Flick the switch

Ans so the transition begins.

A transition from a happy and relaxed boy to one wracked with doubt and anxiety.

School starts to flick the switch again. How many kids are going through this experience. Far Too Many.

Here the school prison gates open on Monday. Son’s words not mine.

So on this glorious winters day he tries to wade through the homework which was dished out before Christmas. He spent an hour trying to sketch a mirror image of a Scream like skull photo. The fear of picking up a negative for not putting enough effort into the drawing driving him on. Sadly I fear it’s also driving any love he might have for art well and truly out of his system as well.

Once the skull torture was finished. He started work for two upcoming spelling tests. Then time spent on Science, Mathematics and French work. Finally he needed to work hard to complete a writing piece neatly. His teachers words. Whats the point, going to get told that it’s not good enough, I haven’t tried enough and it needs to be done again. Son’s words.

This really can’t go on. Son deserve so much more than this. So many kids deserve better than this. Is it so difficult to make education just a little less daunting and just a little bit more inclusive. What’s the word I’m looking for. Welcoming. Another word. Enriching. Another word. Fun.

Who am I kidding. It will be the same school that he was so pleased to escape from before Christmas. But 2020 feels different this time. This time the prospect of a positive change has dimmed significantly. Our Government is now in place until son will have left secondary school. It is committed to extending the current education philosophy which has already created this hell hole. We are now facing a real risk of son being failed for the entirety of his school life. That’s a sobering thought.

2020 will start with yet another push to deliver any positive change at all. Again school and teachers will be told exactly what actions and support son needs to be put in place to make his schooling work better for him. The dialogue will be constant – certainly from my side. But deep down I know what the likely outcome is. So this year the question is probably more about what it will take for us to flick the switch and turn off this failed schooling nightmare. If we were still a two parent family then the switch would have already been flicked. Homeschooling. With Single Parenting it’s more fraught with logistical and financial issues. So many issues to address. BUT son only gets one childhood. One go at his formative years. Flicking the switch is increasingly looking inevitable.

Three

2020 currently is very three orientated. My football team got beat three nil at home. They had to use up all three substitutes before half time because of injuries. Then quickly found out that three substitutes was not enough as another player had to go off due to injury as well.

I got three bills in the post today.

I phoned up for a Doctors appointment and was told I had to wait three weeks for the first available slot.

Currently I am missing 3 running socks. Paddington Bear Stare towards Captain Chaos. So for my next run I can choose between a red running sock or a blue running sock or a white running sock. I think the red and blue combo with be best.

We have three gerbils. They are super friendly and also rather fascinating. If I could ask the three chaps (hope they are three of the same sex) one question it would be

Why when I put cardboard and wooden tunnels in your cage do you always put the smaller tube inside a larger one. Even when I put them on opposite ends of the cage why does one end up in the other within a few minutes.

As my gerbil vocabulary is so poor I guess I will never find out the answer to this first burning question of 2020. But I can’t leave this post on such a unresolvable cliffhanger. Apologies for the early contender for the most rubbish link of the year. As I’ve got over my initial New Years Blues and in the absence of an answer from the three rodents maybe it’s time for a few lists of three from 2019.

3 Biggest Fears that came true

  • School giving up on son
  • Boris Johnson becoming PM
  • Governments/The U.N. paying lip service and kicking into the long grass the momentum for change generated by the likes of Greta Thunberg

Best books read

  • Jean Lee – Nights Tooth
  • Stephen King – The Institute
  • Blake Crouch – Recursion

Best 3 movies of 2019

  • Avengers End Game
  • Horrible Histories – The Movie
  • Godzilla

Best 3 concerts

  • Alter Bridge/Shinedown
  • Kiss
  • Lynyrd Skynyrd

Best 3 albums

  • Alter Bridge – Walk the Sky
  • The Hu – The Gereg
  • Whitesnake – Flesh & Blood

Best 3 places visited

  • Kielder Water
  • Housesteads Roman Fort
  • North Yorkshire Moors Railway

3 Most helpful bits of advice from 2019 – kind of

  • Maybe bring your dog back when he’s calmed down a wee bit – dog training school
  • Just needs to work a bit harder to improve his spelling and handwriting – teacher
  • Lager is better for your teeth than lemon water – Dentist

Best 3 things which helped our son

  • Setting a goal for the number of new places to be visited
  • Rock music and concerts
  • Catching balls while bouncing on a trampoline

Craziest 3 things the pets did

  • Muddy paw prints on the ceiling – how is that possible
  • Boy Cat getting the award for being the biggest and heaviest cat on the Vets books
  • Captain Chaos burying one of my running shoes in the garden. Took me weeks to find it.

New New Year Tradition

We brought in the New Year by watching End Game.

Dad got to end the decade with the highest grossing movie. Wonder what movie will be watched in 10 years time. Please don’t let it be Avatar 2.

The movie was paused at midnight so we could see how many fireworks were let off in the distance. Living on a hill we often get a wide range of free displays to view. In the end a few but not as many as usual. Then it was time to go back into the house. As a kid this was a big deal. LETTING IN THE NEW YEAR. The youngest in the house would be thrown out of the house a few minutes before midnight. Thrown at without a coat regardless of the weather. Bit of a bugger when I was always the youngest. My job would be to stand outside and basically freeze my nuts off. Then at midnight I would be allowed back in carrying a piece of coke (coal) and a new coin. I would then have to go round every room in the house wishing happy new year. I always found the tradition thoroughly cold and most definitely bizarre.

A couple of hours before this midnight our son had asked about traditions. When he heard about our old bizarre ritual he decided to start his own.

Dad let’s restart your old family one.

Ok I’ve got some coins but I definitely don’t have any coal. Suppose we can see what stones we can find in the garden. Probably got some black paint somewhere,”

No Dad got a better idea. Much simpler and definitely more tasty.

So a few hours later son welcomed in the new year. Visiting each room carrying one pound coin and a bottle of Coca-cola. A New coke tradition started.

After a couple of hours sleep it was then an early drive to the Zoo. We have done this for the last four January 1sts. One of the first traditions started after his mum died.

Arrive when the zoo opens and try to get round before the crowds start to arrive. Basically we need to be back in the car by no later than midday.

Some traditions never die out. Dad being a plonker.

“Son looking at the map the zoo has a bug zone. Not seen that before.”

Dad the zoo doesn’t have any spiders or bugs.

The map says bug zone. So which bug do you hope they have”

Well I wouldn’t mind seeing a Tarantula. Maybe a Goliath Birdeater. Bullet Ants. A Tarantula Hawk would be cool. Quite excited now.

“It’s just round this corner”

Dad you complete muppet.

“Erm. Not quite what I expected but you don’t see many 4ft ladybirds……”

Pesky New Year

A late evening walk. Not easy for our son. Full of anxieties. But he only had 36 hours to meet his goal for the year. Twelve new places visited in 2019. We had two more to tick off. Too many crowds at the places we ventured to over the last few weeks. So a walk in a desolate dark wood became the next best option.

New Years Eve brought a walk down a little used path. A path that took us to a couple fishing lakes. Thankfully few anglers today so we could have our space. Son counted this as his 12th new place visited. His goal achieved. Not an easy goal for him because of his social anxieties.

*******

Dad I’m going to set a target of 15 new places for 2020. Surely we can find 15 deserted areas. Maybe one or two places will be allowed to have a few people there. Are you going for any New Year goals?

Just my usual trying to end up looking like George Clooney.

Who is George Clooney? Is he cool?

He was Batman.

That’s cool enough. Don’t expect any help from me getting you into the Bat Suit.

No I suspect I would need scaffolding and a construction team for that.

*******

2020 goals……

The only thing I’m specifically aiming for apart from looking like a George came from a blog I was reading this week. It mentioned changing things up. So I’m going to do some writing which takes me out of my comfort zone. Not sure what yet. Maybe I will write a professional looking post. That will be a first. Any volunteers for the ghostwriter for that one.

2020 goals……

Apart from that writing one I can’t think of any new ones that will stick. This year it feels like just dusting myself down and going again. I do tend to struggle with Day 365 of the year.

New Years Eve. I hate it. I’m sorry I just can’t buy into the fondly saying goodbye to the current year. Let’s look at all the highlights. Then welcome in the new year. It’s a new beginning. Is it really. You wake up January 1st to find that your slate has not been wiped clean. Sorry that’s just me. I’m so pleased for the people who can see the New Year so positively. I just can’t.

This year we add the end of the decade. Pictures of people ten years ago and now. For us it would be a family of 3 and now a family of 2. Not going down that road tonight.

So for those who enjoy New Year then I wish you a really happy time. Hope it’s great for you. For anyone who feels like me – I send you all my hugs and we will hopefully reconvene on the other side of this pesky midnight.

Waiting

Every morning we get a scene from Hitchcock’s Birds. Hordes of feathered friends waiting for the me to get my act together. Come on it’s about time we got breakfast. Just remember what happened in The Birds. No cute Angry Birds here….

We watched Angry Birds 2 a few nights back. It’s very funny. Red and Big Terrence are my new role models. The Birds in the Hitchcock movie are just a bit too Deadpool for my liking.

Everyday the garden birds wait and every day it’s worth it. Free, easy and safe food within feet of their nests. So sometimes waiting is worth it.

We finally managed to get our sons Education and Health Care Plan approved a few months after WE lost his mum. I remember a few parents saying well that’s the job done, your quids in now, it’s top class education for your son now. You could feel the sarcasm dripping off the words. Many parents buy into the idea spread by the media that kids with learning disabilities are taking money off their kids education. Schools are short of money because of these privileged kids. And anyway what’s the point – they are just low attainment. So undeserving. Just give the money to the normal kids…..

Welcome to modern, inclusive, caring Britain…..

Thankfully I didn’t assume it was job done. Now the real battle had begun. Trying to get any meaningful support from our factory farming education system. In practice the small level of funding nominally provided to our son effectively bought him a place in a secondary school. Nothing else. The money is put into the school budget for general classroom Teaching Assistants. These Teaching Assistants then are a resource for ALL kids in the class. The Teaching Assistants are not trained in learning disabilities. The school does have one who has experience in the area yet she has never spent anytime with our son. The school does not provide any additional help to kids like our son. It so much easier to label the kids low attainment and do nothing. So we get into a never ending cycle. The media vilify kids with learning disabilities. The government never contradicts these miss truths and the schools continue to do provide any support. The kids fall further behind. The parents pull their hair out.

So we are still waiting. Still waiting for progress. Still fighting battles. Still listening to the campaign of hate promoted by the media. Trying to get any help which might give our kids a chance. Not asking for special treatment. Just an opportunity for a decent education. So many kids are suffering in silence.

Still waiting. But there is now a sobering thought. A thought to take into 2020. Many of the current failings with the school system can be traced directly back to government policy and educational dogma. Ten years of taking schools back to traditional teaching practices. Back to Victorian values. Back to a time of unmitigated suffering for any child not fitting the expected mould. NOW we have 5 more years of this Government. A government proposing an even more stringent traditional approach. But here’s the rub. In 5 years son will be leaving secondary education.

We wait. So we probably will be still waiting in 5 years.

So as we move into 2020 the conclusion is that the school system will will not help kids like our son for many years. It will never help our son. It has and will continue to fail him until he leaves. I’m still trying to get my head round this. We will keep fighting but with little chance of any progress. So we are now in Plan B zone. What is Plan B? I’m not sure yet.

Sometimes waiting is not worth it.

Breaking his body

Running past this monumental feels like a daily privilege. Must admit running anywhere these days is a privilege.

The last two years brought injury after injury. Clearly doing the same thing over and over again was not working. Finally the penny dropped. But it did take the doctor warning me that actually I might have to PERMANENTLY STOP running and working out for common sense to finally take hold. Change was needed. A new exercise approach was put in place. Alternate Home CrossFit days with a day of running or cycling. No same exercise on two consecutive days. Sunday is a gentle exercise bike session and yoga. No pre exercise stretching warmup. If an exercise is causing the body pain stop it for a few days. If the exercise hurts again stop for a few weeks. If it hurts again then ditch the exercise. THATS IT. So far it’s working (touch wood). Four months of uninterrupted, mostly pain free exercise.

Change worked.

Our sons Aspergers journey continues. It’s a journey without a map. Who knows where it may lead. But I do have a gut feeling. The health professionals have talked about the possibility of our son becoming increasingly ill at ease with social interactions. Although from the age of 5 he has always struggled with this 2019 certainly has seen this intensify. Increasingly he just wants to spend his time in the safety of his home realm.

Although he seeks isolation from the outside world he struggles to be on his own. In our one parent, one child, mad pets kinda world that in practice means he struggles to be without me. With the advice from his health experts we have tried to gradually change things up to help with this. But it hasn’t worked. We tried things like him staying on his own at the house while I took the dog for a quick walk. Even though I would tell him the route. Stay in the village. Talk to him on the phone while I walked. The brief periods of solitude would throw him into a nervous meltdown. Any longer than 10 minutes and he would have to come looking for me. The only thing it achieved was to spike his anxiety levels. We decided to abandon the changes.

Whether this is Aspergers or whether it’s to do with losing his mum or both – who knows. But currently as a single parent I have to make the necessary adjustments to work around these constraints. One of which is that when he’s not at school my exercise programme is tied to the house or garden. Hence that rather puzzled look I got on Saturday. A group of walkers giving this rather odd looking chap a puzzled look. Even standing to watch for a few seconds. In the pouring cold rain why is a man in his garden dressed in shirts and a T-shirt jumping on and off an exercise bike to throw a 20lb kettlebell about.

It’s because I’m a single parent who can’t leave the house who has found a way to keep himself fit while not breaking his body. At least allow me that.

New couple in the village

How often do you overlook what is so close to you.

Today we ventured out into the mist and the rain. No car needed. A walk from the house. In just over an hour we were back home.

Son was convinced to go as it counts as a new place. That’s number 9 of the 12 new places he set himself for 2019. A place so close to home yet this was sons first trip here.

A time machine could take us back to early in the century. We had just moved into the house. Within a few days with a map in hand the new couple in the village set off to explore. Twenty minutes later we walked hand in hand through this very landscape. What a wonderful place. Splendid isolation – must come here often. My partner never went again. Now I’ve been twice.

It was an odd feeling. Not sadness. More puzzlement. Why did we not come here more often. A place the villagers label The Hag. Maybe it’s because it’s a bog fest. Maybe it’s because the local farmers come game shooting here sometimes. Maybe it’s because it’s just too close to home.

The place has an eerie feel. Beautiful yet very moody. Although that new couple in the village only came here once. I’m sure this place holds some hidden memories. For that reason it’s going to be put on my running routes list. Let’s see what memory gifts it yields in 2020.

Christmas Naughty List

Unbelievably Santa did not give Captain Chaos coal for Christmas. How did he not make the naughty list.

He got more presents than I did. Even the neighbour whose prized lawn he’s dug up sent him his own card. Unbelievable. Actually it’s not that hard to understand. He brings such joy, fun and life to the house. Humans really don’t deserve dogs as friends. We need to learn from their unconditional love.

No visitors, no phone calls. Splendid festive isolation. Perfect for our son. The dad from a few years back would have balked at that. That’s before Aspergers entered our family. Now isolation is the new rock and roll. Thats where a Captain Chaos comes in. He fills the gap created by the isolation. He more than fills that gap.

Dad I thought you had bought yourself a present. Are you not going to open it.

Maybe a bit later.

Looking at that puzzled look on your face you have lost it haven’t you.

Yep put it in a safe place so I wouldn’t lose it. And I can’t remember where now… Don’t you just hate that.

*************

Anyway the missing present is not missed. Too busy trying to duck and weave to avoid a flying well chewed Christmas Cuddly Robin. This is actually the quiet before the storm. Captain Chaos has still got to open his odd looking present. A 3ft long squeaking cuddly snake. Really wish my missing present was a set of ear muffs and maybe a safety helmet. Think I’m going to need them.

Names on Christmas Eve

Christmas Eve has been very damp and exceptionally grey. No colour at all. So it called for some colour from a couple of weeks ago. Today this is as colourful as it gets. I can’t think of a name for this at the moment.

As I’ve got older I’ve become more used to dealing with the inevitable life curveballs. But not completely. The dreaded demon curveball still gets through.

Dad if I had been a girl what would you and mum have called me.

I couldn’t remember and that’s a great start to 24th December. My defence is that we found out very early on in the pregnancy that it was boy names only. But I still should remember that. Those fun brainstorming seasons for two unprepared newbie parents in waiting. But nothing. It felt like I had let down our son and lost another important link with my partner. It hurt. It hurt like mad. Yes you can hurt at this time of year. Sadly so many do. Sending everyone of you a hug.

To try and clear my head I went outside to do my odd outside thing. Push a wheelbarrow around the garden a few times. It’s hard work but that’s the point. In the middle of the garden was a stray Santa’s Hat – presumably courtesy of Captain Chaos. So as the effort started to do its job I donned the slightly soggy hat. Wheelbarrowing in the rain. Like to see Gene Kelly’s face if that was the song he was given all those years ago to dance to. Wheelbarrowing in the rain did its job. Mind reset. I have one job and that is to make our son happy. Make him happy this Christmas. Need to get back to my A Game.

“Son when was the last time you had whip cream direct from the canister into the mouth”

Never Dad.

“Well you are now”

So that’s what we did. Soon this was escalated to shaving foam covering my entire face. It kinda suited me. Still no George Clooney but a vast improvement. A look all the more better for the sound of laughter filling the house.

Dad do you fancy a first to hit the crossbar challenge.

Followed a few minutes later with

Dad you do know it’s first to kick the ball onto the goal crossbar not first to repeatedly kick the ball into next doors garden challenge

As I spent a quite a bit of time retrieving the football from next doors garden I got to spend a bit of time noticing how a garden should look like. Very neat and tidy with immaculate lawns. Well almost immaculate. A couple of ugly holes courtesy of an escaping Captain Chaos. That’s compared to our garden which is more akin to a ploughed farmers field courtesy of moles, son and CAPTAIN CHAOS. Maybe 2020 is the year of the NEAT GARDEN. More likely it’s the year of the NEED A NEW GARDEN. So as the ball sailed over the hedge again son shouted.

Dad what would you call me now if I was a girl.

This time the curve ball missed.

Laa Laa Po Dora the Explorer Elsa Tinkerbell”

Really Dad. All those names.

“No son Dads fibbing.

Good I was getting worried. It’s a joke then

“Yes

Maybe you could call me either Daphne Blake or Velma Dinkley

“Jinkies that’s a good idea”

So a day that threatened to be scuppered on a girls name ended with laughs about a girls name. Like many folks I operate on such fine margins. With so little separating happiness and sadness. I really hope this Christmas you find happiness.

So which view

Looks wonderful yet a couple of yours later stood 30 yards down the path and it’s looking not so hot. Two different views.

School argues that son is doing really well. His behaviour is excellent. He works really hard. His grades are good. Often best in the class. He has plenty of friends thanks to the actions of the teachers. Last year one teacher told us that in her subject he should really be in the top set. No additional help required. Yet when I ask why other kids are moved up but never our son the response is so different. Oh he’s low attainment, the bottom class is right for him. Other kids are better at reading. So which is the real view then.

One minor point. Just sitting son next to random kids doesn’t count as establishing real friends.

I had a chat with our sons doctor last week. We discussed how son was increasingly struggling with social interactions. How he tried to avoid them. His Doctor said that it was important that he wasn’t pushed into doing anything he wasn’t comfortable with. Make progress at his own speed and avoid being put in highly stressful situations. He also stressed that he had written to school asking for dyslexia support for son and also stressed that any support should not take place in the classroom (it needed to be undertaking in private). However. School are insisting that as part of English son has to regularly read out sections of text to the wider school audience. It will be good for his dyslexia and his personal confidence. They also argue that it will help him integrate. So which view is right.

I was reading a blog yesterday which talked about grief and Christmas. It talked about this time being the perfect for renewal and celebrating wonderful memories. It’s a wonderful time. Yet the next blog I looked at talked about the desolation of Christmas for the bereaved. How it was a time for trying to forget and just surviving. So which view is right.

An American Doctor was on the TV talking about Autism. He had been working on a cure. He was confident that in the coming years Autism would be completely treatable. A burden on society, parents and individuals would be removed. But many like our son have a different view. It is who he is. It’s his unique personality. He doesn’t want to be cured all he wants is society to be more understanding. So which view do you trust.

My partner was in coma for the last few days of her life. At her bedside I whispered to her that I would stay faithful to her for the rest of my life. Partners for life. It was the right thing to do. Now a few years down the line what happens if I meet someone else. Say yes or no. Two different views.

Some views can be questioned. Some views can be argued with. Some views can be agreed with. Sometimes there are no right or wrong views. Sometimes seemingly genuinely held views are seen by others as dangerous and downright wrong. I will let you make your own mind up. You probably can guess what I think on some of these. At least one of these I really can’t make my mind up on. Maybe I never will.