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Churchyard

While Hawklad had a sleep in I pushed the boat out just a little. A one minute walk to the churchyard. Yes it was a very short walk in the scheme of things but it felt like a different world. Just to see different sights. Experience a little bit more of the world. An important reminder that there is much more to life than our little house and garden.

A few seconds to lean against the very old wall and breathe.

Then it’s back home all too soon. Back behind the castle walls. Return to our little family lockdown. Virtually all of 2021 looks like it will be spent in the house and garden. But just maybe I can sneak out occasionally. Even if it’s just a few yards to the churchyard. It will be good to breathe.

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Talking

It really is ok to talk about mental health. So why does it still feel so hard to do it? But talking is so important. We need to make it routine. So let’s talk about my depression.

I’ve been struggling with mild depression for a few weeks now. Actually maybe much longer. Feeling hemmed in. Hemmed in but kinda thankful I’m not physically meeting people. Low confidence and minimal self esteem. More hesitant. Finding routine tasks much harder. Difficult sleeping. Feeling emotionally worn out. Finding it just a little harder to smile.

It seems to have stabilised. Not getting any worse but no signs of improvement as yet. I do have an old supply of anti depressant but I haven’t used them as yet. So I’m plodding on. Trying to avoid the news and taking each day as it is. Trying to focus on the positives in my life and there are some wonderful ones. Need to remember that.

Yes it’s good to talk.

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Lake

The winter farm lake is starting to form. Wow it was wet feet trying to take this photo.

So again today the Government is telling parents that they must send their children to school if it’s open. It’s a mess. Some schools have been closed. Some are opening soon. Some partly closed. Some are opening today. The PM again is saying schools are perfectly safe. He must have evidence that shows children, teachers, teaching staff, parents and carers cannot catch the virus. Wish he would share that so it can all be cleared up. Maybe he could share that with his own scientific advisers as well. The Government is again threatening parents with legal action and fines. The teacher unions are taking the Government to court over its failure to operate safe working environments. It’s such a mess.

So where do we stand? Hawklads year group is kind of homeschooling for the next two weeks then after they have had one covid test they are back in the classroom on the 18th. Well not Hawklad.

His call is that he can’t go back yet. He will look again at the end of the this half term. I’m trying to get another medical exemption letter from his Key Health Worker who is due to come and visit him this week. If they won’t issue one or are not allowed to by the Government then they can see me in court. I’ve seen enough Perry Mason episodes to look after myself. I won’t be the only parent there.

Heres the thing. Put the Aspergers severe anxieties to one side. Each parent and child has to make a judgement call on if attending school is safe. Well clearly safety cannot be guaranteed. More so now than ever with this virus. Children, teachers, parents, grand parents are ending up in hospital with it. The Government might try to hide that information, but it is happening. The virus can infect all age ranges. So it is an individual judgment call. Is the benefits of classroom education and socialisation worth the inevitable risk. That’s not a call for Johnson or his inept Education Minister. They have a track record of lying, not caring and making the wrong disastrous calls.

Each family will have a view. All as valid as each other. Even without the anxieties and present fears, OURS would be no it’s not worth the risk. It won’t until the virus is under control and schools are allowed to put in the necessary safety mechanisms. The first has to be opening up home online schooling. That reduces the numbers in school at any one time, creates space, starts to build a safer more inviting learning environment.

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Well that’s going to be fun

As it stands Hawklad is due for his first home counselling visit in months. Sometime next week – maybe….

If the visit happens then it will be very different. We have already been warned that even though the visit is outside or in separate cars then extra precautions have to be introduced. The nurse will have to wear gloves and a full face mask at all times.

A big part of me is tempted to cancel the visit. The site of protective gear is not going to do anything for Hawklads anxieties. It might even make things worse. But here’s the problem. Under the Governments cost cutting agenda, a cancelled visit can lead to the service being removed. So the accepted term is prioritised.

Going to have to think about this.

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Worn out

It’s a cold, bleak start to the day. Kind of feels like a black and white photo is the way to go.

I was thinking about how a break would be most welcome. Especially today.

We all need a break every so often. Either a change. Or a time to relax. Or a chance to really let the hair down. A chance to experience new lands. Or just a time to breathe.

Don’t get me wrong. I know that I am so fortunate with my life. Far too many have so little and are in such dark place. But today I’m feeling just a little worn out. Tired. Thinking back to my last break back in 2015. A lots happened since then. Some good but some really bad. Since 2016 it’s been single Aspergers parenting, fighting the system for our son and trying to eke out an income to pay the bills. Feels like it’s been non stop. A few concerts with Hawklad and taking him to see the occasional sport event. A few walks and up to this year, trail runs. So yes things to be thankful for. But…

But today I just feel worn out. In need of a break. Even just a night away from the house. A different bed. It’s been over 5 years since I’ve done that. But deep down I know that’s not happening any time soon. Asperger parenting is something that you can just can’t drop. Certainly not for a few more years. Maybe longer. So it’s about finding other ways to feel less worn out. Exploiting the options that are open to me and also being thankful for what I have. There are such beautiful things in my life.

We can do this.

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White Christmas

Well not quite…..

Can you spot someone practising to be either Cyclops from the X-Men or Vision from The Avengers.

This was 7.20pm on Christmas Eve. It’s as white as it’s going to get. Thought I had better take a photo while it’s at its DEEPEST…..

So as we fight to survive this mega blizzard I want to send you warm winter wishes your way. ❤️

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Plague Island

So that’s the shopping done for the week. We are now officially closed for Christmas. Time to get behind our fence and shut the world out for 7 days. Or longer if we are plunged into a Tier 4 lockdown (more of the country will go that way on Boxing Day apparently).

So it’s Christmas Eve on Plague Island. It’s not entirely sure if its a virus related Plague or a Plague of self absorbed, imbecilic, on the take, cretins apparently running this country.

We have enough food and drink to last us weeks. We have enough options to cobble together a couple of special holiday meals for two. Certainly not Plan A or B food options, but the C menu will be just fine. Actually with my Thanos like cooking skills at the click of the fingers any food taste can be suddenly turned to dust. So it really doesn’t matter in the end.

A few days of being an island cut adrift from the world has started to take its toll. Hardly any fresh fruit or veg in the store. The stuff which is still there is getting snapped up instantly. No chocolate ice cream. I will say that again. No chocolate ice cream. Oh the humanity….

But in the scheme of things. We are so fortunate. Too many are not so lucky.

So we are lucky to be on the right side of our fence. Hawklad is definitely not on Santa’s naughty list. Me – I’m not so sure. Yes the weather is horrible but actually if you close your eyes, the sun will still shine.

Yes it’s alright in this side of the fence, living on Plague Island.

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Cinema

It’s that time of year. A definite feel to the movies we have watched. Can you see the theme.

Scrooged

Home Alone 1, 2, 3, 5

The Grinch

A Christmas Carol

Muppets Christmas Carol

The Santa Clause 1,2,3

Elf

National Lampoons Christmas Vacation

The Polar Express.

For me I just can’t quite catch the connection. Sure there must be one if I look hard enough.

One of the things that feels amiss this most odd year (that doesn’t work as 2020 is even) is the cinema experience. Before Hawklad we would always have a Christmas trip to the pictures (as my mum would have said). A meal before hand and then a movie. Such a lovely experience. So many wonderful memories.

Taking my mum to see The Horse Whisperer on Boxing Day. She hadn’t been to the pictures in 40 years. She was most puzzled not to watch the Pathe News segment before the movie. She refused to get up at the end and waited until the credits played through. Apparently she was waiting for the National Anthem to be played…

Trips with my partner to see huge blockbusters on Christmas Eve like the Lord of the Rings Movies. Then coming out in time to sing carols in the city centre.

Even after the world changed Hawklad and I kept the tradition going. A changed Aspergers tradition. We would take in the first, early morning screenings of movies like Jumanji and the Rise of Skywalker. Popcorn at 8am works on so many levels. Then we would go and get him his favourite takeout. All before midday.

But this year it’s no cinema. Any trip is just so out of reach for Hawklad and his anxieties. The world has changed. Even the prospect of Wonder Woman and Black Widow epics won’t overcome those fears. Maybe the trips to the Pictures have stopped for good. We will just have to see what the future holds but life goes on. It’s time to recreate that Christmas tradition at home. So we will pick a movie. A good movie. Set the dvd off at 8am. Microwaved popcorn in plentiful supply. The Christmas Cinema tradition continues.

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Fence

Which side of the fence is best?

I had a call with Hawklads new health specialist. She will (pesky pandemic dependent) come out to see him for the first time in January. Continuity is so important for someone on the spectrum. It takes time to earn trust and confidence. Those bridges when they come down are slow to be rebuilt. Having had a wonderful health lead for three years we are now in a spell of meet one, quickly see one disappear. Fingers crossed this time.

It’s clear what the medical opinion still is. Any meaningful progress is extremely unlikely until this virus is well under control. When it’s clear that the vaccine which has been administered works effectively and does protect. Only then can any progress be realistically contemplated. Prepare to bunker down for 2021. 2022 might be the first gateway to a more open life for our little family. I also have to accept the risk that progress does not happen for Hawklad. Bridges are not built. This is the new world.

I remain clear. It’s Hawklads life. He makes the call. I will support which ever route he goes down.

So will he return to school in January? Most likely NO. Will he make it back before the end of the school year in July. Probably NO. Will he start the new school year in September. Definitely no guarantee.

It feels like we are in one side of a fence. The side that feels limited but safe. The other side of the fence opens up the world, broadens his horizons but…….