Plan X

The sun sets on another school week.

The school week almost ended prematurely this morning. To a child with Aspergers routine is the key. Outside the house at precisely 805am. Recheck the school bag contents. Go through the class timetable for the day. Reconfirm the after school plan. At 810am start listening for the bus to arrive. As soon as the bus is heard move towards the gate. As the bus passes confirm with our son where he plans to sit. As the bus does a u-turn son sets off for the bus stop.

This routine works well … most days.

Today as we left the house at 8.05. On plan. Bus is already at the bus stop. Oh s**t.

Suddenly we have a meltdown. The plan is out of the window. Poor kid doesn’t know what to do. After a couple of minutes he is frozen to the spot, in tears and unable to think. All I could think about was to reach for a scrap piece of paper in my pocket.

“Son this is Plan X, it’s our plan for this”

He looks at me and asks what does the plan say. Not sure son if I’m honest the scrap paper is my shopping list for the week.

“It says we start walking to the gate while I quickly check you bag and read out your class timetable. At the gate you tell me where you are going to sit. Then you walk calmly to the bus singing your favourite song”

We head towards the gate suddenly we are on plan or to be accurate on the shopping list. Suddenly he stops and he asks what does the plan say about what happens if the bus sets off before he gets to the bus stop.

Dad sits cross legged in the middle of the road and refuses to move. Thus stopping said bus.”

He smiles and says “you made that last bit up didn’t you.”

As the bus passes, he waves from the window and laughs. Silly Dad is sat crossed legged in the snow.

Maybe we need to think about our routines and schedules. Map out some of the things which might go wrong and plan some alternative plans. Not having to rely on a shopping list again would be nice. But at least we have Plan X now.

Walls Work

The snow has left little old Yorkshire. Still cold but no white stuff. At the edge of the garden the thaw has revealed the first signs of spring. At last some colour. Before this photo we had four flowers. Unfortunately a slightly excited dog obliterated one. So now a hastily erected wall of stones – eat your heart out Mr President – is protecting the remaining delicate buds. And as we are told walls do work.

Acronyms

I was sent a report to read this morning. I couldn’t work out what it meant when it said D.A. and FUWSM. When I phoned to ask, the report sender was really apologetic as they were local office acronyms. Apparently Diagnosis Awaited and Follow Up Within Six Months.

I went for a run today and a white van passed with B.O.N.G down the side. What could that mean. All I could think of was something to do with a Kangaroo.

This got me thinking about acronyms. We seem to get more of these pesky things everyday. I have come across a few I really like:

LMAO – Laughing My Arse Off. Someone much wiser than me introduced this to me. I really like this one. I might not like it so much if an employer said that after they read my job application.

TIFU – Today I Fudged Up. Maybe the F stands for something else, can’t think of anything currently.

TMI – Too Much Information. I fancy having that tattooed on my forehead.

NOYB – Non of Your Business. I fancy having that tattooed to my bottom.

LOL – Lots of Love. Thinking about it could also be Laugh Out Loud.

But some acronyms I either don’t get or I just think they sound odd. Some notable ones include:

FTW – For The Win. I once had a football coach who would continually shout ftw ftw ftw …. why couldn’t he just say win please.

ICYMI – In Case You Missed It. How on Earth are you supposed to remember that one. It’s only practical use is to employ someone with a big ICYMI sign and have the sign pointing at my tattooed rear.

TWAT – The War Against Terror. Controversial project and not an acronym you can use if your mum is in the room.

Acronyms do have had a habit of causing trouble. I once worked for an organisation which went through a merger process. The merger project team was called TRTHMG. I never found out what that stood for. My Finance Team had to be combined with the other organisations Budgeting Department. The TRTHMG decided on a new name for combined team. Unbelievably they came up with Transitional User Resource Department. So for 6 months I could walk round with T.U.R.D on my name badge.

Not sure why but I qualified as an accountant, maybe I craved excitement. Anyway I got to put CPFA after my name. Strangely this could stand for the Canadian Pigeon Fanciers Association. But for years I thought that my CV proudly displayed these letters after my name. Unfortunately I recently discover that my spell checker must have at some stage auto corrected it to CACA. No wonder I never got many job offers.

While we are on the subject of auto correction my last thought has to go to a time when I was doing some work for a Police Force. I sent a report to the four senior Police Officers in the area. I blame a faulty auto corrector as the report ended up being sent to the Arse Commanders.

LOL

Winter ?

I’m seeing so many photos from around the world of epic winter snow. Does this count – best it’s been this winter.

It’s strange that the weather can have such an effect on our moods. As soon as the snow started falling my morale fell. The House seemed very cold and unwelcoming. I thought about a trip to the coffee shop but I didn’t have the heart for that today. The outside world seemed less appealing. I needed to do something to stop the Darkness taking hold.

Maybe it was time to make another stew and see what CATastrophes it brings.

Thankfully like the snow, the dark mood didn’t last too long. A run in the snow cleared my mind. For some reason I decided to run in just a T-shirt. Maybe frost bite is the ultimate mood changer. Maybe it was the white van that passed me with the following abbreviation down the side. B.O.N.G.

What does that stand for. Anyway more of that later tonight..

Safety Net

Photo taken from the top of The Niesen.

I never really thought about my own mortality. Before I met my partner my attitude to risk was “it will be alright and if something happens to me I’m not too great a loss to society”. After we became a family I started to become more responsible but I still had a reasonable risk threshold. If something happened to me our son would still have his mum and his granny.

This all changed when I lost my mum and then partner within 6 weeks of each other.

The first few days after my partner left us are still a blur. But I remember one incident like it was yesterday. It was my son’s first day back at school and I was driving to register the death. Suddenly a sports car pulled out in front of me. A suicidal overtaking manoeuvre. Luckily I saw him and managed to swerve onto the grass verge and miss him – just. At that speed it would probably have been game over. All I could think about was our Son. One second slower reaction time and he would have been parentless. The whole incident shocked me. Suddenly there was no backstop for our son. No cover if I couldn’t be there for him.

A couple of years later and it’s a new life. With new dreams, new hopes and new feelings. All the climbing and contact sports have been permanently ditched. No more drinking. No more stupid risks to my body. I just can’t take those chances anymore. I’m even more boring than I once was but much more importantly I feel that I am a much better parent now. Yes the world has changed. But hopefully I have adapted to it. The reality of parenting without a safety net…..

Cat Stew

Sometimes wonderful views take your breath away. This was taken on our last holiday. While my partner and son slept I would sneak out for an early morning run. The run would take me along a path which ran along the edge of Lake Thun. It was just stunning.

Sometimes it’s other things that take your breath away.

Last night I had made a stew. I left my steaming plate of food on the kitchen table while I delivered our son his stew and 2 tons of tomato ketchup. Crash. On my return to the kitchen I had an out of body experience. We have a very accident prone boy cat. Yes you have guessed it. He was lying in my stew. Waiter there appears to be a cat in my food. He was covered in gravy and vegetables completely oblivious to the world. He seemed most puzzled when I pushed him onto the floor. He was even more puzzled and slightly terrified as the dog decided to feast on the four legged plate. My option b meal, a cuppa soup was far less appetising.

I’m still finding bits of stew strewn around the house.

Usually the dog won’t have anything to do with the boy cat. His bestie is the girl cat. However today it’s a different story. Now he’s discovered the boy cats talent as a mobile dinner plate. He is hopefully following him around trying to be friends. Let’s hope the boy cat has learnt his lesson as tonight it’s a curry.

Like a Swiss Train

Dad if the bus was like a Swiss Train then I might be happier about getting it everyday”

My son if it was like a Swiss Train and served the same chocolate I would live on the bus. To someone who has been brought up on the infamous UK train network the concept of clean, comfortable and sometimes opulent carriages is rather alien. That’s before we even think about precision punctuality and a nice food service.

I remember waiting for a train in Switzerland one morning when the station announcer informed us that an avalanche had blocked the track (the announcement was in 4 different languages). In the U.K. that would mean the track would be shut for about 9 months. Or if our Prime Minister is sorting it out maybe never. A few minutes later the station master started speaking to all the people waiting on the platform. In perfect English he informed me that the specialist team was on site and he genuinely seemed horrified that the train would be late. After a couple of minutes it was announced that the avalanche had been cleared and they were deeply sorry that the train would be 10 minutes late. Ten Minutes……

Son survived today’s bus trip but it wasn’t a bundle of laughs. Although he did appreciate Dads attempt at a slushy drink when he came home. The dog enjoyed chasing the ice around the kitchen when someone forgot to put a lid on the blender. Silly dad.

When budgets are tight it is difficult for councils to run a school bus service. We actually should be thankful that we have one. But the school bus run is often so difficult for many kids, especially those spectrum kids. I’m not sure I like that phrase for some reason, may not use that again.

So many factors contribute to the difficult school journey:

  • Different drivers everyday. Our son would really appreciate just one familiar face and it spooks him when a new driver appears,
  • Frequently dirty bus interiors. Let’s be polite and say they tend to be not that clean. Again to someone who hates touching potentially dirty surfaces this is not conducive to a relaxing trip,
  • Poor behaviour. I think the term bear pit comes to mind. To someone who finds social settings challenging this type of behaviour is really distressing,
  • Different sized buses used daily. Because of his Aspergers he likes routine. Not knowing what type of bus will turn up can and does disorientate him. It is a big issue if the bus randomly changes from minibus, to medium size bus, to large super coach,
  • Because the bus size changes and the large number of kids using the bus, seating position is random. On an ideal day he can have a window seat by himself just behind the driver. However when smaller buses turn up, seating is restricted so he is often forced to sit next to someone who he probably does not know. This is an absolute nightmare for an Aspergers kid.
  • The buses have such a tight timetable. On arriving at school the kids only have a few minutes to get to the first class. If you are late you get an automatic negative. After the final lesson the kids only have 10 minutes to get on the bus before it leaves. Added to this it is a big school site and also due to its age it’s a bit of a maze. That’s a lot to cope with especially for someone who can go into meltdown when he needs to rush and who struggles with the concept of time. He also takes a lot longer to pack his bags and put things like coats on. It’s a recipe for anxiety and stress.

I haven’t got an answer. I have contacted the school and council. Our Health Service has repeatedly raised similar concerns in connection with many of its patients. Nothing changes. My last offer was that I would be more than happy to volunteer to work with the authorities in designing the next tender process for school services. I suspect I know the two word answer to that, something like **** off. In an ideal world we could get the Swiss Public Transport experts to run the school bus. That would be problem solved and wow the chocolate…..

Wheelbarrow Train of Pain….

Parenting is a great but frustrating gig. You think you have cracked it and then it bites you on the bottom. As annoyed as I was this morning it is now out of my system. So many kind words eased the pain….I can’t thank you guys enough.

Anxiety and frustration builds. It makes you tired and makes you do strange things. I always look at it like a house. Everything is fine and then something goes wrong. A pipe bursts. The house starts to fill with water. The pressure builds. The first thing you need to do is release the water pressure. Find a window or door to open. Once the pressure is released then you can fix the pipe. Everyone has to find their own window to open. It will be different for each person.

In my case I did have a rather foolish window. When the frustration built I would go outside and literally find a wall to punch. Not good. Going back to my house analogy. I am no Captain America or Hulk. As hard as I punch the wall I’m not going to break through and release the water.

But a few months ago I found a new window to open. This one seems to work and is also scalable. When the frustration builds I go outside to our wheelbarrow. Fill it with all the stones, bricks and sandbags I can find. Then I push it round the garden. It’s hard work on the grass and slight slope. For minor frustrations I do one circuit of the garden. The greater the frustration the more circuits I do. Todays was a 10 circuit frustration. I call it my Wheelbarrow Train of Pain. It does relieve my frustrations and is quite good fitness training. The dog frequently adds his own dynamic to the circuit.

Our son just laughs at the Wheelbarrow Train of Pain. He is trying to convince me to modify it. His idea is rather than increase the number of circuits I should do just one circuit but reduce the amount of clothes I wear according to the frustration level. As a result a defcon 4 frustration would see a very cold and naked man pushing his wheelbarrow. Thats not a pleasant thought. Not at all.

Bad parenting

First taste of winter. Hardly alpine skiing conditions but at least it feels like winter. In some parts of Austria they have had 10 feet of snow falling over just 15 days. England grinds to a halt when we get 6 inches…..

Our son had been clinging onto the hope of a Monday school closure. I always suspected he would be disappointed. The school has many faults but it does seem immune to the weather. It never seems to close.

It feels so cold in my heart today.

You get mornings when you are tired and then you get mornings when you are TIRED. Today I just can’t get going. Lack of sleep eventually gets to everyone. It did this morning and I hate it.

As the school bus trundled down the road.

“Dad I don’t want to get on the bus, will you drive me”.

I realise how daunting that trip is to our son and my usual answer would be – don’t worry, no harm done let’s get in the car.

Not today……..

Today I told him to get onto the bus. As soon as he was on the bus my mind had cleared. What was I thinking of. What a prat…

Am I just looking for excuses. Probably it’s just down to awful parenting. Part of me is hoping I can blame fatigue. The other part of my brain is looking to give myself a good kicking. Will certainly try to make it up to the little fella tonight. Must raise my game, son deserves better than this…..

Tell a Story

Thank you to Pensivity101 so much for the tell a story nomination. The picture below has been kindly provided to base a story on.

This took me completely out of my comfort zone. Apologies in advance if it’s not very good – not done this sort of thing before. But it was fun.

The cold icy breath. So cold so harsh. No remorse. No forgiveness. False love.

Imprisoned. Shackled in this world. No release. No hope. Isolation.

Am I trapped within the ring or shackled by wearing it. It doesn’t matter. Nothing matters any more. Trapped in a faceless world. A world of grey. A world of nothingness. Constant pressure crushing my body. Restricting my breath. Silencing my screams. That cold breath. Professing love but feeding on my soul.

That is my life, my torture, entombed by that RING.

*******************

Well that went somewhere I wasn’t planning. My idea was to make it funny, sort of went a bit off track. SORRY.

I now have to nominate 3 bloggers with the invitation to write a story or poem from my choice of picture, then pass on the invite to another three and their choice and so on and so forth.

Nominations please only do this if you really want to do this. Completely no obligation.

Jean Lee

Cosmic Observation

Emerging from the dark night

The picture