Timing

I drafted this just a few minutes before Wednesday deteriorated so rapidly. I guess it’s kinda apt now.

Sometimes your just in the right place at the right time. 20 seconds later and I would have missed the winged visitor.

It was the case with my partner. I was in the right place at the right time. She gave me the most wonderful times. Now I carry on with our Son. Trying to burn as brightly as she did. Hopefully making a few people smile along the way. That’s my excuse for the terrible jokes.

The timing of that winged visitor got me thinking. Yes I know that’s dangerous. 20 seconds later and I would have missed it. So if I had not answered that annoying telemarketing phone call then I would probably have never seen the winged visitor. So something annoying led to something quite wonderful. We (I) often forget that. It’s easy to think that ‘Bad stuff leads to more bad stuff’. Well it doesn’t always. Sometimes the bad stuff presents new opportunities.

Looking back I very nearly never took the job that led directly to me meeting my partner. I was due to take a better paid position somewhere else. At the last minute the organisation I was due to move to changed management structure. My job offer was rescinded. Next day I applied for the job that would change my life. A bad thing leading to something beautiful.

Now I’m not going to argue that the loss of my partner led to something beautiful. It was truly awful and will remain that way. But it certainly did change me into a better person and a much more complete parent. It forced me to ditch a career and opened up more quality time with our son. I certainly live a simpler more sustainable lifestyle now. I find it much easier these days to be thankful. So yes a truly awful event did lead to positive life changes.

I guess it’s all about accepting that bad stuff happens and not assuming that bad necessarily follows bad.

Lost Friends

And another rose photo…. I have to say out garden is blessed with weeds and roses. Each year they appear and they always feel like the return of friends.

Last night I had another weird dream. This time it took me back to my university days. It started off by showing that my career path had been influenced by a slip of a pen. I had applied to do a degree in Economics but had been put on a Home Economics course. A degree in cooking for the worlds worst chef, OK.… But the main part of the dream was centred around friendships. All my college friends were on the course but no one recognised me. As hard as I tried, nothing. I was just blanked by them. Most unsettling.

As ever the weird dream put an end to my nighttime sleep hopes. So it was time to drink tea and think. A quick search on the internet found recent pictures of some of my old college friends. I just about recognised them. Would they remember my face which is perfect for radio – probably the same I guess. But here’s the key thing. These were really close friends. Yet when was the last time we met up in person. Our careers and life’s moved us apart. I’m not sure it was even this century. But it doesn’t stop there

  • I haven’t seen my schools friends since I first left my childhood home to go to University.
  • One really close school friend I did keep in contact with. We would meet up every few months. But again our life’s drifted further apart and the last time I heard she was living in Israel. That must be over 20 years ago.
  • My climbing friends still keep in touch via letters. Yes letters – how old fashioned does that sound…But we haven’t been climbing together in 6 years.
  • I still keep in regular text contact with a good friend who I went to football matches with. But I’ve stopped going to games now due to circumstances, so we don’t meet up in person.
  • Work and parenting friendships have come and gone.
  • Friends in the village have dwindled. Some have moved away, some have sadly left this world.

So in terms of actual physical friend meet-ups it’s down to one chap I normally work with. He occasionally drags me for a game of golf. There are so many stories right theremy golf career is about as good as my cooking career. But due to the pandemic I have not seen him since the start of March.

Life and my choices have sent me down this path. Living in a rural area, bereavement, single parenting and autism in the house have all contributed. But it is was it is. A huge element of personal choice comes into the mix as well.

Yes this is sad but I am so lucky. The gaps left here have created space for blogging friendships. I’m doing the best job in the world – parenting. Job is the wrong word, it’s more a privilege. I have a great life. But I do so worry for others. Feeling alone can be such a dark place. Alone and yet claustrophobic. No one to reach out to. No one to interact or grow with. Some choose that option freely. But many are forced into it by circumstance. Illness, age, special needs parenting, single parenting, location, social factors, fears and yes a pandemic. It’s so easy and unfortunately very convenient to forget about those who drop off the grid. Last night was a timely reminder for me.

Take care my friends.

Where’s the shed

Here once stood the garden shed. But then an ageing Oil Tank had to be changed. The new rule was that flammable items had to be at least 6 feet away. A wooden shed just 3 feet away just didn’t cut the mustard. So it had to come down. I remember the day so well. My partner organised the skip. She took the first swing with the sledgehammer and then left the rest to me. It was a tough fight. Eventually I won the contest on a split points decision. Yes the shed was down but most of it now appeared to be imbedded in me.

We never did get round to putting a new one up. Actually we didn’t need one. The area became a little bit more green. A place to randomly put those potted plants which we have collected over the years. A nice home for a 90 year old wooden bench which has long since served its purpose and has been retired. It’s also a bit of a magnet of our sons footballs….

It so needs a good weeding but actually yellow poppies and wild strawberries are starting to grow here. Well that’s my excuse.

I’m not sure what my partner would make of it. Maybe a bit too chaotic for her. She liked organisation. The new shed was high up on my list of things to do before the world changed. But then she left our little world. Then every weekend her mum would pop over for an hour or so. She loved it. When she came over at the weekend she would often sit and look at it while drinking her coffee. Thinking about life. Watching the birds make use of it.

I’m writing this at about the time her mum would have been visiting. I’m sat in the chair she would be sat in. Yes I do think the little green area works. Maybe that new garden shed can wait for a few more years. Sorry my love…..

Tomorrow’s Rose

A few hours ago talked about a Yorkshire White Rose which has a connection with my partner. I said that it would become even more beautiful. Well here’s the proof.

This little bush produces the most stunning roses. The sadness is my partner never really got to see them. But they are such a beautiful tribute to her. That’s such a nice thought.

Take care everyone and remember to live. It’s can still be a wonderful life.

Quarantine and Mental Health

So pleased to have another wonderful post from Katie and Evee for you. Can’t thank them enough. They also have just posted something from me on their site as well. If you get the time please check it out.

Thank you so much.

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Our current Quarantine Routine, looks a bit like this:

– Katie wakes up and makes us both a coffee and works out

– We read, write, blog or go on walks or bike rides.

– Evee works out

– We cook dinner together

– We have our own evenings where we chill out, talk to our friends, or watch Netflix. (Evee falls asleep significantly later than Katie (usually with the odd noise complaint thrown in!))

At the beginning of quarantine, there was a clear and obvious push for people to make the most of this time. People were learning how to make banana bread, teach themselves how to do handstands, and learn Spanish or Italian. We also had good intentions; to paint, write, eat completely cleanly and have a strict regimented workout plan.

When we couldn’t bring ourselves to be productive, we were filled with guilt at the thought of wasting this precious gift of time ( https://thegriefreality.blog/2020/05/06/the-gift-of-time/ link if possible ). It was almost too easy for our minds to wonder back to the days of our own lockdown after Mum’s funeral and the depression that followed. During these days, counsellors encouraged us to mark small things as “wins”: showering, exercising, or eating healthily. But also, to the even smaller wins, like waking up in the morning, making the bed.

After our mum passed away, we were completely alone. As said beautifully in Gary’s post, there does come a point when people stop checking in and stop asking how you are. Apart from a few golden people, many individuals you thought were going to be with you until the end, become memories as well. It is a desolate place to find yourself in.

Thankfully, we have always had each other, and through trying to look after one another, we found ways to build ourselves back up.

Simple acts of self-love may appear futile or irrelevant when the future holds so much uncertainty, but we cannot imagine what our health and wellbeing would look like without them.

Lockdown has been a journey and has impacted our mental health, alongside thousands of others’. For us, it felt hauntingly similar to those grey days of 2018 that bore witness to some of the darkest moments of our lives. But through self-care, we learnt self-love.

Self-care grew to become an essential part of our healing and an ongoing exercise for our health and wellbeing. It is a wonderful thing to do that we strongly advocate, and promote heavily on our blog: Plant those little seeds of self-love into your body and mind.

As with any new exercise, it has been a difficult lesson to learn. But today when the world finds itself in so much chaos, we know to focus our attention on making ourselves feel happy and healthy. Eventually, our calm approach to life and clarity come back to us, and we ground ourselves once again.

One simple act of self-care is to sit in the bath, with a face mask, cuppa tea, bubbles and a coconut oil hair mask. It truly is amazing how much these luxuries make a huge difference to our wellbeing.

We have linked a post of little self-care tid-bits, everyone can do; it doesn’t have to eat up too much of your time. (if you could link this post https://thegriefreality.blog/2019/04/03/i-dont-self-care/ that would be wonderful ) It can be as small as making yourself your favourite tea before bed.

Hold tight, eventually, the hustle and bustle of normality will resume, and when it does we hope you carry forward these acts of self-kindness. In doing so, we have no doubt you’ll be more than capable and prepared for it.

Katie & Evee x

No Rose Show yet

No jokes today. No script. Let’s just see where this takes me.

It’s the very early hours. It’s my partners birthday. Once I’ve finished I will close the iPad for today and hopefully I will see you tomorrow.

These are strange times for all of us. But to be fair it’s been a strange time for our little family since 2016. That’s the year the world stopped and changed for us forever. Those six weeks from hell. We lost my mum and our Son’s beloved little nan on the first day of that period. That day started as a fun birthday for me and finished in heartache. Almost straight after the funeral my partner wasn’t feeling great and went into hospital overnight for routine tests. The next day having come to pick her up, I was taken to one side by the Doctor to tell me that things where bleak. She only had a 5% chance of surviving the month. Zero chance of making it to Christmas. She was deteriorating rapidly and she wasn’t really conscious. The following conversation with an 8 year old will haunt me forever.

She never fully regained consciousness. We had no more conversations. I can’t even remember the last one we had. Three weeks later I was telling the 8 year old his mum was dead. 2016 and those six weeks from hell.

This day in 2016 I had just given my partner a plant, a Yorkshire White Rose. She had always wanted one. I wish I had bought it so many years earlier so she could have enjoyed it. Since then it has always bloomed in time for her birthday. Not this year. The bad winter has set things back. It’s a few weeks behind schedule. But it will get there. It’s a hardy soul. It feels like one of the few life bridges which didn’t break in 2016. A link to a world now gone but certainly not forgotten.

So now I will focus on our Son. Yes there might be a few tears but hopefully if I do my job right then there will also be smiles. Let’s be thankful for those wonderful times. Let’s remember those other times when the world changed. Changed for the better. Our first date. Our first night in the new house. Finding out those pregnancy results. Holding our baby. Our first family family holiday.

Wonderful, loving times.

So that’s it. Take care and remember that this is still a wonderful world. No more words today. See you tomorrow.

The forecast

The weather forecast is saying it’s clear blue sky and no rain today.

The clouds and the showers would beg to differ.

Another inaccurate weather forecast. It’s clearly the forecasters fault that it’s raining …. It always is. I remember going to a Test Match (Cricket) between England and India. It had been a good weather forecast. But it was chucking it down and play was suspended. With perfect timing the main TV weatherman came onto the pitch to do a weather forecast. I’ve never heard anyone get so many boo’s. It was his fault that it was raining.

To be honest we get many incorrect predictions. Leaders saying a pandemic will just go away. Those pension salespeople saying that you will be able to retire at 50. Being told that Betamax and V2000 would be the best video recording formats. No one would be daft enough to vote for Trump or Boris. My Dad saying Status Quo wouldn’t last as they can’t sing or play. Brexit was easy and could be sorted in days. The Sinclair C5 was the vehicle of the future…..

Basically life is to unpredictable. You just never know what will happen. What’s round the corner.

I know this all too well. One day your talking about the next family trip to Switzerland. Discussing trying for a second child or adopting. Then 3 weeks later I’m leaving the crematorium with my partners ashes. A broken single parent. That wasn’t in the forecast or the plans.

We often learn this lesson far too late. I did. Don’t assume there will be a tomorrow. Remember to hug those you love today. Start ticking off those bucket list items, right now. If something special to you is broken, then try and fix it today. Today, speak to those you care for. Make sure you live today.

Lecture over…. And yes it’s still raining here. I blame it on the weather forecaster.

Life and a bag of sweets

A beautiful cloud but wow does that hedge need trimming….

You take a photo of a cloud and it ends up giving you another job to add to the list. Everything is connected. Yin and yang. My parents always talked about good stuff and bad stuff being linked. If something good happens to you, immediately prepare for the kick up the backside. Or if something bad has happened, remember to look out for the rainbow.

About a year after my partner died, I was asked to speak to someone who was in a similar position. Spouse had died and was now a single parent. I remember he asked me to think of one positive from the whole bereavement gig. According to my parents something good must have come after the bad. I could think of four positives

  • You get to spend more quality time with your kid(s). Your not sharing responsibility anymore,
  • It can make you into such a better parent,
  • It shows how much you loved your partner (so easily forgotten),
  • We got a pet dog…

So yes good and bad stuff must be linked. So why do I keep forgetting that…

Yesterday I got the munchies. A real bad case of the munchies. I needed something full of sugar and bad for me to eat. Nothing in the kitchen cupboards, so off I went into the garage on my desperate quest. Then a RESULT. I found an opened bag of my favourite sweets. I should have immediately remembered that where there is a good thing then bad is lurking close by. As I walked out of the garage I just couldn’t wait to tuck into the sugar filled heaven. So I started to open the sweet pack on the move. The bag ripped asunder. Bad stuff lurking. The little bits of sugar filled heaven suddenly became Exocet guided missiles. Only one target. The cat litter tray. Yep every single sweet hit it’s target. Only one word can describe that feeling. Bugger…..

I most admit the sweets are proving quite an effective absorbing material for the big boy cat. But once again good and bad are linked. Happiness is intrinsically linked with life farting in my general direction. So that beautiful cloud has gone and left a hedge that needs cutting. Life……

Ever shrinking world

A photograph from our garden. Just five paces from the door. Part of Son’s world.

Our Son really struggles with health related anxieties. I remember the first pamphlet his Doctor handed to us about Aspergers all those years ago – second bullet point – may encounter obsessive fears over health and hygiene. For our Son they were real, life altering fears. Then in quick succession he lost his mum and both grannies. The fears became even more scary and real to him.

In the early party of his Aspergers life he was under the care of a wonderful Clinical Psychologist. She slowly helped but then she retired (and was never replaced due to the decisions backed by many of those in our current Government). His care became a real hotchpotch which achieved very little. Then we were so lucky. Son’s case landed on the desk of a young nurse health counsellor. Since then she has been the only constant through his care. Now because of Government cut backs, she is the only specialist help he gets. Although not an Autism expert she has patiently worked with him and delivered real benefits.

His fears became manageable.

Due to our Governments continued running down of the NHS, her workload has become ridiculous. She just can’t spend the time she needs to with him. But she does what she can. She still cares.

Then 2020 hit. Is it really only 4 months old…….

His fears have gone off the chart. Can you blame him. The worlds gone potty. Everything is up in the air and showing no sign of settling down. Because of the new clinical rules his wonderful health counsellor is not allowed to see him until after the crisis has eased. Being realistic that’s not going to be until the back end of the year at the earliest. So he’s started burning his bridges.

Bridges is a theme I am sure I will come back to over the coming weeks. The world of autism and the big bad world don’t naturally coexist. They are often separate. Links and bridges need to be built. Unfortunately the big bad world is not interested in developing links. It’s been up to our Son to try and build the bridges. That’s allowed him to enter the big bad world. Those links have never been particularly strong. NOW HE HAS BURNED THOSE BRIDGES. The outside world is just too scary and full of dangers. He has bunkered down to his house, his back garden, his world.

The thing is that when things start to improve again. And they eventually will. The big bad world will make no effort to rebuild those bridges again. One lone nurse counsellor will try. I will try. Sadly, I’m not entirely convinced Son will make much of an effort this time. Maybe in the future he will but it will take time. In the meantime his world has shrunk.

Old moon

A couple of full moon photos from last week. My poor old iPhone tries it’s best.

I remember looking up at the moon. I was lying on my back on the cold patio trying to keep still and give the camera phone a chance of trying to focus. Anyway I was looking up at the moon and thinking it was stunning. I really hoped that my partner could be seeing this as well. Maybe she was? Was she seeing it from a different angle? Was she looking up at it from one of her favourite places. Was she above the clouds?

These days I frequently look at things in a different way. For a long time after my partner died I felt bad about looking at beautiful things. Sunsets, landscapes, the Sea, our Son playing. It just wasn’t right that I could and my partner was missing out. She had been cruelly denied this chance. Her time ran out.

But slowly that feeling of guilt started to ebb.

Now when I look at beautiful things, I try to look that little bit harder. Look for just a few moments longer. Truly embrace the moment. Because now I’m looking for the BOTH of us.

Back to the moon. After a few minutes I was becoming distinctly uncomfortable. My back is not designed these days for lying on a cold, hard surfaces. Then a thought. What was I thinking about. My partner was the sensible one. She would be sat inside. Occasionally shouting “that’s very nice Dear”. She would not be outside freezing her butt off. She would be warm inside with a glass of something, watching one of her favourite movies.

That’s a view she would be happy with.