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Where’s the shed

Here once stood the garden shed. But then an ageing Oil Tank had to be changed. The new rule was that flammable items had to be at least 6 feet away. A wooden shed just 3 feet away just didn’t cut the mustard. So it had to come down. I remember the day so well. My partner organised the skip. She took the first swing with the sledgehammer and then left the rest to me. It was a tough fight. Eventually I won the contest on a split points decision. Yes the shed was down but most of it now appeared to be imbedded in me.

We never did get round to putting a new one up. Actually we didn’t need one. The area became a little bit more green. A place to randomly put those potted plants which we have collected over the years. A nice home for a 90 year old wooden bench which has long since served its purpose and has been retired. It’s also a bit of a magnet of our sons footballs….

It so needs a good weeding but actually yellow poppies and wild strawberries are starting to grow here. Well that’s my excuse.

I’m not sure what my partner would make of it. Maybe a bit too chaotic for her. She liked organisation. The new shed was high up on my list of things to do before the world changed. But then she left our little world. Then every weekend her mum would pop over for an hour or so. She loved it. When she came over at the weekend she would often sit and look at it while drinking her coffee. Thinking about life. Watching the birds make use of it.

I’m writing this at about the time her mum would have been visiting. I’m sat in the chair she would be sat in. Yes I do think the little green area works. Maybe that new garden shed can wait for a few more years. Sorry my love…..

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Tomorrow’s Rose

A few hours ago talked about a Yorkshire White Rose which has a connection with my partner. I said that it would become even more beautiful. Well here’s the proof.

This little bush produces the most stunning roses. The sadness is my partner never really got to see them. But they are such a beautiful tribute to her. That’s such a nice thought.

Take care everyone and remember to live. It’s can still be a wonderful life.

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Quarantine and Mental Health

So pleased to have another wonderful post from Katie and Evee for you. Can’t thank them enough. They also have just posted something from me on their site as well. If you get the time please check it out.

Thank you so much.

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Our current Quarantine Routine, looks a bit like this:

– Katie wakes up and makes us both a coffee and works out

– We read, write, blog or go on walks or bike rides.

– Evee works out

– We cook dinner together

– We have our own evenings where we chill out, talk to our friends, or watch Netflix. (Evee falls asleep significantly later than Katie (usually with the odd noise complaint thrown in!))

At the beginning of quarantine, there was a clear and obvious push for people to make the most of this time. People were learning how to make banana bread, teach themselves how to do handstands, and learn Spanish or Italian. We also had good intentions; to paint, write, eat completely cleanly and have a strict regimented workout plan.

When we couldn’t bring ourselves to be productive, we were filled with guilt at the thought of wasting this precious gift of time ( https://thegriefreality.blog/2020/05/06/the-gift-of-time/ link if possible ☺ ). It was almost too easy for our minds to wonder back to the days of our own lockdown after Mum’s funeral and the depression that followed. During these days, counsellors encouraged us to mark small things as “wins”: showering, exercising, or eating healthily. But also, to the even smaller wins, like waking up in the morning, making the bed.

After our mum passed away, we were completely alone. As said beautifully in Gary’s post, there does come a point when people stop checking in and stop asking how you are. Apart from a few golden people, many individuals you thought were going to be with you until the end, become memories as well. It is a desolate place to find yourself in.

Thankfully, we have always had each other, and through trying to look after one another, we found ways to build ourselves back up.

Simple acts of self-love may appear futile or irrelevant when the future holds so much uncertainty, but we cannot imagine what our health and wellbeing would look like without them.

Lockdown has been a journey and has impacted our mental health, alongside thousands of others’. For us, it felt hauntingly similar to those grey days of 2018 that bore witness to some of the darkest moments of our lives. But through self-care, we learnt self-love.

Self-care grew to become an essential part of our healing and an ongoing exercise for our health and wellbeing. It is a wonderful thing to do that we strongly advocate, and promote heavily on our blog: Plant those little seeds of self-love into your body and mind.

As with any new exercise, it has been a difficult lesson to learn. But today when the world finds itself in so much chaos, we know to focus our attention on making ourselves feel happy and healthy. Eventually, our calm approach to life and clarity come back to us, and we ground ourselves once again.

One simple act of self-care is to sit in the bath, with a face mask, cuppa tea, bubbles and a coconut oil hair mask. It truly is amazing how much these luxuries make a huge difference to our wellbeing.

We have linked a post of little self-care tid-bits, everyone can do; it doesn’t have to eat up too much of your time. (if you could link this post https://thegriefreality.blog/2019/04/03/i-dont-self-care/ that would be wonderful ☺) It can be as small as making yourself your favourite tea before bed.

Hold tight, eventually, the hustle and bustle of normality will resume, and when it does we hope you carry forward these acts of self-kindness. In doing so, we have no doubt you’ll be more than capable and prepared for it.

Katie & Evee x

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Plant Life

It doesn’t look the most impressive plant but it certainly has meaning.

Something like 18 years ago we had just moved into the house. The garden was so badly overgrown. The lawn was more like a corn field. Took us three days to cut it. Having revealed the garden we found it appeared to have no flowering plants. Many weeds and one Apple tree. I guess that’s called a blank canvass.

A week or so later the village had a plant fare and we nervously ventured down to it. We knew hardly anyone there. We did meet some lovely people. Unfortunately over time those we get to know have either left or sadly passed away. Can’t remember much about the actual fare apart from my partner telling me that we needed to buy something. I randomly picked a hand full of plants. As we were late the selection of healthy plants was completely exhausted. Our new plants looked somewhere between decidedly unhealthy and dead. They didn’t survive long. All except one and here it still is. Who would of thought that the most sickly looking plant would end up outliving my partner and a number of the residents at the fare. Life is definitely bizarre and it is often so unfair. But that is life. We need to treasure it, treasure all life.

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Rainbows

Who doesn’t love a rainbow. My partner adored them. They remind me of happy memories. But they also show me that life goes on. A rainbow doesn’t last for long. But if you are patient, then another will eventually appear.

Life goes on. After you lose someone special, you do forget this. There is always rebirth. That took me a long time to figure that out. For months death marked the end. That’s the frustration. If it’s the end, why is the world still spinning.

Maybe a better way to look at it for me is that death actually marks a boundary. A demarcation between two life’s. That way life does seem to go on. That’s how the world keeps spinning. That makes more sense to me.

So now I look back and see my partners death slightly differently. Her death marks a boundary. The ending of our life together. As the boundary is crossed, no more joint memories can be created. She has left this world. But here’s the key. She left the world a better place than she found it. She did her bit to enrich the people she encountered. That’s a sign of a life well lived. Surely that’s what we all should be hoping to achieve. When she left. She left her little part of this world, a better place. Filled with many memories. Some memories make you smile. Some bring a tear. But these are all memories to be treasured.

So my partners death did mark a boundary. I crossed that boundary. I brought those memories with me. On the other side of the boundary my life changed. Full time parent, tidying up the outstanding issues from the last life, treasuring the precious memories and starting to live again. Striving to leave this world a little better than I found it. Just like a beautiful rainbow.

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The forecast

The weather forecast is saying it’s clear blue sky and no rain today.

The clouds and the showers would beg to differ.

Another inaccurate weather forecast. It’s clearly the forecasters fault that it’s raining …. It always is. I remember going to a Test Match (Cricket) between England and India. It had been a good weather forecast. But it was chucking it down and play was suspended. With perfect timing the main TV weatherman came onto the pitch to do a weather forecast. I’ve never heard anyone get so many boo’s. It was his fault that it was raining.

To be honest we get many incorrect predictions. Leaders saying a pandemic will just go away. Those pension salespeople saying that you will be able to retire at 50. Being told that Betamax and V2000 would be the best video recording formats. No one would be daft enough to vote for Trump or Boris. My Dad saying Status Quo wouldn’t last as they can’t sing or play. Brexit was easy and could be sorted in days. The Sinclair C5 was the vehicle of the future…..

Basically life is to unpredictable. You just never know what will happen. What’s round the corner.

I know this all too well. One day your talking about the next family trip to Switzerland. Discussing trying for a second child or adopting. Then 3 weeks later I’m leaving the crematorium with my partners ashes. A broken single parent. That wasn’t in the forecast or the plans.

We often learn this lesson far too late. I did. Don’t assume there will be a tomorrow. Remember to hug those you love today. Start ticking off those bucket list items, right now. If something special to you is broken, then try and fix it today. Today, speak to those you care for. Make sure you live today.

Lecture over…. And yes it’s still raining here. I blame it on the weather forecaster.

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Get my head round

The sun is shining. It’s still cold but we will settle for this.

So it’s almost official. School has emailed parents to say that looking at the latest government guidance – which apparently isn’t much – only some Primary pupils and those sitting final exams next year will get any direct teaching over the next few months. The earliest Son will be back in school is going to be September. So it’s time to get our heads round this.

Looking at the government’s plan for the economy – doesn’t take long as it’s basically wrote on the back of the PMs hand – probably means the company I work for won’t be operating anytime before September. That’s being extremely optimistic and requires an awful lot of good fortune. Being realistic there is a high probability it will not survive. So it’s time to get our heads round this.

It’s also time to get my head round the likelihood that I won’t be seeing my brother and sisters much in 2020. If things improve then maybe visits at Christmas might be a possibility. Realistically meet ups are not happening anytime this side of September. Already one Government official has said Summer family holidays and meet ups are cancelled, as these are unsafe – but apparently getting on a packed bus and going to work is completely safe.

AND WE HAVE TO GET OUR HEADS ROUND TWO EVEN MORE PRESSING MATTERS.

  • How are we going to celebrate my partners birthday in just over a weeks time. We had been planning on doing a camp fire party. Unfortunately the fire pit didn’t survive the Yorkshire winter. Yesterday I tried to pick it up to clean and the metal just crumbled, leaving me holding just two wooden handles. At least they can be used as fire wood. The other idea was to have my partners favourite meal – Chinese. Unfortunately the local takeaways are still closed and the local supermarket is completely sold out of Chinese food – apart from crispy seaweed. Which brought the response “well the gerbils will eat well then….”. I did offer to cook Chinese from scratch, but that brought the response “I’d rather suck on a gooseberry….”. So we are in plan F territory.
  • “Dad I am so missing not going on my trampoline.” A couple of months back our garden pigeons decided to nest right next to the big bouncy thing (thats not my tummy before you say anything….). When I say right next to, I mean within 10 centimetres (not using inches will really upset Boris). Well the pigeons and chicks are showing no sign of moving, so I have two options. One is to dismantle and then rebuild somewhere else. Problem is that it’s in the only flat part of the garden and it’s like trying to assemble a Super Tanker. The instructions helpfully explained that you will need three reasonably fit adults to assemble. They failed to mention at least one of those adults must be an expert in structural engineering and the other two will need to have the strength of The Hulk. The other option is to try and drag the complete trampoline. We tried yesterday and after 30 minutes had shifted it 1 cm (up yours Boris). So we are also on Plan F here as well.

But at least the sun is shining.

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Friendships

Pesky school played that trick on me again. Son is all set up for the next school at home lesson. THEN at the start of the lesson the teacher asks for work to be done which requires a plasticine model to be made. As we don’t have a fully functioning stationary and supplies cupboard, an urgent search of draws and boxes took place. Eventually a large ball of old Blu Tack was found. That will just have to do.

But in one of the boxes we searched was another find. A much more rewarding discovery. A laminated photo of our Son from his time at nursery. It was used as a name badge for his coat peg. I had completely forgotten about this. Suddenly all the memories start to flood back.

How things have changed….

Looking back at nursery he had about 10 really close friends. Friends he would spend so much time with. Over time families moved, kids went to separate schools and friendships faded. Currently only one of the nursery gang go to his school but they are in different sets. Even that friendship has grown apart. They will still wave and smile if they bump into each other but that is it.

It’s the same for the parents. Each one of those nursery friendships yielded a parenting bond. Family meet ups, barbecues, day trips out and close adult friendships. Those are now gone as well. Even with the one nursery girl still at his school, we have grown apart. Not spoken to the parents in two years. Just a few years back I would go cycling with the Dad and went running each week with the mum. Now it’s down to the occasional wave as we pass each other on a car journey.

Now looking at this old photo I am reminded of old friendships. Friendships which have been lost just like that photo was in an old box. It’s a reminder that the world moves on. Things change. Sometimes change goes against your well thought out plans and sadly sometimes change is not always for the better.

But then you look at that cheeky face in the photo and it’s impossible to be too downhearted for long.

Posted on by bereavedandbeingasingleparent · 66 Comments

Judging yourself through your grief

I am so thrilled that Katie and Evee have been so kind enough to write another post for me. I know from all the comments that the last one they penned was so loved. Please checkout their blog (The Grief Reality), it’s such a wonderful source of love, human spirit and hope. You might also come across another post from me there today as well.

I know how tough this post would have been to write for them. I have been feeling similar emotions about my Partner as well. They set these out so beautifully.

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Mum was always so protective of her daughters. If we came home from school crying about being bullied, she’d be straight on the phone to the headteacher even if we begged her to just forget it. She said her fierce protection was something we’d only understand when we became mothers ourselves – perhaps that is true. 

 

However, as time went on and we understood our mum’s growing fragility, we too stepped into a more protective role, that perhaps only children in our position would understand – we don’t know for sure. Eventually, simple things such as birthday parties became hazardous as they opened the risk of Mum becoming neutropenic with her compromised immune system. 

 

We miss our mum every single day and there is so much we have not been able to share with her over the last 18 months. Yet, with the current world events that are unravelling, quietly, we have both admitted to thinking “Thank goodness Mummy isn’t here to see this”. For the pair of us, this thought hasimmediately been silenced by shock, guilt and self-judgement: “I can’t believe I just thought that”. And it took a while for both of us to open up to one another to talk about this guilt. We were afraid to voice this utterly shocking feeling; about someone you physically ache to see again.

 

The fact that we can miss someone so much, but not want them to be here to bear witness to all the wrong in the world, is an unexplainable feeling. When we were early on in our grief, we thought it unthinkable when a counsellor told us we will one day consider that our mum is ‘safe’.

 

Well, we guess we are finally there. Mum cannot be touched or hurt anymore; and she is more protected than we could ever make her. We “thank goodness” that our mum is safe now and she does not need to worry about delayed chemotherapy treatment due to Corona Virus, or what we’d do if she needs to go into hospital. 

 

It is a conflicting emotion for us as this fear no longer lingersabove us. Yet, we still cry for the families who are living through it. 

 

Underneath everything, we know, no matter how far we come, all we will ever want is a cuddle from our mum, to be told this will all pass, and we will be okay. Isn’t that all anyone ever wants?

 

Go gently, 

 

Katie & Evee

Posted on by bereavedandbeingasingleparent · 108 Comments

Ever shrinking world

A photograph from our garden. Just five paces from the door. Part of Son’s world.

Our Son really struggles with health related anxieties. I remember the first pamphlet his Doctor handed to us about Aspergers all those years ago – second bullet point – may encounter obsessive fears over health and hygiene. For our Son they were real, life altering fears. Then in quick succession he lost his mum and both grannies. The fears became even more scary and real to him.

In the early party of his Aspergers life he was under the care of a wonderful Clinical Psychologist. She slowly helped but then she retired (and was never replaced due to the decisions backed by many of those in our current Government). His care became a real hotchpotch which achieved very little. Then we were so lucky. Son’s case landed on the desk of a young nurse health counsellor. Since then she has been the only constant through his care. Now because of Government cut backs, she is the only specialist help he gets. Although not an Autism expert she has patiently worked with him and delivered real benefits.

His fears became manageable.

Due to our Governments continued running down of the NHS, her workload has become ridiculous. She just can’t spend the time she needs to with him. But she does what she can. She still cares.

Then 2020 hit. Is it really only 4 months old…….

His fears have gone off the chart. Can you blame him. The worlds gone potty. Everything is up in the air and showing no sign of settling down. Because of the new clinical rules his wonderful health counsellor is not allowed to see him until after the crisis has eased. Being realistic that’s not going to be until the back end of the year at the earliest. So he’s started burning his bridges.

Bridges is a theme I am sure I will come back to over the coming weeks. The world of autism and the big bad world don’t naturally coexist. They are often separate. Links and bridges need to be built. Unfortunately the big bad world is not interested in developing links. It’s been up to our Son to try and build the bridges. That’s allowed him to enter the big bad world. Those links have never been particularly strong. NOW HE HAS BURNED THOSE BRIDGES. The outside world is just too scary and full of dangers. He has bunkered down to his house, his back garden, his world.

The thing is that when things start to improve again. And they eventually will. The big bad world will make no effort to rebuild those bridges again. One lone nurse counsellor will try. I will try. Sadly, I’m not entirely convinced Son will make much of an effort this time. Maybe in the future he will but it will take time. In the meantime his world has shrunk.