Regardless of the weather.

It’s definitely been Social Distancing Sods Law.

It’s been a yucky winter. Storm after storm. Zero snow. Rain, rain, rain. The ground became a constant mud fest. Cold and so very grey. And don’t start me off with the constant high winds. Just not conducive to venturing out. It’s was that bad that we have not been to the coast in well over 6 months. Running became an absolute weather ordeal. Then social distancing becomes a new national obsession. We go into lockdown and guess what. The rain stops (almost completely and the ground has completely dried out). The wind dies down. The Sun decides to make a return. Perfect beach walking weather. Beautiful running conditions. Sods Law.

Unbelievably a local weather station has recoded ZERO rain in 3 weeks. This is Yorkshire, what on earth is happening. One day we even had to get the sun cream out…..

Yes no trips out and no longer runs. No social interaction. Almost complete isolation. But we are so lucky. We have a garden to help practice social distancing. Our own little world to enjoy this settled spell.

But let’s not forget that social distancing is not new here. It’s not new in many autism households. Its not new in many disabled households. It’s not new in households who have been cut adrift from society. Its not new for many single parents. It’s not new for far too many you are living alone. It’s something which happens with or without a virus. Week in week out. Year after year. Regardless of the weather. Nothing to do with Sods Law. It’s just normal life for many in our society. What is unusual is that for a brief spell, everyone gets to try it.

It’s back to online school

Orange sky at night homeschoolers delight?

This weekend we return to the wacky world of schools version of home schooling. When we joined thus school, all parents had to buy an iPad which would become the school iPad. It would be integral to the teaching approach. It never seemed to be fully exploited. Well that was until the schools went into lockdown. Now it’s allowed the school to run the usual school timetable completely remotely. After a few weeks we can confirm that the technology works well. The quality of the lessons varies between subjects. Some of the lessons just feel like it’s basically read a text book for an hour. Lessons like Mathematics have used existing online teaching apps which work really well. To that extent it definitely feels like Maths could just become a home based lesson as standard, with the teacher just providing a guiding overview and tracking development.

Lessons like History can be so hard to bring to life. They tend to be too dry for many kids purely delivered from the classroom. Anything which opens up this teaching approach gets a thumbs up from me. Suddenly History is exploiting interactive media. How about the next stage being history lessons delivered from local historical sites.

P.E is a subject he dislikes at school. Too much pressure, too little time to change clothes in cramped and noisy changing rooms, so many kit items to remember. Yet at home he has loved following the lesson requirements in the safety of his garden. English is another subject which has worked much better in the home. At home Son is much more relaxed and will happily ask for help. In the classroom he just won’t ask….

What hasn’t changed sadly is some of the marking and review processes. That doesn’t apply to all the subjects. Some of the comments are supportive, encouraging and helpful. Unfortunately too often correct spelling is stressed rather than actual content. How is making a dyslexic type out each spelling mistake three time going to help him. It will certainly knock his confidence. He had to submit a project which he worked really hard on. When I checked it I was seriously impressed. I learnt a lot from it and I got an A in that subject at college. Yet when it came back from the teacher the only comment was that it was ok and please correct the spelling mistake…. The look on his face when he read that feedback told me everything.

Then we have subjects that won’t accept work unless it’s done on paper and then submitted via a photograph. What is certainly not helpful is making someone with handwriting problems write (not type) work out then mark it down as not being good enough and needs more work. What’s not good enough is that teaching approach.

Going forward he is happy to keep working through schools online programme. He is hoping that it will run for the rest of the school year. From a parenting point of view, I’ve got used to it pretty quickly. The quality of the teaching has varied between subjects. But without a doubt Son has been much less stressed out about school. The question will be what happens when schools reopen. Ultimately it’s his call. If it’s September then has time to have a good think about if he wants to return or opt for full home schooling. At least now we will have a better grasp on what homeschooling may entail. What works for him and what needs changing. If schools open in the short term then it will force his hand. In the current climate and without significant change in school practices, he’s just not ready to go back. I suspect it’s the homeschool option. At least he won’t be crashing into homeschooling, he will have already tipped his toes in the water. And whisper it quietly, it’s not as daunting as it seemed 6 weeks ago.

Rolling in

This week along with some more flowers blooming, the school emails have steadily been rolling in. I’ve been lucky with 6 emails. Son not so lucky. So far he has 35 unread teacher emails and another 5 this morning. I thought this was the Easter break.

Dad I’m not reading these until the weekend. I’m on holiday”

Couldn’t agree more. Can we just let kids have some fun and have a break from all the crap.

Next holiday I’m putting on out of hours message. Something like – I’m now on holiday which finishes on xxxxxxx if you have any concerns please email my Dad.”

Yesterday was one of those rare Yorkshire days. A day when you here the little used words

Dad I think we need sun cream, do we have any”

Mad parenting panic quickly followed by a mad house search. This is Yorkshire. I remember going to a Test Match (cricket) here many moons ago. The helpful announcer kept playing Government warnings about the need to where hats and use sun lotion to avoid the harmful effects of sunburn. It was ironic as it chucked it down all day and we never once had a glimpse of the sun. Everyone was huddled under umbrellas or seeking cover from the torrential rain in the beer tents. Our county is many things but if you had to list the top 1000 things about Yorkshire, the words hot and sunshine are never going to feature.

After a chaotic search a tub of factor 30 was found. Probably last used on a trip to Switzerland.

Is it still in date Dad?”

I didn’t need to look at the date to confirm the answer. But in the spirit of accuracy I checked. It was only slightly….. 2018.

Well it will have to do but I will be informing my solicitors

We needn’t have worried as this is Yorkshire. In the time we had been protection hunting, the dark clouds had rolled in. Now the most appropriate form of protection was a jumper.

Brave New World Part 2

I wasn’t planning on having a two part Brave New World post but the staggering incompetence of our Government intervened.

This Brave New World post originated from listening to few callers to a local radio show. A number of times I heard the following heartfelt wish

I can’t wait for the restrictions to be gone in a couple of weeks, we will have beaten this virus and so we can get back to living like we did.

Sadly they are in for a shock. The lockdown will continue for another 3 weeks. It’s not like we have a tap that we can just switch the old life on and off. The eventual easing of restrictions does not mean we have won. Even in countries like Germany who have managed this crisis professionally, the restrictions are being eased while many are still dying. Thousands are still getting infected. We haven’t defeated this virus. All we have done is get through the first onslaught. What’s happening is that we are now trying to find ways of living and working around the virus. This virus is not going away. We wait for a vaccine. Yet even if we are lucky and a vaccine becomes available in the summer, it will take many months for it be manufactured and potentially several years before the programme covers everyone. Things HAVE TO CHANGE for this to work. It will be trial and error. Strict Restrictions may have to be enforced again.

So things will need to change. Certainly over the next year or so, maybe longer. Some things are relatively easy. Shaking hands surely has been consigned to the bin. Increasingly shops are changing how they manage customers to keep them and staff as safe as possible. What worries me is that in some areas the assumption seems to be that we can just go back to the old ways. Namely Schools.

Over the coming months schools will start to reopen. So as mass gatherings are still banned, the daily school mass gatherings will start. What will have changed. In the UK the answer appears to be nothing. It will be ok we are told because kids are at lower risk than others to this virus. Yet even today I’m listening to the Government warning

It can effect any person. ANY AGE. Even those without underlying health conditions can die from it.

But then we are told that it will be ok for the kids as more are naturally gaining immunity and yet we know so little about this virus. How long does acquired immunity really last for. Worryingly we are seeing increasing reports of people getting the virus more than once. Let’s be honest. What ever we do going forward is a risk. Sending kids to school is an increased risk now. So what are we doing to minimise that risk.

So when schools reopen – what’s changed. How are we going to safeguard the health of our kids, teachers, support staff and families. In the UK many school facilities are not fit for purpose. Insufficient and out of date hygiene facilities. A rammed timetable which provides no time for that number of kids to repeatedly wash their hands and for surfaces to be cleaned. Too many squeezed into such a confined space. Absolutely zero social distancing possible. Things have to change.

This is the time we should be looking at all options. Reviewing what can and can’t be done. How can we improve things for the better. Schools should be given the freedom and backing to make positive changes before the kids return. Give Headteachers the authority to protect those under their care.

  • Give them access to appropriate PPE and safety kit. Do kids and teachers have to wear masks?
  • If schools are forced to open before the summer break it’s likely to be happening while infection rates are still uncomfortably high. Do we initially focus on opening for just a small number of children. Just those children leaving in the summer.
  • Allow Heads to consult with parents on which kids can spend part of the school week at home.
  • Rip up the national school teaching mandates. Allow Heads flexibility over timetables, opening hours and subjects.
  • Allow them to vary teaching delivery for each subject. Some classes may need to delivered in the classrooms. But surely not all of them. For example in the UK we have access to an online mathematics teaching resource. The last few weeks have demonstrated that with the overview of the teacher, maths can be successfully delivered remotely. History can often be such a dry subject to deliver from the classroom. How about the teacher delivering lessons from historic sites (either with the class or recording the lesson). Lets make the teaching more engaging.
  • What potential untapped learning resources do we have amongst parents and the local community. At Son’s last school they did a session on the how the various body organs worked. A parent who was a Doctor delivered the lesson.
  • Some kids will need to be in school full time. But we will have a number of kids who can for at least part of the week be schooled at home. What’s the scope of saying some kids attend school for only part of the week and work from home for the rest of the week.
  • Invest in online teaching resources. I am a critic of our Son’s school. But they have invested in this area. They have delivered online schooling for every subject. Yes some work better than others – but it’s worked.

If we can deliver on some of these changes it will allow schools to space kids out more. We can bring down class sizes. We can allow those in school a chance to practice social distancing and effective hygiene. All things we are told that are essential for daily life now. Surely that’s a safer, more effective and sustainable way of delivering teaching in the modern age. I’m not a teaching expert but I have worked for years in logistic planning for public services (including schools). In our country we don’t ask the right questions early enough. Our Government does not allow Heads and Teachers professional freedom. That’s why education is failing so many kids and that’s why our schools are basically unfit to meet the current challenges. It’s time for change. We have to change or this virus (or the next one) will win the war. It’s time for change. Yes it’s time for a brave new world.

Ever shrinking world

A photograph from our garden. Just five paces from the door. Part of Son’s world.

Our Son really struggles with health related anxieties. I remember the first pamphlet his Doctor handed to us about Aspergers all those years ago – second bullet point – may encounter obsessive fears over health and hygiene. For our Son they were real, life altering fears. Then in quick succession he lost his mum and both grannies. The fears became even more scary and real to him.

In the early party of his Aspergers life he was under the care of a wonderful Clinical Psychologist. She slowly helped but then she retired (and was never replaced due to the decisions backed by many of those in our current Government). His care became a real hotchpotch which achieved very little. Then we were so lucky. Son’s case landed on the desk of a young nurse health counsellor. Since then she has been the only constant through his care. Now because of Government cut backs, she is the only specialist help he gets. Although not an Autism expert she has patiently worked with him and delivered real benefits.

His fears became manageable.

Due to our Governments continued running down of the NHS, her workload has become ridiculous. She just can’t spend the time she needs to with him. But she does what she can. She still cares.

Then 2020 hit. Is it really only 4 months old…….

His fears have gone off the chart. Can you blame him. The worlds gone potty. Everything is up in the air and showing no sign of settling down. Because of the new clinical rules his wonderful health counsellor is not allowed to see him until after the crisis has eased. Being realistic that’s not going to be until the back end of the year at the earliest. So he’s started burning his bridges.

Bridges is a theme I am sure I will come back to over the coming weeks. The world of autism and the big bad world don’t naturally coexist. They are often separate. Links and bridges need to be built. Unfortunately the big bad world is not interested in developing links. It’s been up to our Son to try and build the bridges. That’s allowed him to enter the big bad world. Those links have never been particularly strong. NOW HE HAS BURNED THOSE BRIDGES. The outside world is just too scary and full of dangers. He has bunkered down to his house, his back garden, his world.

The thing is that when things start to improve again. And they eventually will. The big bad world will make no effort to rebuild those bridges again. One lone nurse counsellor will try. I will try. Sadly, I’m not entirely convinced Son will make much of an effort this time. Maybe in the future he will but it will take time. In the meantime his world has shrunk.

Old moon

A couple of full moon photos from last week. My poor old iPhone tries it’s best.

I remember looking up at the moon. I was lying on my back on the cold patio trying to keep still and give the camera phone a chance of trying to focus. Anyway I was looking up at the moon and thinking it was stunning. I really hoped that my partner could be seeing this as well. Maybe she was? Was she seeing it from a different angle? Was she looking up at it from one of her favourite places. Was she above the clouds?

These days I frequently look at things in a different way. For a long time after my partner died I felt bad about looking at beautiful things. Sunsets, landscapes, the Sea, our Son playing. It just wasn’t right that I could and my partner was missing out. She had been cruelly denied this chance. Her time ran out.

But slowly that feeling of guilt started to ebb.

Now when I look at beautiful things, I try to look that little bit harder. Look for just a few moments longer. Truly embrace the moment. Because now I’m looking for the BOTH of us.

Back to the moon. After a few minutes I was becoming distinctly uncomfortable. My back is not designed these days for lying on a cold, hard surfaces. Then a thought. What was I thinking about. My partner was the sensible one. She would be sat inside. Occasionally shouting “that’s very nice Dear”. She would not be outside freezing her butt off. She would be warm inside with a glass of something, watching one of her favourite movies.

That’s a view she would be happy with.

Care Bear

The kindly local farmer has been most busy this year. Much needed light amongst the darkness. The Care Bear is well off the path so is maintaining at least 4m of social distancing. That’s a good idea as it was windy.

On the dog walk this morning we saw a number of cyclists and runners on the distant country lane. They were all trying to observe the new social distancing advice. All seemed to be keeping the 2m recommended separation. But is it enough. I was reading an article by a leading virus expert. He said that the 2m separation was a great idea but it was based on quiet air conditions with people either stood still or walking. If the air is turbulent or it’s windy then the safe separation distance should be increased. If you are running then the safe distance behind you (in the wake) needs to be increased by up to 10m. For cycling the safe distance behind is upwards of 20m. Sadly every single person running or cycling was sticking to 2m. So much confusion. So many different expert views. Deep sigh.

One of the great Easter traditions has been performed yet again this morning. Dad forgetting where he hid the Chocolate Eggs in the garden. Followed by

That’s a great egg. Thank you Dad. Is that the last one?”

Slightly puzzled look from Dad….

You do this every year. You can’t remember how many you hid can you?”

Yes it’s only a small number. I couldn’t be sure if it was three of four eggs. Was it five.

Well I’ve found three eggs. That’s a great number but I’d better keep looking. Just in case.”

Good job as 10 minutes later we found the fourth behind the oil tank. I should have realised that when I bought them in February they were on offer, buy one get one free. So why would I just get three…… I will say it before our Son chips in with it.

WHAT A PRIZE MUPPET.

Last year I did the same. Only realised that we had missed an egg when a few months later I found it while cutting the hedge. Then the year before was a spooky one. We had cleared the garden of eggs then when we woke up the next day we found another egg on top of the sundial. I definitely didn’t put it there and it was that obvious we surely couldn’t have both missed it. Bizarrely it was a brand I can’t remember ever buying. The Easter Bunny must have brought that one overnight.

Well I hope the Easter Bunny calls again tonight. This time for me…

After Christmas I went back onto my gluten and dairy free diet. This makes Easter difficult. So I thought that I would treat myself to a dairy free egg. Unfortunately they have been out of stock in our local shops. I guess it’s because they are not seen as an essential item. Just before Home Deliveries became unavailable I managed to add a suitable egg to the delivery list. Job done for Easter. Sadly not. When the delivery arrived the egg had been substituted to the closet available alternative. A packet of gluten free cornflakes. So as people took into their eggs think of me with my bowl of cornflakes. That’s a dry bowl of cornflakes as milk alternatives are also out of stock. But hope exists. Tonight we move to plan b. Cornflakes with gluten free pineapple jelly. The jelly was sent as a substitute for gluten free gravy….

Try to keep smiling everyone.

Good Friday ?

The headline in the prime UK gutter newspaper (a publication so bad and so vile I can’t even write its name down) was apparently today

Boris is out – now that really is a Good Friday.

Just those words on the front page….. Yes anyone leaving intensive care in a better state than they arrived is a wonderful little victory but it misses one rather salient point. At least 5000 people died in the UK this week and god knows how many worldwide. Will it be a good Friday for the scores of families who will be bereaved today……. The UK is now recording more deaths than any other European country and because of the shambles the government has made on testing – this probably vastly underestimates the real figure. But no need to report on that….. No need to talk about our wonderful nurses forced into using bin bags as protective uniforms.

What would be a Good Friday would be no one suffering today with only one obituary required – one for that loathsome newspaper. I remember once the newsagent accidentally sent that paper to my mum instead of her normal one. She refused to touch it and she burnt it on the doorstep. Stick that in your pipe and smoke it Murdock.

Let’s move on to the real Good Friday.

Our Good Fridays were slightly odd. Normally my partner would introduce all the family traditions. But not on Good Friday. I can’t remember my partner doing anything different on this day. She was a devout Quaker, maybe that was the reason. I do know that I was her biggest trial in life as we were very very different.

For some reason my family traditions kick into overdrive on Good Friday. So unlike me. What’s the old phrase

You wait hours for a bus and then three arrive at the same time.

  • So each Good Friday we would
    • Not be allowed to drink milk all day (No idea where that one came from, probably one of my random dreams tricked me into that one),
    • First food of the day had to be an unbuttered Hot Cross Bun. Not allowed to use a knife to cut it. Every year I’ve done this an yet I don’t like them. My partner hated them so I had to eat hers as well. Then Son hated them as well so that was THREE buns I had to get through.
    • Can’t eat meat all day.
    • The meal at lunchtime had to be fish.
    • Attend a morning cross parade. These don’t tend to happen here anymore and anyway this year they would be banned.
    • No alcohol before you have had the fish. That was actually a very hard challenge when I was at University.
    • We would fly a kite on the afternoon. Apparently this is a tradition which originates from the Caribbean. No idea why that one reached deepest Yorkshire.

    I have to say this year some of the traditions have been dropped while some are just happening out of our daily routine. No milk or meat so far but that’s because son has not had his lunch yet. I’m tea total these days. Not enough wind for a kite. We might have tuna for lunch if I can convince son to change his food routine. However a pesky hot cross bun (plus the one our son won’t touch) will be waiting for my 2pm meal starter. Unfortunately due to the currents our dog is not allowed to help eat them. Thin king about it I might start a new tradition. Have the smallest bite of the bun then share the rest with the birds. That’s a tradition I might be able to stick to.

    Stages

    One of my first records I purchased was ‘All the worlds a stage’ by the rock legends, Rush. Shakespeare wrote that ‘All the worlds a stage’. Don’t worry I’m not going all thespian on you. But I must admit I fancy my chances these days of doing a mighty fine Richard III stage performance. Why is the Stagecoach Bus always two hours late when I try to catch it. Just watched wrestling on the TV which is staged. So many stages.

    Then you get stages in grief. A couple of years ago someone asked me what stage I was at in my bereavement process. I just looked on blankly. All I could think of was two stages. Your life before the death and the life after the death. So I answered – in the second stage and I always will be. I guess that’s not the answer they were looking for.

    Last night I was reading an online article about bereavement counselling. It talked about every bereaved person going through the same 6 stage process. I wasn’t convinced. Surely every person’s grief journey is unique. Why force people to follow a predetermined text book bereavement route which doesn’t suit them. So I gave up with the online article and scribbled down my own staged journey so far. It’s my interpretation of MY journey and in no way is it supposed to fit other people. Remember I’m not a Doctor or Psychologist. I moved a potted plant into my bedroom to raise the rooms overall IQ score. The height of my powers these days is to get the cling film wrapper off food without slicing off a finger…. So here goes with my journey.

    The SHOCK STAGE. Within a period of 6 weeks I’ve just buried my mum and then my partner. I’m a complete mess. Barely able to function and yet I’m supposed to be a Dad. It’s like living in a prolonged nightmare. Trying to sort out the practicalities and legal side of death, but actually got no idea what I’m doing. Basically doing stuff I’m told to do.

    The FRUSTRATION STAGE. The cards, flowers and phone calls have dried up. I’m becoming more aware of the reality of the situation. Trying to get my head round how to be a single parent and at the same time keep some money coming in. I need to find an alternative to my career as it just isn’t doable anymore. The frustration comes from realising that what worked in the past just isn’t going to work now. It’s also so frustrating that the world is still spinning without seemingly even blinking after my partner exited stage left. It feels like I’m fighting this new normality.

    The ACCEPTANCE STAGE. Eventually I began to accept the new reality. This is how it is and I just have to deal with it. I came up with a mental picture which I still use today. A door on my former life has locked shut. It’s never going to open again. I can look through the door window and see memories but I can’t touch them. I could stand here forever but this door isn’t opening. So I have a choice. Continue to stand by the door or set off and find other doors which are still open.

    The IT’S LOVE STAGE. Linked with the Acceptance Stage. I opened a mental dictionary and found a better definition of grief. It defined grief as another word for LOVE. That sounded so reassuring to me.

    The IT’S OK TO GRIEVE STAGE. Up to now I would hide my grief. As if it’s something unhealthy, something deeply embarrassing to others. People might ask how I was doing but they appeared to rapidly change the subject if the answer I provided was not – I’m fine…..But suddenly as grief was another way of saying LOVE, suddenly it became ok to grieve. Yes it could still be so painful but it’s something I shouldn’t be hiding. It’s nothing to be ashamed about. It really is OK to be sad.

    The IT’S OK TO LAUGH STAGE. Up to now I felt bad about smiling and laughing. It was just not right. I would focus entirely on making our Son happy but shunned doing it for myself. It took well over a year but the penny finally dropped. Yes it’s ok to be sad AND YES it’s just as OK to be HAPPY.

    The IT’S OK TO LIVE AGAIN STAGE. After the funeral all my dreams died. When I looked at life I saw it entirely through our sons eyes. When I tried to see it through my eyes all I saw was blackness. Absolutely no future. However over time it became OK to live again. Remarkably I can still be happy. I can find new doors that will open and create new memories. Life can still be at times sad and painful BUT IT CAN also be fun. Just starting to dream again.

    That’s the stage I am at now. Embracing the happiness as much as I respect the sadness. Maybe, just maybe tipping the life balance in favour of fun. Yes it still can be a wonderful life.

    First rant of the month and then the garden beach

    Before anyone says anything this photo was NOT today and not 2020……

    It’s a bizarre country which I live in.

    A place where British war time spirit and a stiff up lip is the way to defeat this unseen enemywell that’s what our newspapers are claiming. No I think you will find that it’s actually antibodies and vaccines that will do that. Self distancing will help dampen the curve but on its own it will not do the job.

    A country which for 10 years has invested heavily in academic testing for an increasingly younger range of school kids. The only principle in UK education is meeting government targets by testing millions of kids, week after week. Test, test, test. Yet the same Government can’t see the importance of testing when it applies to a pandemic. They can’t even provide virus tests for our brave medics and front line carers. Actually the can’t even provide the appropriate protective kit to all our nurses. Suddenly we have a mad scramble for kit, tests and ventilators. It’s not as if the Government didn’t know. Three years ago a study reported to the then Government on how poorly prepared the country was for a pandemic. The Government (including many in the current cabinet) decided to bury the report.

    That’s probably why the UK is soon going to have the worst pandemic mortality rate in Europe.

    Deep deep sigh and divert gaze to domestic matters.

    Dad would you mind if I didn’t do any revision this week for the school tests. Not sure I’m in the right frame of mind for it.”

    Given the current climate why on earth is the school doing exams. Oh I forgot – it’s government policy. Can we just give the kids a break. Especially as the tests are based on such a narrow educational range. It’s more about proving to kids what they don’t know and spotlighting their individual weaknesses. What about letting kids show what they are good at, what they do know.

    “Ok Son that’s fine with me. When you feel the revision force is with you then if you want to, then do some. If it’s not then just have FUN.”

    And that’s what we did. We had to abandon the planned eat some whip cream while bouncing on the trampoline competition. The pigeons who have adopted our garden have now decided to build a nest right next to the trampoline AND it now has eggs. So we opted for plan b and c. Try to make some homemade ice cream. Followed by setting up our very own beach. In the garage I found a couple of old bags of play sand. So that was emptied onto the little patio and the old kiddies paddling pool was filled with water. Shorts and suncream on. An MP3 file of seaside bird and animal sounds was played on my portable music player. Hey presto we are at the beach. Ok we need to work on the beach sounds. The sound of whale songs and walruses fighting are not that common on the Yorkshire coast – but that’s nit picking. As a safe, social distancing adventure it most certainly worked. Now I just need to rebag the sand for our next trip. Maybe it’s to a desert.