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Hotel Window

Another cold start. I’m calling it an official three jumper day.

One of those cold starts that as hard as you work out, or regardless of how many warm layers you put on – your still cold.

The first week of schools version of homeschooling has now finished. Some subjects did embrace the opportunity. These offered the child a chance to be creative and to see where their learning interest would take them. Sadly that was not much of the week. Most of the lessons reflected the normal parrot learning teaching approach. What is the point of getting someone with dyslexia to translate page after page of French (without any context or help). What is the point of setting an online spelling test where the spoken words are so rare that I had to look every one up in a dictionary to see if they actually existed.

But he survived. The parent got through it as well. So that’s something.

Whether it was my lack of sleep, the unremittingly grim news or a week of homeschooling but last night I couldn’t get a thought out of my mind. Maybe, just maybe this is our world now. No more holidays. No more new lands. No more Switzerland. Certainly the financial shock of the next few months will take me a number of years to repair the bank balance. Generally travel may become more difficult over the next few years. Aspergers and the fear of social interactions is certainly not going away any time soon. So maybe that’s it with travel.

That’s sad but actually there is more to life than travel. So much to see and visit close by if it comes to that. Anyway we have not had a holiday since 2015 so we are used to it anyway. Doing virtual tours is a fun, safe, environmentally friendly and is so much cheaper. Then a thought crossed my mind. It was inspired by Basil Fawlty (John Cleese) while we watched Fawlty Towers. Basil was getting seriously cheesed off with a guest who was disappointed with the view from the bedroom window.

“Well may I ask what you expected to see out of a Torquay hotel bedroom window? Sydney Opera House perhaps? The Hanging Gardens of Babylon? Herds of wildebeest sweeping majestically”

Actually could we scale the virtual tours up a notch. Why don’t I pick a window with a chair next to it. Then why don’t I stick a poster or large photo over the window glass. Suddenly my view of say the trampoline could be transformed into whatever I fancy. I’ve seen other people do this in the past. So tomorrow I am going poster hunting. Got a couple of belting posters of The Alps to find.. But in the meantime I’m hoping my bedroom window will look something like this.

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Gnomeless

Maybe it’s my dear parents influence but I’ve always liked a garden gnome. But for years we had a problem. My partner hated them. Which is unusual as she was the kindest soul going. Never a bad word about anyone. All except gnomes. She had serious issues with them. When I suggested the garden would benefit from at least one of these sweet little chaps the response was razor sharp

If I find one in the garden then it’s getting smashed with a hammer….

Even when I suggested that a gnome would significantly raise the IQ in the garden when I was gardening alone, the response was similarly brutal

The garden gnome will get it then your next…..

What I will now tell you will probably get a really pissed off spirit coming my way. I might have ignored my partner just a tad. A few gnomes did get sneaked into the garden. To ensure their life expectancy was measured in days rather than seconds they needed to go into deep cover. Very deep cover. The compost heap, under bushes, hid behind plant pots. Unbelievably a few survived the inevitable apocalypse.

One such hardy soul is still with us. Now he is enjoying life in the open. He has long forgotten the long years buried under the hedge. He’s a gnome from my favourite footy team. He’s over 20 years old and is still to see his team win anything. What was I thinking of when as a toddler when I picked Newcastle United as my team. I could have picked a team which won things. No I picked the team which is in a permanent state of chaos, a never ending winless soap story. No wonder the poor gnome looks so washed out. I went through a stage of telling the gnome the teams results. Unfortunately as that usually entailed breaking the bad news of another defeat I changed to just letting him know of good team news. As a result I haven’t spoken to the gnome in years…….

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Air Display

We had an unexpected visitor.

A spectacular predator.

For a few minutes we had one of nature’s great air displays. Then it was off.

That was so lucky. Would have been so easy to miss this.

That brings to mind a slightly unsettling thought. How many of us would be missed if suddenly we were gone. Kinda like Marvels Infinity Wars. It’s an even more pertinent thought these strange days. So many of us are undertaking social distancing or full on isolation. Social links have been severed. If something goes wrong, if we are struggling, if we suddenly were gone – WHO would realise. Would the world even blink. Maybe not. That includes my own little family. Phone calls, visits, invites are rare at the best of times. Even rarer now. Would the world blink for us – no it probably wouldn’t. That’s a sobering thought. It’s a sobering thought for many of us.

But I guess that’s life. So we just have to deal with it. Keep our hearts open to others and just keep living. I’m lucky as I stumbled across the blogging universe.

The majestic raptor fly past is a great reminder of why living is so worth it.

Posted on by bereavedandbeingasingleparent · 74 Comments

Torquay

My neighbours bird bath. Over the years it has become increasingly hard to fill. Thankfully the Yorkshire weather usually takes care of that.

Yesterday was a decently fun day. Any day with Pizza helps. We played football in the garden. Son fired a million questions at me. Including the following belter.

“Name 10 best things about Torquay”

We had been watching John Cleese in old episodes of Fawlty Towers. It’s set there.

“Son your going to annoyingly tell me that you know 10 such facts”

“Actually 17 facts Dad”

I whispered a silent bugger under my breathe.

We then tried to watch the new Joker movie. I was watching it thinking the acting is brilliant but I’m not enjoying this in the slightest bit. Then son broke my thought pattern.

“Dad I’m really not in the mood for this. I enjoy a good bit of Joker but this isn’t a Joker movie. It’s a movie about how a country fails to deal with mental health and how people look down on others who are different. I don’t like the way the film is doing it. Let’s watch it another day.”

So ten minutes later we had the new Shaun The Sheep movie on. That there is a movie.

But I understand what our son was talking about. Not the right time or mood for this Joker movie. There is too much going on in the world. It is also Mother’s Day in the UK. That’s one of THOSE days…. I must admit the social distancing has severely restricted our visits to the shops. That means less chance to walk past all the cards, flowers and potential gifts. Dealing with it for just one day is better than having it rammed down our throats for weeks on end.

I must admit this one has been less painful than the other ones we have endured. We have wished our lost mums a happy day. In my partners case we have kissed the ashes. Then so far we have gotten on with the job of making the most of today. My heart does go out to many mums today. Because of the restrictions and other factors outside of their control, they may not see kids and grandchildren today (or for many days to come). I really hope a way is found for a connection to be made. A text, a video call, a card, a cute photo, a virtual hug or a telephone call saying ‘I LOVE YOU’.

Stay safe and to all mums out there. Sending you a big hug. Thank you for being super heroes.

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Friday I guess

Some random daffodils blooming next to our front window. These always make me smile as they just seemed to appear one year. I can’t remember planting them. Having said that, this is me…..

My mobile phone rang this morning. I could hear it somewhere really close but I just couldn’t find it before it rang off. A few minutes later I found me phone when I sat down. It was in my back pocket.

This morning it took me one hour to work out that it was Friday.

Sometimes there are no answers.

A few months back I was asked if I had found a magic bullet, a cure for it.

Sometimes there are no answers.

No it wasn’t the W.H.O. approaching me as a world expert on the search for a vaccine for the pesky virus. No don’t worry, I am still the same old dim witted goofball. No it was a parent from my sons last school. She had recently lost someone close and was really low with grief. She was desperate for the pain to go away.

Sometimes there are no answers.

Unfortunately I’ve not found a magic bullet, no cure or no vaccine that works with bereavement. It still hits me. It still hurts me. The days became weeks, weeks became months, months became years. I’m still waiting to gain acquired immunity. The route cause remains and will always remain. But I do believe that I have started to understand myself better. I am also slowly finding things that help with the symptoms. That’s something to cling on to. Sadly the things which help me, may not work for others. There is also no guarantee that what works today, will work tomorrow for me. I guess that’s the case not only for bereavement but for many other areas of life.

So what works for me (sometimes…)

  • Exercise, weights and running
  • Music
  • Movies
  • Nature
  • Walking
  • Climbing (I haven’t been able to climb in 4 years but just reading about it helps)
  • AND above all focusing on making our son happy.

Today was one of those days when virtually everything on the list did not work. All I could do was throw myself into keeping son happy. That distracted me. It got me through the day. It numbed the symptoms but didn’t cure the route cause. Now it’s 2am and those dark soul symptoms are bubbling away again. Probably going to be a long sleepless night. Will watch some rubbish TV and will again ponder over the home finances spreadsheet. Don’t know why – it’s not going to look any better when I’m tired.

It’s a brand new day. A fresh start. The old problems and hurt will still be there. But maybe, just maybe it will be symptom free day and it will be a good one.

Stay safe my friends.

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Dreams pesky dreams

If I was a flower I wonder what dreams I would have.

Before my partner died I would have the occasional dream that I could remember, but not that often. My sleep would be disrupted but usually by our son. Plus back then, when there are two of you can take turns on the sleepless shifts.

Then after my partner died sleep became increasingly disrupted. Son has always had an interesting sleep pattern. Whatever we have tried has never managed to change that. Eventually the health professionals just called it – it is how it is for him, it works for him, so just run with it. Basically his mind and body are too active for sleep anything south of midnight. He will usually fall asleep between midnight and 1am. Then he will sleep until 6am until his mind and body kick into active mode again. When he was younger he would constantly wake during that time, so one of us would need to be with him to get him back to sleep. But as he’s got older he more often than not sleeps through. A couple of times a week he will still wake and I get the night visits. Checking I’m still here, wanting an answer to a question or wanting to tell me a fact.

Dad Harold (that’s Harold II) was not the last english Saxon king. William beat Harold on the 14 October 1066 but wasn’t officially crowned until the 25 December. In theory Edgar Atheling (Edgar II) was king. He had the strongest blood claim to the throne. Night Dad.

But as our son’s sleep has stabilised my dream pattern has increasingly disrupted mine. It takes an age for me to get to sleep then all to quickly a vivid dream wakes me and then that’s usually it for the night – no more sleep.

The dreams have also changed. I have had three distinct dream stages. Each stage has its own unique dream type – each night its the same sort of dream.

The reliving fond memories stage. This was the nicest, yet saddest stage. The dreams would relive completely accurately lovely memories. Maybe a holiday trip, a birthday, an early date with my partner, finding out when we we’re going to be a family….

The bizarre memory stage. Then suddenly the dreams changed. They still were based on fond memories but always morphed in some bizarre way. A dream about a lovely family trip to a petting zoo, but in the dream the cute little animals were replaced by dinosaurs – we still petted them. A dream about sledging with son on one of our few proper snow days. But in the dream the white snow had become pink.

The current dream stage. The weird/unsettling dreams. No more dreams based on real life memories. Just unsettling made up dreams. Last night for example my partner (who was pregnant) and I had gone shopping in this made up out of town shopping complex. We had gone into a huge furnishing store. We found some items we needed and I went looking for a shopping trolley. Couldn’t find any trolleys inside, so I looked out in the car park. Still no trolleys. So I walked across to the next store which was a supermarket (ASDA). They had trolleys but they needed a coin to release them. None of my coins would work. I then couldn’t find our car to get more coins. So I ran down a short slip road to the next group of shops. Here the trolleys were all vandalised. I ran down another slip road to the another shop which was a huge DIY store. They had trolleys but they wouldn’t push correctly. It took all my strength to move them a few inches. Finally I found an electronics shop which had trolleys that worked. But now as hard as I tried I just couldn’t find my way back to the first store with my partner who would be getting increasingly annoyed with me. I was now completely lost and in full panic mode. Then I woke up. Now I was completely unsettled and that was it for sleep. Too tired to read or blog. So all I could manage was to watch crappy TV and listen for the clock to tick round until son woke up.

I look back with fondness at those memory dreams. Even those bizarre Dino type memory dreams. Yes they could be sad but they where a wonderful gateway into the past. But these current dreams I really hate. No sweet memories here just my brain finding new ways to unsettle my soul. Sleep is now something I desperately need, yet I struggle to do it. It is also becoming something which brings me nothing but stress. I hate being stuck in this ever decreasing sleepless circle.

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Brakes

A stream about 5 miles from our little bungalow. Near the boundary of my current world.

It’s funny as a kid I always thought that my world was a small place. We didn’t have much money so holidays would tend to be just day trips on the train to places like Whitby and Scarborough. If we we’re lucky a school trip would take us maybe 50 miles in land. Dad had a car but it was only used sparingly – just for getting him to work. I remember watching exotic places on the TV and thinking one day I want to see them. I looked at books about mountains and so wanted to see The Eiger, The Matterhorn, K2 and Everest. I always thought that as I got older I would travel more. My world would grow and the world would shrink.

For a time it did workout that way and yes I did get to see The Eiger and The Matterhorn. I visited parts of Europe. I even got to see South Africa.

Then the world shifted again. Autism. Bereavement. Money concerns.

Now I find my world rapidly shrinking again and the world growing ever larger. Increasingly son sees comfort in his own little world. Our house, garden and the landscapes that immediately surround him. Longer travel is so difficult for him. It has to be mapped out and carefully controlled. That’s before we factor in the limiting factors of travel as a single parent and money constraints. My world is shrinking again. Even work has to operate within these constraints. My world has shrunk. One of the few bridges into the wider world is the occasional concert. These still work for our son.

We are due to travel to see The Who play in a couple of weeks. We will have to travel by car as public transport here is minimal and stops by evening. Regardless of its availability son struggles with buses, trains and planes. These are likely to induce panic attacks. So we travel everywhere on foot or by car.

Two weeks ago the car was in for a service. They found problems with the brakes which needed some parts to be replaced. The garage said I was ok to drive it for a couple of weeks until the garage could fix it. So this Monday was supposed to be the repair day. The garage phoned today to apologise. They we’re going to have to cancel the repair for a few weeks. They just can’t get the parts. The Parts Suppliers are out of stock and are waiting for new items to arrive from China. The garage is a national chain and all the branches are out of these parts. Apparently all the other rival garages in the area are in the same boat. So the repair is on hold. The suppliers are hoping to have new stock arrive soon but that may not be until April. So I’ve been told to try and really limit the car use until the parts turn up. My world shrinks further.

So in a mirror image of my childhood – the car will only be used sparingly. Just for the occasional short distance work trip and the school runs. A long distance concert trip is probably not a practical option.

My world has shrunk again but as ever we will make the best of it. Think our carbon footprint. Think more fun at home. Enjoy what we have on our doorstep.

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Sausage Roll

Castle Howard is only a few minutes drive from our house. The photo is Castle Howard not our house. Sadly we don’t go that often now as it’s so expensive. Which is a shame as it’s truly stunning stately home.

Work came to a premature end at 10am this morning. That’s the deal with zero based contracts. Yes they are flexible and can fit round being a single parent but absolutely no guarantee of work. So a deep blue sky beckoned a first run in ages. The plan was to drive home and just run from the bungalow. But without really thinking I pulled over at the next village when I saw an enticing path sign. I thought ‘well lets see where this takes me’. The answer was stunning run which skirted the edge of the Castle Howard estate. All for free.

My trail shoes don’t have much tread left on them so I was taking a bit of a risk running down a steep muddy bank. I lost….. A sudden grip failure resulted in a crunching fall followed by several rolls down the steep slope. All sides completed covered in mud. After a few minutes the mud began to dry in the sun. I now know what it feels like to be a sausage in a sausage roll…..

After the painful and slightly embarrassing slog the run flattened out. The reward was glorious views of Castle Howard and the Estate. I had the trail to myself which gave me time to think. Probably too much time. It’s at times like this that my mind wanders to what has been lost. At least with running I do have a release valve. Just run quicker. It works but wow I’m knackered when I finish.

It was a wonderful run around a stunning track. My partner would have loved it. She would be definitely walking rather than running. I was sad that she never got to see these views. I will just have to look for the both of us. I really hope that works for her.

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Castle

Sheriff Hutton Castle is over 850 years old and was built during the reign of King Stephen. Later Richard III acquired the castle through marriage. He made the castle one of the two sites for his Council of the North. The Council was his method of running the North after he became King of England. It has since fallen into ruin. It’s recently been sold for just over £1Million. It is our local castle.

Seven years ago we nearly bought a house which backed onto this castle. The castle was only 30 paces from the garden. An epic garden view. It was at a time when we we’re going to try for a second child. So we needed a house with an extra bedroom. This house ticked so many boxes. To me being so close to a castle seemed so exciting. However in the end we didn’t buy the house and sadly my partners health soon ruled out another member of our family. Every time I pass the castle my mind wanders off to what might have been.

There where a few reasons why we didn’t move here. One of the main reasons was our son. At that time a carefree, gregarious toddler had quickly transitioned into the world of Aspergers. Suddenly his world was populated with doctors, psychologists and other health professionals. It must have been so scary and disorientating for him. The one place he felt safe was our little bungalow on the hill. The bungalow was all things to him.

His Panic Room

His Safety Zone

His Dream World

An Exclusion Zone for the many who looked at him differently because of one word

His Play Zone

His World

It was the only place he felt comfortable and relaxed. From our experience Aspergers seemed to loosen and destroy all of our sons life foundations. Life became precarious and the slightest disturbance could bring everything crashing down. His little bungalow was one of the few things which was still secure and stable. The last thing he needed was for that to be torn down as well. So we decided to stay.

We are still here in that little bungalow on the hill. It’s still such a safety net for our son. A place he feels secure and at ease in. It still excludes those who discriminate. The garden fences mark the boundaries to his world. His ramparts. In a way it is his very own modern castle.

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The road

The road often seems so long and never ending. Somedays it is, especially when your trying to run along it straight into the teeth of a biting north wind. Absolute purgatory. But then other days the road is short and manageable. Even in my rubbish car it only takes a couple of minutes to drive it. It’s good to remind myself this every so often.

In those dreadful early days of being a widow and a single parent the journey in front of me looked so daunting. So beyond me. A road with seemingly no end. I would shake my head and just think – I can’t do this. Yet I still set off down that road. I didn’t want to but I was faced with no choice. I was a parent to a young kid who has just lost his mum. He’s was also trying to get his head round not being able to read and that new word – Aspergers. I owed it to him to at least try. Nobody else would. It was down to me.

He only gets one childhood and it better be as brilliant as is humanly possible.

So I started down that road. I had no idea where the road led to. I was so confused. As a result I was hoping to find a ready made parenting plan – an easy to navigate road map. As hard as I tried I just couldn’t find a map which I could use. I searched everywhere. So many books and articles were scoured over for that magic road map. But in the end it was a futile search. No one is going to do this for me. No easy shortcuts had been forged by others. It was down to me and I needed to own it.

Fast forward to 2020 and I’m still here. Still a widow. Still a single parent. Still slightly confused. Still travelling that road. Still haven’t come across a map. But there is a difference. That road doesn’t quite feel so daunting. It doesn’t feel quite so long now. That’s progress in my book.