Posted on by bereavedandbeingasingleparent · 138 Comments

I am not a widow

Bereavement is one of the most intense and horrible experiences a person will ever go through. It’s sharp prickles and thorns grab hold of you. It scars you. So how can you ever forget it’s happened.

I had stopped off at the local store for food for tonight. Son is easy – just look for any food that starts with an S and ends with ausages…. Then fill the plate with tomatoes, carrots and bell peppers. I will look longingly at the cakes then eventually go for soup. Oh look they have some giant jacket potatoes I can get them for my partner. Where’s the cheese to go with them. No prizes for spotting the deliberate mistake.

It wasn’t until I was focusing on finding a mild cheddar that the brain finally kicked into gear. Oh bugger. For a few glorious seconds I was not bereaved. Not a widow. Then that sinking feeling. That awful feeling in my tummy. Completely disoriented trying to process two completely different places which are three years apart within a few seconds. Maybe this is what Time Travel will feel like.

Not a widow.

According to the UK Government I’m actually not a widow. Officially you can only be a widow if you are married in a manner recognised by our beloved rulers. We were a couple for 20 years. Now approaching 23 years…. The plan was always to get married but we had plenty of time to sort that out. Then we became a family. Then Aspergers entered our life’s. Again marriage was put on the back burner as we had something far more important to focus on. Then time ran out.

So since we were not married I’m not supposed to call myself a widow. The Government is not stupid. It’s a money thing. Death benefits are aimed at easing some of the initial financial pressures which will hit when a partner dies. These benefits need to be restricted so we have a very selective definition. If you are not defined as being officially married then it’s zero help for you. Your not a widow. It’s not the denial of benefits which annoys me it’s that somehow that unmarried bereavement is officially seen as less important. Not an issue. I remember talking to a man whose male partner had died. For years they were unable to get married because of the law. That has now changed. The irony was that it was done by a Conservative PM who needed help from the opposition as many of his own party voted against the change. Five of the current Government voted against same sex marriage. This wonderful couple never got married after the law changed in 2013. The man said

“All I wanted to do was call myself a widow and get on with grieving. But according to the Government I am not a widow.“

We agreed an appropriate response. Bugger off. We don’t care what others may think because in our eyes we are widows.

So I may briefly forget that all this bad stuff has happened. But sadly it has. So yesterday, today, tomorrow and going forward I AM A WIDOW. Interestingly my spell checker is desperate to change widow to window. So to keep it happy I AM A WINDOW. Now that opens up a whole new philosophical blog and probably makes a great Prog Rock Album Title. On that thought it’s time to draw the blinds down and go to bed.

I know that I will miss her tonight.

Posted on by bereavedandbeingasingleparent · 83 Comments

The Poorly Car Run

There is a run I do all too frequently. It’s a lovely run. It’s particularly lovely as it’s flat. But it’s a few miles away from my usual haunts. The run starts and ends at the garage. You see it’s a run which happens when my car is poorly. Today it was the tyres. So off the car went to the garage. So off I went on my Poorly Car Run. Nothing was than sitting in a garage waiting area reading about cars I can’t afford.

The run closely follows one of our larger and most beautiful rivers. The Ouse. As it’s a river that regularly floods you can see the river depth marker. Today it is quite high but thankfully below flooding levels. It did flood a few weeks ago and in the woods you can see the remnants of those high waters.

If I wasn’t about to be hammered financially by the Garage this run would be a truly stunning experience.

The run crosses the flood plains. Today it’s dry but when it floods here can be under 3ft of water. Cold Dark Yorkshire water.

It’s sad that it takes a Poorly Car to bring me here.

So the car has been returned. Monopoly money has been handed over to the Garage. It was a shorts run so my legs got well and truly muddy. Can’t imagine what a dry run feels like. So it was back to work but this muppet had forgotten a change of clothing. Work, autumn, shorts and dirty legs is not a great combo. Luckily it was a solo office stint today.

Few hours later it’s back to the latest school soap story. Another subject test sat without any reading help, no reading pen and no additional time. Even the questions are worded in such a way to make it harder for kids with Aspergers. Set up to fail. Set up to justify the schools assessment of low attainment. I really need another run to release the anger. Anger at the School. Anger at the Council. Anger at me. Anger at the Government. Above all anger at those who will flock in their millions to vote for this Government. A Government for the few.

Maybe tomorrow I will return to the Poorly Car Run. But hopefully it will be the ‘Nothing to do with the car, here out of choice to heal my soul Run’.

Posted on by bereavedandbeingasingleparent · 80 Comments

Thirty Minutes

About a month a go I visited the Moorlands Nature Reserve. It’s a small but ever so beautiful piece of nature on the edge of the city. After years of driving past it and thinking ‘must go there’ – I finally found the time. Really pleased I made myself stop the car and go for it.

Well another work visit to the City. Work completed sooner than expected. So a spare 30 minutes before I head for the school run. No better use of that time than another walk round the Reserve.

The colours have so changed in just one month.

Countless studies have shown the positive impact nature can have on a persons wellbeing and stress levels. I’m no statistician but I confirm that even just 30 minutes is just so uplifting.

I just love the beautiful carvings which are dotted around the reserve. The old 14th century acorn quote is brilliant. We can make a difference. Seemingly small and modest things can grow into something impressive given time and patience.

I really need to make a date to come and look at that quote every single month. Yes seemingly small changes in my lifestyle can have a significant impact. The garden can be made into our own little nature reserve. I can make a difference. Son can achieve his dreams. I can do this. He can do this. We can do this.

Posted on by bereavedandbeingasingleparent · 91 Comments

When diplomacy fails.

A largely stress free week for our son. It’s strange how these always coincide with times away from school. How can we have got education so badly wrong for so many kids. So many great teachers yet so many unhappy and unfulfilled children.

Our son likes lists. It reflects how is mind works. They are honest, raw and unfiltered.

Dad I have a top ten list of what I am looking forward to and not looking forward to with this school term

  • Being treated like I’m not allowed to understand stuff. I’m low attainment so I am supposed to act like it. Kids who get lower marks than me, who don’t answer as many questions are in classes above me.
  • Having to put my hand up for help. I have an invisible disability which school doesn’t want to see. So I don’t get any help. No help at all.
  • Never getting a chance to shine.
  • Having to do tests which are made to make me fail.
  • Completely pointless homework. It’s just testing your handwriting.
  • Too much noise. Too many people.
  • Being in a class with so many kids who don’t want to be there so they are naughty. Because I’m in the bottom class I’m supposed to be naughty.
  • Having to wear a uniform which is so uncomfortable and feels awful.
  • It’s never fun. Just rules and avoiding being given negatives.
  • At least it’s not an 8, 9 or 10 week school term.

So in a few hours it starts again. I will repeatedly bang my head on an unmoving brick wall as school and the local council won’t shift. They make me sound like that annoying parent who just will not see the clear logic of the situation. How dare I question the system.

All I can do is keep being there for our son. But maybe there is something else. Let’s really be that annoying pushy parent. Clearly working WITH school and the authorities doesn’t work. What has it produced. A kid stuck in bottom class getting absolutely no extra help at all.

Autism – nothing

Dyspraxia – nothing

Even the little bit of help he received with Dyslexia has been removed

Diplomacy has failed. Working with the authorities has failed. Maybe it’s time to fight them.

Posted on by bereavedandbeingasingleparent · 64 Comments

Waterfall

Although England does do an awful lot of water it’s not blessed with that many truly epic waterfalls. But we do have the occasional spectacular one.

High Force in Teasdale.

The Falls are about an hours drive from us. We haven’t been since our world changed. We had planned to go there as part of our school holiday road trip. But as I was packing up the picnic

Dad I’m not sure I’m ready to go there yet.

I can so understand. It had suddenly dawned on our son the importance of the memory associated with High Force. It was 2016. The three of us spent a lovely hour walking around the waterfall then we ended up in the local pub for lunch. Son had sausages and chips. We had soup and fresh bread. Finished off with some highly calorific sweet. It was the last time we went out for a meal as a family.

This had completely slipped my mind. Not the forensic mind of number one son.

“It’s a long drive son.”

It’s a very long drive, probably bad for the environment.

“Its raining and very grey. Probably going to be cold.”

It’s very wet Dad.

“What do you fancy doing then.”

How about having the picnic in front of the television while watching the new Scooby Doo movie.

“That sounds a cracking plan Son.”

So we enjoyed sandwiches, crisps, fruit and cakes watching Return to Zombie Island. Yes a change of plan. But the right change of plan. We will visit High Force one day. But not this wet Friday.

Posted on by bereavedandbeingasingleparent · 64 Comments

Million miles

Always two sides to every story..

Dad it’s been nice. On our walks we haven’t seen anyone. No one has been to our door all week. The phone hasn’t rung at all. Your mobile has not rung. Even when we went to the little local shop it was empty.

In the quiet moments of this week I had been fretting over the isolation. The increasing physical loneliness. Failing to adapt to the new world forced on me by bereavement. Yet one persons silent hell is another persons dream land. And when that person is our son then that is all that matters. The single most important thing. He is happiest when he distances himself from this strange alien world. So be it then

So I need to adjust to this new reality. So many others have had to. The wonderful comments I’ve received over the last few days have demonstrated this. It’s also demonstrated the indomitable human spirit. You can do this. I can do this. WE CAN DO THIS.

Friends. Good Friends. Close Friends. They are to be cherished and loved whether they are stood in front of you or if they are sat in front of a screen seemingly a million miles away across an ocean. Thank you for being there.

Let’s leave it with the fine words of Henry Rollins.

Loneliness adds beauty to life. It puts a special burn on sunsets and makes night air smell better

Posted on by bereavedandbeingasingleparent · 65 Comments

Come on it’s Friday

So like the weather we crash into the weekend. This photo was taken minutes before the heavy rain rushed in. It’s time to batten down the hatches for 24 hours.

For 10 brief minutes a delightful dry run in sublime autumnal colours. What followed was a long and protracted slog through a mud bath and driving rain. One step forward and two back. Seriously doubting if I could make the climbs which had been done countless times before. Soul destroying. No fun anymore just hard labour. Frigid isolation in this hostile environment. Doubting my sanity. What am I doing here.

It’s been a perfect microcosm of this week.

A week which has rapidly gone downhill. A long hard slog giving my soul a good kicking. Leaving my mojo and my confidence in tatters. Almost complete social isolation. Never ending pain from dental work. Failure to find solutions to home, school and work problems. Error strewn days. The house is filled with echoes of the past. Even blogging has been harder than usual. The words seem to be failing me. Three draft posts on Aspergers and one on Dyslexia deleted. Just not good enough. Not sure I trust myself enough to venture there. But then life interrupts my meltdown.

We have crashed into Friday. It’s also the start of the half term week holidays. It’s Halloween week. Remember the number one priority. The only one that matters in the end.

Give son the best childhood possible.

So it’s time to put my game face on. Work can wait until son has gone to bed. Halloween gives endless scope for creative fun. My problems will be pushed into the background by boundless youthful energy released by the school gates closing. I’m sure they will be back but just not this week. That’s not allowed.

Only one possible song to leave you with. Mr Alice Cooper and Schools Out.

Schools Out – Live

Posted on by bereavedandbeingasingleparent · 99 Comments

Fear

Sometimes the path leads to the light. The direction is clear. Other times the path takes you unerringly into darkness and uncertainty. Into fear.

Over the last few days my spirit and my mojo has dropped alarmingly. Today life is a struggle. I’m tired. I’m making too many mistakes. The smile is a little too forced. Confidence is a rare commodity. I feel old and worn out. The direction seems uncertain. Even the written word seems increasingly wooden. A few paths maybe have run their course. Maybe too many paths are now just covering old ground. Life focuses on don’ts rather than do’s. Where abstinence from the likes of caffeine moves from health enabling to puritanical punishment. Life doesn’t flow it requires back breaking effort.

It’s times like this that LOSS hits home the hardest. You realise what has been lost. That reassuring presence is just not there. The rooms seem empty and echo with sad thoughts. Isolation is all consuming. My bones feel fear. Yes fear.

“No one ever told me that grief felt so like fear” – C.S.Lewis

The track in the photograph – eventually it bends to the left and takes you out of the eerie dark. On the other side of the hill the track opens out and runs through a beautiful little moor. Just need to have the courage to keep on going.

So tonight let’s just get through what’s left of this lifeless day. Then in the morning – reset and go again. Find that path. Maybe it’s a new path with old ones closed down. Have the courage to continue down it.

Posted on by bereavedandbeingasingleparent · 54 Comments

ADHD and Aspergers

Beckies Mental Mess this week has been doing a great job of raising awareness about (ADHD) Attention Deficit Hyperactive Disorder. I’ve just read Rory’s words which explain so well what it’s like to live with ADHD.

From here in this quiet part of Yorkshire ADHD is very much part of our life. It’s now officially part of our sons diagnosis. But it feels very much like a junior version. During the long and ever so frustrating diagnostic process which he went through ADHD was an after thought. It was missed. Never mentioned. Everything was lumped into Aspergers and Dyspraxia.

Then our Paediatrician changed. In his first meeting with our Son he genuinely seemed surprised that he could find no mention of ADHD on the records. A few weeks later it was added to the diagnosis. Why was it missed?

We where made aware that Aspergers in most cases goes hand in hand with other conditions. Everything seems to merge together to give a unique set of symptoms and personality traits. It is often difficult to unpick the individual conditions. Generally Aspergers and Autism are just used as overriding terms to cover a wide and complex set of interrelated issues. In our sons case ADHD was just missed. A specialist went through the original symptoms list. Of the 16 original listed symptoms which were defined as Aspergers related 7 were later changed to ADHD.

As soon as ADHD was on the medical record we were offered medication. Interestingly although our Sons the symptoms had not changed at all suddenly the addition of four letters prompted the option of drugs. We declined. Or should I say Son declined. In his words

ADHD hasn’t changed me. I’m still the same person with Aspergers. It’s just who I am.

Since we declined medication ADHD has never been specifically mentioned again by our Doctors. They have continued to offer behavioural therapy to try and ease the young Aspergers kid into this strange old world. Due to Government cut backs the therapy is becoming increasingly sporadic. Once someone gets past a certain age the health support basically dries up. But at least something happened. From an Education point of view basically no school interventions have occurred. No assessment of educational impact has been carried out. It’s the standard education package for all regardless of any specific needs. It’s so much easier to bracket individual kids as low attainment.

This is the shocking fact in education today. Certainly here in England. Specific educational help to those with a learning disability – some prefer to call it a learning disadvantage – is denied to too many kids in our society. Effectively they are seen as an expensive drain on resources. So much easier to write them off. How do we explain that to our kids. How as a society have we got education so wrong. We need to keep shouting as one day those in charge will listen.

Posted on by bereavedandbeingasingleparent · 51 Comments

Red Sky in the morning….

Red Sky at night …. fisherman’s delight. Red Sky in the morning …. fisherman’s warning.

Yes it works.

A routine dental appointment ended with me trying to stem blood from the mouth for 4 hours. That’s a good start. Especially as I’m one of those odd souls who is fine with blood as long as it’s not mine….

Then school struck again….

Son had been looking forward to getting his school award from the celebration evening. That’s all changed now.

I don’t want to go. I REALLY don’t want to go. Turns out it’s not a party after all. Everyone getting an award has to go on stage and then give a little speech to the crowd. Going to be at least 100 parents sat in the audience. We have to practice the speech tomorrow. When I told the teacher about my Aspergers she said ‘it would be good for me'”

So we have gone from a boost to self confidence to meltdown. Doesn’t help when the kids have been told that they are representing the school so they need to be in full uniform and speak with a loud clear voice. Speaking to a large audience is a challenge for anyone. For a kid with Aspergers it’s a nightmare. Room full of strangers, no where to hide, all those eyes on you. One final twist is that the kids can take notes on stage to read from – well that’s bloody helpful when your dyslexic. It’s just not right. AGAIN.

So we have agreed that son will ask if he can get his award without going to the event. If he has to go then he is going to decline the award. If that’s the case then I’m sure a Dad , Son, Cat, Dog and Gerbils can come up with our own FUN awards night. The magic word being FUN.