Old moon

A couple of full moon photos from last week. My poor old iPhone tries it’s best.

I remember looking up at the moon. I was lying on my back on the cold patio trying to keep still and give the camera phone a chance of trying to focus. Anyway I was looking up at the moon and thinking it was stunning. I really hoped that my partner could be seeing this as well. Maybe she was? Was she seeing it from a different angle? Was she looking up at it from one of her favourite places. Was she above the clouds?

These days I frequently look at things in a different way. For a long time after my partner died I felt bad about looking at beautiful things. Sunsets, landscapes, the Sea, our Son playing. It just wasn’t right that I could and my partner was missing out. She had been cruelly denied this chance. Her time ran out.

But slowly that feeling of guilt started to ebb.

Now when I look at beautiful things, I try to look that little bit harder. Look for just a few moments longer. Truly embrace the moment. Because now I’m looking for the BOTH of us.

Back to the moon. After a few minutes I was becoming distinctly uncomfortable. My back is not designed these days for lying on a cold, hard surfaces. Then a thought. What was I thinking about. My partner was the sensible one. She would be sat inside. Occasionally shouting “that’s very nice Dear”. She would not be outside freezing her butt off. She would be warm inside with a glass of something, watching one of her favourite movies.

That’s a view she would be happy with.

Good Friday ?

The headline in the prime UK gutter newspaper (a publication so bad and so vile I can’t even write its name down) was apparently today

Boris is out – now that really is a Good Friday.

Just those words on the front page….. Yes anyone leaving intensive care in a better state than they arrived is a wonderful little victory but it misses one rather salient point. At least 5000 people died in the UK this week and god knows how many worldwide. Will it be a good Friday for the scores of families who will be bereaved today……. The UK is now recording more deaths than any other European country and because of the shambles the government has made on testing – this probably vastly underestimates the real figure. But no need to report on that….. No need to talk about our wonderful nurses forced into using bin bags as protective uniforms.

What would be a Good Friday would be no one suffering today with only one obituary required – one for that loathsome newspaper. I remember once the newsagent accidentally sent that paper to my mum instead of her normal one. She refused to touch it and she burnt it on the doorstep. Stick that in your pipe and smoke it Murdock.

Let’s move on to the real Good Friday.

Our Good Fridays were slightly odd. Normally my partner would introduce all the family traditions. But not on Good Friday. I can’t remember my partner doing anything different on this day. She was a devout Quaker, maybe that was the reason. I do know that I was her biggest trial in life as we were very very different.

For some reason my family traditions kick into overdrive on Good Friday. So unlike me. What’s the old phrase

You wait hours for a bus and then three arrive at the same time.

  • So each Good Friday we would
    • Not be allowed to drink milk all day (No idea where that one came from, probably one of my random dreams tricked me into that one),
    • First food of the day had to be an unbuttered Hot Cross Bun. Not allowed to use a knife to cut it. Every year I’ve done this an yet I don’t like them. My partner hated them so I had to eat hers as well. Then Son hated them as well so that was THREE buns I had to get through.
    • Can’t eat meat all day.
    • The meal at lunchtime had to be fish.
    • Attend a morning cross parade. These don’t tend to happen here anymore and anyway this year they would be banned.
    • No alcohol before you have had the fish. That was actually a very hard challenge when I was at University.
    • We would fly a kite on the afternoon. Apparently this is a tradition which originates from the Caribbean. No idea why that one reached deepest Yorkshire.

    I have to say this year some of the traditions have been dropped while some are just happening out of our daily routine. No milk or meat so far but that’s because son has not had his lunch yet. I’m tea total these days. Not enough wind for a kite. We might have tuna for lunch if I can convince son to change his food routine. However a pesky hot cross bun (plus the one our son won’t touch) will be waiting for my 2pm meal starter. Unfortunately due to the currents our dog is not allowed to help eat them. Thin king about it I might start a new tradition. Have the smallest bite of the bun then share the rest with the birds. That’s a tradition I might be able to stick to.

    Stages

    One of my first records I purchased was ‘All the worlds a stage’ by the rock legends, Rush. Shakespeare wrote that ‘All the worlds a stage’. Don’t worry I’m not going all thespian on you. But I must admit I fancy my chances these days of doing a mighty fine Richard III stage performance. Why is the Stagecoach Bus always two hours late when I try to catch it. Just watched wrestling on the TV which is staged. So many stages.

    Then you get stages in grief. A couple of years ago someone asked me what stage I was at in my bereavement process. I just looked on blankly. All I could think of was two stages. Your life before the death and the life after the death. So I answered – in the second stage and I always will be. I guess that’s not the answer they were looking for.

    Last night I was reading an online article about bereavement counselling. It talked about every bereaved person going through the same 6 stage process. I wasn’t convinced. Surely every person’s grief journey is unique. Why force people to follow a predetermined text book bereavement route which doesn’t suit them. So I gave up with the online article and scribbled down my own staged journey so far. It’s my interpretation of MY journey and in no way is it supposed to fit other people. Remember I’m not a Doctor or Psychologist. I moved a potted plant into my bedroom to raise the rooms overall IQ score. The height of my powers these days is to get the cling film wrapper off food without slicing off a finger…. So here goes with my journey.

    The SHOCK STAGE. Within a period of 6 weeks I’ve just buried my mum and then my partner. I’m a complete mess. Barely able to function and yet I’m supposed to be a Dad. It’s like living in a prolonged nightmare. Trying to sort out the practicalities and legal side of death, but actually got no idea what I’m doing. Basically doing stuff I’m told to do.

    The FRUSTRATION STAGE. The cards, flowers and phone calls have dried up. I’m becoming more aware of the reality of the situation. Trying to get my head round how to be a single parent and at the same time keep some money coming in. I need to find an alternative to my career as it just isn’t doable anymore. The frustration comes from realising that what worked in the past just isn’t going to work now. It’s also so frustrating that the world is still spinning without seemingly even blinking after my partner exited stage left. It feels like I’m fighting this new normality.

    The ACCEPTANCE STAGE. Eventually I began to accept the new reality. This is how it is and I just have to deal with it. I came up with a mental picture which I still use today. A door on my former life has locked shut. It’s never going to open again. I can look through the door window and see memories but I can’t touch them. I could stand here forever but this door isn’t opening. So I have a choice. Continue to stand by the door or set off and find other doors which are still open.

    The IT’S LOVE STAGE. Linked with the Acceptance Stage. I opened a mental dictionary and found a better definition of grief. It defined grief as another word for LOVE. That sounded so reassuring to me.

    The IT’S OK TO GRIEVE STAGE. Up to now I would hide my grief. As if it’s something unhealthy, something deeply embarrassing to others. People might ask how I was doing but they appeared to rapidly change the subject if the answer I provided was not – I’m fine…..But suddenly as grief was another way of saying LOVE, suddenly it became ok to grieve. Yes it could still be so painful but it’s something I shouldn’t be hiding. It’s nothing to be ashamed about. It really is OK to be sad.

    The IT’S OK TO LAUGH STAGE. Up to now I felt bad about smiling and laughing. It was just not right. I would focus entirely on making our Son happy but shunned doing it for myself. It took well over a year but the penny finally dropped. Yes it’s ok to be sad AND YES it’s just as OK to be HAPPY.

    The IT’S OK TO LIVE AGAIN STAGE. After the funeral all my dreams died. When I looked at life I saw it entirely through our sons eyes. When I tried to see it through my eyes all I saw was blackness. Absolutely no future. However over time it became OK to live again. Remarkably I can still be happy. I can find new doors that will open and create new memories. Life can still be at times sad and painful BUT IT CAN also be fun. Just starting to dream again.

    That’s the stage I am at now. Embracing the happiness as much as I respect the sadness. Maybe, just maybe tipping the life balance in favour of fun. Yes it still can be a wonderful life.

    Sitting here

    It’s early morning and I’ve just finished my workout outside in the breezy Yorkshire air. Son is still asleep safe inside. I’m looking out into the distance and seeing no sign of human life. In the far distance you can just about see the main road leading to the coast. At this time of year it should be nose to tail with caravans and cars packed with excited families. Today it is completely deserted. I patiently waited for five minutes. Not one vehicle. Then I fall backwards and look at the heavens. An empty sky. Yes clouds and fleeting glimpses of lukewarm sun, but not one single aeroplane. To the East we can see one of the main air corridors. We often excitedly get the Flightradar24 app out and check where the many planes are heading. America, Canada, Europe, Asia. Today nothing. Not one single vapour trail.

    Has the world stopped turning?

    Three years ago our little home stopped dead yet the world kept turning. It was a harsh lesson. Even when good people leave us the vast majority of the world is oblivious. In the days after the funeral I would question

    Why has the world not stopped…..

    Well it appears to have stopped now. Yet does it help. NO.

    Later I am inside listening to music on the radio. It’s a sobering experience. Usually listeners are requesting celebratory songs for weddings, anniversaries and birthdays. Today the airwaves are frequently filled with songs dedicated to rock lovers who have lost a fight with an unseen new enemy. My heart goes out to you all. It was only a matter of time before someone requested Alter Bridge and Godspeed. The finest song I’ve come across about loss. My bereavement go to track.

    Test me once again
    You know I didn’t do anything
    Set my life on low
    You know I could have had it all
    Drifting out of place
    With no direction and no escape
    Set out all alone
    Oh to a place I don’t belong
    Without you
    I know that I must change
    Without you
    I’ll never be the same
    No
    Farewell
    Godspeed
    And goodbye
    You have lived
    And you have changed
    All our lives
    Test me all the way
    Surely you know
    I’m not afraid
    Prove now once again
    That I will never see the end
    Without you
    I know that I must change
    Without you
    I’ll never be the same
    Farewell
    Godspeed
    And goodbye
    You have lived
    And you have changed
    All our lives
    Cast away
    Our regrets and all our fears
    Just like
    Like you did when you were here
    And then the days
    They ran out
    And then the days
    They ran out
    Farewell
    Godspeed
    And goodbye
    You have lived
    And you have changed
    All our lives
    Cast away
    Our regrets and all our fears
    Just like
    Like you did when you were here
    And then the days
    They ran out
    And then the days
    They ran out

    Lyrics by Tremonti/Kennedy (source Musixmatch)

    Even after a few hours the cars and aeroplanes are still missing. The world may still have stopped. But son is finally rousing himself. Our little world cannot permanently stop. He has a childhood to live and enjoy. So one more sip of my hot drink and find that happy face. Reach for that bag of tricks we all have and find a way to shut this horrible situation out for a while. Start having as much fun as we can. Let’s keep living and hope the world starts turning again real soon.

    Stay safe my friends and I really hope you find your own way to smile. Maybe if enough of us do this then we might just be able to start the world turning again.

    Torquay

    My neighbours bird bath. Over the years it has become increasingly hard to fill. Thankfully the Yorkshire weather usually takes care of that.

    Yesterday was a decently fun day. Any day with Pizza helps. We played football in the garden. Son fired a million questions at me. Including the following belter.

    Name 10 best things about Torquay”

    We had been watching John Cleese in old episodes of Fawlty Towers. It’s set there.

    “Son your going to annoyingly tell me that you know 10 such facts”

    Actually 17 facts Dad”

    I whispered a silent bugger under my breathe.

    We then tried to watch the new Joker movie. I was watching it thinking the acting is brilliant but I’m not enjoying this in the slightest bit. Then son broke my thought pattern.

    Dad I’m really not in the mood for this. I enjoy a good bit of Joker but this isn’t a Joker movie. It’s a movie about how a country fails to deal with mental health and how people look down on others who are different. I don’t like the way the film is doing it. Let’s watch it another day.”

    So ten minutes later we had the new Shaun The Sheep movie on. That there is a movie.

    But I understand what our son was talking about. Not the right time or mood for this Joker movie. There is too much going on in the world. It is also Mother’s Day in the UK. That’s one of THOSE days…. I must admit the social distancing has severely restricted our visits to the shops. That means less chance to walk past all the cards, flowers and potential gifts. Dealing with it for just one day is better than having it rammed down our throats for weeks on end.

    I must admit this one has been less painful than the other ones we have endured. We have wished our lost mums a happy day. In my partners case we have kissed the ashes. Then so far we have gotten on with the job of making the most of today. My heart does go out to many mums today. Because of the restrictions and other factors outside of their control, they may not see kids and grandchildren today (or for many days to come). I really hope a way is found for a connection to be made. A text, a video call, a card, a cute photo, a virtual hug or a telephone call saying ‘I LOVE YOU’.

    Stay safe and to all mums out there. Sending you a big hug. Thank you for being super heroes.

    Friday I guess

    Some random daffodils blooming next to our front window. These always make me smile as they just seemed to appear one year. I can’t remember planting them. Having said that, this is me…..

    My mobile phone rang this morning. I could hear it somewhere really close but I just couldn’t find it before it rang off. A few minutes later I found me phone when I sat down. It was in my back pocket.

    This morning it took me one hour to work out that it was Friday.

    Sometimes there are no answers.

    A few months back I was asked if I had found a magic bullet, a cure for it.

    Sometimes there are no answers.

    No it wasn’t the W.H.O. approaching me as a world expert on the search for a vaccine for the pesky virus. No don’t worry, I am still the same old dim witted goofball. No it was a parent from my sons last school. She had recently lost someone close and was really low with grief. She was desperate for the pain to go away.

    Sometimes there are no answers.

    Unfortunately I’ve not found a magic bullet, no cure or no vaccine that works with bereavement. It still hits me. It still hurts me. The days became weeks, weeks became months, months became years. I’m still waiting to gain acquired immunity. The route cause remains and will always remain. But I do believe that I have started to understand myself better. I am also slowly finding things that help with the symptoms. That’s something to cling on to. Sadly the things which help me, may not work for others. There is also no guarantee that what works today, will work tomorrow for me. I guess that’s the case not only for bereavement but for many other areas of life.

    So what works for me (sometimes…)

    • Exercise, weights and running
    • Music
    • Movies
    • Nature
    • Walking
    • Climbing (I haven’t been able to climb in 4 years but just reading about it helps)
    • AND above all focusing on making our son happy.

    Today was one of those days when virtually everything on the list did not work. All I could do was throw myself into keeping son happy. That distracted me. It got me through the day. It numbed the symptoms but didn’t cure the route cause. Now it’s 2am and those dark soul symptoms are bubbling away again. Probably going to be a long sleepless night. Will watch some rubbish TV and will again ponder over the home finances spreadsheet. Don’t know why – it’s not going to look any better when I’m tired.

    It’s a brand new day. A fresh start. The old problems and hurt will still be there. But maybe, just maybe it will be symptom free day and it will be a good one.

    Stay safe my friends.

    Dreams pesky dreams

    If I was a flower I wonder what dreams I would have.

    Before my partner died I would have the occasional dream that I could remember, but not that often. My sleep would be disrupted but usually by our son. Plus back then, when there are two of you can take turns on the sleepless shifts.

    Then after my partner died sleep became increasingly disrupted. Son has always had an interesting sleep pattern. Whatever we have tried has never managed to change that. Eventually the health professionals just called it – it is how it is for him, it works for him, so just run with it. Basically his mind and body are too active for sleep anything south of midnight. He will usually fall asleep between midnight and 1am. Then he will sleep until 6am until his mind and body kick into active mode again. When he was younger he would constantly wake during that time, so one of us would need to be with him to get him back to sleep. But as he’s got older he more often than not sleeps through. A couple of times a week he will still wake and I get the night visits. Checking I’m still here, wanting an answer to a question or wanting to tell me a fact.

    Dad Harold (that’s Harold II) was not the last english Saxon king. William beat Harold on the 14 October 1066 but wasn’t officially crowned until the 25 December. In theory Edgar Atheling (Edgar II) was king. He had the strongest blood claim to the throne. Night Dad.

    But as our son’s sleep has stabilised my dream pattern has increasingly disrupted mine. It takes an age for me to get to sleep then all to quickly a vivid dream wakes me and then that’s usually it for the night – no more sleep.

    The dreams have also changed. I have had three distinct dream stages. Each stage has its own unique dream type – each night its the same sort of dream.

    The reliving fond memories stage. This was the nicest, yet saddest stage. The dreams would relive completely accurately lovely memories. Maybe a holiday trip, a birthday, an early date with my partner, finding out when we we’re going to be a family….

    The bizarre memory stage. Then suddenly the dreams changed. They still were based on fond memories but always morphed in some bizarre way. A dream about a lovely family trip to a petting zoo, but in the dream the cute little animals were replaced by dinosaurs – we still petted them. A dream about sledging with son on one of our few proper snow days. But in the dream the white snow had become pink.

    The current dream stage. The weird/unsettling dreams. No more dreams based on real life memories. Just unsettling made up dreams. Last night for example my partner (who was pregnant) and I had gone shopping in this made up out of town shopping complex. We had gone into a huge furnishing store. We found some items we needed and I went looking for a shopping trolley. Couldn’t find any trolleys inside, so I looked out in the car park. Still no trolleys. So I walked across to the next store which was a supermarket (ASDA). They had trolleys but they needed a coin to release them. None of my coins would work. I then couldn’t find our car to get more coins. So I ran down a short slip road to the next group of shops. Here the trolleys were all vandalised. I ran down another slip road to the another shop which was a huge DIY store. They had trolleys but they wouldn’t push correctly. It took all my strength to move them a few inches. Finally I found an electronics shop which had trolleys that worked. But now as hard as I tried I just couldn’t find my way back to the first store with my partner who would be getting increasingly annoyed with me. I was now completely lost and in full panic mode. Then I woke up. Now I was completely unsettled and that was it for sleep. Too tired to read or blog. So all I could manage was to watch crappy TV and listen for the clock to tick round until son woke up.

    I look back with fondness at those memory dreams. Even those bizarre Dino type memory dreams. Yes they could be sad but they where a wonderful gateway into the past. But these current dreams I really hate. No sweet memories here just my brain finding new ways to unsettle my soul. Sleep is now something I desperately need, yet I struggle to do it. It is also becoming something which brings me nothing but stress. I hate being stuck in this ever decreasing sleepless circle.

    Sausage Roll

    Castle Howard is only a few minutes drive from our house. The photo is Castle Howard not our house. Sadly we don’t go that often now as it’s so expensive. Which is a shame as it’s truly stunning stately home.

    Work came to a premature end at 10am this morning. That’s the deal with zero based contracts. Yes they are flexible and can fit round being a single parent but absolutely no guarantee of work. So a deep blue sky beckoned a first run in ages. The plan was to drive home and just run from the bungalow. But without really thinking I pulled over at the next village when I saw an enticing path sign. I thought ‘well lets see where this takes me’. The answer was stunning run which skirted the edge of the Castle Howard estate. All for free.

    My trail shoes don’t have much tread left on them so I was taking a bit of a risk running down a steep muddy bank. I lost….. A sudden grip failure resulted in a crunching fall followed by several rolls down the steep slope. All sides completed covered in mud. After a few minutes the mud began to dry in the sun. I now know what it feels like to be a sausage in a sausage roll…..

    After the painful and slightly embarrassing slog the run flattened out. The reward was glorious views of Castle Howard and the Estate. I had the trail to myself which gave me time to think. Probably too much time. It’s at times like this that my mind wanders to what has been lost. At least with running I do have a release valve. Just run quicker. It works but wow I’m knackered when I finish.

    It was a wonderful run around a stunning track. My partner would have loved it. She would be definitely walking rather than running. I was sad that she never got to see these views. I will just have to look for the both of us. I really hope that works for her.

    Castle

    Sheriff Hutton Castle is over 850 years old and was built during the reign of King Stephen. Later Richard III acquired the castle through marriage. He made the castle one of the two sites for his Council of the North. The Council was his method of running the North after he became King of England. It has since fallen into ruin. It’s recently been sold for just over £1Million. It is our local castle.

    Seven years ago we nearly bought a house which backed onto this castle. The castle was only 30 paces from the garden. An epic garden view. It was at a time when we we’re going to try for a second child. So we needed a house with an extra bedroom. This house ticked so many boxes. To me being so close to a castle seemed so exciting. However in the end we didn’t buy the house and sadly my partners health soon ruled out another member of our family. Every time I pass the castle my mind wanders off to what might have been.

    There where a few reasons why we didn’t move here. One of the main reasons was our son. At that time a carefree, gregarious toddler had quickly transitioned into the world of Aspergers. Suddenly his world was populated with doctors, psychologists and other health professionals. It must have been so scary and disorientating for him. The one place he felt safe was our little bungalow on the hill. The bungalow was all things to him.

    His Panic Room

    His Safety Zone

    His Dream World

    An Exclusion Zone for the many who looked at him differently because of one word

    His Play Zone

    His World

    It was the only place he felt comfortable and relaxed. From our experience Aspergers seemed to loosen and destroy all of our sons life foundations. Life became precarious and the slightest disturbance could bring everything crashing down. His little bungalow was one of the few things which was still secure and stable. The last thing he needed was for that to be torn down as well. So we decided to stay.

    We are still here in that little bungalow on the hill. It’s still such a safety net for our son. A place he feels secure and at ease in. It still excludes those who discriminate. The garden fences mark the boundaries to his world. His ramparts. In a way it is his very own modern castle.

    The road

    The road often seems so long and never ending. Somedays it is, especially when your trying to run along it straight into the teeth of a biting north wind. Absolute purgatory. But then other days the road is short and manageable. Even in my rubbish car it only takes a couple of minutes to drive it. It’s good to remind myself this every so often.

    In those dreadful early days of being a widow and a single parent the journey in front of me looked so daunting. So beyond me. A road with seemingly no end. I would shake my head and just think – I can’t do this. Yet I still set off down that road. I didn’t want to but I was faced with no choice. I was a parent to a young kid who has just lost his mum. He’s was also trying to get his head round not being able to read and that new word – Aspergers. I owed it to him to at least try. Nobody else would. It was down to me.

    He only gets one childhood and it better be as brilliant as is humanly possible.

    So I started down that road. I had no idea where the road led to. I was so confused. As a result I was hoping to find a ready made parenting plan – an easy to navigate road map. As hard as I tried I just couldn’t find a map which I could use. I searched everywhere. So many books and articles were scoured over for that magic road map. But in the end it was a futile search. No one is going to do this for me. No easy shortcuts had been forged by others. It was down to me and I needed to own it.

    Fast forward to 2020 and I’m still here. Still a widow. Still a single parent. Still slightly confused. Still travelling that road. Still haven’t come across a map. But there is a difference. That road doesn’t quite feel so daunting. It doesn’t feel quite so long now. That’s progress in my book.