Well that’s sorted then

I was conscious that this Christmas will be different for us, different for Hawklad.

No end of school term activities and parties.

No Carol singing in the city while drinking hot chocolate.

No Santa Train ride. Ok we are doing our own car version.

No Charity Santa coming through the village on a trailer pulled by a tractor.

No festive walks along the beach and finishing off at a little cafe for his festive ice cream.

No visits to friends.

No family meet-ups.

No trips to the Christmas Market.

No trip to the zoo in New Years Day.

No family Christmas meal.

No Boxing Day walk with picnic.

No festive trip to the cinema to see a blockbuster and then whatever festive film they have showing.

No carol singers coming round the houses on Christmas Eve.

Basically it will be just the two of us and pets. Sticking to the house and garden. Maybe only one trip out to do the Santa Car ride. I was feeling bad about that so I brought it up with Hawklad. I explained the differences to him

……. so it’s going to be really different this year. How do you feel about that Hawklad?

“So no family at all?”

None!

“Absolutely no visitors?”

None!

“No festive trips out?”

It doesn’t look like it.

Dad, can we order in extra pizza over Christmas?”

Yes Son.

“Well that will be just fine then…….”

Black Friday

Dad what on earth have you bought…”

Tibetan Singing Bowl Set — Easy to Play with Cushion & New Dual-End striker for Holistic Healing, Calming & Mindfulness ~ Antique Design

It’s a Tibetan Singing Bowl.

Why…..”

It was really cheap in a Black Friday sale.

Ok Dad but why….”

It offers a multi sensory path to enhanced meditation and spiritual enlightenment.

You’ve just read that from the label.”

Yep you busted me. It does sound good.

So does an 100 inch TV and that would be much more useful. ”

Yes but the TV would not be less than £10. So tomorrow you might catch me sat outside creating some beautiful vibrations and hypnotic, haunting moods.

Can I throw a bucket of water over you.”

What’s it feel like to have a really cool and hip Dad.

I wouldn’t know. I can talk about having a muppet as a parent.”

Ok, do you think I should just use it as an ornament.

“Yes Dad but that still doesn’t change the fact that you are a monumental muppet.”

No I guess it doesn’t, especially when you see what I’ve bought next…..

Eat chocolate

I received a lovely present today in the post. The government support package for Hawklad will expire soon. So I need to reapply. Helpfully they have sent the 50 page application form to complete. I can’t submit the old paperwork and need to have more recent assessments and evidence. That’s a nightmare at the best of times but during a pandemic!!!!!!!

Only thing for it….. A bar of dark chocolate, a decaf coffee and listen to some angry music. Today’s choice, the latest from Roger Waters. That’s one seriously cheesed off artist recording those songs. That fits as that’s the music I would make today. Normal people are forced to jump through hoop after hoop for their kids yet friends of the Government are awarded multi million pound contracts without any due process. Roger Waters would certainly get the irony.

Well I then made a start. Book an appointment for a new assessment from a Paediatrician. On the waiting list. That’s currently a one year wait and growing. It’s a start…. Where’s the next chocolate bar.

But here’s the really scary thing. Our Son is fortunate as he has had some support. We somehow battled through the intentionally difficult minefield to get that. So many are either unsuccessful or are just missed. That’s the children, adult support is almost none existent. Discarded by our society that has its priorities so badly skewed. What’s the answer. Certainly to keep fighting. Most definitely to eat chocolate.

Wean myself off

This was last year. One hour into my trail run. Apart from missing the exercise I hope you can see why I miss running free.

Eventually you have to accept reality.

Hawklad’s anxieties are still rising. More routine tasks are becoming more difficult for him. He can largely control the dynamics within our house and garden. Lots of washing, extensive quarantining of items and being careful what he touches. He is ok within his castle walls. He is not ok with me venturing out.

Beyond those walls and that’s a completely different world. An alien, dangerous world to him. His doctors are clear – this will take a very long time to start to address. It’s not going to start happening until a pandemic is well behind us and as one of our leading scientists pointed out – with a fair wind we may start returning to something like normal life at the end of 2021. That’s assuming the new vaccines work and roll out soon….

So for me the reality is that our personal lockdown will likely stretch through 2021 as well. My mindset has to change. Away from getting through the next few months TO living the much longer new reality.

So back to the photograph. Running has become a bit of a drug for me. Now I have to completely wean myself off that. I’m nearly there as it’s been so long without it. Time to permanently replace it with other things.

Short movies

Dad can we switch this movie off. I’m feeling very uncomfortable with this.”

Son loves Marvel movies but for some reason he just can’t handle Spider-Man Homecoming. It’s just that one movie. The other Spider-Man movies he really enjoys. Certain movies just throw him. It starts off with him fidgeting then he is not able to look at the screen. Then he starts to pacing about. Finally he has to leave the room until it’s switched. Last night a few minutes later he was happily watching a Wolverine movie.

I remember the first film he did this with. We had gone to see Hotel Transylvania at the cinema. Within 15 minutes we had left. We ended up watching another movie and he enjoyed it.

So some movies just get to him. The last Joker movie is another we switched off quickly yet he loves all the other Batman films, even the much darker ones.

It’s so unpredictable. Just can’t anticipate these movie meltdowns. The problem movies don’t have a common theme. Last year a nondescript Disney Christmas movie set him off. At Easter the Pixar movie UP caused another meltdown. It’s not that they are scary. They are not more sensory than other ones. Not louder and not more violent. It’s not about death. We have never been able to pin the reason down.

But at least he knows that as soon as he gets the feeling that a movie is wrong then he can just switch it off. No questions will be asked and we will find another one to watch.

Dad it’s like you and your football team.

He is so right. These days watching them play is deeply unsettling and often requires me to look the other way….

Hide behind the sofa.

Another grey and damp morning. Now where did I put that brilliant and always helpful Parenting Guide again…..

I had an email from school. One of those emails that immediately sent me scurrying for safety behind the sofa.

It’s a legal requirement for school to deliver sexual health education in Year 9. The education will be across a number of lessons. It will cover Relationships, Puberty, Sexual Transmitted Diseases, contraception and other sexual health issues.

As Hawklad is not in school, the teacher will send me the lesson materials and I was asked if ‘The parents would be ok delivering the material to your son…..”. Well that will be me then.

As I see it I have basically four options

Say No

Continue to hide behind the sofa

Deliver the material

OR just show him an episode of South Park.

Jim Morrison

Definitely been one of those mornings. One of those French mornings…..

It’s taken us 8 weeks to work out that class has been accessing a learning resource that we didn’t know about. So two months later Hawklad finds himself behind. I guess it was one of those things that was discussed in class but not passed on. Deep joy.

I can officially say that this subject has become a disaster.

Anyway I think the time it would take to catch up would be better spent on other activities. Maybe even playing with a non school sanctioned language app. Let’s see if we can find one that works for him. That would be a start. At least it would start to give him the basic skills and bugger the school tests in this subject.

I must admit that this so mirrors my time at school. I so struggled to learn French. Just wouldn’t stick. In the end sitting my final French exam was a bit of a Hail Mary Pass. Not much hope.

But strange things can happen.

Half the exam was the expected shambles. A series of random guesses really. Then the final question accounting for 40% of the marks. Read a long French newspaper article and answer questions in English. I should have had zero chance. But unbelievably the article was about Jim Morrison and The Doors. OMG I know every answer without reading the text.

Two months later I received my certificate in French. I had scraped a PASS. Must have got a perfect score on the final question and winged 10 marks from my other guesses. Yes I owe my French Qualification to Rock Music.

Magic wand

Midday….. House lights and heating full on. But at least the mist has retreated for a while.

So another day and another email from school. Another pupil has tested positive and 25 more pupils asked to isolate. A nightmare for the kids and families living with this virus. Its doing nothing for our son’s current anxieties. It can’t be much fun at school as well. Oh for a magic wand.

Yes Dad a magic wand would be much used this year.”

It would Hawklad. Much needs fixing.

Thinking about it I had better have the wand, not YOU.

Don’t you trust your Dad….

You know what would happen. It would be like the TV remote control. You wouldn’t be able to find it. Then after hours of going red in the face you would then stumble upon it. But the wand will be flat out power and you won’t be able to find the right replacement batteries. Finally you will get the wand to work but then you won’t be able to remember how to use it. You will shout at it for a while before you pass it to me to figure it out.”

HE KNOWS ME TOO WELL…..

School

That’s as clear as it’s been so far today. The mist lifted for a few minutes but far too quickly returned.

In the UK the Government’s handling of the pandemic has been an absolute shambles and that’s putting it mildly. Sometimes following the science, sometimes following politics, sometimes it’s all about common sense, sometimes it’s about enforcing rules but then not applying those rules to themselves. Telling people a national lockdown would be an unnecessary madness then days later enforcing one. Banning many safe activities but allowing other much riskier things to continue. Dithering on things like masks, testing and social distancing. Culminating in telling the public to go out and mix as it’s our civic duty to get the economy going THEN weeks later blaming people for meeting up and causing the virus to spread again.

It’s just a complete mess. So how tough must it be for schools to operate in these circumstances. All major social gatherings are banned but schools are instructed to stay open. My beef here is not with headteachers but with those above them….

We received an email from our school yesterday trying to set out the current rules. To summarise

  • Even though the country has entered a national lockdown the School remains open but large numbers of pupils and staff are isolating. The school has a number of confirmed cases. Pupils and staff are struggling to get tests undertaken.
  • Pupils must attend school unless they have written confirmation from a Doctor that they are not medically cleared. Even if a pupil is clinically vulnerable they must attend unless a doctor has signed them off.
  • If the pupil lives in a household with someone who is clinically extremely vulnerable then the government line is that the pupil should still attend school.
  • If a pupil develops symptoms then the school recommends that the pupil isolates until a test is undertaken however this cannot be enforced due to Government rules.
  • If a pupil is legitimately unable to attend then they must use the online teaching systems. They must stick to school timetabling or punishments will be issued.
  • Masks should be worn on school buses, while walking in school corridors, visits to the toilet and while queuing for school meals. These will be enforced.
  • Masks can be worn outside school buildings and at times during classroom time but not when answering teacher questions or during group work. The wearing of masks in class cannot be enforced due to Government instructions.
  • Pupils are encouraged to observe 2m (6ft) social distancing outside of the classroom. Space does not permit that in classroom settings. The school is not currently allowed to install additional screening in the classrooms.
  • Pupils must not mix with pupils outside of their designated year group during the school day. That includes family members and close friends.
  • The school is still not permitted by the Government to make more general use of online tuition to free up space within the school.
  • During winter it will be necessary to keep many windows open for improved ventilation. Teachers have the discretion to allow pupils to wear coats if the classroom temperature drops. The wearing of hoodies or non school uniform is not permitted.
  • All out of school activities have had to be suspended due to Government instructions.
  • Due to the number of staff absences it is likely that a growing number of lessons will be taught by teachers who are not the normal class assigned one.

How stressful is this for children, staff and parents. Its such a mess which according to the Government is a bastion of best practice. We are told schools are perfectly safe, feature the highest standards of care and that it’s a parents civic duty to send their children into school……..

OK so here we start another week of homeschooling.

Yellow Pages

We are now into the second half term of the school year. That’s 8 more weeks of school at home. Hawklad is sat at home trying to do the class work. Absolutely no sign of his anxieties and fears abating. So our little family is definitely in this for the long run. The prospect of missing the complete school year is not seeming so far fetched now as he’s already missed a sixth ot it. It’s certainly no consolation that he is currently not alone in doing that. Significant numbers of the school are having to isolate. But the message is carry on, nothing to see here. So the country is in lockdown but the schools and universities are most definitely open.

So we carry on making the most of the situation we find ourselves in.

WE learn what we can.

WE includes the slightly bemused single parent.

Dad can you help me with Citizenship. I’m stuck on one of the questions.”

He must have heard my sigh. I love helping but some subjects are just a bit of a chore. French, Design Technology, Drama (thankfully now dropped) and Citizenship. Citizenship seems to have moved on from learning about politics and how the country works. Now it’s all about drug, smoking and alcohol abuse. Not an easy area to explain to a teenager with Aspergers and anxieties.

Dad can you look at the three photos and tell me which one is Cocaine, Spice and Marijuana. ”

Not a clue. Spice was apparently not the stuff you cook with (well I hope not).

“Have you ever taken drugs Dad then.”

Well yes to alcohol. Too much alcohol when I was younger. Thankfully completely tea total now. Apart from that it would just be the pain killers you get from the doctor. Nothing else.

Then I told him the only time I had kind of dabbled. When I was at University I went to a party and I was drinking with friends. None of us did any other drugs. Anyway one friend spotted someone smoking a joint. I can’t remember why but I was sent to try and get one for us to try. I thought it was a bad idea but that was the order. Anyway a few minutes we were passing round a fine yellow looking thing. We all agreed that it had no effect, wasn’t very good and it didn’t last very long. So I think that was hopefully the end of all our smoking drug habit.

I never did tell my friends what we were smoking. Not really your typical high. I had ripped up a page out of the telephone book. Rolled it into a cigarette shape. Yes we smoked a telephone book. It was yellow. Those in the UK may remember the Yellow Pages which each house got every year.

There you go. I’ve come clean.