Posted on by bereavedandbeingasingleparent · 43 Comments

Revolution

I was asked about if our son was any closer returning to school. This is his fourth week at home since the school returned full time. Well two things from today really paint the picture.

First an email from school advising that the school had now had its second confirmed case. This time a member of staff. Apparently the confirmed cases so far are not considered to be linked. A small number of individuals have been asked to isolate for 14 days and the school remains fully open.

The second was a conversation with our son. His words need no more elaboration.

“Dad I go into meltdown if the bedroom window is open. In fact I can’t even touch the window handle to close it. I just can’t go back. Can’t go back for some time to come.”

And there is our answer in a nutshell. At present government ministers are telling parents to ensure there kids go to school as it’s perfectly safe and is in fact our civic duty. To not do now apparently makes you a bad parent, someone who is not acting responsibly. Must get those words on a T-shirt.

I will continue to act irresponsibly and avoid doing my civic duty. Our son will return to school when he is ready to do so, when it is safe and when he is comfortable doing that. Until then – Viva La Revolution…..

L

Posted on by bereavedandbeingasingleparent · 58 Comments

Questions

This is a little tree which is close to our house. It sits at the side of the farmers field which backs onto our garden. It’s close by as a couple of my garden football shots have nearly hit it….. In the years that we have lived here it has never grown. It just seems to lean over a little further each year. I know how it feels…..

So many questions today. So many school work queries.

“Dad what are your thoughts on Gladstone‘s and Disraeli‘s political reforming achievements. They didn’t go far enough and do you think their colonial record negated what good they did do?”

“Dad what do you know about DNA structure and it’s impact on identical and fraternal twins?”

“Dad how would you write the mass of the earth in standard notation?”

“Dad in Animal Farm what does the character Moses represent and his relationship to Soviet history?”

“Dad have you ever studied John Agard’s poem FLAGS. Is it about the dangers of patriotism?”

“Dad I can’t get my head round French Verb Conjugation. Can you explain it to me?

As any self respecting parent would do I looked suitably vacant and thought wishfully back to the questions about which was my favourite Tellytubby. I was good at those questions.

Posted on by bereavedandbeingasingleparent · 44 Comments

Next stop

Ever got the urge to keep opening those gates. To just keep walking in one direction. To see what you find. No boundaries. No limits. To be free.

One day I will walk to the next stop.

Now if I packed enough egg sandwiches and tins of Pepsi!! then I will eventually arrive at the city of a Hull on the North East Coast. If I have been very organised and packed my floatation rings then it’s next stop Amsterdam.

What’s the next stop on the school at home journey?

I think Hawklad is now starting to realise that a return to school this month is out of the question. His fears and anxieties are not going to be overcome within weeks. So now he is starting to look at January as the next window of opportunity. So it’s looking like another 3 months of school at home (at least). We will continue to try to stick with the school teaching schedule. Cover the subjects they teach. Use whatever teaching materials they make available. If they don’t then we won’t lose any sleep over it. That’s more time for him to try and relax. To try and enjoy life. It’s often easily forgotten that too many are losing out on huge parts of their precious childhood. It’s not all about formal schooling and meeting government targets.

So be it. We have got this.

It’s completely his call. He decides what the next stop is.

Posted on by bereavedandbeingasingleparent · 81 Comments

Insignificant

It’s a big sky. Its easy to feel very small and insignificant stood under it.

There are so many times when parenting is the best gig on the planet. Then there are other times…

I was trying to convince our son that he had washed his hands enough. He had been at the soap and water for nearly five minutes. Everything I said didn’t seem to have any impact. Finally he decided that was enough. He asked if the towel was clean and had it been washed that day. I assured him that was the case. He left the bathroom and I looked at his hands. His very red and sore skin. That’s what happens when you wash as often as he does. We are using skin friendly soap. I water it down further. But his hands are still red. I encourage him to use his skin care lotion. But his hands are still sore.

These are the times I feel inadequate as a parent. Missing the support of another person. Someone to share the load. Definitely running out of things to try. Actually ran out of things to try. His health professionals try to help but they see this intrinsically linked to the pandemic. Get the pandemic under control and we can start to bring his hand washing under control – hopefully. But that doesn’t make me feel any better as a parent. Feels like I had one job and I dropped the ball on it.

So I’m stood under that big sky. Feeling insignificant. Time to breathe. Reset and go again. Yes significant but definitely not beaten yet.

Posted on by bereavedandbeingasingleparent · 45 Comments

A window

A brief window to step outside and breath. Otherwise it’s been horrible. Many of the places around us have closed due to bad weather. Must admit education feels that way a bit currently.

UK School doesn’t really work for those with additional educational needs. The traditional classroom setup brings much stress. School at home brings a little respite.

So that’s two weeks ticked off from the next stage of the school at home approach.

I was asked why I didn’t call it homeschooling. Basically we are still trying to follow what the school is teaching. Not setting our own learning agenda. Having to do this just in case our son decides to return to school when he is able to. So it’s not the freedom of homeschooling, it’s basically school but at home.

So in two weeks we have kind of found a way of trying to keep up with the class. Covering the same subjects. In some lessons we are getting all of the material which is being used in class. In some we are getting some of the material and we are trying to fill in the gaps as best we can. In a few subjects we are basically getting nothing so we are just winging those – maybe we are following the class, maybe we are heading in completely the wrong direction.

He is getting virtually no pastoral care from school. Absolutely zero feedback on work submitted, not sure some of the teachers are even reading it yet. A couple of the teachers do occasionally send a message asking if he is ok with the work set. That’s it really. On a Thursday all the pupils have to select an option for an additional lesson. It’s supposed to cover non curriculum activities. It’s about learning new skills and building confidence. It could be a gaming option, archeology, performing arts, sports, astronomy. He hasn’t been included in this programme – says it all really.

In my mind I have already settled on the best way forward. It’s for our son to leave school and opt for full on homeschooling. But it’s his call. It’s his future. So when the time is right then he can make a decision. But I have to say school are not bending over backwards to sell themselves.

L

Posted on by bereavedandbeingasingleparent · 93 Comments

It’s wet

It’s definitely wet today. Pouring down and very cold. All rather depressing so let’s take the time to look at a bit of nature’s colour.

Do you ever have those conversations. Those conversations where the words seem to head in one direction but actual the conversation clearly ends up in a totally different place. Ever so frustrating.

I’ve spoken to school about Hawklads enforced school at home project. I thought I had explained to school that although it’s kind of working it was far from ideal. In particular

  • He is getting absolutely zero feedback. He is submitting work but getting nothing back. The other kids are clearly getting marks and comments back. That’s clear from some of the teacher comments on the set work tasks. But those comments are always aimed at other pupils. If he doesn’t get feedback then what is the point.
  • Have the teachers forgotten that he is dyslexic. Comments like ‘if I don’t get round to sending you tasks for the lesson then just read a book on the subject’ don’t really help….
  • Have the teachers forgotten that he has difficulty in hand drawing. He struggles with fine motor skills. I can’t believe the number of times the set task is to hand draw something – unbelievably that is currently not Art.
  • Some of the subject teachers are still completely forgetting about Hawklad. No subject material at all has been made available.

Anyway the school seemed very supportive, so surely job done. Clearly not as the school responded with an email basically saying that they were happy that things where going so well. They will keep going with the current approach and they hoped that we would keep in touch…..

Sounds like it’s time for me to most definitely stay in touch with them right now.

Posted on by bereavedandbeingasingleparent · 58 Comments

Odd sandwiches

The one thing that you get used to as an Aspergers parent is routine. Lots of routine. That’s tough for parents like me as I am not really a routine person. I’m a bit more impromptu. Bit more going with the flow, see what happens person. Maybe some would call it winging it. Which is most odd. On most of the old Aspergers tests I would score very highly yet on one I was way down. Routine.

On this Hawklad is completely different to me. He needs his routine, his order, his plans. He needs to have that safety net and he needs to follow them. It’s reflected in so many things. If we are driving somewhere then we need to follow the usual route, even if that means a much longer journey. He likes to wear the same types of clothing – if he grows out of them then we need to replace with almost exact copies. He has a TV and movie schedule which he sets way in advance. We will often watch the same movie over and over again. School lessons have to follow the timetable without variation. We need to buy the same types of pens and pencils. He likes to go out in the garden and talk at the same times. He doesn’t like me to do things like change my hairstyle or try new clothes. It’s funny I’ve been wanting to shave my hair off for years but that’s just not allowed.

Break the routine and he is immediately hit with waves of self doubt and fear. Over the years we have tried to work on this. Slowly trying to introduce change. Occasionally trying to introduce unplanned but definitely fun routine changes. But it’s never really worked. Routine is just a key part of who Hawklad is.

Another area of much needed repetition is food. He has the same seven day food menu. The same foods on the same days, year after year. Trying new foods is just not something he does really. Normally ends in failure.

“Dad what on Earth is that.”

It’s a sandwich.

“Yes I can see the bread but it’s what is between that which is the worry.”

That will be cheese and onion crisps. It’s going to be one of the great gourmet experiences. A crisp butty. A crisp sandwich.

“Really. That is just wrong on so many levels.”

It’s fantastic. Go on try it. It’s a family tradition. Your Little Nan would always be treating herself with one. But her crisp butty would be made with Ready Salted crisps.

“Just No Dad.”

Ok. But if it’s not a crisp butty then what about a chip butty. A sandwich made from fried chips (fries) with heaps of tomato ketchup. Another true taste sensation.

“Erm NO. You can keep that as well.”

Ok Hawklad what about a fish finger sandwich. Fantastic.

“Not happening. That’s a tradition which is not passing down the gene line anymore. It ends with you.”

Posted on by bereavedandbeingasingleparent · 86 Comments

Cobwebs

Sorry this post is a day late. Think MONDAY….

Someone has been very busy. Boris is happily sat admiring all the hard work. Poor Boris the spider. Having a name which is now associated with our so called leader. Boris is a part timer, a serial liar, heartless, out of his depth, out of step with the world, a relic of a bygone era, addicted to his privileged lifestyle, not interested in the future of the species, has been repeatedly sacked, likes to hear his own voice and is basically a reptile at heart. Qualities not found thankfully in our little garden Boris.

So the start of the next phase of the school at home project got off to a predictable start. Looking at a blank screen. Waiting for something from school to allow Hawklad to try and do some work. Two hours of a blank screen. As we don’t even know what subjects are being taught today, there is nothing we can do. So all we can do is – I will send another email into school and Hawklad can play on Minecraft. You never know that game maybe part of the curriculum.

Cobwebs is an apt description for today. The first school day. An early start for Hawklad and even earlier start for me. Back to the delights of early morning workouts. Those early mornings when I just can’t seem to shake those cobwebs from my brain. It’s times like this that I really miss caffeine.

A few times this morning I found myself just repeating the same exercise. Over and over again for several minutes. The brain stuck in a tired loop or maybe it had just switched off and I was in autopilot mode.

Stuck in autopilot mode is probably a good description of the school system. Repeatedly doing the same thing over and over again, no variation, almost forgetting what you are trying to achieve. At least our garden Boris doesn’t do that. He is definitely a most able teacher about life.

Posted on by bereavedandbeingasingleparent · 79 Comments

The third sequel

The third sequel already. The Trilogy done in one day. Eat your heart out Peter Jackson.

So this is the third instalment in the ‘what has changed over the 6 months of pandemic isolation’ saga. This time it’s what has changed for me. I guess this one is called The Return of the Kermit the Frog King. So what has changed then for me.

  • With Hawklads increasingly pronounced Social and Health related anxieties the last six months have seen a ramping up of the parenting pressures. Fewer breaks, more challenges and yes less support. In the UK small amount of support that has survived the Conservative Funding Cutbacks largely stops when kids hit the teenage years.
  • Have become a home educator. A school facilitator. A Classroom Supplies specialist. Much smirking…. After 6 months I’m still winging it.
  • I’m sleeping less. Much less. Just can’t seem to reset the insomnia cycle.
  • Certainly more isolated in terms of actually meeting people outside our little bubble. In 6 months I’ve seen family members twice, one work colleague (and good friend) maybe three times, neighbours a handful of times, the local shop workers maybe a couple of times a month, the dentist once, one visit from the boilerman, a few health workers and doctors. That’s about it. Oh actually forgot one person. The Postman, the only person I see regularly. I count his fairly frequent waves as my most regular physical contact. Luckily I have lovely online friends.
  • With not meeting too many people I’ve started noticing human life more. I notice dog walkers in the fields, cyclists, passing cars, voices from the street, even planes in the sky. A reminder that a bigger world still exists out there.
  • My conversation skills have never come easy to me. I have to work on and practice them. That’s just not happened for months. Even on most phone calls I can feel myself becoming increasingly wooden.
  • My largely unseen dress sense is becoming increasingly avant-garde.
  • I have lost 6lbs but you wouldn’t notice it. Having to resort to consuming far too much Soya (Soy) which isn’t great for my tummy. No I’m not pregnant.
  • I’ve stopped running and walking and road cycling. Must admit it’s not doing my old contact sport injuries any good. Bits are starting to seize up. So I’m trying to find my inner Yoga. Or as I call it Controlled Falling Over.
  • Work has dried up. This was supposed to be a really busy year. Lots of new jobs and major events. In practice that all was cancelled. Remains cancelled. Some plans have been put in place but really I’m not going to get much work until 2021.
  • I’m more able to fill my day without leaving our little household world. No need to visit shops daily, coffee shops, cinema, visit family or friends. I’m not saying it’s a good thing, but it comes easier to me now.
  • I do tend to overthink things now. Can have days when I do sober too much time internalising stuff. With me that’s not necessarily a good thing. It’s such a short stroll to self doubt and negativity.

Yes things have changed for me. They will continue to change as our personal lockdown is not going to end anytime soon. Potentially months more, maybe much longer. With us being an Aspergers Family that was kind of in place before the pandemic. Maybe many of these changes were already happening before the March lockdown. They have just become more pronounced. Maybe these are longer term changes. Maybe it’s much more than a three episode trilogy. Maybe it’s a permanent feature.

Posted on by bereavedandbeingasingleparent · 92 Comments

Where did that go

Where did that go? Where did the summer holidays go. For so many families, where did that lockdown go? That’s 7 weeks of summer and exactly 6 months of lockdown.

We leave the summer holidays like we found them. Grey.

Many leave the lockdown as we found it. Well actually that’s sadly not strictly true here in the UK. The daily rise in pandemic and the rate of spread (R number) is actually higher now than when it forced us all into lockdown. I guess the confusion is the same. Some times it’s safe to meet in groups then at other times it’s considered most unsafe. Sometimes masks are required, sometimes they are not. Get tested but please don’t get tested. It’s safe to meet work colleagues but most unsafe to meet friends and family. There are those in high risk groups but you don’t need to worry about that. You must observe 2m social distancing but it’s ok if you don’t especially in pubs and at Horse Racing events. Don’t worry about the details it will be fine.

But for some families and households, the lockdown is most certainly not over. The Government seems to be demonising those in that position. We are being unpatriotic. Not doing our civic duty. Letting others down. As a result support is being pulled, threats made, blamed for the problems of the country and fines starting to be issued. I can assure the so called Government that it’s not out of choice. We are dealing with the reality of life. And that life is messy, complicated, unpredictable and frustrating. We have to deal with the details.

That part of life has not changed during the summer holidays and lockdown.