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Line them up

Well the nurse counsellor did arrive. At the height of the storm. Due to working restrictions she was not allowed in the house. So it was plan b. Move my car next to the counsellor’s car. Windows down and you have a mobile meeting facility. The session went well. The counsellor seems really good. It’s a start. Start of a long road. But a start it is.

He will now get appointments every two weeks now. Let’s hope progress can be made. The counsellor is also going to write to the school to confirm that he is under health care at present and is not medically cleared to return. Hawklad has come to the conclusion that he just can’t go back to school at present. Even with professional help now, this could take many months before school might become a possibility for him. Until he can feel be reasonably comfortable being around people and ok to touch surfaces then school is but a pipe dream. Will he ever go back – just don’t know.

The Deputy Chief Medical Officer yesterday said that schools were perfectly safe. Apparently children are more at risk from road accidents than from catching the virus. I can’t think of many more insensitive ways of making a point – that’s going to really hurt those families who have lost loved ones on the road. I’m also not entirely reassured by her words. I remember a few other of her words over the last few months

  • The Government response to the pandemic has been exemplary……
  • The UK pandemic approach had been very successful……
  • Large Public Gatherings and Sporting events are perfectly safe, no need to stop attending them. That was at a time Europe had banned those and a few days later we did the same. She even encouraged people to attend the countries largest horse racing event just a couple of days before the country went into lockdown – the infection spread from that event has been scary.
  • People should be more adult when they discussed PPE shortages. It wasn’t such a big issue for healthcare and care workers…..
  • The UK didn’t need to test, test, test for the virus as we were a First World Country.

We all want to get schools open. But it has to be done correctly. Just grouping kids into giant year group bubbles then squeezing them back into cramped classrooms with at least 30 other people isn’t good enough. Asking kids to wear masks on buses, sometimes in corridors and not in classrooms is just a mess. Not exploiting online education to ease some of the space issues is a massive mistake. Only offering testing after the virus has been encountered just repeats the mistakes we have repeatedly made as a country. We’ve had months to get this school return right.

I really feel for those parents and children who are returning to schools. For some it is a easy decision and the return can’t come quick enough. For others it is not easy. For those with underlying health conditions it is a calculated risk. For us that decision has probably been kicked into touch for a while longer.

Don’t you just love 2020.

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Weeds weeds weeds

In this photo the farmers field looks well kept, flat with short grass. In reality it’s like walking over a minefield. No flat bits, huge holes, long grass, thistles and presents from the farm animals. Maybe I should try taking a long distance photo of our garden. It might look semi tidy. Ha Ha Ha

Yes we currently have a well cut lawn – well if you ignore the beautiful mole hills and badger diggings. That’s also conveniently ignoring the rampant moss growing amongst the grass. The other parts of the garden are not good at all. It’s an uncoordinated mix of weeds, flowers, more weeds and vegetables. I was hoping the theory that ‘beauty can be found in the random’ might be true. Always an exception to the rule.

Apparently some vegetables in that mess
A bit of a tidy up has started…

Then looking on in amazement at Erika’s wonderful garden. Now that’s a garden. Looking at Derrick’s stunning garden. Now that’s a garden. Time to convert that amazement into action. Time to ditch the random…

I’m in planning mode. Making plans for a potential future road trip to Switzerland and Lichtenstein. Making plans for a dream trip to another continent. Now making plans for the garden. That’s a plan that I can start to implement NOW. If we are going to be garden bound, might as well make it a nice one. Under orders from Hawklad the plan will need to include a rock pool and a weed section. Well with the Yorkshire rain we won’t need to worry about refilling the pool and weeds – we have plenty of those. That’s a good start.

It’s also a good check on my life in general as well. My life has become far too cluttered. Too messy. Trying to fight on too many fronts at the same time. Not sure of what my priorities are. Just like the garden, it’s become overgrown and confusing. I then don’t seem to achieve enough. Lose sight of the path ahead. So yes a garden plan is good, a new life plan would be really good. That way I can really focus on what is special to me.

Posted on by bereavedandbeingasingleparent · 62 Comments

Snappy

Lockdown did have some advantages. One being – No Aeroplanes. Something about seeing a sky without any evidence of man made birds which are polluting the atmosphere. Now the number of vapour trails are slowly rising but clearly not back to the crowded skies of pre pandemic times. Which is still a bit of a win for the planet. Got to be pleased about that.

I did something that I’m not pleased about. Not at all. I snapped at Hawklad. Not a massive snap, but still a snap. Some post arrived and I quickly put the offending letters into the designated quarantine area. I quickly washed my hands then headed out to cut the grass.

“Dad have you washed your hands.”

“Which towel did you use.”

“Which soap did you use.”

Then…

“I don’t think you washed your hands for long enough. Can you wash them again.”

Maybe I was tired. Maybe it’s because I had gone 16 hours without food. Maybe I just wanted to get the grass cut before it rained. Maybe I was annoyed at myself for not washing my hands for long enough in the first place. Maybe it’s being seemingly stuck in Groundhog Day. For whatever reason, I snapped. Slammed the front door shut, did that teenage sigh, let out a little mild expletive, stomped to the bathroom and purposely washed in the noisiest fashion possible. Not massive stuff but unusual for me. We’ve all been there. Even Super Hero Parents are human…….

I quickly apologised and went outside to cool down. Easily done in today’s Yorkshire weather. All I could think about was school. What happens if he does decide to go back on the 11th September. His hyper hygiene mode will meet a school system which is basically winging it. Maybe they could make Hawklad into the Hygiene Monitor. Wow he would sort out the teachers and pupils. Definitely the iron fist of authority. But in all seriousness, the teachers and other kids will just not have the time or inclination to get anywhere near the hygiene levels that he’s got used to at home. The levels he needs for his own well-being. I can see some of the less patient teachers issuing so many negatives to him. But that was me just a few moments ago.

So more food for thought. As is the fact that in the broken cloudy skies, I can see three vapour trails. That’s the most in months…..

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Midday

Still summer is glorious. Had been hoping to get outside, have a chat and be creative with a pencil, but the weather is just not playing ball. This is midday…..

The school at home project has allowed this Dad to see some practical evidence of the progress and issues which son has with his learning process. The level of insight that is just not provided to parents from schools. Maybe in class sizes approaching 30 this type of insight is just not collected.

After these 3 months I have a better grasp on the dyslexia position. The feedback from school has been limited to

  • He has reading problems,
  • He is doing quite well in spelling tests.

That’s it…. Nothing else in just under two years.

So what insight has the last 3 months provided.

  • His reading has developed. I would estimate that he can read unaided about 50% of words. If he takes his time he can try to sound some of the missing words out, eventually arriving at a word he’s heard of before. The other words at school he’s been guessing or just ignoring. At home he’s happy to ask for help with words. Even allowing me to read out particularly difficult sections,
  • His dyslexia is more pronounced when he’s doing handwriting.
  • He finds it easier to type out answers. It’s a long process as his typing is not quick. He also struggles to see when the predictive text function selects the wrong word.
  • With certain word patterns it doesn’t matter how many times he sees the word, it’s like he is seeing the word for the first time.
  • When he gets tired the dyslexia flares up with greater force. Regular breaks really help. The optimum time appears to be 20 minute work blocks with short breaks.
  • Number dyslexia is still a problem. 6’s and 9’s are easily switched, especially when a decimal point is introduced into the number.

I’m not a trained teacher but I have a valuable quality which many teachers don’t get in UK schools. Quality time. Time to focus on one pupil. That is something which is not permitted under the current government led approach. An approach based on schools operating like automated production lines. That must be another vote for homeschooling…..

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Service

Maybe I can call our little part of the world a Rose Garden. Makes a change from Jungle or Weedville.

Well so far we have survived the boiler service. The chap turned up and to be fair to him, he did use a mask and gloves. He did confirm that it wasn’t me being a muppet. It had fuel. It was turned ON. He explained that it was the oldest boiler he had seen in ages. Possibly over 40 years old. It’s poor motor had finally died. Unbelievably he found a replacement motor in the van that just about fitted. So with a hefty bill winging my way he departed. Apparently after all those years it is still working at 90% efficiency. Wish I was that good at 40.

The thought of an outsider entering the house sent son into an anxiety meltdown. Unplanned visitors is not easy at the best of times for someone with Aspergers. But during a pandemic…..

To try and keep a lid on his anxiety we agreed a decontamination protocol. Thankfully this was carried out to the letter.

  • The service person wore masks and gloves,
  • He only entered the house via the back door,
  • He only ventured into one room,
  • After he finished I quickly disinfected the room and the door he used,
  • That room and that side of the house was then closed off for 3 days,
  • As was the path which the serviceman walked across,
  • I than had a shower and completely changed clothes.

It might seem OTT but to our son this was the bare minimum which was acceptable to him. His way of protecting his safe place. He will be much less stressed out when that part of the house comes out of lockdown. Later we had a chat about all things pandemic and his anxieties. Clearly we won’t be dropping our local procedures for a considerable time. Putting aside the merits of homeschooling debate, I just can’t see how he cope function in a public environment any time soon. Certainly not in a crowded school at the start of September. Thankfully the concerts we were due to see have been cancelled. (The Who, Whitesnake, Foreigner, Europe, Aerosmith, Hollywood Vampires). We are down to just two in October now. Deep Purple and Ozzy. But I just can’t see them happening as well.

So maybe we start to adopt a mindset that actually our enforced house and garden lockdown will last into 2021. Will need to think about that. What additional things do we have to put in place to ensure that we both can continue to enjoy life for all those months. Maybe that industrial sized ice cream and slush puppy machine is not such a far fetched idea……

Posted on by bereavedandbeingasingleparent · 67 Comments

Wembley

The Yorkshire version of Wembley Stadium. Can you spot the pet trying to once again sneak into the photo.

Even comes with a discerning crowd.

If Aspergers Parenting was a football game, well today feels like we have had a key player sent off….

I always naively assumed that if and when son got an official diagnosis then a support package would be out in place to help with his life chances. How silly of me. I didn’t count on year after year, having to fight the system. Trying to prize just the hints of support from a system which has been hammered into the ground by a Government which only looks after itself and it’s friends. To summarise

  • A school system repeatedly fails kids who do not fit into the factory production line which is the UK school system. Two options, either fight for a place in one of the few special schools or accept your child being bracketed as ‘low attainment’ and consigned to the bottom set. The school will then forget about the child and then pat itself on the back if the child gets just one certificate.
  • Letter after letter, call after call trying to find a clinician who is prepared to look at your child’s case.
  • Passed from specialist to specialist who don’t have the time or resources to add your child onto their case load.
  • Service after service cut by a Government which believes that only the rich should be able to buy access to essential healthcare. A Government that sees Mental Health as no more than an excuse to avoid work. Let’s not forget they described a child taking time off from school after a bereavement as an extended holiday.
  • When you do finally get access to a service you then join the growing waiting list. Finally when your child is seen it’s virtually always by someone new, with no understanding of the back story.
  • Finally your child starts to get older and the few services he has had access to are withdrawn as he is now above the age threshold. You see the Government likes to think that after 13, services are pointless and far too expensive. Adults have to sort themselves out.

We have had three brilliant exceptions to this.

  • A Clinical Psychologist who worked with out son consistently for three years. She even delayed her retirement to ensure son’s diagnosis was officially approved.
  • An Occupational Therapy service that worked with him every few months to help with things like coordination. A service which was cut when he reached 13.
  • A wonderful Nurse Counsellor who worked with our son for 3 years helping with his anxieties and joining the fight for additional help.

We entered June 2020 with just the Nurse Counsellor left from his entire care package. And now the player is sent off.

The Nurse phoned today to let us know that she had been reassigned. She is great and some other kids are really going to really benefit from her time. We are eternally grateful for everything she has done. She is going to desperately try to find another clinician to take over from her. I know she will really try. We may get a replacement. The Nurse was the only clinician he really has connected with. Those connections are rare for him. Making a new connection is going to be tough and most certainly not guaranteed. As the Nurse said it feels like we have lost the progress made over the last few years.

Today feels like one of those tough parenting days. As a friend wrote recently we pick ourselves up, dust ourselves down and start again. We most certainly do. But it feels like it’s a much depleted team taking on the struggle. Forgive me I’ve not used a Lord of the Rings metaphor for a while. It feels like the heavens have opened. The hordes are massed outside the walls and I’m stood alone on the Battlements of Helms Deep. Just me protecting our son now. Doesn’t feel like Gandalf is riding over the horizon in the morning. I’m going to have to just find a way of doing this myself.

I’m off now to kick the ball into the net a few times. Maybe with a bit more force than usual. Then the fight starts again.

Posted on by bereavedandbeingasingleparent · 75 Comments

Not my berries

Wild strawberries get everywhere. Now they have found a way into the large tub which contains the old blueberry bush. This raises one of the great life mysteries. Wild strawberries are cropping up all over the garden. Even on the stone drive. Yet I find it impossible to grow them when and where I want them to. Nothing ever happens with my strawberry seeds. Most frustrating….

So officially no work until September at the earliest now. I guess it gives me more time to tend my strawberries. But we are SO fortunate compared to many others. We have beautiful memories. We have a nice (if slightly chaotic) garden with a lovely view. We are relatively secluded. Son can feel safe here. We can scrape by and pay the bills. We can still have fun and enjoy life. Yes another 3 months of this self contained world can at times seem a claustrophobic thought. But that thought is there only if I let it exist. In reality I’m losing a few brief encounters, some knee jarring runs and an occasional trip out. Counter to that – Son is gaining a feeling of security. For that security I can more than cope with a few inconveniences. Everyday we still have the ability to create memories and live out our dreams. Maybe not my frequent night dreams featuring talking cows and dinosaurs. But you know what I mean.

So let’s be thankful for what we have. Let’s use what we have. Let’s remember to live.

Let’s take the time to watch the wild berries grow…

The other thing about the wild strawberries is that they don’t last long. The are stripped bare by our frequent garden visitors. That’s fine with me. I guess they were the ones who brought the seeds here in the first place. So they grew them, so why not let them enjoy the rewards. And the answer to the great life mystery. I should leave the gardening to the experts. The wildlife. Having said that – they don’t seem very willing to cut the lawn.

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School at home week something

Still summer…

It’s the end of another school at home week. These weeks are just merging into each other now.

School at home has gone pretty well over those whatever weeks. Son has adjusted well to it. He’s been pretty relaxed but we have a cloud on the horizon. Next week the school is starting to bring in virtual classrooms and live teaching via Microsoft Teams. Son hates the thought of being videoed. He really struggles with it. Plus with the other kids present he will retreat into his shell again. So this new teaching development has filled him with dread. The technology will work. Will it work for all kids. Will it work for those kids with special educational needs. That’s a bridge to cross next week.

The other thing which has stood out is observing the impact a slight change in school routine can have on our son. And it’s not just the virtual classroom idea. Sudden and unscheduled changes in teaching style, teacher, timetables…. All these have a major impact on him. He becomes deeply unsettled and stressed out. This really compromises his performance. I’m not 100% certain schools are aware of the impact these things have on kids on the spectrum.

But back to this week. What has this slightly bewildered parent learnt.

  • Son can walk, eat, drink and use his iPad at the same time with ease. I struggle to walk without crashing into walls.
  • Two words have the immediate effect of sending me into the kitchen to eat junk food and find coffee. French and Drama….
  • How many lessons does a kid need just going on about how to make puff pastry. Surely Food Technology can find another food to look at.
  • Apparently the term for you arm hairs standing on end is Piloerection…
  • When I get the feeling that I am right and the science teacher is wrong on magnetic fields, it’s probably best to fact check my knowledge first……
  • Occasionally giving a kid a little constructive feedback on work might be a good idea. Most teachers do. Unfortunately some teachers give nothing back. That’s something like 13 weeks with nothing. Really…
  • Practicing tennis in the garden is difficult when you can’t find any tennis balls.
  • Practicing tennis in the garden is difficult without balls and it’s chucking it down.
  • Practicing tennis in the garden is difficult without balls, in the rain when you can’t find the tennis racquets.
  • Online French classes seem to drain the iPad battery much quicker than any other subject. This is bizarre as French vocabulary seems to have exactly the same effect on me.
  • It’s rather emasculating when your Son decides to film his own art cartoon project. The words maybe getting the cartoon in focus might be a good idea do sting….
  • When your son has Dyspraxia and Dad has basically got the artistic talent of a Brussels Sprout – trying to free draw a pie chart on the iPad is basically a waste of time.
  • iPad voice recognition works with hundreds of languages but can’t handle anyone speaking with a Yorkshire Twang. For example how difficult can it be for a machine to understand someone saying ‘Royalty’. As hard as Son tried the iPad kept hearing Roll over and when I tried it heard Reality. Remind me not to try it with a word like luck.
  • I can’t remember how to programme the microwave or where I left the TV remote control but somehow I can remember school calculus. How is that possible.
  • The school has done a great job in getting the school at home IT working. But it hasn’t cut down the paper usage. Since the project started in April we have used up a full ream of paper….

So another week down. I get the feeling next week will see the return of the really sarcastic parent….

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Horse Racing

Another post and another rose. At least I can grow a few roses. That’s a start isn’t it. A start is usually a good thing…. In this post today means yesterday thanks to WordPress refusing to post last night.

This morning I started looking at employment options. It looks like my job will get mothballed for many months. It’s so dependent on public and sporting events. Realistically these will not properly restart any time soon. So it looks like the sensible decision is to close the company down and then relook to launch again in 2021. Which leaves a decision to be made. As it’s a great fit with my single parent circumstances, do I try to survive on savings until it’s back again? Or do I find something different to either fill in the gap or completely change career path again. So today I today I started looking at available options. I have to say trying to find a job I can make fit round our Son is not easy. I really fell on my feet with this current role. Yes the money is not great but the flexibility is such a bonus. Today’s search just confirmed that. Couldn’t find one option which would work for us. Especially when you factor in the potential commitment to full time homeschooling. But I will keep looking.

“Dad not sure a Train Driver is a great idea. Even on tracks you would just end up getting lost.”

True…. what about a Zookeeper

“Dad your scared on spiders, snakes, wasps and parrots.”

Ok what about a librarian

“Your far too noisy and you can’t even put your own books away.”

Pants that’s true. What about a parking attendant. I would get a free hat.

“You are too nice, you would never hand out any tickets.”

What about a chef.

“Just NO.”

How about a window cleaner.

“Have you seen how dirty our windows are”

So after drawing a complete blank we headed outside to contemplate life, the universe and the state of our windows. There we heard a sound which we haven’t listened to since March. Horse Racing… Our nearest neighbour is a lovely elderly lady. I’ve known her for 18 years now. Over those years she has become increasingly frail and hard of hearing. Each year her TV volume needs to be turned up one extra setting. Definitely now turned to 11 on the 10 scale. Which is great as I can turn my music up just a little louder without fear of upsetting the neighbours. Not sure the quaint old village is quite ready for loud Mongolian Throat metal quite yet… Its certainly not something you hear from my neighbours TV.

She only watches one thing really. Horse Racing. Today Horse Racing restarted without crowds, in the UK and it’s most definitely on next door. That means my neighbour is happy. And that’s a good thing.

Posted on by bereavedandbeingasingleparent · 73 Comments

Homework

The hardy old rose bush right next to the front door. Against all the odds, it just keeps on giving.

In a few hours the school at home project restarts again. One more 7 week push before we finally arrive at the summer holidays. What kind of Britain will it be? The old normal, the new normal or something else.

This afternoon was glorious. Hot (for here) and sunny. Unbelievably not a single cloud all day. This is Yorkshire remember.

Yes this is Yorkshire but sadly it’s connected to England. Which means it has to live with the Government’s take on education. So while the sun beat down, we were inside. Trying to get homework completed and revision to stick. It’s bizarre that we force kids to work during holidays and weekends AND yet we have a part time Prime Minister who avoids such weekend and holiday work at all costs…. Yet again one rule for the many and another much nicer rule for the few.

The really frustrating thing is what exactly is the homework achieving. Four hours today and what did our Son learn….

“What is the point of this Dad. I’ve not learnt one new fact. Not done anything which is interesting. I’m bored out of my mind. My hand hurts from writing and I dislike these subjects even more.”

Sadly I can’t argue with this. The school system here has been deliberately broken. Not by the teachers but by people in The Government. People who enjoyed the benefits of expensive private education. It’s not about developing individual kids now. It’s all about ticking political boxes for those in power. This government will not change its mind. But change is needed. So it will be local change.

We will continue with the school at home project until the summer. Remember this is not homeschooling….this is just trying to do exactly the same school lessons just not with the kids sat at a desk in the cramped classroom. In the summer our Son will decide what he does next. To go back to school or to go for full homeschooling. It’s his call. If he defers to me then he is leaving school. But what to do with the next 7 weeks. We have just brought in a new house rule.

Son will only be expected to do additional homework if it meets one of 3 conditions

  • He will actually learn something from it,
  • He will find it interesting,
  • It actually is going to contribute to his overall assessment. (Staggeringly much homework does not. Frequently it is not even marked in detail and sometimes not at all.)

We did have a fourth condition but that was dropped

“Dad that’s a pointless condition. How many kids will honestly admit to actually wanting to do a piece of homework. Definitely never me….”

So if a piece of homework does not meet one of these conditions then he won’t be asked to complete it. I will write into school and let the teacher know. If the school wants to push it then they can deal with me. In our house – I am the headteacher and remember I don’t currently have a PM…..