Posted on by bereavedandbeingasingleparent · 67 Comments

Wembley

The Yorkshire version of Wembley Stadium. Can you spot the pet trying to once again sneak into the photo.

Even comes with a discerning crowd.

If Aspergers Parenting was a football game, well today feels like we have had a key player sent off….

I always naively assumed that if and when son got an official diagnosis then a support package would be out in place to help with his life chances. How silly of me. I didn’t count on year after year, having to fight the system. Trying to prize just the hints of support from a system which has been hammered into the ground by a Government which only looks after itself and it’s friends. To summarise

  • A school system repeatedly fails kids who do not fit into the factory production line which is the UK school system. Two options, either fight for a place in one of the few special schools or accept your child being bracketed as ‘low attainment’ and consigned to the bottom set. The school will then forget about the child and then pat itself on the back if the child gets just one certificate.
  • Letter after letter, call after call trying to find a clinician who is prepared to look at your child’s case.
  • Passed from specialist to specialist who don’t have the time or resources to add your child onto their case load.
  • Service after service cut by a Government which believes that only the rich should be able to buy access to essential healthcare. A Government that sees Mental Health as no more than an excuse to avoid work. Let’s not forget they described a child taking time off from school after a bereavement as an extended holiday.
  • When you do finally get access to a service you then join the growing waiting list. Finally when your child is seen it’s virtually always by someone new, with no understanding of the back story.
  • Finally your child starts to get older and the few services he has had access to are withdrawn as he is now above the age threshold. You see the Government likes to think that after 13, services are pointless and far too expensive. Adults have to sort themselves out.

We have had three brilliant exceptions to this.

  • A Clinical Psychologist who worked with out son consistently for three years. She even delayed her retirement to ensure son’s diagnosis was officially approved.
  • An Occupational Therapy service that worked with him every few months to help with things like coordination. A service which was cut when he reached 13.
  • A wonderful Nurse Counsellor who worked with our son for 3 years helping with his anxieties and joining the fight for additional help.

We entered June 2020 with just the Nurse Counsellor left from his entire care package. And now the player is sent off.

The Nurse phoned today to let us know that she had been reassigned. She is great and some other kids are really going to really benefit from her time. We are eternally grateful for everything she has done. She is going to desperately try to find another clinician to take over from her. I know she will really try. We may get a replacement. The Nurse was the only clinician he really has connected with. Those connections are rare for him. Making a new connection is going to be tough and most certainly not guaranteed. As the Nurse said it feels like we have lost the progress made over the last few years.

Today feels like one of those tough parenting days. As a friend wrote recently we pick ourselves up, dust ourselves down and start again. We most certainly do. But it feels like it’s a much depleted team taking on the struggle. Forgive me I’ve not used a Lord of the Rings metaphor for a while. It feels like the heavens have opened. The hordes are massed outside the walls and I’m stood alone on the Battlements of Helms Deep. Just me protecting our son now. Doesn’t feel like Gandalf is riding over the horizon in the morning. I’m going to have to just find a way of doing this myself.

I’m off now to kick the ball into the net a few times. Maybe with a bit more force than usual. Then the fight starts again.

Posted on by bereavedandbeingasingleparent · 101 Comments

Fragmented

Good to see the local motorway is busy…. It’s still too busy for our son. I got special dispensation to step 10 yards out of the front gate to take this photo. Life on the edge.

It really does feel a bit like that at present. On one hand we have what apparently counts as our Government rapidly relaxing restrictions and on the other hand kids like our son….

His social and health phobias are in a pandemic fuelled maelstrom. Every few minutes he feels the need to wash his hands. To repeatedly rinse his mouth out. The fear of germs and hidden dangers becoming a real nightmare for him. He struggles to touch items like taps and handles. Even putting potentially unclean shoes on is a challenge these days. Deliveries have to go into garage quarantine for at least 4 days. Clothes need changing every few hours. And then another spanner in the works. The old house boiler completely failed. So a service call out is required. It’s now way beyond a temporary Dad patch up. That means an additional new threat to sons safe area. A house visitor! After much discussion we agreed a plan. The service engineer would come into the house only via the back door. The engineer must wear a mask at all times. I will keep 2m away from the engineer at all times. When the work is finished we will effectively lock down half of the house. We won’t venture into the areas the engineer visited for three days. Not ideal but it’s a plan. Son’s stress levels will rise but hopefully not too far. The damage to his safe area minimised.

Yet individuals like our son are expected to just re-enter the world by July 4th. The date our part time PM is declaring as the day he defeated the virus. The date he can heroically restart England. It’s perfectly fine to open overcrowded public schools in September. A few more hand sanitisers in the corridors and relaxing the rules further to allow for even larger class sizes to cope with increased teacher sickness is now the best way to deal with a pathogen. We are told ‘everything is now fine’ by the very leaders who have been proven to be wrong on virtually every single major decision they have made over the last 6 months. The very leaders who now widely seen as charlatans and pathological liars. People see this. Our son sees this. This just adds fuel to his anxieties. It’s making a bad situation even worse.

So when England reopens on the 4th July a small bungalow in Yorkshire will not. It stays on lockdown until son is able to face the world again. Who knows how long that will take. Much patience is required. We won’t be the only family facing this prospect. Again my country further fragments. I’m not entirely sure it’s ever really going to come back together again.

Posted on by bereavedandbeingasingleparent · 64 Comments

Conversations

Sorry this is a couple of days late. The new WordPress editor took a dislike to this post and it’s taken two days to fix it.

Well a bit of blue sky and no rain is a start. Even the wind has eased. Feels almost like Autumn now.

Two conversations have rather defined this autumnal feeling day. The first one with the dentist.

I finally managed to speak to my Dentist about my chipped back tooth. In a nutshell this is what the Dentist said.

  • The practice partly reopens tomorrow.
  • They have a huge backlog and waiting list.
  • They are allowed to start looking at emergency cases but won’t be able to do much with them. Basically just temporarily patch them up. No drilling or aerosol inducing treatments allowed.
  • They will get back to me when they can have a look at it. But the repair will be some time. Dependent on getting the go ahead from the Government.
  • The Government is a shambles. Just making things worse.

So basically just got to grin and bear it. Will add temporary dental fixes to my increasing list of almost skills. It’s quite bizarre that the UK’s Health Minister is spending more time and energy on getting Horse Racing going than be is on helping out the NHS and Dental services. It’s amazing what being funded by the Horse Racing Industry does for a persons priorities.

The second conversation involved a muppet but not our Health Minister thankfully.

“Dad remember when we worked out that you are 25% human and 75% muppet.”

75% is probably understating the muppetry.

“Well Dad I’ve been trying to work out which muppet DNA runs through you.”

Well when I used to go and watch Newcastle United play footy. When I say ‘play’ I should say ‘get beat’ at footy. Me and my friend would just sit and slag off our own team. We were definitely the two old muppets in the audience. Waldorf and Statler.

“Ok but now you don’t go anymore then they don’t count. I am seeing three muppets in your DNA. First one is Beaker. That expression and the hair sticking up is just so you..”

“The second muppet I see in you has to be Fozzie Bear and those terrible jokes of yours..”

“The final muppet in my Dad is definitely Animal. You seem to approach everything. Things like cooking, gardening, hairdressing with the same care and attention that Animal approaches life..”

I can’t argue with this assessment, although I am a little disappointed not to have a little bit of Miss Piggy in me. Now do I trust Animal with this emergency dental kit…

*****Photos from Wikipedia******

Posted on by bereavedandbeingasingleparent · 64 Comments

Building Bridges

A fine northern river. Many bridges connecting both sides of the city. Without those bridges and the city is split asunder.

Son do you want to go out for a blueberry ice cream?

“No it’s ok Dad.”

Son do you want to go and visit your Auntie. We can keep 2m apart when we get there?

“Not this week.”

How about visiting your favourite toy shop. It’s open?

“No I’ve got plenty of stuff to do.”

What about going to that remote walk and going to see that Neolithic site. We can stop off and get one of your favourite pizzas?

“No, maybe some other time.”

These are some of his favourite things. In 2019 the slightest mention of any of these would have sent our Son running towards the car. That’s all changed now. He has most definitely burnt his bridges with the world. He is also in no rush to start to build them again. Many people will be in the same boat. We have a community split asunder. Split in more ways than this….

I understand someone from the so called Government was not happy with pupils been kept off school. Kids should be forced back to schools as it will be good for them. They don’t have the slightest idea about Mental Health awareness. Good job we are ignoring what they say.

It’s going to be a long road back for some. Certainly for our Son. It’s pointless putting a timescale on it. It will happen when it happens. Until then the bridges will remain down and we make the best of it. I’m looking out across the next door farm and into the distance. We are so blessed. We certainly can make this work for us. No rush for bridges here.

Posted on by bereavedandbeingasingleparent · 72 Comments

The Dads

The ‘Stay at Home unless you are a pompous cretin called Cummings who thinks he is the UK Government‘ message has been on for months now. Ok the social distancing thing is starting to fall apart but for some of us, it’s still very much in force. One knock on effect of that is that you end of taking photos of the same thing, over and over again. SORRY. More cows. One day maybe we might get a giraffe or a camel.

This post is a tribute to Dads. I don’t need to say sorry about that.

“Dad in Art I have to create some characters for my stop motion cartoon project. I have to think of some designs, sketch them and then cut them out. They will then become the stars of the cartoon. Any ideas?.”

Well you want to make them simple to make. What about superheroes. Make a simple version of Captain America and Ironman. Lots of muscles, great costumes and heroic.

“That gives me a great idea. Let’s go for the complete opposite. No muscles, no dress sense and bad haircuts. Let’s go for Dads…..”

So here goes. Our little tribute to all the Dads out there. I’m trying to work out which one is me…. Maybe it’s the one still to be made which looks just a little like Thor….

Posted on by bereavedandbeingasingleparent · 73 Comments

Homework

The hardy old rose bush right next to the front door. Against all the odds, it just keeps on giving.

In a few hours the school at home project restarts again. One more 7 week push before we finally arrive at the summer holidays. What kind of Britain will it be? The old normal, the new normal or something else.

This afternoon was glorious. Hot (for here) and sunny. Unbelievably not a single cloud all day. This is Yorkshire remember.

Yes this is Yorkshire but sadly it’s connected to England. Which means it has to live with the Government’s take on education. So while the sun beat down, we were inside. Trying to get homework completed and revision to stick. It’s bizarre that we force kids to work during holidays and weekends AND yet we have a part time Prime Minister who avoids such weekend and holiday work at all costs…. Yet again one rule for the many and another much nicer rule for the few.

The really frustrating thing is what exactly is the homework achieving. Four hours today and what did our Son learn….

“What is the point of this Dad. I’ve not learnt one new fact. Not done anything which is interesting. I’m bored out of my mind. My hand hurts from writing and I dislike these subjects even more.”

Sadly I can’t argue with this. The school system here has been deliberately broken. Not by the teachers but by people in The Government. People who enjoyed the benefits of expensive private education. It’s not about developing individual kids now. It’s all about ticking political boxes for those in power. This government will not change its mind. But change is needed. So it will be local change.

We will continue with the school at home project until the summer. Remember this is not homeschooling….this is just trying to do exactly the same school lessons just not with the kids sat at a desk in the cramped classroom. In the summer our Son will decide what he does next. To go back to school or to go for full homeschooling. It’s his call. If he defers to me then he is leaving school. But what to do with the next 7 weeks. We have just brought in a new house rule.

Son will only be expected to do additional homework if it meets one of 3 conditions

  • He will actually learn something from it,
  • He will find it interesting,
  • It actually is going to contribute to his overall assessment. (Staggeringly much homework does not. Frequently it is not even marked in detail and sometimes not at all.)

We did have a fourth condition but that was dropped

“Dad that’s a pointless condition. How many kids will honestly admit to actually wanting to do a piece of homework. Definitely never me….”

So if a piece of homework does not meet one of these conditions then he won’t be asked to complete it. I will write into school and let the teacher know. If the school wants to push it then they can deal with me. In our house – I am the headteacher and remember I don’t currently have a PM…..

Posted on by bereavedandbeingasingleparent · 87 Comments

Herd Immunity

Ok social distancing may have gone out of the window in my country but really. In the farmers field as well. Boris Johnson wants to go for the herd immunity approach. Well here it clearly is in operation.

Spain have deemed it’s not safe to open schools up until September. On Monday Boris Johnson is trying to force some English schools to open. According to him – it’s safe. According to an increasing number of the scientists who advise him – it is not.

Over the last three days Spain has has 3 Covid related deaths. The UK has had over a 1000 covid deaths in the same period. Let’s put that further into perspective. The UK total covid deaths yesterday was more than the combined numbers across most of Europe. Adding together the covid related deaths in Germany, Italy, Spain, France, Turkey, Portugal, Belgium, Ireland and Poland and the number is still much lower than here in the UK. This is a virus which has not yet been contained. Yet our Government tells a different story.

Johnson is not fit to lead. He is not my PM. I will ignore him and we will chart our own course. This is one household where schools are most certainly NOT reopening in June….

Many other people are now completely ignoring this shambolic government. People are making their own rules up.

  • When to go out and when to stay in.
  • If they use a face mask (if ever) and what type of mask to use.
  • How close to stand next to someone.
  • To self isolate or not. What symptoms to look for and what symptoms to ignore.
  • When to go to work and when not to.
  • When to stockpile and when not to.
  • Whether they limit travel or are free to travel as far as they like.
  • To use the incomplete contract tracing system or not.
  • Using public transport or not.
  • To go to a packed beach or not.
  • And yes to send kids back to school or not.

I can’t blame people for doing this. I’m doing it. That’s what people do when you give clowns and charlatans the keys to power. My worry is this

Yes many will be cautious and act responsibly. But how many will be reckless and endanger the wider population. From the photos and videos the answer appears to be – far too many.

Posted on by bereavedandbeingasingleparent · 102 Comments

Cows

The grass cutters have finally arrived. Always a great watch. Even the cows seem to be practicing a bit of social distancing.

“Dad did I hear that right we have a track and trace policy going now.”

Yes, after abandoning it in March (as it was deemed to be pointless by the Government) they have now decided it’s a good idea. They have apparently employed 25000 people to do the tracing. Unfortunately the software still doesn’t work.

“We don’t believe that number do we.”

No Son we don’t. It’s just lie after lie now.

“Apparently it’s cool to go on the beaches now. Maybe they have decided the virus doesn’t like sand and donkeys.”

Sniggering. Yes that might be the case. Since last weekend many of our beaches have been crammed full with tourists. Basically people started ignoring what the government was wittering on about. If it’s ok for the Governments Top Man then it’s ok for us. They have lost control. Now the so called PM is saying it’s official policy to get the beach towels out as so many were doing it anyway. ”

“The science has stopped being used.”

Yep Son it’s gone out of the window.

“So if someone goes onto a beach with the virus. Extremely likely given the numbers still with it. Then those trackers are supposed to find who is now at risk.”

That’s the plan. Basically the conversation will go something like this.

  • So you have tested positive, we need to trace who you came into contact with?
  • I went to the beach, used the toilet, rode on the donkeys, queued for chips and went into a shop to buy ice cream.
  • Who did you come into contact with?
  • Thousands of strangers. Best of luck tracing them….

“Well Dad at least the donkeys can be traced.”

Don’t forget the seagulls who pinched the chips.

“You know what Dad. Let’s give the beach a miss for 2020.”

Can’t really blame him….

Posted on by bereavedandbeingasingleparent · 45 Comments

Other worlds 2

There was a time when my mobile phone was only used for making phone calls. The phone call function now seems to be an optional extra. It’s now basically my camera, runs the house and sons Pokemon world generator….

As the great Terry Pratchett once said

Always be wary of any helpful item which weighs less than it’s operating manual.

As ever Terry in his hilarious fantasy worlds got life better than many so called modern philosophers. And while we let that thought hang in the air, let’s move onto the last Thursday challenge for a while. Yes people you will be safe from my terrible poetry for a number of months. But as Terry P also aptly pointed out

It’s not worth doing something unless you were doing something that someone, somewhere, would much rather you weren’t doing.

So it’s time for Chelsea Owens last challenge for a few months and my poetry….. Chelsea is taking a much earned blogging break over the Summer. This week’s challenge is about writing your very worst poem possible. Bonus points for squeezing in Douglas Adams like Hitchhikers Guide to the Galaxy references. Truly awful poems need to forwarded to Chelsea by 8.00am MDT on the 29th. As a Yorkshire lad I have no idea what MDT means – but it does sound kinda cool. Maybe something like Mindless Donald Tweets.

This poem might not mean too much if you have never read the great Douglas Adams books or have not had to endure the UK governments truly disgraceful lies (on a different scale over the last few days). To cut a long story short our PM is not in charge. That honour goes to a bloke called Cummings who is unelected but seems to have plenty of dirt on enough people to make him important. The country followed strict lockdown rules with the police taking action action rule breakers. We were told the rules were not requests, they were mandatory instructions. Stay at home or people will die. Senior People have been forced to resign for breaking them. Well apparently the rules didn’t apply to Cummings. He travelled 250 miles from his home to his parents (also a no no). This was when he and his wife had symptoms. Let’s just hope they didn’t need fuel…. He then decided to apparently test his eyesight by driving his wife on her birthday and with young son and dogs in the back of the car, 60 miles to a tourist site (Barnard Castle). Now this has been discovered the public are what is the phrase I’m looking for – pissed off. But now the government is saying that Cummings acted as any parent should do. So absolutely no action should be taken against him. In fact he’s a great citizen and parent according to Hancock (Health Minister). Basically all the parents who stayed at home and followed the lockdown instructions were stupid mugs.

*************

Douglas Adams wrote of other worlds and evil races like the Vogons

He didn’t need to lie and cheat, no need to come up with patronising slogans

Now we have our very own new fantasy story authors

Cummings, Hancock and Boris, the UKs evil lying rotters

They inspire as much hope as Marvin the Paranoid Android

And are as pleasant as a hot curry to someone with a hemorrhoid

They only look after themselves, just like two headed Zaphod Beeblebrox

They gorge on the finest food while the peasants are expected to stay in detox

We all thought the answer to life was forty two

Well apparently not, that answer was a load of poo

The answer to everything is now apparently the tourist site called Barnard Castle

We are instructed to lockdown but for Cummings that is far too much hassle

If you are Cummings you can test your eyesight by driving your kid 60 miles

Just a coincidence it’s your wife’s birthday, ignoring restrictions with many smiles

Now that’s apparently Ok as it Cummings says his little poodle called Hancock

A man so stupid he’s turned this country into nothing more than a laughingstock

So thank you Douglas for writing some of the funniest stories ever told

And thank you those who voted for Boris, a man as useful as the common cold

***********

*** This is version two. The cleaned up version. It’s amazing what words you can find to rhyme with words like luck, fit and flanker…. ***

Posted on by bereavedandbeingasingleparent · 65 Comments

Finding Popcorn

The very observant amongst you will notice a plant pot which looks remarkably like a drum from a tumble drier. Best and safest use for those which had a habit of catching fire. Ours did get modified to make it less likely to explode (after many months of waiting) then promptly died one day after the new warranty period ran out. So better get some use out of it. So we acquired a large metal plant pot.

Some things are more challenging to find and acquire.

Things like Popcorn. It’s a staple part of our Saturday Night Home Movie Experience. Well it has been until now. At the moment it is like gold dust at the supermarket which is our only real pandemic option. For two weeks it’s been sold out. Maybe it’s become the new currency of the survivalists. Replacing bathroom paper (toilet paper). As a result I suddenly have a real urge to go popcorn hunting. Must be able to find some popcorn somewhere. Must have a rummage.

Another challenge which is far less enticing and attractive is the prospect of trying to get our son to venture past the front gate. So far the tentative attempts have failed. Even just venturing onto the road, just a few paces from the front gate is proving a challenge for him. This won’t be just isolated to this family. So many others will be in a similar position. Trying to deal with these issues largely without any help. Our leader of the opposition party has been pushing the need to address the mental health consequences of the last few months. Sadly our government doesn’t seem to get it. The response seems to be well we have released the lockdown, just go out and act normally. Unfortunately that response is typical of the last 10 years. Mental Health funding has been one of the easy targets for government cutbacks. This has led to untenable waiting lists for some essential children services and worse. Many parts of children and adult support have just disappeared. You can just see the likes of Johnson and Hancock smirking while telling us

If you have the money then you can buy help, if you can’t then tough. It’s your fault for not having massive bank accounts. Let’s think of the real issue. How can we get our hands on the profits from a switch to a US type health care system.

So we will keep trying to take those little steps. Trying to raise awareness of this issue. This is going to be a long and very winding road. Importantly it’s a road which will be driven by our son. He will decide when and where to take those steps. He has to find his own way and be comfortable with it. Today he won’t be going down that road. That’s for another day.

So I will go back to dreaming about popcorn hunting.