Next stop

Ever got the urge to keep opening those gates. To just keep walking in one direction. To see what you find. No boundaries. No limits. To be free.

One day I will walk to the next stop.

Now if I packed enough egg sandwiches and tins of Pepsi!! then I will eventually arrive at the city of a Hull on the North East Coast. If I have been very organised and packed my floatation rings then it’s next stop Amsterdam.

What’s the next stop on the school at home journey?

I think Hawklad is now starting to realise that a return to school this month is out of the question. His fears and anxieties are not going to be overcome within weeks. So now he is starting to look at January as the next window of opportunity. So it’s looking like another 3 months of school at home (at least). We will continue to try to stick with the school teaching schedule. Cover the subjects they teach. Use whatever teaching materials they make available. If they don’t then we won’t lose any sleep over it. That’s more time for him to try and relax. To try and enjoy life. It’s often easily forgotten that too many are losing out on huge parts of their precious childhood. It’s not all about formal schooling and meeting government targets.

So be it. We have got this.

It’s completely his call. He decides what the next stop is.

Changes

Definitely it’s a time of change. The season of change. Yesterday was T-shirt and shorts. Today is wet, windy and chilly. 50F probably means the T-shirt season has gone and it’s time for woolly jumpers. Ice Cream replaced with Hot Chocolate.

It’s that time of year.

Four years ago I would have been sat at home looking at the ‘Sincere Condolences’ cards on the mantelpiece. It was a couple of days after my partners funeral. Life was looking bleak. But as the years pass this time of year has increasingly felt like a time of personal change. The end of a period which marked the passing of my partner and mum. A time of sadness moving to thoughts of preparing for winter and all that entails. Thoughts of loss replaced by thoughts of short days and long nights. This year is complicated with our ongoing lockdown which is likely to stretch through the entire cold months. So yes this period of change feels different . Definite change but what? In previous years the next few months brought challenges but also things to look forward to. Concerts, Football Matches, Firework displays, Halloween parties, family meet-ups and meals, Christmas Markets, crisp winter walks and runs. This year these are all none starters. Could that tip the balance of the change. Only time will tell but the change is not yet set in stone. It can still be a positive period but it will need much work.

D

Red

A trip out to the village post box feels like a real adventure. The stuff you can find even on a two minute walk. Definitely saviour those moments.

Today provided a longer trip out. This time a trip pharmacy to pick up a prescription. It felt odd driving in the local town. Actually it just felt odd driving. I admit that I needed to work out which of the 3 peddles was the clutch – how bad is that. Clearly cars are more than just point and go. In the town definitely more signs of the impact of the pandemic. Some places have closed down. Controlled entry queues outside the stores. 2m spacing tape on the pavements. Definitely more masks on view. In the pharmacy Perspex screens and staff dressed like they are about to perform surgery on the customers. Missing items on the prescription, some medicines are just not available. Sign of the times.

School emailed all the parents to let them know that the school has had its first confirmed coronavirus case. It’s stays open and carries on. Will be such a worry for everyone there. Sadly it won’t be the last one. It certainly doesn’t do anything to change the narrative for our son. He’s schooling at home. He’s schooling at home for the foreseeable future.

We carry on.

Insignificant

It’s a big sky. Its easy to feel very small and insignificant stood under it.

There are so many times when parenting is the best gig on the planet. Then there are other times…

I was trying to convince our son that he had washed his hands enough. He had been at the soap and water for nearly five minutes. Everything I said didn’t seem to have any impact. Finally he decided that was enough. He asked if the towel was clean and had it been washed that day. I assured him that was the case. He left the bathroom and I looked at his hands. His very red and sore skin. That’s what happens when you wash as often as he does. We are using skin friendly soap. I water it down further. But his hands are still red. I encourage him to use his skin care lotion. But his hands are still sore.

These are the times I feel inadequate as a parent. Missing the support of another person. Someone to share the load. Definitely running out of things to try. Actually ran out of things to try. His health professionals try to help but they see this intrinsically linked to the pandemic. Get the pandemic under control and we can start to bring his hand washing under control – hopefully. But that doesn’t make me feel any better as a parent. Feels like I had one job and I dropped the ball on it.

So I’m stood under that big sky. Feeling insignificant. Time to breathe. Reset and go again. Yes significant but definitely not beaten yet.

A window

A brief window to step outside and breath. Otherwise it’s been horrible. Many of the places around us have closed due to bad weather. Must admit education feels that way a bit currently.

UK School doesn’t really work for those with additional educational needs. The traditional classroom setup brings much stress. School at home brings a little respite.

So that’s two weeks ticked off from the next stage of the school at home approach.

I was asked why I didn’t call it homeschooling. Basically we are still trying to follow what the school is teaching. Not setting our own learning agenda. Having to do this just in case our son decides to return to school when he is able to. So it’s not the freedom of homeschooling, it’s basically school but at home.

So in two weeks we have kind of found a way of trying to keep up with the class. Covering the same subjects. In some lessons we are getting all of the material which is being used in class. In some we are getting some of the material and we are trying to fill in the gaps as best we can. In a few subjects we are basically getting nothing so we are just winging those – maybe we are following the class, maybe we are heading in completely the wrong direction.

He is getting virtually no pastoral care from school. Absolutely zero feedback on work submitted, not sure some of the teachers are even reading it yet. A couple of the teachers do occasionally send a message asking if he is ok with the work set. That’s it really. On a Thursday all the pupils have to select an option for an additional lesson. It’s supposed to cover non curriculum activities. It’s about learning new skills and building confidence. It could be a gaming option, archeology, performing arts, sports, astronomy. He hasn’t been included in this programme – says it all really.

In my mind I have already settled on the best way forward. It’s for our son to leave school and opt for full on homeschooling. But it’s his call. It’s his future. So when the time is right then he can make a decision. But I have to say school are not bending over backwards to sell themselves.

L

Grouse

Most definitely not like this today. The strange yellow thing in the sky has most definitely gone on holiday. Hopefully not a long one.

Currently I am looking out of window into the rainy garden and thinking. I’m guessing this home at school project has many months to run. As a single parent it’s trying to get my head round the logistics of that. At present there is not much work and what work there is can be done at home. Shopping can be done through a combination of home delivery and very quick trips to the small local store. But what happens if I need to make a longer trip out. Hawklad is not comfortable at all being left alone.

The options are limited at the best of times and these are not the best of times.

Normally our options would be one of two sisters (but one-off those is 2 hours drive away, and both don’t drive) and a couple of local parents who have known Hawklad since the age of 5 (they are busy so are not often available). Unfortunately under the new Government Lockdown rules all four options are now banned. Breaking those would leave us open to heavy fines. The Government has even encouraged people to contact the police if neighbours flout the rules. The irony here is not lost, flouting rules if you are a member of the government or the dad of the PM is said to be entirely reasonable. Under the new rules our only option would be for a grandparent to stand in. Unfortunately ours have all left this world. But here’s another irony, those grandparents would fall into high risk groups. Those who should be shielding. Are grandparents seen as expendable….

The other irony is that those who would be an option before they were banned fall into much lower risk groups. They can’t babysit for us but I could go to work with them and sit alongside them in an office – that’s apparently fine. We could even put on green camouflage and go grouse hunting together without any punishment. Maybe that’s the childcare answer, we set up a grouse hunting lodge in the garden. The first ever vegetarian one….

Odd sandwiches

The one thing that you get used to as an Aspergers parent is routine. Lots of routine. That’s tough for parents like me as I am not really a routine person. I’m a bit more impromptu. Bit more going with the flow, see what happens person. Maybe some would call it winging it. Which is most odd. On most of the old Aspergers tests I would score very highly yet on one I was way down. Routine.

On this Hawklad is completely different to me. He needs his routine, his order, his plans. He needs to have that safety net and he needs to follow them. It’s reflected in so many things. If we are driving somewhere then we need to follow the usual route, even if that means a much longer journey. He likes to wear the same types of clothing – if he grows out of them then we need to replace with almost exact copies. He has a TV and movie schedule which he sets way in advance. We will often watch the same movie over and over again. School lessons have to follow the timetable without variation. We need to buy the same types of pens and pencils. He likes to go out in the garden and talk at the same times. He doesn’t like me to do things like change my hairstyle or try new clothes. It’s funny I’ve been wanting to shave my hair off for years but that’s just not allowed.

Break the routine and he is immediately hit with waves of self doubt and fear. Over the years we have tried to work on this. Slowly trying to introduce change. Occasionally trying to introduce unplanned but definitely fun routine changes. But it’s never really worked. Routine is just a key part of who Hawklad is.

Another area of much needed repetition is food. He has the same seven day food menu. The same foods on the same days, year after year. Trying new foods is just not something he does really. Normally ends in failure.

Dad what on Earth is that.”

It’s a sandwich.

Yes I can see the bread but it’s what is between that which is the worry.”

That will be cheese and onion crisps. It’s going to be one of the great gourmet experiences. A crisp butty. A crisp sandwich.

Really. That is just wrong on so many levels.”

It’s fantastic. Go on try it. It’s a family tradition. Your Little Nan would always be treating herself with one. But her crisp butty would be made with Ready Salted crisps.

Just No Dad.”

Ok. But if it’s not a crisp butty then what about a chip butty. A sandwich made from fried chips (fries) with heaps of tomato ketchup. Another true taste sensation.

Erm NO. You can keep that as well.”

Ok Hawklad what about a fish finger sandwich. Fantastic.

Not happening. That’s a tradition which is not passing down the gene line anymore. It ends with you.”

Working hard on harvesting

Apparently we are enjoying the last few days of summer weather. It’s kinda sunny and kinda warm – if you ignore the cold wind. The forecasters are warning that soon the weather will be most definitely very different. Very cold, wet, grim and grey. As a result the farmers around here are desperately trying to get on with stuff. Even working when it’s dark.

It’s also time to start harvesting our own little garden crop. Today it’s a few apples, onions, carrots, tomatoes and potatoes. Some have done better than others……

Can anyone speak carrot. What’s the carrot for ‘you do know this is Yorkshire and you are about to be given a right weather spanking. You don’t have months of sunny growing weather left, you have no more than 3 days. So get a move on….’

Why is it so simple to grow weeds yet those so called easy grow carrots prove so pesky. It’s as if the carrots pop out of the seeds, feel the Yorkshire soil and go ‘YOU HAVE GOT TO BE JOKING’.

So if the carrots play ball then we are moving into a spell of living off stews, soups and apple crumble. I can happily live with that. I’m always thankful for whatever the garden yields. It does have to contend with the muppet gardener and Captain Chaos.

So yes it’s that time of year. The weather starts to break OR in our case, break even more. It starts to get colder and darker. For many it can be a tough change. Heralding a long period of what feels like ever increasing claustrophobic imprisonment. Me included. That’s where friendships, happy things and dreams are so important. They can help soften the sadness, even lift us into a better place. So for me it’s time to increasingly focus on those things. I can’t do anything about the weather but I can do influence the truly important stuff. Soon the autumn colours will become spectacular. The important stuff can lift the soul. Yes the following months can be bleak BUT they can also yield so much beauty and wonderful moments as well

Now it’s time to give those carrots a good talking to.

The shape of bread to come

See the sun does shine in Yorkshire – occasionally.

How can baking be so hard. Everything seemed to be going so well and then you end up with very odd shape bread. One day, one day.

Maybe I can blame these baking woes on a lack of sleep. At least it ended up tasting ok. So it’s kind of a result.

I was sat drinking my herbal tea and having my misshapen bread with some hummus. Really, is this what life has become….. sudden urge for proper coffee and a sausage roll. But that is life currently for me. I might wish for something else but circumstances dictate otherwise. Wow that feeling could cover so many things. But at that precise moment my eyes wandered to a book on the table. A book about Ski Jumping. One small dream is remembered.

I have always wanted to go to and see just one Ski Jumping competition. Have never got round to doing that. Circumstances have repeatedly prevented that. Now as a single parent with a son who struggles to get to the front gate of the house, those circumstances seem to be even more insurmountable. Another winter will pass. It’s definitely not happening this season. Maybe not for a number of years.

Yes it’s a little deflating but don’t get me wrong. That dream hasn’t died. It’s still there. Still cherished. The future still offers hope. Just have to deal with the here and now. In all likelihood autumn and winter will see no real change in our circumstances. The next 6 months will be largely restricted to our house and garden. Very few social encounters. Single parenting day in day out. More days of dodgy bread and hummus lunches. But it is what it is. Will just deal with that. But I won’t forget those special dreams. That what keeps me going.

Running to or from it

A view from one of my old running haunts. A wonderful place. Basically had the tracks to myself. Me, some farm land and nature. I enjoyed the peace.

Isn’t that strange. Looking back I really valued my space. Having some solitude. Yet fast forward to September 2020 and I fear the solitude and isolation becoming a prison. Surrounded by cold, grey walls.

Just can’t make my mind up can I.

But it is a genuine fear of mine. Becoming completely isolated. Cut adrift.

At present I am ok. I’m finding a way through the ever present danger of isolation. I still have dreams of a different life. There are people who care. We can find ways to stay in touch. I have a workable life balance at present. Not great but not too bad. The risk is that I know myself. I know how easily I can lose confidence. How my social skills can desert me. How I can start to overthink. Become too inward looking. That’s the danger zone for me. Then I can easily be sucked into a completely isolated lifestyle. A lifestyle which is not sustainable or healthy for me.

The other worry is that in the modern world it is so easy to be cut adrift. So easy for people to stop calling round. To stop noticing you. Just one unknown face in the crowd. It felt like that for a long time after I lost my partner. People stopped calling. I was just that unseen face in the crowd.

So for me it’s finding a balance. Enjoying more solitude but avoiding complete isolation. I guess it’s like climbing in thick hill fog. You might be relatively close to others, but they can’t see you. You might as well be alone. The solo climbing can be enjoyable but it can also be unnerving. You are never quite sure how close you are to the precipice. How close to falling over the edges do when your alone, no one will be there to stop you.

But the hope is that if it’s like the climbing metaphor. I’ve been caught out in those white out adventures many times. Yes they have been challenging, a little scary at times. But I’ve so far avoided falling off the edge. That represents hope.