future.

Then he listens to the news. It’s filled with talk of pandemics, nepotism and a country rapidly appearing to be an inwardly looking police state. Women having to protest because they don’t feel safe. A complete and utter Brexit shambles. Ongoing environmental disasters. Lots of waving the flag and saying we are better than anyone else. Look how much we can blame on immigration. Everything has a price. Profit is king. A world where the makeover of the PMs flat is more important than a pay rise for nurses. Leaders talking about bringing Victorian values back into schools.

Hawklad hears this. He talks about this.

Are we really happy that our children are being exposed to this. Being brought up in this type of world. Learning this stuff. Are we happy that the likes of these people are in charge of our child’s education.

Deciding exactly what they learn, how they learn it, where they can source there information from. What part of the economy they can be slotted in to.

Is it really about the children or is just about the economy. If it is really about the children then why don’t we ask them what they want. What interests them. What works for them. What world do they want to grow up in.

I bet it’s not this type of world….

This time

I can’t blame him for these, this time. But it does explain why he keeps coming in the house with muddy paws.

I had a post yesterday about Autism. When I wrote it things seemed ok with it. But then something happened. I happened….

I’m still working through this pcurrent bout of depression. Won’t be the first or last time I do this. When depression becomes DEPRESSION with me I start to doubt myself. Question my worth. That’s what happened yesterday. I reread the post and didn’t like it. The words were wrong. Uncertain of the message. Why was I bothering. If people want to read about Autism and Autism Patenting then they would be so much better off going to other blogs. Go to a blog like Robyn’s wonderful one. Nothing I said could change my mind. The voices in my would not be satisfied until I deleted the post. Eventually that is what happened.

Today the voices are not so strong. I guess today the post would have had a slightly better chance of being published. With my depression it comes in waves. Bad days then better days. Will be that way until I finally get on top of this run of D. In the meantime I will plod on. Trying to not listen to the voices in my head too much. Focusing on those things in my life which bring joy and happiness.

I can do this

We can do this.

Challenging

So my first Covid vaccination is in two weeks. The second is at the end of April. There are still no plans to offer vaccines to children. So in effect it does really change our situation going forward.

As of tonight the full online school system will be turned off again. Hawklad goes back to trying to keep up with his classmates with whatever we can get our hands on. How well that works depends largely on the teachers and teacher assistants. Dependent on them finding the time to send class materials and work. Since September it kind of just about worked. Better in some classes than others.

I’m not entirely hopeful this time around. The teachers and assistants have to be involved in supervising the pupils doing Covid self tests. For a school with 900 pupils to do that twice a week is a massive task. Support for Hawklad is likely to be very limited going forward.

It’s going to be a challenging period for everyone going forward.

Whip

The sun almost shines down on a Monday morning. So the schools are now open again.

A real media blitz is underway telling parents just how safe things are and also reminding them of the fines that can be given out for keeping children off school. The Education Secretary is talking about change. Changes he thinks are necessary. Ways to extend the school day so children learn more. Changes to the school year drastically cutting back on school holidays. Finding ways to get pupils to keep studying during weekends and those reduced holidays. Changes he thinks are long overdue.

Strangely no mention of changes to make schools better places to learn and have fun. No mention of changes to the Government’s dogmatic national curriculum. No mention of investment in home schooling. No mention of changes to the funding cuts the Government has made to child mental health services. No mention of more input from pupils, teachers and parents in shaping a better future. The only change required is clearly to make children work longer.

But what do we expect from a politician who is supposed to be in charge or our schooling system and who makes a point of having a horse whip on the front of his desk. Photo from The Guardian