Posted on by bereavedandbeingasingleparent · 69 Comments

Let’s spell out Monday

An entire weekend without seeing any evidence of other humans. No post. No phone calls. No dog walkers. Villagers hidden away in warm dry houses. On the walks not even one passing car or stray rambler. Helps when many of the roads are closed with overrunning roadworks or floods. Great fun in the pouring rain trying to play tennis on the pavement. Very cramped in an area probably not big enough for table tennis.

Sadly the relaxing weekend goes to quickly and dreaded school looms. A temporary change in school bus routes means more strange faces and much larger buses are running. No guarantee when the bus turns up. An absolute nightmare for a kid with Autism. If only that was the only thing.

Another heated discussion with school and the authorities. Both reassuring us that measures have been put in place which ensure compliance with government requirements and allows all kids a fair chance of performing well. Yeh right. Keep the Government happy – Sod the kids in effect…. Clearly certain parties need to lookup the definitions of all and fair. So this weekend our son’s homework basically is all about writing out three times all his spelling mistakes and unclear handwriting attempts. That’s going to expand his mind and boost his confidence!!

Then to cap it off he has to revise for an English Test. The test is an old school Spelling one. Learn 20 words.

Language

Presented

Sherlock

Through

Evidence

It’s the same spelling test for all in the class. No extra time or help for any child. Again maybe it just me and my cabin fever. If it is please just delete this post. But how is this fair. On what planet is this supposed to have any positive impact on any child with dyslexia and autism. Designed to fail AGAIN. For all the required words our son can give definitions for and provide alternative examples of how to use the word correctly in spoken English. But this is not important apparently. Not what school and the government wants. The focus is on getting all kids to just spell by learning parrot fashion a list of predefined words. If you can’t do this then you are low attainment. A failure. A faulty item.

Education is filled with really good, dedicated and caring teachers. Yet they are increasingly told how to teach and to focus on a narrowing range of objectives. Objectives not about the interests of the child. It’s all about Satisfying the Government. The agenda is that money should go to fund tax cuts for the rich rather than on unimportant things like school budgets. To make sure this happens Schools need to follow the tried and tested factory model. Increasingly large production runs which help drive down costs. Eliminate natural variations and reduce choice. Children just seen in terms of inputs and outputs. Push them through the system. Those who don’t fit are labelled a problem and discarded as surplus to requirements.

I will tell you where the staggering stupidity and the real problem lies. It’s in those leaders pushing this dogmatic crap and equally on those who choose to vote for them. Shame on you.

So we move on into another uncertain week filled with too much anxiety for someone so young. Let’s hope a few Muppet and Spider-Man movies can briefly lift the mood. Even a bit of no space tennis might help. But surely the countless thousands of children who suffer deserve so much more than this. The really do.

Posted on by bereavedandbeingasingleparent · 54 Comments

Mind wrestling

Yorkshire weather. Good running weather. Why would I want to run in dry warm windless conditions. Well that’s what I tell myself. Maybe I’m like Count Dracula. I would turn to dust in direct sunlight. I wonder what I would do if someone offered me the chance though.

I’m mind wrestling with something at the moment. My partner was an epic traveller. She visited so many countries. It was her extravagance. From her late teens she would save up during the year for one great adventure. Family and her adventures was what she lived for. The adventures only stopped when we became a family. Her dream was that when our son became older we could have adventures together. The two places she always talked about was New Zealand (would have been her first time) and Chile. She always said that we would all love Chile.

Then life happened.

I really want to complete those journeys for her. Our Autism World may preclude that. Circumstances may preclude it. But we will see. I most admit a part of me doesn’t want to do those trips. It’s just not right that it would only be the two of us.

Sorry I digress. Back to my mind wrestling. So many adventures and so many photographs. All sat neatly and well organised in carefully stored albums. Here is the dilemma. Part of me wants to do a retrospective photo journal. Tell her travel story. Her trip to the Soviet Union (gives you an idea of the timeframe) maybe would be a great starting point. YET another part of me recoils at the idea. What if she hates that idea. What if I’m breaking some unwritten bond of trust. It’s like having two competing voices on either shoulder each shouting differing viewpoints on life.

She’s not here anymore. What’s the problem!

YOU KNOW SHE WOULD SAY NO. I CAN’T BELIEVE YOUR SERIOUSLY THINKING ABOUT THIS!

But this feeling is something I’ve grown used to over these three years. On virtually every major decision I have these doubts. ‘What do I want to do’ balanced against ‘what would she do’. I try to see the world through my eyes and at the same time through her eyes. Problem is that we were two completely different characters. We each had our own unique take on the world. We would frequently disagree on the right answer. Often we would compromise. I’m still trying to compromise now. Yet I can’t replicate her thought process. I never could and I never will. I’m probably getting her point of view completely wrong. But I still do it.

Maybe other people do this. Maybe it’s just me sinking further into cabin fever.

So am I going to publish this travel journal? I don’t know. WE still haven’t decided.

Posted on by bereavedandbeingasingleparent · 60 Comments

Respite from the deluge

Torrential rain for the last 24 hours. But so in need of a run to clear my head. Head to the woods for a bet of shelter. Unbelievably the rain stopped to give a brief respite from the deluge.

Sadly no respite from the school madness. Not even in Drama. DRAMA!! The subject assessment tests reflect Government policy on teaching and testing. Students are required to write the Drama Term and it’s meaning. Correct spellings must be learnt.

Tableaux – a moment of frozen action on stage

Accumulation – adding another performer arch time a movement is repeated

Exaggeration – when you perform something in a heightened style

Melodrama – a sensational dramatic piece with exaggerated characters and exciting events designed to appeal to the emotions

And on and on…. I won’t bore you with the full list.

Correct spellings …..

Really …..

For goodness sake this is Drama. This is on top of negatives which are dished out if you forget to bring in a completely black T-shirt and Track Suit bottoms for the lesson. On top of negatives for not learning lines. On top of forcing kids into groups of strangers and expecting them to interact freely. On top of negatives if kids are found laughing and having fun. Forcing kids to go on stage and perform in front of large numbers of kids, support staff and teachers – even when it leads to extreme anxiety. Isn’t it supposed to be fun and enjoyable. Obviously not according to those in charge. Some kids are set up to fail. Some kids are clearly deserving of having their confidence ground into the dirt. Just feels like there is no respite from the deluge.

Dad when I get the first opportunity to drop Drama I will go into the Guinness Book of Records for the quickest ever exit from a subject.

I can’t blame him at all. But it’s such a potential waste. Sadly it’s not just Drama and it’s not just our son. How many kids are turned off subjects which they could eventually excel in because of inflexible and insensitive teaching practices. Education should be about finding the gifts, talents and special interests in every single child. Encouraging kids to reach for the stars. Unfortunately education has been skewed by politicians who just don’t understand.

It’s time to kick this generation of self centred politicians out of the education world. It’s time to let good teachers teach. Its time to let every child have a chance and above all else it’s time to let kids enjoy being kids again.

Posted on by bereavedandbeingasingleparent · 83 Comments

The Poorly Car Run

There is a run I do all too frequently. It’s a lovely run. It’s particularly lovely as it’s flat. But it’s a few miles away from my usual haunts. The run starts and ends at the garage. You see it’s a run which happens when my car is poorly. Today it was the tyres. So off the car went to the garage. So off I went on my Poorly Car Run. Nothing was than sitting in a garage waiting area reading about cars I can’t afford.

The run closely follows one of our larger and most beautiful rivers. The Ouse. As it’s a river that regularly floods you can see the river depth marker. Today it is quite high but thankfully below flooding levels. It did flood a few weeks ago and in the woods you can see the remnants of those high waters.

If I wasn’t about to be hammered financially by the Garage this run would be a truly stunning experience.

The run crosses the flood plains. Today it’s dry but when it floods here can be under 3ft of water. Cold Dark Yorkshire water.

It’s sad that it takes a Poorly Car to bring me here.

So the car has been returned. Monopoly money has been handed over to the Garage. It was a shorts run so my legs got well and truly muddy. Can’t imagine what a dry run feels like. So it was back to work but this muppet had forgotten a change of clothing. Work, autumn, shorts and dirty legs is not a great combo. Luckily it was a solo office stint today.

Few hours later it’s back to the latest school soap story. Another subject test sat without any reading help, no reading pen and no additional time. Even the questions are worded in such a way to make it harder for kids with Aspergers. Set up to fail. Set up to justify the schools assessment of low attainment. I really need another run to release the anger. Anger at the School. Anger at the Council. Anger at me. Anger at the Government. Above all anger at those who will flock in their millions to vote for this Government. A Government for the few.

Maybe tomorrow I will return to the Poorly Car Run. But hopefully it will be the ‘Nothing to do with the car, here out of choice to heal my soul Run’.

Posted on by bereavedandbeingasingleparent · 91 Comments

When diplomacy fails.

A largely stress free week for our son. It’s strange how these always coincide with times away from school. How can we have got education so badly wrong for so many kids. So many great teachers yet so many unhappy and unfulfilled children.

Our son likes lists. It reflects how is mind works. They are honest, raw and unfiltered.

Dad I have a top ten list of what I am looking forward to and not looking forward to with this school term

  • Being treated like I’m not allowed to understand stuff. I’m low attainment so I am supposed to act like it. Kids who get lower marks than me, who don’t answer as many questions are in classes above me.
  • Having to put my hand up for help. I have an invisible disability which school doesn’t want to see. So I don’t get any help. No help at all.
  • Never getting a chance to shine.
  • Having to do tests which are made to make me fail.
  • Completely pointless homework. It’s just testing your handwriting.
  • Too much noise. Too many people.
  • Being in a class with so many kids who don’t want to be there so they are naughty. Because I’m in the bottom class I’m supposed to be naughty.
  • Having to wear a uniform which is so uncomfortable and feels awful.
  • It’s never fun. Just rules and avoiding being given negatives.
  • At least it’s not an 8, 9 or 10 week school term.

So in a few hours it starts again. I will repeatedly bang my head on an unmoving brick wall as school and the local council won’t shift. They make me sound like that annoying parent who just will not see the clear logic of the situation. How dare I question the system.

All I can do is keep being there for our son. But maybe there is something else. Let’s really be that annoying pushy parent. Clearly working WITH school and the authorities doesn’t work. What has it produced. A kid stuck in bottom class getting absolutely no extra help at all.

Autism – nothing

Dyspraxia – nothing

Even the little bit of help he received with Dyslexia has been removed

Diplomacy has failed. Working with the authorities has failed. Maybe it’s time to fight them.

Posted on by bereavedandbeingasingleparent · 65 Comments

Come on it’s Friday

So like the weather we crash into the weekend. This photo was taken minutes before the heavy rain rushed in. It’s time to batten down the hatches for 24 hours.

For 10 brief minutes a delightful dry run in sublime autumnal colours. What followed was a long and protracted slog through a mud bath and driving rain. One step forward and two back. Seriously doubting if I could make the climbs which had been done countless times before. Soul destroying. No fun anymore just hard labour. Frigid isolation in this hostile environment. Doubting my sanity. What am I doing here.

It’s been a perfect microcosm of this week.

A week which has rapidly gone downhill. A long hard slog giving my soul a good kicking. Leaving my mojo and my confidence in tatters. Almost complete social isolation. Never ending pain from dental work. Failure to find solutions to home, school and work problems. Error strewn days. The house is filled with echoes of the past. Even blogging has been harder than usual. The words seem to be failing me. Three draft posts on Aspergers and one on Dyslexia deleted. Just not good enough. Not sure I trust myself enough to venture there. But then life interrupts my meltdown.

We have crashed into Friday. It’s also the start of the half term week holidays. It’s Halloween week. Remember the number one priority. The only one that matters in the end.

Give son the best childhood possible.

So it’s time to put my game face on. Work can wait until son has gone to bed. Halloween gives endless scope for creative fun. My problems will be pushed into the background by boundless youthful energy released by the school gates closing. I’m sure they will be back but just not this week. That’s not allowed.

Only one possible song to leave you with. Mr Alice Cooper and Schools Out.

Schools Out – Live

Posted on by bereavedandbeingasingleparent · 89 Comments

The Golden Ticket

It’s amazing what you come across on a daily basis. You get good discoveries that just make you go ‘wow’. The ones you can look at for ages and get a sense of wonder.

Then you get other discoveries which make you go ‘wow’ for entirely different reasons.

Today I came across a headline in one of our so called better newspaper – The Times.

************************

“Pupils lose out as £400m schools funding diverted to special needs

Children have been losing out because millions of pounds earmarked for their education has been siphoned off to pay for special needs education, an investigation by The Times has found.

A surge in pupils categorised as having special needs has led schools to lay off staff, increase class sizes and cut back on subjects as councils raid mainstream education budgets to fund support for them.

One headteacher said that the funding reforms introduced in 2014 created a new education, health and care plans that were seen by some parents as golden tickets”

************************

Don’t try to read the article as you have to pay Murdock for the pleasure. No free news here. Where do we start with this article from the Rupert Murdock stable.

  • Am I missing the point here but surely SEND (Special Educational Needs and Disability) kids are pupils as well. My son is a pupil surely. Not according to this newspaper. Clearly The Times would like to scrap inclusion and go back to the good old days where too many kids where denied the opportunity of mainstream education. The Times journalists have an underlying principle to most of its commentaries. Well if I don’t need that support so why should we be paying for it.
  • This article is likely to cause some parents to start resenting and blaming SEND kids for school problems. It’s pouring fuel on the fire of resentment and bullying. Basically what this article is saying is the those SEND kids are robbing Normal kids. It is deeply irresponsible and distasteful journalism.
  • The article doesn’t mention the 1500 SEND kids who are unable to find a mainstream school that will accept them. But it according to this journalist – that doesn’t matter as they are not pupils.
  • Blaming SEND kids for the £400m short fall in school budgets is lamentable. Clearly according to The Times this countries crisis in class sizes and falling teacher numbers is purely down to SEN kids. Let’s not mention that school budgets have been severely squeezed as a directly consequence of Government funding cuts. Let’s not mention that this Government introduced a new assessment system but refused to fund that change, That’s the very Government this newspaper supports whole heartedly.
  • This country has had a crisis in SEND school funding for years. It is chronically underfunded, it has always been chronically underfunded. Recently it has been subject to further Government cuts. No mention of that then.
  • A surge in pupils categorised as having special needs. It makes it sound as if suddenly parents are inventing SEND symptoms. This country has an estimated 350000 kids with a learning disability. Most experts say this is a fraction of the actual number. So many kids go through education without having a learning disability diagnosed. For too many years we have failed to address this educational crisis. This is going to get worse as a direct consequence of Government Policy as the criteria for SEND diagnosis is becoming stricter – purely to save money and not based on any health grounds. This is at the same time that funding cuts are resulting in longer wait times for an actual diagnosis to take place.
  • Finally ‘a golden ticket’. Really. In our case it’s the reverse of the article. The funding which has been awarded to our son for his learning disabilities is being used to part fund Teaching Assistant support for the whole school. The article also fails to reference that most SEND parents are already paying for additional care and educational support. This so called Golden Ticket only covers a fraction of the true cost of support.

Once again journalism gives us an insight into the deep rooted problems we have in society. The media reflects the current views of our so called Governments. It shows how far we have to go. How difficult this fight is going to be. I will leave the last word to my old Dad. He would call The Times ‘excellent toilet paper’. Thats all its good for.

Posted on by bereavedandbeingasingleparent · 60 Comments

Not Great anymore

Donald Trumps Wall appears to have started in Yorkshire. Here it’s probably to separate the privileged few from the many.

In my country professions like Teaching, Policing, Nursing, Clinical Specialties once we’re highly respected. This respect was reflected in pay and pensions. Unfortunately times have changed. Or should I say Government Priorities have changed. The argument was that low taxes was the new king. Low taxes on the rich and the money generators started to dictate thinking. The Government started to pick fights with various professions. A deliberate attempt was made to erode public confidence in areas like teaching, health and policing. Then the money generators messed up and we had the financial crisis. Suddenly austerity was needed. But again it was austerity for the many while protecting the few. So the Many and the Public Sector took the hit.

Government introduced competition into all areas. Suddenly contracts were awarded on best value for money. Best value rapidly became defined as the cheapest. As a result the workload on services increased. Quality levels dropped. Providers repeatedly changed. Unfortunately on top of this the pay and pensions of hard working professionals were also squeezed.

When people find their wages and pensions squeezed three things can happen

  • They buckle down for less money but their standard of living is eroded,
  • They become disillusioned,
  • They leave the job.

The Government trots out the argument about the cosy public sector life. The country will be better when everyone works in the good old private sector. Let’s not forget that our Prime Minister said of his own position

‘My Cabinet Ministers salary of £141,000 is not enough for me to live on’

When he said those wise words he was living in his rent free £20M Ministerial Mansion…. one rule for the few and a completely different rule for the rest of us.

A kid with Autism needs above all stability. Continuity in care. Trust is a commodity which takes along time to develop. But those key qualities have been destroyed by Government Policy. This year every single Teacher and Teaching Assistant changed for our Son. We have had to start again trying to build up the so important knowledge base of his particular educational needs. His Paediatric Care Provider has changed and we wait for his new clinicians. Wait is the buzz word. Appointments have gone from 4 times a year to twice a year to once a year. Not sure what the definition for a Year is. We recently received a letter saying that due to the change of provider the next appointment will be significantly delayed. He has had the same Physio for 4 years. But she quit her role. Then the next Physio left after one session. Another Physio then left before the first session. Currently we are waiting another a Physio to be appointed. He had access to a brilliant Clinical Psychologist but she retired and was never replaced. He started work with a Speech Expert but after 2 months she left the profession and the service was cut. He started a programme to work on his optical muscles but the service was cancelled with responsibility passed over to Education. Education refuses to provide that programme. I could go on…

So while our PM moans about his falling living standards the many are picking up the pieces. That’s modern Britain. It’s not Great Britain anymore. It’s certainly not great if you are not one of the Few. And it’s certainly not Great if you are a kid with Autism.

Posted on by bereavedandbeingasingleparent · 69 Comments

Unsettling

It’s been a seriously grey day. Heavy rain due within a few hours. When it’s like this you can’t see where the road ends up. You end of questioning your judgement. On your own it can be deeply unsettling.

Unsettling is a term I’ve become used to over the last 3 years. When my partner left this world it was a massive shock to my system (understatement of the year). For years I had got used to that wise voice guiding me through the world. The wise guide on life, on parenting, on everything. Suddenly life was uncertain. Now I was map reading on my own. Trying to navigate life and Aspergers felt like walking an increasingly thin tight rope without a safety net. Initially my approach was trying to make decisions that I thought my partner would make. Never going to work. We were different people with different takes on life. It was down to me to own this. Take responsibility. But it’s easier said that done.

Three years later it’s still easier said that done. Grief tries to rob you of your confidence and self esteem at a time when you are your lowest ebb. You have probably just lost your guiding light. Everything is stacked against you.

So again this weekend another crisis of confidence. Been many of these. Am I handling the school situation correctly. Should I be more forceful? An I being to pushy? Am I getting this badly wrong like most things. How can I be trusted with this when I can’t sort my own life out. Basically I’m out of my depth here. It’s a deeply unsettling feeling which sadly is not restricted to me. Too many live with this. In my case this leads to an initial overthinking of the situation, then the mind keeps focusing on the negatives (the possible ways I could mess this up), next comes the crisis of confidence which leads to a spell of depression. Well at least I’m predictable.

But the bottom line is that it IS DOWN TO ME. No one else is here. So I might think that I’m the wrong person to do this but I am the ONLY person available to do this. So it’s time to just try to keep moving forward. Move forward even though the path has disappeared. Hoping that one day the fog will clear. Then is the time to judge who bad my judgement has been.

Posted on by bereavedandbeingasingleparent · 58 Comments

Another odd day

Another odd Yorkshire day. Mixture of sunshine and then chucking in it down. Warmish then freezing. Still and then gales. But it wasn’t just the weather that was odd.

This morning started with a broken works computer system. Won’t be fixed until this – Saturday so that’s several late nighters then to catch up. Didn’t really want any sleep this weekend.

Next came a heated exchange with school. Due to a school admin error son never got his Year 8 injection. Not an issue as the school nurse will be returning next year BUT just a picking minute. If parents or kids make one mistake it’s an automatic negative yet no sanctions on school when they mess up. Apparently in schools case it’s just one of those things as mistakes can happen. Have you had one of those calls where you can feel the blood go from boiling to nuclear. One of those calls where you are increasingly squeezing the life out of the telephone. This was certainly one of these.

The call rapidly moved onto the lack of support for our son and the refusal of school to move him (at least in a couple of subjects) to a higher set. Last school year his Form Tutor told us that he was performing so well even without support from school. She was one of the few teachers who seemed to understand dyslexia and autism. As his marks were in the top 2 of the class then he should be moved up in at least 4 subjects. Unfortunately she left in the summer. On the call school said the Form Tutor was incorrect and it is not just marks that determine academic performance. Now apparently he is viewed as being in the lower middle of his class with many children ahead of him. In effect he is a low performer and any moves up in set are out of the question. The call ended (to the phone handset great relief) with a terse Dad demanding another meeting with school and the council. Not that it will do any good.

Needing to cool the raging core meltdown within I went for a run. A couple miles into the run a hot air ballon appeared over the trees. A quick photo and off I set again. Head down.

Running through the woods I started to hear voices. But nobody was insight on the path. Oh no it’s those Viking Ghosts. Then a roar of a burner above. Now the balloon was directly above and just above the tree line. I’m being buzzed by a mad balloon pilot.

Then a shout and they started waving at me. You wouldn’t be waving if I had a pellet gun with me.

Then it slowly started to rise and off it went.

Just before school finished I had a dreaded dental appointment. Might as well buy a yacht in Monte Carlo – unbelievably expensive. I ended up being told off for trying to be healthy. I have always had lemon water when I am training. Even more since I’ve stopped drinking coffee. The Dentist was not impressed. Apparently lemon (even watered down) is really bad for the enamel. Good job I didn’t mention the super strength lemon drink I have when I wake up. So now I am supposed to switch to Cucumber Water or Thyme Water. Cucumber Water taste like the liquid you drink as the last resort if your stuck in the desert. I’m only guessing that as NO I have not drunk my own …….

One last odd twist. Son came back from school with a letter. The letter was issued to son before my heated argument with school. In a few weeks the school is having an awards night. And son is getting an award for the number of merit awards he got last school year. This is fantastic. BUT. Not sure how this tallies with the schools current assessment of him.

Definitely an odd day.