Posted on by bereavedandbeingasingleparent · 86 Comments

Bit battered

Poor thing has been a bit battered in the recent bad weather. Well I still think it deserves a moment to shine.

I was having a chat with our son last night about how life has changed recently. It’s only really now that some of the implications are starting to feed through. I will only focus on one small part of the conversation as this post could have ended up as long as the extended Directors Cut version of War and Peace.

Son struggles with social settings. It’s a well established element of Aspergers. He will actively pull away from crowds and groups. One of the only exceptions to that has been Rock Concerts. He still feels uncomfortable there but for a variety of reasons he can cope. He can put his hood over his head and no one will notice. He likes the fact that rock crowds seem very welcoming of any person, any look, any characteristic. With the noise no one is likely to talk to him. When the lights go out, no one can see him. You are just one hidden person in a sea of people. Plus he really loves the music.

So far he has seen Iron Maiden, Hollywood Vampires (with Johnny Depp), Alice Cooper, Kiss, Lynyrd Skynyrd, Thunder, Shinedown, Status Quo, The Darkness, The Damned, The Stranglers and Status Quo. He’s also seen his favourite band – Alter Bridge.

Before the pandemic kicked in he was hoping to see more. The likes of Whitesnake, Foreigner, Europe, Ozzy, Aerosmith and The Who. But the pandemic changed the world. Most of these have been postponed or cancelled.

When concerts restart what will they look like. Will the days of standing shoulder to shoulder return. Will people have to wear masks. What number of fans will be allowed in. How close will you be able to get to the band. Will you need to be vaccinated before you attend. Will certain fans be excluded (age, health factors). Will all the fans want to return. Will it just be open air concerts. Will it be the new idea of drive in concerts. Will some bands just give up. Who knows.

The pandemic also changed son’s life. It has sent his social and health fears into overdrive. Changed the balance and how he sees the world. Things which were acceptable have been tipped into the no go area. Those changes might be temporary or they could be permanent. Only time will tell. But certainly his concert days are at best on long term hold. That’s the thing about Aspergers, changes in external factors can have a huge internal impact. Lasting impacts.

Regardless of any more virus related developments, I just can’t see son wanting to go to a concert this year, probably next as well. Maybe that fragile corridor that allowed him to venture into a concert crowd has been broken on a much more permanent basis. We just have to wait and see. Maybe going forward our own music festivals are the way forward. Buy a concert dvd and hold the event in our living room or garden. We can still put the T-shirts on, have the snacks, drinks and a burger. We can even turn the lights out and crank up the speakers. Best thing – no masks required. No queues for toilets as well….

That doesn’t help the concert industry. I just hope they and the bands find a way through this mess.

So maybe that’s no concerts for Dad as well for sometime. But it is what it is. I’ve been so lucky to see so much music over the years. So as I move into a barren concert period let’s pause and see what my memory is like. Lets see how many of the artists I have seen over the years, I can actually remember. The good, the bad and the ugly. I’ve set myself 10 minutes (so I might miss a few). Here goes….

Whitesnake x4, Motörhead, Deep Purple x3, Black Sabbath, Ozzy, Dio, Rory Gallagher, Tin Machine (David Bowie), Scorpions, UFO, Meatloaf x3, Blackfoot, Mountain, Alaska, Saxon, Magnum, The Firm, Eric Clapton, Tom Jones, Ronan Keating (x2) my partner to blame for that…. Blue Oyster Cult, Alice Cooper x3, Gary Moore, Deacon Blue, The Kinks, Kirsty MacColl, Pink Floyd, Nils Lofgren, Killswitch Engage, Birdland, Bernie Torme, Roy Harper, Suzy Quatro, Paul Rodgers, Chris Rea, Marillion, Runrig, Asia, Al Stewart, Neil Young, Peter Gabriel, Tracy Chapman, Terence Trent D’arby, Simple Minds, Lou Reed, Bonnie Riatt, Chrissie Hynde, Jackson Brown, Little Steven, Bryan Adams, Squeeze, Tina Turner, Extreme, Was Not Was, Lyle Lovett, plus those with son.

Ten minutes up….

Posted on by bereavedandbeingasingleparent · 84 Comments

Angry clouds

It’s just been days of angry weather.

When I see this type of stormy clouds I remember back to my childhood. As you got older you started to realise that in our seaside town the weather would always seem to come from over the hills and follow the river to the sea. For us that would mean the weather would first appear to the north west. That was in the direction of one of our neighbours gardens. So the following weather expression was frequently heard from my parents.

It’s luking black ower Mr Homans Potting Shed, aye get thy washing in.

When means you have just a few minutes more footy before your summoned in as the heavens have opened. If the weather ever came from over Eddie Cook’s Pigeon Loft then it was time to get the paddling pool out.

Strangely parenting forecasting from the 70s was far more accurate that the current UK Meteorological Service best guesses. Currently the weather scientists are telling us that we have light cloud and less than a 10% chance of light rain. Well tell that to the paving stones which are currently being jet washed in the nonstop monsoon.

So let’s ditch the UK’s dodgy weather science and go old school. So here are a few other old weather laws that were passed down to me.

  • Red sky at night fisherman’s delight, red sky in the morning fisherman’s warning,
  • Mackerel Clouds in the sky then the weather is going to change,
  • The Sun or Moon saying hello means that rain is on the way (saying hello means having a halo around it),
  • The greener the Rhubard leaves the worse the weather will be,
  • Wet seaweed means rain is coming (I never bought into this one as surely that just means the tide has been in recently),
  • Rain at lunch will be gone by tea (basically saying the UK weather is changeable),
  • When rain is coming the spiders will disappear,
  • Rainbows before lunch tells us that rain will be here all day,
  • Cows sit down when rain is due (must admit this is clearly true as I was watching an episode of Ben & Holly where the wise old elf foolishly took shelter under a cow when it started to rain),
  • When smoke rises the weather will be good. When it fails to rise them bad weather is due,
  • Expect a bad winter if the hedgerows produce loads of berries,
  • If you want a dry day best to have dew on the grass in the morning.

One last weather law. I had a friend whose dad was a complete nutter. So funny. I remember him telling me once about his rabbit. He explained that his rabbit would only eat carrots when it was raining. I asked what it had to eat when it was sunny and he told me with a smile – I don’t know, will tell you when we get the sun, patience lad I’ve only had the rabbit 3 years.…

So that’s me out of weather law. Can anyone add to my knowledge?

Looking at this photo I think I can confidently predict no need for sun protection….

Posted on by bereavedandbeingasingleparent · 65 Comments

IT

Weather and more weather. Looks like an incoming horror storm.

Son was trying to understand why Stephen Kings ‘IT’ Book was not a great choice for a school book. I suspect it will be making an appearance on the school system as soon as I turn my back.

“Dad do you remember that time I got you told you off not the teacher.”

How could I forget it.

“It was very funny.”

******

I think that he was about 7 and in class his teacher asked what things the kids watched on TV. Most of the kids mentioned things like football, Peppa Pig, Dora the Explorer, Spongebob and Finding Nemo. That was until it came to a certain boy

“My Dad lets me watch Dracula, Frankenstein, Ghost and Zombie movies…”

Understandably Teacher was not impressed. So I was asked to see the teacher after school. I was suitably nonplused until the penny dropped. Yes that is true but son failed to mention the fact that these were all with Scooby Doo….

Posted on by bereavedandbeingasingleparent · 69 Comments

5

This was the arrival of the next storm wave. It’s a bit lively.

So as we wait for the weather to pass then it’s time for another new game. A game of 5. Your given a subject and have 5 seconds to come up with an answer. I don’t know is not allowed. 5 seconds is not a lot of time. The time pressure leads to some interesting answers.

“Ok Dad, you are to be stranded on a remote island. What 5 foods would you want to have with you?”

Ice Cream, Crisps, Chocolate, Pizza and erm Jam….

“Ok Dad your putting together a wild party which 5 famous people would you invite?”

Keith Moon, Jim Morrison, Ozzy, Lemmy and, and erm Skipper from Madagascar Penguins.

“Ok Dad your having a zoom call with famous people who are going to spend an hour remote learning you. Who are the 5 teachers?”

Carl Sagan, David Attenborough, Leonardo da Vinci, erm Tom Hanks and Judi Dench.

“5 foods you would love to eat starting with the letter T?”

Turnip (hate them), Tomato Soup, Toast, erm Tin something and Toad….

“5 favourite King and Queens?”

Queen Victoria, Queen Elizabeth, Henry V, erm BB King and King Julian (Madagascar Penguins)

“Dad name 5 types of sandwiches?”

Easy Cheese, Jam, Sausage… oh erm bread and erm tea. Here’s a question is a slice of bread sandwiched between two other slices of bread a bread sandwich or just 3 slices of bread. I certainly won’t be trying a tea sandwich…..

“In 5 seconds Name 5 really big things?”

Mount Everest, Trumps ego, my bottom, 15 inch pizza and a camel..

“In 5 seconds name 5 US Presidents?”

Obama, Kennedy, Clinton, Hoover and erm Whitmore… Yes I know he’s from Independence Day but I panicked….

And the storm has passed, so it’s time to go outside and summon up our inner Peppa Pig. Time to jump in some muddy puddles.

Posted on by bereavedandbeingasingleparent · 63 Comments

And more school at home

The weather has definitely changed but the school at home project chugs along. It will do until the end of the third week in July. After that the so called government is telling parents to send their kids back to school in September with minimal additional safeguard, as it is completely safe. Let’s see how many kids do return….

That’s a thought for another day. Back to the present lets see what I’ve learnt from this weeks school at home project. Remember it’s not true Homeschooling, it’s schools version. They are two completely different approaches.

  • Trying to teach basic cricket skills is no fun during torrential rain and a thunderstorm. Unfortunately the house does not feature an indoor sports hall facility.
  • Clearly the Games Teacher and a certain Dad disagree on what constitutes a good bowling action in cricket. The game must have changed since I was a kid.
  • Old school French to English dictionaries have so many pages yet they don’t seem to have the exact word or phrase you need.
  • School repeatedly sending an email out to pupils with the title ‘Important information about Careers, please read‘ will mean that the email is never opened.
  • Another week and another Food Technology lesson focusing just on puff pastry. As son says “I don’t even like the stuff so I’m never going to eat it. This is a waste of time…”.
  • The school has a really good online teaching infrastructure. Probably as good as any UK school. So it’s so frustrating that with a few teachers we still have to print out a copy of a sheet. Son fills it out by hand and then has to take a photograph to send it back in. What a waste of paper.
  • Getting no feedback on a piece of work does not really help.
  • Drama is such a great lesson when the kids get to watch a ‘live’ theatre production on the iPad. Even his Dad sat and watched Treasure Island.
  • The Dead Sea is sinking at 1m per year. That’s quicker than my football team.
  • Why do all the felt tip pens instantly turn dry and useless as soon as the words ‘for art today you will need coloured felt tip pens’ are mentioned.
  • What is the fascination of doing word searches as a teaching tool. I am trying to work out how finding a word in a sea of letters will help embed concepts and theories into a young mind. Especially a mind which sees words through dyslexic eyes….
  • Without caffeine trying to undertake long division is impossible. So the following words sent shivers down my spine. ‘Dad can you check this sum, it’s 13422 divided by 317′. Really…..
  • I have a policy of not trying to interfere in son’s work but even I have a limit. My limit is where his Form Tutor asks the kids to do 20 minutes quiet reading then take a photo of the book. Sons choice of book – Stephen King’s IT. Just NO, how about a Roald Dahl book.…..
  • Why do school keep asking a kid with dyslexia to read books without additional checks and help…
  • Fukalite is a chemical compound.
  • The school iPad can survive having a full glass of orange juice spilled over it.
  • Apparently Continent’s move at the same rate as your finger nails grow… This is still quicker than how fast my hair grows back.
  • When your son is not wearing his dark blue school blazer it would be smart to put it away neatly in the wardrobe. Leaving it on the back of a chair for 3 months and in front of a south facing window is not such a smart idea. One side has definitely faded in the sunlight. Deep joy.

So that’s it for another school at home week. We can definitely do this.

Posted on by bereavedandbeingasingleparent · 112 Comments

A trip many moons ago

I stumbled across a few old photos. From a time before parenting. Even before my first ever digital camera… A time when my body was still young and I could run up mountains. A time when the wind would still blow my thick long black hair across my face.

A trip to the West Side of Northern England. To the Lake District and to one of Englands most famous mountains. The Old Man of Coniston. It’s not a huge mountain standing at just over 2600ft. But it’s steeped in history. It’s positioned next to the beautiful Coniston Water. The walk to the top takes you through old copper mine workings. Alongside a couple of stunning little tarns. Then finally onto a summit with sweeping views.

Hopefully one day I will return to the summit. A summit climb with considerably less hair. Which will take much longer this time and feature many sandwich stops..

Posted on by bereavedandbeingasingleparent · 55 Comments

Just better

Yes an excuse to sneak in a Switzerland photo when it’s not Sunday. A country which just does things better than here in England. When the Swiss organise a bird lineup it is always going to beat ours.

I was racking my brain to think of stuff my country can do better than Switzerland. It’s not an extensive list so far,

  • Queues,
  • Road pot holes,
  • Darts,
  • Football hooligans,
  • Classic Rock,
  • Rust,
  • Stuff being late,
  • Crap customer care,
  • Cheaper basic drugs like cold remedies,
  • The NHS, a big plus……
  • Charlatans like Boris Johnson,
  • Litter,
  • Royal Family (depends if your a republican or not)
  • Nigel Farage,
  • Katie Hopkins,
  • Fox hunting,
  • Badger culls,
  • Over fishing,
  • Child poverty,
  • Mental Health Crisis,
  • Care Home Crisis,
  • A shocking pandemic death total,
  • A Government proud of killing so many people,
  • Becoming insular and xenophobic,
  • Key service cuts,
  • Large school class sizes,
  • Navies,
  • Seaweed,
  • Inability to speak a second language,
  • Shouting and swearing,
  • Cricket,
  • Morris Dancing,
  • Fish and chips,
  • Potato Crisps,
  • Rhubard,
  • And raspberries.

Will stop now as the longer this list gets the more depressed I get at the thought of living in England. Yes we have some things we can be rightly proud of but the list of not so good stuff is rapidly expanding. Bring on my weekly Swiss Sunday…..

Posted on by bereavedandbeingasingleparent · 99 Comments

Not had a rant for days…..

I came outside to look at the roses. And breathe..

The UK Government has a natural ability to take the breathe away. What are the words I am looking for

Self-serving

Incompetence

Charlatan

Criminally negligent

Fraud

Part timers

Out of their depth

Nest of vipers

Dangerous

Liars

Elitist

One rule for the many, doesn’t apply to them

When you think it can’t get any worse and then they take it a new level……

So on the 4th July Britain is open for business again. Something we all can sign up to if it’s done properly and safely. But this is Boris Johnson we are talking about. The laziest and most inept Prime Minister in over 150 years. So here are just a few nuggets of his so called plan

  • The governments own scientists have warned against easing restrictions too soon. If we do the safe way is to do that carefully and in small stages. The PM has said oh tish to that. British wartime spirit apparently is all we need to follow. It clearly does help a leaders senses when he has rich backers and views the world through the bottom of an empty champagne glass….
  • For months we have been told that masks are a waste of time and that we should be keeping at least 2 metres apart. Suddenly 1m is cool as long as your wear those marvellous masks (but only if you really want to).
  • Since March we have been told that the key to beating this virus is the Tracking and Tracing App. Rather than go with the Google and Apple one we decided to give a contract to friends of the Government. This world class app was promised to go live in April, then May, then June. Then suddenly it’s dropped because it didn’t work (not the Government’s fault of course, it was all down to those pesky people at Apple). Now it won’t be ready until the winter but it’s ok as it was never a priority – everyone must have repeatedly misheard the PM and the Health Secretary …..
  • This scene according to the PM is perfectly safe, carries no pandemic risk and so can happen freely (this was our nearest beach yesterday) …..
  • However this scene is not allowed, carries huge pandemic risks and deemed unsafe….
  • People are not allowed to attend live theatre due to the risks yet our PM is delighted to allow pubs to open. The PM clearly trusts Joe Bloggs and his drunken mates to act responsibly and stay 1m apart at all times (wearing a mask) after 10 pints of strong lager.

But no they haven’t finished yet. Apparently schools will reopen fully in September. The plan is to ditch all social distancing rules for children. All we need to do is to tell the kids not to sneeze on others. Squeeze them back into cramped classrooms and act as if nothing has changed. Just in case each class should try not to spend too much time with other classes. Really. It’s ok for the Government as they send their kids to private schools where class sizes are less than 15, here social distancing can still happen. But not for the state schools with class sizes of over 30. In fact the PM has dropped rules so that the class sizes can go much higher than 30. If teachers become sick then you can just have supersized classes.

Well they can just sod off. They are no Government of mine. Time to bunker down.

So back to the roses and breathe.

Posted on by bereavedandbeingasingleparent · 67 Comments

Wembley

The Yorkshire version of Wembley Stadium. Can you spot the pet trying to once again sneak into the photo.

Even comes with a discerning crowd.

If Aspergers Parenting was a football game, well today feels like we have had a key player sent off….

I always naively assumed that if and when son got an official diagnosis then a support package would be out in place to help with his life chances. How silly of me. I didn’t count on year after year, having to fight the system. Trying to prize just the hints of support from a system which has been hammered into the ground by a Government which only looks after itself and it’s friends. To summarise

  • A school system repeatedly fails kids who do not fit into the factory production line which is the UK school system. Two options, either fight for a place in one of the few special schools or accept your child being bracketed as ‘low attainment’ and consigned to the bottom set. The school will then forget about the child and then pat itself on the back if the child gets just one certificate.
  • Letter after letter, call after call trying to find a clinician who is prepared to look at your child’s case.
  • Passed from specialist to specialist who don’t have the time or resources to add your child onto their case load.
  • Service after service cut by a Government which believes that only the rich should be able to buy access to essential healthcare. A Government that sees Mental Health as no more than an excuse to avoid work. Let’s not forget they described a child taking time off from school after a bereavement as an extended holiday.
  • When you do finally get access to a service you then join the growing waiting list. Finally when your child is seen it’s virtually always by someone new, with no understanding of the back story.
  • Finally your child starts to get older and the few services he has had access to are withdrawn as he is now above the age threshold. You see the Government likes to think that after 13, services are pointless and far too expensive. Adults have to sort themselves out.

We have had three brilliant exceptions to this.

  • A Clinical Psychologist who worked with out son consistently for three years. She even delayed her retirement to ensure son’s diagnosis was officially approved.
  • An Occupational Therapy service that worked with him every few months to help with things like coordination. A service which was cut when he reached 13.
  • A wonderful Nurse Counsellor who worked with our son for 3 years helping with his anxieties and joining the fight for additional help.

We entered June 2020 with just the Nurse Counsellor left from his entire care package. And now the player is sent off.

The Nurse phoned today to let us know that she had been reassigned. She is great and some other kids are really going to really benefit from her time. We are eternally grateful for everything she has done. She is going to desperately try to find another clinician to take over from her. I know she will really try. We may get a replacement. The Nurse was the only clinician he really has connected with. Those connections are rare for him. Making a new connection is going to be tough and most certainly not guaranteed. As the Nurse said it feels like we have lost the progress made over the last few years.

Today feels like one of those tough parenting days. As a friend wrote recently we pick ourselves up, dust ourselves down and start again. We most certainly do. But it feels like it’s a much depleted team taking on the struggle. Forgive me I’ve not used a Lord of the Rings metaphor for a while. It feels like the heavens have opened. The hordes are massed outside the walls and I’m stood alone on the Battlements of Helms Deep. Just me protecting our son now. Doesn’t feel like Gandalf is riding over the horizon in the morning. I’m going to have to just find a way of doing this myself.

I’m off now to kick the ball into the net a few times. Maybe with a bit more force than usual. Then the fight starts again.

Posted on by bereavedandbeingasingleparent · 101 Comments

Fragmented

Good to see the local motorway is busy…. It’s still too busy for our son. I got special dispensation to step 10 yards out of the front gate to take this photo. Life on the edge.

It really does feel a bit like that at present. On one hand we have what apparently counts as our Government rapidly relaxing restrictions and on the other hand kids like our son….

His social and health phobias are in a pandemic fuelled maelstrom. Every few minutes he feels the need to wash his hands. To repeatedly rinse his mouth out. The fear of germs and hidden dangers becoming a real nightmare for him. He struggles to touch items like taps and handles. Even putting potentially unclean shoes on is a challenge these days. Deliveries have to go into garage quarantine for at least 4 days. Clothes need changing every few hours. And then another spanner in the works. The old house boiler completely failed. So a service call out is required. It’s now way beyond a temporary Dad patch up. That means an additional new threat to sons safe area. A house visitor! After much discussion we agreed a plan. The service engineer would come into the house only via the back door. The engineer must wear a mask at all times. I will keep 2m away from the engineer at all times. When the work is finished we will effectively lock down half of the house. We won’t venture into the areas the engineer visited for three days. Not ideal but it’s a plan. Son’s stress levels will rise but hopefully not too far. The damage to his safe area minimised.

Yet individuals like our son are expected to just re-enter the world by July 4th. The date our part time PM is declaring as the day he defeated the virus. The date he can heroically restart England. It’s perfectly fine to open overcrowded public schools in September. A few more hand sanitisers in the corridors and relaxing the rules further to allow for even larger class sizes to cope with increased teacher sickness is now the best way to deal with a pathogen. We are told ‘everything is now fine’ by the very leaders who have been proven to be wrong on virtually every single major decision they have made over the last 6 months. The very leaders who now widely seen as charlatans and pathological liars. People see this. Our son sees this. This just adds fuel to his anxieties. It’s making a bad situation even worse.

So when England reopens on the 4th July a small bungalow in Yorkshire will not. It stays on lockdown until son is able to face the world again. Who knows how long that will take. Much patience is required. We won’t be the only family facing this prospect. Again my country further fragments. I’m not entirely sure it’s ever really going to come back together again.