aspergers, autism, dyslexia – Page 3 – A Dad trying to cope with the loss of his Partner and becoming a single parent.

Posted on March 13, 2021March 13, 2021 by bereavedandbeingasingleparent · 61 Comments

This time

I can’t blame him for these, this time. But it does explain why he keeps coming in the house with muddy paws.

I had a post yesterday about Autism. When I wrote it things seemed ok with it. But then something happened. I happened….

I’m still working through this pcurrent bout of depression. Won’t be the first or last time I do this. When depression becomes DEPRESSION with me I start to doubt myself. Question my worth. That’s what happened yesterday. I reread the post and didn’t like it. The words were wrong. Uncertain of the message. Why was I bothering. If people want to read about Autism and Autism Patenting then they would be so much better off going to other blogs. Go to a blog like Robyn’s wonderful one. Nothing I said could change my mind. The voices in my would not be satisfied until I deleted the post. Eventually that is what happened.

Today the voices are not so strong. I guess today the post would have had a slightly better chance of being published. With my depression it comes in waves. Bad days then better days. Will be that way until I finally get on top of this run of D. In the meantime I will plod on. Trying to not listen to the voices in my head too much. Focusing on those things in my life which bring joy and happiness.

I can do this

We can do this.

Posted on March 4, 2021March 3, 2021 by bereavedandbeingasingleparent · 57 Comments

The future

The National Autistic Society has carried out research on the reality of adults living with autism spectrum disorders. It’s a sobering read.

I just want to highlight some specific lines in the report.

49% of adults with autism or Asperger syndrome are still living at home with their parents. 65% of these adults have had no community care assess- ments and are therefore unlikely to be known to the statutory agencies who should be supporting them.

31% of adults at the lower end of the autism spectrum are still being cared for at home, despite their high level needs. 45% of parents believed their son or daughter required 24-hour care, and only 15% thought they could live in sheltered or shared accommodation.

Only 3% of adults at the higher end of the autism spectrum are living fully independently, and a further 8% are living independently with some regular professional or family support.

As the report points out Families are picking up the care responsibilities in the UK associated with autism. Repeated Government’s have buried their heads in the sand. The current government unbelievably has probably set the bar even lower.

Like many families around the UK (and worldwide) my thoughts are increasingly focusing on the future. What will happen to Hawklad as an adult in our society which is so badly setup for those on the spectrum. Let’s just say that its currently not an entirely reassuring feeling I have. Yes I’m worried.

Posted on March 4, 2021March 4, 2021 by bereavedandbeingasingleparent · 45 Comments

Autism

It was such a grey day today. Couldn’t find anything to photograph so let’s see what happened a year ago. So back 2020 and guess what was back!!!! After a few really bad storms our lake made a brief appearance.

One of the questions I’ve been asked the most by other parents and a few teachers (but interestingly never by family and friends) is

‘Does Aspergers get better with age?’Even occasionally the question becomes ‘will he grow out of it….”

For every polite question I have trotted out the same answer

The condition will not change but the personality traits may well fluctuate over time. Some traits may become less noticeable while others may become more pronounced.

There is research in this area but I will leave others to discuss that. I will stick to my well trodden line of each child and adult is unique. With Hawklad it is very much on par with my standard answer. Some of the traits have become less apparent as he has got older. Some of his old repetitive behaviours like hand flapping are hardly seen these days. Where’s as some traits like fixation on objects and constant motion have stayed largely the same.

But there are also existing traits which are becoming far more pronounced. Verbal stimming (repetition of words and sounds) has dramatically increased with him. Phobias and social anxieties have increased but how I’m just not sure how much of that is down to the pandemic.

Aspergers is very much who Hawklad is. It’s his personality. It is him. Sadly there is still too often a fundamental misunderstanding of what being on the spectrum actually means. Not enough understanding of what it is to be Autistic. We have such a long way to go as a society.

Posted on March 3, 2021March 2, 2021 by bereavedandbeingasingleparent · 41 Comments

Frustrating

The sun goes down on another school at home day. It was one of those days where it feels like for every step forward we took two giant steps back. Such hard work.the really frustrating thing is that it wasn’t the actual learning which was the issue today. No the frustrations came from repeated system crashes, missing content, confusing instructions, formatting disasters and online tests that will only work with exactly the right spelling and format.

We can make home schooling so much easier for the pupils than this…

So with the frustrations still ringing in my head another school communication arrived. All about the required Covid testing to support the schools reopening next week. Each family will be required to self test families using the rapid result kits TWICE a week. On top of that all pupils will be tested with the same kits once a week in school.

My one question is that if our schools are completely safe and not hubs for virus transfer (according to our PM) – why is this level of testing required…..

The school letter also apologised to parents for the confusing over masks in the classroom. A few days ago the PM told schools that masks had to be worn in the classroom. Our school wrote to parents to inform them of the new rule. Unfortunately the rule has now changed again. The PM has now said they are only recommended and school can’t enforce them.

More frustrations……

Posted on February 23, 2021February 23, 2021 by bereavedandbeingasingleparent · 32 Comments

Pop Art

And still it shrinks. I’m going to miss it when it’s gone.

Back to school at home and back to the daily fun…. Started with the usual happy pep talk from a teacher. To paraphrase.

‘Remember I’ve set some work before the week off. It’s voluntary but I can see what people have done and how long you have spent on it. I am checking….I’m about to do your assessment….”

Ok….

Then I accidentally phoned the school. Who hasn’t done the ‘put the mobile in your back trouser pocket just to see how long it takes for your bum to unlock the phone and dial a number’ trick. The mobile can’t have been in the pocket for 2 minutes before suddenly I heard a strange voice coming from my nether regions. How is it that it takes me hours to figure out how to unlock the mobile, find the phone app, then repeatedly fail to type in the number. Yet my butt can unlock the phone and successfully call someone in a fraction of that time…..

So after I had apologised to school reception it was back to the usual fight with submitting pieces of work and trying to find the class work on Teams. Fights with explanations, hidden meanings and unclear instructions.

Quickly followed by the ritual Dad humiliation.

“Dad apart from Andy Warhol what other Pop Art practitioners can you name.”

Erm……..

“Ok can you at least name a few famous Pop Art pieces and before you say it, NO Godzilla doesn’t count.”

Erm there was that picture with about 100 Madonna’s replicated.

“Dad. You mean Monroe and it was 50 times…”

That’s the one. Then there was the soup tin. Erm Andy Warhol was in Men in Black 3, does that count?

So basically no help…….

But maybe my backside could become Pop Art. Probably not. Not sure how big the canvas would have to be to get 50 replicas of my butt on. But if they could then I could literally be sat on an important piece of avant garde culture. Sat on a fortune.

Posted on February 23, 2021February 22, 2021 by bereavedandbeingasingleparent · 41 Comments

Blink

Blink and it’s gone. Blue sky.

I remember back to my school days. Apart from living in caves and avoiding the dinosaurs, I was like most kids. Some stuff went in to my head easily, other stuff not so easily. Stuff about Physics, Mathematics and Geography went in. Subjects like History the dates would take a lot of effort to stick. Subjects like Chemistry I was ok. However French I was awful, it might as well have been a foreign language…. Biology I was not much better.

Today I was trying to help Hawklad understand Chemistry. He struggles to visualise chemical reactions. So trying to calculate reaction energy levels was a nightmare for him. Whatever we did he just couldn’t see it. That’s the thing with Hawklad, maybe that’s the thing with his Aspergers. He gets blind spots. They go beyond the dyslexia issues. With dyslexia if you read out the word then he can understand what he’s trying to learn. But these nothing seems to shed light for him. Some things he just can’t process and visualise. With a subject like French it’s a massive blind spot. History there are zero blind spots. But with other subjects he can understand most things really well but randomly encounters these blind spots.

Mathematics it’s decimals and volumes

Biology it’s cell structures and names

Design Technology it’s visualising 3D designs

Geography it’s grid references and grid lines

Physics it’s magnetism

Home Economics it’s cooking times

And Chemistry is chemical reaction equations

He can be going along swimmingly then encounter one of these areas and it completely stops him in his tracks. We kind of ignore them now. Blink and move on. Focus on all of the many areas he can make progress on. Hope that the blind spots don’t come up too many times in his main exams.

At the moment that’s our plan.

Posted on February 21, 2021February 21, 2021 by bereavedandbeingasingleparent · 40 Comments

Back

Everyday our little lake shrinks just a little bit more.

It’s Sunday. The last day of the Half Term break. Tomorrow the next leg of the school at home project commences again. Does it sound bad that I’m not looking forward to it.🤓🤬😱🤯

The delights of Zoom meetings and lessons. The word Zoom has replaced Cauliflower has the one that makes my stomach churn the most. The mandate to use Microsoft Teams then trying to work out which teachers are not using it this week. The soul shattering tiredness which ensues from the daily 630am alarm call. Trying to get my head round chemical reactions, tectonic plate theory and trigonometry. Trying to help with French while being unable to stop helping in German. Trying to explain coding to so dine with dyslexia when I don’t see the point. Not being able to find the right coloured pens and stationery. Failing to get Hawklads homework to submit by the deadlines. Emailing teachers to remind them that Hawklad is still here and still a member of the class. At home but not having the time for housework. Constantly fighting the urge to drown in a swimming pool of extra strength coffee and gorge on every cookie within a 10 mile radius.

Yep not looking forward to that starting again.

But it will be done, I just might go a bit grouchy….

Posted on February 17, 2021 by bereavedandbeingasingleparent · 93 Comments

Cut the grass

I know it’s all gone but the field looks better for it….So let’s go back to just before the thaw.

I was sat in my car. It hadn’t moved in weeks so I thought I had better run the engine for a bit. Reverse it a few times up and down the our little drive. Make sure the brakes haven’t seized up. If I was sat for weeks my knees would definitely have stopped working. I was looking at the three peddles and scratching my head. I had forgotten which one was the clutch. After a few test presses I sussed them out again. Clearly driving doesn’t come naturally to me.

That’s probably very like parenting with me as well. I’m probably better at being the kid than the one apparently in charge.

Then a worrying thought. What if I’m getting this parenting lark completely wrong. What if I’m making things worse for a Hawklad. Who knows. I’ve never been assessed. It was easy when there was two parents. Someone would tell me if I was wrong. A quietly whispered ‘tell you what why don’t you go and cut the grass and I will do that’. But then that abruptly stopped in 2016. This summer it will be 5 years of me parenting solo. No checks. No assistance. No manual. Doing this all by myself. Over those years there were many times I would have definitely told myself to go outside and cut the grass.

What if I’ve got this wrong….

Would my partner have done it differently. Probably. We often politely disagreed. Even down to how to change a nappy. She wanted him to go to a different school. Was she right? She had a different view on the approach that should be taken with his Aspergers and Dyslexia. Have I been too laid back on the implementation of his Education and Health Care Plan. Have I done all I could for him. Have I missed something which would help him with his fears and phobias.

I guess the answer is that I will never know. All I can do is my best. Hope I get most things kinda right. Hope I don’t drop too many balls along the way. Maybe even find the time to cut the grass.

Posted on February 12, 2021February 11, 2021 by bereavedandbeingasingleparent · 89 Comments

Origami

Tracks. Can you guess the little visitor?

***********

“Dad I’m not happy…”

What’s wrong?

“School. Apparently they think that origami is a fun activity”

Well many would agree.

“Not here they won’t. So when a teacher says ‘I have a fun activity for you‘ I personally would not be then referring to origami. I am tempted to contact my lawyer on this.”

Just 4 minutes

A stunning morning sky which lasts for just a fleeting moment. If only it lasted longer.

So the online parent evening has been and gone. It was an experience.

So you try to book a 4 minute slot with as many teachers as you can. The booking process felt a bit like a 50% off sale at the local everything for a £1 shop. Chaos. The booking system opens and it’s every parent for themselves. Only so many slots. Survival of the fittest. Unbelievably I managed to book 6 subject chats while only suffering minor superficial damage.

So the evening arrived. Oh what fun. You log into the school system and select parent video chat. Then wait for your slots to arrive. Looking at a blank screen with a helpful timer showing a countdown to your next slot. What would happen. Do we get a fanfare and fireworks when the timer hits zero. Or is it more like the Alien attack in Independence Day. “Times Up”.

Nothing so dramatic. A box appears showing a live video of me. Another bigger box saying ‘awaiting teacher’ and a 4 minute timer appears at the top of the screen. A timer which doesn’t wait for the teacher to arrive, it starts to count down immediately. Then like magic the teacher appears at some stage. Then we chat while the timer rapidly heads towards zero. Helpful on screen messages appear telling me that I have x chat seconds left. Then at zero the screen instantly goes blank. The chat is terminated automatically. Then another timer appears telling me when my next chat will begin.

Wow.

So what did I learn from the process.

The dog is guaranteed to bark as soon as the first chat starts and the big boy cat will try to position himself between you and the camera. The helpful big fella will then start to attend to his undercarriage in front of the camera.
Just how off putting it is to see your own face while your trying to chat. I should be thinking about Hawklads education and future yet what am I thinking…. ‘wow I’m ugly’. Maybe I should buy a George Clooney mask for the next one. But at least I combed my hair. That’s something which is seemingly beyond our PMs abilities.
It’s important to test out where I should sit for the chat. What is behind me and in full view of the teacher. Maybe I should have a Union Jack flag on the wall just like the bozo’s running our country now must have for every fire side chat. Or maybe a collection of high brow books neatly stacked on a shelf just over my shoulder. This time over my shoulder was a shelf with DVDs on. What made it worse was the dvd in plain sight of the teacher. Deadpool. Says it all.
Why do some teachers have the ability with just a steely look to get you to instantly sit up straight
With only 4 minutes on the clock it’s important to drop things like ‘hello’, ‘good to meet you’ or ‘shall I repeat that’.
4 minutes is only just long enough to get an update on this terms performance and splutter out ‘in terms of option can we discuss…’ before the time runs out and the Aliens blow up the Whitehouse.
But when your mind goes blank, 4 minutes feels like an eternity.
How difficult is it for me to keep my head in the camera shot. Too many times it was either just my chest or the top of my head appearing. When I did remember to stay vaguely in shot the teacher would then start moving in and out if shot. Unbelievably when they moved out of the screen I would automatically try to move with them as if that would get the teacher to reappear. Madness.

So that was it. It went too quickly. Now it’s a week before next years options are submitted. Much thinking to be done. But maybe I should have tried Hawklads approach. Play on the Xbox and go with the flow. Yep that sounds a much better use of 4 minutes.