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Fame 2

It’s funny how you forget things. A couple of days back I was writing about my lame brushes with fame. Then this morning another memory flooded back into my mind.

My Dad took me on a train to see a charity cricket match. My first ever game. I think I was about 8. It was one of those matches with former cricketers, celebrities and a few local club players. It was a decent turnout of stars so a large crowd turned up.

Some quite well known former Yorkshire and England players with one huge star. One of England’s greatest ever fast bowlers and larger than life characters, Fred Truman.

At the end of the game my Dad told me that I would like to get Fred’s autograph. That was news to me….. Handily Dad had brought an autograph book and pen. Almost as if the autograph was for him…. So I was sent off to obtain the signature while Dad finished off his beer. A bit later I came back with various scribbles, one was definitely a TV celebrity – Leslie Crowther. But no Freddie.

That clearly wasn’t to Dad‘s liking and he decided to help me now. After much looking Freddie was located. He was in the players changing room. Next thing I knew Dad had pushed me through the door with clear instructions. Your not going home until you get that signature….

I was surrounded by men in various states of undress…. All appeared to be drinking. No sign of Freddie. So I asked. Freddie was in the showers. So yes I did get the great mans autograph. When he was completely naked. How could I forget that…..

Dad was happy. I never did see MY autograph book again….

Wow how times have changed……

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Smile generator

This little beauty came from my mums house. Many years ago. She had been given it as a present. Kept it for a few months, just long enough for it to be seen by the present giver, then it was packed up and ready to be shipped off. Mum had a habit of doing that. Presents would get aired just long enough then put away never to be seen again. When she left us and we ended up clearing the house it was like an Aladdins Cave. Me and my sisters playing a game of spotting which of our presents never got used.

Anyway this little plant was shipped off early to my garden. After all those years it is now not such a little plant anymore. But it’s still going strong. A wonderful reminder of different times. A smile generator. And we always need those.

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Back then

Hawklad is a cheeky one. Every time we watch something on TV that refers to a historical incident he always asks ‘you were there Dad so what was it really like….”. Last night he said it when the programme mention the American Civil War. What was it like Dad….

Every so often he catches me off guard with a different line of attack.

“Dad has your musical tastes changed with age. What are your favourite 5 bands now…”

Ok that would be

Whitesnake

Pink Floyd

Shinedown

Iron maiden

Blue Oyster Cult.

“Ok Dad what were your 5 favourite bands when you were young…”

I think they were

Whitesnake

Blue Oyster Cult

Iron Maiden

Black Sabbath

Scorpions

So they hadn’t changed too much.

“Was that pre CD times Dad”

Yes it was, not invented yet.

“Not much point inventing CDs back then when you were a kid as they hadn’t discovered electricity yet. Are you sure it wasn’t Beethoven you were listening to back in the medieval times.”

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White rabbits

A cold, wind swept day. Definitely two jumper weather.

So it’s not quite sunbathing weather here. We did sit outside for a while. That’s with winter coats on while holding hot water bottles.

While outside we talked. Well when I say talked it was more about trying to reassure Hawklad. He was worried, really worried. April 1st and he had forgotten to say ‘white rabbits’. In Britain and also I believe in North America there is a tradition that saying ‘white rabbits’ as the first words of the new month brings good luck. Pilots had a similar superstition during the last war. Saying that phrase as the first words of each day apparently helped provide protection during the daily upcoming flying endeavours.

Hawklad has been doing the ‘white rabbits’ thing for a while now. I think he picked it up from me one time. I’m a bit annoyed with myself as I try to avoid Hawklad seeing me with any superstitions . Well this month he forgot. I would never give it a second thought but Hawklad was spooked. He takes things very literally. That can be a common personality trait with people with Aspergers. So I tried to reassure him but rather unsuccessfully. I will keep working on that. But it’s so difficult for him. More things to worry about. Life is so complicated…..

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Ski

Don’t panic this is not the weather today….

Time creeps up on you…….

I’ve never been one who worried too much about ageing. It is what it is. I was also someone who never really lost too much sleep on the ever growing bucket list. Plenty of time to catch up and tick those all important activities off the list.

Then life happened. Too many trips to funerals. Suddenly I was aware of that ever clicking life clock.

Last night I was watching a movie based on a family skiing holiday. A holiday that went badly wrong. The Will Ferrell ‘Downhill’ Movie. The most un ‘Will Ferrell’ movie ever. It was really good and rather unsettling, especially as the main character was probably about my age. As the movie went on I could hear that clock ticking just that little bit louder.

I’ve always wanted to ski. It’s right up on my bucket list. Near the top. I’ve just never got round to doing it. A couple of trips to a really rubbish rock hard carpet slope. That’s all I’ve managed. We had plans to go to Switzerland as a family during the winter. I could see a route to finally being a proper skier. Then life happened. Those plans evaporated. So last night I was watching that family ski in the movie and that ticking clock was deafening. Will I ever ski…..

It sounds silly but that thought really depressed me. I feel further away than ever from those alpine slopes. Time and my body is not on my side. Too many years of contact sport has left me with a ‘ previously enjoyed’ body frame. A couple of things need patching up. If I get them patched up then skiing might be out of the question. That ticking clock is annoyingly deafening.

Yet I still so want to SKI.

I guess all I can do is keep that dream alive for a while longer. Put off any patching work on the body and accept a few aches. Drop as much weight as I can and stay as fit as I can for as long as I can. Buy as much time as I can for that dream to come true AND JUST HOPE.

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Avengers

A day outside in the – wait for it – warm Yorkshire sunshine……

An afternoon of outdoor table tennis. An afternoon of losing my pride. It’s never been my sport. One of the few sports I can’t pick up.

“Dad Table Tennis is a MARVELlous sport. You do know the sport should be played like a game of chess. Carefully moving your opening around the table until an opening appears. That’s the idea. Your approach Dad is basically the Avengers Strategy. HULK SMASH…”

No need to mess about with the delicate strategy. Why waste time when with one massive swing of the bat you can immediately move to the ENDGAME

“But Dad you are supposed to play with VISION.

Ok I’m out now, you win the pun war. Pick up your crisp packet. If you do then you can be scaAVENGERS hero.

“I never THORt of that one Dad. Best keep the envIRON MANaged. I wonder if anyone else would understand these puns other THAN US.”

*********

Lets not forget the stereotype. Asperger Kids don’t have a sense of humour and can’t have fun ……….

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Pain

I couldn’t sleep last night. Maybe two hours max. Event after I abandoned and a few minutes later I had a chamomile tea in hand and was channel hoping. I stumbled across some really cheesy B-movie. Then one of the actresses delivered this line

“The hardest thing for me after my husband died was having to be nice to my family.”

Wow. That must have been some family. But it got me thinking. What was the hardest thing about losing my partner back in 2016. Strangely worrying about being nice to my family didn’t feature. The Worst Thing Thoughts that did pop into my head were.

Telling a young son his mum had died

Empty beds

Feeling utterly alone

The dark thoughts

Losing all my dreams

Getting up in the morning and facing the world

That final goodbye at the funeral

Trying to sort through my partners clothes and favourite possessions

Hearing her favourite song on the radio

The deathly silence in the house when our son was at school or asleep

Those were the emotions that I went through in the immediate aftermath. But then something else kicked in a few months later. As I started to clear my head this thought kept dominating my thought. Going forward – “I didn’t want to feel this pain of loss again“. The pain was too much for me. I needed to stop myself from getting close to people again. The feeling of isolation that came from thinking that was utterly soul destroying.

So there you go. I’m disagreeing with a cheesy B-movie, but every loss is different. So family pains can be just as intense as the many I went through. The B-movie did pass some time. It ALSO was so boring that I nodded off. Nodded off still holding my mug of tea. Yep I ended up wearing most of that. Thankfully only lukewarm. Yes piping hot tea would have been a pain I could definitely do without.

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Terminator

Kinda feels like the type of sky you get just before it all goes horribly wrong in a Terminator movie. This time no coming storm. Just me in the kitchen making a curry. Actually very similar when you think about it. Especially if you have ever seen or unfortunately tasted one of my Saag Aloo horrors.

As I watched that cloud formation role through my thoughts had moved from terrible cooking to more important stuff. Doesn’t that cloud look like a polar bear lying flat out on its tummy. Well it did to me….

We spent an hour or so playing the cloud spotting game today. Fantastic free garden entertainment, the kinda stuff you need during a prolonged lockdown. While we were cloud spotting I kept hearing a nagging voice in my head. We could be so easily playing this in a years time. It’s not unreasonable to assume that Hawklads anxieties and phobias will still be here in a years time. If so then our lockdown will still be in place in March 2022. That would make it TWO years. TWO years. Maybe that is what the clouds are telling me. There is a storm coming. A long protracted one.

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Somersault

Almost a summer sky and most definitely a winter wind – it’s freezing. Definitely a two jumper day…. But still nice. Would have loved to be outside more but pesky school got in the way of that plan.

After two hours of trying to figure out how to insert graphs into an online test document…

“Dad I thought you had a degree in computing.”

Well kind of.

“Well it’s not much use here. Admit it you spent those university years in the bar…”

And on the sports pitches. Don’t forget in bed as well.

“Well that’s not helping with this is it Dad. Might as well ask the toilet seat for help.”

To be fair I focused on Artificial Intelligence and Expert Systems, not stupid school packages. What you sniggering at Son….

“You. Muppet Dad. Are you sure it wasn’t Artificial Incompetence. Useless. Looks like you’ve just crashed the system now.”

Yes definitely crashed. Think it didn’t like me pressing all the keys at the same time in a slightly angry manner.

“How on earth did they let you into a university.”

I think they were desperate. I was late for the entrance interview as well. I got lost and ended up at the wrong university, in the wrong city. When I did arrive i was 3 hours late only to find out that I had the wrong day as well. I had come a day early.

“No wonder as a toddler I would talk with mum and just bash you over the head with anything I could find.”

I’ve still got the bruises.

“No Dad those are from last week where you tried to show me that you could still do a somersault on the trampoline. “

I almost did it. Just my bum got in the way.

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Grim

Just let this research finding sink in (press on the link for the details)

Autistic people are four times as likely to experience depression over the course of their lives as their neurotypical peers

In the UK the approach is that parents have to fight tooth and nail for any kind of support. The fortunate ones who get some support find out all too frequently that support starts to be withdrawn around the teenage years. Adult autism support is basically non existent for the vast majority.

In our little family world Hawklad is struggling. His anxieties are on the rise. He is stressed out. Trips outside of the house and the garden are currently impossible for him. We are fortunate in that we do have access to some psychological support. Sadly from a Team who are stretched to breaking point. But we still have some support. For how long that support continues – who knows. He’s a teenager. This is the only support he gets now as all the other services have already been withdrawn.

How many other of autistic families are facing the same challenges. TOO MANY. How many autistic adults have been let down by society. TOO MANY.

This is grim.