Posted on by bereavedandbeingasingleparent · 33 Comments

Voice

It’s been one of those Yorkshire days. Long periods of rain punctuated with spells of stair rod duck weather. It’s the perfect weather for a leaking back door. If we had ducks then they would be happily swimming about in the utility room. I know what the rich must feel like now – an indoor pool. Looking at ours I really don’t see what all the fuss is about.

It’s was similar weather three years ago when I had to go and see the solicitor about my partners will. I was in such a daze that I hadn’t realised that I had forgot to put a coat on when I got out of the car. Within minutes I was a drowned rat but I only realised when I saw my disheveled reflection in a shop window. Previously I would have had an angelic voice quietly whisper – why don’t you put a coat on dear. It’s the one thing I have never adjusted to. Not having that caring soul help guide this bumbling fool through the twist and turns of life. That’s probably why I still tend to avoid social gatherings. Not sure I trust myself.

I’m so blessed to have been with that caring soul for a wonderful 17 years. It’s created so many memories. Fortunately years of over using the camera has created multiple photo albums filled with these memories. Those photographs tell our story perfectly. But one thing is missing and it’s so haunting. I just can’t seem to remember her voice. After all those years we spent together how can I forget something so important. I just can’t get it right in my memories.

So I have been trying to find a video with my partner talking. So many videos taken but they all focus on our son. Then I came across our old video camera. The one we bought during the pregnancy. The one which has been gathering dust since mobile phones became the memory recorder of choice. No luck so far but I did come across something which completely floored me. A mini video disc marked up as sons first walk.

When it happened I had picked our son up from nursery. My partner was still at work. Son was sat on the floor singing away so I started filming him. Within seconds he managed to pull himself up and waddled across to me. All captured on film. Unfortunately our dvd was broken at the time so we couldn’t replay it. So I said I would go into the city and get it transferred to video. I kept putting it off. I never got round to it. Over time the disc was forgotten about. I never did share that moment with my partner.

You assume you have all the time in the world but in reality you never know how much sand is left in the egg timer.

It so important that we remember to seize the day. Don’t assume you will get another chance tomorrow.

So the voice hunt will continue. I know somewhere I will find it. Then my memories will be complete. And again I will hear my angelic angel.

Posted on by bereavedandbeingasingleparent · 62 Comments

Art

Dad I hate art at school. It’s so strict. I always thought art would be fun.

Art is not like that very often. It should be about just letting your imagination roam wild. It should be great fun.

Dad did you enjoy art at school then.

No hated it. We had a strict art teacher. But to be fair to her our school was a war zone. A 2B pencil or fine tip paint brush would be seen as a legitimate weapon by most of the idiots in my class.

My class is ok. It’s got some very nice kids in. Even the ones who cause all the trouble mainly get into trouble for really petty things. Like last week half the kids in the drama lesson got a negative because they forgot to bring a black T-shirt. The teacher said we needed one in the first lesson but didn’t talk about other lessons.

That’s too harsh. In my day you had to do something properly bad to get something like that.

Tell me about your mad class again.

We had someone who burnt the church hall down. Another boy was appalled when he found out someone else had been put on report for something he had done. He went off to sort it out. We assumed he was going to own up. That must have been plan B as he was caught trying to set fire to the headteachers desk. We ended up with two boys who went to borstal for robbery. Another boy who went to prison for attempted murder.

Are the two robbers those muppets.

Yep. While one of them broke into an off licence the other went to get a getaway vehicle. Unfortunately all he could find was an electric milk float. So a few minutes later they were trying to escape with the float engine burning up at 10mph with police cars in very slow pursuit. One of the muppets was on the back of the float throwing milk at the police. They didn’t get very far.

Shall I draw a picture about those two for Art. I still need to do my homework. Don’t won’t to get a negative.

No why don’t you pick something else. Something more arty. Why not a drawing of the farm. Or a flower. Something nice.

Ok, something nice it is then.

**So he disappeared in his room for an hour to do his nice masterpiece**

Dad I’ve finished. Nice. Is a bit of Tim Burton ok.

Posted on by bereavedandbeingasingleparent · 65 Comments

Choices

Life is full of choices.

This morning it was pouring down but the forecast was for sun. What to wear on the run. I opted for full rain gear. 10 minutes into the run it’s blazing sunshine. Ended up more drenched than I would have been if I had started in just a T-shirt in the rain.

The Government could have saved Thomas Cook from going under. They decided not to. Apparently they were worried about not getting the £200m back. So 22000 people world wide have lost their jobs. Countless thousands are stranded. Holidays, honeymoons, once in a life time adventures have been ruined. Lots of hard up people are losing money on the bookings they have made.

Last night in the rain storm water came in through the back door. Do I find money to replace the old back door or find the money to replace the misfiring washing machine.

A few years back the Government didn’t win enough seats in the election. It had a choice to make. It decided to find over £1billion to bribe another party to back it so they could keep their jobs in government. Wonder when we will get that money back.

A few months ago I was faced with a decision. Keep son in school or homeschool. I opted for keeping him in school on the grounds that I couldn’t afford to home school (single working parent) and hope school will improve the support to our son. Few weeks into the term of any school support has in fact stopped. Probably a bad call.

The Government had a choice to make on Brexit. It’s decided to go for a no deal crash out. An approach which will make many in the cabinet and it’s friends significant money from hedge-fund investments. It’s also will have to spend over £6billion on Brexit planning. I wonder when we will see that money back.

So in life we all have choices to make. The big difference is that the vast majority of us may get decisions wrong but they will have been taken with the best of intentions. That doesn’t apply to Government. Ultimately they are looking after themselves….

Posted on by bereavedandbeingasingleparent · 44 Comments

Just be happy

I was hoping to have a trip to see friends this evening. Its been a long while. Going to see a footy game at teatime seemed an ideal opportunity. Son was primed to spend a few hours with his aunts. But with Autism you never get your hopes up too high. Same with being a single parent. Things happen. Your needed elsewhere. Change of plans. So it’s a night of movies on the sofa. Son is in charge of the programme so can’t rule out having to endure Alvin and those pesky Chipmunks. It’s going to be different from the original plan BUT it’s going to be lovely. A blessing.

This brilliant quote comes to mind.

“How beautiful it is to find someone who asks for nothing but your company” – Brigitte Nicole

Posted on by bereavedandbeingasingleparent · 76 Comments

Autism and football

The Blueberry Plant is anything other than blue now.

That looks too like a Liverpool and Manchester United shirt for my liking. But it’s still better than that black and white barcode which your team wears. Watching barcodes run about a pitch must give you headaches.

That Football team of mine just gives me headaches period.

Son has set his heart on playing football for a team. Over the last few months we’ve tried to kick as many footballs around as the weather has permitted. It hasn’t been easy for him. Difficulties with coordination makes playing any ball sport a tough ask. That’s the issues facing many kids with Autism and Dyspraxia.

But there is hope. For a start dyslexia is not a barrier to sport. So many positive examples.

  • Kenny Logan – 70 Caps for Scotland (Rugby Union)
  • Scott Quinell – multiple caps for Wales in both Rugby Union and League
  • Lewis Hamilton – 5 time F1 World Champion
  • Magic Johnson
  • The great Mohammad Ali

In terms of autism it allows you to see the world in different and imaginative ways. This can be such an advantage in sport. Psychologists believe that some of the greatest sporting talents may be on the spectrum. They can see opportunities that other teammates just can’t pick out. It’s speculated that one of the greatest footballers on the planet (maybe the best) is on the spectrum.

Our son is tall for his age and very slim. He seemed the perfect shape for a modern style goalkeeper. So that’s what we started with. This also made it easier as we could just focus on his hand to eye coordination. For years he couldn’t catch a ball. But for ages now he has been bouncing a bouncy ball on our pavement. With hard work he now has really good catching skills. Then he started trying to catch a tennis ball while bouncing on his trampoline. Again after a lot of hard work he now is great at diving and catching one handed. So the next stage was to change the bouncy ball and tennis ball for a football. Quite quickly he managed to start catching two handed.

A small goal was bought for the garden and I started hitting some soft shots at

him. With hard work he can now dive and make some great saves. He’s now better than I was at his age.

But now he wants to see if he can play as a midfielder.

That would be cool dad.

This is a harder challenge for him as he still struggles coordinating his feet to kick a ball properly. But let’s see what we can do about that. Any skills he learns with his feet will be useful if he goes back to goalkeeping as these days they need to be comfortable passing and dribbling.

This year he has started going to the football club at school. It’s a steep learning curve. Suddenly it’s not just his dad, the dog and the ball. It’s lots of moving bodies, so unpredictable and loads of shouting. The shouting really disoriented him on his first session. He played one short game in midfield.

Dad I didn’t touch the ball but wow did I look good…. (said with a smile)

He went in goal and made some good saves but

I took a goal kick but the defender didn’t see me pass to him and the striker got the ball and scored. The teacher shouted that it was my fault.

Unfortunately too much shouting and blame goes with kids football in our country. Kids should be encouraged to try things, make mistakes and learn from them. Unfortunately too many are scared of making errors. You don’t make dreams come true by shouting at kids. At least son could see the wider picture.

Typical the other team scores and everyone blames the keeper even when it’s not his fault. What did you do when they blamed you for letting a goal in. I bet you let too many goals in.

Oh I just smiled, clapped my hands and immediately forgot about the goal. You move on and think about the next shot. (That’s not the whole story. I was a bit of a hot head back then and I would threaten to stick the ball up the backside of anyone who blamed me. But I won’t tell him that.)

So fingers crossed for the next club session.

Posted on by bereavedandbeingasingleparent · 48 Comments

Clueless

It’s been a clueless type of day.

The company I have been doing some work for asked me if I would phone up the Brexit Helpline to ask some technical questions. Apparently because I talk tosh they thought I might be better placed to understand the helplines answers. I won’t bore you with the whole conversation but basically this was the nub of it.

Can I ask you some technical questions relating to Brexit and my company?

Please do. That’s what we are here for.

If we have staff who need to work in the EU for a short period of time what are the new regulations we must observe?

Don’t know

If we undertake work in the EU but need to employ EU based subcontractors what are the tax implications?

The current tax and excise regime will change on the 31st October. You will need to start planning for the changes now.

Yes I realise that but what will be the new regime.

It’s still being formulated

If we have web based sales to the EU what will be the export tax position?

Don’t know.

And on and on. To all my questions I received three basic replies.

  • We leave the EU on the 31st October and things will change. You will need to plan.
    The Government is still working on the details.
    Don’t know.

Anyway it proves that Brexit is a typo. It should be Breshit….

Absolutely clueless

*******************

I spoke to school again about our son. He’s had zero additional help so far this school year. It’s actually got worse. At least last year the teaching staff got to know him and some of teachers did try to help. We even had a couple of teachers who really got to understand him and they did try to modify the programme for him. For this school year his teaching staff and teaching assistants have all changed. So we are back to square one.

In terms of support for Aspergers the school provides no support. It has established a quiet room which kids can go to. But this is a small, cramped room which is frequently used for teacher meetings and storage. Even our gerbils would be able to design a more autism friendly space than the schools attempt. The only area the School has talked about was maybe giving our son more time to change when doing sports – but this in practice has never happened. That’s it – no other help. It’s not seen as a school problem it’s something the NHS deals with.

In terms of dyslexia school argues that it provide a Teaching Assistant in each lesson to provide support. This is not dedicated support. The TA has to try and support the whole class. Our son’s class also has a profoundly dyslexic child and the TA helps this child during any reading elements of the teaching. Again school argue that our son should put his hand up and ask for help. Unfortunately the TA is frequently already occupied. More fundamentally requiring a dyslexic child to put his or her hand up and ask for help completely misses the point. Most dyslexic kids won’t put their hand up because of the stigma still associated with not been able to read. Putting your hand up is seen as flagging up that you are different. Consequently son never puts his hand up anymore. So school argues that the lack of support is down to our son not requiring it. They can’t seem to get their head round being proactive.

Absolutely clueless

*******************

It’s Autumn so it must be time for home made soup. So the chef places the ingredients in the slow cooker and lets them stew for a few hours. Then it was time for the chef to blend the ingredients in the smoothie maker (it’s a multitasker). Unfortunately the chef forgot to put the lid on . So now the kitchen has gone from a magnolia paint feel to one more a kin to a Ghostbuster ectoplasmic theme.

Absolutely clueless

*******************

To try and calm down after my two earlier conversations I went for a run. Within minutes my running to the beat of Mongolian Heavy Metal came to a halt as the mp3 batteries died. Still it’s a pleasant day for a run. Halfway round I stopped to tie my shoelaces while a rather inquisitive cow peered over a gate. Thirty minutes later I arrived back at the house. Where’s the MP3 player? Pants I must have put it down when I tied my shoelaces. So I had to run back to that gate. Visions of a head banging cow thinking why she had never come across Mongolian music before.

Absolutely clueless

*******************

So whether it’s been Government Officials, Teachers, Parents, Chefs or Runners. It’s been a day for the clueless.

Posted on by bereavedandbeingasingleparent · 52 Comments

Autumn

Autumn is upon us. Everywhere you look the signs are clear.

The hedgerows are brimming with fruit. Intricate cobwebs everywhere.

Most of the swallows have now departed starting their six week trek to Africa.

Yellows, browns and reds are starting to dominate the foliage. Trees letting go as sad leaves fall to the ground. Soon the fruit in the hedgerows will be gone.

It was the time of year my partner loved the best. She loved the colours and the reflective atmosphere. A time she could walk quietly and just think. Now I walk the same paths. Today I was struck by one thought. My partner would have been looking at these same autumnal sights. Countless generations will have been looking at these sights. As much as you think the world has stopped because of your personal tragedy it never does. Life continues. The never ending cycle of life. The empty branches show the fleeting nature of life. Leaves fall but they will be reborn again. So should you – in your own time. When the time is right – it’s time to live again. It’s time to find a new way of blooming.

For me I’m still in the existing stage. I don’t tend to have personal dreams anymore. For years we had shared dreams. When my partner left us those dreams died. Now my dreams are my sons dreams. I exist because of my son. I live life through my son.

At some stage I will transition into the next stage. When I start to live for me. When I start to dream again. It’s strange how Autumn which is a time of life coming to the end of its cycle has sparked these thoughts. But maybe a better way to look at Autumn is that it’s a time of letting go before you start again. Rebirth. Yes that works better for me. It’s a time just before you live again.

Posted on by bereavedandbeingasingleparent · 79 Comments

The tree of hope

Three years ago I was trying to get my head round organising my partners funeral. At the same time I was trying to empty my mums house and wrap up her loose ends. My head was completely spinning. I was in full zombie grief mode.

One family personal trauma doesn’t stop the world from spinning. It carries on regardless. So I was immediately faced with continuing the application for our sons Education Health Care Plan. Sat bewildered at my partners desk trying to find on my own the words for the final application form. The words came so easy when it was two minds. Now the one failed me. Then the black pen stopped working. Couldn’t find another and the form had to be completed in black on the pain of ……

So I set off to the shops to buy a pen. But quickly I was lost in a sea of grief and unanswered questions. An hour later I found myself at a random garden centre. Clearly a good choice for stocking up on pens. I wandered around aimlessly looking at plant after plant. The cctv must have been focusing on me as I was clearly not acting like your ordinary shopper. Then I came across a sad looking tree. Actually more like a snapped twig. The label said ‘discounted Pear Tree due to damage’. I felt sorry for this broken life form pushed to a dark corner of the store. Now no more that an afterthought. It felt like me.

So I went in looking for pens and came out with Groot (Marvel Universe).

Over the next three years Groot has grown and is now about 5 feet tall. Looks surprisingly healthy. AND this year for the first time it’s produced pears. Just FOUR pears. But it’s not the fruit crop which is important here. It’s something completely different. It’s HOPE. When personal tragedy strikes your whole world is turned upside down. It will never be the same again. You move from creating memories together to replaying memories in isolation. But you can’t live your life in those memories. Life has to go on. In my case life did go on. Yes I miss her dearly. Yes sadness always feels just round the corner. Yes I’ve become increasingly isolated from society. But life has gone on. Sons Education Health Care Plan was approved. I’ve changed careers. Progress has been made with Dyslexia. The house no longer feels like a funeral parlour largely down to the addition of a barking mad dog. I’ve increased the range of foods I can destroy. And Groot is thriving. That gives me hope.

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Brexit and Christmas

The parliamentary term is less than 3 days old and already the world has discovered what whose of us who have worked with Boris Johnson have always known: he is cowardly, weak, vindictive and without morals. Behold your Prime Minister, ladies and gentlemen.

Going well for our so called Prime Minister – those are the words from an MP from his own party….

Now putting my cards on the table I voted against Brexit and still think it’s a bad idea which runs the risk of making things much worse for the weakest in our country. The only real winners will be the the millionaire hedge fund investors who helped fund the leave campaign. But if we are having Brexit then we need to do it properly and make the very best of it for all of our communities.

I had an appointment with the Dentist today. The Dentist said that I needed some treatment but she was full until October. But the work would be completed before the end of October just in case they start to struggle getting dental supplies due to Brexit.

One of my university friends is a civil servant who works within one of the Government Departments. He was saying that they are working on the basis of significant risks of fuel shortages, fresh food supply disruption, medical rationing, veterinary drug shortages within a month of Brexit. He reassuringly described the current Government approach as swinging between headless chickens and an ostrich burying its head in the sand. The current thinking seems to be if we are lucky it will be fine but there is more of a chance that it will be somewhere between bad and appalling but we can blame Europe for that.

So better keep all those fingers crossed then.

Another friend of mine works in the car production sector. His plant works on a Just in Time basis so needs a constant supply of parts. He was saying that the supply is likely to be severely disrupted as soon as Brexit starts. Apparently the Government has only just realised this and has added this to its risk plans – with just weeks to go. I remember hearing a Minister sound surprised that companies might be so dependent on the free movement of goods.

So this week our Prime Minister closed down parliament with the excuse that he wanted to develop some really radical policies. Maybe he should put down his fine claret glass and concentrate on a few other matters first. If it has to be a no deal Brexit why not give yourself some more time to do it properly rather than winging it.

The other week we went for a walk. Too engrossed in a chat about Monty Python we missed out path and ended up on the wrong side of the forest so we couldn’t get back to our village. The Forest was too dense to just walk through it. So we had two options. Walk the 20 minutes back down the path or take the only short cut through the forest. Only problem is that the short cut is a deep beck with unknown underfoot conditions either side (due to thick undergrowth). Yes we could wing it and rely on good fortune but in life that doesn’t often work out well. So we walked back down the path and 40 minutes later we were back home. Safe and dry. Yes the unplanned shortcut might have worked but it wasn’t worth the risk.

My old pop had a saying. Nowt worse than doin a job half cocked.

Dad I’ve started the planning process for Christmas.

Last year I put out son in charge of Christmas. What we do, what we eat, where we go, what decorations to have and when to do it. It was our my attempt to deal with the fallout from son hearing that chat about Santa. Him planning everything worked out quite well last year. The feeling of control alienated a lot of the Santa let down.

I’ve set myself until the end of September to have the Christmas timetable mapped out then I can sort out the details.

His first call looks like it is to move the traditional Christmas lunch to Boxing Day. Christmas Day lunch will now be pizza based – more time for fun less work. The traditional trip to the zoo on New Years Day will happen again. This year he wants some external lights on the house but wants to think about the environmental impact. He wants a couple of additional day visits. He’s deciding between Edinburgh, Northumberland, Lake District and Stonehenge.

The interesting point is that son is giving himself twice the length of planning time for Christmas than the PM is giving the country for his no deal Brexit. I know which one is going to be better organised.

Posted on by bereavedandbeingasingleparent · 66 Comments

Homeless

Pets have really worked with our son. They provide so much fun and relaxation to him. Since he lost his mum they brought noise and life into the house again. That’s before we even consider the help they have provided with his Aspergers. Best parenting decision ever to bring them into our house. Not such a great financial decision but fiddle sticks to that.

One day we will get a sensible pet. It certainly isn’t the walking dinner plate which is our boy cat. It most certainly isn’t the mad pup currently outside trying to play hide and seek with the butterflies. The hope was that the three gerbils would bring some much needed sanity to the house. Team Gerbils maybe a super hero team ready to assemble but they are also a unrivalled demolition team.

The first house they had was plastic and lasted minutes. The second house was compacted straw and met a similar fate. We upped the anti for the third house with a construction of wood and wire. It has lasted longer however last night Team Gerbils got to work.

To be fair to them they did stack what was left of the house neatly to one side.

Dad we need to get them a new house don’t want them to get angry. You wouldn’t like them when they are angry.

So it’s wooden house version 2.

Notice that in the time it took me to get my mobile to take a photo Team Gerbils have got stuck into the roof.

If this house fails then it’s a phone call to Tony Stark and it’s time for Ironman Armour.