Posted on by bereavedandbeingasingleparent · 68 Comments

Well that’s sorted then

I was conscious that this Christmas will be different for us, different for Hawklad.

No end of school term activities and parties.

No Carol singing in the city while drinking hot chocolate.

No Santa Train ride. Ok we are doing our own car version.

No Charity Santa coming through the village on a trailer pulled by a tractor.

No festive walks along the beach and finishing off at a little cafe for his festive ice cream.

No visits to friends.

No family meet-ups.

No trips to the Christmas Market.

No trip to the zoo in New Years Day.

No family Christmas meal.

No Boxing Day walk with picnic.

No festive trip to the cinema to see a blockbuster and then whatever festive film they have showing.

No carol singers coming round the houses on Christmas Eve.

Basically it will be just the two of us and pets. Sticking to the house and garden. Maybe only one trip out to do the Santa Car ride. I was feeling bad about that so I brought it up with Hawklad. I explained the differences to him

……. so it’s going to be really different this year. How do you feel about that Hawklad?

“So no family at all?”

None!

“Absolutely no visitors?”

None!

“No festive trips out?”

It doesn’t look like it.

“Dad, can we order in extra pizza over Christmas?”

Yes Son.

“Well that will be just fine then…….”

Posted on by bereavedandbeingasingleparent · 63 Comments

Welcome sight

That’s one of my favourite electricity poles. Why? Because when I used to run it was the first thing I saw when I got close to home again. Always a welcome sight.

I was thinking that after this trying year we could all do with a welcome sight or two.

For everyone that welcome sight will be different. For me what would it be….

Maybe a rock concert,

Maybe going to see my team get beat again at St James Park,

Maybe it’s the view from the top of a mountain,

Maybe it’s the Sea,

Maybe it’s seeing Switzerland again,

Or just maybe it’s seeing a friends smile in person.

Let’s hope that whatever that view is, you and I will see it in 2021.

Posted on by bereavedandbeingasingleparent · 66 Comments

Loss

LOSS in whatever form it takes stays with you. It shapes you. It changes you. It can become you. It can define you.

For a few years it did define me. It did become me. It stopped me living. I basically just existed.

But time moves on. The journey is ongoing.

Loss still stays with me. Yes it’s changed me. But hopefully for the better. It’s taught me the importance of time. Loss made we realise the importance of life.

The next stage of my journey is to move from existing to LIVING.

Posted on by bereavedandbeingasingleparent · 50 Comments

Eat chocolate

I received a lovely present today in the post. The government support package for Hawklad will expire soon. So I need to reapply. Helpfully they have sent the 50 page application form to complete. I can’t submit the old paperwork and need to have more recent assessments and evidence. That’s a nightmare at the best of times but during a pandemic!!!!!!!

Only thing for it….. A bar of dark chocolate, a decaf coffee and listen to some angry music. Today’s choice, the latest from Roger Waters. That’s one seriously cheesed off artist recording those songs. That fits as that’s the music I would make today. Normal people are forced to jump through hoop after hoop for their kids yet friends of the Government are awarded multi million pound contracts without any due process. Roger Waters would certainly get the irony.

Well I then made a start. Book an appointment for a new assessment from a Paediatrician. On the waiting list. That’s currently a one year wait and growing. It’s a start…. Where’s the next chocolate bar.

But here’s the really scary thing. Our Son is fortunate as he has had some support. We somehow battled through the intentionally difficult minefield to get that. So many are either unsuccessful or are just missed. That’s the children, adult support is almost none existent. Discarded by our society that has its priorities so badly skewed. What’s the answer. Certainly to keep fighting. Most definitely to eat chocolate.

Posted on by bereavedandbeingasingleparent · 68 Comments

Wean myself off

This was last year. One hour into my trail run. Apart from missing the exercise I hope you can see why I miss running free.

Eventually you have to accept reality.

Hawklad’s anxieties are still rising. More routine tasks are becoming more difficult for him. He can largely control the dynamics within our house and garden. Lots of washing, extensive quarantining of items and being careful what he touches. He is ok within his castle walls. He is not ok with me venturing out.

Beyond those walls and that’s a completely different world. An alien, dangerous world to him. His doctors are clear – this will take a very long time to start to address. It’s not going to start happening until a pandemic is well behind us and as one of our leading scientists pointed out – with a fair wind we may start returning to something like normal life at the end of 2021. That’s assuming the new vaccines work and roll out soon….

So for me the reality is that our personal lockdown will likely stretch through 2021 as well. My mindset has to change. Away from getting through the next few months TO living the much longer new reality.

So back to the photograph. Running has become a bit of a drug for me. Now I have to completely wean myself off that. I’m nearly there as it’s been so long without it. Time to permanently replace it with other things.

Posted on by bereavedandbeingasingleparent · 49 Comments

Big sky

I’ve talked about it before but two things really sold our house to us. We were thinking about starting a family. We wanted somewhere quiet with a bit of a garden. We looked at a few places and then we visited this little bungalow in a small village on a hill. The bungalow was a bit small and run down but then we looked out at the overgrown back garden. That view and that sky. There was nothing to block out the view of the clouds. It was a BIG SKY. That was it were were hooked.

It’s definitely still a BIG SKY.

It still kind of takes my breath away. I’ve always been a town and city person. Grow accustomed to buildings and trees blocking out large parts of the sky. At night the artificial lighting just drowning out what sky that is still there. That just doesn’t happen here.

A BIG SKY definitely deserves big dreams. I do need to start working on those. Sometimes it’s too easy to fall back on memories. It certainly is for me. Not today. I’m going to get wrapped up, brew a mug of something steaming and go outside. To look, to breathe and to dream. All thanks to a big sky.

Posted on by bereavedandbeingasingleparent · 50 Comments

New world

The sky is always adapting and changing. Constant motion. Never staying the same.

I was thinking about how life moves on. How life sends you down roads that force changes to your world, to your lifestyle, to your way of thinking. But often you still have to go in that direction. It’s seemingly beyond our control. That is so stressful.

The question for me is whether this stress comes from trying to resist the inevitable or it comes from not adjusting to the new world!

I suspect that it’s a bit of both. Initially fighting being pushed down a life path but then eventually coming to the realisation that it is futile to fight this. What’s the line from The Avengers movie. I AM INEVITABLE….

Now I increasingly find myself saying IT IS WHAT IT IS. But then I have a tendency to then do nothing about the new world. Even when my old self clearly does not match the present anymore. That causes stress. It also risks just surviving and not living.

At least I now realise it’s time for a major rethink.

Posted on by bereavedandbeingasingleparent · 63 Comments

Short movies

“Dad can we switch this movie off. I’m feeling very uncomfortable with this.”

Son loves Marvel movies but for some reason he just can’t handle Spider-Man Homecoming. It’s just that one movie. The other Spider-Man movies he really enjoys. Certain movies just throw him. It starts off with him fidgeting then he is not able to look at the screen. Then he starts to pacing about. Finally he has to leave the room until it’s switched. Last night a few minutes later he was happily watching a Wolverine movie.

I remember the first film he did this with. We had gone to see Hotel Transylvania at the cinema. Within 15 minutes we had left. We ended up watching another movie and he enjoyed it.

So some movies just get to him. The last Joker movie is another we switched off quickly yet he loves all the other Batman films, even the much darker ones.

It’s so unpredictable. Just can’t anticipate these movie meltdowns. The problem movies don’t have a common theme. Last year a nondescript Disney Christmas movie set him off. At Easter the Pixar movie UP caused another meltdown. It’s not that they are scary. They are not more sensory than other ones. Not louder and not more violent. It’s not about death. We have never been able to pin the reason down.

But at least he knows that as soon as he gets the feeling that a movie is wrong then he can just switch it off. No questions will be asked and we will find another one to watch.

“Dad it’s like you and your football team. ”

He is so right. These days watching them play is deeply unsettling and often requires me to look the other way….

Posted on by bereavedandbeingasingleparent · 67 Comments

Slow cooker

Tis the season for cobwebs.

Grief and Loss is an odd thing. I can feel fine then something unexpected sends those emotional waves crashing over me again. Four years ago those waves would be constant. Permanent high tide. These days the waves have largely ebbed with only the occasional rip tide. Because these tides are so unexpected, they really take the breath away.

The other thing is that these days it’s often random things that set me off. Definitely not the usual stuff. Not the kind of thing that I can prepare for. Just like last night.

I was trying to find a packet of microwave rice from the kitchen cupboard. It had clearly fallen off the back of the shelf. As I rummaged I came across a box. An unopened Slow Cooker. My partner must have bought this. I have been using the one I got from my mum’s house when I cleared it out. I now held this unopened kitchen gadget and felt incredibly sad. Those waves started to crash over me.

My partner never got round to using this. She never will…..

Not an old photo. Not a favourite song. Not an old letter. A SLOW COOKER had set me off.

Posted on by bereavedandbeingasingleparent · 54 Comments

School

That’s as clear as it’s been so far today. The mist lifted for a few minutes but far too quickly returned.

In the UK the Government’s handling of the pandemic has been an absolute shambles and that’s putting it mildly. Sometimes following the science, sometimes following politics, sometimes it’s all about common sense, sometimes it’s about enforcing rules but then not applying those rules to themselves. Telling people a national lockdown would be an unnecessary madness then days later enforcing one. Banning many safe activities but allowing other much riskier things to continue. Dithering on things like masks, testing and social distancing. Culminating in telling the public to go out and mix as it’s our civic duty to get the economy going THEN weeks later blaming people for meeting up and causing the virus to spread again.

It’s just a complete mess. So how tough must it be for schools to operate in these circumstances. All major social gatherings are banned but schools are instructed to stay open. My beef here is not with headteachers but with those above them….

We received an email from our school yesterday trying to set out the current rules. To summarise

  • Even though the country has entered a national lockdown the School remains open but large numbers of pupils and staff are isolating. The school has a number of confirmed cases. Pupils and staff are struggling to get tests undertaken.
  • Pupils must attend school unless they have written confirmation from a Doctor that they are not medically cleared. Even if a pupil is clinically vulnerable they must attend unless a doctor has signed them off.
  • If the pupil lives in a household with someone who is clinically extremely vulnerable then the government line is that the pupil should still attend school.
  • If a pupil develops symptoms then the school recommends that the pupil isolates until a test is undertaken however this cannot be enforced due to Government rules.
  • If a pupil is legitimately unable to attend then they must use the online teaching systems. They must stick to school timetabling or punishments will be issued.
  • Masks should be worn on school buses, while walking in school corridors, visits to the toilet and while queuing for school meals. These will be enforced.
  • Masks can be worn outside school buildings and at times during classroom time but not when answering teacher questions or during group work. The wearing of masks in class cannot be enforced due to Government instructions.
  • Pupils are encouraged to observe 2m (6ft) social distancing outside of the classroom. Space does not permit that in classroom settings. The school is not currently allowed to install additional screening in the classrooms.
  • Pupils must not mix with pupils outside of their designated year group during the school day. That includes family members and close friends.
  • The school is still not permitted by the Government to make more general use of online tuition to free up space within the school.
  • During winter it will be necessary to keep many windows open for improved ventilation. Teachers have the discretion to allow pupils to wear coats if the classroom temperature drops. The wearing of hoodies or non school uniform is not permitted.
  • All out of school activities have had to be suspended due to Government instructions.
  • Due to the number of staff absences it is likely that a growing number of lessons will be taught by teachers who are not the normal class assigned one.

How stressful is this for children, staff and parents. Its such a mess which according to the Government is a bastion of best practice. We are told schools are perfectly safe, feature the highest standards of care and that it’s a parents civic duty to send their children into school……..

OK so here we start another week of homeschooling.